Re: [QUAD-L] Help for a urinary tract infection

[Dana Wray]

Please call your Senators at the Congressional
hotline. Congressional Switchboard
866-922-4970



The U.S. Senate is one or two votes away from approving new health care
legislation that would cut and cap Medicaid and put at risk the essential
health benefits and pre-existing condition protections that are so
important to individuals with disabilities and their families. This vote
will occur the week of September 25th.

TAKE ACTION NOW! Tell your Senators to protect Medicaid home and
community-based services for children and adults with disabilities by
rejecting proposals that cut and cap Medicaid!

Please oppose the Graham-Cassidy amendment. The legislation includes
harmful provisions that would cap and cut Medicaid services for individuals
with disabilities and create uncertainty around essential health benefits
and other protections currently available to Americans with disabilities
and other pre-existing conditions.


On Sat, Sep 9, 2017 at 9:50 AM, Dave Krehbiel <davekrehb...@earthlink.net>
wrote:

> Regarding the cloudiness: my urine used to be cloudy. At the time, I was
> asking my aides to add lemon juice to my water, hoping that it would
> decrease UTIs and help me drink more water. But then I read on this forum
> that lemon juice can result in cloudy urine. I discontinued the lemons, and
> the cloudiness went away.
>
>
>
> Regarding UTIs, I have heard that cranberry juice is a good thing. Good
> luck.
>
>
>
> *From:* Ron M Pracht [mailto:qua...@yahoo.com]
> *Sent:* Saturday, September 9, 2017 4:39 AM
> *To:* Quad-list Post
> *Subject:* [QUAD-L] Help for a urinary tract infection
>
>
>
> I currently have a uti. My urine is very cloudy when I look at it but my
> temp is only 99.1. Ive had much worse in my quad years but still I don't
> think it will go away on its own. Any suggestions on how to possibly get
> rid of this without a doc visit and cipro? I cant really drink tons at once
> because I straight cathe and leak a bit( that's another issue). Any insight
> would be appreciated, cant get to doc until next week.
>
>
>
> Ron c7 quad since 98
>
>
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>

RE: [QUAD-L] Help for a urinary tract infection

[Dave Krehbiel]

Regarding the cloudiness: my urine used to be cloudy. At the time, I was asking 
my aides to add lemon juice to my water, hoping that it would decrease UTIs and 
help me drink more water. But then I read on this forum that lemon juice can 
result in cloudy urine. I discontinued the lemons, and the cloudiness went away.



Regarding UTIs, I have heard that cranberry juice is a good thing. Good luck.



From: Ron M Pracht [mailto:qua...@yahoo.com]
Sent: Saturday, September 9, 2017 4:39 AM
To: Quad-list Post
Subject: [QUAD-L] Help for a urinary tract infection



I currently have a uti. My urine is very cloudy when I look at it but my temp 
is only 99.1. Ive had much worse in my quad years but still I don't think it 
will go away on its own. Any suggestions on how to possibly get rid of this 
without a doc visit and cipro? I cant really drink tons at once because I 
straight cathe and leak a bit( that's another issue). Any insight would be 
appreciated, cant get to doc until next week.



Ron c7 quad since 98



---
This email has been checked for viruses by Avast antivirus software.
https://www.avast.com/antivirus

[QUAD-L] Help for a urinary tract infection

[Ron M Pracht]

 I currently have a uti. My urine is very cloudy when I look at it but my temp 
is only 99.1. Ive had much worse in my quad years but still I don't think it 
will go away on its own. Any suggestions on how to possibly get rid of this 
without a doc visit and cipro? I cant really drink tons at once because I 
straight cathe and leak a bit( that's another issue). Any insight would be 
appreciated, cant get to doc until next week.
Ron c7 quad since 98

Re: [QUAD-L] Help for caregivers and outside just the golden rule...

[Don Smith]

You might try  care.com.  It cost $30.00 for a month, it worked for me.
Craigslist is also a good place to put an ad.

On Mon, May 22, 2017 at 9:09 PM, Lori Michaelson <lorilivin...@gmail.com>
wrote:

> ​Yep Jeff... tried to find them last year and specifically the university
> paper but there are others. My days have been so full of having one
> accident or things that have to be done ASAP (or that day or that hour)
> that we have not had time to even interview people at this point. This is
> not an excuse... just the truth.
>
> Actually,  a lady that we found via advertising showed up on our doorstep
> about a month ago. We let her and and she said that she was interested in
> the job again (after she got over whatever crisis she had that she didn't
> workout last year when my caregiver has to go away at least every month or
> every other month). She said "I am just down the road so that would work
> out nicely/additionally." Well, she never came back and when I tried to
> call her at left a message and she never returned the call. When she was
> here she also said that she might be breaking up with her boyfriend or
> fiancé and when I spoke with her on the phone she told me that she did and
> was in the process of moving but was still interested. Yeah right. And she
> wasn't a young immature girl but, at the same time, not over my age either.
> I was so hoping she would work out. My caregiver has had it with her so she
> says if she shows up at the doorstep again she will look out the peephole
> and if it is her she will not open the door. We are tired of sob stories
> when we are trying to survive ourselves every day.
>
> You can only give someone so many times and if you are depending on that
> person to stay with you for a week... you can't wonder if they are going to
>  show up at all. My live-in caregiver is extremely dependent and neither of
> us understand people like this. I mean, whatever came up again... can't you
> just call and say that it won't work out again?"
>
> Same thing happened with a girl who was cleaning for me and my husband
> before he died. She has cleaned for me again four or five times that now
> she has dropped off the face of the earth. No returning our calls or text
> and, again, actions speak louder. Although, how come these people are
> always on Facebook? Rhetorical course! Irritates the crap out of me and my
> caregiver though!
>
> In addition to me, I just know that William or Larry had just posted this
> question about caregivers so thought I would offer that article for him and
> then just put in my $.02. Oh... wait! $20 with inflation and all.  :-)
>
> ~Lori​
>
> On Mon, May 22, 2017 at 8:01 PM, Jeffrey Gaede <jsga...@yahoo.com> wrote:
>
>> Have you ever tried advertising in the newspaper, Lori. Seems like I
>> tried that once and it worked. I mean there are people out there but it's
>> just a matter of finding them. Keep pushing on…
>>
>>
>> --
>> *From:* Lori Michaelson <lorilivin...@gmail.com>
>> *To:* quad-list <quad-list@eskimo.com>
>> *Sent:* Monday, May 22, 2017 7:42 PM
>> *Subject:* [QUAD-L] Help for caregivers and outside just the golden
>> rule...
>>
>> http://health.usnews.com/health-care/for-better/articles/
>> 2017-05-19/how-caregivers-can-find-relief-beyond-the-golden-
>> rule?int=health-care-rec
>>
>> While I can empathize with all the caregivers out there... I have never
>> seen one article on help for those who need the help and are in constant
>> pain and need help around the clock and often times having their life
>> stolen from them like I have over the last year and a half. Not one single
>> article.
>>
>> I have been having the worst of time and hurt the most by medical
>> caregivers over the years but I have not been in a position like I am now
>> since my injury over 37 years ago. Back then at least I had my mother and
>> my grandparents and they were the ones who had a shrewd best interest in my
>> well-being. Actions will always speak louder than words and know that they
>> are gone I have had to fend for myself. Unfortunately, I am not wealthy
>> enough to pay for what caregivers now want just to become a glorified
>> babysitter ($26/hour) but not poor enough to be eligible for any type of
>> Medicaid.
>>
>> I have tried colleges, training programs, Independent Living Centers (I
>> used to work for one), churches and so much more only to come up empty.
>> This is the first time in my life I have not been able to find anyone.
>>
>> Hope and prayer is the only thing I can do.
>>
>> --
>> "Petting, scratching and cuddling a dog could be soothing to the mind and
>> heart and deep meditation and almost as good for the soul as prayer." ~Dean
>> Koontz
>>
>>
>>
>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

Re: [QUAD-L] Help for caregivers and outside just the golden rule...

[Lori Michaelson]

​Yep Jeff... tried to find them last year and specifically the university
paper but there are others. My days have been so full of having one
accident or things that have to be done ASAP (or that day or that hour)
that we have not had time to even interview people at this point. This is
not an excuse... just the truth.

Actually,  a lady that we found via advertising showed up on our doorstep
about a month ago. We let her and and she said that she was interested in
the job again (after she got over whatever crisis she had that she didn't
workout last year when my caregiver has to go away at least every month or
every other month). She said "I am just down the road so that would work
out nicely/additionally." Well, she never came back and when I tried to
call her at left a message and she never returned the call. When she was
here she also said that she might be breaking up with her boyfriend or
fiancé and when I spoke with her on the phone she told me that she did and
was in the process of moving but was still interested. Yeah right. And she
wasn't a young immature girl but, at the same time, not over my age either.
I was so hoping she would work out. My caregiver has had it with her so she
says if she shows up at the doorstep again she will look out the peephole
and if it is her she will not open the door. We are tired of sob stories
when we are trying to survive ourselves every day.

You can only give someone so many times and if you are depending on that
person to stay with you for a week... you can't wonder if they are going to
 show up at all. My live-in caregiver is extremely dependent and neither of
us understand people like this. I mean, whatever came up again... can't you
just call and say that it won't work out again?"

Same thing happened with a girl who was cleaning for me and my husband
before he died. She has cleaned for me again four or five times that now
she has dropped off the face of the earth. No returning our calls or text
and, again, actions speak louder. Although, how come these people are
always on Facebook? Rhetorical course! Irritates the crap out of me and my
caregiver though!

In addition to me, I just know that William or Larry had just posted this
question about caregivers so thought I would offer that article for him and
then just put in my $.02. Oh... wait! $20 with inflation and all.  :-)

~Lori​

On Mon, May 22, 2017 at 8:01 PM, Jeffrey Gaede <jsga...@yahoo.com> wrote:

> Have you ever tried advertising in the newspaper, Lori. Seems like I tried
> that once and it worked. I mean there are people out there but it's just a
> matter of finding them. Keep pushing on…
>
>
> --
> *From:* Lori Michaelson <lorilivin...@gmail.com>
> *To:* quad-list <quad-list@eskimo.com>
> *Sent:* Monday, May 22, 2017 7:42 PM
> *Subject:* [QUAD-L] Help for caregivers and outside just the golden
> rule...
>
> http://health.usnews.com/health-care/for-better/articles/2017-05-19/how-
> caregivers-can-find-relief-beyond-the-golden-rule?int=health-care-rec
>
> While I can empathize with all the caregivers out there... I have never
> seen one article on help for those who need the help and are in constant
> pain and need help around the clock and often times having their life
> stolen from them like I have over the last year and a half. Not one single
> article.
>
> I have been having the worst of time and hurt the most by medical
> caregivers over the years but I have not been in a position like I am now
> since my injury over 37 years ago. Back then at least I had my mother and
> my grandparents and they were the ones who had a shrewd best interest in my
> well-being. Actions will always speak louder than words and know that they
> are gone I have had to fend for myself. Unfortunately, I am not wealthy
> enough to pay for what caregivers now want just to become a glorified
> babysitter ($26/hour) but not poor enough to be eligible for any type of
> Medicaid.
>
> I have tried colleges, training programs, Independent Living Centers (I
> used to work for one), churches and so much more only to come up empty.
> This is the first time in my life I have not been able to find anyone.
>
> Hope and prayer is the only thing I can do.
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>
>
>


-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

Re: [QUAD-L] Help for caregivers and outside just the golden rule...

[Jeffrey Gaede]

Have you ever tried advertising in the newspaper, Lori. Seems like I tried that 
once and it worked. I mean there are people out there but it's just a matter of 
finding them. Keep pushing on…

  From: Lori Michaelson <lorilivin...@gmail.com>
 To: quad-list <quad-list@eskimo.com> 
 Sent: Monday, May 22, 2017 7:42 PM
 Subject: [QUAD-L] Help for caregivers and outside just the golden rule...
   
http://health.usnews.com/health-care/for-better/articles/2017-05-19/how-caregivers-can-find-relief-beyond-the-golden-rule?int=health-care-rec

While I can empathize with all the caregivers out there... I have never seen 
one article on help for those who need the help and are in constant pain and 
need help around the clock and often times having their life stolen from them 
like I have over the last year and a half. Not one single article. 
I have been having the worst of time and hurt the most by medical caregivers 
over the years but I have not been in a position like I am now since my injury 
over 37 years ago. Back then at least I had my mother and my grandparents and 
they were the ones who had a shrewd best interest in my well-being. Actions 
will always speak louder than words and know that they are gone I have had to 
fend for myself. Unfortunately, I am not wealthy enough to pay for what 
caregivers now want just to become a glorified babysitter ($26/hour) but not 
poor enough to be eligible for any type of Medicaid.
I have tried colleges, training programs, Independent Living Centers (I used to 
work for one), churches and so much more only to come up empty. This is the 
first time in my life I have not been able to find anyone.
Hope and prayer is the only thing I can do. 
-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz


   

[QUAD-L] Help for caregivers and outside just the golden rule...

[Lori Michaelson]

http://health.usnews.com/health-care/for-better/articles/2017-05-19/how-caregivers-can-find-relief-beyond-the-golden-rule?int=health-care-rec

While I can empathize with all the caregivers out there... I have never
seen one article on help for those who need the help and are in constant
pain and need help around the clock and often times having their life
stolen from them like I have over the last year and a half. Not one single
article.

I have been having the worst of time and hurt the most by medical
caregivers over the years but I have not been in a position like I am now
since my injury over 37 years ago. Back then at least I had my mother and
my grandparents and they were the ones who had a shrewd best interest in my
well-being. Actions will always speak louder than words and know that they
are gone I have had to fend for myself. Unfortunately, I am not wealthy
enough to pay for what caregivers now want just to become a glorified
babysitter ($26/hour) but not poor enough to be eligible for any type of
Medicaid.

I have tried colleges, training programs, Independent Living Centers (I
used to work for one), churches and so much more only to come up empty.
This is the first time in my life I have not been able to find anyone.

Hope and prayer is the only thing I can do.

-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
Koontz

[QUAD-L] Help getting my shower chair seat dipped?

[RONALD L PRACHT]

 I have an older Guardian roll around shower chair. Im a big, tall guy so years 
ago I had the seat cushion custom made then dipped in a grey plastic coating. 
An organization called Adaptability actually had the cushion made for me. It 
tore a hole in it and is getting water inside and making the transfers hard. 
Does anyone on the list know a place where I can get a new cushion dipped/made? 
Im thinking if I mail them the one I have they can make it from that. Any ideas 
appreciated. I would buy a whole new mobile shower chair but im tall and 
getting a proper fit is hard..
Ron 

Re: [QUAD-L] help, AD is happening when laying down at bedtime

[Derrick]

Thanks for everyone's replies..
Derrick

On 4/9/2016 8:23 PM, Robert Vogel wrote:

Hi Derrick and all,

I am attaching a link for a column wrote for New Mobility about AD. 
 The bottom line is any type of stimulus (pain or
discomfort, or intense physical pleasure stimulus) can set off AD. 
 Here is the link to the column and at the bottom

of the article is the SCI Nurse hotline number.
http://www.newmobility.com/2011/11/autonomic-dysreflexia/

Best!
Bob Vogel

On Apr 8, 2016, at 1:55 PM, Derrick > wrote:


Hey all,
My c/5 friend 25 years post sci, has been having AD every night. Here 
is his last email, "just got back from er, get ad every night this 
week when i lay down at bed time, did blood work and ct scanall 
normal blood and scan except kidney stones and sinus infection...not 
sure whats causing it but its been bad."
Does anybody have had similar AD? Would kidney stones cause it to 
happen only when you lay down?


Someone posted a phone number for a SCI hotline, or SCI nurse and 
doctor to answer sci questions? What was the phone number?


Thanks in advance if you will reply to help him figure this AD out,
Derrick W in PA

ps: we live in very rural area so no major hospital or doctors. just 
a local called "band aide station" hospital

Re: [QUAD-L] help, AD is happening when laying down at bedtime

[Robert Vogel]

Hi Derrick and all,

I am attaching a link for a column wrote for New Mobility about AD.  The bottom 
line is any type of stimulus (pain or 
discomfort, or intense physical pleasure stimulus) can set off AD.  Here is the 
link to the column and at the bottom 
of the article is the SCI Nurse hotline number.
http://www.newmobility.com/2011/11/autonomic-dysreflexia/ 


Best!
Bob Vogel

> On Apr 8, 2016, at 1:55 PM, Derrick  wrote:
> 
> Hey all,
> My c/5 friend 25 years post sci, has been having AD every night. Here is his 
> last email, "just got back from er, get ad every night this week when i lay 
> down at bed time, did blood work and ct scanall normal blood and scan 
> except kidney stones and sinus infection...not sure whats causing it but its 
> been bad."
> Does anybody have had similar AD? Would kidney stones cause it to happen only 
> when you lay down?
> 
> Someone posted a phone number for a SCI hotline, or SCI nurse and doctor to 
> answer sci questions? What was the phone number?
> 
> Thanks in advance if you will reply to help him figure this AD out,
> Derrick W in PA
> 
> ps: we live in very rural area so no major hospital or doctors. just a local 
> called "band aide station" hospital
> 

Re: [QUAD-L] help, AD is happening when laying down at bedtime

[Brittany Déjean]

Hi Derrick-

Here's the nurse hotline from Craig hospital open to anyone:
https://craighospital.org/resources/nurse-advice-line

Hope it's helpful. I've definitely heard of kidney stones causing AD. I
hope you figure it out soon and your friend feels better.

Take care,
Brittany

On Sat, Apr 9, 2016 at 4:23 AM, Kay at Amplified Agility <
k...@amplifiedagility.com> wrote:

> Kidney stones and sinus infection would certainly do ithow are those
> being treated?  Needs resolution...probably don't need to dig deeper for
> another potential cause...
> Kay
>
>
> -Original Message-
> From: Derrick [mailto:wheel...@centurylink.net]
> Sent: Friday, April 8, 2016 1:55 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] help, AD is happening when laying down at bedtime
>
> Hey all,
> My c/5 friend 25 years post sci, has been having AD every night. Here is
> his last email, "just got back from er, get ad every night this week when i
> lay down at bed time, did blood work and ct scanall normal blood and
> scan except kidney stones and sinus infection...not sure whats causing it
> but its been bad."
> Does anybody have had similar AD? Would kidney stones cause it to happen
> only when you lay down?
>
> Someone posted a phone number for a SCI hotline, or SCI nurse and doctor
> to answer sci questions? What was the phone number?
>
> Thanks in advance if you will reply to help him figure this AD out,
> Derrick W in PA
>
> ps: we live in very rural area so no major hospital or doctors. just a
> local called "band aide station" hospital
>
>
>


-- 
*Brittany Déjean*
Founder & Director

@AbleThrive <http://www.twitter.com/ablethrive>/Facebook
<http://www.facebook.com/ablethrive>

This is the end of the message
--

RE: [QUAD-L] help, AD is happening when laying down at bedtime

[Kay at Amplified Agility]

Kidney stones and sinus infection would certainly do ithow are those being 
treated?  Needs resolution...probably don't need to dig deeper for another 
potential cause...
Kay


-Original Message-
From: Derrick [mailto:wheel...@centurylink.net] 
Sent: Friday, April 8, 2016 1:55 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] help, AD is happening when laying down at bedtime

Hey all,
My c/5 friend 25 years post sci, has been having AD every night. Here is his 
last email, "just got back from er, get ad every night this week when i lay 
down at bed time, did blood work and ct scanall normal blood and scan 
except kidney stones and sinus infection...not sure whats causing it but its 
been bad."
Does anybody have had similar AD? Would kidney stones cause it to happen only 
when you lay down?

Someone posted a phone number for a SCI hotline, or SCI nurse and doctor to 
answer sci questions? What was the phone number?

Thanks in advance if you will reply to help him figure this AD out, Derrick W 
in PA

ps: we live in very rural area so no major hospital or doctors. just a local 
called "band aide station" hospital

Fwd: [QUAD-L] help, AD is happening when laying down at bedtime

[William Willis]

Kidney stones could certainly cause ad. They could move when you lie down and 
put pressure on painful areas. I know my bladder hurts every morning when I 
first wake up. Don't know why. I would bet that stones are the problem. Are you 
sure there are no other cuts, sores, etc?

Sent from my iPad

Begin forwarded message:

> Resent-From: quad-list@eskimo.com
> From: Derrick <wheel...@centurylink.net>
> Date: April 8, 2016 at 4:55:17 PM EDT
> To: quad-list@eskimo.com
> Subject: [QUAD-L] help, AD is happening when laying down at bedtime
> 
> Hey all,
> My c/5 friend 25 years post sci, has been having AD every night. Here is his 
> last email, "just got back from er, get ad every night this week when i lay 
> down at bed time, did blood work and ct scanall normal blood and scan 
> except kidney stones and sinus infection...not sure whats causing it but its 
> been bad."
> Does anybody have had similar AD? Would kidney stones cause it to happen only 
> when you lay down?
> 
> Someone posted a phone number for a SCI hotline, or SCI nurse and doctor to 
> answer sci questions? What was the phone number?
> 
> Thanks in advance if you will reply to help him figure this AD out,
> Derrick W in PA
> 
> ps: we live in very rural area so no major hospital or doctors. just a local 
> called "band aide station" hospital
> 

[QUAD-L] help, AD is happening when laying down at bedtime

[Derrick]

Hey all,
My c/5 friend 25 years post sci, has been having AD every night. Here is 
his last email, "just got back from er, get ad every night this week 
when i lay down at bed time, did blood work and ct scanall normal 
blood and scan except kidney stones and sinus infection...not sure whats 
causing it but its been bad."
Does anybody have had similar AD? Would kidney stones cause it to happen 
only when you lay down?


Someone posted a phone number for a SCI hotline, or SCI nurse and doctor 
to answer sci questions? What was the phone number?


Thanks in advance if you will reply to help him figure this AD out,
Derrick W in PA

ps: we live in very rural area so no major hospital or doctors. just a 
local called "band aide station" hospital

Re: [QUAD-L] Help with PCA ad

[shirley bell]

Hi Joan, in your add, it says position is with an agency? but you hire after? 
how does it work in your state. In RI, I was on a Medicare part c program for 
many years until the agency closed due to mismanagement of funds by director, 
really bad. I AM NO LONGER RECEIVING ANY HELP.Anyway, I was issued checks to 
pay my pca's that I hired. It is hard now because I can't receive help unless I 
get on Medicaid and don't qualify because I have more than 10 thousand in 
savings. It is such a bad system. I have tried to stay off Medicaid and support 
myself and they push people to get on it to receive any help! My husband will 
be helping me now but as we are all talking about, things can change in an 
instant. I try not to worry but its hard. Do others get help from their states? 
Best,
Shirley Bell

Subject: RE: [QUAD-L] Help with PCA ad


  Hi Bobbie

  This is a sample of what I use. I just change it for specific needs. I use 
craigslist, Facebook pages that are appropriate (we have one: Word-of-Mouth 
jobs that is great). Good luck. I HATE looking for new attendants. Joan

   

  PART TIME PERSONAL CARE ATTENDANT (NORTH VALLEY) 

  Personal care attendant part time. Quadriplegic woman in North Valleys Pay 
$10.75 an hour. Complete background checks are required. Saturday and Sunday 
from 7:00 AM to 11:00 AM. If interested in more time it can also include Monday.

  Position is with an agency, but we hire after interviews. Duties include 
personal care, bathing, dressing, fixing breakfast, feeding, and transfers into 
wheelchair.  We have an overhead lift for transfers. No experience necessary, 
we will train

  I am looking for someone who wants the part time job for the foreseeable 
future, and is not just in between jobs and looking for something 
temporary. It also takes two or three weeks for training and background checks 
before you start work. If interested reply with a brief description of 
yourself, it is not necessary to send a resume at this point. Please include 
your phone number and what time is the best time to call. Thank you so much 

   

  From: llt1...@sbcglobal.net [mailto:llt1...@sbcglobal.net] 
  Sent: Monday, June 29, 2015 6:29 PM
  To: quad-list@eskimo.com
  Subject: [QUAD-L] Help with PCA ad

   

  Hey folks, 

  I really need your help! If you're like me, you have a lot of things to say 
when it comes to helping others, but not so much when it comes to ourselves! 

  Well, I'm in the middle of a rainstorm and am having trouble! I need to find 
an attendant! Part time help for evenings. What I need help with is putting 
together an ad and ideas on where to put the ads!

   

  Any and all suggestions welcome! 

  Thanks, 

  Lori  

   

  Sent from my MetroPCS 4G Android device

   

RE: [QUAD-L] Help with PCA ad

[Joan Anglin]

Hi Bobbie

This is a sample of what I use. I just change it for specific needs. I use 
craigslist, Facebook pages that are appropriate (we have one: Word-of-Mouth 
jobs that is great). Good luck. I HATE looking for new attendants. Joan

 

PART TIME PERSONAL CARE ATTENDANT (NORTH VALLEY) 

Personal care attendant part time. Quadriplegic woman in North Valleys Pay 
$10.75 an hour. Complete background checks are required. Saturday and Sunday 
from 7:00 AM to 11:00 AM. If interested in more time it can also include Monday.

Position is with an agency, but we hire after interviews. Duties include 
personal care, bathing, dressing, fixing breakfast, feeding, and transfers into 
wheelchair.  We have an overhead lift for transfers. No experience necessary, 
we will train

I am looking for someone who wants the part time job for the foreseeable 
future, and is not just in between jobs and looking for something 
temporary. It also takes two or three weeks for training and background checks 
before you start work. If interested reply with a brief description of 
yourself, it is not necessary to send a resume at this point. Please include 
your phone number and what time is the best time to call. Thank you so much 

 

From: llt1...@sbcglobal.net [mailto:llt1...@sbcglobal.net] 
Sent: Monday, June 29, 2015 6:29 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help with PCA ad

 

Hey folks, 

I really need your help! If you're like me, you have a lot of things to say 
when it comes to helping others, but not so much when it comes to ourselves! 

Well, I'm in the middle of a rainstorm and am having trouble! I need to find an 
attendant! Part time help for evenings. What I need help with is putting 
together an ad and ideas on where to put the ads!

 

Any and all suggestions welcome! 

Thanks, 

Lori  

 

Sent from my MetroPCS 4G Android device

 

RE: RE: [QUAD-L] Help with PCA ad

[Joan Anglin]

So sorry Lori

We have a school of nursing here in Reno as well as a school of nursing at the 
Truckee Meadows community college. I found a couple of good attendants but we 
had problems scheduling around their schedule J. They are also only looking for 
the most part for during the school year and they’re gone during holidays. 
Perhaps you will have more luck. My biggest problem is finding somebody for the 
weekends-hired one last month, after four days plus money out of pocket, 
decided that it was too emotional of a job! Back to the drawing board. Good 
luck Joan

 

From: llt1...@sbcglobal.net [mailto:llt1...@sbcglobal.net] 
Sent: Tuesday, June 30, 2015 10:36 AM
To: poaj...@sbcglobal.net; quad-list@eskimo.com
Subject: Re: RE: [QUAD-L] Help with PCA ad

 

Thank you, Joan! Btw, this is Lori! And, I agree! I HATE looking for an 
attendant too!!

My roommate got sick, last October and can't do the bulk of it anymore :-( He 
has been helping me since 1996!! And, my good friend has been helping me since 
1999!! Needless to say, this has been a shock to my system! I've been very 
blessed with the 2 best attendants I could ever imagine! Didn't think I took it 
for granted until he got sick. My world was turned upside down! We thought we 
were going to lose him, he was that sick. 

I did have a young girl take over the evenings, but she moved out of state. 
Another girl took over the weekend mornings (a neighbor) Now I'm once again 
looking! :-\ 

 

I'm thinking of putting an ad at the 2 colleges in my area (in the nursing 
school area) 

 

Sent from my MetroPCS 4G Android device

 

 

-- Original message--

From: Joan Anglin

Date: Tue, 6/30/2015 10:53 AM

To: llt1...@sbcglobal.net;quad-list@eskimo.com;

Subject:RE: [QUAD-L] Help with PCA ad

 

Hi Bobbie

This is a sample of what I use. I just change it for specific needs. I use 
craigslist, Facebook pages that are appropriate (we have one: Word-of-Mouth 
jobs that is great). Good luck. I HATE looking for new attendants. Joan

 

PART TIME PERSONAL CARE ATTENDANT (NORTH VALLEY) 

Personal care attendant part time. Quadriplegic woman in North Valleys Pay 
$10.75 an hour. Complete background checks are required. Saturday and Sunday 
from 7:00 AM to 11:00 AM. If interested in more time it can also include Monday.

Position is with an agency, but we hire after interviews. Duties include 
personal care, bathing, dressing, fixing breakfast, feeding, and transfers into 
wheelchair.  We have an overhead lift for transfers. No experience necessary, 
we will train

I am looking for someone who wants the part time job for the foreseeable 
future, and is not just in between jobs and looking for something 
temporary. It also takes two or three weeks for training and background checks 
before you start work. If interested reply with a brief description of 
yourself, it is not necessary to send a resume at this point. Please include 
your phone number and what time is the best time to call. Thank you so much 

 

From: llt1...@sbcglobal.net [mailto:llt1...@sbcglobal.net] 
Sent: Monday, June 29, 2015 6:29 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help with PCA ad

 

Hey folks, 

I really need your help! If you're like me, you have a lot of things to say 
when it comes to helping others, but not so much when it comes to ourselves! 

Well, I'm in the middle of a rainstorm and am having trouble! I need to find an 
attendant! Part time help for evenings. What I need help with is putting 
together an ad and ideas on where to put the ads!

 

Any and all suggestions welcome! 

Thanks, 

Lori  

 

Sent from my MetroPCS 4G Android device

 

Re: RE: [QUAD-L] Help with PCA ad

[llt1...@sbcglobal.net]

Thank you, Joan! Btw, this is Lori! And, I agree! I HATE looking for an attendant too!!My roommate got sick, last October and can't do the bulk of it anymore :-( He has been helping me since 1996!! And, my good friend has been helping me since 1999!! Needless to say, this has been a shock to my system! I've been very blessed with the 2 best attendants I could ever imagine! Didn't think I took it for granted until he got sick. My world was turned upside down! We thought we were going to lose him, he was that sick.I did have a young girl take over the evenings, but she moved out of state. Another girl took over the weekend mornings (a neighbor) Now I'm once again looking! :-\I'm thinking of putting an ad at the 2 colleges in my area (in the nursing school area)Sent from my MetroPCS 4G Android device-- Original message-- From:Joan Anglin<poaj...@sbcglobal.net>Date:Tue, 6/30/2015 10:53 AMTo:llt1...@sbcglobal.net;quad-list@eskimo.com;Subject:RE: [QUAD-L] Help with PCA adHi BobbieThis is a sample of what I use. I just change it for specific needs. I use craigslist, Facebook pages that are appropriate (we have one: Word-of-Mouth jobs that is great). Good luck. I HATE looking for new attendants. JoanPART TIME PERSONAL CARE ATTENDANT (NORTH VALLEY) Personal care attendant part time. Quadriplegic woman in North Valleys Pay $10.75 an hour. Complete background checks are required. Saturday and Sunday from 7:00 AM to 11:00 AM. If interested in more time it can also include Monday.Position is with an agency, but we hire after interviews. Duties include personal care, bathing, dressing, fixing breakfast, feeding, and transfers into wheelchair. We have an overhead lift for transfers. No experience necessary, we will trainI am looking for someone who wants the part time job for the foreseeable future, and is not just in between jobs and looking for something temporary. It also takes two or three weeks for training and background checks before you start work. If interested reply with a brief description of yourself, it is not necessary to send a resume at this point. Please include your phone number and what time is the best time to call. Thank you so much From: llt1...@sbcglobal.net [mailto:llt1...@sbcglobal.net] Sent: Monday, June 29, 2015 6:29 PMTo: quad-list@eskimo.comSubject: [QUAD-L] Help with PCA adHey folks,I really need your help! If you're like me, you have a lot of things to say when it comes to helping others, but not so much when it comes to ourselves!Well, I'm in the middle of a rainstorm and am having trouble! I need to find an attendant! Part time help for evenings. What I need help with is putting together an ad and ideas on where to put the ads!Any and all suggestions welcome!Thanks,Lori Sent from my MetroPCS 4G Android device

[QUAD-L] Help with PCA ad

[llt1...@sbcglobal.net]

Hey folks,I really need your help! If you're like me, you have a lot of things to say when it comes to helping others, but not so much when it comes to ourselves!Well, I'm in the middle of a rainstorm and am having trouble! I need to find an attendant! Part time help for evenings. What I need help with is putting together an ad and ideas on where to put the ads!Any and all suggestions welcome!Thanks,Lori Sent from my MetroPCS 4G Android device

Re: [QUAD-L] help for finding a standing lift

[Bob Vogel]

I second the CAUTION on standing if you haven't stood in 20 years.  The 
*average* para and quad has 
severe osteoporosis after 20 years.  I would talk with a PMR doc and ask about 
a bone scan--best would
be a bone scan of bones in the lower leg--which only a few centers do.

Here is an article I wrote about the natural progression of bone loss after 
spinal cord injury.  Fingers crossed
you are among the 20% of individuals that for some unknown reason develop 
stronger bones as time goes
on.

Bob V

Osteoporosis Update: Avoiding the Breaks
http://www.newmobility.com/2009/12/osteoporosis-update/


On Apr 8, 2015, at 10:59 AM, William Lang III wrote:

 Hi,
 
 You said you had not stood up for 20 years. Did you have a doctor recommend 
 standing? You might be doing harm to yourself at this juncture. Your bone 
 structure is not used to standing especially  after such a long time.  I am 
 26 years post and I get range of motion every day prior to seating. I believe 
 that has benefited me over the years.
 
 If you are still looking, I donated a standing frame by advertising it on 
 craigslist. you can try there.
 
 
 
 
  on Apr 7, 2015, at 3:04 PM, sjg1073...@aol.com wrote:
 i'am a c 6,7 quad  been paralyzed for 26yrs
 i having a really hard time finding a used standing lift.
 i cannot affored the new ones i looked every where.
 and there are no rehab places to receive outpaient theraphy.
 i have not stand up in 20yrs its been so long and frustrating.
  
 any help would be greatfull. ty 
 

Re: [QUAD-L] help for finding a standing lift

[William Lang III]

Hi,

You said you had not stood up for 20 years. Did you have a doctor recommend 
standing? You might be doing harm to yourself at this juncture. Your bone 
structure is not used to standing especially  after such a long time.  I am 26 
years post and I get range of motion every day prior to seating. I believe that 
has benefited me over the years.

If you are still looking, I donated a standing frame by advertising it on 
craigslist. you can try there.




 on Apr 7, 2015, at 3:04 PM, sjg1073...@aol.com wrote:
 i'am a c 6,7 quad  been paralyzed for 26yrs
 i having a really hard time finding a used standing lift.
 i cannot affored the new ones i looked every where.
 and there are no rehab places to receive outpaient theraphy.
 i have not stand up in 20yrs its been so long and frustrating.
  
 any help would be greatfull. ty 

[QUAD-L] help for finding a standing lift

[sjg1073gar]

i'am a c 6,7 quad  been paralyzed for 26yrs
i having a really hard time finding a used standing lift.
i cannot affored the new ones i looked every where.
and there are no rehab places to receive outpaient theraphy.
i have not stand up in 20yrs its been so long and frustrating.
 
any help would be greatfull. ty 

[QUAD-L] help

[ppacera]

I am laying in bed waiting on my aide.She has been with me for a few years and 
I can't take her lateness and attitude towards the job.I have had enough and so 
has she. 

Can you good folks give me some advice in finding a new aide? Do I advertise? 
Do you know a good interview process? Can you direct me to some resources? Any 
thought is appreciated.This is difficult for me.I am a C5/6 quad who lives 
alone. 

Thank you all, 
Paul 

RE: [QUAD-L] help

[Danny Espinoza]

Have you tried working with a social worker to find out your options in your state? Here where I live we talk with in home support services in Sothern California but originally a social worker told me what was out there, get me signed up and helped me get it covered by insurance. Now when I need a caregiver I basically call and tell them to put me on the list and start getting calls from prospective caregivers and set up an interview if they answered my questions over the phone well enough. If you want to find someone on your own that you can pay out of pocket unfortunately other than word of mouth I''m unsure of good ways.Good luck!-Danny


 Original Message 
Subject: [QUAD-L] help
From: ppac...@comcast.net
Date: Sun, June 01, 2014 9:52 am
To: Quad List quad-list@eskimo.com

I am laying in bed waiting on my aide.She has been with me for a few years and I can't take her lateness and attitude towards the job.I have had enough and so has she.Can you good folks give me some advice in finding a new aide? Do I advertise? Do you know a good interview process? Can you direct me to some resources? Any thought is appreciated.This is difficult for me.I am a C5/6 quad who lives alone.Thank you all,Paul

Re: [QUAD-L] help

[Gentrie Pool]

First, I am in awe and impressed that you live alone. I'm married to a c5/6 and 
he could not live alone. Too many  'what if's'...back to your inquiry...we hire 
private pay and use Craigslist. Ice cream the applicants you email me directly. 
They make it past me then my husband will interview them by phone. If they make 
it past that he will meet them and some neutral location. If he does not get 
the sense that they are drug seekers, that they do have their own vehicle, and 
that they have experience, he sets up a time for them to come for two hours to 
observe our routine regarding transferring, range of motion, dressing, bowel 
care etc.

We spent 20 bucks and do a background check online. We keep a file with a copy 
of their drivers license, Social Security card, and a photo of their car and 
license plate. It is established from day one that we have a zero tolerance 
policy regarding tardiness and no-shows. We have been Synanon signout each day. 
We have three separate lists which we give them during the interview process if 
they make it to the step where they actually come to the house. One list is 
personal assistant type stuff--helping him prepare for appointments, order 
medical supplies, minor wheelchair maintenance, run errands, etc. The second 
list is more medical: such as bowel program, range of motion, etc. And the 
other list is more household stuff. The idea is that my husband takes care of 
house because I bring in the income. The things he cannot do for himself, it is 
the job of him as a tenant to make sure those things get done: meal prep, 
laundry, etc.

As you all know, we have learned that you have to have a clear management of 
expectations. Can't assume anything.

Here's a typical ad for us:

Personal Attendant/Assistant for a private individual (not a company)

Experience in eldercare/disability care required

Position requires:
Transferring/lifting from wheelchair, bed, shower. Bladder/bowel care. 
Dressing, bathing, range of motion exercises (stretching), meal prep.

Household duties: laundry, cooking, sweeping, making bed, general cleaning, 
light yard work (raking, water plants), errands as needed. The duties 
associated with this position will be pretty routine but are subject to change 
as needed. 

Send resume/list of experience as it relates to this particular position only.

Ability to Lift 100 lbs. 

Due to the nature of this job, you must be flexible and RELIABLE. 

All REFERENCES checked. 

Requirements: Male only. Own transportation. No felonies.

M-F, possibly Saturdays 2 times per month. 4-5 hours per day in morning/early 
afternoon. (20- 25 hours/week) 

All my best,
 
GP







 

 On Jun 1, 2014, at 11:52 AM, ppac...@comcast.net wrote:
 
 I am laying in bed waiting on my aide.She has been with me for a few years 
 and I can't take her lateness and attitude towards the job.I have had enough 
 and so has she.
 
 Can you good folks give me some advice in finding a new aide? Do I advertise? 
 Do you know a good interview process? Can you direct me to some resources? 
 Any thought is appreciated.This is difficult for me.I am a C5/6 quad who 
 lives alone.
 
 Thank you all,
 Paul
 

Re: [QUAD-L] help

[Gentrie Pool]

Per my last email...I meant: I screen not ice cream ;0

All my best,
 
Gentrie Pool







 

 On Jun 1, 2014, at 12:40 PM, Gentrie Pool gentr...@yahoo.com wrote:
 
 First, I am in awe and impressed that you live alone. I'm married to a c5/6 
 and he could not live alone. Too many  'what if's'...back to your 
 inquiry...we hire private pay and use Craigslist. Ice cream the applicants 
 you email me directly. They make it past me then my husband will interview 
 them by phone. If they make it past that he will meet them and some neutral 
 location. If he does not get the sense that they are drug seekers, that they 
 do have their own vehicle, and that they have experience, he sets up a time 
 for them to come for two hours to observe our routine regarding transferring, 
 range of motion, dressing, bowel care etc.
 
 We spent 20 bucks and do a background check online. We keep a file with a 
 copy of their drivers license, Social Security card, and a photo of their car 
 and license plate. It is established from day one that we have a zero 
 tolerance policy regarding tardiness and no-shows. We have been Synanon 
 signout each day. We have three separate lists which we give them during the 
 interview process if they make it to the step where they actually come to the 
 house. One list is personal assistant type stuff--helping him prepare for 
 appointments, order medical supplies, minor wheelchair maintenance, run 
 errands, etc. The second list is more medical: such as bowel program, range 
 of motion, etc. And the other list is more household stuff. The idea is that 
 my husband takes care of house because I bring in the income. The things he 
 cannot do for himself, it is the job of him as a tenant to make sure those 
 things get done: meal prep, laundry, etc.
 
 As you all know, we have learned that you have to have a clear management of 
 expectations. Can't assume anything.
 
 Here's a typical ad for us:
 
 Personal Attendant/Assistant for a private individual (not a company)
 
 Experience in eldercare/disability care required
 
 Position requires:
 Transferring/lifting from wheelchair, bed, shower. Bladder/bowel care. 
 Dressing, bathing, range of motion exercises (stretching), meal prep.
 
 Household duties: laundry, cooking, sweeping, making bed, general cleaning, 
 light yard work (raking, water plants), errands as needed. The duties 
 associated with this position will be pretty routine but are subject to 
 change as needed. 
 
 Send resume/list of experience as it relates to this particular position only.
 
 Ability to Lift 100 lbs. 
 
 Due to the nature of this job, you must be flexible and RELIABLE. 
 
 All REFERENCES checked. 
 
 Requirements: Male only. Own transportation. No felonies.
 
 M-F, possibly Saturdays 2 times per month. 4-5 hours per day in morning/early 
 afternoon. (20- 25 hours/week) 
 
 All my best,
  
 GP
 
 
 
 
 
 
 
  
 
 On Jun 1, 2014, at 11:52 AM, ppac...@comcast.net wrote:
 
 I am laying in bed waiting on my aide.She has been with me for a few years 
 and I can't take her lateness and attitude towards the job.I have had enough 
 and so has she.
 
 Can you good folks give me some advice in finding a new aide? Do I 
 advertise? Do you know a good interview process? Can you direct me to some 
 resources? Any thought is appreciated.This is difficult for me.I am a C5/6 
 quad who lives alone.
 
 Thank you all,
 Paul
 

RE: [QUAD-L] help

[Joan Anglin]

Good process. It is similar to what I use, but somewhat more comprehensive. Joan

 

From: Gentrie Pool [mailto:gentr...@yahoo.com] 
Sent: Sunday, June 01, 2014 10:40 AM
To: ppac...@comcast.net
Cc: Quad List
Subject: Re: [QUAD-L] help

 

First, I am in awe and impressed that you live alone. I'm married to a c5/6 and 
he could not live alone. Too many  'what if's'...back to your inquiry...we hire 
private pay and use Craigslist. Ice cream the applicants you email me directly. 
They make it past me then my husband will interview them by phone. If they make 
it past that he will meet them and some neutral location. If he does not get 
the sense that they are drug seekers, that they do have their own vehicle, and 
that they have experience, he sets up a time for them to come for two hours to 
observe our routine regarding transferring, range of motion, dressing, bowel 
care etc.

 

We spent 20 bucks and do a background check online. We keep a file with a copy 
of their drivers license, Social Security card, and a photo of their car and 
license plate. It is established from day one that we have a zero tolerance 
policy regarding tardiness and no-shows. We have been Synanon signout each day. 
We have three separate lists which we give them during the interview process if 
they make it to the step where they actually come to the house. One list is 
personal assistant type stuff--helping him prepare for appointments, order 
medical supplies, minor wheelchair maintenance, run errands, etc. The second 
list is more medical: such as bowel program, range of motion, etc. And the 
other list is more household stuff. The idea is that my husband takes care of 
house because I bring in the income. The things he cannot do for himself, it is 
the job of him as a tenant to make sure those things get done: meal prep, 
laundry, etc.

 

As you all know, we have learned that you have to have a clear management of 
expectations. Can't assume anything.

 

Here's a typical ad for us:

 

Personal Attendant/Assistant for a private individual (not a company)

Experience in eldercare/disability care required

Position requires:
Transferring/lifting from wheelchair, bed, shower. Bladder/bowel care. 
Dressing, bathing, range of motion exercises (stretching), meal prep.

Household duties: laundry, cooking, sweeping, making bed, general cleaning, 
light yard work (raking, water plants), errands as needed. The duties 
associated with this position will be pretty routine but are subject to change 
as needed. 

Send resume/list of experience as it relates to this particular position only.

Ability to Lift 100 lbs. 

Due to the nature of this job, you must be flexible and RELIABLE. 

All REFERENCES checked. 

Requirements: Male only. Own transportation. No felonies.

M-F, possibly Saturdays 2 times per month. 4-5 hours per day in morning/early 
afternoon. (20- 25 hours/week) 

All my best,

 

GP












 


On Jun 1, 2014, at 11:52 AM, ppac...@comcast.net wrote:

I am laying in bed waiting on my aide.She has been with me for a few years and 
I can't take her lateness and attitude towards the job.I have had enough and so 
has she.

 

Can you good folks give me some advice in finding a new aide? Do I advertise? 
Do you know a good interview process? Can you direct me to some resources? Any 
thought is appreciated.This is difficult for me.I am a C5/6 quad who lives 
alone.

 

Thank you all,
Paul

 

Re: [QUAD-L] help

[Gentrie Pool]

Sorry for the typos--I blame Siri :)

All my best,
 
Gentrie Pool







 

 On Jun 1, 2014, at 4:01 PM, Joan Anglin poaj...@sbcglobal.net wrote:
 
 Good process. It is similar to what I use, but somewhat more comprehensive. 
 Joan
  
 From: Gentrie Pool [mailto:gentr...@yahoo.com] 
 Sent: Sunday, June 01, 2014 10:40 AM
 To: ppac...@comcast.net
 Cc: Quad List
 Subject: Re: [QUAD-L] help
  
 First, I am in awe and impressed that you live alone. I'm married to a c5/6 
 and he could not live alone. Too many  'what if's'...back to your 
 inquiry...we hire private pay and use Craigslist. Ice cream the applicants 
 you email me directly. They make it past me then my husband will interview 
 them by phone. If they make it past that he will meet them and some neutral 
 location. If he does not get the sense that they are drug seekers, that they 
 do have their own vehicle, and that they have experience, he sets up a time 
 for them to come for two hours to observe our routine regarding transferring, 
 range of motion, dressing, bowel care etc.
  
 We spent 20 bucks and do a background check online. We keep a file with a 
 copy of their drivers license, Social Security card, and a photo of their car 
 and license plate. It is established from day one that we have a zero 
 tolerance policy regarding tardiness and no-shows. We have been Synanon 
 signout each day. We have three separate lists which we give them during the 
 interview process if they make it to the step where they actually come to the 
 house. One list is personal assistant type stuff--helping him prepare for 
 appointments, order medical supplies, minor wheelchair maintenance, run 
 errands, etc. The second list is more medical: such as bowel program, range 
 of motion, etc. And the other list is more household stuff. The idea is that 
 my husband takes care of house because I bring in the income. The things he 
 cannot do for himself, it is the job of him as a tenant to make sure those 
 things get done: meal prep, laundry, etc.
  
 As you all know, we have learned that you have to have a clear management of 
 expectations. Can't assume anything.
  
 Here's a typical ad for us:
  
 Personal Attendant/Assistant for a private individual (not a company)
 
 Experience in eldercare/disability care required
 
 Position requires:
 Transferring/lifting from wheelchair, bed, shower. Bladder/bowel care. 
 Dressing, bathing, range of motion exercises (stretching), meal prep.
 
 Household duties: laundry, cooking, sweeping, making bed, general cleaning, 
 light yard work (raking, water plants), errands as needed. The duties 
 associated with this position will be pretty routine but are subject to 
 change as needed. 
 
 Send resume/list of experience as it relates to this particular position only.
 
 Ability to Lift 100 lbs. 
 
 Due to the nature of this job, you must be flexible and RELIABLE. 
 
 All REFERENCES checked. 
 
 Requirements: Male only. Own transportation. No felonies.
 
 M-F, possibly Saturdays 2 times per month. 4-5 hours per day in morning/early 
 afternoon. (20- 25 hours/week) 
 
 All my best,
  
 GP
 
 
 
 
 
 
 
 
  
 
 On Jun 1, 2014, at 11:52 AM, ppac...@comcast.net wrote:
 
 I am laying in bed waiting on my aide.She has been with me for a few years 
 and I can't take her lateness and attitude towards the job.I have had enough 
 and so has she.
  
 Can you good folks give me some advice in finding a new aide? Do I advertise? 
 Do you know a good interview process? Can you direct me to some resources? 
 Any thought is appreciated.This is difficult for me.I am a C5/6 quad who 
 lives alone.
  
 Thank you all,
 Paul
  

Re: [QUAD-L] help

[Joe Olson]

Paul,
I'm a c5/6 quad also. I've been living alone for the last 10 years or so
and I find good help is cyclic.  You need a connection to aides who can do
your care. Here is how I would do it. Find an agency who can staff aides
that can meet your needs.  Then you always have backup when you need it.
 If you cant afford an agency indefinitely for all your care, ask the aides
from the agency if they know anyone who would like to work for you
privately- it usually costs about half as much.  Recruiting aides who work
at the agency is frowned upon if not illegal (even though it happens all
the time).
Here are few other pointers:
Get lots of practice training aides
A great aide isn't necessarily cute, a great conversationalist, a specific
gender or even very smart.  You are looking for a punctual reliable person
who will come when you need help and clean up shit.  You are not looking
for a girlfriend or even a friend.  Your paying them to do a job.
Train them well early and keep up on it.  Probably shouldn't compare it to
training a dog but there are many similarities.  Dont be afraid to confront
them when they are not doing what needs to be done (also compliment them
when they do well).
I'd say 75% of all aides can physically handle the job (I weigh about 180)
so there is no reason to limp along with crummy care.
I like to have at least 3 aides at any one time.
Stay loyal to the ones who deserve it.
It's about your safety and there's no way to work a real job if you cant
get out of bed reliably.
Guys, feel free to chime in...
-Joe




On Sun, Jun 1, 2014 at 12:52 PM, ppac...@comcast.net wrote:

 I am laying in bed waiting on my aide.She has been with me for a few years
 and I can't take her lateness and attitude towards the job.I have had
 enough and so has she.

 Can you good folks give me some advice in finding a new aide? Do I
 advertise? Do you know a good interview process? Can you direct me to some
 resources? Any thought is appreciated.This is difficult for me.I am a C5/6
 quad who lives alone.

 Thank you all,
 Paul

Re: [QUAD-L] help

[Joe Olson]

Also, don't get rid of her until you have everything worked out.


On Sun, Jun 1, 2014 at 12:52 PM, ppac...@comcast.net wrote:

 I am laying in bed waiting on my aide.She has been with me for a few years
 and I can't take her lateness and attitude towards the job.I have had
 enough and so has she.

 Can you good folks give me some advice in finding a new aide? Do I
 advertise? Do you know a good interview process? Can you direct me to some
 resources? Any thought is appreciated.This is difficult for me.I am a C5/6
 quad who lives alone.

 Thank you all,
 Paul

Re: [QUAD-L] help

[Aaron Mann]

As a C4/5, I lived alone for 5 years through college and a year later, then
got married.  My best aides were students, typically OT and PT students.
I've had over 200 aides in my 26 years.  Always have at least 2 aides per
day.  I pay $15/hr and expect high quality care.  Get your routine down to
a systematic step-by-step process.  Make certain the trainee takes notes.
Give them a sheet explaining Autonomic Dysreflexia and what to do if you
lose consciousness.  Other than that, treat your aide with respect.


Aaron Mann


On Sun, Jun 1, 2014 at 8:08 PM, Joe Olson rollg...@gmail.com wrote:

 Also, don't get rid of her until you have everything worked out.


 On Sun, Jun 1, 2014 at 12:52 PM, ppac...@comcast.net wrote:

 I am laying in bed waiting on my aide.She has been with me for a few
 years and I can't take her lateness and attitude towards the job.I have had
 enough and so has she.

 Can you good folks give me some advice in finding a new aide? Do I
 advertise? Do you know a good interview process? Can you direct me to some
 resources? Any thought is appreciated.This is difficult for me.I am a C5/6
 quad who lives alone.

 Thank you all,
 Paul

[QUAD-L] help

[ppacera]

Thank you all for your thoughts and advice.I am going to get up tomorrow and 
start the ball rolling.I have one month to find a new aide.Peace,Karma and love 
to all. 

Thank you! 
Paul 

Re: [QUAD-L] help

[wheelchair]

Paul, not sure where you live but some of the Centers for Independent  
Living (CIL) are a great source for aides.  Colleges and Universities too.  
Local churches and Pastors.  Doctor and Hospital referral is another source  
for 
those looking for extra hours.
 
Best Wishes
 
 
In a message dated 6/1/2014 10:15:30 P.M. Central Daylight Time,  
ppac...@comcast.net writes:

 
Thank you all for your thoughts and advice.I am going to get up tomorrow  
and start the ball rolling.I have one month to find a new aide.Peace,Karma 
and  love to all.



Thank you!
Paul

Re: [QUAD-L] Help for feet swelling?

[Bob Vogel]

Hi All,

I wrote a column on dealing with swelling and edema for New Mobility.
It is an issue I've been dealing with for years--I always sleep with my
legs elevated under a few pillows, this has the added benefit of protecting
my heels as I let my feet/heels hang over the pillows. 

Here is the link to my New Mobility article on Edema.  By the way, can get 
New Mobility for free  by joining United Spinal.  The magazine
is also available online for free:  www.newmobility.com

Llink to New Mobility Edema article: www.newmobility.com/2011/07/managing-edema/

Link to join United Spinal Organization (also free) and get New Mobility sent 
to your house
for free:  www.unitedspinal.org/join-united-spinal-association/

All the best!
Bob Vogel


On May 22, 2014, at 8:43 PM, Lissette Whitehead wrote:

 I have this foot massager which works great for my swollen feet, it was 
 actually designed for diabetics to help with circulation.
 Check out this video. The body massager is awesome too. I use them both.
 http://www.youtube.com/watch?v=WSMAhxKdW84
 
 
 
 
 Lissette Whitehead
 416 W. San Ysidro Blvd.
 San Ysidro, CA 92173
 www.lwgripgloves.com
 
 
 
 Date: Thu, 22 May 2014 16:07:00 -0700
 From: ddh...@sbcglobal.net
 Subject: Re: Fwd: [QUAD-L] Help for feet swelling?
 To: lwillis82...@gmail.com; quad-list@eskimo.com
 
 Happy  Birthday tomorrow Larry-- yes i know what you mean about feeling weary 
 and tired, i'm 57  now and as we get older as quads for some like us it can 
 get tougher, In the mornings some days it takes all my strenghth to fight to 
 get up and get going another day...lucky for me my wife helps to exercise my 
 legs and get me up and going. Dan H** 
 On Thursday, May 22, 2014 5:26 PM, Larry Willis lwillis82...@gmail.com 
 wrote:
 
 
 Same problem here, guys. I wear a croc on my right foot and just a sock and 
 small pillow for my left. I seem to get cellulitis at least once a year in 
 the left. Last time the redness went away but not the swelling. It's always 
 something, and I am so very tired of it. I turn 62 tomorrow. Yippee. Hey, 
 someone else on here has a birthday too!
 
 -- Forwarded message --
 From: RONALD L PRACHT r.pra...@sbcglobal.net
 Date: Thursday, May 22, 2014
 Subject: [QUAD-L] Help for feet swelling?
 To: quad-list@eskimo.com quad-list@eskimo.com
 
 
 hey guys,
 
 My feet are swelling to a point its hard to get my shoes on. Without 
 passive motion, are their any other alternatives to help the problem?
 
 
 Ron

Re: [QUAD-L] Help for feet swelling?

[Nan]

You don't need a script for good compression stockings. I can't get the 
strength I need from the pharmacy or Walmart, but My doctor recommended 
ForYourLegs.com: Support Hose  Compression Stockings | Mediven - Jobst - 
Sigvaris - Juzo .  I buy Sigvaris stockings, but Jobst are good too.



 
   ForYourLegs.com: Support Hose  Compression Stock...
Jobst, Sigvaris, Mediven, Juzo compression stockings, support hose, socks, 
stockings. Graduated compression stockings. Jobst Ultrasheer, Opaque, ...  
View on www.foryourlegs.com Preview by Yahoo  
 


On Thursday, May 22, 2014 5:39 PM, diannal...@aol.com diannal...@aol.com 
wrote:
 


Compression stockings. I don't like to wear them b/c I want to wear sandals and 
that's just not cool. If they get bad to where my ankles are getting huge, I'll 
use them. For a good pr, you need a script  $20 a pr. Try a pr from the drug 
store, much cheaper over the counter but doc's can order different 
compressions. 


    My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?
 
 
 
-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Thu, May 22, 2014 4:59 pm
Subject: [QUAD-L] Help for feet swelling?


hey guys,

    My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?


Ron

Re: [QUAD-L] Help for feet swelling?

[Nan]

Good article!

Nan




On Friday, May 23, 2014 10:47 AM, Bob Vogel rhvsh...@mac.com wrote:
 


Hi All,

I wrote a column on dealing with swelling and edema for New Mobility.
It is an issue I've been dealing with for years--I always sleep with my
legs elevated under a few pillows, this has the added benefit of protecting
my heels as I let my feet/heels hang over the pillows. 

Here is the link to my New Mobility article on Edema.  By the way, can get 
New Mobility for free  by joining United Spinal.  The magazine
is also available online for free:  www.newmobility.com

Llink to New Mobility Edema article: www.newmobility.com/2011/07/managing-edema/

Link to join United Spinal Organization (also free) and get New Mobility sent 
to your house
for free:  www.unitedspinal.org/join-united-spinal-association/

All the best!
Bob Vogel


On May 22, 2014, at 8:43 PM, Lissette Whitehead wrote:

I have this foot massager which works great for my swollen feet, it was 
actually designed for diabetics to help with circulation.
Check out this video. The body massager is awesome too. I use them both.
http://www.youtube.com/watch?v=WSMAhxKdW84






Lissette Whitehead

416 W. San Ysidro Blvd.
San Ysidro, CA 92173
www.lwgripgloves.com









Date: Thu, 22 May 2014 16:07:00 -0700
From: ddh...@sbcglobal.net
Subject: Re: Fwd: [QUAD-L] Help for feet swelling?
To: lwillis82...@gmail.com; quad-list@eskimo.com


Happy  Birthday tomorrow Larry-- yes i know what you mean about feeling weary 
and tired, i'm 57  now and as we get older as quads for some like us it can 
get tougher, In the mornings some days it takes all my strenghth to fight to 
get up and get going another day...lucky for me my wife helps to exercise my 
legs and get me up and going. Dan H** 
On Thursday, May 22, 2014 5:26 PM, Larry Willis lwillis82...@gmail.com wrote:



Same problem here, guys. I wear a croc on my right foot and just a sock and 
small pillow for my left. I seem to get cellulitis at least once a year in the 
left. Last time the redness went away but not the swelling. It's always 
something, and I am so very tired of it. I turn 62 tomorrow. Yippee. Hey, 
someone else on here has a birthday too!

-- Forwarded message --
From: RONALD L PRACHT r.pra...@sbcglobal.net
Date: Thursday, May 22, 2014
Subject: [QUAD-L] Help for feet swelling?
To: quad-list@eskimo.com quad-list@eskimo.com



hey guys,


    My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?




Ron

Re: [QUAD-L] Help for feet swelling?

[lindakrn]

I wear tubigrips on my legs  feet at night 
Lindaf 

[QUAD-L] Re: QUAD-L] Help for feet swelling?

[Julie Napper]

I bought some compression stockings and they put big blisters on my feet 
because I put them on when my foot was swollen.  It took about 4 or 5 months 
for my foot to heal from the blisters.  I will never do that again!  Just 
thought I'd throw that out to you guys.

Julie
C4-5

On May 22, 2014, at 2:27PM, Billy Lang wrote:

Ron,



An excellent video by a doctor:



http://www.ehow.com/video_7463463_reduce-swelling-feet.html





If you don't have any changes in your routines, look toward your sodium
intake.



From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net]
Sent: Thursday, May 22, 2014 4:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help for feet swelling?



hey guys,



My feet are swelling to a point its hard to get my shoes on. Without
passive motion, are their any other alternatives to help the problem?





Ron

[QUAD-L] Help for feet swelling?

[RONALD L PRACHT]

hey guys,

    My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?


Ron

Re: [QUAD-L] Help for feet swelling?

[Danny Hearn]

Yeah, Ron, I have that problem toomy left foot swells the most, I just wear 
bigger shoes and when swollen a lot I just stick to crocks, If we elevate my 
feet overnight it goes down but slowly always comes back to being swollen 
again. DanH***
On Thursday, May 22, 2014 3:59 PM, RONALD L PRACHT r.pra...@sbcglobal.net 
wrote:
  


hey guys,

    My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?


Ron

RE: [QUAD-L] Help for feet swelling?

[Billy Lang]

Ron,

 

An excellent video by a doctor:

 

http://www.ehow.com/video_7463463_reduce-swelling-feet.html

 

 

If you don't have any changes in your routines, look toward your sodium
intake.

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Thursday, May 22, 2014 4:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help for feet swelling?

 

hey guys,

 

My feet are swelling to a point its hard to get my shoes on. Without
passive motion, are their any other alternatives to help the problem?

 

 

Ron

RE: [QUAD-L] Help for feet swelling?

[nichole rohling]

I take a water pill and prop mine up on a wedge with my heels hanging off
during the night..I rarely eat extra salt and the heat in the summer makes
mine worse

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Thursday, May 22, 2014 3:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help for feet swelling?

 

hey guys,

 

My feet are swelling to a point its hard to get my shoes on. Without
passive motion, are their any other alternatives to help the problem?

 

 

Ron

Re: [QUAD-L] Help for feet swelling?

[diannal767]

Compression stockings. I don't like to wear them b/c I want to wear sandals and 
that's just not cool. If they get bad to where my ankles are getting huge, I'll 
use them. For a good pr, you need a script  $20 a pr. Try a pr from the drug 
store, much cheaper over the counter but doc's can order different 
compressions. 



My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?

 
 
 
-Original Message-
From: RONALD L PRACHT r.pra...@sbcglobal.net
To: quad-list quad-list@eskimo.com
Sent: Thu, May 22, 2014 4:59 pm
Subject: [QUAD-L] Help for feet swelling?



hey guys,


My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?




Ron

Re: [QUAD-L] Help for feet swelling?

[diannal767]

mine are worse in summer too.

I take a water pill and prop mine up on a wedge with my heels hanging off 
during the night……I rarely eat extra salt and the heat in the summer makes mine 
worse

 
 
 
-Original Message-
From: nichole rohling zoocr...@windstream.net
To: 'RONALD L PRACHT' r.pra...@sbcglobal.net; quad-list quad-list@eskimo.com
Sent: Thu, May 22, 2014 5:36 pm
Subject: RE: [QUAD-L] Help for feet swelling?



I take a water pill and prop mine up on a wedge with my heels hanging off 
during the night……I rarely eat extra salt and the heat in the summer makes mine 
worse
 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Thursday, May 22, 2014 3:59 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help for feet swelling?

 

hey guys,

 

My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?

 

 

Ron

Re: [QUAD-L] Help for feet swelling?

[gentrier]

Try propping your feet up more during the day. I'm guessing you probably pee a 
lot at night, don't you? If so, that's because you're retaining fluid in your 
lower limbs… And then when you lay down that fluid moves… Hence the extra 
urination.

Sent from my iPhone

 Please excuse any typos or brevity of tone as this was typed using an iPhone 
 (and possibly Siri, in an effort to be as safe as possible while en route.)
 
 My best,
 Gentrie


 On May 22, 2014, at 4:38 PM, diannal...@aol.com wrote:
 
 Compression stockings. I don't like to wear them b/c I want to wear sandals 
 and that's just not cool. If they get bad to where my ankles are getting 
 huge, I'll use them. For a good pr, you need a script  $20 a pr. Try a pr 
 from the drug store, much cheaper over the counter but doc's can order 
 different compressions.
 
 My feet are swelling to a point its hard to get my shoes on. Without 
 passive motion, are their any other alternatives to help the problem?
  
  
  
 -Original Message-
 From: RONALD L PRACHT r.pra...@sbcglobal.net
 To: quad-list quad-list@eskimo.com
 Sent: Thu, May 22, 2014 4:59 pm
 Subject: [QUAD-L] Help for feet swelling?
 
 hey guys,
 
 My feet are swelling to a point its hard to get my shoes on. Without 
 passive motion, are their any other alternatives to help the problem?
 
 
 Ron

Fwd: [QUAD-L] Help for feet swelling?

[Larry Willis]

Same problem here, guys. I wear a croc on my right foot and just a sock and
small pillow for my left. I seem to get cellulitis at least once a year in
the left. Last time the redness went away but not the swelling. It's always
something, and I am so very tired of it. I turn 62 tomorrow. Yippee. Hey,
someone else on here has a birthday too!

-- Forwarded message --
From: *RONALD L PRACHT* r.pra...@sbcglobal.net
Date: Thursday, May 22, 2014
Subject: [QUAD-L] Help for feet swelling?
To: quad-list@eskimo.com quad-list@eskimo.com


hey guys,

My feet are swelling to a point its hard to get my shoes on. Without
passive motion, are their any other alternatives to help the problem?


Ron

Re: Fwd: [QUAD-L] Help for feet swelling?

[Danny Hearn]

Happy  Birthday tomorrow Larry-- yes i know what you mean about feeling weary 
and tired, i'm 57  now and as we get older as quads for some like us it can get 
tougher, In the mornings some days it takes all my strenghth to fight to get up 
and get going another day...lucky for me my wife helps to exercise my legs and 
get me up and going. Dan H** 
On Thursday, May 22, 2014 5:26 PM, Larry Willis lwillis82...@gmail.com wrote:
  


Same problem here, guys. I wear a croc on my right foot and just a sock and 
small pillow for my left. I seem to get cellulitis at least once a year in the 
left. Last time the redness went away but not the swelling. It's always 
something, and I am so very tired of it. I turn 62 tomorrow. Yippee. Hey, 
someone else on here has a birthday too!

-- Forwarded message --
From: RONALD L PRACHT r.pra...@sbcglobal.net
Date: Thursday, May 22, 2014
Subject: [QUAD-L] Help for feet swelling?
To: quad-list@eskimo.com quad-list@eskimo.com



hey guys,

    My feet are swelling to a point its hard to get my shoes on. Without 
passive motion, are their any other alternatives to help the problem?


Ron

RE: [QUAD-L] Help for feet swelling?

[Lissette Whitehead]

I have this foot massager which works great for my swollen feet, it was 
actually designed for diabetics to help with circulation.Check out this video. 
The body massager is awesome too. I use them 
both.http://www.youtube.com/watch?v=WSMAhxKdW84





Lissette Whitehead
416 W. San Ysidro Blvd.San Ysidro, CA 92173www.lwgripgloves.com



Date: Thu, 22 May 2014 16:07:00 -0700
From: ddh...@sbcglobal.net
Subject: Re: Fwd: [QUAD-L] Help for feet swelling?
To: lwillis82...@gmail.com; quad-list@eskimo.com

Happy  Birthday tomorrow Larry-- yes i know what you mean about feeling weary 
and tired, i'm 57  now and as we get older as quads for some like us it can get 
tougher, In the mornings some days it takes all my strenghth to fight to get up 
and get going another day...lucky for me my wife helps to exercise my legs and 
get me up and going. Dan H**  On Thursday, May 22, 2014 5:26 PM, Larry 
Willis lwillis82...@gmail.com
 wrote:


 Same problem here, guys. I wear a croc on my right foot and just a sock and 
small pillow for my left. I seem to get cellulitis at least once a year in the 
left. Last time the redness went away but not the swelling. It's always 
something, and I am so very tired of it. I turn 62 tomorrow. Yippee. Hey, 
someone else on here has a birthday too!
-- Forwarded message --From: RONALD L PRACHT 
r.pra...@sbcglobal.netDate: Thursday, May 22, 2014Subject: [QUAD-L] Help for 
feet swelling?
To: quad-list@eskimo.com quad-list@eskimo.com
hey guys,My feet are swelling to a point its hard to get my shoes on. 
Without passive motion, are their any other alternatives to help the problem?
Ron

  

[QUAD-L] help

[Patricia Brown-Tulee]

need help in getting out of spam i think. did his get out? reply if read
 
Patricia L. Brown-Tulee
pl...@yahoo.com


while adding years to your life, add life to your years

Re: [QUAD-L] help

[Don Price]

It worked.
Got your message on the quad-list.
 
Don.
 


 From: Patricia Brown-Tulee pl...@yahoo.com
To: quad-list@eskimo.com quad-list@eskimo.com 
Sent: Saturday, June 8, 2013 1:40 PM
Subject: [QUAD-L] help
  


need help in getting out of spam i think. did his get out? reply if read

Patricia L. Brown-Tulee
pl...@yahoo.com


while adding years to your life, add life to your years

Re: [QUAD-L] help

[wheelchair]

I got it.  Now what to do about it.
Best Wishes
 
 
In a message dated 6/8/2013 3:40:13 P.M. Central Daylight Time,  
pl...@yahoo.com writes:

 
need help in getting out of spam i think. did his get out? reply if  read

 
Patricia L. Brown-Tulee
pl...@yahoo.com


while adding years to your life, add life to your  years

Re: Fwd: [QUAD-L] Help, I don't know what to do anymore?

[greg]

if your roho is not helping and you don't want to stay in bed, have you looked 
into a rotating air cushion/'
i haven't used one but hear they work well.
Greg

Fwd: [QUAD-L] Help, I don't know what to do anymore?

[lwillis821]

Greg, I had not even thought of it. I'll check it out. Thanks.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: greg g...@eskimo.com
 Date: April 6, 2013, 1:56:50 PM EDT
 To: quad-list@eskimo.com
 Subject: Re: Fwd: [QUAD-L] Help, I don't know what to do anymore?
 
 
 if your roho is not helping and you don't want to stay in bed, have you 
 looked into a rotating air cushion/'
 i haven't used one but hear they work well.
 Greg
 

Re: [QUAD-L] Help, I don't know what to do anymore?

[diannal767]

Thank you for asking! All is well. We will be celebrating Isabella's 10th 
birthday next week. Time flys. We use to instant message each other before she 
was born...back in my beer drinking days :-) Remember? I use to chat with you, 
Dave0c  Jerry (the hobbit).

DeeDee,
  It's so good to hear from you. How are things with you? How's 
Dave? How is your daughter and granddaughter?
   Things with me and Pete are going pretty dam great considering the 
extreme stress were dealing with this bed sore crap.Bobbie

Smile Everyday





-Original Message-
From: bobbie299 bobbie...@aol.com
To: diannal767 diannal...@aol.com
Sent: Wed, Apr 3, 2013 9:29 pm
Subject: Re: [QUAD-L] Help, I don't know what to do anymore?



DeeDee,
  It's so good to hear from you. How are things with you? How's 
Dave? How is your daughter and granddaughter?
   Things with me and Pete are going pretty dam great considering the 
extreme stress were dealing with this bed sore crap.Bobbie

Smile Everyday



-Original Message-
From: diannal767 diannal...@aol.com
To: bobbie299 bobbie...@aol.com; quad-list quad-list@eskimo.com
Sent: Wed, Apr 3, 2013 7:47 pm
Subject: Re: [QUAD-L] Help, I don't know what to do anymore?

Hi Bobbie,
I'm so sorry to hear about your long stay in bed. I can't relate to 
that but I spend a lot of time on FB playing Words with Friends. 
Netflix helps me kill some time. I once had a quad friend, he was much 
older  has since past. He spent his time on a gurney on his belly so 
he wouldn't be stuck in his room. When it gets warmer maybe this is 
something you can do. If nothing else, to get outside  feel the sun on 
your body.
Dianna
Everybody, Back in December I was getting up just once a 
week, then the day after Christmas I stayed in bed through Febuary. In 
March I was starting getting up twice a week for 3 weeks ...… then BAMM 
-- the rt was pulled out from under me again and I've been in bed ever 
since. It's always the same freaking thing, just a superficial wound, 
enough to keep me in bed.I'm starting to go wacko, trying to keep 
myself busy. Now that the weather, here in New Jersey, is trying to get 
warmer (down to 25 last night and tonight) I want to feel like I might 
be able to PLAN something.  What do you guys do at times like these?



-Original Message-
From: bobbie299 lt;bobbie...@aol.comgt;
To: Quad-list lt;Quad-list@eskimo.comgt;
Sent: Wed, Apr 3, 2013 3:26 pm
Subject: [QUAD-L] Help, I don't know what to do anymore?

Everybody, Back in December I was getting up just once a 
week, then the day after Christmas I stayed in bed through Febuary. In 
March I was starting getting up twice a week for 3 weeks ...… then BAMM 
-- the rt was pulled out from under me again and I've been in bed ever 
since. It's always the same freaking thing, just a superficial wound, 
enough to keep me in bed.I'm starting to go wacko, trying to keep 
myself busy. Now that the weather, here in New Jersey, is trying to get 
warmer (down to 25 last night and tonight) I want to feel like I might 
be able to PLAN something.  What do you guys do at times like these?
Bobbie




 

[QUAD-L] Help, I don't know what to do anymore?

[bobbie299]

Everybody,
Back in December I was getting up just once a week, then 
the day after Christmas I stayed in bed through Febuary. In March I was 
starting getting up twice a week for 3 weeks ...… then BAMM -- the rt 
was pulled out from under me again and I've been in bed ever since. 
It's always the same freaking thing, just a superficial wound, enough 
to keep me in bed.
   I'm starting to go wacko, trying to keep myself busy. Now that the 
weather, here in New Jersey, is trying to get warmer (down to 25 last 
night and tonight) I want to feel like I might be able to PLAN 
something.

 What do you guys do at times like these?Bobbie

Fwd: [QUAD-L] Help, I don't know what to do anymore?

[lwillis821]

Damn, Bobbie, I'm pretty much speechless. I've had a sore about 3x4 in on my 
butt for over 6 yrs. It has hardly any depth, but it never changes - no better, 
no worse. I do not have your self-discipline. I have spent no extensive time in 
bed which, obviously, I should have. I use a Roho cushion and sit up 12-15 hrs. 
a day. We dress it morning and night. I figure I'll have it till I leave this 
world. Maybe I'm a nut, but I just cannot lie in bed day and night. The pain is 
ridiculous. I know I didn't help a bit, but know I certainly empathize with 
your situation. It is a bowl of crap with a crap soda and dish of crap on the 
side. Another shitty quandry from the wonderful world of quadom. God bless and 
good luck.

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: bobbie...@aol.com
 Date: April 3, 2013, 3:26:28 PM EDT
 To: Quad-list@eskimo.com
 Subject: [QUAD-L] Help, I don't know what to do anymore?
 
 
 Everybody,
Back in December I was getting up just once a week, then the day 
 after Christmas I stayed in bed through Febuary. In March I was starting 
 getting up twice a week for 3 weeks ...… then BAMM -- the rt was pulled out 
 from under me again and I've been in bed ever since. It's always the same 
 freaking thing, just a superficial wound, enough to keep me in bed.
   I'm starting to go wacko, trying to keep myself busy. Now that the weather, 
 here in New Jersey, is trying to get warmer (down to 25 last night and 
 tonight) I want to feel like I might be able to PLAN something.
 What do you guys do at times like these?Bobbie
 
 

Re: [QUAD-L] Help, I don't know what to do anymore?

[Don Price]

Bobbie,

You're certainly preaching to the choir here. Most of us quads have been 
through the mind-numbing frustration of having to spend extended time in bed. 
It really can cause a person to go stir-crazy and spiral into depression.

Here's my humble bit of advice: you mentioned you wanted to plan something, so 
my suggestion is to start planning something [or everything!] While laying in 
bed might be boring, it's a golden opportunity to get your life and to do 
list in order! Make a list of the top-ten places you want to visit. Write down 
the books you've always wanted to read (have someone check your local library 
for books on CD). Make a life-plan of where you want to be in a year, 5 years, 
20 years. Think of 10 classic movies you've never seen and rent them. Think of 
friends you haven't contacted in years and surprise them with a letter you've 
typed or dictated. Go online to Khan Academy  and take free, self-paced review 
classes in math, science, humanities. Go online to Do One Thing and plan to 
better your community.

There are soo many things you can do with your time while you're healing. 
The worst thing you can do is nothing because that's when the negative thoughts 
creep in. Keep your mind active and productive. Actively visualize your sore 
healing. Read up on alternative therapies. Stay active in your life! Take 
control!!

Written with love,
Don.

Re: Fwd: [QUAD-L] Help, I don't know what to do anymore?

[Don Price]

In response to a chronic pressure sore: obviously you realize this is not good. 
Even if the sore is not increasing in size there is a huge danger in having an 
open sore--this is, literally, an open invitation for an infection. Sores on 
your butt are exponentially more risky due to the possible contact with e. coli 
from feces. 

You mentioned that you have used a Roho consistantly. Perhaps there's a better 
option out there for you? If you're unable to sleep on your stomach or stay in 
bed why not consider an air-bead bed or other specialty bed?

I would hate to see you get really sick from this sore--an open decubitus is 
NOT something to take lightly! I'm only getting 'preachy' here because I care 
and don't want to lose any more quad friends due to preventable conditions!

Don.

Re: [QUAD-L] Help, I don't know what to do anymore?

[diannal767]

Hi Bobbie,
I'm so sorry to hear about your long stay in bed. I can't relate to that but I 
spend a lot of time on FB playing Words with Friends. Netflix helps me kill 
some time. I once had a quad friend, he was much older  has since past. He 
spent his time on a gurney on his belly so he wouldn't be stuck in his room. 
When it gets warmer maybe this is something you can do. If nothing else, to get 
outside  feel the sun on your body.
Dianna

Everybody,
 Back in December I was getting up just once a week, then 
the day after Christmas I stayed in bed through Febuary. In March I was 
starting getting up twice a week for 3 weeks ...… then BAMM -- the rt 
was pulled out from under me again and I've been in bed ever since. 
It's always the same freaking thing, just a superficial wound, enough 
to keep me in bed.
I'm starting to go wacko, trying to keep myself busy. Now that the 
weather, here in New Jersey, is trying to get warmer (down to 25 last 
night and tonight) I want to feel like I might be able to PLAN 
something.
  What do you guys do at times like these?   




-Original Message-
From: bobbie299 bobbie...@aol.com
To: Quad-list Quad-list@eskimo.com
Sent: Wed, Apr 3, 2013 3:26 pm
Subject: [QUAD-L] Help, I don't know what to do anymore?



Everybody,
 Back in December I was getting up just once a week, then 
the day after Christmas I stayed in bed through Febuary. In March I was 
starting getting up twice a week for 3 weeks ...… then BAMM -- the rt 
was pulled out from under me again and I've been in bed ever since. 
It's always the same freaking thing, just a superficial wound, enough 
to keep me in bed.
I'm starting to go wacko, trying to keep myself busy. Now that the 
weather, here in New Jersey, is trying to get warmer (down to 25 last 
night and tonight) I want to feel like I might be able to PLAN 
something.
  What do you guys do at times like these?Bobbie



 

Re: [QUAD-L] Help, I don't know what to do anymore?

[Dana Wray]

Great advice Don
Thank you,
Dana

Sent from my iPhone

On Apr 3, 2013, at 5:38 PM, Don Price donpric...@yahoo.com wrote:

 
 In response to a chronic pressure sore: obviously you realize this is not 
 good. Even if the sore is not increasing in size there is a huge danger in 
 having an open sore--this is, literally, an open invitation for an infection. 
 Sores on your butt are exponentially more risky due to the possible contact 
 with e. coli from feces. 
 
 You mentioned that you have used a Roho consistantly. Perhaps there's a 
 better option out there for you? If you're unable to sleep on your stomach or 
 stay in bed why not consider an air-bead bed or other specialty bed?
 
 I would hate to see you get really sick from this sore--an open decubitus is 
 NOT something to take lightly! I'm only getting 'preachy' here because I care 
 and don't want to lose any more quad friends due to preventable conditions!
 
 Don.

[QUAD-L] Help me to understand

[Bobbie Humphreys]

Hi All,
You know the girl, Dawn, who lives in my building and is a Quad I've 
talked about from time to time?
   When the storm hit here EVERYBODY in her family lost power, and still don't 
have it yet. Dawn invited them to come and stay with her ... Not ONE 
accepted her invitation. For the first 2 nights after the storm Dawn had to 
sleep in her chair because she didn't know if her aid would be able to make it. 
Her family could have helped her AND helped themselves. 
I DON'T UNDERSTAND! Nobody in her family EVER comes to see her in the 15 
years she's been here. Well maybe about 4 times. I just don't get it.   
  
  Bobbie 

Re: [QUAD-L] Help me to understand

[wheelchair]

Bobbie,  one never knows.  One could speculate until the cows  come home.  
We both know it happens.  Often the reasons can be simple  or very 
complicated.  I hope you are doing much better and continue to get  better in 
your 
area!
Best Wishes
 
 
In a message dated 11/4/2012 6:59:28 P.M. Central Standard Time,  
bobbie...@aol.com writes:

Hi  All,
You know the girl, Dawn, who lives in my  building and is a Quad I've 
talked about from time to time?
When the storm hit here EVERYBODY in her family lost power, and still don't 
 have it yet. Dawn invited them to come and stay with her ... Not 
ONE  accepted her invitation. For the first 2 nights after the storm Dawn had 
to  sleep in her chair because she didn't know if her aid would be able to 
make  it. Her family could have helped her AND helped themselves. 
I DON'T UNDERSTAND! Nobody in her family EVER comes to see her in the 15 
years  she's been here. Well maybe about 4 times. I just don't get it. 
  
Bobbie 

Re: [QUAD-L] Help Vote for my dog

[Patrick Kenneally]

Voted, good luck Greg.

Patrick

--- On Thu, 10/25/12, greg g...@eskimo.com wrote:

From: greg g...@eskimo.com
Subject: [QUAD-L] Help Vote for my dog
To: quadlist quad-list@eskimo.com
Date: Thursday, October 25, 2012, 4:39 PM

Hi guys, hoping you could vote for my dog on a costume contest.
 From Facebook, you need to click on pic #5, of a cat and a small dog dressed 
as pirates.
I can win a free vet checkup.
I'm behind a bit right now... Please Help!
Thanks much
Greg
Vote at:
http://www.facebook.com/#!/pages/Riggs-Road-Veterinary-Clinic/100129546116?fref=ts

RE: [QUAD-L] Help Vote for my dog

[Lissette Whitehead]

Voted! Good luck!!






Lissette
Whitehead

1177 Broadway
Ste. 18, apt. 127

Chula Vista,
CA 91911

www.lwgripgloves.com 



 From: g...@eskimo.com
 To: quad-list@eskimo.com
 Date: Thu, 25 Oct 2012 16:39:58 -0700
 Subject: [QUAD-L] Help Vote for my dog
 
 Hi guys, hoping you could vote for my dog on a costume contest.
  From Facebook, you need to click on pic #5, of a cat and a small dog dressed 
 as pirates.
 I can win a free vet checkup.
 I'm behind a bit right now... Please Help!
 Thanks much
 Greg
 Vote at:
 http://www.facebook.com/#!/pages/Riggs-Road-Veterinary-Clinic/100129546116?fref=ts
 
  

[QUAD-L] Help Vote for my dog

[greg]

Hi guys, hoping you could vote for my dog on a costume contest.
 From Facebook, you need to click on pic #5, of a cat and a small dog dressed 
as pirates.
I can win a free vet checkup.
I'm behind a bit right now... Please Help!
Thanks much
Greg
Vote at:
http://www.facebook.com/#!/pages/Riggs-Road-Veterinary-Clinic/100129546116?fref=ts

[QUAD-L] HELP FOR LORI MICHAELSON

[Michael Galvin]

My name is Mike and I'm a member of the Quad list.  I don't post often, but
I feel this is very important.

I'm writing in regards to a member of this list named Lori Michaelson who
has lost her husband/caregiver to a heart attack on 6/11/2012.

I was her peer counselor many years ago, and have known Lori for most of my
Quad life of 42 years.  During this time Lori has always taken care of her
own needs and has always reached out to others in any way she could.

Like all of us, sooner or later, we need help in

-- 

*You'll never know that God is all you need, until God is all you've got.*

Re: [QUAD-L] HELP FOR LORI MICHAELSON

[wheelchair]

Thanks Mike.  I've known Lori, but not as long as you.  She is a  very nice 
person, caught between the rock and a very hard spot.Thanks!  I hope 
she gets where she needs to.
Best Wishes
 
 
In a message dated 9/5/2012 3:42:41 P.M. Central Daylight Time,  
wheelin...@gmail.com writes:

My name is Mike and I'm a member of the Quad list.  I don't post  often, 
but I feel this is very important. 
 
I'm writing in regards to a member of this list named Lori Michaelson who  
has lost her husband/caregiver to a heart attack on 6/11/2012.
 
I was her peer counselor many years ago, and have known Lori for  most of 
my Quad life of 42 years.  During this time Lori has always taken  care of 
her own needs and has always reached out to others in any way she  could.
 
Like all of us, sooner or later, we need help in 

--  

You'll never know that God is all you need,  until God is all you've  got.

Re: [QUAD-L] HELP FOR LORI MICHAELSON

[Don Price]

I don't think that message was finished. Waiting for the full email.

 


 From: wheelch...@aol.com wheelch...@aol.com
To: wheelin...@gmail.com; quad-list@eskimo.com 
Sent: Wednesday, September 5, 2012 1:48 PM
Subject: Re: [QUAD-L] HELP FOR LORI MICHAELSON
  

 
Thanks Mike.  I've known Lori, but not as long as you.  She is a 
very nice person, caught between the rock and a very hard spot.   
Thanks!  I hope she gets where she needs to. 
Best Wishes 

In a message dated 9/5/2012 3:42:41 P.M. Central Daylight Time, 
wheelin...@gmail.com writes: 
My name is Mike and I'm a member of the Quad list.  I don't post  often, but I 
feel this is very important.  

I'm writing in regards to a member of this list named Lori Michaelson who  has 
lost her husband/caregiver to a heart attack on 6/11/2012. 

I was her peer counselor many years ago, and have known Lori for  most of my 
Quad life of 42 years.  During this time Lori has always taken  care of her 
own needs and has always reached out to others in any way she  could. 

Like all of us, sooner or later, we need help in 

-- 
 
You'll never know that God is all you need,  until God is all you've 
got.

Re: [QUAD-L] HELP LORI MICHAELSON

[wheelchair]

Thanks Mike,  I posted an email from her here last week.  The  link is also 
good.
Best Wishes
 
 
In a message dated 9/5/2012 3:50:10 P.M. Central Daylight Time,  
wheelin...@gmail.com writes:

one way or another.  I'm asking all of you to please read about Lori  at 
_http://wwwgivefoward.comhelptransportlori_ 
(http://wwwgivefoward.comhelptransportlori/)   and help in any way you can.
 
Thanks
 
Mike c5c6-42 yrs

-- 

You'll never know that God is all you need,  until God is all you've  got.

Fwd: [QUAD-L] HELP FOR LORI MICHAELSON

[Michael Galvin]

-- Forwarded message --
From: wheelch...@aol.com
Date: Wed, Sep 5, 2012 at 4:48 PM
Subject: Re: [QUAD-L] HELP FOR LORI MICHAELSON
To: wheelin...@gmail.com, quad-list@eskimo.com


**
Thanks Mike.  I've known Lori, but not as long as you.  She is a very nice
person, caught between the rock and a very hard spot.   Thanks!  I hope she
gets where she needs to.
Best Wishes

 In a message dated 9/5/2012 3:42:41 P.M. Central Daylight Time,
wheelin...@gmail.com writes:

My name is Mike and I'm a member of the Quad list.  I don't post often, but
I feel this is very important.

I'm writing in regards to a member of this list named Lori Michaelson who
has lost her husband/caregiver to a heart attack on 6/11/2012.

I was her peer counselor many years ago, and have known Lori for most of my
Quad life of 42 years.  During this time Lori has always taken care of her
own needs and has always reached out to others in any way she could.

Like all of us, sooner or later, we need help in

-- 

*You'll never know that God is all you need, until God is all you've got.*




-- 

*You'll never know that God is all you need, until God is all you've got.*

Re: [QUAD-L] HELP LORI MICHAELSON

[Danny Hearn]

So sorry to hear about Lori's husband, I tried the link but not working??  Dan 
H.





From: Michael Galvin wheelin...@gmail.com
To: Quad List quad-list@eskimo.com
Sent: Wed, September 5, 2012 3:50:40 PM
Subject: [QUAD-L] HELP LORI MICHAELSON


one way or another.  I'm asking all of you to please read about Lori at 
http://wwwgivefoward.comhelptransportlori and help in any way you can.

Thanks

Mike c5c6-42 yrs

-- 

You'll never know that God is all you need, until God is all you've got.

Re: [QUAD-L] HELP LORI MICHAELSON

[wheelchair]

Let me see if I can find the original posting from last week.
Best Wishes
 
 
In a message dated 9/5/2012 3:58:25 P.M. Central Daylight Time,  
ddh...@sbcglobal.net writes:

 
So sorry to hear about Lori's husband, I tried the link but not  working??  
Dan H.


 

 From: Michael Galvin  wheelin...@gmail.com
To: Quad List  quad-list@eskimo.com
Sent: Wed, September 5, 2012 3:50:40  PM
Subject: [QUAD-L] HELP  LORI MICHAELSON

one way or another.  I'm asking all of you to please read about Lori  at 
http://wwwgivefoward.comhelptransportlori and help in any way you  can.
 
Thanks
 
Mike c5c6-42 yrs

-- 

You'll never know that God is all you need,  until God is all you've  got.

Re: [QUAD-L]~ HELP ~

[wheelchair]

A potentimeter is nothing more then an adjustable speed control.  They  are 
held in position with two thin hex nuts in a joystick assembly.  The  
potentimeter has a wiper on it can get dirty and require blowing out with air  
pressure.  When a potentimeter fails, its usually replaced or the attached  
p/c board is replaced.  I suspect that one or the other is the issue.   But I 
can only speculate on the internet, not seeing what you have.
Best Wishes
 
 
In a message dated 9/1/2012 3:42:14 P.M. Central Daylight Time,  
bobbie...@aol.com writes:

Quad Squad  Help!
I'm  having problems with my potentiometer, it turns on even when I'm not 
tilting  or reclining. So I went to CMC, the company I got my chair from 8 
years ago  but been having a lot of problems with them the last 12 or more 
years, so I'm  seriously considering switching suppliers. Before I go on , last 
Thursday I  went to Kessler to their wheelchair clinic to get fitted for a 
new chair by a  different supplier, Wilpage. Standing right next to me was 
Eahn, a rep from  CMC.
Yesterday Pete and I dropped in on CMC (their only  5 miles away and don't 
mind drop-in's) to get my potentiometer adjusted/fixed,  a repair man was 
working on my chair when a voice called him away. CMC is run  by a husband and 
wife team. Patti, the wife, came storming out from the back  without the 
repair man and began YELLING at me and Pete about how they are not  going to 
fix my chair because she heard I was ordering a chair from another  supplier. 
I told her I hadn't quite decided which supplier I was going to use  and 
was going through the possess to gather information. And I reminded her  that 
I HAD a sales rep from CMC, her company, at my home 3 months before and I  
had questions but the sales rep never got back to to date. Patti asked why I  
was considering using another supplier Pete (my husband) said 
communication  I told her that an employe, Dana, NEVER returns my calls or 
follows 
through on  a RX or repair request. Patti said OH, we got rid of her because 
we 
have been  getting a lot of complaints about her.
Patti went in  the back (we heard F this and F that) when she returned she 
said she had just  gotten off the phone with Kessler and yes it was true 
that I was on a fact  finding mission and that she was now SO VERY SORRY. Yes, 
of course we will fix  the potentiometer, will'll even do it for free if you 
order your chair from  us. THEN Patti disappeared again in the back room 
and reappeared with Dana the  employee that she JUST said they had let go we 
just moved her to another  desk she now says, you will never deal with her 
again, and then Dana  apologized. Now Patti is begging and pleading with us 
not to go to another  supplier when Carlos, her husband, appears YELLING at 
Pete and me about how we  should have written a letter to them explaining 
the communication  problem.
Why are the husband and wife, Patti   Carlos, yelling at us of hey was us 
to stay with them?
We  leave not promising anything We need to think about all of this. me 
and Pete  say … which is very true. As soon as we went directly home, which 
took 10  minutes, the phone rang and it was the sales rep apologizing, never 
asking why  I was trying to get a hold of him for 3 months.
The next  day I decided to find put how much this part will cost 
out-of-pocket instead  of waiting 10 to 14 days, $325 is all. So I want to 
pay and 
get reimbursed  because I have an appointment at wheelchair clinic again 
September 13th and  I'm most likely NOT going to use CMC with whom I've gotten 
my last chair  from.
BUT the supplier I'm going to go with  Wilpage, I've NEVER delt with 
before. But a quad up-stairs, SCI, has used them  for years and years and she 
LOVES them. Wilpage comes to her place to do  repairs and is very good at 
returning phone calls …  communication.
One more thing. I still am not sure who  will repair the chair I'm sitting 
in now until I get my new chair, which can  take 6 to 7 months after 
ordering.
What do I  do?
Bobbie  


Sent from my  iPad
=

RE: [QUAD-L] Help with Wii Games

[Danny Espinoza]

I don't have a game console However I do play games on my computer
sometimes and I have no movement of my left arm and partial to my wrist on
my right side and when I looked into adaptive console gaming I found a
company by the name of broadened horizons that had a fair amount of stuff. I
haven't tried their equipment nor do I know the quality of it but here is
the url.

http://www.broadenedhorizons.com/en/products/video-game-controls/nintendo-wi
i


-Original Message-
From: Trish Conway [mailto:tris...@dslextreme.com] 
Sent: Friday, April 13, 2012 11:03 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help with Wii Games

My friend is  quadriplegic, having little control of his neck or of his
limbs.  I'm trying to find games he might be able to do and have had limited
success with the Wii Fit which we just started experimenting with.  What he
can do is press down on the Balance Board (which is resting on his
wheelchair tray) with his fists.  In this manner he is able to progress some
with the game Heading, just trying to use the Balance Board to hit the
soccer balls and dodging the flying shoes.

Also, he has been able to manage a little of a running game by wiggling the
Wiimote to simulate it's movement in his pocket as he is running.  
My question is - What other Wii games might be good for him.  He has limited
strength to press down on the Balance Board and to wiggle the Wiimote but he
is unable to activate any of the Wiimote or Nunchuk switches.

Thank you for your help.

Trish

RE: [QUAD-L] Help with Wii Games

[Danny Espinoza]

http://www.broadenedhorizons.com/en/wii-fit-plus-with-balance-board


Availability: In stock
$129.95


Warranty90
AvailabilityPlease allow 1-4 Weeks for Custom
Brand   Broadened Horizons
IncludesN/A
By Disability or Limitation No Head Movement - Tongue/Lips/Facial
Gestures Only, Head Movement Only, No Arm Movement with some Finger
Dexterity, Arm Movement with Limited Finger Dexterity, C1-C3 Quadriplegia,
C4 Quadriplegia, C5 Quadriplegia, C6-C7 Quadriplegia, ALS - Lou Gehrig's
Disease, Cerebral Palsy, Muscular Dystrophy or SMA, Multiple Sclerosis,
Paraplegia, Limited Speech or Nonvocal, Stroke, Unable to Walk - Wheelchair
User, Brachial Plexus Injury, Limited Hearing or Deaf, Limited Vision or
Blind, Arthritis, RSI, Tendinitis, Elderly, Not Disabled, Temporarily
Able-Bodied
by Ability or Control MethodNo Control - Not Applicable, with ECU -
Infrared IR, with ECU - discrete TTL, Limited Hand Dexterity, Some Finger
Dexterity (no arm movement), Arm Movement (no finger dexterity), Voice -
Speaker Independent, Voice - Speaker Dependent, Voice - Dictation, Breath-
Blow or Suck Lightly, Using any Ability Switch, Mouth, Tongue, or Facial
Gestures, Good Head Movement, Feet or Toes

maybe this could work?


-Original Message-
From: Trish Conway [mailto:tris...@dslextreme.com] 
Sent: Friday, April 13, 2012 11:03 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help with Wii Games

My friend is  quadriplegic, having little control of his neck or of his
limbs.  I'm trying to find games he might be able to do and have had limited
success with the Wii Fit which we just started experimenting with.  What he
can do is press down on the Balance Board (which is resting on his
wheelchair tray) with his fists.  In this manner he is able to progress some
with the game Heading, just trying to use the Balance Board to hit the
soccer balls and dodging the flying shoes.

Also, he has been able to manage a little of a running game by wiggling the
Wiimote to simulate it's movement in his pocket as he is running.  
My question is - What other Wii games might be good for him.  He has limited
strength to press down on the Balance Board and to wiggle the Wiimote but he
is unable to activate any of the Wiimote or Nunchuk switches.

Thank you for your help.

Trish

[QUAD-L] Help with Wii Games

[Trish Conway]

My friend is  quadriplegic, having little control of his neck or of his 
limbs.  I'm trying to find games he might be able to do and have had 
limited success with the Wii Fit which we just started experimenting 
with.  What he can do is press down on the Balance Board (which is 
resting on his wheelchair tray) with his fists.  In this manner he is 
able to progress some with the game Heading, just trying to use the 
Balance Board to hit the soccer balls and dodging the flying shoes.


Also, he has been able to manage a little of a running game by wiggling 
the Wiimote to simulate it's movement in his pocket as he is running.  
My question is - What other Wii games might be good for him.  He has 
limited strength to press down on the Balance Board and to wiggle the 
Wiimote but he is unable to activate any of the Wiimote or Nunchuk 
switches.


Thank you for your help.

Trish

Re: [QUAD-L] Help with Wii Games

[wheelchair]

Congrats Trish!  A very excellent question and I hope you get more  
answers.  Since the first time I witnessed seniors playing Wii in nursing  
homes 
for exercise and entertainment, I realized what a powerful rehab tool this  
could be.  It would also be interesting to learn if any research is being  
conducted in this area.
Best Wishes
 
 
In a message dated 4/14/2012 1:03:08 A.M. Central Daylight Time,  
tris...@dslextreme.com writes:

My  friend is  quadriplegic, having little control of his neck or of his  
limbs.  I'm trying to find games he might be able to do and have had  
limited success with the Wii Fit which we just started experimenting  
with.  What he can do is press down on the Balance Board (which is  
resting on his wheelchair tray) with his fists.  In this manner he is  
able to progress some with the game Heading, just trying to use the  
Balance Board to hit the soccer balls and dodging the flying  shoes.

Also, he has been able to manage a little of a running game by  wiggling 
the Wiimote to simulate it's movement in his pocket as he is  running.  
My question is - What other Wii games might be good for  him.  He has 
limited strength to press down on the Balance Board and  to wiggle the 
Wiimote but he is unable to activate any of the Wiimote or  Nunchuk 
switches.

Thank you for your  help.

Trish

Re: [QUAD-L] Help with Wii Games

[Fragile]

I can play tennis with just shoulder  and bicep control.  Wrap the
controller to my wrist.

On Sat, Apr 14, 2012 at 12:03 AM, Trish Conway tris...@dslextreme.comwrote:

 My friend is  quadriplegic, having little control of his neck or of his
 limbs.  I'm trying to find games he might be able to do and have had
 limited success with the Wii Fit which we just started experimenting with.
  What he can do is press down on the Balance Board (which is resting on his
 wheelchair tray) with his fists.  In this manner he is able to progress
 some with the game Heading, just trying to use the Balance Board to hit the
 soccer balls and dodging the flying shoes.

 Also, he has been able to manage a little of a running game by wiggling
 the Wiimote to simulate it's movement in his pocket as he is running.  My
 question is - What other Wii games might be good for him.  He has limited
 strength to press down on the Balance Board and to wiggle the Wiimote but
 he is unable to activate any of the Wiimote or Nunchuk switches.

 Thank you for your help.

 Trish

Re: [QUAD-L] HELP FOR KYLE

[wheelchair]

Greetings,
I sense a huge frustration on your part as a parent, who offers and wants  
the best for her child. It is most difficult to reach out across the 
internet to  console you and your family during these rough and impossible 
times.  
Quad  Life, is not easy... it never has been for most, including their 
loving  families.  I truly hope you are in touch with others at the local level 
for  help and support.  As you have learned personally, nothing happens  
overnight and sometimes takes weeks.  Knowledge is power and it is most  
important to get as much knowledge as possible.  Have you been in contact  with 
the 
local Spinal Cord Injury Association in your area.  This could be  very 
important in helping you to deal with your son's issues and hopes of  
improvement. A good diet and proper care may help the situation with  
infections.
I wish you and your family well
Best Wishes
 
 
In a message dated 9/26/2011 6:08:14 P.M. Central Daylight Time,  
moip...@yahoo.com writes:

 
HE JUST GOT OFF IV MEDS FOR UTI  AND NEEDED SOME WATER NOTHING  OTHER THEN 
THAT CAME UP. THIS HAS BEEN A PROB FOR 20 MO. NOW HAS HAD CT MRI  LUMBAR 
STICK AND N ALL AND NOTHING. IN THE BEGINING HE GOT STAFF, MRSA,ECOLY D  ALL 
THAT STAYS WITH YOU BUT NO ONE CAN GET THE BP OR THIS COLD UNDER CONTROL  FOR 
MORE THEN 3 MO OR SO...
 

[QUAD-L] HELP FOR KYLE

[wheelchair]

The Oklahoma Chapter is based in Welling, OK and can be reached by phone  
at: 918-458-9384
You can also contact Betheny at:_scubawinks@sbcglobal.net_ 
(mailto:scubawi...@sbcglobal.net) 
 
If you don't get a reply in one of two day, call or email them again.
Best Wishes
 
 
In a message dated 9/27/2011 12:22:20 P.M. Central Daylight Time,  
moip...@yahoo.com writes:

I have looked in two SCIA in ok. the last post was back  in 2007 if that 
tells you why im asking theres nothing in the state that  can help other then 
going to jim thorp for grup...

--- On Tue,  9/27/11, wheelch...@aol.com wheelch...@aol.com  wrote:


From:  wheelch...@aol.com wheelch...@aol.com
Subject: Re: [QUAD-L]  HELP FOR KYLE
To: moip...@yahoo.com, quad-list@eskimo.com
Date:  Tuesday, September 27, 2011, 9:08 AM


Greetings,
I sense a huge frustration on your part as a parent, who offers  and wants 
the best for her child. It is most difficult to reach out  across the 
internet to console you and your family during these rough  and impossible 
times.  
Quad Life, is not easy... it never has  been for most, including their 
loving families.  I truly hope you  are in touch with others at the local level 
for help and  support.  As you have learned personally, nothing happens  
overnight and sometimes takes weeks.  Knowledge is power and it  is most 
important to get as much knowledge as possible.  Have you  been in contact with 
the local Spinal Cord Injury Association in your  area.  This could be very 
important in helping you to deal with  your son's issues and hopes of 
improvement. A good diet and proper  care may help the situation with 
infections.
I wish you and your family well
Best Wishes
 
 
In a message dated 9/26/2011 6:08:14 P.M. Central Daylight Time,  
moip...@yahoo.com writes:

 
HE JUST GOT OFF IV MEDS FOR UTI  AND NEEDED SOME  WATER NOTHING OTHER THEN 
THAT CAME UP. THIS HAS BEEN A PROB FOR 20  MO. NOW HAS HAD CT MRI LUMBAR 
STICK AND N ALL AND NOTHING. IN THE  BEGINING HE GOT STAFF, MRSA,ECOLY D ALL 
THAT STAYS WITH YOU BUT NO  ONE CAN GET THE BP OR THIS COLD UNDER CONTROL FOR 
MORE THEN 3 MO OR  SO...
 

[QUAD-L] HELP FOR KYLE

[wheelchair]

I'm very sorry.  The telephone number reference I had is no longer in  
operation as its owner passed away 5 years ago, according to his Mother.   
However the email address I provided for Breteney is still in process as I type 
 
this.  For now it seems like the Jim Thorpe Center in Oklahoma City, is the  
only place in your state.
 
Best Wishes
 
 
In a message dated 9/27/2011 12:22:20 P.M. Central Daylight Time,  
moip...@yahoo.com writes:

I have looked in two SCIA in ok. the last post was back  in 2007 if that 
tells you why im asking theres nothing in the state that  can help other then 
going to jim thorp for grup...

--- On Tue,  9/27/11, wheelch...@aol.com wheelch...@aol.com  wrote:


From:  wheelch...@aol.com wheelch...@aol.com
Subject: Re: [QUAD-L]  HELP FOR KYLE
To: moip...@yahoo.com, quad-list@eskimo.com
Date:  Tuesday, September 27, 2011, 9:08 AM


Greetings,
I sense a huge frustration on your part as a parent, who offers  and wants 
the best for her child. It is most difficult to reach out  across the 
internet to console you and your family during these rough  and impossible 
times.  
Quad Life, is not easy... it never has  been for most, including their 
loving families.  I truly hope you  are in touch with others at the local level 
for help and  support.  As you have learned personally, nothing happens  
overnight and sometimes takes weeks.  Knowledge is power and it  is most 
important to get as much knowledge as possible.  Have you  been in contact with 
the local Spinal Cord Injury Association in your  area.  This could be very 
important in helping you to deal with  your son's issues and hopes of 
improvement. A good diet and proper  care may help the situation with 
infections.
I wish you and your family well
Best Wishes
 
 
In a message dated 9/26/2011 6:08:14 P.M. Central Daylight Time,  
moip...@yahoo.com writes:

 
HE JUST GOT OFF IV MEDS FOR UTI  AND NEEDED SOME  WATER NOTHING OTHER THEN 
THAT CAME UP. THIS HAS BEEN A PROB FOR 20  MO. NOW HAS HAD CT MRI LUMBAR 
STICK AND N ALL AND NOTHING. IN THE  BEGINING HE GOT STAFF, MRSA,ECOLY D ALL 
THAT STAYS WITH YOU BUT NO  ONE CAN GET THE BP OR THIS COLD UNDER CONTROL FOR 
MORE THEN 3 MO OR  SO...
 

[QUAD-L] HELP FOR KYLE-Oklahoma

[wheelchair]

 
  

 From: sciinj...@aol.com
To: wheelch...@aol.com
Sent: 9/27/2011 2:31:49  P.M. Central Daylight Time
Subj: Re: [QUAD-L] HELP FOR  KYLE-Oklahoma


Hi
 
I replied to your instant message before seeing the email.
 
The first thing I would do would be call the Nurse Hotline at Craig  - 
1-800-247-0257. They serve the whole country and Craig is an excellent SCI  
facility.
 
Is the cold referred to a cold as in coughing, sneezing, or is it body  
temperature. Some people are cold quads.  You may remember Margaret,  who 
used to work here.  Sometimes Margaret gets freezing cold and  perspires at 
the same time for no apparent reason.  
 
You know I am not a medical person and I probably shouldn't suggest  it, 
but blood pressure and temperature issues sound like they could  be autonomic 
dysreflexia. Sometimes you have to be a detective to  figure things out. 
Another person I know will no longer fly much farther than  Chicago to Florida. 
After several bad experiences, he believes that  on longer flights, the 
pressure in airplanes has an awful affect  on his bladder and catheter. 
 
If this person is not being treated in a hospital that has lots of  
experience with SCI, maybe the physician would be willing to consult with  
someone 
who is part of the Model System of SCI Care.   
 
I hope this will be of some help. 
 
Mercedes 
 
In a message dated 9/27/2011 12:26:16 P.M. Central Daylight Time,  
wheelch...@aol.com writes:
 
  

 From: moip...@yahoo.com
To: wheelch...@aol.com
Sent: 9/27/2011  12:22:20 P.M. Central Daylight Time
Subj: Re: [QUAD-L] HELP FOR  KYLE



I have looked in two SCIA in ok. the last post was  back in 2007 if that 
tells you why im asking theres nothing in the  state that can help other then 
going to jim thorp for  grup...

--- On Tue, 9/27/11, wheelch...@aol.com  wheelch...@aol.com wrote:


From:  wheelch...@aol.com wheelch...@aol.com
Subject: Re:  [QUAD-L] HELP FOR KYLE
To: moip...@yahoo.com,  quad-list@eskimo.com
Date: Tuesday, September 27, 2011, 9:08  AM


Greetings,
I sense a huge frustration on your part as a parent, who  offers and wants 
the best for her child. It is most difficult to  reach out across the 
internet to console you and your family  during these rough and impossible 
times.  
Quad Life, is not  easy... it never has been for most, including their 
loving  families.  I truly hope you are in touch with others at the  local 
level 
for help and support.  As you have learned  personally, nothing happens 
overnight and sometimes takes  weeks.  Knowledge is power and it is most 
important to get as  much knowledge as possible.  Have you been in contact with 
 
the local Spinal Cord Injury Association in your area.  This  could be very 
important in helping you to deal with your son's  issues and hopes of 
improvement. A good diet and proper care may  help the situation with 
infections.
I wish you and your family well
Best Wishes
 
 
In a message dated 9/26/2011 6:08:14 P.M. Central Daylight  Time, 
moip...@yahoo.com writes:

 
HE JUST GOT OFF IV MEDS FOR UTI  AND NEEDED SOME  WATER NOTHING OTHER THEN 
THAT CAME UP. THIS HAS BEEN A PROB FOR  20 MO. NOW HAS HAD CT MRI LUMBAR 
STICK AND N ALL AND NOTHING. IN  THE BEGINING HE GOT STAFF, MRSA,ECOLY D ALL 
THAT STAYS WITH YOU  BUT NO ONE CAN GET THE BP OR THIS COLD UNDER CONTROL FOR 
MORE  THEN 3 MO OR SO...
 

[QUAD-L] help

[Rene Bullard]

Message body
IS THERE ANYONE OUT THERE THAT HAS TO DILL WITH BEEING COLD 24 7 AND SWEATTING 
ALL THE TIME CALL ME 405-567-5306

Re: [QUAD-L] help

[wheelchair]

For many, that is a common issue, depending on their injury. Sometimes,  
there are medical issues.  Other times its just part of the post injury  
syndrome.  The sweating issue, I would have some concerns as it could be  the 
results of an infection that is developing.  I hope several respond to  your 
request, based on their personal experiences.
What did you son's doctors say?
Best Wishes
 
 
In a message dated 9/26/2011 10:11:59 A.M. Central Daylight Time,  
moip...@yahoo.com writes:

 
Message body

 
 
 
IS THERE ANYONE OUT THERE THAT HAS TO DILL WITH BEEING COLD 24 7 AND  
SWEATTING ALL THE TIME CALL ME  405-567-5306

RE: [QUAD-L] help

[nichole rohling]

Rene

 

Is kyle actually cold or is it cold chills? I know that sounds weird but
there are times I am cold but times when I have pain that I have cold chills
and sweating (like right now I have a sore and I have chill bumps with the
back of my neck sweating)

It is normal for a quad to be cold but the sweating concerns me since it is
an indicator of pain. Is he like this both in his chair and in bed?
Sometimes just a pubic hair being pulled or skin being pulled can cause some
pain. Even catheter, wrinkle in clothing, etc...is his sore completely
healed? 

 

Hope you all get it figured out...I know it is aggravating.

 

nicki

 

From: Rene Bullard [mailto:moip...@yahoo.com] 
Sent: Monday, September 26, 2011 10:12 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] help

 


Message body


IS THERE ANYONE OUT THERE THAT HAS TO DILL WITH BEEING COLD 24 7 AND
SWEATTING ALL THE TIME CALL ME 405-567-5306

Re: [QUAD-L] help

[Aaron Mann]

I hear two things going on here (as others have mentioned).  The feeling of
being cold and cold sweats.  Very briefly, I have been a C4-5 Quad since
'88 (23 years).

In the early years it is very common for me to sun bathe for hours in 90
degree weather, require a space heater blowing on me, or sit under heated
blankets in the house.  Most Quads I've known out grow the need for the
room to be 80-85 degrees or being bundled up all the time.  This has been
explained to me that the brain does not know how to regulate a body it
cannot communicate with.  So, once the mental trigger is pulled that you
are cold.  It takes extreme lengths of heat to get the trigger reset.  In
my experience this happened a lot during the first 5 years.  Since then it
only happens if either I'm not dressed appropriately and I do actually get
cold or my brain is not busy thinking about something other than the
temperature of the room.  I live in a home that I keep at 77 degrees in
Summer and 72 in Winter.  I work in a room that they keep 72 all the time.
The key is to figure out how you need to dress to be comfortable.  At work I
keep a shawl handy (yes, a guy with a shawl).  I'd rather look a little
different than deal with needing to reset my brain.
Cold sweats are occuring due to pain (just as you've read from others).  It
is VERY IMPORTANT that you identify the source of the pain.  This is the way
that Quads know something is wrong.  Typically things you'll experience are
a flush feeling, sweating, increased spasms, and chill bumps.  All of
these are signs of mild to moderate Dysreflexia.  (VERY IMPORTANT: If you
don't know about Dysreflexia, reasearch it!)  As long as you don't have a
headache, red face, and splotchy bright redness on your shoulders and chest,
then it's not severe, immediate Dr or hospital type Dysreflexia.  I have
completely soaked shirts before.  And, very oddly I sweat in very specific
places like only my left forehead and left shoulder.  Usually it is a
bladder infection, but more often I may hit my knee under a table and know I
need to re-position myself.

I hope some of this helps.  Hang in there!  To this day I still tell myself
This, too, shall pass.  It will, you'll move on through this phase.

Good luck!

Aaron Mann



On Mon, Sep 26, 2011 at 10:11 AM, Rene Bullard moip...@yahoo.com wrote:

  Message body
   IS THERE ANYONE OUT THERE THAT HAS TO DILL WITH BEEING COLD 24 7 AND
 SWEATTING ALL THE TIME CALL ME 405-567-5306

RE: [QUAD-L] help

[Dave Krehbiel]

Be sure to take your temperature to see if you have a fever. Before my
accident, my temperature was very consistently 98.6°. Today, most days, it
is several degrees below that. If my temperature is 98.6° today, I know I
have some sort of a problem.

 

I have really enjoyed using a snuggie. It helps me get warm when I am in a
wheelchair, and I can use it as an extra blanket in bed.

 

My church bought me a cloak for cold weather. Here is a link to the
supplier's website: http://www.koolwaysports.com/ . 

 

 

 

From: Rene Bullard [mailto:moip...@yahoo.com] 
Sent: Monday, September 26, 2011 11:12 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] help

 


Message body


IS THERE ANYONE OUT THERE THAT HAS TO DILL WITH BEEING COLD 24 7 AND
SWEATTING ALL THE TIME CALL ME 405-567-5306

[QUAD-L] HELP FOR KYLE

[Rene Bullard]

HE JUST GOT OFF IV MEDS FOR UTI  AND NEEDED SOME WATER NOTHING OTHER THEN THAT 
CAME UP. THIS HAS BEEN A PROB FOR 20 MO. NOW HAS HAD CT MRI LUMBAR STICK AND N 
ALL AND NOTHING. IN THE BEGINING HE GOT STAFF, MRSA,ECOLY D ALL THAT STAYS WITH 
YOU BUT NO ONE CAN GET THE BP OR THIS COLD UNDER CONTROL FOR MORE THEN 3 MO OR 
SO...

Re: [QUAD-L] Help needed

[hellodaveoc]

i tried - can't do it.   too many irrelevant questions.
azdave
 
 
 
In a message dated 2/14/2011 8:44:04 A.M. US Mountain Standard Time,  
shanna...@hotmail.com writes:

Hello  everyone and happy Valentine's day!  I am writing because I need  
participants for a study I am doing for my doctorate in psychology.  Not  sure 
if any of you meet the qualifications or if you have looked at my survey  
but your help would be appreciated.  For those that have looked at it or  
completed the survey thank you.  I have posted the qualifications and the  link 
for the survey below.  Thanks again!  

Shanna

The focus is on how couples in which the male has a  spinal cord injury 
cope and how the coping style affects various aspects of  life.  This study is 
done online and can be completed at your  convenience.  To qualify you must 
meet the following qualifications 1)  you are a male with a spinal cord 
injury; 2) you are over the age of 18; 3)  you have been injured at least 2 
years and 4) you have been married for at  least 6 months.  The questionnaire 
needs to be completed separately by  you and your spouse.  Upon completion of 
the questionnaire both you and  your spouse will be entered for a chance to 
win a 200 dollar Visa gift  card.  If interested in helping please click on 
this link to take the  survey: 
_https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa_ 
(https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa)   =

Re: [QUAD-L] Help needed-and so do we

[wheelchair]

Amen Eric. For some it is.  For others... it was
Best Wishes
 
 
In a message dated 2/14/2011 9:00:20 P.M. Central Standard Time,  
c5sc...@gmail.com writes:

acually it is St Valentine's Day
 
Eric W Rudd
_c5sci97@gmail.com_ (mailto:c5sc...@gmail.com) 

- Original Message - 
From:  _wheelchair@aol.com_ (mailto:wheelch...@aol.com)  
To: _donprice63@yahoo.com_ (mailto:donpric...@yahoo.com)  ; 
_shanna.78@hotmail.com_ (mailto:shanna...@hotmail.com)  ; 
_quad-list@eskimo.com_ 
(mailto:quad-list@eskimo.com)  
Sent: Monday, February 14, 2011 11:06  AM
Subject: Re: [QUAD-L] Help needed-and  so do we


I support you Don and anyone else that uses that information in the  study 
to further the cause.  I actually know of few that have chosen to  dedicate 
their professional lives in the area of spinal cord injuries as  most 
insurance companies don't see the need and will not pay.  And this  is truly 
sad.
 
Now I did visit the site survey and noticed that someone who takes the  
survey, might just might win the opportunity to a 200 dollar Visa  Card.  I 
don't know what the odds are as it was not stated.  The  survey did not 
list any of the National Spinal Cord hospitals as  endorsements.  That would be 
nice.  Nor did it acknowledge any  approval from our esteem host and site 
owner: Jim Lubin.
 
What a day to take a survey, Valentine Day.  
Best Wishes
 
 
In a message dated 2/14/2011 10:59:18 A.M. Central Standard Time,  
donpric...@yahoo.com writes:

 
If Shanna is studying to get her degree to help those of us with  spinal 
cord injuries [whether psychology, PT, OT or Medical,] I will  support her 
efforts.  If helping those of us with SCI earn her a  decent living wage, say 
more power to her--she's earned it.
 
I understand that there are people out there who take advantage and  
greedily prey on people with disabilities, but in my opinion requests such  as 
this are not in that category.  
 
I'll be happy to look at the survey and fill it out if I can be of  help.  
Good luck with your degree, Shanna.
 
Don.


  

 From: wheelch...@aol.com  wheelch...@aol.com
To: shanna...@hotmail.com;  quad-list@eskimo.com
Sent: Mon, February 14, 2011 9:42:47  AM
Subject: [QUAD-L] Help  needed-and so do we

Greetings Shanna,
You are not the first, nor with you be the last to enlist members  here for 
your study.  Each year around this time of the season the  Quad-List 
receives several requests for us to share tangible information  so that people 
like yourself can graduate and make tons of money, while  many here are barely 
living at the poverty level.. just to survive.   May I ask..
Is your present study supported by the National Spinal Cord Assoc as  an 
approved study?
Is your present study supported by any of the national disAbility  programs 
or support groups?
 
I personally haven't taken the time yet to visit your survey, but it  would 
be nice to see that some kind of benefit would be available to those  who 
are supplying you with the information for your survey to graduate and  make 
tons of money.  I hope you never, never forget those who  supported your 
study.
 
Best Wishes
 
 
In a message dated 2/14/2011 9:44:04 A.M. Central Standard Time,  
shanna...@hotmail.com writes:

Hello everyone and happy Valentine's day!  I am writing  because I need 
participants for a study I am doing for my doctorate in  psychology.  Not sure 
if any of you meet the qualifications or if  you have looked at my survey 
but your help would be appreciated.   For those that have looked at it or 
completed the survey thank  you.  I have posted the qualifications and the link 
for the survey  below.  Thanks again!  

Shanna

The focus is on how couples in which the male  has a spinal cord injury 
cope and how the coping style affects various  aspects of life.  This study is 
done online and can be completed at  your convenience.  To qualify you must 
meet the following  qualifications 1) you are a male with a spinal cord 
injury; 2) you are  over the age of 18; 3) you have been injured at least 2 
years and 4) you  have been married for at least 6 months.  The questionnaire 
needs  to be completed separately by you and your spouse.  Upon completion  of 
the questionnaire both you and your spouse will be entered for a  chance to 
win a 200 dollar Visa gift card.  If interested in  helping please click on 
this link to take the survey: 
_https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa_ 
(https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa)   =

RE: [QUAD-L] Help needed

[e m treston]

men, men men!!! really, don't we exist!!

  _  

From: Shanna Weiss [mailto:shanna...@hotmail.com] 
Sent: Monday, February 14, 2011 10:42 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help needed


Hello everyone and happy Valentine's day!  I am writing because I need
participants for a study I am doing for my doctorate in psychology.  Not
sure if any of you meet the qualifications or if you have looked at my
survey but your help would be appreciated.  For those that have looked at it
or completed the survey thank you.  I have posted the qualifications and the
link for the survey below.  Thanks again!  

Shanna



The focus is on how couples in which the male has a spinal cord injury cope
and how the coping style affects various aspects of life.  This study is
done online and can be completed at your convenience.  To qualify you must
meet the following qualifications 1) you are a male with a spinal cord
injury; 2) you are over the age of 18; 3) you have been injured at least 2
years and 4) you have been married for at least 6 months.  The questionnaire
needs to be completed separately by you and your spouse.  Upon completion of
the questionnaire both you and your spouse will be entered for a chance to
win a 200 dollar Visa gift card.  If interested in helping please click on
this link to take the survey: 

https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa 

Re: [QUAD-L] Help needed

[wheelchair]

You do Miss Liz and thank GOD for that.  Back in our youth we used to  call 
that day Valen Times Day.  Since then we have learned much about loves  and 
the various kinds.
infatuation
romantic
Eros
companionate
unconditional
conditional
puppy
maternal
paternal
soul mate
spiritual/divine
patriotism
self
brotherly
tough
 
did I miss any?
Hope yours was everything you wished for.
Best Wishes
 
 
In a message dated 2/15/2011 11:52:50 A.M. Central Standard Time,  
missl...@optonline.net writes:

men, men men!!! really, don't we exist!!

 

 From: Shanna Weiss [mailto:shanna...@hotmail.com]  
Sent: Monday, February 14, 2011 10:42 AM
To:  quad-list@eskimo.com
Subject: [QUAD-L] Help  needed



Hello everyone and happy Valentine's day!  I am writing because I need  
participants for a study I am doing for my doctorate in psychology.  Not  sure 
if any of you meet the qualifications or if you have looked at my survey  
but your help would be appreciated.  For those that have looked at it or  
completed the survey thank you.  I have posted the qualifications and the  link 
for the survey below.  Thanks again!  

Shanna

The focus is on how couples in which the male has a  spinal cord injury 
cope and how the coping style affects various aspects of  life.  This study is 
done online and can be completed at your  convenience.  To qualify you must 
meet the following qualifications 1)  you are a male with a spinal cord 
injury; 2) you are over the age of 18; 3)  you have been injured at least 2 
years and 4) you have been married for at  least 6 months.  The questionnaire 
needs to be completed separately by  you and your spouse.  Upon completion of 
the questionnaire both you and  your spouse will be entered for a chance to 
win a 200 dollar Visa gift  card.  If interested in helping please click on 
this link to take the  survey: 
_https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa_ 
(https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa)   

RE: [QUAD-L] Help needed

[e m treston]

I was referring to the lack of studies for women with SCI. 
Thanks, I know I'm loved :-)

  _  

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Tuesday, February 15, 2011 1:02 PM
To: missl...@optonline.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Help needed


You do Miss Liz and thank GOD for that.  Back in our youth we used to call
that day Valen Times Day.  Since then we have learned much about loves and
the various kinds.
infatuation
romantic
Eros
companionate
unconditional
conditional
puppy
maternal
paternal
soul mate
spiritual/divine
patriotism
self
brotherly
tough
 
did I miss any?
Hope yours was everything you wished for.
Best Wishes
 
In a message dated 2/15/2011 11:52:50 A.M. Central Standard Time,
missl...@optonline.net writes:


men, men men!!! really, don't we exist!!

  _  

From: Shanna Weiss [mailto:shanna...@hotmail.com] 
Sent: Monday, February 14, 2011 10:42 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Help needed


Hello everyone and happy Valentine's day!  I am writing because I need
participants for a study I am doing for my doctorate in psychology.  Not
sure if any of you meet the qualifications or if you have looked at my
survey but your help would be appreciated.  For those that have looked at it
or completed the survey thank you.  I have posted the qualifications and the
link for the survey below.  Thanks again!  

Shanna



The focus is on how couples in which the male has a spinal cord injury cope
and how the coping style affects various aspects of life.  This study is
done online and can be completed at your convenience.  To qualify you must
meet the following qualifications 1) you are a male with a spinal cord
injury; 2) you are over the age of 18; 3) you have been injured at least 2
years and 4) you have been married for at least 6 months.  The questionnaire
needs to be completed separately by you and your spouse.  Upon completion of
the questionnaire both you and your spouse will be entered for a chance to
win a 200 dollar Visa gift card.  If interested in helping please click on
this link to take the survey: 

https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa 

Re: [QUAD-L] Help needed

[wheelchair]

I agree with you again.  For years in med schools human medicine was  
taught using the male anatomy.  In my youth, I always thought men and women  
thought alike.  Marriage taught me otherwise... very quickly.
Best Wishes
 
 
In a message dated 2/15/2011 1:56:27 P.M. Central Standard Time,  
missl...@optonline.net writes:

I was referring to the  lack of studies for women with SCI. 
Thanks, I know I'm  loved :-)

 

 From: wheelch...@aol.com [mailto:wheelch...@aol.com]  
Sent: Tuesday, February 15, 2011 1:02 PM
To:  missl...@optonline.net; quad-list@eskimo.com
Subject: Re: [QUAD-L]  Help needed



You do Miss Liz and thank GOD for that.  Back in our youth we used  to call 
that day Valen Times Day.  Since then we have learned much about  loves and 
the various kinds.
infatuation
romantic
Eros
companionate
unconditional
conditional
puppy
maternal
paternal
soul mate
spiritual/divine
patriotism
self
brotherly
tough
 
did I miss any?
Hope yours was everything you wished for.
Best Wishes
 
 
In a message dated 2/15/2011 11:52:50 A.M. Central Standard Time,  
missl...@optonline.net writes:

men, men men!!! really, don't we exist!!

 

 From: Shanna Weiss [mailto:shanna...@hotmail.com]  
Sent: Monday, February 14, 2011 10:42 AM
To:  quad-list@eskimo.com
Subject: [QUAD-L] Help  needed



Hello everyone and happy Valentine's day!  I am writing because I need  
participants for a study I am doing for my doctorate in psychology.   Not sure 
if any of you meet the qualifications or if you have looked at my  survey 
but your help would be appreciated.  For those that have looked  at it or 
completed the survey thank you.  I have posted the  qualifications and the link 
for the survey below.  Thanks again!   

Shanna

The focus is on how couples in which the male has a  spinal cord injury 
cope and how the coping style affects various aspects of  life.  This study is 
done online and can be completed at your  convenience.  To qualify you must 
meet the following qualifications 1)  you are a male with a spinal cord 
injury; 2) you are over the age of 18; 3)  you have been injured at least 2 
years and 4) you have been married for at  least 6 months.  The questionnaire 
needs to be completed separately by  you and your spouse.  Upon completion of 
the questionnaire both you and  your spouse will be entered for a chance to 
win a 200 dollar Visa gift  card.  If interested in helping please click on 
this link to take the  survey: 
_https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa_ 
(https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa)   

Re: [QUAD-L] Help needed-and so do we

[Dan]

I totally agree. I always fill out these types of surveys. I figure 
if it helps spread the word about quads, the more the better. If they 
get rich off of the information, great! It means our info has spread 
far and wide. We don't want to return to the back room do we?


Dan



At 11:59 AM 2/14/2011, Don Price said something that elicited my response:

If Shanna is studying to get her degree to help those of us with 
spinal cord injuries [whether psychology, PT, OT or Medical,] I will 
support her efforts.  If helping those of us with SCI earn her a 
decent living wage, say more power to her--she's earned it.


I understand that there are people out there who take advantage and 
greedily prey on people with disabilities, but in my opinion 
requests such as this are not in that category.


I'll be happy to look at the survey and fill it out if I can be of 
help.  Good luck with your degree, Shanna.


Don.

From: wheelch...@aol.com wheelch...@aol.com
To: shanna...@hotmail.com; quad-list@eskimo.com
Sent: Mon, February 14, 2011 9:42:47 AM
Subject: [QUAD-L] Help needed-and so do we

Greetings Shanna,
You are not the first, nor with you be the last to enlist members 
here for your study.  Each year around this time of the season the 
Quad-List receives several requests for us to share tangible 
information so that people like yourself can graduate and make tons 
of money, while many here are barely living at the poverty level.. 
just to survive.  May I ask..
Is your present study supported by the National Spinal Cord Assoc as 
an approved study?
Is your present study supported by any of the national disAbility 
programs or support groups?


I personally haven't taken the time yet to visit your survey, but it 
would be nice to see that some kind of benefit would be available to 
those who are supplying you with the information for your survey to 
graduate and make tons of money.  I hope you never, never forget 
those who supported your study.


Best Wishes

In a message dated 2/14/2011 9:44:04 A.M. Central Standard Time, 
shanna...@hotmail.com writes:
Hello everyone and happy Valentine's day!  I am writing because I 
need participants for a study I am doing for my doctorate in 
psychology.  Not sure if any of you meet the qualifications or if 
you have looked at my survey but your help would be 
appreciated.  For those that have looked at it or completed the 
survey thank you.  I have posted the qualifications and the link for 
the survey below.  Thanks again!


Shanna

The focus is on how couples in which the male has a spinal cord 
injury cope and how the coping style affects various aspects of 
life.  This study is done online and can be completed at your 
convenience.  To qualify you must meet the following qualifications 
1) you are a male with a spinal cord injury; 2) you are over the age 
of 18; 3) you have been injured at least 2 years and 4) you have 
been married for at least 6 months.  The questionnaire needs to be 
completed separately by you and your spouse.  Upon completion of the 
questionnaire both you and your spouse will be entered for a chance 
to win a 200 dollar Visa gift card.  If interested in helping please 
click on this link to take the survey:
https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTahttps://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa 
=

RE: [QUAD-L] Help needed-and so do we

[Steve Oldaker]

I agree with Dan and Don for the most part. I think the results of most of
these surveys ends up being an extreme grasp of the obvious, but if it helps
an undergrad/post grad achieve their academic goals and I have the time and
gumption to complete the survey, I don't begrudge them if they don't offer
pay as an incentive and don't consider it presumptuous or an insult.

 

Steve - C4, 22 years

 

From: Dan [mailto:d...@unh.edu] 
Sent: Tuesday, February 15, 2011 7:10 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Help needed-and so do we

 

I totally agree. I always fill out these types of surveys. I figure if it
helps spread the word about quads, the more the better. If they get rich off
of the information, great! It means our info has spread far and wide. We
don't want to return to the back room do we?

Dan 



At 11:59 AM 2/14/2011, Don Price said something that elicited my response:
 



If Shanna is studying to get her degree to help those of us with spinal cord
injuries [whether psychology, PT, OT or Medical,] I will support her
efforts.  If helping those of us with SCI earn her a decent living wage, say
more power to her--she's earned it.
 
I understand that there are people out there who take advantage and greedily
prey on people with disabilities, but in my opinion requests such as this
are not in that category.  
 
I'll be happy to look at the survey and fill it out if I can be of help.
Good luck with your degree, Shanna.
 
Don.

From: wheelch...@aol.com wheelch...@aol.com
To: shanna...@hotmail.com; quad-list@eskimo.com
Sent: Mon, February 14, 2011 9:42:47 AM
Subject: [QUAD-L] Help needed-and so do we

Greetings Shanna,
You are not the first, nor with you be the last to enlist members here for
your study.  Each year around this time of the season the Quad-List receives
several requests for us to share tangible information so that people like
yourself can graduate and make tons of money, while many here are barely
living at the poverty level.. just to survive.  May I ask..
Is your present study supported by the National Spinal Cord Assoc as an
approved study?
Is your present study supported by any of the national disAbility programs
or support groups?
 
I personally haven't taken the time yet to visit your survey, but it would
be nice to see that some kind of benefit would be available to those who are
supplying you with the information for your survey to graduate and make tons
of money.  I hope you never, never forget those who supported your study.
 
Best Wishes
 
In a message dated 2/14/2011 9:44:04 A.M. Central Standard Time,
shanna...@hotmail.com writes:

Hello everyone and happy Valentine's day!  I am writing because I need
participants for a study I am doing for my doctorate in psychology.  Not
sure if any of you meet the qualifications or if you have looked at my
survey but your help would be appreciated.  For those that have looked at it
or completed the survey thank you.  I have posted the qualifications and the
link for the survey below.  Thanks again!  

Shanna

The focus is on how couples in which the male has a spinal cord injury cope
and how the coping style affects various aspects of life.  This study is
done online and can be completed at your convenience.  To qualify you must
meet the following qualifications 1) you are a male with a spinal cord
injury; 2) you are over the age of 18; 3) you have been injured at least 2
years and 4) you have been married for at least 6 months.  The questionnaire
needs to be completed separately by you and your spouse.  Upon completion of
the questionnaire both you and your spouse will be entered for a chance to
win a 200 dollar Visa gift card.  If interested in helping please click on
this link to take the survey: 

https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa =

[QUAD-L] Help needed

[Shanna Weiss]

Hello everyone and happy Valentine's day!  I am writing because I need 
participants for a study I am doing for my doctorate in psychology.  Not
 sure if any of you meet the qualifications or if you have looked at my 
survey but your help would be appreciated.  For those that have looked 
at it or completed the survey thank you.  I have posted the 
qualifications and the link for the survey below.  Thanks again!  

Shanna

The focus is on
how couples in which the male has a spinal cord injury cope and how the coping
style affects various aspects of life.  This study is done online and can
be completed at your convenience.  To qualify you must meet the following
qualifications 1) you are a male with a spinal cord injury; 2) you are over the
age of 18; 3) you have been injured at least 2 years and 4) you have been
married for at least 6 months.  The questionnaire needs to be completed
separately by you and your spouse.  Upon completion of the questionnaire
both you and your spouse will be entered for a chance to win a 200 dollar Visa
gift card.  If interested in helping please click on this link to take the
survey: 



























































































https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa 
  

[QUAD-L] Help needed-and so do we

[wheelchair]

Greetings Shanna,
You are not the first, nor with you be the last to enlist members here for  
your study.  Each year around this time of the season the Quad-List  
receives several requests for us to share tangible information so that people  
like yourself can graduate and make tons of money, while many here are barely  
living at the poverty level.. just to survive.  May I ask..
Is your present study supported by the National Spinal Cord Assoc as an  
approved study?
Is your present study supported by any of the national disAbility programs  
or support groups?
 
I personally haven't taken the time yet to visit your survey, but it would  
be nice to see that some kind of benefit would be available to those who 
are  supplying you with the information for your survey to graduate and make 
tons of  money.  I hope you never, never forget those who supported your  
study.
 
Best Wishes
 
 
In a message dated 2/14/2011 9:44:04 A.M. Central Standard Time,  
shanna...@hotmail.com writes:

Hello  everyone and happy Valentine's day!  I am writing because I need  
participants for a study I am doing for my doctorate in psychology.  Not  sure 
if any of you meet the qualifications or if you have looked at my survey  
but your help would be appreciated.  For those that have looked at it or  
completed the survey thank you.  I have posted the qualifications and the  link 
for the survey below.  Thanks again!  

Shanna

The focus is on how couples in which the male has a  spinal cord injury 
cope and how the coping style affects various aspects of  life.  This study is 
done online and can be completed at your  convenience.  To qualify you must 
meet the following qualifications 1)  you are a male with a spinal cord 
injury; 2) you are over the age of 18; 3)  you have been injured at least 2 
years and 4) you have been married for at  least 6 months.  The questionnaire 
needs to be completed separately by  you and your spouse.  Upon completion of 
the questionnaire both you and  your spouse will be entered for a chance to 
win a 200 dollar Visa gift  card.  If interested in helping please click on 
this link to take the  survey: 
_https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa_ 
(https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa)   =

Re: [QUAD-L] Help needed-and so do we

[Don Price]

If Shanna is studying to get her degree to help those of us with spinal cord 
injuries [whether psychology, PT, OT or Medical,] I will support her efforts.  
If helping those of us with SCI earn her a decent living wage, say more power 
to 
her--she's earned it.

I understand that there are people out there who take advantage and greedily 
prey on people with disabilities, but in my opinion requests such as this are 
not in that category.  


I'll be happy to look at the survey and fill it out if I can be of help.  Good 
luck with your degree, Shanna.

Don.



From: wheelch...@aol.com wheelch...@aol.com
To: shanna...@hotmail.com; quad-list@eskimo.com
Sent: Mon, February 14, 2011 9:42:47 AM
Subject: [QUAD-L] Help needed-and so do we

Greetings Shanna,
You are not the first, nor with you be the last to enlist members here for your 
study.  Each year around this time of the season the Quad-List receives several 
requests for us to share tangible information so that people like yourself can 
graduate and make tons of money, while many here are barely living at the 
poverty level.. just to survive.  May I ask..
Is your present study supported by the National Spinal Cord Assoc as an 
approved 
study?
Is your present study supported by any of the national disAbility programs or 
support groups?

I personally haven't taken the time yet to visit your survey, but it would be 
nice to see that some kind of benefit would be available to those who are 
supplying you with the information for your survey to graduate and make tons of 
money.  I hope you never, never forget those who supported your study.

Best Wishes

In a message dated 2/14/2011 9:44:04 A.M. Central Standard Time, 
shanna...@hotmail.com writes:
Hello everyone and happy Valentine's day!  I am writing because I need 
participants for a study I am doing for my doctorate in psychology.  Not sure 
if 
any of you meet the qualifications or if you have looked at my survey but your 
help would be appreciated.  For those that have looked at it or completed the 
survey thank you.  I have posted the qualifications and the link for the survey 
below.  Thanks again!  


Shanna


The focus is on how couples in which the male has a spinal cord injury cope 
and 
how the coping style affects various aspects of life.  This study is done 
online 
and can be completed at your convenience.  To qualify you must meet the 
following qualifications 1) you are a male with a spinal cord injury; 2) you 
are 
over the age of 18; 3) you have been injured at least 2 years and 4) you have 
been married for at least 6 months.  The questionnaire needs to be completed 
separately by you and your spouse.  Upon completion of the questionnaire both 
you and your spouse will be entered for a chance to win a 200 dollar Visa gift 
card.  If interested in helping please click on this link to take the survey: 
https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa =

Re: [QUAD-L] Help needed-and so do we

[wheelchair]

I support you Don and anyone else that uses that information in the study  
to further the cause.  I actually know of few that have chosen to dedicate  
their professional lives in the area of spinal cord injuries as most 
insurance  companies don't see the need and will not pay.  And this is truly  
sad.
 
Now I did visit the site survey and noticed that someone who takes the  
survey, might just might win the opportunity to a 200 dollar Visa  Card.  I 
don't know what the odds are as it was not stated.  The  survey did not 
list any of the National Spinal Cord hospitals as  endorsements.  That would be 
nice.  Nor did it acknowledge any  approval from our esteem host and site 
owner: Jim Lubin.
 
What a day to take a survey, Valentine Day.  
Best Wishes
 
 
In a message dated 2/14/2011 10:59:18 A.M. Central Standard Time,  
donpric...@yahoo.com writes:

 
If Shanna is studying to get her degree to help those of us with spinal  
cord injuries [whether psychology, PT, OT or Medical,] I will support her  
efforts.  If helping those of us with SCI earn her a decent living wage,  say 
more power to her--she's earned it.
 
I understand that there are people out there who take advantage and  
greedily prey on people with disabilities, but in my opinion requests such as  
this are not in that category.  
 
I'll be happy to look at the survey and fill it out if I can be of  help.  
Good luck with your degree, Shanna.
 
Don.


  

 From: wheelch...@aol.com  wheelch...@aol.com
To: shanna...@hotmail.com;  quad-list@eskimo.com
Sent:  Mon, February 14, 2011 9:42:47 AM
Subject: [QUAD-L] Help needed-and so do  we

Greetings Shanna,
You are not the first, nor with you be the last to enlist members here  for 
your study.  Each year around this time of the season the Quad-List  
receives several requests for us to share tangible information so that people  
like yourself can graduate and make tons of money, while many here are barely  
living at the poverty level.. just to survive.  May I ask..
Is your present study supported by the National Spinal Cord Assoc as an  
approved study?
Is your present study supported by any of the national disAbility  programs 
or support groups?
 
I personally haven't taken the time yet to visit your survey, but it  would 
be nice to see that some kind of benefit would be available to those who  
are supplying you with the information for your survey to graduate and make  
tons of money.  I hope you never, never forget those who supported your  
study.
 
Best Wishes
 
 
In a message dated 2/14/2011 9:44:04 A.M. Central Standard Time,  
shanna...@hotmail.com writes:

Hello  everyone and happy Valentine's day!  I am writing because I need  
participants for a study I am doing for my doctorate in psychology.   Not sure 
if any of you meet the qualifications or if you have looked at my  survey 
but your help would be appreciated.  For those that have looked  at it or 
completed the survey thank you.  I have posted the  qualifications and the link 
for the survey below.  Thanks again!   

Shanna

The focus is on how couples in which the male has a  spinal cord injury 
cope and how the coping style affects various aspects of  life.  This study is 
done online and can be completed at your  convenience.  To qualify you must 
meet the following qualifications 1)  you are a male with a spinal cord 
injury; 2) you are over the age of 18; 3)  you have been injured at least 2 
years and 4) you have been married for at  least 6 months.  The questionnaire 
needs to be completed separately by  you and your spouse.  Upon completion of 
the questionnaire both you and  your spouse will be entered for a chance to 
win a 200 dollar Visa gift  card.  If interested in helping please click on 
this link to take the  survey: 
_https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa_ 
(https://alliant.qualtrics.com/SE?SID=SV_d6ABkh3QmtHvQTa)   =