Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

legroups.com > <mailto:cmlhope-unsubscr...@googlegroups.com> > For more options, visit this group at http://groups.google.com/group/CMLHope > <http://groups.google.com/group/CMLHope> > --- > You received this message because you are subscribed to the Google Groups >

Re: [CMLHope] Not getting any mail

g. > > greenie > > > -Original Message- > From: Joyce Mesnarich > To: cmlhope > Sent: Mon, Sep 16, 2019 3:08 pm > Subject: Re: [CMLHope] Not getting any mail > > Hi Jeanie. > I think we all have just become quiet on this site. I have received no mail

Re: [CMLHope] Not getting any mail

Hi Jeanie. I think we all have just become quiet on this site. I have received no mail either. My husband is the CML patient. I am his caregiver. He is presently taking Bosulif. I don’t know anything about Ponatinib, so I can’t help you. But I, too, would be skeptical of getting meds from

Re: [CMLHope] Breathing Difficulties [Dasatinib]

Gopalsamy, I suggest you make an appointment with your CML specialist right now. My husband had the same experience with Dasatinib. Turned out it had caused fluid around his heart. Please get this checked out immediately. Joyce in Southern Illinois (USA) > On Jul 28, 2018, at

Re: [CMLHope] Siggy

Your daughter is a very gifted artist. Great job. Thanks for sharing. Joyce in Southern Illinois > On Jul 28, 2018, at 12:24 PM, 'Jeanie' via CMLHope > wrote: > > My granddaughter is an artist. This is her rendition of Siggy as we call him. > > Have a great Evening everyone. >

Re: [CMLHope] Bosulif and high blood pressure

Marty, Very good article on Bosulif, high blood pressure and other side effects. Thank you. You are a good searcher and we appreciate the time you take to find this type of information. You are filling the void left by Mommy Lottie. Joyce in Southern Illinois > On Jul 26, 2018, at

Re: [CMLHope] Siegfried

Very pretty doggie. I’m sure he brings you hours of enjoyment. Joyce in Southern Illinois > On Jul 27, 2018, at 11:05 AM, 'Jeanie' via CMLHope > wrote: > > > > > > > My Motto: > Faith and Pills > With Love > Jeanie > free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started

Re: [CMLHope] Thyroid dosage?

; Great drug! I have been taking it for many, many years. What dose is he on? >> >> 18's, >> >> Marty >> >> On Tue, Jul 17, 2018 at 3:30 PM, Joyce Mesnarich > <mailto:joy...@htc.net>> wrote: >> Jeanie, >> My husband has had hypothyroid

Re: [CMLHope] IMG_6459.JPG

They are beautiful. Joyce in Southern Illinois > On Jul 19, 2018, at 6:46 PM, sherri swanson > wrote: > > I love the Pink Lillie's! > > Sherri > > On Thu, Jul 19, 2018 at 3:55 PM, Marty Gartenberg > wrote: > Pink Lilies Close as I can get... > 18's,

Re: [CMLHope] Sudden problem after twenty years.

I think he is on 150 micrograms. Joyce in Southern Illinois > On Jul 17, 2018, at 2:39 PM, Marty Gartenberg wrote: > > Great drug! I have been taking it for many, many years. What dose is he on? > > 18's, > > Marty > > On Tue, Jul 17, 2018

Re: [CMLHope] Re: Sudden problem after twenty years.

Jeanie, My husband has had hypothyroidism for years…..before he got CML. It never caused him any problems. It was diagnosed at a regular office visit with a blood test. He takes levothyroxin and has regular blood tests. Joyce in Southern Illinois > On Jul 17, 2018, at 10:57 AM,

Re: [CMLHope] Trip to cemetery yest

Jeanie, I have been following you on your great trip to the Smoky Mountains. Looks like you have really enjoyed yourself. Glad you got to visit with your sister as well.So happy that you are well enough to travel. It adds so much to our lives. Joyce in Southern Illinois > On

Re: [CMLHope] New Canary hatchings

Marty, I love canaries. But I have to say that your new babies are ugly. Sorry about that harsh statement, but all baby birds are ugly. I would like to see another picture when they have feathers. Through my life I have had about 5 canaries but they always got sick and died. I think that

Re: [CMLHope]

Amazingly entertaining. Thank you Marty. I haven’t posted for awhile. My hubby just had a visit with Dr Talpaz in Ann Arbor and things are going well. Dr Talpaz continues to “encourage” him to lose weight. He says CML will not kill him but his weight could. I do what I can. I continue to

Re: [CMLHope] The Daffodil principal

Marty, Beautiful pictures and a good boot in the butt that we all need to get out of a rut and DO something. Love the Daffodil principle. Joyce in Southern Illinois > On Feb 26, 2018, at 8:20 PM, Marty Gartenberg wrote: > > Just sit back and relax when your day

Re: [CMLHope] My annual appreciation day

gh your surgery and complications and get to be >> back home with your hubbie...glad that your daughters were able to help out >> as well!! Glad you are back here...take good care and keep on healing >> 18s and care, >> Beth >> >> >> -Origina

Re: [CMLHope] Hey there

ove same > of same foods. She lived to cook and freeze for later. > More later > > > > On Feb 21, 2018, at 12:11 AM, Joyce Mesnarich <joy...@htc.net > <mailto:joy...@htc.net>> wrote: > >> Jeanie, >> I am doing very well since I got home fro

Re: [CMLHope] Hey there

;> >> When your feeling lousy why don't you watch that slide show again? >> >> You know that everyone also has their own set of problems but it is in the >> way that they handle them. >> >> Glad that your both feeling better. This is for you...  >> >>

Re: [CMLHope] Joyce

Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 > New Doctor--Dr Martine Extramine > 0 CBL. ABL > > On Feb 17, 2018, at 12:09 AM, Joyce Mesnarich <joy...@htc.net > <mailto:joy...@htc.net>> wrote: > >> Beautiful slideshow, Mar

Re: [CMLHope] My annual appreciation day

Beautiful slideshow, Marty. Thank you. Have not been on this site for 3 weeks. Went to ER with gallbladder attack and they did a CAT scan and noticed that my old hiatal hernia that has been bugging me for some 20 years had twisted, and evidently that is a very bad thing, because they put me

Re: [CMLHope] FABULOUS VIDEO OF THE YEAR !

Thanks Marty. That was beautiful. Need to watch it twice: Once to read the words and once to enjoy the beautiful pictures. Joyce in Southern Illinois > On Dec 3, 2017, at 11:09 AM, Marty Gartenberg wrote: > > I am sending this to all of my friends, relatives,

Re: [CMLHope] My Mushroom and Barley Soup

ehind you, your mouth starts to water.螺 > > Until then keep those bones frozen. > > See i do have a sense of humor, but in structured ways. > > On Tue, Nov 28, 2017 at 2:07 AM, Joyce Mesnarich <joy...@htc.net > <mailto:joy...@htc.net>> wrote: > Thank you

Re: [CMLHope] My Mushroom and Barley Soup

other outlet, and it doesn't have to be the Leasa brand. I > don't know if there are any Publix supermarkets around you? But they sell it. > > Also Leasa vegetable mix > > > ENJOY! > > 18's, > > Marty > > > > > > > > > On Mon, No

Re: [CMLHope] Hospital for Thanksgiving.

Richard, So sorry to hear of your hospitalization. Hopefully the infection will soon subside and you will be feeling better. I fear the long term effects of these powerful drugs, too. But they have lengthened the lives of many people. Praying that your doctors find the right treatment for

Re: [CMLHope] My Mushroom and Barley Soup

Thank you so much, Marty. I am going to make this as soon as I can get all the ingredients together. I have never seen a package of soup greens. Is that something that you find readily in your stores? Are there any actual greens in it? Or just onion, turnip (did you mean turnip greens or

Re: [CMLHope] Well wishes

Marty, so sorry to hear that you have been plunked down in the hospital. But you will beat those bad germs and be back out quickly. I am praying for you. God bless and keep you. Joyce in Southern Illinois > On Nov 25, 2017, at 1:38 PM, 'Jeanie' via CMLHope

Re: [CMLHope] Well wishes

I also want to wish everyone a Happy Thanksgiving. We all have a lot to be thankful for. My husband is doing well on bosulif at 200 mg a day. Just was to see Dr Talpaz and he says CML will not kill him. But is hollering at him about his weight. So hard to lose weight when you are older and

Re: [CMLHope] Words OF WISDOM.

Thank you Marty. Beautiful pictures and thoughts that we should all keep in our minds daily. Joyce in Southern IL > On Sep 3, 2017, at 6:58 AM, 'Jeanie' via CMLHope > wrote: > > Very touching. Love ya! > > My Motto: > Faith and Pills > With Love > 18's

Re: [CMLHope]

I have been missing hearing from members of the group also. Marty, I am so happy to hear that you and your sweetie were able to take a cruise and celebrate your anniversary. Greenie, who knows what happened to your name on Zavie’s list. Strange things happen in cyberspace. Hope all is well

Re: [CMLHope] Fun thing to do

Good idea Jeannie. My husband is the CML patient. He also was a smoker for many years but had quit about 20 years before diagnosis. We owned a petroleum delivery company. And in that capacity he would ingest the benzene fumes all day…..for 33 years. This is what we think caused his CML.

Re: [CMLHope] Re: Fw: Jingle Bells (1940s style)

Thanks so much Greenie. It was exciting and beautiful. So much better than seeing fights and shootouts at the mall. Joyce in Southern IL > On Dec 26, 2016, at 10:55 PM, Richard H wrote: > > Thanks Greenie!! I Enjoyed the gift. > > On Monday, December

Re: [CMLHope] My sister, me and my older brother

What an adorable picture, Marty! Are your siblings still with us? I am so happy to see that you are well enough to again post to our beloved site. We have all grown to love each other as family. I am very sorry to hear of your last escapade which landed you in the hospital. That sounds

Re: [CMLHope] Insurance

I don’t know what type of insurance you have at present, but I don’t think you should fear Medicare.  We have had very good luck with Medicare and we have had a lot of claims.  It is very simple.  Bills go to Medicare; they approve them and send the remainder of the bill to your Medicare

Re: [CMLHope] Medicare and presc drugs cost

Penny, My husband (the CML warrior) has been on Medicare for 13 years and has Part D coverage. Once he gets through the donut hole and into catastrophic coverage, the first month, his part of payment is around $200 a month. He does have to pay the deductible for Part D and a bit more that I

Re: [CMLHope] Just checking in

Norm (Lucky), I enjoyed your interesting letter. I have been monitoring this site since 2009 when my husband (not an internet enthusiast) was diagnosed with CML. I don’t remember ever seeing your story before. You certainly have had a blessed life. Sorry to hear of the loss of Mr Hans.

Re: [CMLHope] How is everyone

Oh, Marty, it is so good to “hear your voice”. Please continue to heal and let us know how you are doing. God bless and keep you. Joyce in IL > On Sep 10, 2016, at 2:11 PM, Marty Gartenberg wrote: > > Jeanie > > sorry that your sick. fell and broke my neck and

Re: [CMLHope] Haven't gotten any e-mail notifications

5 > Doctor Balducci Moffitt Cancer Center > >> On Sep 6, 2016, at 2:24 PM, Joyce Mesnarich <joy...@htc.net> wrote: >> >> Jeanie, >> So sorry to hear of your pancreas problem. I guess we learn something new >> every day. I never knew the pancre

Re: [CMLHope] Haven't gotten any e-mail notifications

Sherri, What part of IL are you from? I am also in “humid IL”. Haha. We live across the river from St Louis, MO, southern IL. So glad you got a dog from a shelter. Our granddaughter has had 2 very sweet dogs from shelters, so I understand what you mean by trying to learn each other. It is

Re: [CMLHope] Haven't gotten any e-mail notifications

Jeanie, So sorry to hear of your pancreas problem. I guess we learn something new every day. I never knew the pancreas had anything to do with fat. I thought it handled sugar. Whatever, we have to do what the doctors tell us. As time goes on, I fear that they will find out that most of the

Re: [CMLHope] Haven't gotten any e-mail notifications

I am doing fine. My hubby who is the CML patient is doing well. Also noticed nothing in my email from the group. How are you Jeanie, Beth and, oh my goodness, I am so concerned about Marty. Our numbers seem to have dwindled. I just remembered I must call Dr Talpaz office to get the results

Re: [CMLHope] Tasigna and Lipitor

Peter, This is like comparing apples and oranges, but when my husband was on Sprycel his primary physician prescribed lipitor. Next trip he made to Dr Talpaz (CML specialist) he was taken off lipitor and put on crestor. He didn’t have any problems with either….until he had pleural effusion.

Re: [CMLHope] Fatigue side effect testing nilotinib

Hi Jeanie, You are still connected. LOL Things have been rather quiet lately in the group. Maybe we are all too busy trying to keep cool. I guess the biggest bug-a-boo in my life right now is the tall corn growing in the field in front of my house (not our crop) and sealing us of from the

Re: [CMLHope] About John Hopkins Cancer Update

Greenie, Glad to know Grace is home. I’m sure it is hard for her not to go with you. But we have to listen to the doctors. May God grant you his peace and strength at this time. Joyce in IL > On Jun 16, 2016, at 3:52 AM, Myvety2k via CMLHope > wrote: >

Re: [CMLHope] About John Hopkins Cancer Update

Greenie, So sorry to hear about your son. I hope Grace is back at home and recovering. It is very hard to lose a child. You are in my thoughts and prayers. Joyce in IL > On Jun 14, 2016, at 12:05 PM, 'Jeanie' via CMLHope > wrote: > > Thanks Marty, > My

Re: [CMLHope] About John Hopkins Cancer Update

Thanks for keeping us updated, Marty. So sorry to hear you had to make another trip to the hospital. But that’s the best place to be when you need care. Take care of yourself and continue to heal. 18s Joyce in IL > On Jun 13, 2016, at 8:23 PM, Marty Gartenberg

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

Thanks, Marty. That was very entertaining. Joyce in IL > On May 14, 2016, at 11:59 AM, Marty Gartenberg wrote: > > Well, do I actually personify class? I don't know, but maybe this will bring > up your day. Maybe this funny music video will? > > I hope that

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

t better. I love you. > > My Motto: Faith and Pills❤️ > With Jeanie 18,s Chi > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib January 2015 > Dr Balducci Moffitt Cancer Center > >> On M

Re: [CMLHope] Really sick with sore throat and flu. I had my flu shots so

Jeanie, So sorry to hear you have the sore throat and flu. I am getting over it too. We had company who brought the bug with them from the east coast. They come on Monday and I got it on Thursday. Since I have asthma everything I get goes directly into bronchitis or pneumonia I went to the

Re: [CMLHope] Re: Zavie's Zero Club.xls

Jeanie and Richard, I am here and monitoring. I just don’t have anything worth reporting. LOL Unless you want to hear about my exciting senior life. My hubby Wayne goes back to see Dr Talpaz in August. We are hoping for a good PCR report and the supporting blood tests as well. We are

Re: [CMLHope] An update

Suzieq, So sorry to hear of your present situation. But you will be glad that you can care for your Mom in her last months/years. We all have to reach down deep in ourselves to grasp all the strength we can muster at some times in our lives. You are right not to freak out about your .01%

Re: [CMLHope] Dizzy all day

Marty, Sorry to hear of your recent hospitalization…..but very glad to hear that you are doing better now. My husband, the CML warrior in our family has also had Afib which was diagnosed about the same time he was dx with CML, in 2009. His Afib has been controlled with medication for the

Re: [CMLHope] B vitamins, the good and the bad!

Peg, Thank you for this information. I’m sure it will help many. I am so sorry to hear all the problems you are dealing with. You will be in my prayers. I cannot even imagine how you are handling all your issues. But God gives us strength beyond belief. God bless and keep you. Joyce

Re: [CMLHope] Heart valve replacement and TKIs

Perry, My husband is the CML patient but what happens to one of us happens to the other, if you know what I mean. He does not DO internet. He has had to have some lesser surgeries and has been told to go off the TKI for 5 days prior. He also has AFIB and takes a blood thinner, which is kind

Re: [CMLHope] Happy New Year to all

Happy new year to all! Time has been a little scarce for me lately and I have not been online. Sorry to hear that your pain in the side is still with you, Jeanie. My husband has an appt with Dr Talpaz Jan 6 and we are hoping that his PCR has continued to go down…..and maybe, just maybe,

Re: [CMLHope] Test Day

Good to hear from you, Beth. Hubby Wayne is also waiting for BCR results..since Oct 12. We are in Southern IL and are also enjoying the colors of fall. Had a few windy days lately and leaves are leaving the trees in droves. We live along the Mississippi River Bottoms and enjoyed a ride

Re: [CMLHope] Test Day

Susan Z Sorry to hear your counts went up. My husband is also on bosulif since April, 2015. Dr Talpaz started him out on 100mg and in 3 months it was not working. He raised the dosage to 200mg and in the next 3 months time his counts were coming down. Without going to look up the exact

Re: [CMLHope] Re: surgery behind me

Thank you Richard. That means a lot. Joyce in IL On Oct 4, 2015, at 11:05 PM, Richard H wrote: > I have added you to my prayer list. > > Richard H. > > On Sunday, October 4, 2015 at 9:51:45 AM UTC-5, grammie wrote: > Jeanie, glad to hear your blood work was good. I have been off the

[CMLHope] surgery behind me

Thank you Susan Z and all the other warriors on this site for the good wishes. Between my husband and I, we have battled the BIG C 3 times, not counting numerous skin cancers. But life goes on and we meet the demands with the help of God...and pills as Jeanie says. Joyce in IL --

Re: [CMLHope] Re: surgery behind me

; been going through, but you still know about all of the prayers that are > being sent to both of you. > > You just go on just as I do and no matter what you and him do and enjoy your > life. > > Remember what 18's is for. > > Marty > > On Sun, Oct 4, 2015 a

[CMLHope] Re: surgery behind me

Jeanie, glad to hear your blood work was good. I have been off the site for awhile. Just had a mastectomy. Healing in progress. No cancer found in lymph nodes so no chemo or radiation needed! God is indeed good!! I know breast cancer is not the subject of this group, but I have been one

Re: [CMLHope] happy Holidays!!

Mr. Noles, I, too, would like to extend my condolence to you. We always hate to hear of the death of one of our own. I know your heart is heavy. May God grant you healing and peace. Joyce in IL On Sep 18, 2015, at 4:48 PM, Myvety2k via CMLHope wrote: > > > In a message dated

Re: [CMLHope] Fwd: August 2015 - Advances in managing and treating lymphedema

Thank you, Jeanie, for this information. Joyce in IL On Aug 29, 2015, at 1:28 PM, 'Icandoallttc' via CMLHope wrote: > Managing lymphodema > > My Motto: Faith and Pills > Jeanie 18,s > Dx 1/2004. CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel

Re: [CMLHope] Bitter taste in mouth

When my husband was on Gleevec he complained about a metallic taste. But has had no trouble either on Sprycel or bosulif. Joyce in IL On Sep 3, 2015, at 3:31 PM, 'Icandoallttc' via CMLHope wrote: > Just testing > > My Motto: Faith and Pills > Jeanie 18,s > Dx 1/2004. CML

Re: [CMLHope] New results

. 18's, Marty On Mon, Aug 24, 2015 at 8:37 PM, Joyce Mesnarich joy...@htc.net wrote: Dear Beth, I am so sorry to hear of your health experiences. You will be in my prayers. I have always enjoyed reading your posts. Sorry you do not feel like staying in contact and I am sure

Re: [CMLHope] New results

that might work better for me. I miss everyone and send love and 18's to all of you..big group hug!!! Beth -Original Message- From: Joyce Mesnarich joy...@htc.net To: cmlhope cmlhope@googlegroups.com Sent: Sat, Jul 25, 2015 12:35 pm Subject: Re: [CMLHope] New results

Re: [CMLHope] Thanks

, but my oncologist has hinted that he will send me to her should I need to to see her. I use to see Dr. Tallman every 6 months until he left. I could get her name for you if it is an avenue you would like to explore. Let me know. Sherri in IL On Fri, Aug 21, 2015 at 10:35 PM, Joyce

Re: [CMLHope] Thanks

Susieq So sorry to hear about your experiences on FB. I agree: hope is good, but not fasle hope. I certainly hope you don't leave us here on CML Hope. You are a valued member/contributor. What part of MO are you from? We live in Southern IL and are also enjoying the fall-like weather. Do

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

Elizabeth, I noticed that your husband went to St Louis for treatment. Did he see a CML specialist? Where did he go? We live near St Louis but have not been able to find a CML specialist there. We are going to Ann Arbor, MI, to see Dr Talpaz; but it is getting more and more costly. Thanks

[CMLHope] New Results

Susan, Thanks for your reply. It is encouraging to know that you, too, had rising liver numbers and that they subsequently went down. That is what we are hoping and praying for. Hope your BCR/ABL numbers are good. God bless and keep you, Joyce in IL -- -- [CMLHope] A

Re: [CMLHope] New results

people. I hope your husband's liver calms down. I will keep my fingers crossed. 18's Beth -Original Message- From: Joyce Mesnarich joy...@htc.net To: cmlhope cmlhope@googlegroups.com Sent: Fri, Jul 24, 2015 7:50 pm Subject: Re: [CMLHope] New results Jeanie, I know you have been

Re: [CMLHope] Skip

I don't always post, but I check the messages pretty much everyday and have not seen anything from Skip. I was thinking about him, too, and wondering why we have not heard anything from him. Skip, we are missing you. Joyce in IL On Jul 24, 2015, at 1:17 PM, Suzieq wrote: Was just

Re: [CMLHope] New results

alcohol? On Jul 22, 2015 1:43 PM, margood18 via CMLHope cmlhope@googlegroups.com wrote: Joyce, so glad to hear that your husband's PCR is lower and I hope that his liver function will steady. Best wishes to both of you. Marcie -Original Message- From: Joyce Mesnarich joy

Re: [CMLHope] New results

CMLHope cmlhope@googlegroups.com wrote: Joyce, so glad to hear that your husband's PCR is lower and I hope that his liver function will steady. Best wishes to both of you. Marcie -Original Message- From: Joyce Mesnarich joy...@htc.net To: cmlhope cmlhope@googlegroups.com

[CMLHope] New results

Hello everyone. I have not had time to contribute for awhile. But I must let you all know the results of my husband's PCR at his last visit to Dr Talpaz. He was taken off Sprycel due to pleural effusion and we were hoping his undetectable would holdbut it did not. He was subsequently

Re: [CMLHope] Jeans Moffitt visit

Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jun 22, 2015, at 2:06 AM, Joyce Mesnarich joy...@htc.net wrote: Jeanie, So far I have had no side effects from the anti-hormone pills to shrink the tumors. I don't know if they may

Re: [CMLHope] Jeans Moffitt visit

On Mon, Jun 22, 2015 at 2:06 AM, Joyce Mesnarich joy...@htc.net wrote: Jeanie, So far I have had no side effects from the anti-hormone pills to shrink the tumors. I don't know if they may come on after I have taken the meds longer or not. I am to take them for 3 months. I am praying

Re: [CMLHope] Jeans Moffitt visit

positive response in 6 months. Have faith and courage. I am 77. ❤️❤️ Prayers Blessings Jeanie 18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center On Jun 19, 2015, at 11:54 PM, Joyce

Re: [CMLHope] Jeans Moffitt visit

On Fri, Jun 19, 2015 at 11:54 PM, Joyce Mesnarich joy...@htc.net wrote: Jeanie, So happy that your new TKI is working. On July 9 my hubby and I will go to see Dr Talpaz in MI to see if his new TKI, bosulif, is working. In April it was not doing anything and they doubled his dose to 100 mg. We

Re: [CMLHope] Jeans Moffitt visit

, at 11:54 PM, Joyce Mesnarich joy...@htc.net wrote: Jeanie, So happy that your new TKI is working. On July 9 my hubby and I will go to see Dr Talpaz in MI to see if his new TKI, bosulif, is working. In April it was not doing anything and they doubled his dose to 100 mg. We are hoping

Re: [CMLHope] off Sprycel

half years. Cheers John B Sent from my iPad On Jun 9, 2015, at 11:00 PM, Joyce Mesnarich joy...@htc.net wrote: John, When you were on sprycel did you get to PCRU? My husband was on sprycel for 3 years and then, just as you, had to go off because of pleural effusion. He

Re: [CMLHope] off Sprycel

John, When you were on sprycel did you get to PCRU? My husband was on sprycel for 3 years and then, just as you, had to go off because of pleural effusion. He was undetectable for 2 years and lost his PCRU in 2 months. He is now on bosulif.first 100 mg which was not working.then on

Re: [CMLHope] Today's Doctor visit

Richard, So happy to hear your good news!! Joyce in IL On May 27, 2015, at 10:44 PM, Richard H wrote: I know I am and I'm lovin every minute of it. Life is so much more fun when you are winning. Richard H. On Wednesday, May 27, 2015 at 8:37:57 AM UTC-5, wa2yyx wrote:

Re: [CMLHope] A bit of good news today

Sherri, So happy to hear your good news!! Glad you are taking the time to really enjoy it. That makes two bits of good news today: Richard and you. It's a happy day!! Joyce in IL On May 27, 2015, at 2:04 PM, sherri swanson wrote: Hi Everyone! In the mist of all the bad news

Re: [CMLHope] Picture of Marty and Shelly

Marty, It was so nice to see the picture of you and your lovely wife. And you know what? You look very much as I pictured you in my mind. I can see the determination in your eyes. And you hang onto Shelly. She looks like one in a million!! Joyce in IL On May 26, 2015, at 6:48 PM,

Re: [CMLHope] Marty's Post on CML2

Oh, Marty I was so happy to hear you are slowly gaining strength. But then you had to bring up the prostate thing. Did your prostate decide you had not had enough of hospitals and operations? But after what you have been through, this prostate thing should be a breeze. My husband had his

Re: [CMLHope] Checking in/ to all my CML friends

, but close cuz of this group for sure. :-) 18's and No Stress, Susan F. Zimmerman -Original Message- From: Joyce Mesnarich joy...@htc.net To: cmlhope cmlhope@googlegroups.com Sent: Fri, Apr 3, 2015 1:15 am Subject: Re: [CMLHope] Checking in/ to all my CML friends Hi, Susan

Re: [CMLHope] Dual Diagnosis: CLL/ CML

David, The Bible tells us that God will not give us more than we can handle, but I think you are coming close. So sorry you have to deal with two blood problems at the same time. I see you live in Northern Michigan. Have you considered seeing Dr Talpaz in Ann Arbor at the University of

Re: [CMLHope] Today's Test

Richard, So glad to hear your great news about you dropping bcr/abl! I'm sure they will get the hemoglobin thing worked out. Joyce in IL On Apr 2, 2015, at 11:28 PM, Richard H wrote: All my doctors are jumping up and down because bcr/abl dropped from 17.9+% to 1.6+%

Re: [CMLHope] Checking in/ to all my CML friends

dose, and it's working! Why is Wayne on the lowest dose again? I know you've told me, but I forget! (chemo brain?) Many blessings and Happy Easter, Susan F. Zimmerman -Original Message- From: Joyce Mesnarich joy...@htc.net To: CMLHope CMLHope@googlegroups.com Sent: Thu

Re: [CMLHope] Re: U[PDATE FOR MARTY

Oh, Marty, it is so good to hear your voice. We understand your situation and will continue our prayers for you. Rest and heal. God bless and keep you. Joyce in IL On Mar 30, 2015, at 7:54 AM, Marty Gartenberg wrote: Just to let everyone know, I do consider all of you as my

Re: [CMLHope] Today's Test

Richard, Sorry your blood test did not come out favorable. In the 7 years my husband has had CML I have come to the realization that it is a lifetime roller-coaster ride. You and your doctor are on top of things. Better days ahead! Joyce in IL Jeanie, Good luck on your blood tests

[CMLHope] Checking in/ to all my CML friends

Haven't posted for a week or so, but I have been monitoring the site. Sherri, you said it is getting warmer in Northern Illinois and the snow is beginning to melt. I guess you are planning on sending it down to us in Southern Illinois. LOL We will all feel better when it gets warmer and the

Re: [CMLHope] Dr. Druker and Marty

I may have missed a post, but are we sure that Marty indeed got his new kidney? I'm still praying that he did and that things are going well. Joyce in IL On Feb 26, 2015, at 9:28 PM, 'Susan Rosenthal' via CMLHope wrote: Susan: I do not remember meeting you or Sharon. However, I

Re: [CMLHope] Kidney transplant such good news good luck and many prayres to you

Jeanie, From your lips to God's ears.Amen. Joyce in IL On Feb 24, 2015, at 8:19 AM, ICANDOALLTTC via CMLHope wrote: Dear Heavenly Father, Help Marty as he journeys down his path to health. We will keep praying for you Marty, and send you many blessings and much

Re: [CMLHope] Food that interacts with TKI's and other meds

Thank you so much for sharing these information sources with us. We are all wanting to know as much as possible about this ever-changing disease. Joyce in IL On Feb 21, 2015, at 9:52 AM, mariacash...@gmail.com wrote: HELLO!!! This is a very important topic and I believe that most of

Re: [CMLHope] Change from Sprycel to bosulif

for sprycel by now. That's what happened to me. Keep on fighting. Prayers Blessings Jeanie 18's On Feb 14, 2015, at 1:36 AM, Joyce Mesnarich joy...@htc.net wrote: Two years ago my husband had to have 2 pints of blood because of low hemoglobin. He seems to be heading that way again

Re: [CMLHope] Change from Sprycel to bosulif

ponatinib? Does he have heart problems? So far so good for me. This is my 19th day on ponatinib. He could have developed a mutant for sprycel by now. That's what happened to me. Keep on fighting. Prayers Blessings Jeanie 18's  On Feb 14, 2015, at 1:36 AM, Joyce Mesnarich joy

Re: [CMLHope] Good news Jeanie

 On Feb 13, 2015, at 12:48 AM, Joyce Mesnarich joy...@htc.net wrote: Jeanie, You have made my day!! So glad to see your numbers. Does this lower hemoglobin seem to be a fact of life for CMLers? My husband's hemoglobin also is low and he is told to take iron pills (Yuck). Keep on Keepin

Re: [CMLHope] Good news Jeanie

Jeanie, You have made my day!! So glad to see your numbers. Does this lower hemoglobin seem to be a fact of life for CMLers? My husband's hemoglobin also is low and he is told to take iron pills (Yuck). Keep on Keepin' on. Joyce in IL On Feb 12, 2015, at 2:32 PM, 'Icandoallttc' via

Re: [CMLHope] Kidney Transplant

Marty, So glad to hear this great news. Prayers will continue. Beth, you have a gift of being able to say just what I am thinkingin a much better way. Soditto to what Beth said. Joyce in IL On Feb 10, 2015, at 4:45 PM, bkbarney via CMLHope wrote: I am soo happy about

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