Re: [QUAD-L] BP

[greg]

What was the AD from?
> I forgot to mention today was a terrible day. Suffered from a bout
> of A.D. which had my BP at 172/99 only to see that dropped to 60/38
> about an hour later when I got up into the wheelchair. It did
> bounce back, only to drop once again after I ate.
>
> Suffering from A.D. and orthostatic hypotension is a monster. :-)

Re: [QUAD-L] BP

[Quadius]

I forgot to mention today was a terrible day. Suffered from a bout of A.D.
which had my BP at 172/99 only to see that dropped to 60/38 about an hour
later when I got up into the wheelchair. It did bounce back, only to drop
once again after I ate.

Suffering from A.D. and orthostatic hypotension is a monster. :-)

On Sat, Oct 15, 2016 at 10:47 PM, Quadius  wrote:

> Yes Bobbie I have been lower, but I take my blood pressure pretty
> regularly and it gets quite often. I, however, take midodrine as well as
> drink Mountain Dew in order to try to keep it from dipping too low anymore.
> I try to keep mine at around 80/50 or above, but sometimes when I sit up
> after eating or when I first get up, it will dip into the 50s over the 30s.
>
> If you were that low and didn't feel the effects, that could mean that
> your running pretty low most of the time.
>
> I was admitted to the hospital a couple of different times and it wasn't
> until I saw that I hadn't urinated more than 5 mL in four hours that I
> realize how dangerous the low blood pressure can be. They explained to me
> that your organs shut down when the blood pressure gets too low and it can
> cause lasting effects if this happens too often or too much. I ended up
> spending two weeks in the hospital a couple of years ago to see if they
> could determine why my blood pressure fluctuates between extremely high and
> exceedingly low. The specialist decided they would rather it be slightly
> high than too low. Therefore I take quite a bit of midodrine often on.
> Quadius
>
> On Wed, Oct 12, 2016 at 10:40 PM, Bobbie Humphreys <
> bobbiehumphre...@gmail.com> wrote:
>
>> I went to the Doctors today and my BP was 54 over 48
>> Anybody else have low BP?
>> Bobbie
>>
>> "You must fail in order to succeed"
>>
>>
>

Re: [QUAD-L] BP

[Quadius]

Yes Bobbie I have been lower, but I take my blood pressure pretty regularly
and it gets quite often. I, however, take midodrine as well as drink
Mountain Dew in order to try to keep it from dipping too low anymore. I try
to keep mine at around 80/50 or above, but sometimes when I sit up after
eating or when I first get up, it will dip into the 50s over the 30s.

If you were that low and didn't feel the effects, that could mean that your
running pretty low most of the time.

I was admitted to the hospital a couple of different times and it wasn't
until I saw that I hadn't urinated more than 5 mL in four hours that I
realize how dangerous the low blood pressure can be. They explained to me
that your organs shut down when the blood pressure gets too low and it can
cause lasting effects if this happens too often or too much. I ended up
spending two weeks in the hospital a couple of years ago to see if they
could determine why my blood pressure fluctuates between extremely high and
exceedingly low. The specialist decided they would rather it be slightly
high than too low. Therefore I take quite a bit of midodrine often on.
Quadius

On Wed, Oct 12, 2016 at 10:40 PM, Bobbie Humphreys <
bobbiehumphre...@gmail.com> wrote:

> I went to the Doctors today and my BP was 54 over 48
> Anybody else have low BP?
> Bobbie
>
> "You must fail in order to succeed"
>
>

Re: [QUAD-L] BP

[Carolyn Boyles]

My husband is not a quad, but has had heart trouble all of his life. At 
one point during his childhood his blood pressure was 70/0. The doctor 
took it three times and said my husband shouldn't have been alive much 
less conscious. My husband said he felt perfectly fine. These bodies do 
things doctors just can't explain.


Carolyn

RE: [QUAD-L] BP

[Gail Overton]

My husband’s BP is typically 90 to 100 over 60 to 70, much lower than when he 
was physically able, but they said a new normal. He doesn’t take any blood 
pressure meds. But 54 is really LOW; my father was hospitalized when his went 
to 80/50 and he needed a pacemaker.

What do we do for fun? Nothing yet; we are still in the physical therapy stage, 
but after two years, not much progress. We plan to move back to the desert and 
get my husband an off-road wheelchair so he can get back outside. We haven’t 
really had time to have fun yet.

From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: Wednesday, October 12, 2016 9:19 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] BP

My BP has been a steady 90/60 for years. Sorry to break up all this talk about 
pills and blood pressure but what do you guys do for fun? What do you do to 
feel a part of the world that certainly wasn't made for the disabled? What do 
you do to get by and not feel like that's all you're doing – getting b


From: Danny Espinoza mailto:da...@immortaldesigns.co>>
To: Bobbie Humphreys 
mailto:bobbiehumphre...@gmail.com>>; 
quad-list@eskimo.com<mailto:quad-list@eskimo.com>
Sent: Wednesday, October 12, 2016 8:51 PM
Subject: RE: [QUAD-L] BP

Not that low but mine is 90's over 60/70's sometimes
-Danny
 Original Message 
Subject: [QUAD-L] BP
From: "Bobbie Humphreys" 
mailto:bobbiehumphre...@gmail.com>>
Date: Wed, October 12, 2016 7:40 pm
To: mailto:quad-list@eskimo.com>>

I went to the Doctors today and my BP was 54 over 48
Anybody else have low BP?
Bobbie

"You must fail in order to succeed"

Re: [QUAD-L] BP

[Jeffrey Gaede]

My BP has been a steady 90/60 for years. Sorry to break up all this talk about 
pills and blood pressure but what do you guys do for fun? What do you do to 
feel a part of the world that certainly wasn't made for the disabled? What do 
you do to get by and not feel like that's all you're doing – getting b

  From: Danny Espinoza 
 To: Bobbie Humphreys ; quad-list@eskimo.com 
 Sent: Wednesday, October 12, 2016 8:51 PM
 Subject: RE: [QUAD-L] BP
   
Not that low but mine is 90's over 60/70's sometimes
-Danny

 Original Message 
Subject: [QUAD-L] BP
From: "Bobbie Humphreys" 
Date: Wed, October 12, 2016 7:40 pm
To: 

I went to the Doctors today and my BP was 54 over 48
Anybody else have low BP?
Bobbie 

"You must fail in order to succeed"




   

RE: [QUAD-L] BP

[Danny Espinoza]

Not that low but mine is 90's over 60/70's sometimes-Danny


 Original Message 
Subject: [QUAD-L] BP
From: "Bobbie Humphreys" 
Date: Wed, October 12, 2016 7:40 pm
To: 

I went to the Doctors today and my BP was 54 over 48
Anybody else have low BP?
Bobbie 

"You must fail in order to succeed"

RE: [QUAD-L] BP cuffs for wrists

[nichole rohling]

I do and when I bought it I took it to the dr to see if it was accurate and it 
was right on with them taking it manually

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Thursday, February 06, 2014 8:55 PM
To: quad-list
Subject: [QUAD-L] BP cuffs for wrists

When I went to the wound center they took my BP with a wrist cuff because me, 
and many others I'm sure, were wearing two and three layers of clothing because 
the temperature was about 8  They said the wrist cuff is as cute as the 
standard.

Has anybody ever had there BP a taken by a wrist cuff?   Bobbie 

Smile Everyday

Re: [QUAD-L] BP cuffs for wrists

[Don Smith]

Ya my wound nurse has used one on me, there good as long as the batteries are 
not dead or low.





 From: Gmail 
To: quad-list  
Sent: Thursday, February 6, 2014 6:54 PM
Subject: [QUAD-L] BP cuffs for wrists
 

When I went to the wound center they took my BP with a wrist cuff because me, 
and many others I'm sure, were wearing two and three layers of clothing because 
the temperature was about 8°
They said the wrist cuff is as cute as the standard.

Has anybody ever had there BP a taken by a wrist cuff?   Bobbie 

Smile Everyday

Re: [QUAD-L] BP/Colonoscopy

[diannal767]

I'm with you Bobbie. I just turned 56, 22 yrs post. I have an able-body 93 yr 
old father, (I don't want to live like him either). A 9 yr old grand daughter 
I'd like to see walk down the isle & that's the most/best I want. I do have a 
healthy bum & so sorry to hear about yours. All my meds are pain meds too. 
You've had a much tougher life than me. That's a LONG time in a chair. 
Dianna

I, personally, will NEVER EVER go through a colonoscopy, mama gram, pap 
smear or any other type of "disease hunting" procedure. I have no 
desire to live a long life as a quad. I've already put in close to 40 
Quad years, I'm 57 now. My pain is out-of-control even though I take 
morphine … all my meds are pain meds. My scoliosis is only going to get 
worse and the arthritis in my neck too. I've never had so many 
different sores on my butt in different places … I have a sorry, 
skinny, flat ass.

Dose anybody else not want to go through "disease hunting" procedures?  
  Bobbie




-Original Message-
From: jume9999 
To: quad-list 
Sent: Sun, Feb 24, 2013 5:32 pm
Subject: Re: [QUAD-L] BP/Colonoscopy


I'm with you.

Meredith


From: bobbie...@aol.com
To: jume9...@comcast.net, quad-list@eskimo.com
Sent: Sunday, February 24, 2013 12:51:43 PM
Subject: Re: [QUAD-L] BP/Colonoscopy

I, personally, will NEVER EVER go through a colonoscopy, mama gram, pap 
smear or any other type of "disease hunting" procedure. I have no 
desire to live a long life as a quad. I've already put in close to 40 
Quad years, I'm 57 now. My pain is out-of-control even though I take 
morphine … all my meds are pain meds. My scoliosis is only going to get 
worse and the arthritis in my neck too. I've never had so many 
different sores on my butt in different places … I have a sorry, 
skinny, flat ass.

Dose anybody else not want to go through "disease hunting" procedures?  
  Bobbie





-Original Message-
From: jume 
To: quad-list 
Sent: Sun, Feb 24, 2013 3:30 pm
Subject: Re: [QUAD-L] BP/Colonoscopy

If there was a way to get a complete removal then I could see it but I 
have had friends who wasted their time because they were not clean 
enough and were sent home. If it isn't squeaky clean they can't do the 
procedure. I just can't go through it

Meredith

From: "Nan" <nlg52...@yahoo.com>
To: jume9...@comcast.net, quad-list@eskimo.com
Sent: Saturday, February 23, 2013 9:49:43 PM
Subject: Re: [QUAD-L] BP/Colonoscopy



I know the prep is shitty for all of us, pun intended,  but at least I 
know I don't have colon cancer...


        From: "jume9...@comcast.net" <jume9...@comcast.net>
 To: Nan <nlg52...@yahoo.com>
 Sent: Saturday, February 23, 2013 2:15 PM
 Subject: Re: [QUAD-L] BP


The prep is too difficult.

From: "Nan" <nlg52...@yahoo.com>
To: "Quadius" <quad...@gmail.com>, jume9...@comcast.net
Cc: "quad-list" <quad-list@eskimo.com>
Sent: Friday, February 22, 2013 8:48:37 PM
Subject: Re: [QUAD-L] BP

I've had a colonoscopy and am due for another this year.  The prep is a 
bitch, but I'd rather know what's going on...  Do you have other 
problems that prevent you from having a colonoscopy?


Nan


From: Quadius <quad...@gmail.com>
 To: jume9...@comcast.net
Cc: quad-list <quad-list@eskimo.com>
 Sent: Friday, February 22, 2013 5:45 PM
 Subject: Re: [QUAD-L] BP


Meredith,
In my experience when I am getting blocked up I get a liquefied stool 
without any hard stool. It's different than diarrhea.

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is 
really intensive and requires hospitalization.
Quadius

On Tue, Feb 19, 2013 at 7:53 PM,  <jume9...@comcast.net> wrote:
Just wondering, what tests are taken to see if one is blocked up? I'm 
not really able to do a colonoscopy according to the Doc I spoke to.

Meredith

From: "Billy Lang" <blan...@verizon.net>
To: jume9...@comcast.net
Cc: quadriple...@cox.net, "quad-list" <quad-list@eskimo.com>
Sent: Tuesday, February 19, 2013 3:15:23 PM
Subject: Re: [QUAD-L] BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About 
Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts of 
opiates and the pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for 
you.


Sent from Billy Lang's iPad 



On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:


Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
continue in pain go see the doctor.

From: quadriple...@cox.net
To: quad-list@eskimo.com
Sent: Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L] BP

The last 2 weeks I've had such stomach pai

Re: [QUAD-L] BP/Colonoscopy

[jume9999]

I'm with you. 

Meredith 

- Original Message -
From: bobbie...@aol.com 
To: jume9...@comcast.net, quad-list@eskimo.com 
Sent: Sunday, February 24, 2013 12:51:43 PM 
Subject: Re: [QUAD-L] BP/Colonoscopy 

I, personally, will NEVER EVER go through a colonoscopy, mama gram, pap 
smear or any other type of "disease hunting" procedure. I have no 
desire to live a long life as a quad. I've already put in close to 40 
Quad years, I'm 57 now. My pain is out-of-control even though I take 
morphine … all my meds are pain meds. My scoliosis is only going to get 
worse and the arthritis in my neck too. I've never had so many 
different sores on my butt in different places … I have a sorry, 
skinny, flat ass. 

Dose anybody else not want to go through "disease hunting" procedures? 
Bobbie 





-Original Message- 
From: jume  
To: quad-list  
Sent: Sun, Feb 24, 2013 3:30 pm 
Subject: Re: [QUAD-L] BP/Colonoscopy 

If there was a way to get a complete removal then I could see it but I 
have had friends who wasted their time because they were not clean 
enough and were sent home. If it isn't squeaky clean they can't do the 
procedure. I just can't go through it 

Meredith 

From: "Nan" <nlg52...@yahoo.com> 
To: jume9...@comcast.net, quad-list@eskimo.com 
Sent: Saturday, February 23, 2013 9:49:43 PM 
Subject: Re: [QUAD-L] BP/Colonoscopy 



I know the prep is shitty for all of us, pun intended, but at least I 
know I don't have colon cancer... 


From: "jume9...@comcast.net" <jume9...@comcast.net> 
To: Nan <nlg52...@yahoo.com> 
Sent: Saturday, February 23, 2013 2:15 PM 
Subject: Re: [QUAD-L] BP 


The prep is too difficult. 

From: "Nan" <nlg52...@yahoo.com> 
To: "Quadius" <quad...@gmail.com>, jume9...@comcast.net 
Cc: "quad-list" <quad-list@eskimo.com> 
Sent: Friday, February 22, 2013 8:48:37 PM 
Subject: Re: [QUAD-L] BP 

I've had a colonoscopy and am due for another this year. The prep is a 
bitch, but I'd rather know what's going on... Do you have other 
problems that prevent you from having a colonoscopy? 


Nan 


From: Quadius <quad...@gmail.com> 
To: jume9...@comcast.net 
Cc: quad-list <quad-list@eskimo.com> 
Sent: Friday, February 22, 2013 5:45 PM 
Subject: Re: [QUAD-L] BP 


Meredith, 
In my experience when I am getting blocked up I get a liquefied stool 
without any hard stool. It's different than diarrhea. 

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is 
really intensive and requires hospitalization. 
Quadius 

On Tue, Feb 19, 2013 at 7:53 PM, <jume9...@comcast.net> wrote: 
Just wondering, what tests are taken to see if one is blocked up? I'm 
not really able to do a colonoscopy according to the Doc I spoke to. 

Meredith 

From: "Billy Lang" <blan...@verizon.net> 
To: jume9...@comcast.net 
Cc: quadriple...@cox.net, "quad-list" <quad-list@eskimo.com> 
Sent: Tuesday, February 19, 2013 3:15:23 PM 
Subject: Re: [QUAD-L] BP 

See ur Md. you need to see if ur blocked. Also, ask your Dr. About 
Amitiza. Pill form up to 4,8 or 24 mcg. I take monstrous amounts of 
opiates and the pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for 
you. 


Sent from Billy Lang's iPad 



On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote: 


Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you 
continue in pain go see the doctor. 

From: quadriple...@cox.net 
To: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 1:27:16 PM 
Subject: [QUAD-L] BP 

The last 2 weeks I've had such stomach pains. I've been pooping rocks 
and nothing has helped. I've tried Miralax, softeners, etc. I don't 
want to use too much, that hurts just as much. I keep using it more 
often, but I've never had to drink Miralax more than 2 times in a week. 
Then I can go months without it. I'm on my like 6th dose in 2 weeks. I 
want to double over in pain. G 

Re: [QUAD-L] BP/Colonoscopy

[bobbie299]

I, personally, will NEVER EVER go through a colonoscopy, mama gram, pap 
smear or any other type of "disease hunting" procedure. I have no 
desire to live a long life as a quad. I've already put in close to 40 
Quad years, I'm 57 now. My pain is out-of-control even though I take 
morphine … all my meds are pain meds. My scoliosis is only going to get 
worse and the arthritis in my neck too. I've never had so many 
different sores on my butt in different places … I have a sorry, 
skinny, flat ass.


Dose anybody else not want to go through "disease hunting" procedures?  
 Bobbie






-Original Message-
From: jume 
To: quad-list 
Sent: Sun, Feb 24, 2013 3:30 pm
Subject: Re: [QUAD-L] BP/Colonoscopy

If there was a way to get a complete removal then I could see it but I 
have had friends who wasted their time because they were not clean 
enough and were sent home. If it isn't squeaky clean they can't do the 
procedure. I just can't go through it


Meredith

From: "Nan" <nlg52...@yahoo.com>
To: jume9...@comcast.net, quad-list@eskimo.com
Sent: Saturday, February 23, 2013 9:49:43 PM
Subject: Re: [QUAD-L] BP/Colonoscopy



I know the prep is shitty for all of us, pun intended,  but at least I 
know I don't have colon cancer...



   From: "jume9...@comcast.net" <jume9...@comcast.net>
To: Nan <nlg52...@yahoo.com>
Sent: Saturday, February 23, 2013 2:15 PM
Subject: Re: [QUAD-L] BP


The prep is too difficult.

From: "Nan" <nlg52...@yahoo.com>
To: "Quadius" <quad...@gmail.com>, jume9...@comcast.net
Cc: "quad-list" <quad-list@eskimo.com>
Sent: Friday, February 22, 2013 8:48:37 PM
Subject: Re: [QUAD-L] BP

I've had a colonoscopy and am due for another this year.  The prep is a 
bitch, but I'd rather know what's going on...  Do you have other 
problems that prevent you from having a colonoscopy?



Nan


   From: Quadius <quad...@gmail.com>
To: jume9...@comcast.net
Cc: quad-list <quad-list@eskimo.com>
Sent: Friday, February 22, 2013 5:45 PM
Subject: Re: [QUAD-L] BP


Meredith,
In my experience when I am getting blocked up I get a liquefied stool 
without any hard stool. It's different than diarrhea.


I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is 
really intensive and requires hospitalization.

Quadius

On Tue, Feb 19, 2013 at 7:53 PM,  <jume9...@comcast.net> wrote:
Just wondering, what tests are taken to see if one is blocked up? I'm 
not really able to do a colonoscopy according to the Doc I spoke to.


Meredith

From: "Billy Lang" <blan...@verizon.net>
To: jume9...@comcast.net
Cc: quadriple...@cox.net, "quad-list" <quad-list@eskimo.com>
Sent: Tuesday, February 19, 2013 3:15:23 PM
Subject: Re: [QUAD-L] BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About 
Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts of 
opiates and the pills along with fiber keep me regular. 



You will need to experiment with dosages to find the right balance for 
you.



Sent from Billy Lang's iPad 



On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:


Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
continue in pain go see the doctor.


From: quadriple...@cox.net
To: quad-list@eskimo.com
Sent: Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L] BP

The last 2 weeks I've had such stomach pains. I've been pooping rocks 
and nothing has helped. I've tried Miralax, softeners, etc. I don't 
want to use too much, that hurts just as much. I keep using it more 
often, but I've never had to drink Miralax more than 2 times in a week. 
Then I can go months without it. I'm on my like 6th dose in 2 weeks. I 
want to double over in pain. G

Re: [QUAD-L] BP/Colonoscopy

[jume9999]

If there was a way to get a complete removal then I could see it but I have had 
friends who wasted their time because they were not clean enough and were sent 
home. If it isn't squeaky clean they can't do the procedure. I just can't go 
through it 

Meredith 

- Original Message -
From: "Nan"  
To: jume9...@comcast.net, quad-list@eskimo.com 
Sent: Saturday, February 23, 2013 9:49:43 PM 
Subject: Re: [QUAD-L] BP/Colonoscopy 





I know the prep is shitty for all of us, pun intended, but at least I know I 
don't have colon cancer... 





From: "jume9...@comcast.net"  
To: Nan  
Sent: Saturday, February 23, 2013 2:15 PM 
Subject: Re: [QUAD-L] BP 




The prep is too difficult. 


From: "Nan"  
To: "Quadius" , jume9...@comcast.net 
Cc: "quad-list"  
Sent: Friday, February 22, 2013 8:48:37 PM 
Subject: Re: [QUAD-L] BP 



I've had a colonoscopy and am due for another this year. The prep is a bitch, 
but I'd rather know what's going on... Do you have other problems that prevent 
you from having a colonoscopy? 


Nan 





From: Quadius  
To: jume9...@comcast.net 
Cc: quad-list  
Sent: Friday, February 22, 2013 5:45 PM 
Subject: Re: [QUAD-L] BP 


Meredith, 
In my experience when I am getting blocked up I get a liquefied stool without 
any hard stool. It's different than diarrhea. 

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is really 
intensive and requires hospitalization. 
Quadius 


On Tue, Feb 19, 2013 at 7:53 PM, < jume9...@comcast.net > wrote: 




Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to. 

Meredith 


From: "Billy Lang" < blan...@verizon.net > 
To: jume9...@comcast.net 
Cc: quadriple...@cox.net , "quad-list" < quad-list@eskimo.com > 
Sent: Tuesday, February 19, 2013 3:15:23 PM 
Subject: Re: [QUAD-L] BP 




See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24 mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for you. 


Sent from Billy Lang's iPad 



On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote: 





Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you continue 
in pain go see the doctor. 


From: quadriple...@cox.net 
To: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 1:27:16 PM 
Subject: [QUAD-L] BP 

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G 

Re: [QUAD-L] BP

[Mike Mills]

In '99 I had a colonoscopy. 1st day I drink a bottle of "Magnesium Citrate", 
and waited for a bowel movement. After that I performed digital stimulation to 
empty out the rest. 2nd day I saw my Dr. and he checked me into the hospital 
under emergency situation (That's the only way Medicare will pay). There I 
drink a gallon of solution to cleanse my bowels. The 3rd day that morning he 
performed a colonoscopy and endoscope. Went home after I slept off the sedative 
medication received before my procedure.       




 From: Quadius 
To: jume9...@comcast.net 
Cc: quad-list  
Sent: Friday, February 22, 2013 5:45 PM
Subject: Re: [QUAD-L] BP
 

Meredith,
In my experience when I am getting blocked up I get a liquefied stool without 
any hard stool. It's different than diarrhea.

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is really 
intensive and requires hospitalization.
Quadius


On Tue, Feb 19, 2013 at 7:53 PM,  wrote:

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to.
>
>Meredith
>
>>
> From: "Billy Lang" 
>To: jume9...@comcast.net
>Cc: quadriple...@cox.net, "quad-list" 
>Sent: Tuesday, February 19, 2013 3:15:23 PM
>Subject: Re: [QUAD-L] BP
>
>
>
>See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
>Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
>pills along with fiber keep me regular. 
>
>
>You will need to experiment with dosages to find the right balance for you.
>
>
>Sent from Billy Lang's iPad 
>
>
>
>On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
>
>
>Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
>continue in pain go see the doctor.
>>
>>>>
>>From: quadriple...@cox.net
>>To: quad-list@eskimo.com
>>Sent: Monday, February 18, 2013 1:27:16 PM
>>Subject: [QUAD-L] BP
>>
>>The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
>>nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
>>too much, that hurts just as much. I keep using it more often, but I've never 
>>had to drink Miralax more than 2 times in a week. Then I can go months 
>>without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
>>pain. G
>>
>>

Re: [QUAD-L] BP

[Nan]

Why is hospitalization necessary?

I've always taken the dreaded GoLightly and hop in bed with a gzillion chux.  
My aides remove the soiled underpads as needed.  When I'm done I go to sleep. 
Wake up, go to outpatient, have the colonoscopy and go home.

Guess I'm just an "I can do that" kind of person.

Nan



From: "Quadius" 
To: jume9...@comcast.net
Cc: "quad-list" 
Sent: Friday, February 22, 2013 2:45:07 PM
Subject: Re: [QUAD-L] BP

Meredith,
In my experience when I am getting blocked up I get a liquefied stool without 
any hard stool. It's different than diarrhea.

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is really 
intensive and requires hospitalization.
Quadius


On Tue, Feb 19, 2013 at 7:53 PM,  wrote:

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to.
>
>Meredith
>
>>
> From: "Billy Lang" 
>To: jume9...@comcast.net
>Cc: quadriple...@cox.net, "quad-list" 
>Sent: Tuesday, February 19, 2013 3:15:23 PM
>Subject: Re: [QUAD-L] BP
>
>
>
>See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
>Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
>pills along with fiber keep me regular. 
>
>
>You will need to experiment with dosages to find the right balance for you.
>
>
>Sent from Billy Lang's iPad 
>
>
>
>On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
>
>
>Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
>continue in pain go see the doctor.
>>
>>>>
>>From: quadriple...@cox.net
>>To: quad-list@eskimo.com
>>Sent: Monday, February 18, 2013 1:27:16 PM
>>Subject: [QUAD-L] BP
>>
>>The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
>>nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
>>too much, that hurts just as much. I keep using it more often, but I've never 
>>had to drink Miralax more than 2 times in a week. Then I can go months 
>>without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
>>pain. G
>>
>>

Re: [QUAD-L] BP/Colonoscopy

[Nan]

I know the prep is shitty for all of us, pun intended,  but at least I know I 
don't have colon cancer...



 From: "jume9...@comcast.net" 
To: Nan  
Sent: Saturday, February 23, 2013 2:15 PM
Subject: Re: [QUAD-L] BP
 

The prep is too difficult.


From: "Nan" 
To: "Quadius" , jume9...@comcast.net
Cc: "quad-list" 
Sent: Friday, February 22, 2013 8:48:37 PM
Subject: Re: [QUAD-L] BP


I've had a colonoscopy and am due for another this year.  The prep is a bitch, 
but I'd rather know what's going on...  Do you have other problems that prevent 
you from having a colonoscopy?

Nan



 From: Quadius 
To: jume9...@comcast.net 
Cc: quad-list  
Sent: Friday, February 22, 2013 5:45 PM
Subject: Re: [QUAD-L] BP
 

Meredith,
In my experience when I am getting blocked up I get a liquefied stool without 
any hard stool. It's different than diarrhea.

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is really 
intensive and requires hospitalization.
Quadius


On Tue, Feb 19, 2013 at 7:53 PM,  wrote:

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to.
>
>Meredith
>
>>
> From: "Billy Lang" 
>To: jume9...@comcast.net
>Cc: quadriple...@cox.net, "quad-list" 
>Sent: Tuesday, February 19, 2013 3:15:23 PM
>Subject: Re: [QUAD-L] BP
>
>
>
>See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
>Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
>pills along with fiber keep me regular. 
>
>
>You will need to experiment with dosages to find the right balance for you.
>
>
>Sent from Billy Lang's iPad 
>
>
>
>On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
>
>
>Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
>continue in pain go see the doctor.
>>
>>>>
>>From: quadriple...@cox.net
>>To: quad-list@eskimo.com
>>Sent: Monday, February 18, 2013 1:27:16 PM
>>Subject: [QUAD-L] BP
>>
>>The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
>>nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
>>too much, that hurts just as much. I keep using it more often, but I've never 
>>had to drink Miralax more than 2 times in a week. Then I can go months 
>>without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
>>pain. G
>>
>>

Re: [QUAD-L] BP

[diannal767]

I had my prep in the hospital but wasn't drugged for the procedure. Watched it 
all on COLOR TV :-) Something Janis Joplin asked for. <- the color tv.

I just had one last year and did not have to be hospitalized. We did the prep 
at home (I have an overhead lift and we just work with that over my commode 
chair). It took 2 ½ hours total, with some breaks in between. As an outpatient 
they just did a la la land anesthetic and it was over and 40 minutes. Not fun, 
but certainly doable. Joan




-Original Message-
From: Joan Anglin 
To: jume ; 'quad-list' 
Sent: Sat, Feb 23, 2013 4:22 pm
Subject: RE: [QUAD-L] BP



I just had one last year and did not have to be hospitalized. We did the prep 
at home (I have an overhead lift and we just work with that over my commode 
chair). It took 2 ½ hours total, with some breaks in between. As an outpatient 
they just did a la la land anesthetic and it was over and 40 minutes. Not fun, 
but certainly doable. Joan

 

RE: [QUAD-L] BP

[Joan Anglin]

I just had one last year and did not have to be hospitalized. We did the prep 
at home (I have an overhead lift and we just work with that over my commode 
chair). It took 2 ½ hours total, with some breaks in between. As an outpatient 
they just did a la la land anesthetic and it was over and 40 minutes. Not fun, 
but certainly doable. Joan

Re: [QUAD-L] BP

[jume9999]

I wondered about that, what do you mean hospitalized? 

Meredith 

- Original Message -
From: "Quadius"  
To: jume9...@comcast.net 
Cc: "quad-list"  
Sent: Friday, February 22, 2013 2:45:07 PM 
Subject: Re: [QUAD-L] BP 

Meredith, 
In my experience when I am getting blocked up I get a liquefied stool without 
any hard stool. It's different than diarrhea. 

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is really 
intensive and requires hospitalization. 
Quadius 


On Tue, Feb 19, 2013 at 7:53 PM, < jume9...@comcast.net > wrote: 




Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to. 

Meredith 


From: "Billy Lang" < blan...@verizon.net > 
To: jume9...@comcast.net 
Cc: quadriple...@cox.net , "quad-list" < quad-list@eskimo.com > 
Sent: Tuesday, February 19, 2013 3:15:23 PM 
Subject: Re: [QUAD-L] BP 




See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24 mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for you. 


Sent from Billy Lang's iPad 



On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote: 





Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you continue 
in pain go see the doctor. 


From: quadriple...@cox.net 
To: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 1:27:16 PM 
Subject: [QUAD-L] BP 

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G 

Re: [QUAD-L] BP

[Nan]

I've had a colonoscopy and am due for another this year.  The prep is a bitch, 
but I'd rather know what's going on...  Do you have other problems that prevent 
you from having a colonoscopy?

Nan



 From: Quadius 
To: jume9...@comcast.net 
Cc: quad-list  
Sent: Friday, February 22, 2013 5:45 PM
Subject: Re: [QUAD-L] BP
 

Meredith,
In my experience when I am getting blocked up I get a liquefied stool without 
any hard stool. It's different than diarrhea.

I don't know why you can't take a colonoscopy. It's difficult for 
quadriplegics, but it can definitely be done. The protocol here is really 
intensive and requires hospitalization.
Quadius


On Tue, Feb 19, 2013 at 7:53 PM,  wrote:

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to.
>
>Meredith
>
>>
> From: "Billy Lang" 
>To: jume9...@comcast.net
>Cc: quadriple...@cox.net, "quad-list" 
>Sent: Tuesday, February 19, 2013 3:15:23 PM
>Subject: Re: [QUAD-L] BP
>
>
>
>See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
>Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
>pills along with fiber keep me regular. 
>
>
>You will need to experiment with dosages to find the right balance for you.
>
>
>Sent from Billy Lang's iPad 
>
>
>
>On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
>
>
>Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
>continue in pain go see the doctor.
>>
>>>>
>>From: quadriple...@cox.net
>>To: quad-list@eskimo.com
>>Sent: Monday, February 18, 2013 1:27:16 PM
>>Subject: [QUAD-L] BP
>>
>>The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
>>nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
>>too much, that hurts just as much. I keep using it more often, but I've never 
>>had to drink Miralax more than 2 times in a week. Then I can go months 
>>without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
>>pain. G
>>
>>

Re: [QUAD-L] BP

[Quadius]

Meredith,
In my experience when I am getting blocked up I get a liquefied stool
without any hard stool. It's different than diarrhea.

I don't know why you can't take a colonoscopy. It's difficult for
quadriplegics, but it can definitely be done. The protocol here is really
intensive and requires hospitalization.
Quadius

On Tue, Feb 19, 2013 at 7:53 PM,  wrote:

> Just wondering, what tests are taken to see if one is blocked up? I'm not
> really able to do a colonoscopy according to the Doc I spoke to.
>
> Meredith
>
> --
> *From: *"Billy Lang" 
> *To: *jume9...@comcast.net
> *Cc: *quadriple...@cox.net, "quad-list" 
> *Sent: *Tuesday, February 19, 2013 3:15:23 PM
> *Subject: *Re: [QUAD-L] BP
>
> See ur Md. you need to see if ur blocked. Also, ask your Dr. About
> Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts of
> opiates and the pills along with fiber keep me regular.
>
> You will need to experiment with dosages to find the right balance for you.
>
>
> Sent from Billy Lang's iPad
>
>
> On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
>
> Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you
> continue in pain go see the doctor.
>
> --
> *From: *quadriple...@cox.net
> *To: *quad-list@eskimo.com
> *Sent: *Monday, February 18, 2013 1:27:16 PM
> *Subject: *[QUAD-L] BP
>
> The last 2 weeks I've had such stomach pains. I've been pooping rocks and
> nothing has helped. I've tried Miralax, softeners, etc. I don't want to use
> too much, that hurts just as much. I keep using it more often, but I've
> never had to drink Miralax more than 2 times in a week. Then I can go
> months without it. I'm on my like 6th dose in 2 weeks. I want to double
> over in pain. G
>
>

Re: [QUAD-L] BP

[Nan]

If I get mildly constipated I'll use one or two senna tablets. If I have severe 
constipation, I've had success with is Mag Citrate: 
http://en.wikipedia.org/wiki/Magnesium_citrate .  It is an OTC liquid, but you 
need to drink much less mag citrate than GoLightly.  The taste is quite 
citrusy, but much more tolerable than GoLightly if you like sour foods like 
lemon.  The results are usually 'explosive'.  I always feel great after! :)


For my BP, I use a bisocodyl suppository every night.  I sleep on my stomach, 
slide a chux between my legs and up over my butt and the next morning there's a 
little 'package' to remove.  It's worked for 44 years.  I also eat lots of 
fruit, vegetables and good grains long with lots of water every day.

Hope you feel better soon.

Nan


 From: "wheelch...@aol.com" 
To: diannal...@aol.com; quad-list@eskimo.com 
Sent: Wednesday, February 20, 2013 12:28 PM
Subject: Re: [QUAD-L] BP
 

Go Lite (Lightly) is brutal.  Some add lemon juice or use Gater Aid as 
a chaser.  The mission is always to clear n clean the entire bowel, for 
testing.  As I've mentioned before.  A daily BM is better on one's 
body than 2-3 times a week.  Those having a Colonoscopy are required and 
empty and clean bowel.
Best Wishes
 
In a message dated 2/20/2013 11:19:02 A.M. Central Standard Time, 
diannal...@aol.com writes:
I've never heard of a coffee enema. The Go  Lite is very brutal! Never 
again for me :-)
>dianna
>A prune juice cocktail or coffee enema will usually empty your  bowel.  Or a 
>gallon of Go Lite, with water.
>>Best Wishes
>-Original  Message-
>From: wheelchair 
>To: jume 
  ; quad-list 
>Sent: 
  Tue, Feb 19, 2013 8:03 pm
>Subject: Re: [QUAD-L] BP
>
>
>A prune juice cocktail or coffee enema will usually empty your  bowel.  Or a 
>gallon of Go Lite, with water.
>Best Wishes
> 
>In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
>jume9...@comcast.net writes:
>Just  wondering, what tests are taken to see if one is blocked up? I'm not 
>really  able to do a colonoscopy according to the Doc I spoke  to.
>>
>>Meredith
>>
>>>>________
>> From: "Billy Lang" 
>>To: jume9...@comcast.net
>>Cc: quadriple...@cox.net, "quad-list"  
>>Sent: Tuesday, February 19, 2013 3:15:23 PM
>>Subject: Re: [QUAD-L]  BP
>>
>>
>>See ur Md. you need to see if ur blocked. Also, ask your Dr. About  Amitiza. 
>>Pill form up to 4,8 or 24  mcg. I take monstrous amounts of  opiates and the 
>>pills along with fiber keep me regular. 
>>
>>
>>You will need to experiment with dosages to find the right balance for  you.
>>
>>
>>Sent from Billy Lang's iPad  
>>
>>
>>
>>On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
>>
>>
>>Try 2  sennakots  or milk of magnesia, eat fruit and lots of it, if you  
>>continue in pain go see the doctor.
>>>
>>>>>>
>>> From: quadriple...@cox.net
>>>To: quad-list@eskimo.com
>>>Sent: Monday, February 18, 2013 1:27:16 PM
>>>Subject: [QUAD-L]  BP
>>>
>>>The last 2 weeks I've had such stomach pains. I've been pooping 
  rocks and nothing has helped. I've tried Miralax, softeners, etc. I don't 
  want to use too much, that hurts just as much. I keep using it more 
often, 
  but I've never had to drink Miralax more than 2 times in a week. Then I 
  can go months without it. I'm on my like 6th dose in 2 weeks. I want to 
  double over in pain. 
  G
>>>
>>>

Re: [QUAD-L] BP

[wheelchair]

Recipe ?  I don't think Dunkin Donuts or Star Buck offers a secret  recipe 
for coffee enemas.  Honestly, I've never had one but checking the  internet, 
it seems like most say 50/50 of a coffee brew and filtered  water.  Now ask 
me about those homemade enemas made from Warm Soapy waters  of Ivory Bar 
Soap and I can tell you some great results, thanks to Great Grandma  Jones.  
At the sign of a sneeze, cold or fever, it brought out the rubber  enema bag, 
the ivory bar soap and warm water, from the tap.  All you needed  was a 
pint, but she always made a quart.  Back then it was the only cure we  knew.
Keep in mind that something has to be used to allow the bowel to move so  
that its clean and cleared.
 
Best Wishes
 
 
 
In a message dated 2/20/2013 2:56:04 P.M. Central Standard Time,  
daa...@aol.com writes:

What is the recipe for a coffee enema? Have you ever used and where did  
you hear about?
Dana
 
 
In a message dated 2/20/2013 2:46:00 P.M. Central Standard Time,  
lwillis...@yahoo.com writes:

   
A coffee enema wakes up your bowels and makes the poop percolate  downward.

Sent from my iPad

Begin forwarded message:



Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
From:  _diannal767@aol.com_ (mailto:diannal...@aol.com) 
Date:  February 20, 2013, 12:19:01 PM EST
To: _wheelchair@aol.com_ (mailto:wheelch...@aol.com) , 
_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] BP





I've never heard of a coffee enema.  The Go Lite is very brutal! Never 
again for me :-)
dianna
 
A prune juice cocktail or coffee enema will usually empty your  bowel.  Or 
a gallon of Go Lite, with water.
Best Wishes





-Original  Message-
From: wheelchair <_wheelchair@aol.com_ (mailto:wheelch...@aol.com) >
To:  jume <_jume@comcast.net_ (mailto:jume9...@comcast.net) >; 
quad-list  <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Sent:  Tue, Feb 19, 2013 8:03 pm
Subject: Re: [QUAD-L] BP


A prune juice cocktail or coffee enema will usually empty your  bowel.  Or 
a gallon of Go Lite, with water.
Best Wishes
 
 
In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
_jume@comcast.net_ (mailto:jume9...@comcast.net)  writes:

Just  wondering, what tests are taken to see if one is blocked up? I'm not  
really able to do a colonoscopy according to the Doc I spoke  to.

Meredith

 

From: "Billy Lang" <_blang33@verizon.net_ (mailto:blan...@verizon.net) >
To:  _jume@comcast.net_ (mailto:jume9...@comcast.net) 
Cc:  _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) , "quad-list"  
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Sent:  Tuesday, February 19, 2013 3:15:23 PM
Subject: Re:  [QUAD-L] BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About  
Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts  of opiates 
and 
the pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance  for you.


Sent from Billy Lang's iPad   




On Feb 18, 2013, at 19:08, _jume@comcast.net_ 
(mailto:jume9...@comcast.net)   wrote:




Try 2  sennakots  or milk of magnesia, eat fruit and lots of it, if you  
continue in pain go see the doctor.

 

From: _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) 
To:  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent:  Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L]  BP

The last 2 weeks I've had such stomach pains. I've been  pooping rocks and 
nothing has helped. I've tried Miralax, softeners,  etc. I don't want to use 
too much, that hurts just as much. I keep  using it more often, but I've 
never had to drink Miralax more than 2  times in a week. Then I can go months 
without it. I'm on my like 6th  dose in 2 weeks. I want to double over in 
pain.  G

Re: [QUAD-L] BP

[diannal767]

been there. my brother went for one recently and he drank a qt. of something 
(don't know the brand) then a few hrs later, another qt. much better than 
drinking a gallon of that stuff! :-)

Go Lite (Lightly) is brutal.  Some add lemon juice or use Gater Aid as  a 
chaser.  The mission is always to clear n clean the entire bowel, for  testing. 
 As I've mentioned before.  A daily BM is better on one's  body than 2-3 times 
a week.  Those having a Colonoscopy are required and  empty and clean bowel.
Best Wishes




-Original Message-
From: wheelchair 
To: diannal767 ; quad-list 
Sent: Wed, Feb 20, 2013 12:28 pm
Subject: Re: [QUAD-L] BP


Go Lite (Lightly) is brutal.  Some add lemon juice or use Gater Aid as a 
chaser.  The mission is always to clear n clean the entire bowel, for testing.  
As I've mentioned before.  A daily BM is better on one's body than 2-3 times a 
week.  Those having a Colonoscopy are required and empty and clean bowel.
Best Wishes
 

In a message dated 2/20/2013 11:19:02 A.M. Central Standard Time, 
diannal...@aol.com writes:
  
I've never heard of a coffee enema. The Go   Lite is very brutal! Never 
again for me :-)
  
dianna
  
  

A prune juice cocktail or coffee enema will usually empty your bowel.  Or a 
gallon of Go Lite, with water.

Best Wishes

  
  
  
  
-Original   Message-
From: wheelchair 
To: jume   ; quad-list 
Sent:   Tue, Feb 19, 2013 8:03 pm
Subject: Re: [QUAD-L] BP

  
  
A prune juice cocktail or coffee enema will usually empty your   bowel.  Or a 
gallon of Go Lite, with water.
  
Best Wishes
  
 
  
  
In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
jume9...@comcast.net writes:
  

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to.

Meredith


From: "Billy Lang" 
To: jume9...@comcast.net
Cc: quadriple...@cox.net, "quad-list" 
Sent:     Tuesday, February 19, 2013 3:15:23 PM
Subject: Re: [QUAD-L] BP


See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 




You will need to experiment with dosages to find the right balance for you.



Sent from Billy Lang's iPad  




On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:



  
  
Try 2   sennakots  or milk of magnesia, eat fruit and lots of it, if you
   continue in pain go see the doctor.

  
  From: quadriple...@cox.net
To:   quad-list@eskimo.com
Sent:   Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L]   BP

The last 2 weeks I've had such stomach pains. I've been pooping   rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't   want to 
use too much, that hurts just as much. I keep using it more often,   but 
I've never had to drink Miralax more than 2 times in a week. Then I   can 
go months without it. I'm on my like 6th dose in 2 weeks. I want to   
double over in pain.   G







 

Re: [QUAD-L] BP

[Bill Lang]

X-ray of ur stomach will tell

Sent from Billy's IPAD2

On Feb 20, 2013, at 12:19, diannal...@aol.com wrote:

> I've never heard of a coffee enema. The Go Lite is very brutal! Never 
> again for me :-)
> dianna
> A prune juice cocktail or coffee enema will usually empty your bowel.  Or a 
> gallon of Go Lite, with water.
> Best Wishes
> -Original Message-
> From: wheelchair 
> To: jume ; quad-list 
> Sent: Tue, Feb 19, 2013 8:03 pm
> Subject: Re: [QUAD-L] BP
> 
> A prune juice cocktail or coffee enema will usually empty your bowel.  Or a 
> gallon of Go Lite, with water.
> Best Wishes
>  
> In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
> jume9...@comcast.net writes:
> Just wondering, what tests are taken to see if one is blocked up? I'm not 
> really able to do a colonoscopy according to the Doc I spoke to.
> 
> Meredith
> 
> From: "Billy Lang" 
> To: jume9...@comcast.net
> Cc: quadriple...@cox.net, "quad-list" 
> Sent: Tuesday, February 19, 2013 3:15:23 PM
> Subject: Re: [QUAD-L] BP
> 
> See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
> Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
> pills along with fiber keep me regular. 
> 
> You will need to experiment with dosages to find the right balance for you.
> 
> 
> Sent from Billy Lang's iPad 
> 
> 
> On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
> 
> Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
> continue in pain go see the doctor.
> 
> From: quadriple...@cox.net
> To: quad-list@eskimo.com
> Sent: Monday, February 18, 2013 1:27:16 PM
> Subject: [QUAD-L] BP
> 
> The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
> nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
> too much, that hurts just as much. I keep using it more often, but I've never 
> had to drink Miralax more than 2 times in a week. Then I can go months 
> without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
> pain. G
> 

Re: [QUAD-L] BP

[DAANOO]

What is the recipe for a coffee enema? Have you ever used and where did you 
 hear about?
Dana
 
 
In a message dated 2/20/2013 2:46:00 P.M. Central Standard Time,  
lwillis...@yahoo.com writes:

   
A coffee enema wakes up your bowels and makes the poop percolate  downward.

Sent from my iPad

Begin forwarded message:



Resent-From: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
From:  _diannal767@aol.com_ (mailto:diannal...@aol.com) 
Date:  February 20, 2013, 12:19:01 PM EST
To: _wheelchair@aol.com_ (mailto:wheelch...@aol.com) , 
_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  Re: [QUAD-L] BP





I've never heard of a coffee enema. The  Go Lite is very brutal! Never 
again for me :-)
dianna
 
A prune juice cocktail or coffee enema will usually empty your  bowel.  Or 
a gallon of Go Lite, with water.
Best Wishes





-Original  Message-
From: wheelchair <_wheelchair@aol.com_ (mailto:wheelch...@aol.com) >
To: jume  <_jume@comcast.net_ (mailto:jume9...@comcast.net) >; 
quad-list  <_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Sent:  Tue, Feb 19, 2013 8:03 pm
Subject: Re: [QUAD-L] BP


A prune juice cocktail or coffee enema will usually empty your  bowel.  Or 
a gallon of Go Lite, with water.
Best Wishes
 
 
In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
_jume@comcast.net_ (mailto:jume9...@comcast.net)  writes:

Just  wondering, what tests are taken to see if one is blocked up? I'm not  
really able to do a colonoscopy according to the Doc I spoke  to.

Meredith

 

From: "Billy Lang" <_blang33@verizon.net_ (mailto:blan...@verizon.net) >
To:  _jume@comcast.net_ (mailto:jume9...@comcast.net) 
Cc:  _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) , "quad-list"  
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Sent:  Tuesday, February 19, 2013 3:15:23 PM
Subject: Re: [QUAD-L]  BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About  
Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts of  opiates 
and 
the pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance  for you.


Sent from Billy Lang's iPad   




On Feb 18, 2013, at 19:08, _jume@comcast.net_ 
(mailto:jume9...@comcast.net)   wrote:




Try  2 sennakots  or milk of magnesia, eat fruit and lots of it, if you  
continue in pain go see the doctor.

 

From: _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) 
To:  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent:  Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L]  BP

The last 2 weeks I've had such stomach pains. I've been  pooping rocks and 
nothing has helped. I've tried Miralax, softeners,  etc. I don't want to use 
too much, that hurts just as much. I keep using  it more often, but I've 
never had to drink Miralax more than 2 times in  a week. Then I can go months 
without it. I'm on my like 6th dose in 2  weeks. I want to double over in 
pain.  G

Re: [QUAD-L] BP

[wheelchair]

Go Lite (Lightly) is brutal.  Some add lemon juice or use Gater Aid as  a 
chaser.  The mission is always to clear n clean the entire bowel, for  
testing.  As I've mentioned before.  A daily BM is better on one's  body than 
2-3 
times a week.  Those having a Colonoscopy are required and  empty and clean 
bowel.
Best Wishes
 
 
In a message dated 2/20/2013 11:19:02 A.M. Central Standard Time,  
diannal...@aol.com writes:

I've never heard of a coffee enema. The Go  Lite is very brutal! Never 
again for me :-)
dianna
 
A prune juice cocktail or coffee enema will usually empty your  bowel.  Or 
a gallon of Go Lite, with water.
Best Wishes





-Original  Message-
From: wheelchair 
To: jume  ; quad-list 
Sent:  Tue, Feb 19, 2013 8:03 pm
Subject: Re: [QUAD-L] BP


A prune juice cocktail or coffee enema will usually empty your  bowel.  Or 
a gallon of Go Lite, with water.
Best Wishes
 
 
In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
_jume@comcast.net_ (mailto:jume9...@comcast.net)  writes:

Just  wondering, what tests are taken to see if one is blocked up? I'm not 
really  able to do a colonoscopy according to the Doc I spoke  to.

Meredith

 

From: "Billy Lang" <_blang33@verizon.net_ (mailto:blan...@verizon.net) >
To:  _jume@comcast.net_ (mailto:jume9...@comcast.net) 
Cc: _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) , "quad-list"  
<_quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) >
Sent:  Tuesday, February 19, 2013 3:15:23 PM
Subject: Re: [QUAD-L]  BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About  
Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts of  opiates 
and 
the pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for  you.


Sent from Billy Lang's iPad   




On Feb 18, 2013, at 19:08, _jume@comcast.net_ 
(mailto:jume9...@comcast.net)   wrote:




Try 2  sennakots  or milk of magnesia, eat fruit and lots of it, if you  
continue in pain go see the doctor.

 

From: _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) 
To:  _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent:  Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L]  BP

The last 2 weeks I've had such stomach pains. I've been pooping  rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't  want to use 
too much, that hurts just as much. I keep using it more often,  but I've 
never had to drink Miralax more than 2 times in a week. Then I  can go months 
without it. I'm on my like 6th dose in 2 weeks. I want to  double over in 
pain.  G

Re: [QUAD-L] BP

[diannal767]

I've never heard of a coffee enema. The Go Lite is very brutal! Never again 
for me :-)
dianna

A prune juice cocktail or coffee enema will usually empty your bowel.   Or a 
gallon of Go Lite, with water.
Best Wishes




-Original Message-
From: wheelchair 
To: jume ; quad-list 
Sent: Tue, Feb 19, 2013 8:03 pm
Subject: Re: [QUAD-L] BP


A prune juice cocktail or coffee enema will usually empty your bowel.  Or a 
gallon of Go Lite, with water.
Best Wishes
 

In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time, 
jume9...@comcast.net writes:
  
Just   wondering, what tests are taken to see if one is blocked up? I'm not 
really   able to do a colonoscopy according to the Doc I spoke   to.

Meredith

  
  From: "Billy Lang" 
To:   jume9...@comcast.net
Cc: quadriple...@cox.net, "quad-list"   
Sent: Tuesday, February 19, 2013   3:15:23 PM
Subject: Re: [QUAD-L] BP

  
See ur Md. you need to see if ur blocked. Also, ask your Dr. About   Amitiza. 
Pill form up to 4,8 or 24  mcg. I take monstrous amounts of   opiates and the 
pills along with fiber keep me regular. 
  


  
You will need to experiment with dosages to find the right balance for   you.
  


Sent from Billy Lang's iPad


  

On Feb 18, 2013, at 19:08, jume9...@comcast.net   wrote:


  


Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
continue in pain go see the doctor.


From: quadriple...@cox.net
To: quad-list@eskimo.com
Sent: Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L] BP

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
too much, that hurts just as much. I keep using it more often, but I've 
never had to drink Miralax more than 2 times in a week. Then I can go 
months without it. I'm on my like 6th dose in 2 weeks. I want to double 
over in pain.   G





 

RE: [QUAD-L] BP

[Joan Anglin]

Why not? It’s not fun, but I think it is definitely necessary and hear them say 
“we will see you in five years” as well worth all the trouble it is Joan

 

From: jume9...@comcast.net [mailto:jume9...@comcast.net] 
Sent: Tuesday, February 19, 2013 4:54 PM
To: quad-list
Subject: Re: [QUAD-L] BP

 

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to.

Meredith

  _  

From: "Billy Lang" 
To: jume9...@comcast.net
Cc: quadriple...@cox.net, "quad-list" 
Sent: Tuesday, February 19, 2013 3:15:23 PM
Subject: Re: [QUAD-L] BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 

 

You will need to experiment with dosages to find the right balance for you.



Sent from Billy Lang's iPad 

 


On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:

Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you continue 
in pain go see the doctor.


  _  


From: quadriple...@cox.net
To: quad-list@eskimo.com
Sent: Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L] BP

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G

Re: [QUAD-L] BP

[wheelchair]

A prune juice cocktail or coffee enema will usually empty your bowel.   Or 
a gallon of Go Lite, with water.
Best Wishes
 
 
In a message dated 2/19/2013 6:53:55 P.M. Central Standard Time,  
jume9...@comcast.net writes:

Just  wondering, what tests are taken to see if one is blocked up? I'm not 
really  able to do a colonoscopy according to the Doc I spoke  to.

Meredith

 

From: "Billy Lang" 
To:  jume9...@comcast.net
Cc: quadriple...@cox.net, "quad-list"  
Sent: Tuesday, February 19, 2013  3:15:23 PM
Subject: Re: [QUAD-L] BP

See ur Md. you need to see if ur blocked. Also, ask your Dr. About  
Amitiza. Pill form up to 4,8 or 24  mcg. I take monstrous amounts of  opiates 
and 
the pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for  you.


Sent from Billy Lang's iPad   




On Feb 18, 2013, at 19:08, _jume@comcast.net_ 
(mailto:jume9...@comcast.net)   wrote:




Try 2  sennakots  or milk of magnesia, eat fruit and lots of it, if you  
continue in pain go see the doctor.

 

From: _quadriplegic@cox.net_ (mailto:quadriple...@cox.net) 
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com) 
Sent: Monday, February 18,  2013 1:27:16 PM
Subject: [QUAD-L] BP

The last 2 weeks I've  had such stomach pains. I've been pooping rocks and 
nothing has helped. I've  tried Miralax, softeners, etc. I don't want to use 
too much, that hurts just  as much. I keep using it more often, but I've 
never had to drink Miralax  more than 2 times in a week. Then I can go months 
without it. I'm on my like  6th dose in 2 weeks. I want to double over in 
pain.  G

Re: [QUAD-L] BP

[jume9999]

Just wondering, what tests are taken to see if one is blocked up? I'm not 
really able to do a colonoscopy according to the Doc I spoke to. 

Meredith 

- Original Message -
From: "Billy Lang"  
To: jume9...@comcast.net 
Cc: quadriple...@cox.net, "quad-list"  
Sent: Tuesday, February 19, 2013 3:15:23 PM 
Subject: Re: [QUAD-L] BP 


See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24 mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for you. 


Sent from Billy Lang's iPad 



On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote: 





Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you continue 
in pain go see the doctor. 

- Original Message -
From: quadriple...@cox.net 
To: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 1:27:16 PM 
Subject: [QUAD-L] BP 

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G 

Re: [QUAD-L] BP

[diannal767]

I tried Amitiza. Didn't get any results just cramps. I take ALOT of Tramadol.
Diana

See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular.




-Original Message-
From: Billy Lang 
To: jume 
Cc: quadriplegic ; quad-list 
Sent: Tue, Feb 19, 2013 6:15 pm
Subject: Re: [QUAD-L] BP


See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 


You will need to experiment with dosages to find the right balance for you.


Sent from Billy Lang's iPad 




On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:



Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you continue 
in pain go see the doctor.


From: quadriple...@cox.net
To: quad-list@eskimo.com
Sent: Monday, February 18, 2013 1:27:16 PM
Subject: [QUAD-L] BP

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G



 

Re: [QUAD-L] BP

[Toby Ausbun]

Lyrica does anybody use it ? How does it work. ???

Sent from my iPad

On Feb 19, 2013, at 5:15 PM, Billy Lang  wrote:

> See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
> Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
> pills along with fiber keep me regular. 
> 
> You will need to experiment with dosages to find the right balance for you.
> 
> 
> Sent from Billy Lang's iPad 
> 
> 
> On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:
> 
>> Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
>> continue in pain go see the doctor.
>> 
>> From: quadriple...@cox.net
>> To: quad-list@eskimo.com
>> Sent: Monday, February 18, 2013 1:27:16 PM
>> Subject: [QUAD-L] BP
>> 
>> The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
>> nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
>> too much, that hurts just as much. I keep using it more often, but I've 
>> never had to drink Miralax more than 2 times in a week. Then I can go months 
>> without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
>> pain. G
>> 

Re: [QUAD-L] BP

[Billy Lang]

See ur Md. you need to see if ur blocked. Also, ask your Dr. About Amitiza. 
Pill form up to 4,8 or 24  mcg. I take monstrous amounts of opiates and the 
pills along with fiber keep me regular. 

You will need to experiment with dosages to find the right balance for you.


Sent from Billy Lang's iPad 


On Feb 18, 2013, at 19:08, jume9...@comcast.net wrote:

> Try 2 sennakots  or milk of magnesia, eat fruit and lots of it, if you 
> continue in pain go see the doctor.
> 
> From: quadriple...@cox.net
> To: quad-list@eskimo.com
> Sent: Monday, February 18, 2013 1:27:16 PM
> Subject: [QUAD-L] BP
> 
> The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
> nothing has helped. I've tried Miralax, softeners, etc. I don't want to use 
> too much, that hurts just as much. I keep using it more often, but I've never 
> had to drink Miralax more than 2 times in a week. Then I can go months 
> without it. I'm on my like 6th dose in 2 weeks. I want to double over in 
> pain. G
> 

Re: [QUAD-L] BP

[Mike Mills]

Try a Fleet Enema or "situated magnesium". Once you get a bowel movement, take 
a 1/4 to a 3rd of a dose of  MiraLAX daily. Use to always have those little 
hard balls until I started doing this. 


From: Quadius 
To: quadriple...@cox.net 
Cc: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 4:41 PM
Subject: Re: [QUAD-L] BP
 

Whenever I have problems like this, the first thing I do is double up on the 
MiraLAX. Basically take a double dose. If that doesn't work, then I take the 
MiraLAX and use about one third of a bottle of magnesium citrate (I believe 
that's how you spell it).

This happens occasionally. Normally I have the other problem. Lately I've been 
taking anti-diarrhea medication. This is where I can run in the problems 
getting constipated, but I need to do it to be able to function right now.


On Mon, Feb 18, 2013 at 4:27 PM,  wrote:

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G
>
>

Re: [QUAD-L] BP

[jume9999]

Try 2 sennakots or milk of magnesia, eat fruit and lots of it, if you continue 
in pain go see the doctor. 

- Original Message -
From: quadriple...@cox.net 
To: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 1:27:16 PM 
Subject: [QUAD-L] BP 

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G 

Re: [QUAD-L] BP

[donald scott]

The first thing you need to do is figure out the root cause of your hard stool. 
What is your diet like on a average day and what is your fluid intake? You may 
need to drink more water or maybe foods you like eating are causing the hard 
stool. Also look into your medications and see if any of them cause 
constipation. Some suggestions would be drink more water, avoid binding foods 
(find them online), take senna stool softners 2 times daily or more if needed, 
do bowel program at the same time daily or every other day, and lastly find a 
good suppository that works for you. I use magic bullet with a glycerine 
chaser. I have no problems.
 
Good luck,
Donald C6 22 years
 


 From: "quadriple...@cox.net" 
To: quad-list@eskimo.com 
Sent: Monday, February 18, 2013 1:27 PM
Subject: [QUAD-L] BP
  
The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to drink Miralax more than 2 times in a week. Then I can go months without it. 
I'm on my like 6th dose in 2 weeks. I want to double over in pain. G

Re: [QUAD-L] BP

[wheelchair]

Have you contacted your primary doctor?  What did your doctor  say?
Best Wishes
 
 
In a message dated 2/18/2013 3:27:24 P.M. Central Standard Time,  
quadriple...@cox.net writes:

The last  2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has  helped. I've tried Miralax, softeners, etc. I don't want to use 
too much, that  hurts just as much. I keep using it more often, but I've 
never had to drink  Miralax more than 2 times in a week. Then I can go months 
without it. I'm on  my like 6th dose in 2 weeks. I want to double over in 
pain.  G

Re: [QUAD-L] BP

[Quadius]

Whenever I have problems like this, the first thing I do is double up on
the MiraLAX. Basically take a double dose. If that doesn't work, then I
take the MiraLAX and use about one third of a bottle of magnesium citrate
(I believe that's how you spell it).

This happens occasionally. Normally I have the other problem. Lately I've
been taking anti-diarrhea medication. This is where I can run in the
problems getting constipated, but I need to do it to be able to function
right now.

On Mon, Feb 18, 2013 at 4:27 PM,  wrote:

> The last 2 weeks I've had such stomach pains. I've been pooping rocks and
> nothing has helped. I've tried Miralax, softeners, etc. I don't want to use
> too much, that hurts just as much. I keep using it more often, but I've
> never had to drink Miralax more than 2 times in a week. Then I can go
> months without it. I'm on my like 6th dose in 2 weeks. I want to double
> over in pain. G
>
>

Re: [QUAD-L] BP

[Danny Hearn]

If it gets hard or like rocks, you should take stool softeners





From: "quadriple...@cox.net" 
To: quad-list@eskimo.com
Sent: Mon, February 18, 2013 3:28:01 PM
Subject: [QUAD-L] BP

The last 2 weeks I've had such stomach pains. I've been pooping rocks and 
nothing has helped. I've tried Miralax, softeners, etc. I don't want to use too 
much, that hurts just as much. I keep using it more often, but I've never had 
to 
drink Miralax more than 2 times in a week. Then I can go months without it. I'm 
on my like 6th dose in 2 weeks. I want to double over in pain. G

Re: [QUAD-L] Bp?

[shirley bell]

Hi everyone, I go every day with magic bullet. eat a fruit daily lots of water 
and magnesium in my calcium pill helps keep stool soft.
Best,
Shirley Bell

www.ShirleyBellDesigns.com
  - Original Message - 
  From: Quadius 
  To: wheelch...@aol.com 
  Cc: ddh...@sbcglobal.net ; ntpgrn...@aol.com ; quad-list@eskimo.com 
  Sent: Monday, October 08, 2012 5:36 PM
  Subject: Re: [QUAD-L] Bp?


  For about the first seven years I was able to get away with three times a 
week. Unfortunately my body changed and I now require BC every other day.

  I was having a terrible time with gas, loose stool, hemorrhoids and just 
general intestinal problems, but after my doctor told me to lay off Metamucil 
and to cut back on my fiber (not to mention he took me off omeprazole) 
everything got considerably better. I still have difficulties with loose stools 
when I'm at home. I know whenever I'm in the hospital (not on wood hopefully 
will not be for a long one time.) I have problems with constipation. I guess 
it's just a difference in food.

  My bowel regimen has slowed down considerably and I am now considering 
methods other than just magic bullets.

  Whenever I have the possibility of harder stools, I use a couple of different 
stools offers, but my bowels were so sensitive that I can only use them about 8 
to 10 hours before my bowel regimen.


  On Sun, Oct 7, 2012 at 8:37 PM,  wrote:

I understand Dan.  I don't like it, but I truly understand.  I feel for 
those who must "dump" on someone else's time/dime.   You can't go when you want 
to go, only when someone else makes the time and then explain you to "poop" 
when they tell you.  I just wanted you and others know.. that I know and 
understand just how complex Bowel Programs vs Bowel Management can be.
Best Wishes

In a message dated 10/7/2012 6:55:56 P.M. Central Daylight Time, 
ddh...@sbcglobal.net writes:
  I don't know wheel, but they worked with many quads over the years and 2 
times a week has worked for a whole lot of ussome require 3 or more--I 
guess It depends on the person--But several spine specialists said it is 
fine and at twice a week would not cause any serious problems. How does someone 
even get people to do a bowel routine EVERY DAY??? My wife gets burnt out with 
twice a week, lol  -- Lucky me if it was more I'd have to go into a nursing 
home. Plusthe government is running into serious debts and I don't see them 
paying for excessive caregiver time in our near future. More cutbacks are 
expected after the next election or when 2014 part of OBAMACARE kicks 
in---lord help us all.   Dan**




--
  From: "wheelch...@aol.com" 
  To: ddh...@sbcglobal.net; ntpgrn...@aol.com
  Cc: quad-list@eskimo.com
  Sent: Sun, October 7, 2012 6:43:29 PM
  Subject: Re: [QUAD-L] Bp?


  Dan, if one's metabolism truly slows down... it would/could also after 
one's bladder.  Just think if one's collection container was only emptied twice 
a week.  And urine is suppose to be sterile.  Human solid waste is not sterile 
when evacuated either.  Fecal matter, when stuck in the bowel, can be compared 
to garbage in a waste dump.  It develops gas.  Bloating and irritate the bowel 
lining.  What really is ironic is the lack of medical knowledge relative to the 
bowel, even though doctors and nurses who treat you are faced with the same 
issues when they are not regular.  I don't think a whole lot of time is 
relegated to fecal waste in med school, because it is suppose to be a natural 
process until the patient becomes impacted and requires an evasive 
procedure.  When one considers the symptoms of a sluggish bowel and its effects 
on the entire body, one can see why regularity is so important.  That also 
applies to those who know what works best for them.  Remember your bowel is NOT 
a bank and you don't get interest for holding your waste (smiling)
  Best Wishes

  In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time, 
ddh...@sbcglobal.net writes:
Well as far as the bowel program, how often do you do it? in rehab they 
were trying everyday in the beginning and with no results many days then 
the experienced spinal rehab doctors and nurses told us to cut down to twice a 
week--we began doing that and it works greatWe have now done twice a week 
for over 15 years. they told us that a quads metabolism usually slows down and 
2 times a week is fine --some quads go more but once you get your body used to 
it--It works great for many people. ( including myself ) . Good luck, Dan H. 15 
plus years C-6. 





From: "ntpgrn...@aol.com" 
To: quad-list@eskimo.com
Sent: Sun, October 7, 2012 4:17:25 PM
  

Re: [QUAD-L] Bp?

[Quadius]

For about the first seven years I was able to get away with three times a
week. Unfortunately my body changed and I now require BC every other day.

I was having a terrible time with gas, loose stool, hemorrhoids and just
general intestinal problems, but after my doctor told me to lay off
Metamucil and to cut back on my fiber (not to mention he took me off
omeprazole) everything got considerably better. I still have difficulties
with loose stools when I'm at home. I know whenever I'm in the hospital
(not on wood hopefully will not be for a long one time.) I have problems
with constipation. I guess it's just a difference in food.

My bowel regimen has slowed down considerably and I am now considering
methods other than just magic bullets.

Whenever I have the possibility of harder stools, I use a couple of
different stools offers, but my bowels were so sensitive that I can only
use them about 8 to 10 hours before my bowel regimen.

On Sun, Oct 7, 2012 at 8:37 PM,  wrote:

> **
> I understand Dan.  I don't like it, but I truly understand.  I feel for
> those who must "dump" on someone else's time/dime.   You can't go when you
> want to go, only when someone else makes the time and then explain you to
> "poop" when they tell you.  I just wanted you and others know.. that I know
> and understand just how complex Bowel Programs vs Bowel Management can be.
> Best Wishes
>
>  In a message dated 10/7/2012 6:55:56 P.M. Central Daylight Time,
> ddh...@sbcglobal.net writes:
>
>  I don't know wheel, but they worked with many quads over the years and 2
> times a week has worked for a whole lot of ussome require 3 or more--I
> guess It depends on the person--But several spine specialists said it
> is fine and at twice a week would not cause any serious problems. How does
> someone even get people to do a bowel routine EVERY DAY??? My wife gets
> burnt out with twice a week, lol  -- Lucky me if it was more I'd have to go
> into a nursing home. Plusthe government is running into serious debts
> and I don't see them paying for excessive caregiver time in our near
> future. More cutbacks are expected after the next election or when 2014
> part of OBAMACARE kicks in---lord help us all.   Dan**
>
>  --
> *From:* "wheelch...@aol.com" 
> *To:* ddh...@sbcglobal.net; ntpgrn...@aol.com
> *Cc:* quad-list@eskimo.com
> *Sent:* Sun, October 7, 2012 6:43:29 PM
> *Subject:* Re: [QUAD-L] Bp?
>
> Dan, if one's metabolism truly slows down... it would/could also after
> one's bladder.  Just think if one's collection container was only emptied
> twice a week.  And urine is suppose to be sterile.  Human solid waste is
> not sterile when evacuated either.  Fecal matter, when stuck in the bowel,
> can be compared to garbage in a waste dump.  It develops gas.  Bloating and
> irritate the bowel lining.  What really is ironic is the lack of medical
> knowledge relative to the bowel, even though doctors and nurses who treat
> you are faced with the same issues when they are not regular.  I don't
> think a whole lot of time is relegated to fecal waste in med school,
> because it is suppose to be a natural process until the patient becomes
> impacted and requires an evasive procedure.  When one considers the
> symptoms of a sluggish bowel and its effects on the entire body, one can
> see why regularity is so important.  That also applies to those who know
> what works best for them.  Remember your bowel is NOT a bank and you don't
> get interest for holding your waste (smiling)
> Best Wishes
>
>  In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time,
> ddh...@sbcglobal.net writes:
>
>  Well as far as the bowel program, how often do you do it? in rehab they
> were trying everyday in the beginning and with no results many days
> then the experienced spinal rehab doctors and nurses told us to cut down to
> twice a week--we began doing that and it works greatWe have now done
> twice a week for over 15 years. they told us that a quads metabolism
> usually slows down and 2 times a week is fine --some quads go more but once
> you get your body used to it--It works great for many people. ( including
> myself ) . Good luck, Dan H. 15 plus years C-6.
>
>  --
> *From:* "ntpgrn...@aol.com" 
> *To:* quad-list@eskimo.com
> *Sent:* Sun, October 7, 2012 4:17:25 PM
> *Subject:* [QUAD-L] Bp?
>
> How do you find time for bowel program, shower,commuting and work?..I am
> feeling overwhelmed and I am just the mom/caretaker
>
> Sent from my Verizon Wireless 4G LTE Smartphone
>
>

Re: [QUAD-L] Bp?

[Kathy]

 


 From: Danny Hearn 
To: wheelch...@aol.com; ntpgrn...@aol.com 
Cc: quad-list@eskimo.com 
Sent: Sunday, October 7, 2012 7:55 PM
Subject: Re: [QUAD-L] Bp?
  

I don't know wheel, but they worked with many quads over the years and 2 times 
a week has worked for a whole lot of ussome require 3 or more--I guess It 
depends on the person--But several spine specialists said it is fine and at 
twice a week would not cause any serious problems. How does someone even get 
people to do a bowel routine EVERY DAY??? My wife gets burnt out with twice a 
week, lol  -- Lucky me if it was more I'd have to go into a nursing home. 
Plusthe government is running into serious debts and I don't see them 
paying for excessive caregiver time in our near future. More cutbacks are 
expected after the next election or when 2014 part of OBAMACARE kicks 
in---lord help us all.   Dan**
 




 From: "wheelch...@aol.com" 
To: ddh...@sbcglobal.net; ntpgrn...@aol.com
Cc: quad-list@eskimo.com
Sent: Sun, October 7, 2012 6:43:29 PM
Subject: Re: [QUAD-L] Bp?

Dan, if one's metabolism truly slows down... it would/could also after one's 
bladder.  Just think if one's collection container was only emptied twice a 
week.  And urine is suppose to be sterile.  Human solid waste is not sterile 
when evacuated either.  Fecal matter, when stuck in the bowel, can be compared 
to garbage in a waste dump.  It develops gas.  Bloating and irritate the bowel 
lining.  What really is ironic is the lack of medical knowledge relative to the 
bowel, even though doctors and nurses who treat you are faced with the same 
issues when they are not regular.  I don't think a whole lot of time is 
relegated to fecal waste in med school, because it is suppose to be a natural 
process until the patient becomes impacted and requires an evasive 
procedure.  When one considers the symptoms of a sluggish bowel and its effects 
on the entire body, one can see why regularity is so important.  That also 
applies to those who know what works
 best for them.  Remember your bowel is NOT a bank and you don't get interest 
for holding your waste (smiling) 
Best Wishes 

In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time, 
ddh...@sbcglobal.net writes: 
Well as far as the bowel program, how often do you do it? in rehab they were 
trying everyday in the beginning and with no results many days then the 
experienced spinal rehab doctors and nurses told us to cut down to twice a 
week--we began doing that and it works greatWe have now done twice a week 
for over 15 years. they told us that a quads metabolism usually slows down and 
2 times a week is fine --some quads go more but once you get your body used to 
it--It works great for many people. ( including myself ) . Good luck, Dan H. 15 
plus years C-6. 
> 
>
>
>
>
> From: "ntpgrn...@aol.com" 
>To: quad-list@eskimo.com
>Sent: Sun, October 7, 2012 4:17:25 PM
>Subject: [QUAD-L] Bp?
>
>How do you find time for bowel program, shower,commuting and work?..I am 
>feeling overwhelmed and I am just the mom/caretaker
>
>Sent from my Verizon Wireless 4G LTE Smartphone
>
>

Re: [QUAD-L] Bp?

[jume9999]

Oh my gosh Joan, that song will be forever stuck in my head now (on long days 
at least) Ha Ha.Thanks for the laugh! 


Meredith 
- Original Message -
From: "Joan Anglin"  
To: wheelch...@aol.com, ddh...@sbcglobal.net, ntpgrn...@aol.com 
Cc: quad-list@eskimo.com 
Sent: Sunday, October 7, 2012 8:41:58 PM 
Subject: RE: [QUAD-L] Bp? 
















At Santa Clara they worked with us as much as possible to follow whatever 
routine we had had before. I wasn’t an everyday girl, smiling, so we settled on 
every third day. After I got home every third day was a pain in the you know 
what because I could never schedule anything very far ahead. We then changed to 
three days and four days. This worked for years and until I began to have 
problems with one, a twisted intestine, and two, bloating, gas and diarrhea. A 
couple of years ago my gastroenterologist put me in on regular dosages of 
Metamucil, Align and a laxative. It took a couple of weeks but I finally 
stabilized and I now do a bowel program every morning (being sure to drink a 
cup of coffee at least 30 minutes earlier, or tea or hot chocolate works also,) 
and once in awhile it will be 20 minutes, but usually less than 15 minutes. I 
haven’t had a bowel accident in bed or up in the wheelchair for 18 months. Ask 
me if I am now a believer in everyday!!! 

However, each person is unique, and you’ll just have to experiment and find 
what works for your lifestyle. My mother suffered from constipation as long as 
I can remember, and she had a stroke when she was 78 and was definitely a 
problem for us. She had multiple blockages over the years, and she finally died 
from a blockage when she was 91. The doctors thought that she was too frail to 
survive the operation. So I have been cautious and have definitely been aware 
of problems that can arise. 

On a lighter note, the first day I was home from Santa Clara rehab that we had 
to do a bowel care was one I will never forget. My 15 year old daughter and my 
husband had trained at Santa Clara and were confident we have everything under 
control. We didn’t count on my body adjusting very slowly to a new routine. Sea 
level to 5500 feet, totally different diet, less structured routine etc etc and 
so forth. After quite awhile of no results we were all frustrated. The radio 
was playing in the background, country music, and suddenly Hank Williams Sr. 
song begins to play “please release me let me go” and we all collapsed in 
laughter. So whenever we are having a bad BP day, somebody will start to sing 
and that will definitely light up the mood. It does get better, we just have to 
remember that it was probably worse at one time or another. 

Joan C4 

Re: [QUAD-L] Bp?

[Danny Hearn]

LOL ! Wheel---that is funny but true--- we poop on someone else's time/dime  
;-)  Dan*





From: "wheelch...@aol.com" 
To: ddh...@sbcglobal.net; ntpgrn...@aol.com
Cc: quad-list@eskimo.com
Sent: Sun, October 7, 2012 7:37:17 PM
Subject: Re: [QUAD-L] Bp?

I understand Dan.  I don't like it, but I truly understand.  I feel for those 
who must "dump" on someone else's time/dime.   You can't go when you want to 
go, 
only when someone else makes the time and then explain you to "poop" when they 
tell you.  I just wanted you and others know.. that I know and understand just 
how complex Bowel Programs vs Bowel Management can be.
Best Wishes

In a message dated 10/7/2012 6:55:56 P.M. Central Daylight Time, 
ddh...@sbcglobal.net writes:
I don't know wheel, but they worked with many quads over the years and 2 times 
a 
week has worked for a whole lot of ussome require 3 or more--I guess It 
depends on the person--But several spine specialists said it is fine and at 
twice a week would not cause any serious problems. How does someone even get 
people to do a bowel routine EVERY DAY??? My wife gets burnt out with twice a 
week, lol  -- Lucky me if it was more I'd have to go into a nursing home. 
Plusthe government is running into serious debts and I don't see them 
paying 
for excessive caregiver time in our near future. More cutbacks are expected 
after the next election or when 2014 part of OBAMACARE kicks in---lord help 
us all.   Dan**
>
>
>
>

From: "wheelch...@aol.com" 
>To: ddh...@sbcglobal.net; ntpgrn...@aol.com
>Cc: quad-list@eskimo.com
>Sent: Sun, October 7, 2012 6:43:29 PM
>Subject: Re: [QUAD-L] Bp?
>
>Dan, if one's metabolism truly slows down... it would/could also after one's 
>bladder.  Just think if one's collection container was only emptied twice a 
>week.  And urine is suppose to be sterile.  Human solid waste is not sterile 
>when evacuated either.  Fecal matter, when stuck in the bowel, can be compared 
>to garbage in a waste dump.  It develops gas.  Bloating and irritate the bowel 
>lining.  What really is ironic is the lack of medical knowledge relative to 
>the 
>bowel, even though doctors and nurses who treat you are faced with the same 
>issues when they are not regular.  I don't think a whole lot of time is 
>relegated to fecal waste in med school, because it is suppose to be a natural 
>process until the patient becomes impacted and requires an evasive 
>procedure.  When one considers the symptoms of a sluggish bowel and its 
>effects 
>on the entire body, one can see why regularity is so important.  That also 
>applies to those who know what works best for them.  Remember your bowel is 
>NOT 
>a bank and you don't get interest for holding your waste (smiling)
>Best Wishes
>
>In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time, 
>ddh...@sbcglobal.net writes:
>Well as far as the bowel program, how often do you do it? in rehab they were 
>trying everyday in the beginning and with no results many days then the 
>experienced spinal rehab doctors and nurses told us to cut down to twice a 
>week--we began doing that and it works greatWe have now done twice a week 
>for over 15 years. they told us that a quads metabolism usually slows down and 
>2 
>times a week is fine --some quads go more but once you get your body used to 
>it--It works great for many people. ( including myself ) . Good luck, Dan H. 
>15 
>plus years C-6. 
>
>>
>>
>>
>>

From: "ntpgrn...@aol.com" 
>>To: quad-list@eskimo.com
>>Sent: Sun, October 7, 2012 4:17:25 PM
>>Subject: [QUAD-L] Bp?
>>
>>How do you find time for bowel program, shower,commuting and work?..I am 
>>feeling 
>>overwhelmed and I am just the mom/caretaker
>>
>>Sent from my Verizon Wireless 4G LTE Smartphone
>>
>>

Re: [QUAD-L] Bp?

[Danny Hearn]

You guys are right-- our bodies are different and we all need to pay attention 
and find what works best -- being coffee or medamucil or other methods that may 
help---I have an able bodied son that must take nexium?the purple pill i think 
it is...everyday or he has serious stomach problems, but with that he is 
fine--To sum it upfind what methods or products work best for your body an 
routines.  Dan H.*





From: Joan Anglin 
To: wheelch...@aol.com; ddh...@sbcglobal.net; ntpgrn...@aol.com
Cc: quad-list@eskimo.com
Sent: Sun, October 7, 2012 10:43:23 PM
Subject: RE: [QUAD-L] Bp?


At Santa Clara they worked with us as much as possible to follow whatever 
routine we had had before.  I wasn’t an everyday girl, smiling, so we settled 
on 
every third day.  After I got home every third day was a pain in the you know 
what because I could never schedule anything very far ahead.  We then changed 
to 
three days and four days.  This worked for years and until I began to have 
problems with one, a twisted intestine, and two, bloating, gas and diarrhea.  A 
couple of years ago my gastroenterologist put me in on regular dosages of 
Metamucil, Align and a laxative.  It took a couple of weeks but I finally 
stabilized and I now do a bowel program every morning (being sure to drink a 
cup 
of coffee at least 30 minutes earlier, or tea or hot chocolate works also,) and 
once in awhile it will be 20 minutes, but usually less than 15 minutes.  I 
haven’t had a bowel accident in bed or up in the wheelchair for 18 months.  Ask 
me if I am now a believer in everyday!!!
>>However, each person is unique, and you’ll just have to experiment and find 
>>what 
>>works for your lifestyle.  My mother suffered from constipation as long as I 
>>can 
>>remember, and she had a stroke when she was 78 and was definitely a problem 
>>for 
>>us.  She had multiple blockages over the years, and she finally died from a 
>>blockage when she was 91.  The doctors thought that she was too frail to 
>>survive 
>>the operation.  So I have been cautious and have definitely been aware of 
>>problems that can arise.
>>On a lighter note, the first day I was home from Santa Clara rehab that we 
>>had 
>>to do a bowel care was one I will never forget.  My 15 year old daughter and 
>>my 
>>husband had trained at Santa Clara and were confident we have everything 
>>under 
>>control.  We didn’t count on my body adjusting very slowly to a new routine.  
>>Sea level to 5500 feet, totally different diet, less structured routine etc 
>>etc 
>>and so forth.  After quite awhile of no results we were all frustrated.  The 
>>radio was playing in the background, country music, and suddenly Hank 
>>Williams 
>>Sr.  song begins to play “please release me let me go” and we all collapsed 
>>in 
>>laughter.  So whenever we are having a bad BP day, somebody will start to 
>>sing 
>>and that will definitely light up the mood.  It does get better, we just have 
>>to 
>>remember that it was probably worse at one time or another.
>>Joan C4

RE: [QUAD-L] Bp?

[Joan Anglin]

At Santa Clara they worked with us as much as possible to follow whatever
routine we had had before.  I wasn't an everyday girl, smiling, so we
settled on every third day.  After I got home every third day was a pain in
the you know what because I could never schedule anything very far ahead.
We then changed to three days and four days.  This worked for years and
until I began to have problems with one, a twisted intestine, and two,
bloating, gas and diarrhea.  A couple of years ago my gastroenterologist put
me in on regular dosages of Metamucil, Align and a laxative.  It took a
couple of weeks but I finally stabilized and I now do a bowel program every
morning (being sure to drink a cup of coffee at least 30 minutes earlier, or
tea or hot chocolate works also,) and once in awhile it will be 20 minutes,
but usually less than 15 minutes.  I haven't had a bowel accident in bed or
up in the wheelchair for 18 months.  Ask me if I am now a believer in
everyday!!!

However, each person is unique, and you'll just have to experiment and find
what works for your lifestyle.  My mother suffered from constipation as long
as I can remember, and she had a stroke when she was 78 and was definitely a
problem for us.  She had multiple blockages over the years, and she finally
died from a blockage when she was 91.  The doctors thought that she was too
frail to survive the operation.  So I have been cautious and have definitely
been aware of problems that can arise.

On a lighter note, the first day I was home from Santa Clara rehab that we
had to do a bowel care was one I will never forget.  My 15 year old daughter
and my husband had trained at Santa Clara and were confident we have
everything under control.  We didn't count on my body adjusting very slowly
to a new routine.  Sea level to 5500 feet, totally different diet, less
structured routine etc etc and so forth.  After quite awhile of no results
we were all frustrated.  The radio was playing in the background, country
music, and suddenly Hank Williams Sr.  song begins to play "please release
me let me go" and we all collapsed in laughter.  So whenever we are having a
bad BP day, somebody will start to sing and that will definitely light up
the mood.  It does get better, we just have to remember that it was probably
worse at one time or another.

Joan C4

Re: [QUAD-L] Bp?

[wheelchair]

I understand Dan.  I don't like it, but I truly understand.  I  feel for 
those who must "dump" on someone else's time/dime.   You  can't go when you 
want to go, only when someone else makes the time and then  explain you to 
"poop" when they tell you.  I just wanted you and others  know.. that I know 
and understand just how complex Bowel Programs vs Bowel  Management can be.
Best Wishes
 
 
In a message dated 10/7/2012 6:55:56 P.M. Central Daylight Time,  
ddh...@sbcglobal.net writes:

 
I don't know wheel, but they worked with many quads over the years and 2  
times a week has worked for a whole lot of ussome require 3 or more--I  
guess It depends on the person--But several spine specialists said it is  
fine and at twice a week would not cause any serious problems. How does  
someone even get people to do a bowel routine EVERY DAY??? My wife gets burnt  
out with twice a week, lol  -- Lucky me if it was more I'd have to go  into 
a nursing home. Plusthe government is running into serious debts and  I 
don't see them paying for excessive caregiver time in our near future. More 
 cutbacks are expected after the next election or when 2014 part of 
OBAMACARE  kicks in---lord help us all.   Dan**


 

 From: "wheelch...@aol.com"  
To: ddh...@sbcglobal.net;  ntpgrn...@aol.com
Cc:  quad-list@eskimo.com
Sent:  Sun, October 7, 2012 6:43:29 PM
Subject: Re: [QUAD-L]  Bp?

Dan, if one's metabolism truly slows down... it would/could also after  
one's bladder.  Just think if one's collection container was only emptied  
twice a week.  And urine is suppose to be sterile.  Human solid  waste is not 
sterile when evacuated either.  Fecal matter, when stuck in  the bowel, can be 
compared to garbage in a waste dump.  It develops  gas.  Bloating and 
irritate the bowel lining.  What really is ironic  is the lack of medical 
knowledge relative to the bowel, even though doctors  and nurses who treat you 
are 
faced with the same issues when they are not  regular.  I don't think a 
whole lot of time is relegated to fecal waste  in med school, because it is 
suppose to be a natural process until the  patient becomes impacted and 
requires an evasive procedure.  When one  considers the symptoms of a sluggish 
bowel and its effects on the entire body,  one can see why regularity is so 
important.  That also applies to those  who know what works best for them.  
Remember your bowel is NOT a bank and  you don't get interest for holding 
your waste (smiling)
Best Wishes
 
 
In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time,  
ddh...@sbcglobal.net writes:

 
Well as far as the bowel program, how often do you do it? in rehab they  
were trying everyday in the beginning and with no results many days then  
the experienced spinal rehab doctors and nurses told us to cut down to twice 
 a week--we began doing that and it works greatWe have now done twice a 
 week for over 15 years. they told us that a quads metabolism usually slows 
 down and 2 times a week is fine --some quads go more but once you get your 
 body used to it--It works great for many people. ( including myself ) . 
Good  luck, Dan H. 15 plus years C-6. 


 

 From: "ntpgrn...@aol.com"  
To: quad-list@eskimo.com
Sent: Sun, October 7, 2012 4:17:25  PM
Subject: [QUAD-L]  Bp?

How do you find time for bowel program, shower,commuting  and work?..I am 
feeling overwhelmed and I am just the  mom/caretaker

Sent from my Verizon Wireless 4G LTE  Smartphone

Re: [QUAD-L] Bp?

[Bobbie Humphreys]

At Kessler they teach new spinal cord people to do a BP program EVERYDAY! I do 
not agree with this at all.   Bobbie


Sent from my iPad

On Oct 7, 2012, at 7:55 PM, Danny Hearn  wrote:

> I don't know wheel, but they worked with many quads over the years and 2 
> times a week has worked for a whole lot of ussome require 3 or more--I 
> guess It depends on the person--But several spine specialists said it is 
> fine and at twice a week would not cause any serious problems. How does 
> someone even get people to do a bowel routine EVERY DAY??? My wife gets burnt 
> out with twice a week, lol  -- Lucky me if it was more I'd have to go into a 
> nursing home. Plusthe government is running into serious debts and I 
> don't see them paying for excessive caregiver time in our near future. More 
> cutbacks are expected after the next election or when 2014 part of OBAMACARE 
> kicks in---lord help us all.   Dan**
> 
> From: "wheelch...@aol.com" 
> To: ddh...@sbcglobal.net; ntpgrn...@aol.com
> Cc: quad-list@eskimo.com
> Sent: Sun, October 7, 2012 6:43:29 PM
> Subject: Re: [QUAD-L] Bp?
> 
> Dan, if one's metabolism truly slows down... it would/could also after one's 
> bladder.  Just think if one's collection container was only emptied twice a 
> week.  And urine is suppose to be sterile.  Human solid waste is not sterile 
> when evacuated either.  Fecal matter, when stuck in the bowel, can be 
> compared to garbage in a waste dump.  It develops gas.  Bloating and irritate 
> the bowel lining.  What really is ironic is the lack of medical knowledge 
> relative to the bowel, even though doctors and nurses who treat you are faced 
> with the same issues when they are not regular.  I don't think a whole lot of 
> time is relegated to fecal waste in med school, because it is suppose to be a 
> natural process until the patient becomes impacted and requires an 
> evasive procedure.  When one considers the symptoms of a sluggish bowel and 
> its effects on the entire body, one can see why regularity is so important.  
> That also applies to those who know what works best for them.  Remember your 
> bowel is NOT a bank and you don't get interest for holding your waste 
> (smiling)
> Best Wishes
>  
> In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time, 
> ddh...@sbcglobal.net writes:
> Well as far as the bowel program, how often do you do it? in rehab they were 
> trying everyday in the beginning and with no results many days then the 
> experienced spinal rehab doctors and nurses told us to cut down to twice a 
> week--we began doing that and it works greatWe have now done twice a week 
> for over 15 years. they told us that a quads metabolism usually slows down 
> and 2 times a week is fine --some quads go more but once you get your body 
> used to it--It works great for many people. ( including myself ) . Good luck, 
> Dan H. 15 plus years C-6. 
> 
> From: "ntpgrn...@aol.com" 
> To: quad-list@eskimo.com
> Sent: Sun, October 7, 2012 4:17:25 PM
> Subject: [QUAD-L] Bp?
> 
> How do you find time for bowel program, shower,commuting and work?..I am 
> feeling overwhelmed and I am just the mom/caretaker
> 
> Sent from my Verizon Wireless 4G LTE Smartphone
> 

Re: [QUAD-L] Bp?

[jume9999]

Actually I heard that Obamacare will help, that is my understanding. I have 
voluntered with Bera for Congress here in Cali and have heard the pros and 
cons. 

Meredith 

- Original Message -
From: "Danny Hearn"  
To: wheelch...@aol.com, ntpgrn...@aol.com 
Cc: quad-list@eskimo.com 
Sent: Sunday, October 7, 2012 4:55:55 PM 
Subject: Re: [QUAD-L] Bp? 



I don't know wheel, but they worked with many quads over the years and 2 times 
a week has worked for a whole lot of ussome require 3 or more--I guess It 
depends on the person--But several spine specialists said it is fine and at 
twice a week would not cause any serious problems. How does someone even get 
people to do a bowel routine EVERY DAY??? My wife gets burnt out with twice a 
week, lol -- Lucky me if it was more I'd have to go into a nursing home. 
Plusthe government is running into serious debts and I don't see them 
paying for excessive caregiver time in our near future. More cutbacks are 
expected after the next election or when 2014 part of OBAMACARE kicks 
in---lord help us all. Dan** 




From: "wheelch...@aol.com"  
To: ddh...@sbcglobal.net; ntpgrn...@aol.com 
Cc: quad-list@eskimo.com 
Sent: Sun, October 7, 2012 6:43:29 PM 
Subject: Re: [QUAD-L] Bp? 


Dan, if one's metabolism truly slows down... it would/could also after one's 
bladder. Just think if one's collection container was only emptied twice a 
week. And urine is suppose to be sterile. Human solid waste is not sterile when 
evacuated either. Fecal matter, when stuck in the bowel, can be compared to 
garbage in a waste dump. It develops gas. Bloating and irritate the bowel 
lining. What really is ironic is the lack of medical knowledge relative to the 
bowel, even though doctors and nurses who treat you are faced with the same 
issues when they are not regular. I don't think a whole lot of time is 
relegated to fecal waste in med school, because it is suppose to be a natural 
process until the patient becomes impacted and requires an evasive 
procedure. When one considers the symptoms of a sluggish bowel and its effects 
on the entire body, one can see why regularity is so important. That also 
applies to those who know what works best for them. Remember your bowel is NOT 
a bank and you don't get interest for holding your waste (smiling) 
Best Wishes 


In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time, 
ddh...@sbcglobal.net writes: 



Well as far as the bowel program, how often do you do it? in rehab they were 
trying everyday in the beginning and with no results many days then the 
experienced spinal rehab doctors and nurses told us to cut down to twice a 
week--we began doing that and it works greatWe have now done twice a week 
for over 15 years. they told us that a quads metabolism usually slows down and 
2 times a week is fine --some quads go more but once you get your body used to 
it--It works great for many people. ( including myself ) . Good luck, Dan H. 15 
plus years C-6. 




From: "ntpgrn...@aol.com"  
To: quad-list@eskimo.com 
Sent: Sun, October 7, 2012 4:17:25 PM 
Subject: [QUAD-L] Bp? 

How do you find time for bowel program, shower,commuting and work?..I am 
feeling overwhelmed and I am just the mom/caretaker 

Sent from my Verizon Wireless 4G LTE Smartphone 

Re: [QUAD-L] Bp?

[Danny Hearn]

I don't know wheel, but they worked with many quads over the years and 2 times 
a 
week has worked for a whole lot of ussome require 3 or more--I guess It 
depends on the person--But several spine specialists said it is fine and at 
twice a week would not cause any serious problems. How does someone even get 
people to do a bowel routine EVERY DAY??? My wife gets burnt out with twice a 
week, lol  -- Lucky me if it was more I'd have to go into a nursing home. 
Plusthe government is running into serious debts and I don't see them 
paying 
for excessive caregiver time in our near future. More cutbacks are expected 
after the next election or when 2014 part of OBAMACARE kicks in---lord help 
us all.   Dan**





From: "wheelch...@aol.com" 
To: ddh...@sbcglobal.net; ntpgrn...@aol.com
Cc: quad-list@eskimo.com
Sent: Sun, October 7, 2012 6:43:29 PM
Subject: Re: [QUAD-L] Bp?

Dan, if one's metabolism truly slows down... it would/could also after one's 
bladder.  Just think if one's collection container was only emptied twice a 
week.  And urine is suppose to be sterile.  Human solid waste is not sterile 
when evacuated either.  Fecal matter, when stuck in the bowel, can be compared 
to garbage in a waste dump.  It develops gas.  Bloating and irritate the bowel 
lining.  What really is ironic is the lack of medical knowledge relative to the 
bowel, even though doctors and nurses who treat you are faced with the same 
issues when they are not regular.  I don't think a whole lot of time is 
relegated to fecal waste in med school, because it is suppose to be a natural 
process until the patient becomes impacted and requires an evasive 
procedure.  When one considers the symptoms of a sluggish bowel and its effects 
on the entire body, one can see why regularity is so important.  That also 
applies to those who know what works best for them.  Remember your bowel is NOT 
a bank and you don't get interest for holding your waste (smiling)
Best Wishes

In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time, 
ddh...@sbcglobal.net writes:
Well as far as the bowel program, how often do you do it? in rehab they were 
trying everyday in the beginning and with no results many days then the 
experienced spinal rehab doctors and nurses told us to cut down to twice a 
week--we began doing that and it works greatWe have now done twice a week 
for over 15 years. they told us that a quads metabolism usually slows down and 
2 
times a week is fine --some quads go more but once you get your body used to 
it--It works great for many people. ( including myself ) . Good luck, Dan H. 15 
plus years C-6. 

>
>
>
>

From: "ntpgrn...@aol.com" 
>To: quad-list@eskimo.com
>Sent: Sun, October 7, 2012 4:17:25 PM
>Subject: [QUAD-L] Bp?
>
>How do you find time for bowel program, shower,commuting and work?..I am 
>feeling 
>overwhelmed and I am just the mom/caretaker
>
>Sent from my Verizon Wireless 4G LTE Smartphone
>
>

Re: [QUAD-L] Bp?

[wheelchair]

Dan, if one's metabolism truly slows down... it would/could also after  
one's bladder.  Just think if one's collection container was only emptied  
twice a week.  And urine is suppose to be sterile.  Human solid waste  is not 
sterile when evacuated either.  Fecal matter, when stuck in the  bowel, can be 
compared to garbage in a waste dump.  It develops gas.   Bloating and 
irritate the bowel lining.  What really is ironic is the lack  of medical 
knowledge relative to the bowel, even though doctors and nurses who  treat you 
are 
faced with the same issues when they are not regular.  I  don't think a 
whole lot of time is relegated to fecal waste in med school,  because it is 
suppose to be a natural process until the patient becomes  impacted and 
requires an evasive procedure.  When one considers the  symptoms of a sluggish 
bowel and its effects on the entire body, one can see why  regularity is so 
important.  That also applies to those who know what works  best for them.  
Remember your bowel is NOT a bank and you don't get  interest for holding 
your waste (smiling)
Best Wishes
 
 
In a message dated 10/7/2012 4:41:15 P.M. Central Daylight Time,  
ddh...@sbcglobal.net writes:

 
Well as far as the bowel program, how often do you do it? in rehab they  
were trying everyday in the beginning and with no results many days then  
the experienced spinal rehab doctors and nurses told us to cut down to twice 
a  week--we began doing that and it works greatWe have now done twice a 
week  for over 15 years. they told us that a quads metabolism usually slows 
down and  2 times a week is fine --some quads go more but once you get your 
body used to  it--It works great for many people. ( including myself ) . 
Good luck, Dan H.  15 plus years C-6. 


 

 From: "ntpgrn...@aol.com"  
To:  quad-list@eskimo.com
Sent:  Sun, October 7, 2012 4:17:25 PM
Subject: [QUAD-L] Bp?

How  do you find time for bowel program, shower,commuting and work?..I am 
feeling  overwhelmed and I am just the mom/caretaker

Sent from my Verizon  Wireless 4G LTE  Smartphone

Re: [QUAD-L] Bp?

[Danny Hearn]

Well as far as the bowel program, how often do you do it? in rehab they were 
trying everyday in the beginning and with no results many days then the 
experienced spinal rehab doctors and nurses told us to cut down to twice a 
week--we began doing that and it works greatWe have now done twice a week 
for over 15 years. they told us that a quads metabolism usually slows down and 
2 
times a week is fine --some quads go more but once you get your body used to 
it--It works great for many people. ( including myself ) . Good luck, Dan H. 15 
plus years C-6. 






From: "ntpgrn...@aol.com" 
To: quad-list@eskimo.com
Sent: Sun, October 7, 2012 4:17:25 PM
Subject: [QUAD-L] Bp?

How do you find time for bowel program, shower,commuting and work?..I am 
feeling 
overwhelmed and I am just the mom/caretaker

Sent from my Verizon Wireless 4G LTE Smartphone

Re: [QUAD-L] BP Lidocaine?

[lindakrn]

Greg 

I never used lidocaine but accidentally used hand sanitizer once, did't hurt me 
though, got a lot of laughs!ho,ho,ho 

Lindaf 

Re: [QUAD-L] BP Lidocaine?

[LJT]

Hi Greg,
During my bowel program, I use a combination of regular lubricant gel as well 
as Lidocaine in a 70/30 ratio, respectively. 

Lucinda
C-4,5 complete
July 31, '05  Mpls., MN   

--- On Tue, 12/6/11, greg  wrote:

From: greg 
Subject: [QUAD-L] BP Lidocaine?
To: quad-list@eskimo.com
Date: Tuesday, December 6, 2011, 5:18 PM

I sweat so bad while doing the dig-stim when doing my BP. My meds 
and age have really slowed it down.
I know enemeez used to have a "Pro" style that had some Lidocaine in it. Though 
it never helped me.
Anyone ever use just straight Lidocaine instead of just regular gel?
Could that be harmful in any way you think?
Greg

Re: [QUAD-L] BP Lidocaine?

[wheelchair]

Don't think Enemeez or Therevac used Lidocaine as that would require a  
medical Rx.  Both products were sold over the counter. 2 percent Lidocaine  was 
used on cath equipment.
Best Wishes
 
 
In a message dated 12/6/2011 5:19:13 P.M. Central Standard Time,  
g...@eskimo.com writes:

I sweat  so bad while doing the dig-stim when doing my BP. My 
meds and age  have really slowed it down.
I know enemeez used to have a "Pro" style that  had some Lidocaine in it. 
Though it never helped me.
Anyone ever use just  straight Lidocaine instead of just regular gel?
Could that be harmful in  any way you think?
Greg

RE: [QUAD-L] BP

[Wendy Sell]

I have noticed if my pants are tighter than usual that day I get more
discharge from my stoma too.

 

AD kicks my butt too! Wipes me right out. When I go into AD and my bp hits
the roof, first the goose bumps,  2 sweating, 3  then a lump in my throat, 4
then feeling my pulse in my ears,5  a vicious headache I end up sitting
myself up  at a 90 degree angle, and taking a 0.1 mg of clonadine (sp).
Brings my bp right down. Cause is usually my bowels, during my bowel
program. Fun times..

Pain brings it on to the point of goose bumps and sweating, but sometimes I
shake too.

Wendy

c-6  incomplete

almost 7 years post.

From: Quadius [mailto:quad...@gmail.com] 
Sent: Saturday, June 20, 2009 5:45 PM
To: e m treston
Cc: quad-list
Subject: Re: [QUAD-L] BP

 

Thanks everyone for the input.

Last night I had my PCA deflate the balloon on my catheter and push it in
the bladder a little more.  I was suspicious about the large amounts of
discharge I have been getting out of my stoma.  This is definitely not
normal, nor is the amount of bladder pain.  Although, most of the time the
bladder pain doesn't seem to manifest itself until I am lying in bed.  At
least that has been the case over the last week.

Anyway, I think my balloon might have lost some saline and may have moved
slightly out of the bladder, therefore causing a lot of the problem.  That's
my hypothesis right now and since my blood pressure seems to be staying
under control today, it may actually be what happened.

I'll let you know and once again thanks for the feedback.
Quadius
PS as everyone knows, these bouts with AD are extraordinarily fatiguing me
to the extreme.

On Sat, Jun 20, 2009 at 5:33 PM, Quadius  wrote:

yes, I take 5 mg of oxybutynin a day and 10 mg on bowel care days.

 

On Fri, Jun 19, 2009 at 2:38 PM, e m treston  wrote:

do you take ditropan or something similar?

 

  _  

From: Quadius [mailto:quad...@gmail.com] 
Sent: Friday, June 19, 2009 2:30 PM
To: quad-list
Subject: [QUAD-L] BP

I was experiencing some severe fatigue problems over the last three or four
weeks and I now believe it's because my blood pressure has been spiking up
and I wasn't aware of it.  Earlier this week I got a slight headache, so I
decided to have my PCA checked the BP and it was 140/94, but it ended up
going out to 160/103.

The problem is I knew my bladder was okay and my bowels had just been indeed
the night before, so we checked the skin, look for any possible infection
sites, made sure I had no ingrown toenails or any other thing that causes
autonomic dysreflexia (AD).  After being totally flummoxed, I had the PCA
but the nitrogen gel on me to lower the BP and then we irrigated the
bladder.  The blood pressure stayed up for a while and then eventually
dropped.  The main problem is my BP continues to spike every morning and I
have gotten to the point where I don't even have a headache any longer when
my BP is pretty high.

I went in to see the doctor and explained what was going on.  He was
thinking that this might be the same thing I thought, bladder stones.  I
have had a history of bladder stones, so I had called in earlier trying to
get a sonogram schedule.  Well, the sonogram was today and it showed no
stones in the bladder, gallbladder and a very small calcification in the
left kidney, but it's not obstructing anything.  I probably forgot to
mention that I am having bladder discomfort, but is not associated with a
UTI (they discounted this during the Tuesday clinic visit) or bladder
stones.  I have a suprapubic and normally have no problem with it, however,
lately I have been having a lot more discharge around the stoma and even a
little bit of blood every other day or so.

My bowels do cause me discomfort, but I don't think it's enough to actually
put me into AD.  They have in the past caused AD, but I have pretty good
sensation in the bowels and the bladder.  Anyway, I would like to hear any
of your thoughts about what might be causing my BP to spike every morning.
I have occasionally had problems in the wheelchair, but thankfully it's not
producing AD.

Thanks for your feedback,
Quadius

 

 

Re: [QUAD-L] BP

[Quadius]

Thanks everyone for the input.

Last night I had my PCA deflate the balloon on my catheter and push it in
the bladder a little more.  I was suspicious about the large amounts of
discharge I have been getting out of my stoma.  This is definitely not
normal, nor is the amount of bladder pain.  Although, most of the time the
bladder pain doesn't seem to manifest itself until I am lying in bed.  At
least that has been the case over the last week.

Anyway, I think my balloon might have lost some saline and may have moved
slightly out of the bladder, therefore causing a lot of the problem.  That's
my hypothesis right now and since my blood pressure seems to be staying
under control today, it may actually be what happened.

I'll let you know and once again thanks for the feedback.
Quadius
PS as everyone knows, these bouts with AD are extraordinarily fatiguing me
to the extreme.

On Sat, Jun 20, 2009 at 5:33 PM, Quadius  wrote:

> yes, I take 5 mg of oxybutynin a day and 10 mg on bowel care days.
>
>
> On Fri, Jun 19, 2009 at 2:38 PM, e m treston wrote:
>
>>  do you take ditropan or something similar?
>>
>>  --
>> *From:* Quadius [mailto:quad...@gmail.com]
>> *Sent:* Friday, June 19, 2009 2:30 PM
>> *To:* quad-list
>> *Subject:* [QUAD-L] BP
>>
>> I was experiencing some severe fatigue problems over the last three or
>> four weeks and I now believe it's because my blood pressure has been spiking
>> up and I wasn't aware of it.  Earlier this week I got a slight headache, so
>> I decided to have my PCA checked the BP and it was 140/94, but it ended up
>> going out to 160/103.
>>
>> The problem is I knew my bladder was okay and my bowels had just been
>> indeed the night before, so we checked the skin, look for any possible
>> infection sites, made sure I had no ingrown toenails or any other thing that
>> causes autonomic dysreflexia (AD).  After being totally flummoxed, I had the
>> PCA but the nitrogen gel on me to lower the BP and then we irrigated the
>> bladder.  The blood pressure stayed up for a while and then eventually
>> dropped.  The main problem is my BP continues to spike every morning and I
>> have gotten to the point where I don't even have a headache any longer when
>> my BP is pretty high.
>>
>> I went in to see the doctor and explained what was going on.  He was
>> thinking that this might be the same thing I thought, bladder stones.  I
>> have had a history of bladder stones, so I had called in earlier trying to
>> get a sonogram schedule.  Well, the sonogram was today and it showed no
>> stones in the bladder, gallbladder and a very small calcification in the
>> left kidney, but it's not obstructing anything.  I probably forgot to
>> mention that I am having bladder discomfort, but is not associated with a
>> UTI (they discounted this during the Tuesday clinic visit) or bladder
>> stones.  I have a suprapubic and normally have no problem with it, however,
>> lately I have been having a lot more discharge around the stoma and even a
>> little bit of blood every other day or so.
>>
>> My bowels do cause me discomfort, but I don't think it's enough to
>> actually put me into AD.  They have in the past caused AD, but I have pretty
>> good sensation in the bowels and the bladder.  Anyway, I would like to hear
>> any of your thoughts about what might be causing my BP to spike every
>> morning.  I have occasionally had problems in the wheelchair, but thankfully
>> it's not producing AD.
>>
>> Thanks for your feedback,
>> Quadius
>>
>
>

Re: [QUAD-L] BP

[Quadius]

yes, I take 5 mg of oxybutynin a day and 10 mg on bowel care days.

On Fri, Jun 19, 2009 at 2:38 PM, e m treston  wrote:

>  do you take ditropan or something similar?
>
>  --
> *From:* Quadius [mailto:quad...@gmail.com]
> *Sent:* Friday, June 19, 2009 2:30 PM
> *To:* quad-list
> *Subject:* [QUAD-L] BP
>
> I was experiencing some severe fatigue problems over the last three or four
> weeks and I now believe it's because my blood pressure has been spiking up
> and I wasn't aware of it.  Earlier this week I got a slight headache, so I
> decided to have my PCA checked the BP and it was 140/94, but it ended up
> going out to 160/103.
>
> The problem is I knew my bladder was okay and my bowels had just been
> indeed the night before, so we checked the skin, look for any possible
> infection sites, made sure I had no ingrown toenails or any other thing that
> causes autonomic dysreflexia (AD).  After being totally flummoxed, I had the
> PCA but the nitrogen gel on me to lower the BP and then we irrigated the
> bladder.  The blood pressure stayed up for a while and then eventually
> dropped.  The main problem is my BP continues to spike every morning and I
> have gotten to the point where I don't even have a headache any longer when
> my BP is pretty high.
>
> I went in to see the doctor and explained what was going on.  He was
> thinking that this might be the same thing I thought, bladder stones.  I
> have had a history of bladder stones, so I had called in earlier trying to
> get a sonogram schedule.  Well, the sonogram was today and it showed no
> stones in the bladder, gallbladder and a very small calcification in the
> left kidney, but it's not obstructing anything.  I probably forgot to
> mention that I am having bladder discomfort, but is not associated with a
> UTI (they discounted this during the Tuesday clinic visit) or bladder
> stones.  I have a suprapubic and normally have no problem with it, however,
> lately I have been having a lot more discharge around the stoma and even a
> little bit of blood every other day or so.
>
> My bowels do cause me discomfort, but I don't think it's enough to actually
> put me into AD.  They have in the past caused AD, but I have pretty good
> sensation in the bowels and the bladder.  Anyway, I would like to hear any
> of your thoughts about what might be causing my BP to spike every morning.
> I have occasionally had problems in the wheelchair, but thankfully it's not
> producing AD.
>
> Thanks for your feedback,
> Quadius
>

Re: [QUAD-L] BP

[John S.]

Larry pretty much hit the nail on the head. It is AD. It will kill you. Now is 
when you see a doctor because they won't know WTF your talking about in the ER. 
Keep meds on hand to control it as best you can or control it untill help 
arrives. 
The trigger is an overflow of stimulus moving up the spine and then dumping to 
the Autonomic nervous system. Most doctors are more involved than my 3 P's 
(pee, poo, pain), but most agree it is a simplistic way to get the ER staff 
moving.
My living Will stipulates that in case of a stroke or serious heart attack, I'm 
to be made comfortable. Discuss this with your doctor! Keep your Emergency 
papers where ambulance crew can get them easily. 

BW,
john




From: William Willis 
To: quad-list@eskimo.com
Sent: Friday, June 19, 2009 4:13:00 PM
Subject: FW: [QUAD-L] BP

I too have that problem. It hits me during morning cath/bowel routine and when 
I roll to my back. it starts with stomach spasms, then headache, then labored 
breathing.
 As  you know, it is a bit of hell. I don't know exactly what  triggers  it 
either, but it has nearly killed me twice. Larry

Date: Fri, 19 Jun 2009 19:02:51 +
From: linda...@comcast.net
To: Quad-list@eskimo.com
Subject: Re: [QUAD-L] BP


Hi,
Wow, sounds exactly what is going on with me except for the temps. We have done 
what you have with checking for pressure problems & found nothing. My urine 
looks good with some yeasty looking stuff but not that bad. It's got me 
stumped. My right foot is having more spasms with no sores. Like you said, any 
ideas of what might be causing the problem?
Lindaf


Bing™ brings you maps, menus, and reviews organized in one place. Try it now. 


  

Re: [QUAD-L] BP

[John S.]

My blood pressure is rediculous. It can be high in the morning and low by noon. 
Your history of stones leads me to believe your decalsifying like an astronaut. 
Osteoporosis doesn't cause high blood pressure, but you may find some joint 
damage where enough pain is sending an overload to your autonomic nervous 
system. 
If you are doing range of motion, give it a break and see if your BP stays more 
normal. Just getting up in my chair use to cause spikes in my bp. Since I began 
taking atenelol my bp stays pretty much under control. It still can drop low 
fast but if I lean to  the left and add weight to my worst hip, my bp comes 
right up. Coffee can work too.
You seem certain your high BP is not from urinary tract (pee) or bowels (poo), 
so its almost certain to be a result or pain. The three P's of AD. 
So, you need to discuss this with your doctor. It will not get better and you 
should be prepared for any possibility. 
All of us should take the time to set up a living will and durable power of 
attorney. I think many of us do not want to be in any veggy garden and AD can 
do that so fast and come on suddenly. What Quadius describes is a slowly 
creeping form of AD. 
Most quads think AD is a typical part of living with a spinal injury. My 
experience has been, this is a countdown clock. The worse your condition 
becomes, the more often you feel the symptoms. The more frequent and 
intolerable these episodes become, the closer we get to the last one. 
I don't mean to sound morbid or overly urgent, but I think most of the folks in 
the group want to know and understand what is serious and what is just 
irritating.

BW
john





From: Quadius 
To: quad-list 
Sent: Friday, June 19, 2009 2:29:33 PM
Subject: [QUAD-L] BP

I was experiencing some severe fatigue problems over the last three or four 
weeks and I now believe it's because my blood pressure has been spiking up and 
I wasn't aware of it.  Earlier this week I got a slight headache, so I decided 
to have my PCA checked the BP and it was 140/94, but it ended up going out to 
160/103.

The problem is I knew my bladder was okay and my bowels had just been indeed 
the night before, so we checked the skin, look for any possible infection 
sites, made sure I had no ingrown toenails or any other thing that causes 
autonomic dysreflexia (AD).  After being totally flummoxed, I had the PCA but 
the nitrogen gel on me to lower the BP and then we irrigated the bladder.  The 
blood pressure stayed up for a while and then eventually dropped.  The main 
problem is my BP continues to spike every morning and I have gotten to the 
point where I don't even have a headache any longer when my BP is pretty high.

I went in to see the doctor and explained what was going on.  He was thinking 
that this might be the same thing I thought, bladder stones.  I have had a 
history of bladder stones, so I had called in earlier trying to get a sonogram 
schedule.  Well, the sonogram was today and it showed no stones in the bladder, 
gallbladder and a very small calcification in the left kidney, but it's not 
obstructing anything.  I probably forgot to mention that I am having bladder 
discomfort, but is not associated with a UTI (they discounted this during the 
Tuesday clinic visit) or bladder stones.  I have a suprapubic and normally have 
no problem with it, however, lately I have been having a lot more discharge 
around the stoma and even a little bit of blood every other day or so.

My bowels do cause me discomfort, but I don't think it's enough to actually put 
me into AD.  They have in the past caused AD, but I have pretty good sensation 
in the bowels and the bladder.  Anyway, I would like to hear any of your 
thoughts about what might be causing my BP to spike every morning.  I have 
occasionally had problems in the wheelchair, but thankfully it's not producing 
AD.

Thanks for your feedback,
Quadius



  

Re: [QUAD-L] BP

[lindakrn]

Hi, 

Wow, sounds exactly what is going on with me except for the temps. We have done 
what you have with checking for pressure problems & found nothing. My urine 
looks good with some yeasty looking stuff but not that bad. It's got me 
stumped. My right foot is having more spasms with no sores. Like you said, any 
ideas of what might be causing the problem? 

Lindaf 

RE: [QUAD-L] BP

[e m treston]

do you take ditropan or something similar?

  _  

From: Quadius [mailto:quad...@gmail.com] 
Sent: Friday, June 19, 2009 2:30 PM
To: quad-list
Subject: [QUAD-L] BP


I was experiencing some severe fatigue problems over the last three or four
weeks and I now believe it's because my blood pressure has been spiking up
and I wasn't aware of it.  Earlier this week I got a slight headache, so I
decided to have my PCA checked the BP and it was 140/94, but it ended up
going out to 160/103.

The problem is I knew my bladder was okay and my bowels had just been indeed
the night before, so we checked the skin, look for any possible infection
sites, made sure I had no ingrown toenails or any other thing that causes
autonomic dysreflexia (AD).  After being totally flummoxed, I had the PCA
but the nitrogen gel on me to lower the BP and then we irrigated the
bladder.  The blood pressure stayed up for a while and then eventually
dropped.  The main problem is my BP continues to spike every morning and I
have gotten to the point where I don't even have a headache any longer when
my BP is pretty high.

I went in to see the doctor and explained what was going on.  He was
thinking that this might be the same thing I thought, bladder stones.  I
have had a history of bladder stones, so I had called in earlier trying to
get a sonogram schedule.  Well, the sonogram was today and it showed no
stones in the bladder, gallbladder and a very small calcification in the
left kidney, but it's not obstructing anything.  I probably forgot to
mention that I am having bladder discomfort, but is not associated with a
UTI (they discounted this during the Tuesday clinic visit) or bladder
stones.  I have a suprapubic and normally have no problem with it, however,
lately I have been having a lot more discharge around the stoma and even a
little bit of blood every other day or so.

My bowels do cause me discomfort, but I don't think it's enough to actually
put me into AD.  They have in the past caused AD, but I have pretty good
sensation in the bowels and the bladder.  Anyway, I would like to hear any
of your thoughts about what might be causing my BP to spike every morning.
I have occasionally had problems in the wheelchair, but thankfully it's not
producing AD.

Thanks for your feedback,
Quadius

Re: [QUAD-L] BP problem

[Danny Hearn]

  When I was in rehab 11 years ago at St. johns Hospital in Missouri,  every 
nurse there  knew about digital stimulation, but many hospitals still don't 
know much about  quads or that kind of stuff UNLESS they are a REHAB floor.  
Like you said John it is a blessing to have family members that know-- If 
I'm ever in a hospital nowday's and it becomes bowel routine time, they have to 
BORROW a rehab shower chair from another floor because most floors don't even 
have them. We have to make sure each shift has written instuctions to turn me 
and so  on because most are so unfamiliar with Quads.   
 Dan H.

[EMAIL PROTECTED] wrote:  Next time John, make sure your doctor places that 
procedure on his medical orders, in detail.
  Violation of doctor's orders, is both a major no no, but also places the 
hospital insurance at risk.
  Actually this would apply to anyone in need of this invasive procedure as 
part of your bowel management program.
   
  Best Wishes
   
In a message dated 8/29/2008 2:48:09 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
  The nurses at hospitals are well aware of what digital stimulation is. I 
have had them sumarily refuse to do it. I no longer go to hospitals. I think it 
is bad form for the medical community to put that many incompetent people in 
one place. Since I only have Medicare and Medicaid my treatment in hospitals 
would be similar to a convicts treatment and the legal aid society. I figure if 
at some point, I might be dying, why would I want to be humiliated, too. They 
regard so many patients with contempt and I don't have a family to come and do 
the stuff the nurses forget. 
  It has all gone downhill so bad. At one time it was a miracle I was alive. 
Last time in the hospital, I was treated like I was interrupting their coffee 
break, and I never was given a nurse call button I could use.
  I get better treatment for pneumonia from agency nurses. 
  I'll stop my rant now.
  I'm really very jealous of you with tight families and health insurance is 
what it amounts to. I'm so afraid that the next time they will dump me on skid 
row that I filled out a DNR. 
   
  Take care,
  john  

  
  - Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thursday, August 28, 2008 3:46:53 PM
Subject: Re: [QUAD-L] BP problem

  I have had aides in the past massage my stomach, she also said that you need 
to eat, before your BP.  She had just learned that in one of her medical 
classes at KU.  I often did not eat in the morning at that time.  Oatmeal is 
also good for dieting and so easy to fix.  I usually try to eat low-fat meals 
and salads every evening meal with light or no fat dressing .  I have also 
noticed that eating oatmeal is a good promoter and also bran cereal and 
vegetables.  If I go one day without my bowels working, I usually know there is 
something wrong.  This is what happens before I get blockages, which are no fun 
at all.  I was on Miralax for a couple months.  I like it because it is gentle, 
not causing accidents or stomach pain, like I sometimes had with Ducolax pills. 
 I think it is good to keep Miralax on hand so you have if needed.  It takes 
about 24 hours to work, or it did for me. They also gave me very large glasses 
of prune juice with Milk of Magnesia, which finally worked
 after a number of days and my stomach the size of a basketball.  It was very 
uncomfortable.  I don't think the hospital was doing my bp correctly.  They did 
not understand digitals.  I don't know what would've happened if my mother 
would not have been there.  I tried to explain, but that did not help.  I have 
been eating bran chex, since my hospitalization for pneumonia the end of 
February and I believe it really helps.  I eat a half a cup each morning..
   
  What do other persons do?
  Dana

 Good Advice John and I hope our friend with the PIE system is still 
watching over us.  A missed day
  or two is not the end of the world, but keep in mind that you have some make 
up to do once the bowel cuts loose. Your diet and condition of your body are 
two things to consider.  Eat the proper foods and the correct amounts and all 
should be ok.  However if you have been binging three meals a day at the local 
buffet, then I would have some concerns.  I once remember a Chiropractor that 
once claimed that he could massage the stomach/bowel area and cause or create a 
bowel movement.  How he did it I'll never know.  It was his claim.
  That oatmeal in the morning or at night is great roughage on the body and it 
absorbs excess acids and toxins as it travels thru your system.  Just ask John, 
lol.
   
  Best Wishes and a smooth movement for you.
  W
   
In a message dated 8/28/2008 1:12:10 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
  I went 10 day

Re: [QUAD-L] BP problem

[wheelchair]

Next time John, make sure your doctor places that procedure on his medical  
orders, in detail.
Violation of doctor's orders, is both a major no no, but also places the  
hospital insurance at risk.
Actually this would apply to anyone in need of this invasive procedure as  
part of your bowel management program.
 
Best Wishes
 
 
In a message dated 8/29/2008 2:48:09 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 
The nurses at hospitals are well aware of what digital stimulation is. I  
have had them sumarily refuse to do it. I no longer go to hospitals. I  think 
it 
is bad form for the medical community to put that many incompetent  people in 
one place. Since I only have Medicare and Medicaid my treatment in  hospitals 
would be similar to a convicts treatment and the legal aid society.  I figure 
if at some point, I might be dying, why would I want to be  humiliated, too. 
They regard so many patients with contempt and I don't have a  family to come 
and do the stuff the nurses forget. 
It has all gone downhill so bad. At one time it was a miracle I was  alive. 
Last time in the hospital, I was treated like I  was interrupting their coffee 
break, and I never was given a nurse call  button I could use.
I get better treatment for pneumonia from agency nurses. 
I'll stop my rant now.
I'm really very jealous of you with tight families and health  insurance is 
what it amounts to. I'm so afraid that the next  time they will dump me on skid 
row that I filled out a DNR.  

Take care,
john  


-  Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To:  [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thursday, August 28, 2008  3:46:53 PM
Subject: Re: [QUAD-L] BP problem

I have had aides in the past massage my stomach, she also said that you  need 
to eat, before your BP.  She had just learned that in one of her  medical 
classes at KU.  I often did not eat in the morning at that  time.  Oatmeal is 
also good for dieting and so easy to fix.  I  usually try to eat low-fat meals 
and salads every evening meal with light or  no fat dressing .  I have also 
noticed that eating oatmeal is a good  promoter and also bran cereal and 
vegetables.  If I go one day without my  bowels working, I usually know there 
is 
something wrong.  This is what  happens before I get blockages, which are no 
fun at 
all.  I was on  Miralax for a couple months.  I like it because it is gentle, 
not causing  accidents or stomach pain, like I sometimes had with Ducolax 
pills.  I  think it is good to keep Miralax on hand so you have if needed.  It 
takes  about 24 hours to work, or it did for me. They also gave me very large 
glasses  of prune juice with Milk of Magnesia, which finally worked after a 
number of  days and my stomach the size of a basketball.  It was very  
uncomfortable.  I don't think the hospital was doing my bp  correctly.  They 
did not 
understand digitals.  I don't know what  would've happened if my mother would 
not 
have been there.  I tried to  explain, but that did not help.  I have been 
eating bran chex, since my  hospitalization for pneumonia the end of February 
and 
I believe it really  helps.  I eat a half a cup each morning..
 
What do other persons do?
Dana


Good Advice John and I hope our friend with the PIE system is still  watching 
over us.  A missed day
or two is not the end of the world, but keep in mind that you have some  make 
up to do once the bowel cuts loose. Your diet and condition of your body  are 
two things to consider.  Eat the proper foods and the correct amounts  and 
all should be ok.  However if you have been binging three meals a day  at the 
local buffet, then I would have some concerns.  I once remember a  Chiropractor 
that once claimed that he could massage the stomach/bowel area  and cause or 
create a bowel movement.  How he did it I'll never  know.  It was his claim.
That oatmeal in the morning or at night is great roughage on the body and  it 
absorbs excess acids and toxins as it travels thru your system.  Just  ask 
John, lol.
 
Best Wishes and a smooth movement for you.
W
 
 
In a message dated 8/28/2008 1:12:10 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 
I went 10 days once after surgery. That Enema machine that one dude was  
pushing would be nice. 
First thing you do is relax. Do not get upset,  you aren't a clock. If you 
have Mirilax,(Glyco-lax) double your dose. If you  haven't got it, get it and 
use it. made about when he lies Your bowels will  misfire even if your not a 
quad.


Best wishes,
john


-  Original Message 
From: Greg <[EMAIL PROTECTED]>
To:  quad-list@eskimo.com
Sent: Wednesday, August 27, 2008 7:55:52  PM
Subject: [QUAD-L] BP problem


After trying to do your bowel  program and not having results. What¢s the 
longest you have gone with no  go? 
G.














 

 It&#x

Re: [QUAD-L] BP problem

[John S.]

The nurses at hospitals are well aware of what digital stimulation is. I have 
had them sumarily refuse to do it. I no longer go to hospitals. I think it is 
bad form for the medical community to put that many incompetent people in one 
place. Since I only have Medicare and Medicaid my treatment in hospitals would 
be similar to a convicts treatment and the legal aid society. I figure if at 
some point, I might be dying, why would I want to be humiliated, too. They 
regard so many patients with contempt and I don't have a family to come and do 
the stuff the nurses forget. 
It has all gone downhill so bad. At one time it was a miracle I was alive. Last 
time in the hospital, I was treated like I was interrupting their coffee break, 
and I never was given a nurse call button I could use.
I get better treatment for pneumonia from agency nurses. 
I'll stop my rant now.
I'm really very jealous of you with tight families and health insurance is what 
it amounts to. I'm so afraid that the next time they will dump me on skid row 
that I filled out a DNR. 

Take care,
john  



- Original Message 
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thursday, August 28, 2008 3:46:53 PM
Subject: Re: [QUAD-L] BP problem

I have had aides in the past massage my stomach, she also said that you need to 
eat, before your BP.  She had just learned that in one of her medical classes 
at KU.  I often did not eat in the morning at that time.  Oatmeal is also good 
for dieting and so easy to fix.  I usually try to eat low-fat meals and salads 
every evening meal with light or no fat dressing .  I have also noticed that 
eating oatmeal is a good promoter and also bran cereal and vegetables.  If I go 
one day without my bowels working, I usually know there is something wrong.  
This is what happens before I get blockages, which are no fun at all.  I was on 
Miralax for a couple months.  I like it because it is gentle, not causing 
accidents or stomach pain, like I sometimes had with Ducolax pills.  I think it 
is good to keep Miralax on hand so you have if needed.  It takes about 24 hours 
to work, or it did for me. They also gave me very large glasses of prune juice 
with Milk of
 Magnesia, which finally worked after a number of days and my stomach the size 
of a basketball.  It was very uncomfortable.  I don't think the hospital was 
doing my bp correctly.  They did not understand digitals.  I don't know what 
would've happened if my mother would not have been there.  I tried to explain, 
but that did not help.  I have been eating bran chex, since my hospitalization 
for pneumonia the end of February and I believe it really helps.  I eat a half 
a cup each morning..

What do other persons do?
Dana

 Good Advice John and I hope our friend with the PIE system is still watching 
over us.  A missed day
or two is not the end of the world, but keep in mind that you have some make up 
to do once the bowel cuts loose. Your diet and condition of your body are two 
things to consider.  Eat the proper foods and the correct amounts and all 
should be ok.  However if you have been binging three meals a day at the local 
buffet, then I would have some concerns.  I once remember a Chiropractor that 
once claimed that he could massage the stomach/bowel area and cause or create a 
bowel movement.  How he did it I'll never know.  It was his claim.
That oatmeal in the morning or at night is great roughage on the body and it 
absorbs excess acids and toxins as it travels thru your system.  Just ask John, 
lol.

Best Wishes and a smooth movement for you.
W

In a message dated 8/28/2008 1:12:10 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
I went 10 days once after surgery. That Enema machine that one dude was pushing 
would be nice. 
First thing you do is relax. Do not get upset, you aren't a clock. If you have 
Mirilax,(Glyco-lax) double your dose. If you haven't got it, get it and use it. 
made about when he lies Your bowels will misfire even if your not a quad.


Best wishes,
john



- Original Message 
From: Greg <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Wednesday, August 27, 2008 7:55:52 PM
Subject: [QUAD-L] BP problem


After trying to do your bowel program and not having results. What¢s the 
longest you have gone with no go?
G.




 





It's only a deal if it's where you want to go. Find your travel deal here.


  

Re: [QUAD-L] BP problem

[Lori Michaelson]

It only happens on few and far occasions..  Once in the early 80s and I
can't remember why but I finally went and there was nothing to worry about.

In 1997 and it was THEN out of the ordinary for me not to go for a week ---
I finally figured out the problem by noticing that the pharmacy was
delivering *generic* Senokot (after trying to figure it out for a week <---
there is a joke about a pencil and that!) and NOT the brand name SENOKOT.
So I had someone go pick me up the real thing and wala ... that solved the
problem!

There have been in a few times in the last five years that I have not gone
over a period of six days but I eventually go.

Now I have to go figure out if fluid around my heart is more important than
wanting to play a sport.

Lori

On Wed, Aug 27, 2008 at 4:55 PM, Greg <[EMAIL PROTECTED]> wrote:

>  After trying to do your bowel program and not having results. What's the
> longest you have gone with no go?
>
> G.
>

Re: [QUAD-L] BP problem

[DAANOO]

I have had aides in the past massage my stomach, she also said that you  need 
to eat, before your BP.  She had just learned that in one of her  medical 
classes at KU.  I often did not eat in the morning at that  time.  Oatmeal is 
also good for dieting and so easy to fix.  I usually  try to eat low-fat meals 
and salads every evening meal with light or no fat  dressing .  I have also 
noticed that eating oatmeal is a good promoter and  also bran cereal and 
vegetables.  If I go one day without my bowels  working, I usually know there 
is 
something wrong.  This is what happens  before I get blockages, which are no 
fun at 
all.  I was on Miralax for a  couple months.  I like it because it is gentle, 
not causing accidents or  stomach pain, like I sometimes had with Ducolax 
pills.  I think it is good  to keep Miralax on hand so you have if needed.  It 
takes about 24 hours to  work, or it did for me. They also gave me very large 
glasses of prune juice with  Milk of Magnesia, which finally worked after a 
number of days and my stomach the  size of a basketball.  It was very 
uncomfortable.  I don't think the  hospital was doing my bp correctly.  They 
did not 
understand  digitals.  I don't know what would've happened if my mother would 
not 
have  been there.  I tried to explain, but that did not help.  I have been  
eating bran chex, since my hospitalization for pneumonia the end of February 
and  
I believe it really helps.  I eat a half a cup each morning..
 
What do other persons do?
Dana

 
Good Advice John and I hope our friend with the PIE system is still  watching 
over us.  A missed day
or two is not the end of the world, but keep in mind that you have some  make 
up to do once the bowel cuts loose. Your diet and condition of your body  are 
two things to consider.  Eat the proper foods and the correct amounts  and 
all should be ok.  However if you have been binging three meals a day  at the 
local buffet, then I would have some concerns.  I once remember a  Chiropractor 
that once claimed that he could massage the stomach/bowel area and  cause or 
create a bowel movement.  How he did it I'll never know.  It  was his claim.
That oatmeal in the morning or at night is great roughage on the body and  it 
absorbs excess acids and toxins as it travels thru your system.  Just  ask 
John, lol.
 
Best Wishes and a smooth movement for you.
W
 
 
In a message dated 8/28/2008 1:12:10 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 
I went 10 days once after surgery. That Enema machine that one dude was  
pushing would be nice. 
First thing you do is relax. Do not get upset, you  aren't a clock. If you 
have Mirilax,(Glyco-lax) double your dose. If you  haven't got it, get it and 
use it. made about when he lies Your bowels will  misfire even if your not a 
quad.


Best wishes,
john


-  Original Message 
From: Greg <[EMAIL PROTECTED]>
To:  quad-list@eskimo.com
Sent: Wednesday, August 27, 2008 7:55:52  PM
Subject: [QUAD-L] BP problem


After trying to do your bowel  program and not having results. What¢s the 
longest you have gone with no  go? 
G.














**It's only a deal if it's where you want to go. Find your travel 
deal here.  
(http://information.travel.aol.com/deals?ncid=aoltrv000547)

Re: [QUAD-L] BP problem

[Quadius]

Oatmeal has definitely worked for me.  I am still having problems of a
different type, but it may have finally nailed down the cause.  I'll let you
know when I'm positive.

The main reason I wrote is to let you know that mineral oil is always a good
solution.  I have found it to be pretty effective for me.  I was recently in
the hospital for caregiver respite and ended up getting a little
constipated, which is the exact opposite of the problem I normally have.
When I explained to the doctor that I use mineral oil, he was shocked that I
use such an old remedy, but quickly prescribed it for me.  I was going the
next day.
Good luck.
Quadius


On 8/28/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
>
>  Good Advice John and I hope our friend with the PIE system is still
> watching over us.  A missed day
> or two is not the end of the world, but keep in mind that you have some
> make up to do once the bowel cuts loose. Your diet and condition of your
> body are two things to consider.  Eat the proper foods and the correct
> amounts and all should be ok.  However if you have been binging three meals
> a day at the local buffet, then I would have some concerns.  I once remember
> a Chiropractor that once claimed that he could massage the stomach/bowel
> area and cause or create a bowel movement.  How he did it I'll never know.
> It was his claim.
> That oatmeal in the morning or at night is great roughage on the body and
> it absorbs excess acids and toxins as it travels thru your system.  Just ask
> John, lol.
>
> Best Wishes and a smooth movement for you.
> W
>
>  In a message dated 8/28/2008 1:12:10 P.M. Central Daylight Time,
> [EMAIL PROTECTED] writes:
>
>  I went 10 days once after surgery. That Enema machine that one dude was
> pushing would be nice.
> First thing you do is relax. Do not get upset, you aren't a clock. If you
> have Mirilax,(Glyco-lax) double your dose. If you haven't got it, get it and
> use it. Your bowels will misfire even if your not a quad.
>
>
> Best wishes,
> john
>
>
> - Original Message 
> From: Greg <[EMAIL PROTECTED]>
> To: quad-list@eskimo.com
> Sent: Wednesday, August 27, 2008 7:55:52 PM
> Subject: [QUAD-L] BP problem
>
>  After trying to do your bowel program and not having results. What¢s the
> longest you have gone with no go?
>
> G.
>
>
>
>
>  --
> It's only a deal if it's where *you* want to go. Find your travel deal *
> here* .
>



-- 
Quadius
C2-3 incomplete
13 years post injury

Re: [QUAD-L] BP problem

[wheelchair]

Good Advice John and I hope our friend with the PIE system is still  watching 
over us.  A missed day
or two is not the end of the world, but keep in mind that you have some  make 
up to do once the bowel cuts loose. Your diet and condition of your body  are 
two things to consider.  Eat the proper foods and the correct amounts  and 
all should be ok.  However if you have been binging three meals a day  at the 
local buffet, then I would have some concerns.  I once remember a  Chiropractor 
that once claimed that he could massage the stomach/bowel area and  cause or 
create a bowel movement.  How he did it I'll never know.  It  was his claim.
That oatmeal in the morning or at night is great roughage on the body and  it 
absorbs excess acids and toxins as it travels thru your system.  Just  ask 
John, lol.
 
Best Wishes and a smooth movement for you.
W
 
 
In a message dated 8/28/2008 1:12:10 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 
I went 10 days once after surgery. That Enema machine that one dude was  
pushing would be nice. 
First thing you do is relax. Do not get upset, you  aren't a clock. If you 
have Mirilax,(Glyco-lax) double your dose. If you  haven't got it, get it and 
use it. Your bowels will misfire even if your not a  quad.


Best  wishes,
john


-  Original Message 
From: Greg <[EMAIL PROTECTED]>
To:  quad-list@eskimo.com
Sent: Wednesday, August 27, 2008 7:55:52  PM
Subject: [QUAD-L] BP problem


After trying to do your bowel  program and not having results. What¢s the 
longest you have gone with no  go? 
G.









**It's only a deal if it's where you want to go. Find your travel 
deal here.  
(http://information.travel.aol.com/deals?ncid=aoltrv000547)

Re: [QUAD-L] BP problem

[John S.]

I went 10 days once after surgery. That Enema machine that one dude was pushing 
would be nice. 
First thing you do is relax. Do not get upset, you aren't a clock. If you have 
Mirilax,(Glyco-lax) double your dose. If you haven't got it, get it and use it. 
Your bowels will misfire even if your not a quad.


Best wishes,
john



- Original Message 
From: Greg <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Wednesday, August 27, 2008 7:55:52 PM
Subject: [QUAD-L] BP problem

 
After trying to do your bowel program and not having
results. What’s the longest you have gone with no go?
G.


  

Re: [QUAD-L] BP problem

[RONALD L PRACHT]

Greg,
  It depends on how often you do your bowell program and how much you eat. 
Think back over the last week at what you eat. For instance with me I go every 
other morning ..if I have little results one day im not overly 
concerned...but if I have lil results the next program I start to get worried. 
Also.If you have no results you have to make sure your aid is performing 
proper stimulation. Many times a sci individual may have a hard stool that 
needs to be gotten through b4 the reg stool will come out. 
   
  Ron c7
   
  Greg <[EMAIL PROTECTED]> wrote:
After trying to do your bowel program and not having results. 
What’s the longest you have gone with no go?
  G.

Re: [QUAD-L] BP

[Ms Linda Ferrell]

Thanks Wheels & WCWarrior
Glad to be back but still under the weather a little. I hope everyone has a 
nice Easter.
Lindaf

Re: [QUAD-L] BP

[wheelchair]

Welcome back to the woild, Linda!  How are you doing?
W
 
 
In a message dated 3/21/2008 6:47:36 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

Linda what is a hiBP!

Ms  Linda Ferrell <[EMAIL PROTECTED]> wrote:  
I take Norvasc prn for hi BP
Lindaf






**Create a Home Theater Like the Pros. Watch the video on AOL 
Home.  
(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)

Re: [QUAD-L] BP

[andrea murray]

Linda what is a hiBP!

Ms Linda Ferrell <[EMAIL PROTECTED]> wrote:.hmmessage P {   PADDING-RIGHT: 
0px; PADDING-LEFT: 0px; PADDING-BOTTOM: 0px; MARGIN: 0px; PADDING-TOP: 0px  }  
BODY.hmmessage {   FONT-SIZE: 10pt; FONT-FAMILY: Tahoma  } I take 
Norvasc prn for hi BP
  Lindaf


   
-
Be a better friend, newshound, and know-it-all with Yahoo! Mobile.  Try it now.

Re: [QUAD-L] BP

[wheelchair]

LOL, Mark.  Are you sure that the poster is not that of Bea  Arthur?  lol
W
 
 
In a message dated 3/21/2008 4:35:02 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

I have a poster of Bea Author naked!
That does it for me.
 
 
Mark  Jackson 
RollinOn





**Create a Home Theater Like the Pros. Watch the video on AOL 
Home.  
(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)

Re: [QUAD-L] BP

[Ms Linda Ferrell]

 I take Norvasc prn for hi BP
Lindaf

RE: [QUAD-L] BP

[RollinOn]

I have a poster of Bea Author naked!
That does it for me.
 

Mark Jackson

   RollinOn

 

 

   _  

From: William Willis [mailto:[EMAIL PROTECTED] 
Sent: Friday, March 21, 2008 3:30 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] BP


Guys, what drug is it that brings your BP down quickly?

   _  

Test your Star IQ HYPERLINK
"http://club.live.com/red_carpet_reveal.aspx?icid=redcarpet_HMTAGMAR"Play
now! 


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Re: [QUAD-L] BP

[Quadius]

I managed to find the link in the quad archives.
http://www.mail-archive.com/quad-list%40eskimo.com/msg26490.html

Atenelol, Procardia, Nitroglycerin tablets or cream
Quadius


On 3/21/08, William Willis <[EMAIL PROTECTED]> wrote:
>
> Guys, what drug is it that brings your BP down quickly?
> --
> Test your Star IQ Play 
> now!
>

Re: [QUAD-L] BP changing/ looking up

[Stacy Harim]

Congrats Dave,
 
It's going to help you so much.  I don't know what I would do without 
it.  I don't even have to pay for Medicare each month.  The waiver 
automatically takes care of that. If they don't, make sure and ask if they 
do it in your state.
 
Nice to hear some wonderful news,
Stacy

  - Original Message - 
  From: David K. Kelmer 
  To: RollinOn ; Quad-List 
  Sent: Tuesday, June 13, 2006 4:48 
PM
  Subject: Re: [QUAD-L] BP changing/ 
  looking up
  
  Hi Mark,
  Just a sore arm from all of the paper-work for now, but I can tell it 
  is going to be a  lot better for me when all is done.  I really 
  haven't seen a down-side, unless the Agency R.N. comes out more than once 
  every three months.  I've had to go over her head once already so that my 
  supplies will get delivered the same day I sign the final 
  paper-work.  It would save them a trip and me waiting time, but the R.N. 
  wasn't open to my ideas.  I called her boss with whom I have been working 
  with since '87 when she was just a home health care nurse at the Agency!  
  I'll get my supplies the day I sign-up!!!
   
   
  
   
  With 
  Love,CtrlAltDel 
  aka DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USA 
   
  With Love,
  CtrlAltDel 
  aka DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USARollinOn 
  <[EMAIL PROTECTED]> wrote:
  


  
  
That's awesome Dave, glad you finally got your 
  number called.
  Let us know how it goes.
   
   
  Mark 
   
  ---Original 
  Message---
   
  
  From: David K. 
Kelmer
  Date: 06/09/06 
  17:33:58
  To: KK 
  Batte; Quad-List
  Subject: Re: 
  [QUAD-L] BP changing/ looking up
   
  Hi KK
   
  I was just taken off the Texas waiting list and put on the 
  Home 
  and Community-Based Services Waiver (HCS-W).  I've been 
  on the waiting list for 21 months and I called them every 3 months to 
  ask what my number was.  They said they only tracked the people 
  that made it on the Waiver.  We're doing the paperwork now, but 
  the program already looks good to me already.
   
  With Love,
  CtrlAltDel 
  aka DaveC4/5 Complete - 30 Years 
  PostTexas, 
  USA KK 
  Batte <[EMAIL PROTECTED]> wrote:
  It 
  takes 3-6 months in Texas. The 3 months if you have a wonderful 
  doc who will pester them to get it done quickly.Do you 
  even have someone assigned to your case yet?
   
  

  


  
  
  

Re: [QUAD-L] BP changing/ looking up

[David K. Kelmer]

Hi Mark,  Just a sore arm from all of the paper-work for now, but I can tell it is going to be a  lot better for me when all is done.  I really haven't seen a down-side, unless the Agency R.N. comes out more than once every three months.  I've had to go over her head once already so that my supplies will get delivered the same day I sign the final paper-work.  It would save them a trip and me waiting time, but the R.N. wasn't open to my ideas.  I called her boss with whom I have been working with since '87 when she was just a home health care nurse at the Agency!  I'll get my supplies the day I sign-up!!!         With
 Love,CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA      With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USARollinOn <[EMAIL PROTECTED]> wrote:  That's awesome Dave, glad you finally got your number called.  Let us know how it goes.        Mark      ---Original Message---   From: David K. Kelmer  Date: 06/09/06 17:33:58  To: KK Batte; Quad-List  Subject: Re: [QUAD-L] BP changing/ looking up     Hi KK     I was just taken off the Texas waiting list and put on the Home and Community-Based Services Waiver (HCS-W).  I've been on the waiting list for 21 months and I called them every 3 months to ask what my number was.  They said they only tracked the
 people that made it on the Waiver.  We're doing the paperwork now, but the program already looks good to me already.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte <[EMAIL PROTECTED]> wrote:  It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly.Do you even have someone assigned to your case
 yet?   

Re: [QUAD-L] BP changing/ looking up

[David K. Kelmer]

Hi KK,     I had 15 hrs a week before this through Texas HHS.  We're still putting together the new care plan so I don't know just how it will work itself out yet.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USAKK Batte <[EMAIL PROTECTED]> wrote:  My case worker came last week & mentioned it.  Said more hours & better pay for the aides.  My aide, Sheryll above in the addresses, does more than clean house & cook.  She deserves to be paid more. That was a long wait.  How many
 hours did you have before?  I have 29.KKOn Jun 9, 2006, at 5:33 PM, David K. Kelmer wrote:Hi KK     I was just taken off the Texas waiting list and put on the Home and Community-Based Services Waiver (HCS-W).  I've been on the waiting list for 21 months and I called them every 3 months to ask what my number was.  They said they only tracked the people that made it on the Waiver.  We're doing the paperwork now, but the program already looks good to me already.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte <[EMAIL PROTECTED]> wrote:  It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly.Do you even have someone assigned to your case yet?All horses are run aways.  

Re: [QUAD-L] BP changing/ looking up

[KK Batte]

My case worker came last week & mentioned it.  Said more hours & better pay for the aides.  My aide, Sheryll above in the addresses, does more than clean house & cook.  She deserves to be paid more.That was a long wait.  How many hours did you have before?  I have 29.KKOn Jun 9, 2006, at 5:33 PM, David K. Kelmer wrote:Hi KK     I was just taken off the Texas waiting list and put on the Home and Community-Based Services Waiver (HCS-W).  I've been on the waiting list for 21 months and I called them every 3 months to ask what my number was.  They said they only tracked the people that made it on the Waiver.  We're doing the paperwork now, but the program already looks good to me already.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte <[EMAIL PROTECTED]> wrote:  It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly.Do you even have someone assigned to your case yet? All horses are run aways. 

Re: [QUAD-L] BP changing/ looking up

[RollinOn]

That's awesome Dave, glad you finally got your number called.
Let us know how it goes.
 
 
Mark 
 
---Original Message---
 

From: David K. Kelmer
Date: 06/09/06 17:33:58
To: KK Batte; Quad-List
Subject: Re: [QUAD-L] BP changing/ looking up
 
Hi KK
 
I was just taken off the Texas waiting list and put on the Home and Community-Based Services Waiver (HCS-W).  I've been on the waiting list for 21 months and I called them every 3 months to ask what my number was.  They said they only tracked the people that made it on the Waiver.  We're doing the paperwork now, but the program already looks good to me already.
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte <[EMAIL PROTECTED]> wrote:
It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly.Do you even have someone assigned to your case yet?
 

Re: [QUAD-L] BP changing/ looking up

[David K. Kelmer]

Hi KK     I was just taken off the Texas waiting list and put on the Home and Community-Based Services Waiver (HCS-W).  I've been on the waiting list for 21 months and I called them every 3 months to ask what my number was.  They said they only tracked the people that made it on the Waiver.  We're doing the paperwork now, but the program already looks good to me already.     With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA KK Batte <[EMAIL PROTECTED]> wrote:  It takes 3-6 months in Texas. The 3 months if you have a wonderful doc who will pester them to get it done quickly.Do you even have someone assigned to your case yet?

Re: [QUAD-L] BP changing

[Houston809]

I start getting some hrs next week 5days a week until I get my own place.
While staying with sister they say I don't need help. How have I been living
with-out help?

On 5/13/06 5:29 PM, "KK Batte" <[EMAIL PROTECTED]> wrote:

> It takes 3-6 months in Texas.  The 3 months if you have a wonderful
> doc who will pester them to get it done quickly.
> 
> Do you even have someone assigned to your case yet?

Re: [QUAD-L] BP changing

[KK Batte]

It takes 3-6 months in Texas.  The 3 months if you have a wonderful  
doc who will pester them to get it done quickly.


Do you even have someone assigned to your case yet?

Re: [QUAD-L] BP changing

[Houston809]

Title: Re: [QUAD-L] BP changing



My sister helps me or my brother-in-law. Which SHIT is wearing on them. :) my diet is still pretty much consistent. Its not like an accident its like I havent shit in days than just go & go & go. Than won’t go again  like a week no matter what I do :(
On 5/13/06 12:59 PM, "~LittleQuad~" <[EMAIL PROTECTED]> wrote:

no, but meds have weird side effects plus something you eat can trigger a BM at anytime.. who helps you???

Houston809 <[EMAIL PROTECTED]> wrote:  
Since being in St. Louis the Dr s here changed my medication. Some because
of Medicaid here wouldn't cover. I'm starting 2 feel better. Now my bowel
program is totally off track. Suppositories aren't working for (Shit) I do
same thing I'd been doing 4 yrs with no results. Than I won't go for days
than I'll just go on my own. Of course while up in chair with no one around.
I still having gotten any attendant care hrs from state yet.
Has anyone else experienced this?

Re: [QUAD-L] BP changing

[~LittleQuad~]

no, but meds have weird side effects plus something you eat can trigger a BM at anytime.. who helps you???Houston809 <[EMAIL PROTECTED]> wrote:  Since being in St. Louis the Dr s here changed my medication. Some becauseof Medicaid here wouldn't cover. I'm starting 2 feel better. Now my bowelprogram is totally off track. Suppositories aren't working for (Shit) I dosame thing I'd been doing 4 yrs with no results. Than I won't go for daysthan I'll just go on my own. Of course while up in chair with no one around.I still having gotten any attendant care hrs from state yet.Has anyone else experienced this?