Re: [QUAD-L] Re: Kindle and nook...
I did the same thing. I downloaded the kindle from amazon about 2 weeks ago. So far I have read 4 books. Even the books I have bought and added to my library have run from $1.30 to $9.00 for the current best sellers. You can also get some magazine as well. I think this is great, I can once again read whatever I want. And again, the Kindle was FREE. Kathy from Mississippi
Re: [QUAD-L] ~~~ HAPPY 4TH!!! ~~~
In a message dated 7/4/2009 6:10:12 P.M. Central Daylight Time, pjacob...@san.rr.com writes: http://www.youtube.com/watch?v=hTxTOaww3f0feature=channel_page Thank you so much for sharing this story. Kathy Mississippi **It's raining cats and dogs -- Come to PawNation, a place where pets rule! (http://www.pawnation.com/?ncid=emlcntnew0008)
[QUAD-L] where is dana ?
Hi all, I have been in the hospital for 5 weeks with bed sores, sepsis, staph, strep, on going kidney infections with horrible bladder spasms. Due to all of that going on I went through toxic dementia because my body was not getting rid of the pain meds, or infections and that was a living hell of nightmares and not knowing anyone. They let me stay in my room because I am a no code, and the nurses took turns sitting with me at night. I was home about a month and started vomiting and my pain was way up there. The ambulance took me to the hospital where I still had a kidney/bladder infection. They also found out I have MRSA. Home again, but just finished another round of meds, and I believe I have another one. Since I have been back on, I haven't seen any posting from Dana, and have seen her on my buddy list. Does anyone know if anything is wrong ? Kathy **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0003)
Re: [QUAD-L] Medicare/Medicaid wheelchair issue
Contact the State Medicaid office,, not the regional office. When they give you the extension number try durable equipment for your answers. They will be able to see if Medicaid ever bought him a chair and the date it was purchased. If they did buy it,,then it is his. If they didn't he can get a new chair fitted by a physical therapist and a provider. Good luck and hope this helps. Kathy **Worried about job security? Check out the 5 safest jobs in a recession. (http://jobs.aol.com/gallery/growing-job-industries?ncid=emlcntuscare0002)
Fwd: [QUAD-L] beds
**One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001) ---BeginMessage--- Hi Danny, I am in a bariatric revolving air mattress that has chambers that go up and down. I was in the hospital for bed sores and was put into the large bed that made it so much easier to be turned and propped up. When I got home I had my regular bed swapped for the larger bed. Now every day my 2 year old grandson has to get in my bed to watch his tv programs, and I still have room on the other side for my things. Several years ago we moved my bed right next to the king size bed that my husband is in. With the ability to raise and lower my bed, and the head and feet I am able to sleep right next to Gerald. We watch tv every night and hold hands and act however we want. We wonder why it took us so long us so long to figure this out. Kathy **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001) ---End Message---
Re: [QUAD-L] Court: disability laws protect those unable to have sex
Hi all, Unless it has changed in last couple of years, getting someone on disability is not as easy as you may think. It takes a paper trail with creditable medical evidence that has to show proof that test , treatment, and types of medicine that you have been on . Then you have to go to your pharmacy and get a print out for at least a year to show you have been taking it. Don't tell me you can't afford it and give up ,Years ago before Medicare started helping, I was working through the RXcompanies helping the honest people get their medicine.. You show a 10 year working history and people don't realize how important this is. It could be very strong evidence on your case. Let me try to clear up some of the things that people believe. Till about 1995 anyone who had the above evidence for alcohol, or drug use and could not function did get on SSD . . New laws were passed and really shook up the way people could get on. No longer could they receive a monthly check. Their cases were looked up and evidence gathered and hundreds lost their funds. They have to show a primary illness that would meet the laws, and then the alcohol / drugs might be on the application,It is true that a ( pickled liver ) that show advanced stages might win. Now about fat people..Their weight is a issue, but there is so much more. How do they walk, breath ( sleep study ) , take care of their body. ride, grocery shop, and take care of their homes and family. They often get terrible rashes that leak fluid, and causes pain. When you go before the administration law judge and the independent work specialist you have to prove that the clients chart is complete of all evidence .You question the client about the medical history and then the work history. I would have always made contact with the employer and would have testimony that show about their job history and what it entailed. Then the specialist would speak to the judges about his questions, and then I could go on and on, but I got off track so forgive my visit to the after years. Kathy **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
[QUAD-L] I remember when
Hi All, So many of you have talked about boats and it has made me think fondly of yesteryear. We had purchased a very large ski boat about 3 years before I became a quad. We loved going to the river to ski or pull 2 monster bertha's with myself and the kids on them hollering and laughing. My husband and I would go alone and picnic under a bridge and fish. Good alone time for us. My family refused to go without me so the boat was staying on dry land and my husband kept it clean and ready to go if I ever decided to try it. I can not sit upright alone and I felt like even when they got me in the boat and we hit a wave from another boat I would fall over. A neighbor stopped by the house and wanted to buy it about 2 summers ago. It is strange to see them drive by with the boat,, but I try to think that they are making happy memories of their own. Kathy **Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut000507)
Re: [QUAD-L] Bed Sore
Hi Greg, My doctor could not see my wounds at his office. So I take pictures and either email or take them when I go for a visit. Kathy **Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg0005000102)
[QUAD-L] PAIN IN THE ASS
Hi All, I am just getting over a bed sore and then a reoccurring rash with a potential to break down in that general area. It lasted over a year with home health visiting 3x a week and 4 in-patient hospital stays for different reasons. I have pain there whenever I ride in the car , We have tried different positioning without much relief. My usual pain is worse dead center down to the crack. I call it my butt bone. How many of you wear underwear ? I found this amusing . I haven't wore any for 9 years. My husband use to love it when I wore jeans without panties , but for some reason diapers just do not bring around his same reaction,,lol--We have to keep laughing ! Kathy **Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg0005000102)
Fwd: [QUAD-L] neurontin
**Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301) ---BeginMessage--- Hi everyone. I was on a huge doses of neurontin for 7 years and for a year on lyrica. I think The Nerontin helped my pain more but it did destroy my teeth and gums. I had pain in my teeth that showed no problem by x-ray. Shortly after I was having abscesses in 4 different areas and teeth. After rounds of penicillin They tried to remove them and it was hell ! I had neuropathy through out my body and my mouth was the same---it would not be sedated. The short of it, I went to surgery, went to sleep and all were removed. They let me stay on a morphine pump for 3 days for pain. I do not have the same relief as a majority of people do to medications. I do not get to sleep, float or talk creatively. I think I was cheated,, I would have loved to be loopy. Kathy **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301) ---End Message---
Fwd: [QUAD-L] neurontin
**Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301) ---BeginMessage--- Hi everyone. I was on a huge doses of neurontin for 7 years and for a year on lyrica. I think The Nerontin helped my pain more but it did destroy my teeth and gums. I had pain in my teeth that showed no problem by x-ray. Shortly after I was having abscesses in 4 different areas and teeth. After rounds of penicillin They tried to remove them and it was hell ! I had neuropathy through out my body and my mouth was the same---it would not be sedated. The short of it, I went to surgery, went to sleep and all were removed. They let me stay on a morphine pump for 3 days for pain. I do not have the same relief as a majority of people do to medications. I do not get to sleep, float or talk creatively. I think I was cheated,, I would have loved to be loopy. Kathy **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301) ---End Message---
Fwd: [QUAD-L] coffee anyone?
**Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851) ---BeginMessage--- **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851) ---BeginMessage--- Hi every one, I use to really love my coffee !! At my office I never knew what kind would be brewed and it really didn't matter. By the time the great aroma reached me, I was on my feet going toward it and would by reaching for my cup. There were several different flavors of creamer and stirring flavor spoons for them. On many days I wanted it black with 1 sugar. Now I had to give coffee or hot drinks up. I have tried different cup holder and spoons , but I will shake it out and spill it..usually on me. Today is very stressful,, and I would love a cup right now. Thanks for the memories, Kathy in Mississippi **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851) ---BeginMessage--- Hi all, I'm so excited about what I just did a had to share it with you guys because I know that you all will understand. I brewed myself a cup of coffee. It's a really miserable rainy day out here and I came home alone, and I wanted to have a cup of coffee. I poured water in the reservoir, I placed the filter in the filter cup, I opened the coffee canister, I scooped out the coffee, put the scooped back in and put the lid back on, turned on the coffee maker with a rocker switch, got out a mug for the coffee, poured coffee into the mug, put in the sugar, opened the refrigerator to get out the creamer, poured the creamer and returned back to the refrigerator, and enjoyed my cup of coffee completely. Then I cleaned the coffee pot up, and I put it away. It was the best damn coffee I ever had! Just had to share it with you all, have a great day, everybody. Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey. **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851) ---End Message--- ---End Message--- ---End Message---
Re: [QUAD-L] Stuck Again
** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [QUAD-L] LEAKY LEGS
Hi, It was so good to read that someone else has leaky legs. Mine started about 9 months ago after I had gotten Botox in my legs. I get the injections every 3 months and it varies 35 to 45 sites. I bleed very easily so there is 2 nurses holding pressure and if needed a small bandage is put on. I started feeling like my legs were wet before leaving the office and everyone said it was a feeling left over by the shots, After getting home and in my bed you could see the wet areas on my sheets ,not bad, but they were there. Since then it happens after the shots every time, and sometimes in between. It usually last 2-3 days. It was strange to read it today- for no reason I seem to be leaking and I don't get my shots for 2 more weeks, and I can hardly wait. I got out of the hospital about a week ago because of lung mess and came home to continue my treatments. A day or 2 later I kept telling my husband to check my hips and move them around ,,,something was not right. He found that I had the beginning of saddle sores on my rear..one for each side. This is the first time in 8 years to be going thru this and I bet with it getting hotter it is going to be hard to get this well. and I had excellent help while I was in the hospital so I don' think it was their fault. Kathy ** See what's free at http://www.aol.com.
[QUAD-L] pool lift
Thanks to everyone who made suggestions about the pool lift. We are already having temps here of 88 and I am already having problems from the heat. Its a shame when you have a beautiful pool in your backyard and you can't get in it. Kathy ** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
[QUAD-L] pool lifts
Hi all, We have a in ground swimming pool that I loved using prior to becoming a quad. Pools up keep is very experience and last summer we had to put in a $4000 liner and I can't stand seeing that beautiful water and not being able to get in. I haven't even been in a bath tub. I was wondering if any of you had a pool lift, where you got it, and did you have any $$$ help to get it. Kathy ** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
[QUAD-L] DVR
Hi Dana, I just got a DVR from our local cable company. It cost $15 a month and well worth it. It works like a TIVO. I can watch one channel and save another channel or program it to record when I am not here. When you are watching a saved program you can just zip past commercials, and that will save you about 15 minutes time. Kathy BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
Re: [QUAD-L] curb service
Since I don't drive I would have never thought about that one. I guess barriers are all around us. Kathy ** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
Re: [QUAD-L] I'm new to the list!
Hi Debbie I am 8 years post severe illness that resulted in me becoming a quad. I am married to a great guy that choose to bring me home instead of the hospital recommendation to place me in a nursing home.to him !!! We have got 4 grown kids, a severely disabled 4 year old foster daughter that has lived with us over 2 years. She was born with only a brain stem and she is blind,cannot speak, rollover or do any type of self help. She has a smile and most recently a laugh that will melt your heart. Her parents are from Guatemala and she has a older brother that is only 10 months older that she is. We also keep our 6 month old grandson while his mother works and he is pure boy. Glad to have you join us and if you ever have a question just ask away. Believe me,,we talk about Everything and nothing is off limits !! Kathy in Mississippi BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
Re: [QUAD-L] Check out Wheelchair Diffu sion » Blog Archive » Superfourin- All...
Hi Joan, I have been looking online at several different chairs. My chair now is a front wheel drive and I have really been pleased with it. Tomorrow I am going to test drive 4 different chairs, and hopefully by then I will be ready to place my order. I will let you know what I decide on. Kathy BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
Fwd: [QUAD-L] Segway Wheelchair
BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. ---BeginMessage--- BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. ---BeginMessage--- Hi Dave, I bet it was fun and different to try the Segway and to be on top of the 4 wheels. You mentioned the pocketbook and I was just curious as to what they do cost. Kathy BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. ---End Message--- ---End Message---
Re: [QUAD-L] Home Again -- Part Two
Hi Dave, I am so glad that you insisted that the doctors take another look at you. It proves that we know our bodies better than some doctors do. I call it effective communication when we have to tell them to slow down and hear what we have to say. So glad that you are home and I hope you are up and about real soon. Kathy BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
[QUAD-L] Check out Wheelchair Diffusion » Blog Archive » Superfourin- All Terrain Whee
_Wheelchair Diffusion » Blog Archive » Superfourin- All Terrain Wheelchair Nurse_ (http://www.usatechguide.org/blog/superfourin-all-terrain-wheelchair-nurse/) Hi All, I was looking at different wheelchairs and ran across this one. It looks like a dune buggy and I bet people would get out of our way. Too bad we can't afford to own several chairs that we could use for our recreation and our daily lives.I would like to see it and maybe test drive it for fun. I am looking for a new chair and I am going to see some different ones on Monday. The one I have now is a Invacare front wheel drive that tilts and recline and each foot can be adjusted differently. I would like to know if you think front wheel drive, center, or back drive is best. I spend most of my time inside, but when it gets warmer I will be out working in my yard. Kathy BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
Re: [QUAD-L] What's wrong with this?
Hi Bobbie, I read your writing three times and enjoyed it very much. I could really tell if was written from the heart. Thanks for sharing it. Kathy
[QUAD-L] uti's
Hi Dana and others, I am glad that you don't have many UTI . After all the talk from the group about kidney this and that I was feeling fortunate that I didn't have much problems. On Sunday I started feeling a little rough and I just thought it was due to the fact that I had gotten out several times last week going to doctor appointments and Walmart and lack of rest and my pain level is up. Monday I started having pain on my left side and down low. That night My urine had turned red with blood. Now I am taking all those antibiotics that it takes to get rid of it, but they really make me feel yuck. At least spending time in bed lets me catch up on some reading. Kathy
[QUAD-L] (no subject)
Hi Everyone First of all--welcome JessicaAs you can tell,,when somebody has a question we share what is going on with us, and sometimes you may hear a solution to your problem. This group is unlike most support groups that you will find . We are committed to being here for each other. Like several of you,,I stay cold and at times I cannot get warm. I feel like I am cold from the inside out. As strange as it sounds My upper body will be cold and my feet will be burning and stinging. My doctor said it was from brain stem and nervous system damage. Kathy
[QUAD-L] medical bills could bankrupt all of us.
Hi Joan, You should ask the hospital if they have a charity program. We have filled out applications and had them to write off the entire bill. This was blessing before I was able to get on Medicare and the Medicaid waiver program. The largest bill for me was $160,000. My husband has Medicare only. He can go to any doctor in their clinics and they usually will tell him to fill out a yearly application and they will take his Medicare. Thru the pain clinic they will get his meds that aren't covered by Medicare from the drug companies. This saves about $1000.00 a month. I hope some of this helps. Kathy
Re: [QUAD-L] RE: Medications -- Lyrica
I take 300mg 2 times a day of Lyrica and have been on it about 6 months. Prior to Lyrica I was on neurotin 600mg 3 times a day for about 8 years. .I also take Elavil 100mg. 3 times a day , Loratab 3x a day and about 7 other prescriptions. I also have 25 areas injected with botox every 3 months. I have talked to several people about Lyrica and it has helped them. I guess it depends on the person, the type pain you have and, your body's reaction to the drug. If your pain is not controlled and a doctor suggested it to you, it might be worth a try. Keep us posted. Kathy .
Re: [QUAD-L] Lyrica for nerve pain, it's helping me
I am taking 600mg of Lyrica twice daily. I have been on this dose about 3 months. They are raising my baclofen also. My pain is better as far as deep pain, but I am much more touch sensitive.\ Kathy
Re: [QUAD-L] Quad friends who live near by
Hey Bobbie, Where do you live ? Kathy
[QUAD-L] (no subject)
Hi Pete, Welcome to our special group. Never hesitate to ask any type of question or make any statement. It has either been said or thoroughly discussed as a hot topic. We all learn and share together. I hope you and your family have a Merry Christmas. Kathy
[QUAD-L] (no subject)
Hi Mark, Doesn't it make you feel very vulnerable in " your home " for your own caretaker to be stealing from you. With my 2nd one I was still very sick and basically a bed patient. Clara appeared to be very friendly,,but she made herself at home where it was none of her business. In the beginning we noticed my meds didn't add up,,so it was fixed by the week and the rest was unreachable by her. Then we noticed groceries and other such goods were leaving. We let her go after about 4 months. When I was able to be up I found that I had missing crystal, pottery, and even some china. She had even taken a mixer. The lady was only 54 and she died of a heart attack within 6 months. What really took it,,was when we looked in our guns that we hadn't had out in a year,,we had a pistol missing !! They will steal us blind,,I don't trust anyone in my house that I cannot see.--but we have to have the help,,we else can we do ?? Kathy
[QUAD-L] cooking today
We have something in common. Sunday will be my 8th year. It doesn't seem like that many years have gone by in one sense,,and in another,,the years have lasted forever I guess it is how we look at them. I try to look at life in a positive way,,no matter what is going on,,after all we are still alive, and being with family. My oldest son drove in this morning traveling from Ft Wayneon his move to Lake Charles, La. We are having all the kids over tonight and having gumbo. It is the first time we have all been together in a year. I am wondering if they remember what the date is ??? Anyway,,got my chair out of the shop on Thursday just in time to cook !!! Kathy
[QUAD-L] shots
Hi Everyone, I take my flu shot every year and a pneumonia shot every 5 years. I still get bronchitis,,but thankfully it hasn't gone into pneumonia. Kathy
Re: [QUAD-L] Understanding What Having MS Means
Hi, I found myself in tears as I read about your life. I do not have MS but I could vision myself in the same picture. I think so many ofus withdisabilities have bad days and situations like you described.I have missed so many special events with my children because my body said a big " NO ". You said things so perfectly that I have never been able to put into words. I will be keeping a copy of it for a long time. Kathy
Re: [QUAD-L] I'm back : ) ~
Hi Bobbie, Glad you are back and able to enjoy freedom again. Kathy
Re: [QUAD-L] Would someone cancel the rest of 2006, please
Hey lousy luck friend, I thought I was the only one around here with a bad luck jinx hanging on my neck. I haven't been talking about it because it seems to be kind of ongoing and hard to believe at times. Mine doesn't compare to yours. Were you coming out of a doctors door or your office when you flipped over ? Kathy
Re: [QUAD-L] LYRICA
Maybe we should all get together and form our own community and have our own laws. If the Amish and the polygamist can do it,,why can't a quad group do it ? It would be different. Kathy
Re: [QUAD-L] LYRICA
Hi John, My nephew is a chief investigator with the police department and he has a drug dog. When you get a dog like this they live with you and become part ofyour family.Our house is where all the family comes to eat and congregate. We have them over ever week or 2 to eat and watch a game or race and the dog comes along. When Jimmy needs to go places without the dog he will have a " play date " at our house. We have often said that the dog could bust us for all the meds we keep in our house. I bet he would let Jimmy know if I tried to hide some " pot " in this house. At the University of Mississippi ( Ole Miss ) they do grow pot there for the school of pharmacy. Kathy
[QUAD-L] where else can the pain be
Sometimes I will ask my husband to apply pressure here or rub there and I findout that I have told him the wrong place. He says I wear him out before he even finds the area that is hurting me. The pain from the nerves surprise me about the location. When I go to have the botox injections in my legs we will mark my legs the night before. We have to do a a few at a time because I loose the ability to know the exact pinpoint area to shoot. My nerves in my legs are so fragile that the EMG machine is not much help. I think as we all get older we are going to have to deal with all types of pain obstacles. I just don't know what else it can be. Kathy ---BeginMessage--- Hi Diane,And I've found that parts of my body that I hurt post SCI aches a lot more as time passes. Age puts a strain on the body of someone with a SCI.With Love, CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA [EMAIL PROTECTED] wrote: In a message dated 10/21/2006 4:41:31 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Anyway I'm just curious to know if most of your pain levels increased -- got better -- or remained about the same ??? Dan Hi Dan, As for me they got worse,,,after the 1st year. Diane ---End Message---
Re: [QUAD-L] LYRICA
Hi Ron, I had been taking neurotin for 7 years and it had increased to 1200 mg 3x a day. My neuropathy really covers me all over and I can take different muscle relaxers , pain pills, and botox shots and still have pain. My doctors had told me about lyrica and it is the "new" miracle medicine that is suppose to work wonders. I have been on it for 6 weeks and they have raised it once. I am taking 300 mg 2x a day and they say it can be increased a lot more. My baclofen has also been increased to 20 mg 3x aday. Right now I am super sensitive to touch. Bathing is horrible, I can't stand the feel of the bath cloth and towel going up and down my skin. I am crying by the time I am dressed. Then I have to take the pain pills. The pain clinic is a new doctor to me and he says if I will hang in there he believes that lyrica will solve my pain when we find the right dose. I wish they could increase it faster. Kathy in Mississippi
Re: [QUAD-L] LYRICA
Hi Dan, My pain had changed though the years and it also changes with the seasons and weather. When I think about it I never know what to expect day to day. I am just so thankful to know that I woke up. When I am sitting up I will usually do ok. I can tilt/ recline and even in summer I might have a light blanket on me--I have to use one in the car too. My body ' is all weird ,,and when I am cold I hurt. Some days when I am hurting in my ribs I do have pain patches that I can wear, and that helps alot. My body rebels when I am being put back in the bed. I have several spasms that usually hits my legs and butt area. In about 30 minutes they are not bad. I sleep in a hospital bed with a special mattress ,but it isn't a electric air mattress. My doctor has tried in the past to get me one ,but I didn' t qualify for one because I didn't have sores or ulcers. Pain doesn't mean anything. One day those folks will learn about pain. Kathy in Mississippi
[QUAD-L] we all need to snuggle
Hi Silas, You might consider getting a bariatric hospital bed. I think you have to meet certain weight requirementsfor Medicare / Medicaid to pay for it. I was put in one following some surgery 2 years ago and I loved it. When I was moved back to the regular floor I requested to have a " big boys bed" . My husband snuggled in the bed with me and we watched the super bowl . I was able be turned so easy, and I could put all kinds of my "stuff" in the bed with me. There was so much room that I didn't feel like I was in a hospital bed. Here at home my bed is bumped up by my husbands king size bed and if I had the space I would get a larger bed. Even if you had to pay out of your own pocket I think it would be worth it. Kathy
[QUAD-L] Fwd: (no subject)
In a message dated 9/16/2006 11:52:12 A.M. Central Daylight Time, LadyOnWheels725 writes: Hi All Just wondering,,,My chair is red and black,,what color is your chair I have heard talk about the model and seating, but never the color. Did anyone do any special paint job ? Kathy in Mississippi ---BeginMessage--- ---BeginMessage--- Hi All Just wondering,,,My chair is red and black,,what color is your chair I have heard talk about the model and seating, but never the color. Did anyone do any special paint job ? Kathy in Mississippi ---End Message--- ---End Message---
Fwd: [QUAD-L] Surgery Date
---BeginMessage--- ---BeginMessage--- I am wishing you great success on your baclofen pump surgery. I hope this is the miracle that your body needs to find peace within itself in order to relax. I have had this presented to me on 2 past occasions to be decided against when my " team " of doctors would talk in2000. My pulmonary and neurologist that have been writing all my meds including my pain meds decided I needed additional help ,, probably stronger narcotics. All doctors now are so scared of being investigated and accused aboutwriting meds that are not medically needed that they want to cover their butts. So I was sent last week to the pain clinic. The doctor was very nice, BUT as soon as he walked in,,he looked at me in my chair,,how long have you not been unable to walk,,well, I think I can help your pain,, You need a pump, but first I need to order your records. The man did not ask me where my pain was and did not lay a hand on me. This doctoris head of the clinic and is the great one every one loves., but it concerned me greatly that he was not worried about my over all health issues and complications, H e said he would order my records and could do the surgery without putting me asleep and laughed when I told him my breathing is very fragile and I was on a bi-pap and I could not be approved to have my wrist or ankles released. It was not approved because it was not a medical emergency and I was too high of a risk for complication.He said he would guarantee he could get me off a ventilator after surgery. He did write a RX increase on my baclofen, but so far I have not seen a difference. I am very interested in hearing about your surgery from beginning to ongoing. I know it was a big decision for you and maybe it will help ,me make up mine. Good luck and a speedy recovery. Kathy in Mississippi ---End Message--- ---End Message---
[QUAD-L] silent friend
I don't know if I am counted on the list as one of the women who speak out or not. I do go through spells when I speak more than others. This usually depends on the subject being talked about and how many others are already discussing it. I don't see the need to jump in if I think enough action is happening. But,,I am here,,lurking on the sidelines,,soaking up all the info. I would like to say like so many others I have learned so much more common sense advice here than from the pros. Tomorrow I go for my botox in my legs. Before anyone ask.. For me, yes it does help.. I get Most of them around my knees, calves, ankles, and instep. Hurts like hell while I get them in my feet but it does help the tension and will relax my big toe and ankle. I was at my pulmo doc yesterday and he out right refused me for surgery or a block or any kind for surgery on my feet. He said my muscles pushing out air of lung were too weak. . He wouldn't chance me becoming too relaxed when we had a option. They are going to "step up the pain and muscle relaxer meds". If someone broke in to this house,,forget the china,and the silver. Go for the drugs and sell them for the street value !! Kathy in Mississippi ---BeginMessage--- Carolyn, God bless you ---"used to" from the son of an English teacher. O'C In a message dated 7/26/2006 1:20:27 P.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: That should make 10 women on the list..I'm not used to posting but will try to post a little more.Carolyn From: [EMAIL PROTECTED] Date: 2006/07/25 Tue PM 08:47:04 EDT To: [EMAIL PROTECTED], quad-list@eskimo.com Subject: Re: [QUAD-L] Angelique and Sandy Oops, er um... that makes 9 women, not females that post on the list, lol. W In a message dated 7/25/2006 2:08:14 PM Central Daylight Time, [EMAIL PROTECTED] writes: W said "...btw, there are 8 women that post here on a regualr basis." Thanks for noticing us! I've not said anything much lately because I believe it's pointless to argue politics or religion but I'm still here. :o) Stephanie Swamp Sista _http://360.yahoo.com/curly_top35_ (http://360.yahoo.com/curly_top35) Dave www.daveoconnell.com c3-inc-1967 ---End Message---
[QUAD-L] (no subject)
Hi and Welcome I am Kathy from Mississippi. I am usually hanging close to the computer all day. Let me know any time you might want to talk. If I don't answer I won't be off long.
[QUAD-L] MAKE SOME NOISE AND BE HEARD
Hi Stacy, The greatest gift that we have is our mouth and no one can talk about our needs better than us. Girl Make some noise !!! If you can't get good basic care from your assigned CNA or Nurse, then ask for the Floor Supervisor. If you still aren't happy then get on your phone and ask for Shift hospital supervisor nurse. If you are sitting in a water bed of pee or in misery due to depression your overall health is going to suffer. If you can't speak out for yourself ask for a socialworker and if your are not happy with that go the ombudsman route. There are advocates to help you. That is what I did for 25 years before I changed seats. AND PLEASE,,PLEASE TELL YOUR DOCTOR ABOUT INFERIOR CARE,,THEY DO WANT TO KNOW. Kathy in Mississippi
Re: [QUAD-L] Greg
I find this so sad. Who are we to Judge what makes someone disabled and in need of parking in a disabled space. I know that many times in my tenure ofbeing considered disabled I have been treated different when I was not sitting in my chair and when I was. Disability and parking in a handicap parking place does not mean you have to be in a chair. Granted you are suppose to have the license tag and the signed form from your doctor in your car. They could be having a short term disability from surgery, or a breathing condition and be going to the pharmacy for scrips. My father diedof prostate cancer that moved to his bones and lungs and he didn't agree for a tag to the last 6 months. We never know the hidden disability !! Show some compassion Ron's Dad,,you are doing a criminal act,,you could be arrested. Kathy in Mississippi
[QUAD-L] Fwd: FW: IMPORTANT INFO ABOUT CAR THEFT
I have had a key made this way before. Everyone needs to do this and pass it on to others. Kathy ---BeginMessage--- From: Celeste Taylor Sent: Wednesday, April 26, 2006 5:30 AM To: '[EMAIL PROTECTED]'; '[EMAIL PROTECTED]'; 'Alicia A Price'; '[EMAIL PROTECTED]'; 'Dana Shirley'; '[EMAIL PROTECTED]'; '[EMAIL PROTECTED]'; Libby Heflin; Terri Mowdy; Sasha Reid; Jennifer Chess; Anitra Conner; Sherry Arrington; '[EMAIL PROTECTED]'; Vickie Mckee Subject: FW: IMPORTANT INFO ABOUT CAR THEFT Celeste Taylor, RNC, CCM,CPUR Director of Case Management Regency Hospital of Meridian 1102 Constitution Avenue, 2nd Floor Meridian, MS 39301 Phone: 601-484-7905 Cell: 601-938-0532 Fax: 601-485-6837 From: Paulette Davis Sent: Monday, April 24, 2006 10:31 AM To: Jones, Myesha; justine pessmeg; Joyce Giertz; Michelle Batzek; Celeste Taylor; Linda Corcoran; Emma Jones; Desiree McLaughlin; Debbie Catenazzo Subject: FW: IMPORTANT INFO ABOUT CAR THEFT From: tahouston [mailto:[EMAIL PROTECTED] Sent: Sunday, April 23, 2006 1:36 PM To: Undisclosed-Recipient:; Subject: IMPORTANT INFO ABOUT CAR THEFT Subject: FW: Car theft - IMPORTANT!! Here is info worth the price of your car. WHAT WILL THEY THINK OF NEXT? Seems that car thieves have found yet another way to steal your car or truck without any effort at all. The car thieves peer through the windshield of your car or truck, write down the VIN # from the label on the dash, go to the local car dealership and request a duplicate key based on the VIN #. My friend didn't believe this e-mail, so she called Chrysler-Dodge and pretended she had lost her keys.They told her to just bring in the VIN #, and they would cut her one on the spot, and she could order the keyless device if she wanted. The Car Dealers Parts Department will make a duplicate key from the VIN #, and collect payment from the thief who will return to your car. He doesn't have to break in, do any damage to the vehicle, or draw attention to himself.All he has to do is walk up to your car, insert the key and off he goes to a local Chop Shop with your vehicle.You don't believe it? It IS that easy. To avoid this from happening to you, simply put some tape (electrical tape, duct tape or medical tape) across the VIN Metal Label located on the dash board. By law, you cannot remove the VIN, but you can cover it so it can't be viewed through the windshield by a car thief.I urge you to forward this to your friends before some other car thief steals another car or truck.I slipped a 3 x 5 card over the VIN NUMBER. OKAY, MAYBE YOU DON'T DRIVE. IN THAT CASE PASS THIS INFORMATION ON TO ALL YOUR FRIENDS. ---End Message---
[QUAD-L] Re: BOTOX
Even with the Botox, muscle relaxers, neurotin, and others I still have muscle spasms. They are worse after I have been up in my chair all day and I am getting back in my bed. I always take meds before getting back in bed because I know when I start being turned the spasms will begin. Lately it has been worse in the back of my left leg which I can't do much about. Once I am in the bed I can put on my compression boots that massage my muscles that REALLY help my legs and feet. I was told that Medicare and Medicaid wouldn't pay for these but they did. It might be because I am on the waiver program. It buys my diapers, and some things my PT and PT wanted me to have at home. My doctors understand the pain I am in since it does show up on the EMG test and you can see and feel the spasms. I do have pain meds for simple to severe pain. I very,very seldom take the strong meds, because I choose to cope with it than medicate with the meds that limit me. Kathy from Mississippi.
Re: [QUAD-L] BOTOX
Thanks for your help. I will be watching for Karen to email me. I would love to hear what has helped her. Kathy
[QUAD-L] Fwd: FW: [BULK] Fw: Do not press 90# on your telephone for anyone
---BeginMessage--- -Original Message- From: Celeste Taylor Sent: Thursday, March 30, 2006 2:55 PM To: '[EMAIL PROTECTED]'; '[EMAIL PROTECTED]'; 'Dana Shirley'; '[EMAIL PROTECTED]'; Anitra Conner; Terri Mowdy; Sasha Reid; '[EMAIL PROTECTED]'; Sherry Arrington; Paulette Davis; '[EMAIL PROTECTED]'; Libby Heflin Subject: FW: [BULK] Fw: Do not press 90# on your telephone for anyone Celeste Taylor, RNC, CCM, CPUR Director of Case Management Regency Hospital of Meridian 1102 Constitution Avenue, 2nd Floor Meridian, MS 39301 Phone: 601-484-7905 Cell: 601-938-0532 Fax: 601-485-6837 My sister sent this to me, so I know it is true. Just thought you might could use the information. If you already have it, sorry. Dian This was forwarded to me. I dialed ' 0 ' and asked the operator who did confirm that this was correct so please pass it on. I received a telephone call last evening from an individual identifying himself as an ATT Service technician (could also be Telus) who was conducting a test on the telephone lines. He stated that to complete the test I should touch nine( 9 ), zero( 0 ), the pound sign ( # ), and then hang up. Luckily, I was suspicious and refused. Upon contacting the telephone company, I was informed that by pushing 90#, you give the requesting individual full access to your telephone line, which enables them to place long distance calls billed to your home phone number. I was further informed that this scam has been originating from many local jails/prisons. DO NOT press 90# for ANYONE !! PASS THIS ON TO EVERYONE YOU KNOW (Embedded image moved to file: pic23281.gif) Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. pic23281.gif Description: pic23281.gif ---End Message---
Re: [QUAD-L] BOTOX
Hi, I have been taking Botox injections in my legs for the past 5 years. I get them below the knees and they locate the areas to inject with a EMG machine. When I began the shots they also tried dyna-splints on my legs - they thought they would hold my legs straight and slow the curve in my left foot. The splint was causingmorepain so I stopped them. I get the shot as often as I can which is ever 3 months and I get the maximum dose which equals out to 14 shots total per session. To really help the bad spasm the have to go to the deep muscle and sometimes it is next to the bone and that does cause a little bleeding, but I do bruise. My left foot is turned so bad the doctor will shoot my ankle and instep and it will release within hours. The bad part of all of this is it just won't last long enough. Within 6-8 weeks it isall back the same way. I also take Neurotin 600 mg 3x a day, robaxin 500mg. every 4 hrs, pain patches, and a bag full of others. Hope this answers some of your questions. Kathy in Mississippi
Re: [QUAD-L] what to do about hemroids
After you apply your medication you might also try TUCKS CLOTHS. You just place them where they need to go on the outside and they help to numb the area and shrink the hemorrhoids. I don't know which is worse,,a bad tooth or a bad roid. I hope they help you. Kathy in Mississippi
Re: [QUAD-L] MEDICARE
medicare and medicaid for 6 years Kathy in Mississippi
[QUAD-L] Re: MEDICARE
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[QUAD-L] (no subject)
subscribe
Fwd: [QUAD-L] Pet ?
When we got ourpersians we had them " fixed ", and declawed , and we knew they would never be outside kitties. They never really tried to get out, but when I needed extra room between the door andmyself I use a bottle of water with sprayer and usually all I have to do is shake it and they go moving out of my way. Kathy in Missippi ---BeginMessage--- It can be hard to do. How quick can you get the door closed behind you? You need to be quick as cats really don't listen to anything you have to say if they want out they will jump over you. Best solution is to let them outside, they come back and it will saves a little on cat litter. A leash a cat, h!!! Never tried it. There is no way any cat I ever had would let me do that but I've heard it can be done. Good luck Bill On Jan 16, 2006, at 1:57 PM, kathy wrote: O.k here's the deal. I'm a quad and recently adopted an 8 month old cat. Does anyone have any suggestions on how to get out the door without the cat running out? Also, has anyone tried taking the cat out on a leash in the chair? kathy = ---End Message---
[QUAD-L] Fwd: Check your Drivers License
It is hard to believe that this is on the internet. Kathy in Mississippi ---BeginMessage--- Subject: Check your driver's licence Check your drivers license... Now you can see anyone's Driver's License on the Internet, including your own! I just searched for mine and there it was...picture and all! Thanks Homeland Security! Privacy, where is our right to it? I definitely removed mine, I suggest you all do the same.Maybe we should Start up a petition or something protesting this. What do you think? Go To the website and check it out. Just enter your name, City and state to see if yours is on file. After your license comes on the screen, click the box marked "Please Remove." This will remove it from public viewing, but not from law enforcement. Website: http://www.license.shorturl.com/ ---End Message---
[QUAD-L] Check out The Arc -- Legislative Alerts and UpdatesLegislative Action Center
The Arc -- Legislative Alerts and UpdatesLegislative Action Center
Re: [QUAD-L] Fact or Fiction, You decide.
As the saying goes,," if it sounds too good to be true,,it usually is. " Kathy in Mississippi
Re: [QUAD-L] Feet swelling!
I have the same problem with swelling in my legs. I have taken lasix for years to help me to tinkle it out, but it was far from solving the problem.. Following surgery last year the doctor ordered compression boots for my legs. They are nothing like the stockings. They helped so much in such a short time,that I couldn't believe they hadn't been ordered before. The social worker said Medicare and/or Medicaid would not pay for them at home,, even if you had a history of blood clots. ( which I didn't,,I was just interested. ) I told them to get me a doctor order and let me see what I could do. I am on the medicaid waiver and they will approve items that sometimes are not. In 2 months I have the compressionboots and the pump and it has been so wonderful. They have helped my swelling and pain. Kathy in Mississippi
Re: [QUAD-L] Fact or Fiction, You decide.
Excuse the brain fart and my miss quote "If it sounds too good to be true,,it usually isn't.., Kathy Mississippi
Re: [QUAD-L] sleep
I do the same thing you and Greg do with temperature changes. I never feel hot when I am outside, even if it is 100 degrees. I can tell it would be hot for others,,,but it doesn't register that way for me. I have to rely on others to tell me my skin is turning red, or I need to go in. But if I am on the inside and start having a "hot flash" I feel like I am out in the sun and burning up. Sometimes the burning and itching gets so bad I have to take benadryl and that makes it so much better. I cannot stand the cold anytime of the year. It is so painful that I don't even want to move. I have a lap blanket anytime I ride in the car or go grocery shopping. I go to Sams with sweater on and a lap blanket on my legs so I can go around the meat and freezers and before I go outside I have to peel off the layers. Kathy in Mississippi
[QUAD-L] hey,,this is normal for me,,what about you ?
Hi All, I have to use a light blanket at night for the warmth and I quess just to make it cozy,,but I have my toes sticking out. They must be my thermostat for my body. I have to use a fan to circulate the air or I will start having asthma type symptoms. Not only do I run low fever, but my blood pressure runs 88./49. If I have a new nurse or go to the ER they want to go into a panic and I have to tell them I am fine. The people in this group are the only ones that can truly under- stand each other,,because we live it. Kathy in Mississippi
[QUAD-L] Fwd: FW: FIGHT THE POWER!
IF YOU SEE THE NEED,, MAKE A CALL ---BeginMessage--- From: Debbie Catenazzo Sent: Tuesday, September 06, 2005 12:32 PM To: Amanda Baker ([EMAIL PROTECTED]); Claudia Dixon ([EMAIL PROTECTED]); Eadie Galloway ([EMAIL PROTECTED]); Elaine Voye ([EMAIL PROTECTED]); Emma Glover ([EMAIL PROTECTED]); Ila Turner ([EMAIL PROTECTED]); Jerome Spencer ([EMAIL PROTECTED]); Judy Smith ([EMAIL PROTECTED]); Karen Meinert ([EMAIL PROTECTED]); Karen Meinert ([EMAIL PROTECTED]); Karen Tighe ([EMAIL PROTECTED]); Lora Kokot ([EMAIL PROTECTED]); Maggie Sikora ([EMAIL PROTECTED]); Mary Lynn Tranchita ([EMAIL PROTECTED]); Peggy Kamysz ([EMAIL PROTECTED]); Raelene Cooper ([EMAIL PROTECTED]); Randy Brooker ([EMAIL PROTECTED]); Scott at work ([EMAIL PROTECTED]); Scott Matthew Galloway ([EMAIL PROTECTED]); Sharon Hurd ([EMAIL PROTECTED]); Shawna Galloway ([EMAIL PROTECTED]); Tarnisha Smith ([EMAIL PROTECTED]); Teacher ([EMAIL PROTECTED]); Akron Employees; Cincinnati Employees; Florence Employees; Fort Worth Employees; Hattiesburg Recovery Team; Macon Employees; Meridian Employees; Minneapolis Employees; Odessa Employees; Ravenna Employees; South Atlanta Employees; Dot Allen; Daria Maxey; Desiree McLaughlin; Paulette Davis; Melanie Renn; Rosemary Weeks; Regina Novotney; Susan Markovich; Stacey Donahue; Jessica Wilson; Natalie Brilmyer; Amalia Marquez; Daniel McDermott; Karen Bell; Samuel C. Plumer; Mary Gil-Guerrero; Emma Jones Subject: FW: FIGHT THE POWER! I just called and I really got the White House Regency Hospital of Northwest Indiana Deborah L. Catenazzo Administrative Assistant to the CEO 4321 Fir Street ~ 4th Floor East Chicago, Indiana 46312 (219) 392-7790 ~ (219) 378-9874 Email: [EMAIL PROTECTED] From: Judy Smith [mailto:[EMAIL PROTECTED] Sent: Tuesday, September 06, 2005 2:25 PM To: Amanda Baker; Bonnie Meyer; Carol Ochwat; Carol Shingler; Debbie Catenazzo; Debra Jenkins; Emma Glover; Grace Veliz; Hillary McBurney; Jerome Spencer; Lenwood Ayers; Letrice Johnson; Lisa Cortazar; Margaret Lewis; Mary Bills; Pat Jones; Sharon Hurd; Teresa Pedroza Subject: FW: FIGHT THE POWER! -Original Message- From: Debbie Timko [mailto:[EMAIL PROTECTED] Sent: Tuesday, September 06, 2005 10:06 AM To: Barb Blejski; Bill Mendoza; Cecilia Peterson; Cherise; Dan Koch; Debbie Swanson; Donna Tampauskas; Edward Klapak; Judy Smith; Kristine Synos; Mrs. Schaufele; Pat Beanblossom; Tracy Lowe Subject: FW: FIGHT THE POWER! Debbie Timko CME Coordinator Medical Library St. Catherine Hospital Medical Education/Library 4321 Fir Street East Chicago, IN 46312 219-392-7230 [EMAIL PROTECTED] -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, September 06, 2005 9:57 AM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED] Subject: Fw: FIGHT THE POWER! (202) 456-1414 According to Fox TV, this is the phone number to the White House. A local (Merriville, IN) gas station has openly published this number on their sign in response to the ridiculously high gas prices. We should begin to bombard the President with calls of complaint. Fox TV (and other news sources) have said that European countries have volunteered to sending us some of their stored fuel for our consumption, but our government has yet to respond. If they have it, and we need it, then we need to have Bush get it. Let's start ringing President Bush's/the White House phone lines OFF DA HOOK. Either we do this as a country, or we haven't seen the worse of it yet! PASS THIS ON TO EVERYONE YOU KNOW. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com This message and attachment(s), if any, is intended for the sole use of the individual and/or entity to which it is addressed, and may contain information that is privileged, confidential and prohibited from disclosure under applicable law. If you are not the addressee, or authorized to receive this on behalf of the addressee, you are hereby notified that you may not use, copy, disclose or distribute to anyone this message or any part thereof. If you have received this in error, please immediately advise the sender by e-mail and delete this information and all attachments from your computer and network. Thank you. ---End Message---
Re: [QUAD-L] hoyerLift slings
Most medical supply stores should have hoyer lifts and slings in stock or suggest another dealer that would. I use the full sling and feel much safer. Kathy in Mississippi
Re: [QUAD-L] Gut
I can get ice cream in all kinds of colors besides white, , Hey ,, I need to be sinful some how !! Kathy in Mississippi
[QUAD-L] (no subject)
My husband is getting over a 3 days virus with fever, chills, and feeling terrible. He started feeling bad late in the afternoon, but his fever didn't go up until on over to the am hours. During the night he was helping me with potty duty and he started having a chill. As he went to remove the potty,,he dropped it on the end of my bed, and it came downhill on me. The next couple of days reminded me how much that he does for me not ever day, or not ever hour, but through the day. Most of it goes unsaid or planned out on my part - it is just now part of my life. It is a fine line for so many of us that reside at home and not in a nursing home. After reading so many of the post,I realize that I am blessed more than some. I am on a medicaid waiver and do have a sitter 4 hours a day. It was just bad timing that this virus hit my 2 sitters, daughter, and sister all at the same time. I am still praying that I don't get it. Kathy in Mississippi
Re: [QUAD-L] i've got a social sercurity question
Hi Gina, Thereare several questions that come to mind here. Have you just begun drawing your own social security ? Once a adult receives approval and they are going to being drawing (money that is based on their work history "credit" ), then a application for any children can then be processed. Where and whomever takes care of that child is where the money goes, and they are responsible for accountability of those funds. If the parents are divorced or a single parent then it is whoever is guardian. At least these were the rules as i understood them 3 years back. Hope this helps/ Kathy in Mississippi
Re: [QUAD-L] Working from home
Hi Mark, I have seen several of these surveys and have tried to complete them. After answering numerous questions it will tell me that I do not qualify for that survey, or it will have technical difficulties. I would love to link with several of these that would deposit XX amount of dollars into paypal or send checks to me, but the surveys usually do not work toward this advantage. Could you tell me where this survey was from ?? I appreciate all your help. Kathy from Mississipp
Re: [QUAD-L] Grrrrrrrrrrrrrrr
Lori, We seem to be having similar luck. I am starting my 4th uti since early december. I was in the hospital when the first began on iv antibiotics for other health problems. There is no doubt the infection is there because the urine turns red, and I have all the symptoms you mentioned, usually following the discolored urine. I had been on home health and they were here on friday and they haddischarged me. I went to the front door and was going to stop,and look outbut my chair kept going forward and then went down the ramp. I told my husband behind me that I didn't mean to go down and he saw the right arm of my chair was falling backwards and as it did my grip caused the joystick to press forward and I ended up turned up in the shrubs trapped between them and the rock work. My left side is badly bruised and having a heck of a time with spasms. I got a whip lash type injury when I came out of the shrubs. Oh, by the why, I was admitted back to home health today. It is a terrible, humble feeling when you are grounded due to illness, and to know you don't have a wheelchair you can get into in case of need to go to the doctor or other type of emergengy. Kathy from Mississippi
Re: [QUAD-L] ..running against da wind
By chance do any of you watch the tv show House Hunters on the Discovery Channel. Just about all of the people want to have a office or a area where they can work from home. Many times they have said this is how they make there living, but few times they share how they earn it. Others useit as extensions to their outside jobs, and family affair. All over the internet there is scams about working from home, and I just steer clear from all of that. Most of them want money that lead nowhere and it is a good way to pick up a virus. If any of you do work at home using your computer, and consider it your job, and consider it as something other of us might do, please share the information, I feel like there is opportunity there, we just don't how to excess it. Kathy from Mississippi
[QUAD-L] welcome
Hi Sharon, Welcome to the Q List One thing you will notice is that we are made up of all ages, personalities, stories, and advice. The one thing I like is we all understand and we listen to each other. It might be to complain about a bad day, the system, or a doctor. Don't be shocked about the topics that are discussed because it can be graphic,Thank goodness for this, I have learned more about me, than I ever been told from a medical person. Welcome to the group Kathy from Mississippi
[QUAD-L] (no subject)
HI Smurf, Sorry it has taken me a few days to get back to you and the others that had some questions, but right after posting, I came down with a heck of kidney infection.Why is it with us that when we go in with one problem we can end up with a kidney problem in the end ?? After suffering through bactrum and cranberry juice is it finally getting better. Over the past 2 years I have had 7 rounds of botox injections in both legs. The first 2 were very painful and I wore dynasplints on both legs and the splints were nothing but torture. I changed doctors and he also changed my medications that was helping my pain so I agreed to attempt Botox again.I was wearing lidocaide patches on my legs for pain control andit did seem to help, so when he did the botox injection he added lidocaine . He was concerned about my legs because he couldn't get any reaction on the emg, so he was having trouble finding active nerve activity. The last session I went in he said he wanted to take a pen and make points whereI told him I hurt and he would shoot deep trigger points. He injected very deep areas. I was told I didn't want to see the needle. I had no relief at all from that session.I am very glad I tried , botoxbecause I did get some relieve at times, will I go through it again, I don't think so. When I was in the hospital they put pneumatic compression boots on me that felt like I was getting a gentle massage.For the first time, it made my legs feel soft and removed pain, but the bummer is they cost on the low end $800 neither Medicare or Medicaid pays for it. I have read where it says Medicare will, but 2 representatives says no. I have located where , it should have been approved 2001, so I am not through discussing it. If I decide to buy it I will go directly yo the company and not the area corner store to cut out the middle man. Kathy in Mississippi
[QUAD-L] hospital is the pits
Hi Gale, I can understand being in the hospital and being really burned out. I haved been in for a month myself. My neuropathy is so bad that it has never been controlled by meds including multipl botoxinjections,bracing, and neurotin 2-600mg 3x daily.The neuropathy caused my lungs to become very weak and I am unable to do correct breathing and only breath from partial parts of my right right lower lung and left mid lung. It caused damage to my teeth and when I would go to the dentist he would be unable to perform the work because my gums would not sedate, so the pain would be horrid, and I am a chicken when it would come to dentist.I came into the hospital and had my teeth removed and while in surgery i had a hyperthermia episode and then I ran fever for about a week. People like us just don't know how to do thinks the easy way, do we,,lol. Anyway, I hope your time goes by fast, and like you, now that I am better I use my computer, and I am back into the therapy and thaat keeps me busy. Hope you have a nice Christmas with your family. Kathy in Mississippi
Re: [QUAD-L] Re: Bored!
I have to agree 100% with the the hotpack epsom salt method. I was told this years ago by a "old fashioned" nurse and used it first when i got a abscess on my hip from a injection. Just be very careful that you don't burn yourself if you have limited feeling so watch for redness, but this does help, and don't forget peroxide, to boil it out if there is a sore there. I use the packs ofter to help with painful areas. Kathy from Missississippi
[QUAD-L] Fwd: [CountryCooking4UsAll] AN ATTORNEY'S ADVICE
---BeginMessage--- AN ATTORNEY'S ADVICERead this and make a copy for your files in case you need to refer to it someday. Maybe we should all takesome of his advice!A corporate attorney sent the following out to the employees in his company.1. The next time you order checks have only your initials (instead of first name) and last name put on them. If someone takes your checkbook they will not know if you sign your checks with just your initials or your first name but your bank will know how you sign your checks.2. When you are writing checks to pay on your credit card accounts, DO NOT put the complete account number on the "For" line. Instead, just put the last four numbers. The credit card company knows the rest of the number and anyone who might be handling your check asit passes through all the check processing channels won't have access to it.3. Put yo! ur work phone # on your checks instead of your home phone. If you have a PO Box use that instead of your home address. If you do not have a PO Box, use your work address. Never have your SS# printed on yourchecks. (DUH!) You can add it if it is necessary. But if you have it printed, anyone can get it.4. Place the contents of your wallet on a photocopy machine, do both sides of each license, credit card, etc. You will know what you had in your wallet and all of the account numbers and phone numbers to call andcancel. Keep the photocopy in a safe place. I also carry a photocopy of my passport when I travel either here or abroad. We've all heard horror stories about fraud that's committed on us in stealing a name, address, Social Security number, credit cards, etc.Unfortunately I, an attorney, have firsthand knowledge because my wallet was stolen last month. Within a! week, the thieve(s) ordered an expensive monthly cell! phone p ackage, applied for a VISA credit card, had a credit line approved to buy a Gateway computer,received a PIN number from DMV to change my driving record information online, and more.But here's some critical information to limit thedamage in case this happens to you or someone you know:1. We have been told we should cancel our credit cards immediately. But the key is having the toll free numbers and your card numbers handy so you know whom to call. Keep those where you can find them 2. File a police report immediately in thejurisdiction where it was stolen, this proves tocredit providers you were diligent, and is a first step toward an investigation (if there ever is one).But here's what is perhaps most important: (I never even thought to do this).3. Call the three national credit reportingorganizations immediately to place a fraud alert on your name and Social Security number. I had never heard of doing that until advised by a bank that called to tell me anapplication for credit was made over the Internet in my name. The alert means any company that checks your credit knows your information was stolen and they haveto contact you by phone to authorize new credit.By the time I was advised to do this, almost two weeks after the theft, all the damage had been done.There are records of all the credit checks initiated by the thieves' purchases, none of which I knew about before placing the alert. Since then, no additional damage has been done, and the thieves threw my wallet awaythis weekend (someone turned it in). It seems to have stopped them in their tracks.The numbers are:Equifax: 1-800-525-6285 Experian (formerly TRW): 1-888-397-3742Trans Union: 1-800-680-7289 Social Security Administration (fraud ! line):1-800-269-0271We pass along jokes on the Int! ernet; w e pass along just about everything. Pass this information along. It could really help someone you care about. Yahoo! Groups Sponsor ADVERTISEMENT Yahoo! Groups Links To visit your group on the web, go to:http://groups.yahoo.com/group/CountryCooking4UsAll/ To unsubscribe from this group, send an email to:[EMAIL PROTECTED] Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. ---End Message---
Re: [QUAD-L] Fw: Internal Shakes
Hi Val, I am glad to find a soul mate. I am 47 residing in a body that pictures a more aged person. Not to mention that I sit all day, I have tried to explain the coldness that I feel inside and out. All summer I enjoyed the southern temperture and no one could believe me. When I would come into the air conditioned house, I would go into a chill and would have to be covered immediately. When I get up every day I wear I shawl that I got at Wal-mart that I keep around my shoulders that I can completely cover up my arms when I need to in the house, in the yard, and especially, in the car, and the GROCERY STORE, boy do I freeze there.Its just something you cannot explain. Something else that has changed for me is my appetite and the type if food that I eat. Don't get the wrong idea here. I need to loose a load of weight, so starving is not going on here. Its mostly my husband and me here now, and we have a freezer full of summer fresh vegetables and when I make a choice it will usually be something from there. I have started not wanting to eat at "correct" meal time and eating what we would consider or "usual" meals. We are doing a snack or a mini meal, just cannot decide on what sound "good" to me/ Kathy in Mississippi
Re: [QUAD-L] If only... dreams
It was so strange to read about your dreams. It was a page right out of my book, that has become tattered from being remembered and still being wished that it could come true today. I rode tennessee walkers, my husband and I loved to slow dance , and we were married in a log cabin in the Smokey Mountains in Pigeon Forge, Tenn. It was our dream that when we retired to own our cabin in the moutain, needless to say that money went through our finger tips like water in those streams. Kathy in Mississippi
Re: eScribe: Quadriplegics: Message: [QUAD-L] this is bullshit!
Hello Everyone, I just decided I would write and say hello to everyone and see if it would go through. I was in for tune up therapy in february and believe it was about that time that Breezy was having difficulty with her posting. I know I posted several times and didn't see them come through and didn't know what the problem was. I am trying to send this now, so if it comes through--hello everyone, and I will be a more active poster in the future. Kathy in Mississippi
