Re: [QUAD-L] UTI's
Angela, I read through all of the responses and I think everyone has a good ideas. Like Lori I had similar problems, but mine was complicated by the most foul smelling urine I have ever had the unfortunate privilege to smell. It would hang around the room 20 minutes after it was emptied. Drinking plenty of water is vital. Blood in urine is bad if it continues or if it's concentrated. I really think he does need to probably see his urologist ASAP. Given what you have written there is a strong possibility that he does have real big bladder stones or kidney stones. Once I had my bladder stones removed in January I have been able to go for weeks without a catheter change (suprapubic) and haven't had to your gate nearly as much as before. I have also started taking apple cider vinegar every three or four days as I am sure some people on here have suggested. (My doctor thought if I tried it every day that my body would grow accustomed to it and it would not help it significantly). I also take 1500 mg of vitamin C (500 mg three times a day) in combination with some cranberry supplements. All of this has minimized my problems, but I do occasionally get a small tint of blood if I have had a drama, but thankfully I am able to feel my bladder so I am aware if I had trauma to the bladder. As for cleaning around the suprapubic, I have my PCA clean the area with saline and then I use Neosporin or some other antibacterial topical agent. Once again, I think all of the ideas on here are good. I have tried citric acid in the past and I also agree it is much better to make it yourself. Good luck and let us know how things turn out, Quadius On 9/18/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: *My fiance has a lot of UTI's and it's really getting out of hand! He's had a horrible UTI for almost a month and a half now. His urine looks like dark red wine from all the blood in it and it's so thick sometimes that you have to squeeze or shake his drainage bag for it to drain. I feel just awful for him. He has a wonderful nurse who comes out at every call and takes urine specimens and then sometimes the cultures come back saying there's nothing there. Then you look at his urine and it's so obvious that there is an infection! Normal urine isn't cloudy and chunky and gritty and bloody!!! Unfortunately I no longer live with my fiance and I only see him on the weekends. Where as, before when I was living there, I was his primary caregiver and I would irrigate his cath a few times daily. I would do that to just clean all the debris stuck to the inside of the tubing and that sometimes help it look a bit better but sometimes not. We have tried everything that we've been told to do without luck. Silver squares around his super pubic cath after washing with a Dankins solution... doesn't work. Cleaning around it with just soap and water... doesn't work. Drinking orange juice and citrus juices or sodas... doesn't work. * *My question is what things can he and his caregiver and family do to either help prevent it or help nab them in the butt when they first rear their ugly head? What haven't we tried? What should we be doing? * *Please help!* *Thanks a million!!!* ** *Angela Flannigan 24/F/California* *Wife-To- Be of:* *Danny Espinoza 24/m/California* *Broke c2,c6,c7 and doner bone at c2* *TBI from blood going to central cortex from spinal cord* *off a vent woohoo however only one diaphragm works right now due to* *asymmetric SCI* -- See what's new at AOL.com http://www.aol.com/?NCID=AOLCMP0030001170and Make AOL Your Homepagehttp://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169 .
[QUAD-L] UTI's
My fiance has a lot of UTI's and it's really getting out of hand! He's had a horrible UTI for almost a month and a half now. His urine looks like dark red wine from all the blood in it and it's so thick sometimes that you have to squeeze or shake his drainage bag for it to drain. I feel just awful for him. He has a wonderful nurse who comes out at every call and takes urine specimens and then sometimes the cultures come back saying there's nothing there. Then you look at his urine and it's so obvious that there is an infection! Normal urine isn't cloudy and chunky and gritty and bloody!!! Unfortunately I no longer live with my fiance and I only see him on the weekends. Where as, before when I was living there, I was his primary caregiver and I would irrigate his cath a few times daily. I would do that to just clean all the debris stuck to the inside of the tubing and that sometimes help it look a bit better but sometimes not. We have tried everything that we've been told to do without luck. Silver squares around his super pubic cath after washing with a Dankins solution... doesn't work. Cleaning around it with just soap and water... doesn't work. Drinking orange juice and citrus juices or sodas... doesn't work. My question is what things can he and his caregiver and family do to either help prevent it or help nab them in the butt when they first rear their ugly head? What haven't we tried? What should we be doing? Please help! Thanks a million!!! Angela Flannigan 24/F/California Wife-To- Be of: Danny Espinoza 24/m/California Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI ** See what's new at http://www.aol.com
RE: [QUAD-L] UTI's
I've been there...we now flush my cath every am with vinegar + h20 flush 120 ml 20ml at a time. Eric W Rudd [EMAIL PROTECTED] -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, September 18, 2007 2:30 PM To: quad-list@eskimo.com Subject: [QUAD-L] UTI's My fiance has a lot of UTI's and it's really getting out of hand! He's had a horrible UTI for almost a month and a half now. His urine looks like dark red wine from all the blood in it and it's so thick sometimes that you have to squeeze or shake his drainage bag for it to drain. I feel just awful for him. He has a wonderful nurse who comes out at every call and takes urine specimens and then sometimes the cultures come back saying there's nothing there. Then you look at his urine and it's so obvious that there is an infection! Normal urine isn't cloudy and chunky and gritty and bloody!!! Unfortunately I no longer live with my fiance and I only see him on the weekends. Where as, before when I was living there, I was his primary caregiver and I would irrigate his cath a few times daily. I would do that to just clean all the debris stuck to the inside of the tubing and that sometimes help it look a bit better but sometimes not. We have tried everything that we've been told to do without luck. Silver squares around his super pubic cath after washing with a Dankins solution... doesn't work. Cleaning around it with just soap and water... doesn't work. Drinking orange juice and citrus juices or sodas... doesn't work. My question is what things can he and his caregiver and family do to either help prevent it or help nab them in the butt when they first rear their ugly head? What haven't we tried? What should we be doing? Please help! Thanks a million!!! Angela Flannigan 24/F/California Wife-To- Be of: Danny Espinoza 24/m/California Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI _ See what's new at AOL.com http://www.aol.com?NCID=AOLCMP0030001170 and Make AOL Your http://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169 Homepage.
Re: [QUAD-L] UTI's
In a message dated 9/18/2007 4:24:51 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I've been there...we now flush my cath every am with vinegar + h20 flush 120 ml 20ml at a time. Eric W Rudd [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) The blood doesn't alarm you? Man, I'd be going to the ER! ** See what's new at http://www.aol.com
Re: [QUAD-L] UTI's
Yes, you can try irrigating or some say flushing with Acetic Acid(which is the vinegar all ready mixed.)..I buy mine in bottles from the pharmacy, but you can make your own and it's cheaper, but I don't flush real often so a bottle lasts us a while. As far as the blood in urine goes...there are a few bacterias that can cause some bleeding but also bloody urine can mean you got a bladder or kidney stone, If the blood continues or gets heavier--you may want a Urologist to check it. Dan [EMAIL PROTECTED] wrote: In a message dated 9/18/2007 4:24:51 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I've been there...we now flush my cath every am with vinegar + h20 flush 120 ml 20ml at a time. Eric W Rudd [EMAIL PROTECTED] The blood doesn't alarm you? Man, I'd be going to the ER! - See what's new at AOL.com and Make AOL Your Homepage.
[QUAD-L] UTI's
*Angela, How often does he change his SP tube? I change mine every 3 weeks. I use a night drainage bag for 24 hours and then swap it out for one that's been soaking for 24 hours in pure white vinegar. I wipe around the SP where it enters my body twice a day with antibacterial wet ones twice a day - morning and night. After that, I put a dab of antibacterial cream around the opening. However, it sounds like he may have bladder stones. His doc should do a cysto to rule it in or out. Dan *
Re: [QUAD-L] UTI's
If you have blood in your urine after 3-4 days, go to ER. Make sure that your primary doctor and Uro are aware. 40oz of water per day minimum. Vits C atleast 2 mg a day but not all at once. Used bags can be cleaned flushed and soaked in mild bleach for an hour and rinse well again. Soak/rinse with white vinegar. Soaking is also good before you dry the bag, tube and equipment. Urine should be clear and lite yellow. Dark urine can signal not enough water. Its could also be some of the meds too. Best Wishes In a message dated 9/18/2007 2:37:01 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: My fiance has a lot of UTI's and it's really getting out of hand! He's had a horrible UTI for almost a month and a half now. His urine looks like dark red wine from all the blood in it and it's so thick sometimes that you have to squeeze or shake his drainage bag for it to drain. I feel just awful for him. He has a wonderful nurse who comes out at every call and takes urine specimens and then sometimes the cultures come back saying there's nothing there. Then you look at his urine and it's so obvious that there is an infection! Normal urine isn't cloudy and chunky and gritty and bloody!!! Unfortunately I no longer live with my fiance and I only see him on the weekends. Where as, before when I was living there, I was his primary caregiver and I would irrigate his cath a few times daily. I would do that to just clean all the debris stuck to the inside of the tubing and that sometimes help it look a bit better but sometimes not. We have tried everything that we've been told to do without luck. Silver squares around his super pubic cath after washing with a Dankins solution... doesn't work. Cleaning around it with just soap and water... doesn't work. Drinking orange juice and citrus juices or sodas... doesn't work. My question is what things can he and his caregiver and family do to either help prevent it or help nab them in the butt when they first rear their ugly head? What haven't we tried? What should we be doing? Please help! Thanks a million!!! Angela Flannigan 24/F/California Wife-To- Be of: Danny Espinoza 24/m/California Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI ** See what's new at http://www.aol.com
Re: [QUAD-L] UTI's
MessageHey Danny E. you have to drink lots of water, drink, drink more water. With the blood in the urine, if it's not a lot it could be from a little trauma with the supra pubic site. If you have been to your uroligist he says you are ok, just drink lots of water, plus other things. There is always that possibility of changing Drs. Good luck Danny, feel better soon. Lindaf
Re: [QUAD-L] UTI's
I began having mild (lower abdominal pain, ugly urine) approximately 7 years ago and then they became more serious a couple of years later (by going systemic and causing fevers with terrible urine) and kept coming back and kept coming back and became more frequent and then constant... monthly. I have always hesitated to have any tests done because it is almost impossible to get me onto tables without hurting me. Anyway, after four years I finally had a CT scan done and it showed that I had several very very large bladder stones and I had to have them removed. That was the problem. Urine should never look like dark red wine no matter what the lab tests reveal! Time to get second or third opinions until you receive an adequate answer! Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: [QUAD-L] UTI's
In a message dated 9/18/2007 7:12:42 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Urine should never look like dark red wine no matter what the lab tests reveal! Time to get second or third opinions until you receive an adequate answer! Lori C4/5 complete quad, 27 years post Tucson, AZ Urine differs from person to person. Some medications can discolor urine and some products like CranActin can make the urine cloudy. Blood in urine, is obvious. Determine the cause if possible. maybe you turned the wrong way or had a hard transfer. Has the cath been jerked causing bleeding? When in doubt, leave a message with your Uro's Office and ask for instructions. This way you leave the ball in their court. Best Wishes ** See what's new at http://www.aol.com
Re: [QUAD-L] uti's/mitrofanoff
The acidophilus that is in yogurt is what is good- especially when you're pushing lots of antibiotics. The idea is to replace the bad bacteria with the good bacteria we need to digest and prevent candida (yeast infections) from growing. The problem with yogurt is all the sugar! Sugar just encourages the bad bacteria and nasty yeast infections. You can get the pro-biotics in capsules (in the fridge at the supplement store) that include other cultures besides acidophilus. I never take antibiotics without them. ps pomeganate tea is s good! On 2/17/07, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: In a message dated 2/17/2007 1:18:20 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I had the mitrofinoff 15 years ago this year (wow its been that long since my injury). Those first few years were riddled with infections and lots of incontinence. They have decreased significantly. I went through a lot of different ways to combat all the problems including boosting my immune system and naturopathic stuff- actually going to the naturopath and doing what they told me to do. I don't know exactly why things are better for me now. Maybe my body just needed time to acclimate...? I have not had an infection for over a year and back a few years ago, when I would be symptomatic, nothing would show up on the culture but I would still take the antibiotics to help with the symptoms.. I have lately learned to wait it out when I start having symptoms and it will pass. Now, I don't really do anything. I drink alcohol, coffee (lately) and smoke on occasion. I just moderate it with lots of herbal tea and other fluids with no sugar when I'm done with all the debauchery. Besides cranberry in almost any form, pomegranate is also know to have healing properties. Yogurt too. W -- Life is 440 horsepower in a 2-cylinder engine. -Henry Miller
Re: [QUAD-L] uti's/mitrofanoff
In a message dated 2/17/2007 1:18:20 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I had the mitrofinoff 15 years ago this year (wow its been that long since my injury). Those first few years were riddled with infections and lots of incontinence. They have decreased significantly. I went through a lot of different ways to combat all the problems including boosting my immune system and naturopathic stuff- actually going to the naturopath and doing what they told me to do. I don't know exactly why things are better for me now. Maybe my body just needed time to acclimate...? I have not had an infection for over a year and back a few years ago, when I would be symptomatic, nothing would show up on the culture but I would still take the antibiotics to help with the symptoms.. I have lately learned to wait it out when I start having symptoms and it will pass. Now, I don't really do anything. I drink alcohol, coffee (lately) and smoke on occasion. I just moderate it with lots of herbal tea and other fluids with no sugar when I'm done with all the debauchery. Besides cranberry in almost any form, pomegranate is also know to have healing properties. Yogurt too. W
Re: [QUAD-L] uti's
On Feb 16, 2007, at 1:36 AM, [EMAIL PROTECTED] wrote: Have others had blood in their urine from a UTI? Is that normal with bladder stones to have bleeding ? i have had bladder stones removed surgically on three separate occassions. blood is a normal symptom of UTI's and/or stones. i don't usually have blood from a UTI but i did when i had stones. so don't be too alarmed -- just get it checked out soon! jessica
Re: [QUAD-L] uti's/mitrofanoff
On Feb 15, 2007, at 6:26 PM, [EMAIL PROTECTED] wrote: How many UTI's do the rest of you get? i'd say i get a UTI at least once every 2 months, but probably more frequently than that on average. i had the mitrofanoff procedure a couple years ago, hoping that if i catheterized more often i would eliminate infections. unfortunately this wasn't quite the case. i may get them slightly less frequently but it's not a huge change. anyone else had the mitrofanoff? for those who don't know what it is: http:// en.wikipedia.org/wiki/Mitrofanoff_appendicovesicostomy jessica
Re: [QUAD-L] uti's/mitrofanoff
Jessica, in the last two years I have had 2 UTI's. Prior to that I hadn't had any in a good 10 years. Most UTI's are from bugs that can be found in stool. I read that several years ago and after multiple UTI's every year I became extreme with hygiene. I was always good with hygiene but now I go over-the-top somewhat. Changing sheets and washing more frequently can help prevent a UTI's. Also being careful to keep the catheter sterile when changing it. Dan T. Jessica Ann Gordon [EMAIL PROTECTED] wrote: On Feb 15, 2007, at 6:26 PM, [EMAIL PROTECTED] wrote: How many UTI's do the rest of you get? i'd say i get a UTI at least once every 2 months, but probably more frequently than that on average. i had the mitrofanoff procedure a couple years ago, hoping that if i catheterized more often i would eliminate infections. unfortunately this wasn't quite the case. i may get them slightly less frequently but it's not a huge change. anyone else had the mitrofanoff? for those who don't know what it is: http://en.wikipedia.org/wiki/Mitrofanoff_appendicovesicostomy jessica
Re: [QUAD-L] uti's
When I get at UTI the urine turns very dark but does not get bloody. Stones can cause bleeding as they can scrape and tear the tissue. Dan T. Jessica Ann Gordon [EMAIL PROTECTED] wrote: On Feb 16, 2007, at 1:36 AM, [EMAIL PROTECTED] wrote: Have others had blood in their urine from a UTI? Is that normal with bladder stones to have bleeding ? i have had bladder stones removed surgically on three separate occassions. blood is a normal symptom of UTI's and/or stones. i don't usually have blood from a UTI but i did when i had stones. so don't be too alarmed -- just get it checked out soon! jessica
Re: [QUAD-L] uti's
I get a UTI about once or twice a year. As long as we deal with catheters we will get UTI's. I use a condom catheter but I still have to check the residual in my bladder every month to six weeks. Often I have an infection that would be critical to normal folks. I think most of us build up a tolerance to UTI's untill they are pretty bad. You have to calculate a balance between a tolerance to bugs and becoming immune to anti biotics. I'm open to listening to anyone's news on the subject. I heard there was work on a vaccine for certain UTI's. That was years ago and frankly, I haven't been to see my uro in about 5 years. I just keep anti biotics (cipro bactrim DS) on hand. I have a perpetual refill with his DA. I'd call him if I couldn't clear it up. Sometimes I do wonder if I'm septic but since I can't be sure without testing, I won't know when I'm in end stage and with any luck, I won't know I should have died. I always seem to be pretty good untill they say I'm in an awful state and should have died yesterday. I think some people die just because they are told they are going to. I've been told I'm circling the drain since the day I was run over. Maybe I'm too stubborn to stop breathing(or too stupid). But I digress. I think a good doctor would try to keep your infection at a mild roar and hope you build a tolerance to the infection before you build an immunity to the treatments available. john C-5 31 years post -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Thu, 15 Feb 2007 6:26 PM Subject: Re: [QUAD-L] uti's Hi Kathy, So sorry that you are feeling so horrible Kathy. I do have UTI's with my ostomy, I don't know if I have three per year as I don't really keep track, which I should. They do make you feel horrible at first until you get the proper medication. I always have it checked when the smell really changes, a lot more sedimentation than normal or am getting a lot of spasms. They usually always do a culture with me, so it takes longer. My visiting nurse tries to come by quickly, when I e-mail her or call her. I'm glad I don't have to go to the doctor to get cultures for my lungs or urinary. My lung doctor likes to see me, which is very difficult sometimes as I don't have transportation immediately, just when my best friend is off work, which he doesn't seem to understand. I knew they have doctors to come to your home. I need to find out if my insurance will cover which I really doubt. I hope you feel better quickly. I know we always take a chance when we go out among a lot of people to get viruses or colds, but I guess I don't let that stop me. I like to get out as much as I can. Get well soon as my friend. Dana How many UTI's do the rest of you get? Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.
RE: [QUAD-L] uti's and reusing catheters
I use my catheters until it is obvious that they need a final burial. :-) I have a small microwave in my bedroom, and I use a rubber 14 French, so before each use. They are boiled for five minutes. Any bags that we use are bleached twice a week, and I insist that anyone doing my catheterization is using gloves. My catheters usually last for a month. Not only do we bleach the inside of the bag, we bleach the outside too, so there is minimal odor. As far as UTIs go, I have been so fortunate. Perhaps once a year my urine smells or looks funny, and if it has not cleaned up within a day or two, I'll get a urine sample and take it to the lab. As I mentioned before, the only serious UTI I had was obtained in the hospital. Just fancy that! We are just like anyone else when it comes to being susceptible to infections. There is a great variation in our susceptibility, and if we look back on our lives before SCI, we probably had the same type of susceptibility to infections. I.e.: we very seldom caught colds, or we always got everyone's cold et cetera. I hate getting a cold, especially when it settles in my chest, and the subsequent quad coughs and gunk cleaning that follows. :-( even though I am exposed to many children's colds and coughs, I am fortunate that that my resistance remains high. I am outside a great deal, and luckily even in winter, I can still be outside. Reno is a very high, sunny day place. So even when it is only 35° out, I am able to go out on my back deck, which is sheltered from most of the wind. The thermometer on the siding will often register 100°, even though the air temperature is actually only 40 or 50. I really feel that being outdoors has a great deal to do with my being so very healthy. Joan, C4 quad 1990 _ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, February 16, 2007 1:20 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] uti's I get a UTI about once or twice a year. As long as we deal with catheters we will get UTI's. I use a condom catheter but I still have to check the residual in my bladder every month to six weeks. Often I have an infection that would be critical to normal folks. I think most of us build up a tolerance to UTI's untill they are pretty bad. You have to calculate a balance between a tolerance to bugs and becoming immune to anti biotics. I'm open to listening to anyone's news on the subject. I heard there was work on a vaccine for certain UTI's. That was years ago and frankly, I haven't been to see my uro in about 5 years. I just keep anti biotics (cipro bactrim DS) on hand. I have a perpetual refill with his DA. I'd call him if I couldn't clear it up. Sometimes I do wonder if I'm septic but since I can't be sure without testing, I won't know when I'm in end stage and with any luck, I won't know I should have died. I always seem to be pretty good untill they say I'm in an awful state and should have died yesterday. I think some people die just because they are told they are going to. I've been told I'm circling the drain since the day I was run over. Maybe I'm too stubborn to stop breathing(or too stupid). But I digress. I think a good doctor would try to keep your infection at a mild roar and hope you build a tolerance to the infection before you build an immunity to the treatments available. john C-5 31 years post -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Thu, 15 Feb 2007 6:26 PM Subject: Re: [QUAD-L] uti's Hi Kathy, So sorry that you are feeling so horrible Kathy. I do have UTI's with my ostomy, I don't know if I have three per year as I don't really keep track, which I should. They do make you feel horrible at first until you get the proper medication. I always have it checked when the smell really changes, a lot more sedimentation than normal or am getting a lot of spasms. They usually always do a culture with me, so it takes longer. My visiting nurse tries to come by quickly, when I e-mail her or call her. I'm glad I don't have to go to the doctor to get cultures for my lungs or urinary. My lung doctor likes to see me, which is very difficult sometimes as I don't have transportation immediately, just when my best friend is off work, which he doesn't seem to understand. I knew they have doctors to come to your home. I need to find out if my insurance will cover which I really doubt. I hope you feel better quickly. I know we always take a chance when we go out among a lot of people to get viruses or colds, but I guess I don't let that stop me. I like to get out as much as I can. Get well soon as my friend. Dana How many UTI's do the rest of you get? _ size=2 width=100% align=center http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht tp%3A%2F%2Fwww%2Eaol%2Ecom%2Fnewaol Check out the new AOL. Most comprehensive set of free safety and security tools, free access
[QUAD-L] uti's
Hi Dana and others, I am glad that you don't have many UTI . After all the talk from the group about kidney this and that I was feeling fortunate that I didn't have much problems. On Sunday I started feeling a little rough and I just thought it was due to the fact that I had gotten out several times last week going to doctor appointments and Walmart and lack of rest and my pain level is up. Monday I started having pain on my left side and down low. That night My urine had turned red with blood. Now I am taking all those antibiotics that it takes to get rid of it, but they really make me feel yuck. At least spending time in bed lets me catch up on some reading. Kathy
Re: [QUAD-L] uti's
Hi Cathy.some types of UTI's can cause bleeing in urine, I was having a lot of bleeding and the doctors ran a CT scan and found that I had a golf ball size bladder stoneI just had it removed on Jan. 29th, and go for a follow up check on Monday. This was my 1st stone in 9 years post. Just letting you know in case it don't clear up, good luck- hope ya get better soon. Dan [EMAIL PROTECTED] wrote: Hi Dana and others, I am glad that you don't have many UTI . After all the talk from the group about kidney this and that I was feeling fortunate that I didn't have much problems. On Sunday I started feeling a little rough and I just thought it was due to the fact that I had gotten out several times last week going to doctor appointments and Walmart and lack of rest and my pain level is up. Monday I started having pain on my left side and down low. That night My urine had turned red with blood. Now I am taking all those antibiotics that it takes to get rid of it, but they really make me feel yuck. At least spending time in bed lets me catch up on some reading. Kathy
Re: [QUAD-L] uti's
Hi Kathy, So sorry that you are feeling so horrible Kathy. I do have UTI's with my ostomy, I don't know if I have three per year as I don't really keep track, which I should. They do make you feel horrible at first until you get the proper medication. I always have it checked when the smell really changes, a lot more sedimentation than normal or am getting a lot of spasms. They usually always do a culture with me, so it takes longer. My visiting nurse tries to come by quickly, when I e-mail her or call her. I'm glad I don't have to go to the doctor to get cultures for my lungs or urinary. My lung doctor likes to see me, which is very difficult sometimes as I don't have transportation immediately, just when my best friend is off work, which he doesn't seem to understand. I knew they have doctors to come to your home. I need to find out if my insurance will cover which I really doubt. I hope you feel better quickly. I know we always take a chance when we go out among a lot of people to get viruses or colds, but I guess I don't let that stop me. I like to get out as much as I can. Get well soon as my friend. Dana How many UTI's do the rest of you get?
Re: [QUAD-L] uti's
Hi Kathy, After I read this e-mail, I remembered that the reason they tested me, in 85, when I was diagnosed with bladder cancer, was because I had blood in my urine. I don't want to alarm you, but it might be wise to talk to a urologist. I don't know if others have ever had blood from a urinary tract infection. I had not. Have others had blood in their urine from a UTI? Is that normal with bladder stones to have bleeding ? Just wondering. Dana In a message dated 2/15/2007 5:13:40 P.M. Central Standard Time, [EMAIL PROTECTED] writes: Hi Cathy.some types of UTI's can cause bleeing in urine, I was having a lot of bleeding and the doctors ran a CT scan and found that I had a golf ball size bladder stoneI just had it removed on in is Jan. 29th, and go for a follow up check on Monday. This was my 1st stone in 9 years post. Just letting you know in case it don't clear up, good luck- hope ya get better soon. Dan [EMAIL PROTECTED] wrote: Hi Dana and others, I am glad that you don't have many UTI . After all the talk from the group about kidney this and that I was feeling fortunate that I didn't have much problems. On Sunday I started feeling a little rough and I just thought it was due to the fact that I had gotten out several times last week going to doctor appointments and Walmart and lack of rest and my pain level is up. Monday I started having pain on my left side and down low. That night My urine had turned red with blood. Now I am taking all those antibiotics that it takes to get rid of it, but they really make me feel yuck. At least spending time in bed lets me catch up on some reading. Kathy
Re: [QUAD-L] uti's
Hi Steph, Are you in a nursing home? How is it there, do you get good care? Do you ever get out and go places, my worst fear is ill end up in a nursing home. Talking about uti's I had a lot of trouble when I was getting straight cathed every 4 hrs, ive had a indwelling for several months with no problems. Silas - Original Message - From: S. Dial To: quad-list@eskimo.com Sent: Thursday, February 02, 2006 5:35 PM Subject: Re: [QUAD-L] uti's When I lived at home I rarely got infections. I believe it had a lot to do with keeping the bags properly cleansed, too. At home my caretaker would rinse out my bags with hot water then half fill them with aequal mix of white vineagar and water then hang them over a towel rod in a way where the connector end came in touch with nothing - I stayed UTI free for years. Here when they do rinse it out it's not always throughly or with hot water and they're required to put them in plastic bags so I keep a steady UTI! I've put up written instructions, I've talked and tried to make them understand but it's hardbecause some care, some don't. Steph
[QUAD-L] uti's
I have also had severe trouble with bad uti's the past few years, My new family doctor just told me I have 3 types of uti infection again this evening-- pseudomonas and endococca something another type i forgot the name. He is putting me on macrobid and levequin now.I just got out of the hospital in October for a pseudomonas utithat was my 2nd time in hospital to get IV drugs for that type of uti. I'm afraid they keep giving me to many repeated anti-biotics. Does any one know what options a person having an indwelling supra-pubic has ? My urologist who told me to get this supra-pubic now say's he don't have time for all the repeated uti's and to see my family doctor about uti's. I take cranberry capsules regularly and try d-mannose at times also vitamin c. but still can't keep these bad uti's away. Thanks T.C. for the ( Magnet info ) I'll look into trying them when I can get them. Dan - C-6 8.5 yrs. Post
Re: [QUAD-L] uti's
Well I can tell you what I did that has stopped mine for 8 months now. When I change bags, I now clean the connector inside out with alcohol. It didn't dawn on me to do that before. My doc haven't thought of it either. KK
Re: [QUAD-L] uti's
In a message dated 2/2/2006 6:08:17 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Well I can tell you what I did that has stopped mine for 8 months now. When I change bags, I now clean the connector inside out with alcohol. It didn't dawn on me to do that before. My doc haven't thought of it either. We do this too, also after the night bag is drained and flushed we twist an alcohol pad w/wrapping on it so nothing can contaminate thru the day.
Re: [QUAD-L] uti's
When I lived at home I rarely got infections. I believe it had a lot to do with keeping the bags properly cleansed, too. At home my caretaker would rinse out my bags with hot water then half fill them with aequal mix of white vineagar and water then hang them over a towel rod in a way where the connector end came in touch with nothing - I stayed UTI free for years. Here when they do rinse it out it's not always throughly or with hot water and they're required to put them in plastic bags so I keep a steady UTI! I've put up written instructions, I've talked and tried to make them understand but it's hardbecause some care, some don't. Steph
[QUAD-L] Uti's-New syringe
In a message dated 2/9/2005 7:41:39 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Diane, my doc only gave me one syringe to flush and one to fill balloon in the bladder--he said just clean and dry on paper towels and re-use. I asked for more but they said that was enough. How or where do you get clean new ones? Each time you ever need to flush you use a brand new syringe ?? No, we use it for 2 weeks. I have my foley changed twice a month there's a syringe in the kit. Cysto-Care by Mentorirrigation tray with 60cc bulb syringe. (800-328-3863) reorder #UT 1001. Hope this helps you out! Diane
Re: [QUAD-L] UTI'S
I used to have uti's all the time. I had to stop taking or eating anything with vit. c--do take a multi vitamin and as long as I do not go overboard with vit C, can get by with an ocassional BLT or lots of catsup on something.. Anyway, ever since I started putting my used catheters in a bleach/water solution to soak until it was time to boil them, I have had maybe 1-2 uti's over a 2-3 year period. That is with a urinary diversion or bladder reconstruction, what ever you want to call it. I also was on a low anti-biotic dosage for a preventative measure--did not work. Nothing worked until this bleach/water solution was started. Dana [EMAIL PROTECTED] - Original Message - From: Greg [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, February 10, 2005 1:05 PM Subject: Re: [QUAD-L] UTI'S I had UTI's so often and nothing stopped them. And my symptoms were not fun. I finely stared taking a low dose of antibiotics every day. Now I rarely getthem It's been a huge relief. Greg i have uti's all the time. i take cranbarry juice tables ever day. i have one now. i drink a lot o water too. wheelchair warrior
Re: [QUAD-L] UTI'S
Just another thought--- we buy ACETIC ACID professional manufactured and sold in plastic bottles, it is the same as mixing but exact only thing is it will cost more but lasts a long time anyway. Also this and the bottles of sterile water we have bought give the expiration date. Just pour amount needed in cup or bowl.and your bigger bottles of these products can last quite a while. Hope this may be of help.. *Dan*
Re: [QUAD-L] UTI'S
I use a cath install kit. A new syringe each time I change it. It comes with the water, syringe, gloves, etc. Greg - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Wednesday, February 09, 2005 5:40 PM Subject: Re: [QUAD-L] UTI'S Diane, my doc only gave me one syringe to flush and one to fill balloon in the bladder--he said just clean and dry on paper towels and re-use. I asked for more but they said that was enough. How or where do you get clean new ones? Each time you ever need to flush you use a brand new syringe ?? Hope we all become experts on this stuff LOL ! Thanks, Dan
[QUAD-L] UTI'S
I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI
Re: [QUAD-L] UTI'S
I too have tried Macrobid as a preventative. I keep it on hand - have been for 2 yrs or so. Helps the smell of my urine/catheter when it gets skunky smelling at times but doesn't keep my UTIs at bay. No side effects from it for me. I used to irrigate with clorpactin (a chlorine irrigant like clorox!). And renacedin (sp?). But both, I'm told, need to sit in the bladder 5 minutes and I can't hold it. I wasn't getting UTIs then ... just sludge and sand. I went back to vinegar/sterile water to keep my cath clear. No UTIs then. I best try doing that again with my UTI streak since stopping that daily routine. I stopped because my sludge/ sand decreased or diminished. Hubby thinks pushing anything into the bladder isn't cool. But I didn't have UTIs then! Lori ---Original Message--- From: Nichole Rohling Date: 02/09/05 11:42:36 To: QUADLIST Subject: [QUAD-L] UTI'S I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI
Re: [QUAD-L] UTI'S
I know I've mentioned this before but I'll say it again. MANNOSE has worked wonders for me. NO infections for 3 yrs and I used to have them constantly. Here's the literature: http://www.healingtherapies.info/D-Mannose.htm On Feb 9, 2005, at 1:43 PM, Nichole Rohling wrote: I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI peaceandlovingkindness, River www.hodohio.com
Re: [QUAD-L] UTI'S
I NEED TO GET RID OF THE SLUDGE/SAND AND WAS SUCCESSFULL WHILE ON CRIPO. CHANGED CATH AND 4 DAYS LATER - WHITE BUILDUP IN DRAINAGE TUBE. WHAT KIND OF VINEGAR AND WHAT RATIO DID YOU USE? THANKS LORI - Original Message - From: Lori Michaelson To: Quad Sent: Wednesday, February 09, 2005 1:06 PM Subject: Re: [QUAD-L] UTI'S I too have tried Macrobid as a preventative. I keep it on hand - have been for 2 yrs or so. Helps the smell of my urine/catheter when it gets skunky smelling at times but doesn't keep my UTIs at bay. No side effects from it for me. I used to irrigate with clorpactin (a chlorine irrigant like clorox!). And renacedin (sp?). But both, I'm told, need to sit in the bladder 5 minutes and I can't hold it. I wasn't getting UTIs then ... just sludge and sand. I went back to vinegar/sterile water to keep my cath clear. No UTIs then. I best try doing that again with my UTI streak since stopping that daily routine. I stopped because my sludge/ sand decreased or diminished. Hubby thinks pushing anything into the bladder isn't cool. But I didn't have UTIs then! Lori ---Original Message--- From: Nichole Rohling Date: 02/09/05 11:42:36 To: QUADLIST Subject: [QUAD-L] UTI'S I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI
Re: [QUAD-L] UTI'S
i have uti's all the time. i take cranbarry juice tables ever day. i have one now. i drink a lot o water too. wheelchair warriorLori Michaelson [EMAIL PROTECTED] wrote: I too have tried Macrobid as a preventative. I keep it on hand - have been for 2 yrs or so. Helps the smell of my urine/catheter when it gets skunky smelling at times but doesn't keep my UTIs at bay. No side effects from it for me. I used to irrigate with clorpactin (a chlorine irrigant like clorox!). And renacedin (sp?). But both, I'm told, need to sit in the bladder 5 minutes and I can't hold it. I wasn't getting UTIs then ... just sludge and sand. I went back to vinegar/sterile water to keep my cath clear. No UTIs then. I best try doing that again with my UTI streak since stopping that daily routine. I stopped because my sludge/ sand decreased or diminished. Hubby thinks pushing anything into the bladder isn't cool. But I didn't have UTIs then! Lori ---Original Message--- From: Nichole Rohling Date: 02/09/05 11:42:36 To: QUADLIST Subject: [QUAD-L] UTI'S I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] UTI'S
---Original "WHAT KIND OF VINEGAR AND WHAT RATIO DID YOU USE? THANKS LORI" I'll have to get back to you on that. Need to ask my husband and he's resting. I use this huge jug (see through) we have so it'll last awhile. They say 3 days of the sterile solutionsitting around is the max ... but we didn't do that. Mine usually lasted a good while. Lori
Re: [QUAD-L] UTI'S
Diane, my doc only gave me one syringe to flush and one to fill balloon in the bladder--he said just clean and dry on paper towels and re-use. I asked for more but they said that was enough. How or where do you get clean new ones? Each time you ever need to flush you use a brand new syringe ?? Hope we all become experts on this stuff LOL ! Thanks, Dan
Re: [QUAD-L] uti's
DAN I HAD MY FIRST CYSTOSCOPE ON MY BLADDER YESTERDAY AFTER SUFFERING CHILLS AND MY CATHETER STOPPING UP EVERY 3 TO 7 DAYS. I HAD A BLADDER STONE THE DIAMETER OF A QUARTER! DR. BROKE IT UP AND SUCTIONED IT OUT - NO PROBLEM WITH CHILLS TODAY. I ASSUME MY CATHER RUBBED THE STONE WHICH RUBBED MY BLADDER CAUSING PAIN. AN INTERESTING NOTE IS A I HAD A CAT SCAN IN AUGUST THAT ANOTHER DR SAID WAS CLEAR. MY NEW DR SAID IT WAS UNLIKELY THIS STONE FORMED IN 14 WEEKS. JUST A THOUGHT NICKI C5/6 - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Monday, December 13, 2004 3:24 PM Subject: [QUAD-L] uti's Hi all, I have been having bad bladder spasms and pain for three monthsmy urologist tells me I just have to live with itmy present urine culture showed 3 types of bacteria. He told me oh well your always going to have bacteria present with a supra pubic or any indwelling catheters. I can understand that to an extent, but in my 7 years post injury this is the third time I have suffered this much for long periods of time...Have any of you gone to a 2nd urologist for a 2nd opinion??? Dan
Re: [QUAD-L] uti's
Thanks, Nicki..my Urologist said that could be my problem and scheduled a x-ray kidney and bladder scan for next Monday.
Re: [QUAD-L] uti's
Yes, they shoot dye into arm vein...had the ivp twice before in the 8 years I been paralyzed..it's not too bad, but i hate needles lol
Re: [QUAD-L] uti's
An Intravenous Pyelogram (IVP) yip this is the one with the contrast materials or dye. This is not to good for you if you are allergic to shellfish or iodine ... so beware ... also know to make you bit tight chested. QuadMedic - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Sent: Wednesday, December 15, 2004 7:55 PM Subject: Re: [QUAD-L] uti's The test my doctor ordered is an IVP dye and x-ray of bladder and kidneys.I hope it will show is anything is there...I hate needles lol this requires a shot of dye in veins lol Dan
Re: [QUAD-L] uti's
If it's for kidneys and bladder it will be give with a drip (IV) if its just bladder then they can do it through cath. QuadMedic - Original Message - From: Liz To: [EMAIL PROTECTED] Sent: Wednesday, December 15, 2004 8:15 PM Subject: Re: [QUAD-L] uti's I don't think you get a shot it goes in thru the bladder the dye bring a sucking candy it makes you nauseous - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Sent: Wednesday, December 15, 2004 12:55 PM Subject: Re: [QUAD-L] uti's The test my doctor ordered is an IVP dye and x-ray of bladder and kidneys.I hope it will show is anything is there...I hate needles lol this requires a shot of dye in veins lol Dan
Re: [QUAD-L] uti's
No, the x-ray department injects the die into my arm, then the dye goes into kidneys and bladder and is supposed to show up on the x-rays..this is my 3rd time in about 8 years, the other 2 times all was fine. called ivp test.
Re: [QUAD-L] uti's
Hi Dan, Just a thought, but if you happen to be allergic to seafood you'll want to tell the docs to use the 'white' dye and not the 'red' dye. With Love, CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA [EMAIL PROTECTED] wrote: The test my doctor ordered is an IVP dye and x-ray of bladder and kidneys.I hope it will show is anything is there...I hate needles lol this requires a shot of dye in veins lol Dan
Re: [QUAD-L] uti's
The test my doctor ordered is an IVP dye and x-ray of bladder and kidneys.I hope it will show is anything is there...I hate needles lol this requires a shot of dye in veins lol Dan
Re: [QUAD-L] uti's
i've been researching this morning and read that if contrast is used in a cat scan bladder stones won't show up. they used contrast on me. an x-ray should show it. good luck - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Sent: Wednesday, December 15, 2004 11:18 AM Subject: Re: [QUAD-L] uti's Thanks, Nicki..my Urologist said that could be my problem and scheduled a x-ray kidney and bladder scan for next Monday.
Re: [QUAD-L] uti's
I don't think you get a shot it goes in thru the bladder the dye bring a sucking candy it makes you nauseous - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Sent: Wednesday, December 15, 2004 12:55 PM Subject: Re: [QUAD-L] uti's The test my doctor ordered is an IVP dye and x-ray of bladder and kidneys.I hope it will show is anything is there...I hate needles lol this requires a shot of dye in veins lol Dan
Re: [QUAD-L] uti's
I've been on oxybut--otherwise known as Ditropan, since I was in rehab. I take a small amount-- 1 5mg, once a day. Used to take it twice a day, but was able to get down to one a day. I have no idea if it even helps anymore. Its a bladder relaxer. take care, Dana and ? [EMAIL PROTECTED] - Original Message - From: B. Kimberlin [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Monday, December 13, 2004 4:10 PM Subject: Re: [QUAD-L] uti's Dan, I have had similar experiences with urologists, but I found when I started taking a very small quantity of Oxybutynin that this relieve the majority of my pain. You may want to talk to your urologists about this. Additionally, you may want to, if you already haven't, check into getting a sonogram. The only other time I have had bladder pain which lasted for a long time I had bladder stones. Good luck with your problem and if this urologists doesn't give you any better answers than you will have to learn to live with it, then I would agree you definitely need a second opinion. Just my two cents. Billy [EMAIL PROTECTED] wrote: Hi all, I have been having bad bladder spasms and pain for three monthsmy urologist tells me I just have to live with itmy present urine culture showed 3 types of bacteria. He told me oh well your always going to have bacteria present with a supra pubic or any indwelling catheters. I can understand that to an extent, but in my 7 years post injury this is the third time I have suffered this much for long periods of time...Have any of you gone to a 2nd urologist for a 2nd opinion??? Dan - Do you Yahoo!? Yahoo! Mail - 250MB free storage. Do more. Manage less.
[QUAD-L] uti's
Hi all, I have been having bad bladder spasms and pain for three monthsmy urologist tells me I just have to live with itmy present urine culture showed 3 types of bacteria. He told me oh well your always going to have bacteria present with a supra pubic or any indwelling catheters. I can understand that to an extent, but in my 7 years post injury this is the third time I have suffered this much for long periods of time...Have any of you gone to a 2nd urologist for a 2nd opinion??? Dan
Re: [QUAD-L] uti's
Dan, I am a c5/6 incomplete, 4 1/2 years post quad. Every time I would need to be catheterized or if I had a indwelling catheter I would end up with a UTI 100% of the time. I would be put on antibiotics and thenmy bowels would get real loose and I would have nothing butmesses. I use acondom catheter now and I have not had a UTI for approximately 3 1/2 years. Anytime I even think I'm having the start of a UTI, I try to drink at least 90 ounces of water as fast as I can and then I go to bed and urinate all night. When I wake up I am UTI symptom-free. Jim
Re: [QUAD-L] uti's
Hey Jim, Do you not have to be strate cathed at all with the condom cath? What type of condom cath do you use? Silas - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Sent: Monday, December 13, 2004 2:00 PM Subject: Re: [QUAD-L] uti's Dan, I am a c5/6 incomplete, 4 1/2 years post quad. Every time I would need to be catheterized or if I had a indwelling catheter I would end up with a UTI 100% of the time. I would be put on antibiotics and thenmy bowels would get real loose and I would have nothing butmesses. I use acondom catheter now and I have not had a UTI for approximately 3 1/2 years. Anytime I even think I'm having the start of a UTI, I try to drink at least 90 ounces of water as fast as I can and then I go to bed and urinate all night. When I wake up I am UTI symptom-free. Jim
Re: [QUAD-L] uti's
2nd opinions are smart especially when a dr is clueless. Sam
