[QUAD-L] Caregivers
Hi everyone. Just wanted to say thank you so much for all the advice and support and phone calls. It helps just knowing you guy have been through the same thing. And you all gave me the same advice...must be something to say for experience! Thanks again. Amy - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
[QUAD-L] To caregivers.
Just need some support...ok a lot of support. I am an AB caregiver to my bf who is a quad. I am 42 and he is 48. Going thru some really rough times now...the both of us seperately and together. Just need to talk to someone who understands and can help me get thru this. Seems I am at the end of my rope in more ways than one. Please email me privately. Thanks so much - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
Re: [QUAD-L] Fwd: Great message
Oh my! This guy is truly amazing. I had to show the videos to my sons who were also amazed at his independence. He is an example even for us AB's. To appreciate all the things we take for granted. I even forwarded it to my friends. This was good to see after feeling sorry for myself for a while now. Makes me realize how lucky I am to be an AB. Sometimes I take it for granted even though my bf is a quad. Thanks for sharing that. He is a special person for sure. Amy Danny Hearn [EMAIL PROTECTED] wrote: Note: forwarded message attached.Date: Wed, 27 Feb 2008 06:59:08 -0800 (PST) From: rita woolen [EMAIL PROTECTED] Subject: Great message To: Marlita Bassett [EMAIL PROTECTED], Jerry Craig [EMAIL PROTECTED], Danny Hearn [EMAIL PROTECTED], Yolanda Simpson [EMAIL PROTECTED], David Smith [EMAIL PROTECTED], Willie Sohn [EMAIL PROTECTED] This man is an amazing speaker and has a great message. If you watch all 3 sessions of no arms no legs no worries 1,2,and 3 it takes about 12 minutes. Well worth the time and info. It gave me some things to really think on. http://youtube.com/watch?v=fOknAY1mRq8 http://youtube.com/watch?v=yo_24_qTNacfeature=related http://youtube.com/watch?v=6bL3GR4iAW0feature=related http://youtube.com/watch?v=3O6OluBxGtMfeature=related No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.1/1299 - Release Date: 2/26/2008 9:08 AM - Looking for last minute shopping deals? Find them fast with Yahoo! Search. - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
[QUAD-L] Re; Tv show
I wanted to let you guys know there is a show coming on tv that you might be interested in. It is called Mapping Stem Cell Research: Terra Incognita. It is on PBS on jan 15th. Not sure what time. It follows Dr. Jack Kessler's push to cure spinal cord injuries. Motivated by the plight of his own daughter, Allison_paralyzed in a skiing accident-the neurologist shows how personal science can be - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [QUAD-L] (no subject)
Good luck with that one! The list is endless. [EMAIL PROTECTED] wrote: Working with Shepherd folks to try to do something..for those that leave hospital after rehab..Concentrating on home environment needs..Myron - Start the year off right. Easy ways to stay in shape in the new year. - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
RE: [QUAD-L] Neck! Syrinix question?
I know a lot of you have to Deal with a syrinix. My question is this. Is there any relief? Have any of you had sucess with draining it or with surgery? Does it always come back? There has to be something that can be done. Silas Shelburne [EMAIL PROTECTED] wrote:Lori, Reading your post sounds just like what Im experiencing, I have a syrinx that may be causing the pain. I have a appointment with a nuro surgeon in February, but dam I dont know if I can stand the pain till then. It was after 3 before I finally went to sleep, what do you take that helps? Thanks Silas From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Saturday, January 05, 2008 6:31 PM To: Silas Shelburne; quad-list@eskimo.com Subject: Re: [QUAD-L] Neck! Like Billy ... I have something very similar to what you describe. It began in 1997 at the lower part of my neck. Pain but no numbness. The muscles in my neck have always been very strong since my injury in 1979/1980 because I have to use them to help hold me up, etc.. My neck was fused from C2-C7 ... I guess the surgeon at the time really, really, really wanted to make sure that my neck was stable! It sure is -- but NOW at an expense. My husband teases me that my neck bone is connected to my butt bone! LOL All kidding aside because this affects me every day now. My neck fusion is what does not allow me to turn my head to the left or the right very far at all. This was never a problem for the first 17 years after my injury. I would have thought after all of those years of depending upon those muscles (neck, lower neck, spine and shoulders) that I would have some sort of pain or problems LONG before 1997 but nope. I was then diagnosed in September of 1994 with Syringomyelia and had surgery. However, I had none of the pains anywhere until two years after the surgery! But the pain is pretty much where my spine is and where the shunt is located... my lung cavity. Which is also where the trapezius muscle is that is aggravated if I overuse it. So it is like it is all tied in together at my expense. The ONLY thing that had changed in my life was that my EX wanted to split up and I ended up moving into an assisted living facility. I was no longer transferring or moving the way I had been for many years. ALTHOUGH... absolutely nothing was hurting me when I was transferring or getting moved. So, by process of a limitation, and since it started right then... I must assume that my body was getting moved in a way that my upper neck and spine and all the areas mentioned above DISLIKED whatever was happening different and even now I am very careful now until this day... there is no going back. Things have only worsened. Although Syringomyelia is a condition that either stays stable or gets worse. Like you... turning my head left or right makes everything much, much worse! My MRIs show that everything is OK. And the last comment that I got from a doctor seems to sum it up the best. He said that the shunt is probably woven through muscles and nerves and is now causing pain. I will not be going to have my spine manipulated again by any surgeon. Every time I have done that... I have come close to death. I have tried just about every narcotic out there as well as relaxation, tens units, and so much more without relief. Massaging or even touching area harder than a light touch ... exacerbates everything for the worse. I have had to just learn to deal with it and some days are much better than others. But the last three weeks have been terrible. Whenever I exert myself I think it causes my spinal fluid to be aggravated by pressure. I am not even able to blow my nose because that hurts everything for weeks afterward. Foolishly... I was imitating my husband snoring in the middle of the night about three weeks ago and that is when it began. That sounds funny I know but I have been in so much pain SINCE... that it is not funny and will teach me to NOT try to do something that I know I should not! Or that will bite me in the end. I just get so damned mad at my body for being so hypersensitive! It's beyond the ridiculous end of the spectrum. Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ On Jan 4, 2008 1:36 AM, Silas Shelburne [EMAIL PROTECTED] wrote: Hi everybody, I'm having terrible neck shoulder and arm pain and numbness, the mussels in my neck are so stiff and sore I can't hardly turn my head. It's worse in bed when I turn my head, it's like the neck muscles are knotted up and won't turn loose. Anybody else had this problem and what did you do. Thanks Silas -- Lori C4/5 complete quad, 27 years post Tucson, AZ - Be a better friend, newshound, and know-it-all with
Re: [QUAD-L] Don't Park In The Handicap Spot
It is actually easier for me to park my boyfriends van at the lower end of the parking lot. he is on a vent and it gives us a little more privacy to suction or empty caths if needed. Plus I park sideways in 2 spots so that we are not blocked in. Looks like I cant drive but no one can get near the door that way to block it. My daughter is not paralyzed but is in a wheel chair at times if we have to go shopping. She can walk short distances and we do sometimes park in the handicapped spots so she can walk in. Then we grab a chair at the door. To anyone else..she would look normal. But walking across the parking lot is a journey for her. So things are not always as they seem. I do agree that some people park in the handicapped spots when they shouldn't. But some of those folks have heart conditions and things that just may not be visble to all of us. [EMAIL PROTECTED] wrote: I love this persons reply from the site: --- The whole point of a gimp spot is so that someone who uses a wheelchair can get the damn thing out of the car/van/truck,THATâS what the extra (cross-hatched)space is FOR,particularly someone with a lift who canât get out otherwise and would get blocked in without that extra space being respected.I canât count how many time some asshole has parked on the cross-hatching making impossible for me to get back into my car (without getting someone to move it or waiting for the asshole).They always reply the same way,no apology just some lame excuse. The same one I hear when I have to wait outside a larger stall in an airport shitter for the guy to wipe his ass mid-turd because I pounded on his door saying âyou better be in a wheelchair!â . I always asks âdo you know why they build this bigger stall?â they never answer the question and rarely apologize,way too many actually get mad. Back to parking spots,I think people who need a van with a lift or ramp or extra space for a WHEELCHAIR would love a spot at the far end of the parking lot that the lazy,âsore-toesâ or lazy sore-toes wouldnât use leaving them open for people who actually NEED them. To answer the people that think there are too many spots that nobody ever uses which makes them frustrated (whaaainnh!) To gimps like me the spots are always FULL with people that can walk and are very far from needing a wheelchair.They start limping extra heavy when I cruise by from the other end of the parking lot where I had to park against a curb or wall where no-one can block me in. -- OK, enjoy your evening everyone...this made mine. Keith/35/C4-5/NJ - See AOL's top rated recipes and easy ways to stay in shape for winter. - Never miss a thing. Make Yahoo your homepage.
Re: [QUAD-L] Quadius_Beds and Our Bedrooms
I would love to have a bed next to my boysfriends bed. Side by side would be nice. But it would be nice if we had matching beds...even a second bed that could raise to the same level as his. I love to hear him breath and just to be able to touch him. Sleeping with him makes it hard for him. It causes him to have spasms every time I move and it wakes him up. Would be nice just to be near him. Maybe I can convince him to remodel. Amy Lori Michaelson [EMAIL PROTECTED] wrote: I am able to hide most all of my medical stuff in our walk-in closet--fortunately! Especially being female and wanting a bedroom to look like a bedroom and somewhat decorative as much as possible. But there are just things that we use every day and since my husband wants them all within hands reach (and most of all he is my savior who has saved me so many times regarding skin problems, avoiding me getting hurt by doing certain things himself rather than leaving them to an aide, etc. etc. etc.) there are numerous tubes of this, sprays of that, underpads and other things that just sit atop one of our chest of drawers and I am a shelf of a bookshelf. I also wish I could get into a normal bed (ESPCIALLY with my husband with his bed being right next to my hospital bed!) but my morning and evening care absolutely requires a hospital bed for not only the aides but for my husband as well when he helps me 97% of the time! Believe me... I know my body best after 28 years and my husband being an engineer... so it is not conducive at this time. Our goal is to move into our own home with a very large bedroom whereby I can have my hospital bed in it and we can have a king-sized bed in it and then have ceiling lifts installed. Haven't found the right house in the right location at the right price but we look daily! You, Quadius, have much more independence than I do so enjoy it! You and I talk off list on occasion so I see we have one other thing in common! Or at least hopes for these things. Lori C4/5 complete quad, 28 years post Tucson, AZ Quadius wrote: Medical. My bedroom looks like a medical nightmare. I wish I could go to a normal bed, but it would be too hard on my PCA's. Not to mention that I love the freedom to be able to move my head up and down with the use of my ECU. I have come up with a way to take my medication in the morning by raising my head up and pulling down a film container which has my medication in it. I just don't want to lose my independence. I definitely would like to have a bed someone could lay on with me. Quadius - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [QUAD-L] Quadius_Beds and Our Bedrooms
I wonder if you can use an alternating mattess on one side of those. But it may make it hard to do his care too. If you had two beds side by side...then they can be seperated to do the necessary care. [EMAIL PROTECTED] wrote: Thanks for expressing the slippery slope of a normal relationship with a quad. And yes the spasms could be a problem in the middle of a dream, lol. Have you considered one of those expensive comfort number beds with the dual controls. Best Wishes In a message dated 12/8/2007 8:04:28 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I would love to have a bed next to my boysfriends bed. Side by side would be nice. But it would be nice if we had matching beds...even a second bed that could raise to the same level as his. I love to hear him breath and just to be able to touch him. Sleeping with him makes it hard for him. It causes him to have spasms every time I move and it wakes him up. Would be nice just to be near him. Maybe I can convince him to remodel. Amy - Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
Re: [QUAD-L] Hello : - )
Hi..and welcome to the list. I am an AM with a boyfriend who happens to be a quad. I have learned so much from everyone on here. Hopefully you will too. As far as serious questionsSHOOT! Now you got me wondering Amy AmazingE-Books (mrtom) [EMAIL PROTECTED] wrote: hello everybody, i am an new member, interested to see what this forum has to offer. i have a serious question, but will keep it for later have a nice day : - ) tom - Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. - Need a vacation? Get great deals to amazing places on Yahoo! Travel.
Re: [QUAD-L] Total humiliation
Miri, I am not sure what happened to you. But it will be better tomorrow. AB people are actually more accepting than you think. No matter what happened, it will be ok. Hang in there~!!! And please...You HAVE to go out ! It was a bad day but they will not always be like that...I promise. ((( HUGS))) Amy Miriam Braunstein [EMAIL PROTECTED] wrote: This afternoon was such a total dignity sucker that I'm too embarrassed to even post the e-mail I wrote about it. I've had MD all my life, and I know I ought to know better, but I don't ever want to leave my house again. Hope all are OK, Miri - Tonight's top picks. What will you watch tonight? Preview the hottest shows on Yahoo! TV. - Looking for a deal? Find great prices on flights and hotels with Yahoo! FareChase.
Re: [QUAD-L] Trachs
THis is a very scary decision I am sure for you to have to make. But you gotta breathe! Trachs are very intimadating for caregives and patients. But once you get used to it...it is like everything else, just a part of your routine care. Passey Muir valves do work but it does take some training and gettting used too. You cannot just pop it on and hope it works. my BF keeps his trach uncuffed and he can actually talk on the vent without the PM valve. My bf is on a vent and it does not stop him from doing things he enjoys. ( I am sure he would argue that point!). It does take more time to deal with daily issues related to trachs and vents. The biggest danger is the trach plugging up due to secretions. Anyone that takes care of you MUST know how to change the trach in case of an emergency. Infection is definetly a problem. Anytime you have a direct opening into the body...this is going to be an issue. Keep it clean and dry as possible. A split dressing under the trach with a very small amount of desitin will help to keep the skin dry. Good pulmonary care like breathing treatments, Chest percussion and keeping the secretions loose so they do not stop up the trach are the basic principles. The vent you are speaking of is small and portable. If you depend on the vent to breathe make sure you DO NOT leave home without any supplies you need!!! This is very important. Make sure you have an extra charged battery, and at least 1 extra tubing, cannulas, collars...anything that you may need. Even if you don't think you will need itTAKE IT! We just have a bag and keep everything packed in that. Just grab it and go when you are traveling. You never know when you will have an emergency or snag a circuit and get a hole in the tubing. Anything is possible and will happen when you least expect it or get into a hurry. My best advice...teach your caregivers to take their time...make sure the trach care is done right. And keep it clean and dry around the trach site. And always be prepared for anything that could happen. THEN RELAX! Good luck and best wishes. Amy Miriam Braunstein [EMAIL PROTECTED] wrote: Hi all. I'm new to the list, but not to quadhood. I have a form of muscular dystrophy called dysautonomic mitochondrial myopathy/cytopathy. Like a lot of MD quads, I have breathing troubles and use a Pulmonetics LTV 1000 volume ventilator. I've been on a noninvasive protocol, mask at night and mouthpiece by day, but I'm starting to have problems keeping my sats and CO2 decent. So I'm having a tracheotomy (in December, likely) and I'll be able to hook my vent up to that and get breathing support more easily than noninvasively. I have heard trach horror stories-- does anybody use a vent via trach? If you do, is it a huge infection problem, does the Passy-Muir valve really work, how hard is the care? I'm afraid on this one. It seems really intimidating. Any advice from a trached person would be most welcome. Thanks very much. Take care, all Miri - Need a vacation? Get great deals to amazing places on Yahoo! Travel. - Pinpoint customers who are looking for what you sell.
Re: [QUAD-L] advice on bowel program
It seems that everyone has a different bowel program. Guess different things work for different people. My boyfriend seems to have a very simple program. It is called DIL. (Digital internal...something something...not sure what that stands for exactally). Every morning we turn him to his left side. And simply stimulate his bowel to move by inserting a gloved finger into the rectum. Be sure to use a lubricant...we use vaseling or prep-H to prevent and help with any hemorrhoids. By stimulating the rectum..his bowels move. He ususally has a bowel movement everyday...but not always. He has only had a couple of accidents and usually that was caused by antibiotics that caused diarrhea. If his bowel do not move or seem to be hard after 2 days, we give him 30cc of Milk of Mag before bedtime and it usually works by the next morning. If not we repeat it at bedtime again...usually 2 doses will do the trick. It has been 5 years and this is till working for him. John S. [EMAIL PROTECTED] wrote: Damn, I've missed you Quadius. Good to see your feeling better, even if better is a lil twisted. john - Original Message From: Danny Hearn [EMAIL PROTECTED] To: Quadius [EMAIL PROTECTED]; Corie Jones [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Tuesday, October 9, 2007 9:42:11 PM Subject: Re: [QUAD-L] advice on bowel program Quadiuswhile on this subject of bowel routine stuff---DID YOU HEAR ABOUT THE CONSTIPATED MATH MATITION ??HE WORKED IT OUT WITH A PENCIL ! ;-) Quadius [EMAIL PROTECTED] wrote: Increase sensitivity is the exact reason that I decided to go to every other day and sometimes have to do it every day. I was really happy doing it three days a week for 10 years, but when you can feel the rumbling and the painful spasms, there is no alternative other than to go to the bathroom when necessary. At least that's my view. Quadius On 10/8/07, Corie Jones [EMAIL PROTECTED] wrote: It sounds like most of the people who have responded go only 2-3 times a week. I'm wondering if those of you who do not go every day or every other day, have no sensation? I go every day because I have sensation and my gut/bowels feel full and bloated if I don't go every day. I have chronic nerve pain (the horrible burning and needles from my injury level down) and with the burning pain and feeling full if I don't go every day or even if I'm constipated and don't go enough, then I'm just miserable. Before my SCI (14 years ago), I went once a day, sometimes twice a day so I think it's just normal for my body to go every day. Fortunately, I use a magic bullet suppository and usually eliminate over the toilet on my shower/commode chair after 15-30 minutes. When I get back into bed, just to make sure I have got it all out, I will have a digital and get any remaining stool out. Most of the time I do not have anything left. I take 4 fiber capsules and two stool softener/laxatives every day and it keeps me pretty regular. Plus, I usually try to eat veggies and fruit regularly. I have been lucky that I have only had a handful of accidents in the 14 years I've been injured. Corie, C5, incomplete Redding, CA - Original Message - From: Elizabeth Treston To: quad-list@eskimo.com Sent: Sunday, October 07, 2007 11:17 AM Subject: [QUAD-L] advice on bowel program What is your routine? Do you take meds (i.e. senna tablets, colace, what kind of suppository; when do you take them? How much fiber? Do you take narcotics? When do you go (every day, every other day etc. As a newly injured person it takes awhile to figure out what is best for you. Many use senna tabs @ 7-8 hours before their schedule.. Some add colace to keep stool soft. Some go every MWF or every other day so they aren't attached to the toilet. Is your stool hard? Is it enough for what you are consuming? From: Nichole Rohling [mailto:[EMAIL PROTECTED] Sent: Sunday, October 07, 2007 1:57 PM To: [EMAIL PROTECTED]; Quadlist Subject: Re: [QUAD-L] Please, can you give advice on bowel program I DO A FLEETS REGULAR ENEMA AFTER B.P. IF I'VEE SAT FOR 45 MIN TO AN HR AND NO RESULTS - WE DO THE ENEMA THEN. SOMETIMES IT HELPS GET THINGS MOVING AND IF NOT IT GETS RID OF THE SUPPOSITORY NICKI - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, October 06, 2007 11:19 PM Subject: [QUAD-L] Please, can you give advice on bowel program I am so sick and tired of this dominating my life. It is after 12 midnight and I am considering sleeping on the potty chair. At 8 I inserted a suppository. An hour and and half later I decided to call it quits, nothin happening. It's 9:30 and am making my way to bed. THEN I needed to get back on and did not make it. What a mess. When will this get better? I am so tired of this that I am
Re: [QUAD-L] My new van
Congradulation! A neat van sure means a lot more independance...ENJOY! Amy [EMAIL PROTECTED] wrote: Hello Everybody! I have some great news. I bought a new van this week. It's a 2007 Dodge Mini-van, Braun conversion. I bought it from a dealer on E-Bay. I need to take it to Mobility works for hand controls the 0 effort steering. It has the 10 inch dropped floor, kneeling system a EZ-Lock that will need relocated. Were going to get an extra lock installed on the passenger side that will have me sitting in the front instead of sideway in the center of the van. It will take me awhile to get use to the difference of the low lift, 100 switches for all the bells whistles the difference of a regular steering wheel. It has 6,000 miles on it but it's the same as brand new to me! I can't wait to get the controls on it. If anyone wants to see a picture of it, I'll *gladly* send some pictures :-) Like Nicki having hers delivered with an empty tank...we had to put gas in it to test drive it. Dianna - Get a sneak peek of the all-new AOL.com. - Be a better Heartthrob. Get better relationship answers from someone who knows. Yahoo! Answers - Check it out.
Re: [QUAD-L] newly injured me.
Hi Danny. I am not a quad but my boyfriend is. I know he had a terrible time when he first got hurt. That was 5 years ago. Sometimes he still has periods that are hard. Just hang in there. You have a lot to look forward to! A lot to learn. Tell us a little about yourself..how did you get hurt? Amy Danny Espinoza [EMAIL PROTECTED] wrote: Does anyone have advice for newly injured me. I am an incomplete quad. I was injured a year and a half ago, im using a quadjoy and dragon on my computer Any help with anything is greatly appreciated. Anyone with myspace? http://www.myspace.com/danny5020 thanks in advance! - Pinpoint customers who are looking for what you sell.
Re: [QUAD-L] what causes a syrinx
What kind of test can they do to determine if you have a syrinx? My Boyfriend has been having severe pain with no apparent cause. I am wondering if this may be what is causing the problem. Pain is mostly in his legs but some in the arms. RONALD L PRACHT [EMAIL PROTECTED] wrote:well the causes of a syrinx can be argued, but basically anyone with a spinal cord injury has set the stage to potentially get one most people with an injury develope a cyst at their injury site(harmless), but in some cases these cyst fill up with spinal flyuid and en large to devlope a syrinx basically any movement, bending, twisting, lifting, screaming..can cause the syrinx to enlarge even further. now if the syrinx grows downward, not much trouble other than pain, if it grows to the sides of the cord much pain can be felt..now if it grows upwards your function can be taken away. they usually wont operate unless significant loss of function has occurred, depends on the neurosurgeon ron c7 - Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games.
Re: [QUAD-L] warm or cold hershey ??
I like chocolate in any form or fashion...mush more fun to share it too...LOL Amy [EMAIL PROTECTED] wrote: so do you guys prefer cold Hershey bars that hold their shape and almost demand chewing OR warm Hershey bars than melt in your mouth in a mushy creamy mess and stick to your roof like putty until you suck it off ten minutes later?? think carefully - cold, crunchy, disappears-before-you-taste-it or warm, mushy, stick to your roof, last-10-minute, better-than-drugs soft n warm.. guess which I'm doin' right now dave - See what's free at AOL.com. - Need a vacation? Get great deals to amazing places on Yahoo! Travel.
Re: [QUAD-L] thanks
Hi Michael. What took you so long to find this list...just curious. Glad you found this site. It is very helpful wether you are a new quad or a older. I am not a quad but my boyfriend is. He is a member here. Fell off a trampoline. I have learned a lot on here. Welcome and please feel free to put in your 2 cents worth on here. I, for one don't always post. But usually jump in on things that interest me. Amy Michael Galvin [EMAIL PROTECTED] wrote: Thanks for all of the hello's. Not so far back, someone wrote something regarding the disabled should keep their heads down in public. If anyone knows were that came from could you please let me know. Michael - - Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.
Re: [QUAD-L] After death
Everyone has their own opinion on this, I am sure. So here is mine. I have NO IDEA! I know there have been times in my life when it has been influenced by a guidiance or spirit or GOD. I think all religion have the same basic principle. Believe in a higher power. Be good to one another. Basically be nice! I know when bad things happen everyone says why did God let it happen. And that things, like becoming a quad, happen for a reason. I kind of think that is bull. I think accidents happen to good or bad people. It is how you deal with the situation that makes it ok or hell to deal with. You can become a quad and sit and dwell and get pissed at the world or feel sorry for yourself. I know everyone has these feelings sometimes. But you can also use your experiences to make a difference for someone else. Life does not always come out like we plan. But it is like going on a trip. The fun part...the most exciting parts are the ones that were not planned. Like getting lost or finding a neat place that you did not know existed along the road. If everything went as planned it would be kind of boring to know what was coming next every single second of our lives. The good parts are the parts that we did not even know was coming. I am not sure what exist in the afterlife..but I know there is no harm in being a good person. If there is a God...I know that he does have a sense of humor. And I am sure we keep him entertained here. And a lot of the times I am sure he is shaking his head and wondering how we do the things we do to each other. Ok..I have rambled on and still have not figured out if there is an afterlife or not. I know that I intend to make the best of this life. The restwell, I will find out when I go down that road too. Amy andrea murray [EMAIL PROTECTED] wrote: YES, Thank God that I almost died, I wouldn't be graduating next month. I whouldn't be giving motivational speeches, I wouldn't be helping people, Wheelchair Warrior Jessica Ann Gordon [EMAIL PROTECTED] wrote: On Apr 14, 2007, at 3:39 PM, kaye allard wrote: LOL Angie! I believe that is what is considered as properly assuming the correct karma. Speaking of extremism, or, life and death with a religious and nonsensical perspective, watch this: http://www.youtube.com/watch?v=g285x4sUKoo omg -- that's some f'd up stuff! thank god i have not been brainwashed! =jessica - Ahhh...imagining that irresistible new car smell? Check out new cars at Yahoo! Autos. - Ahhh...imagining that irresistible new car smell? Check outnew cars at Yahoo! Autos.
Re: [QUAD-L] sex
Ok...I always have to jump in on this subject. I am an Ab girlfriend of a quad...(Hi honey!). Sex is not an issues as far as I am concerned. I think he worries more about it than I do. First of all there is more than one way to please a woman. I very much enjoy the intimacy that we have. I have never been so close to anyone. It takes a special bond to get over the embarrasing issuses of sex and quad-dom. You have to be very open and have an open mind to new ideas. The only issues that I have is lack of privacy and time. For me...satisfaction is not a problem. I am sure that HE would be more happier with more orgasms for his part...wouldn't we all...LOL. I am not sure how to say what I am trying to get accross. If you truly love someone then sex will work itself out. If you are with the right partner then any issues can be worked around with a little creativity. I am sure some AB's that know we are in a relationship have their heads spinning trying to figure us out! Just be open and talk honsestly with your partnerif they are not comfortable with the situation...then get a new partner. Guys...quit worring so much and relax! I promise that sex for women is mostly in our heads...compliment us..makes us feel special and wanted. That is what we all need most. If young guys would learn this from the beginning they would have it made. Some things do get better with age. HAVE FUN! [EMAIL PROTECTED] wrote: Women can, but men can't. How unfair is that. Be cautious. Bacteria is always present in the bladder of the person with the injury. But it can be done. It has been done and it continues to be done. Best Wishes W In a message dated 4/7/2007 8:38:35 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: does anyone have sex with an indwelling catheter? this sounds risky to me... am i the only one? it could be pulled out or cause infection... yikes! =jessica - See what's free at AOL.com. - Now that's room service! Choose from over 150,000 hotels in 45,000 destinations on Yahoo! Travel to find your fit.
Re: [QUAD-L] Hotels
My boyfriend and I have stayed at the holiday inn express a couple of times. You can get a handicapped room. It had a queen size bed and we were able to use a hoyer without any problems. I always go in before I get him out of the van and make sure the room is ok and that I can use a hoyer. Some hotels beds are on risers and a hoyer will not go under them. Some holiday inn expresses have suites with 2 bedrooms and that works well when we travel with someone other than just us. They have always been gracious about helping us with anything we need. And believe me...a night out is always needed. Eric W Rudd [EMAIL PROTECTED] wrote: www.expedia.com Eric W Rudd [EMAIL PROTECTED] -Original Message- From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] Sent: Monday, February 05, 2007 8:51 PM To: quad-list@eskimo.com Subject: ***Possible Spam*** Re: [QUAD-L] Who Do I Complain To? Just curious if anybody would know if there is a list out there of hotels that have rooms in which one might use a lift (Hoyer) in order to transfer. I have only traveled outside of my immediate area once since I was injured and thankfully I was able to call them in advance and make sure everything met my needs. However, that was a government room. Thanks, Quadius - Don't get soaked. Take a quick peak at the forecast with theYahoo! Search weather shortcut.
Re: [QUAD-L] Hotels
One more piece of advice. Once we stayed in a motel in adjoining rooms with some of his family. We locked the security lock on the inside of our room door. We accidently let the adjoining door close and Si was locked in! We went to get another card key from the desk. But we could not get into the room because of the security lock. We had to call maintance to come in and use a special tool to get the door open. The bad thing was that he was on a vent in the room by himself. We were terrified that he would pop off or need to be suctioned before we could get in. You never know what can happen when you travel..make sure you have 2 days worth of supplies and at least 1 extra of any piece of equipment that you use at home. We just pack a bag with things we may need...just in case... and leave it in the van. A different bag has supplies and clothes for the day. And no matter how well I plan, I always manage to forget something. You sometimes have to improvise. Go with a sense of humor and a lot of patience. Take your time and don't hesitate to ask for help if you need it. People generally are glad to lend a hand. Most of all HAVE FUN! Eric W Rudd [EMAIL PROTECTED] wrote: www.expedia.com Eric W Rudd [EMAIL PROTECTED] -Original Message- From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] Sent: Monday, February 05, 2007 8:51 PM To: quad-list@eskimo.com Subject: ***Possible Spam*** Re: [QUAD-L] Who Do I Complain To? Just curious if anybody would know if there is a list out there of hotels that have rooms in which one might use a lift (Hoyer) in order to transfer. I have only traveled outside of my immediate area once since I was injured and thankfully I was able to call them in advance and make sure everything met my needs. However, that was a government room. Thanks, Quadius - Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.
[QUAD-L] Any tricks?
Hi guys. Just wondering if you guys have any special tips that you use. For instance...for my boyfriend..we use velcro strips for EVERYTHING. To hold vent tubes in place. As leg straps. And to hold his hands on the chair. We also use those plastic ties that slide thru..not sure what they are called. But they come in different sizes. Use them to hold wires in place on his chair. We have even used them to hold the chair together when it has been broken. Also bungee cords...those little elastic straps with hooks on both ends...come in handy to keep his control arm in place so it does not fall out of his reach. And keeps his vent in place on the back of the chair so it does not swing around and fall off. Just looking to see what other ideas you guys have come up with. It always helps to learn new things. ThanksAmy - Want to start your own business? Learn how on Yahoo! Small Business.
Re: [QUAD-L] Aids stealing your meds
Hi Mark...I am a caregiver myself. If your aid is addicted to pain meds then you need to find someone else. Sounds like she is there to feed her habit. Your needs should come first. There is good help out there. Does she work though a company? If she does then you need to notify them. She should not be working on drugs. She is responsible for your care. If you hired her privately...then you need to have a very frank talk with her. Talk with family memebers who can put your meds in a safe place..maybe leave only a few out in the bottle and hide the rest. Yes, it is a shame that people have to hide their belongings in their own house but it happens. You need to address this problem soon. Not worth being miserable and in pain in your own home. Good luck. AmyRollinOn [EMAIL PROTECTED] wrote:Hey People, How many here have an aid that steals your pain medication? My aid has been stealing my pain meds for several months and I'm helpless to stop it. I bought a safe but one of my keys was lost or so I thought it was and my aid seems to think my pain isn't as important as her addiction. I'm so f*ing mad because I have a uti and you all know how seriously painful they are and my meds came up missing a week after I filled them again this month. I'm really upset because this girl has been with me since I moved home 5 years ago and is the best help I've had but I can't take it no more, I'm in agony right now but what upsets me the most is how helpless I feel. It just pisses me off that a person who supposedly cares forme can take advantage of me being disabled just to get off and not give a shit that I'm in so much freakin pain. I just needed to vent to those who really care because you know how bad it hurts and I'm headin for a break down from feeling helpless. Mark Jackson Cheap Talk? Check out Yahoo! Messenger's low PC-to-Phone call rates.
Re: [QUAD-L] 8-2-06
JT that is the sweetest thing you could have done. She is a very lucky girl. I wish you years of happiness. So glad that you are enjoying life. That is all any of us can do...AB or quads...WAY TO GO! AmyJason Thurston [EMAIL PROTECTED] wrote:I have been waiting to send a message to the group. Last year on August 2 I was reading the 12 pages of advice, most of which I received from the quad list. I don't post very often, but most days I read all of the messages. I learned a lot in the past year, especially not to lose hope. Instead of being sad or withdrawn this year on the second anniversary of my accident, I spent it with my new love. It was her birthday and I told her I had to go to work, even though I usually work from home on Wednesdays. I had her convinced that I wasn't going to do much for her birthday. Instead of going to work I went to a few stores, purchased several presents, balloons, cards, flowers, two cakes, and a bunch of her favorite foods. I decided to make the most of the day and be happy to be alive. Just thought I'd share, since somehow I feel like I know most of you guys. Thank you for being there in your own way. What a great support network. Bye for now JT C6 quad, two years post-, August 2, 2004 Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.
Re: [QUAD-L] For all you animal lovers
I loved this one! i would have loved to see the look on her face! Thanks for making my day.River Wolfe [EMAIL PROTECTED] wrote: I hope you really said this, it made our day ROTFLMAO. People, in their desire to connect do ask the most obvious questions don't they? River On Aug 3, 2006, at 7:23 PM, RollinOn wrote:That's the funniest damn thing I've heard in a long time Tim!! LMAO!!!Mark---Original Message--- From: Tim Thompson Date: 08/03/06 18:12:36 To: Quad List Subject: [QUAD-L] For all you animal loversI have a golden retriever and I was buying a large bag of Purina at Wal-Mart and was in line to check out.A woman behind me asked if I had a dog. On impulse, I told her no, I was starting The Purina Diet again, although I probably shouldn't because I ended up in the hospital the last time, but that I'd lost 50 pounds before I awakened in an intensive care ward with tubes coming out of most of my orifices and IVs in both arms.I told her that it was essentially a perfect diet. The way it works is to load your pants pockets with Purina nuggets and simply eat one or two every time you feel hungry and that the food is n utritionally complete, so I was going to try it again.I have to mention here that practically everyone in the line was by now enthralled with my story, particularly a guy who was behind her.Horrified, she asked if I'd ended up in the hospital because I had been poisoned.I told her no; it was because I'd been sitting in the street licking my balls and a car hit me.I thought one guy was going to have a heart attack he was laughing so hard as he staggered out the door. . IMSTP.gif How low will we go? Check out Yahoo! Messengers low PC-to-Phone call rates.
Re: [QUAD-L] July 10, 1966
Way to go Glen! I am sure your have been a blessing to those who care most about you. Amy[EMAIL PROTECTED] wrote: 40 years post SCIGlenn Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.
Re: [QUAD-L] Who lives where?
Silas and I are on our way to see youLOL!!!. AmyRiver Wolfe [EMAIL PROTECTED] wrote: Columbus, OhI love knowing where everyone lives, you all live in some pretty exciting places! Las Vegas BABY !!!RiverOn Jun 26, 2006, at 10:45 PM, Paul Jacobson wrote:san diego- Original Message - From: Tim Syfert To: quad-list@eskimo.com Sent: Monday, June 26, 2006 1:38 PM Subject: Re: [QUAD-L] Who lives where?Las Vegas Tim[EMAIL PROTECTED]wrote:Hi All, I was wondering if anybody from this list lives near me. I'm in Parsippany New Jersey, 10 miles from Kessler Institute. Where do you all live any way? Bobbie Yahoo! Groups gets better.Check out the new email design.Plus theres much more to come. Want to be your own boss? Learn how on Yahoo! Small Business.
Re: [QUAD-L] I have another question
Hey eric..Now I have a questionhow do you take care of that one...?? amyBill_J [EMAIL PROTECTED] wrote: I would have put orgasm at the top of the list. LOLIn all honesty, I believe God is still with each of us. He just gives us each different challenges. It's up to us to trust in Him and do our best.Bill age 55C6 Incomplete since 7/20/68Leesburg, FLHe had a mind like a Post-It note; it held things but not real tight.- Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, June 12, 2006 4:46 PM Subject: [QUAD-L] I have another questionyou all said to ask anything. how can their possibly be a god that would let this kind of unhumaine suffering happen? i'm only C 5 other's are a lot worse off. how am I to cook, clean, have an orgazim or pick my nose? Barb __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] quad anniversary.
Me too, Lori. I am so lucky to be loved. He makes me feel special every day! I feel like a teenager when we are together. Good or bad...I am in it for as long as he will keep me.. AmyLori Michaelson [EMAIL PROTECTED] wrote: My husband and I have beenmarried for 8 1/2 years now and even though we have had some very rough times he said that he would do it all over again HAD he had the choice.I feel that 'I' am a lucky one to be so fortunate to be married to such a wise, caring and wonderful man. Someone who is there when no one else is. Lori C4/5 Complete, 26 years post Tucson, AZ AGE - 41 Amy Davis [EMAIL PROTECTED] wrote:June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had with him since his injury. It has not been easy the whole way...but for me it has been worth it. I could not imagine him not being in my life. So SilasInstead of saying happy anniversary...since I don't think that is appropiate, Think of how far you have come. From being sucidal and depressed, from being bed ridden and sick, to being a successfull business man and farmer. A wonderful father, son, brother and friend. Thnaks for the past 4 years as far as I am concerned. __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] quad anniversary.
Thanks dave. I am truly the lucky lady! He makes my life better in ways that I never thought possible. Thanks for the support. Amy"David K. Kelmer" [EMAIL PROTECTED] wrote:Hi Amy,You both are lucky to have each other to help make each of you lives better. May you both continue to be a part of each others lives for many more years ahead.With Love,CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USAAmy Davis [EMAIL PROTECTED] wrote:June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had with him since his injury. It has not been easy the whole way...but for me it has been worth it. I could not imagine him not being in my life. So SilasInstead of saying happy anniversary...since I don't think that is appropiate, Think of how far you have come. From being sucidal and depressed, from being bed ridden and sick, to being a successfull business man and farmer. A wonderful father, son, brother and friend.Thnaks for the past 4 years as far as I am concerned.__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[QUAD-L] vent users
Just curious as to who among you are vent dependant. How do you manage for full time care? Do you have nurses or family members that help you? How often do you go out to dinner or shopping or just for fun? Amy __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] quad anniversary.
LOL..thanks..hope he would agree. AmyRollinOn [EMAIL PROTECTED] wrote: Silas you and Amy sound like a great pairMark---Original Message--- From: Amy Davis Date: 06/01/06 21:08:33 To: quad-list@eskimo.com Subject: [QUAD-L] quad anniversary.June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had with him since his injury. It has not been easy the whole way...but for me it has been worth it. I could not imagine him not being in my life. So SilasInstead of saying happy anniversary...since I don't think that is appropiate, Think of how far you have come. From being sucidal and depressed, from being bed ridden and sick, to being a successfull business man and farmer. A wonderful father, son, brother and friend.Thnaks for the past 4 years as far as I am concerned. __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[QUAD-L] quad anniversary.
June 3rd is the 4th aniversary of quad-dom for my friend Silas. I know this is always a hard time for him so help me make this a good day! I know a bunch of people who are thrilled for every day that they have had with him since his injury. It has not been easy the whole way...but for me it has been worth it. I could not imagine him not being in my life. So SilasInstead of saying happy anniversary...since I don't think that is appropiate, Think of how far you have come. From being sucidal and depressed, from being bed ridden and sick, to being a successfull business man and farmer. A wonderful father, son, brother and friend.Thnaks for the past 4 years as far as I am concerned. __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
[QUAD-L] New to this list.
Hello everyone. I was invited to join this list by a special guy in my life. I am not a quad but he is. He talks about this list all the time. How he has learned so much from you guys. The support you give each other and even the challenges and disagreements that you have. Hopefully I can look to you or your famly members for support too. And answers to all the questions I come up with. Looking forward to making new friends as well. And SiI love you!__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
