Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

My heart goes out to you.  I know my Dad would want you to keep fighting
and going on.  I can tell from your posts that you have a wonderful
positive energy that keeps you going.  Please hang there.

Regards and 18s,
Shaun

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On Mon, Dec 31, 2018 at 11:03 AM 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thank you Shaun
> I miss him too so much. Sometimes I feel like giving up and going into
> hospice but his words keep whispering in my ear: fight on.
> I love the story about the shoes. No he told me he didn’t want the book
> published but I know it would help a lot of people.
> If you change your mind let me know.
> What a great family he had
> Keep in touch
> Happy New Year
> Love you so very much
> Jeanie 18
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Dec 31, 2018, at 2:21 AM, Kathy Walls 
> wrote:
>
> Please remove my wife from your group Please, she too is gone. Our
> daughter plays with her phone  she does not to see these posts!  I beg you
> please remove her
>
> Sent from my iPhone
>
> On Dec 31, 2018, at 12:23 AM, Marty Gartenberg  wrote:
>
> Hi Jeanie -
>
> I miss him every day.  I'm glad he was able to still help you while he was
> in rehab.  He was going through a lot even then, and it just goes to show
> that he was a fighter even to the end.  My thoughts and prayers are with
> you in beating your disease.
>
> I appreciate your feedback about his book and I agree with you.  I know
> those stories well and I'm grateful to have his words and thoughts to hold
> on to.  I'm not sure that he actually wanted the book published, though.  I
> think it was something more personal that he just wanted to share with
> family and friends.  I appreciate your offer.
>
> I wish everyone here a very healthy and happy holiday and New Year.   Take
> care and be well!
>
> Regards and 18's
> Shaun
>
>
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>
> On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> Thanks so much Shaun.  I always knew he was suffering and he tick on our
>> sufferings too. I miss him so much.  He was helping me with my new thyroid
>> disease while he was in rehab.
>> Have you given some thought to having his book published?  If you decide
>> to have it published I could get my daughter to help you through amazon
>> kindle. He gave me parts of the book and it was so uplifting.  You can feel
>> his love and care come through his pages
>> I especially loved the part about the pair of walking shoes. He left his
>> love on earth and I can still feel his spirit in my daily battle against
>> leukemia and other old age problems he was helping us with.
>> Good luck and keep in touch.
>> Love ya!
>> Jeanie
>>
>> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>>
>> Hi Jeanie -
>>
>> That's OK.  My father was getting Tylenol for his pain and Ativan for his
>> anxiety.  He wasn't getting stronger pain medicines because it would give
>> him hallucinations and confusion.  I read to him several times the
>> patient's prayer and the mind of matter mantra to try to help him focus on
>> feeling better.   I hope that brought him some comfort.
>>
>> To everyone in this group I wish a very happy and healthy (belated)
>> Thanksgiving. I am so grateful to see what strong support group you all
>> have with each other and glad that my Dad was able to be a part of it.  I
>> am so thankful and blessed to have had him as my father.
>>
>> Regards and 18's
>> Shaun
>>
>>
>>
>> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>&

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

I miss him every day.  I'm glad he was able to still help you while he was
in rehab.  He was going through a lot even then, and it just goes to show
that he was a fighter even to the end.  My thoughts and prayers are with
you in beating your disease.

I appreciate your feedback about his book and I agree with you.  I know
those stories well and I'm grateful to have his words and thoughts to hold
on to.  I'm not sure that he actually wanted the book published, though.  I
think it was something more personal that he just wanted to share with
family and friends.  I appreciate your offer.

I wish everyone here a very healthy and happy holiday and New Year.   Take
care and be well!

Regards and 18's
Shaun

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On Sat, Dec 15, 2018 at 3:09 AM 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Thanks so much Shaun.  I always knew he was suffering and he tick on our
> sufferings too. I miss him so much.  He was helping me with my new thyroid
> disease while he was in rehab.
> Have you given some thought to having his book published?  If you decide
> to have it published I could get my daughter to help you through amazon
> kindle. He gave me parts of the book and it was so uplifting.  You can feel
> his love and care come through his pages
> I especially loved the part about the pair of walking shoes. He left his
> love on earth and I can still feel his spirit in my daily battle against
> leukemia and other old age problems he was helping us with.
> Good luck and keep in touch.
> Love ya!
> Jeanie
>
> On Nov 23, 2018, at 11:50 PM, Marty Gartenberg  wrote:
>
> Hi Jeanie -
>
> That's OK.  My father was getting Tylenol for his pain and Ativan for his
> anxiety.  He wasn't getting stronger pain medicines because it would give
> him hallucinations and confusion.  I read to him several times the
> patient's prayer and the mind of matter mantra to try to help him focus on
> feeling better.   I hope that brought him some comfort.
>
> To everyone in this group I wish a very happy and healthy (belated)
> Thanksgiving. I am so grateful to see what strong support group you all
> have with each other and glad that my Dad was able to be a part of it.  I
> am so thankful and blessed to have had him as my father.
>
> Regards and 18's
> Shaun
>
>
>
> On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>>
>> Hi Shaun
>> I know you are in a lot of grief and if you don’t feel like talking about
>> I will understand.
>> I have never feared death but always feared that I would be in a lot of
>> pain while dying. My question is did they give your dad pain meds before he
>> went into hospice?
>> I miss him so much as he was my advisor as well as my friend.
>> Prayers to you and yours
>> Jeanie
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> free
>> Christian
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>> Dr Gedia PCD
>> 0 CBL. ABL
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>>
>> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>>
>> Hi Sherri,
>>
>> This is Shaun.  My family and I greatly appreciate your heartwarming
>> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
>> her thanks, as well.
>>
>> Regards,
>> Shaun
>>
>> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
>> swanson.sherri...@gmail.com> wrote:
>>
>>> Hello Shaun,
>>>
>>> I am so very sorry to hear about your dad. He was such a kind and
>>> gentile man and he will be missed by many.  I wanted to let you know that I
>>> have planted a tree in his name in Israel. May this serve as a living
>>> tribute to his memory. You and your family are in my thoughts and prayers.
>>> Marty will always be in my heart and on my mind.  My heart is broken
>>> knowing I will not receive another message from Marty and we will no longer
>>> share share photos.
>>>
>>>
>>>
>>> *As long as we live, they too will live; for they are now are a part of
>>> us; as we remember them. *
>

Re: [CMLHope] Hi Shaun question

[Marty Gartenberg]

Hi Jeanie -

That's OK.  My father was getting Tylenol for his pain and Ativan for his
anxiety.  He wasn't getting stronger pain medicines because it would give
him hallucinations and confusion.  I read to him several times the
patient's prayer and the mind of matter mantra to try to help him focus on
feeling better.   I hope that brought him some comfort.

To everyone in this group I wish a very happy and healthy (belated)
Thanksgiving. I am so grateful to see what strong support group you all
have with each other and glad that my Dad was able to be a part of it.  I
am so thankful and blessed to have had him as my father.

Regards and 18's
Shaun



On Wed, Nov 21, 2018 at 12:59 PM 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

>
> Hi Shaun
> I know you are in a lot of grief and if you don’t feel like talking about
> I will understand.
> I have never feared death but always feared that I would be in a lot of
> pain while dying. My question is did they give your dad pain meds before he
> went into hospice?
> I miss him so much as he was my advisor as well as my friend.
> Prayers to you and yours
> Jeanie
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> Christian
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Nov 19, 2018, at 9:52 PM, Marty Gartenberg  wrote:
>
> Hi Sherri,
>
> This is Shaun.  My family and I greatly appreciate your heartwarming
> gift.  Thank you so very much for that.  My Mom (his wife, Rachelle) sends
> her thanks, as well.
>
> Regards,
> Shaun
>
> On Wed, Nov 14, 2018 at 8:27 PM sherri swanson <
> swanson.sherri...@gmail.com> wrote:
>
>> Hello Shaun,
>>
>> I am so very sorry to hear about your dad. He was such a kind and gentile
>> man and he will be missed by many.  I wanted to let you know that I have
>> planted a tree in his name in Israel. May this serve as a living tribute to
>> his memory. You and your family are in my thoughts and prayers. Marty will
>> always be in my heart and on my mind.  My heart is broken knowing I will
>> not receive another message from Marty and we will no longer share share
>> photos.
>>
>>
>>
>> *As long as we live, they too will live; for they are now are a part of
>> us; as we remember them. *
>>
>> Regards,
>>
>> Sherri Swanson
>>
>>
>>
>>
>>
>> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg 
>> wrote:
>>
>>> Hi everyone -
>>>
>>> This is Marty's son, Shaun, again.  Thank-you all so much for all the
>>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
>>> are all so grateful to know how loved he was and how he was able to touch
>>> so many lives in a profound way.
>>>
>>> Hi Wayne - please do not cancel this thread.  I am still checking in on
>>> it and relaying to rest of my family.  Just as he helped others, you all
>>> are helping us, and we appreciate that, so much.
>>>
>>> Regards,
>>> Shaun
>>>
>>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>>
>>>> Please cancel.  Subscriber is deceased.
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
>>>> *Sent:* November-14-18 5:14 AM
>>>> *To:* Digest recipients
>>>> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in
>>>> 1 topic
>>>>
>>>>
>>>>
>>>> cmlhope@googlegroups.com
>>>>
>>>> Google Groups
>>>> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
>>>>
>>>> [image: Image removed by sender.]
>>>> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
>>>>
>>>> Topic digest
>>>> View all topics
>>>>
>>>> ·   Update on Marty G
>>>> <#m_-5400076634479963663_m_-6603616516388195345_m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
>>>> - 1 Update
>>>>
>>>> Update on Marty G
>>>> <http://groups.google.com/group/c

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi Sherri,

This is Shaun.  My family and I greatly appreciate your heartwarming gift.
Thank you so very much for that.  My Mom (his wife, Rachelle) sends her
thanks, as well.

Regards,
Shaun

On Wed, Nov 14, 2018 at 8:27 PM sherri swanson 
wrote:

> Hello Shaun,
>
> I am so very sorry to hear about your dad. He was such a kind and gentile
> man and he will be missed by many.  I wanted to let you know that I have
> planted a tree in his name in Israel. May this serve as a living tribute to
> his memory. You and your family are in my thoughts and prayers. Marty will
> always be in my heart and on my mind.  My heart is broken knowing I will
> not receive another message from Marty and we will no longer share share
> photos.
>
>
>
> *As long as we live, they too will live; for they are now are a part of
> us; as we remember them. *
>
> Regards,
>
> Sherri Swanson
>
>
>
>
>
> On Wed, Nov 14, 2018 at 6:29 PM Marty Gartenberg  wrote:
>
>> Hi everyone -
>>
>> This is Marty's son, Shaun, again.  Thank-you all so much for all the
>> stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
>> are all so grateful to know how loved he was and how he was able to touch
>> so many lives in a profound way.
>>
>> Hi Wayne - please do not cancel this thread.  I am still checking in on
>> it and relaying to rest of my family.  Just as he helped others, you all
>> are helping us, and we appreciate that, so much.
>>
>> Regards,
>> Shaun
>>
>> On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:
>>
>>> Please cancel.  Subscriber is deceased.
>>>
>>>
>>>
>>>
>>>
>>> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
>>> *Sent:* November-14-18 5:14 AM
>>> *To:* Digest recipients
>>> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in
>>> 1 topic
>>>
>>>
>>>
>>> cmlhope@googlegroups.com
>>>
>>> Google Groups
>>> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
>>>
>>> [image: Image removed by sender.]
>>> <https://groups.google.com/forum/?utm_source=digest_medium=email/#!overview>
>>>
>>> Topic digest
>>> View all topics
>>>
>>> ·   Update on Marty G
>>> <#m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
>>> - 1 Update
>>>
>>> Update on Marty G
>>> <http://groups.google.com/group/cmlhope/t/6cc017786923e7b6?utm_source=digest_medium=email>
>>>
>>> Tracie Camlin : Nov 13 06:50AM -0600
>>>
>>> Dear Shaun and Family,
>>>
>>> I am so sorry for your loss. He was truly an amazing person who inspired
>>> and supported so many of us. His strength and courage held me up at times
>>> he didn't even know about. He will be missed. Blessings and much love to
>>> you and your family.
>>>
>>> Best Regards
>>> Tracie Mulvaney
>>>
>>> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>>>
>>> Back to top
>>> <#m_-1535638059080225632_m_-4175740522591615812_m_-1370835557443599334_m_5931007409515620720_m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>>>
>>> You received this digest because you're subscribed to updates for this
>>> group. You can change your settings on the group membership page.
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>>> email to cmlhope+unsubscr...@googlegroups.com.
>>>
>>>
>>>
>>> --
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Re: [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1 topic

[Marty Gartenberg]

Hi everyone -

This is Marty's son, Shaun, again.  Thank-you all so much for all the
stories, kind thoughts, wishes, and prayers for my Dad and our family.  We
are all so grateful to know how loved he was and how he was able to touch
so many lives in a profound way.

Hi Wayne - please do not cancel this thread.  I am still checking in on it
and relaying to rest of my family.  Just as he helped others, you all are
helping us, and we appreciate that, so much.

Regards,
Shaun

On Wed, Nov 14, 2018 at 7:33 AM Wayne Becken  wrote:

> Please cancel.  Subscriber is deceased.
>
>
>
>
>
> *From:* cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com]
> *Sent:* November-14-18 5:14 AM
> *To:* Digest recipients
> *Subject:* [CMLHope] Digest for cmlhope@googlegroups.com - 1 update in 1
> topic
>
>
>
> cmlhope@googlegroups.com
>
> Google Groups
> 
>
> [image: Image removed by sender.]
> 
>
> Topic digest
> View all topics
>
> ·   Update on Marty G
> <#m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_group_thread_0>
> - 1 Update
>
> Update on Marty G
> 
>
> Tracie Camlin : Nov 13 06:50AM -0600
>
> Dear Shaun and Family,
>
> I am so sorry for your loss. He was truly an amazing person who inspired
> and supported so many of us. His strength and courage held me up at times
> he didn't even know about. He will be missed. Blessings and much love to
> you and your family.
>
> Best Regards
> Tracie Mulvaney
>
> On Sun, Nov 11, 2018, 3:24 PM rszim0702 via CMLHope <
>
> Back to top
> <#m_2008183646449477958_m_-7010965656298477394_m_-4973846576126929945_digest_top>
>
> You received this digest because you're subscribed to updates for this
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>
>
>
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Re: [CMLHope] Thyroid bad

[Marty Gartenberg]

Jeanie iam in rehab right now and need to have talk with you about YOU why
in haven don't you where a led lined neck brace the next time you get in
touch with me i will tell you. 18s Marty

On Mon, Oct 1, 2018, 3:17 AM 'Jeanie' via CMLHope 
wrote:

> Hi all I got my thyroid test back. The counts err very high so went back
> to taking meds.  Check it again in 6 weeks.
> I am sure it’s all these meds.  Did you know even the X-rays from dentist
> can hurt thyroid. They say to asked for a protection mask.  I have never
> heard about this in all my years at the dentist. You?
> They order mri like it’s a trip to the candy store I had 3 last year with
> no answers.
> If those tests are killing our thyroids then we need to be told.  Right?
> Have s wonderful day.
> Love you so very much
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
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Re: [CMLHope] Blood work Moffitt perfect

[Marty Gartenberg]

Thanks beth 18s

On Tue, Sep 25, 2018, 10:22 AM bkbarney via CMLHope <
cmlhope@googlegroups.com> wrote:

> Marty,, so sorry to hear about your broken leg!! Oh my gosh! May you heal
> fast and well.  Much love and 18's Beth
> And Jeannie- you have the right to see a doctor- just ask...sometimes we
> have to be very forth right about our needs. The system is very over
> crowded..those more acute often rise to the top of the lline. While this is
> sometimes appropriate, in many cases, I think we still deserve the right to
> have time with our doctors and get the support, guidance and reassurance we
> need.
>
> 18's to all,
>
> Beth
>
>
> -Original Message-
> From: Marty Gartenberg 
> To: cmlhope 
> Sent: Tue, Sep 25, 2018 3:43 am
> Subject: Re: [CMLHope] Blood work Moffitt perfect
>
> Jeanie you see you see you see what do i keep telling you change geers
> trust yourself now something else broke my leg had  surgery in rehab talk
> later Marty 18s
>
> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>
> Hi all
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me.
> Love you so very much
> ❤️❤️
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> --
> --
> [CMLHope]
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Re: [CMLHope] Blood work Moffitt perfect

[Marty Gartenberg]

Jeanie you see you see you see what do i keep telling you change geers
trust yourself now something else broke my leg had  surgery in rehab talk
later Marty 18s

On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope 
wrote:

>
> Hi all
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me.
> Love you so very much
> ❤️❤️
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
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Re: [CMLHope] Re: Breathing Difficulties [Dasatinib]

[Marty Gartenberg]

Jeanie, Are you a depression head? I think that you need to add something
to your motto. But before I say it. You need to turn your head around and
look strait and just think about this... They are your own words and tell
me what you see...
Yes my onc reduced my Ponatinib >>AS SOON AS MY NUMBERS GOT GOOD< wrote:

> Hi perk
> Yes my onc reduced my Ponatinib as soon as my numbers got good.
> It’s so hard to know what to do.  We are scared to take mds but know we
> will die if we don’t.
> Good luck with all.
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> On Jul 30, 2018, at 2:24 PM, perk  wrote:
>
> I had the same problem with Sprycel. I went into the hospital thinking
> they were going to drain the fluid around my lungs. They took me off of
> Sprycel and on Tasigna. They also gave me Lasix to assist in removing the
> fluid. They cautioned that I may experience the same problem with Tasigna.
> I started taking it every other day instead of everyday and so far, my
> numbers have been good. I feel a little tightness in my chest sometimes but
> I seem to do better by not taking it everyday. Why did they increase your
> dosage? I think they prescribe too much sometimes and you should listen to
> your own body. This may not be good advice but it has worked for me.
>
> Good luck
>
> Perk in Texas
>
> On Saturday, July 28, 2018 at 8:26:52 AM UTC-5, Ragavan wrote:
>>
>> I was taking 50mg Dasatinib per day. An year back it was increased to
>> 75mg. For the last few months breathing difficulty is keep increasing. I am
>> not able to take full breath. It is always half breath. I will discuss with
>> my doctor in the coming visit.
>>
>> Did anybody else face the same problem? How did you handle? Please help.
>>
>> thanks,
>> Ragavan
>>
>>
>> --
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