Re: [QUAD-L] Re: medicaid
Carol writes: CITIZENS is the keyword here. Most American don't know this but in 1996-1997 a bill was passed that made ALIENS eligible for Medicaid. If these Aliens were refused Medicaid then we wouldn't have the shortage of monies in Medicaid. Do you realize how many Non-Citizens are on Medicaid. This is where the problem is with Medicaid.Any foreigner can come to the US and stay long past the time their work permit and Medicaid feels sorry for them and enrolls them, even at the cost of CITIZENS being denied benefits.I didn't know these facts until recently and I read an article online about it. I had no idea that you could be on Meidicaid and not be a citizen.I had thought that Medicaid was set up for the Citizens of our great country. No wonder it is broke.Carol in KY That is why they rush our borders. They know our government system will give them FREE money. Keith/c4c5/NJ
Re: [QUAD-L] about the quad dating theory, (c7 quad former cop)
Very well put. I certainly would have thought twice about dating a person in a chair. I was thinking about this conversation we're having and wondering what AB's would have to say, and I have a feeling the majority of them would poopoo our feelings of inadequacy, tell us they would always see the person first and the chair has nothing to do with their attraction. BULLcr*p. I much prefer an honest answer to a patronizing one. R On Feb 9, 2005, at 1:47 AM, [EMAIL PROTECTED] wrote: x-tad-smaller same time put yourself in the shoes of the walking people , back when you were on your feet would you have dated a chair person quad, para, stroke or any other?We are all in the same club now. Hope I made people think.../x-tad-smallerx-tad-smaller /x-tad-smallerx-tad-smaller /x-tad-smaller
Re: [QUAD-L] The Fly- Computer In a Pen
Hey Wheel, What is this FLY? Silas - Original Message - From: [EMAIL PROTECTED] To: Quad-List@eskimo.com Sent: Tuesday, February 08, 2005 4:50 PM Subject: [QUAD-L] The Fly- Computer In a Pen LeapFrog Technology produces the FLY. It won't be available until Sept of O5 at the cost of $100.00 Check it Out w
Re: [QUAD-L] The Fly- Computer In a Pen
A computer (without a screen) that is stuffed into a pen. Made by LeapFrog Enterprise, the Fly is capable of reading, singing, doing math, translating language and many more tasks for its users. Its something that you have to see to believe. However, it won't be available until Sept of this year at a projected cost of $99. You may also need a related product called Fly Paper to compliment the FLY. Try doing a Google Search for more info on this new product. Enjoy W In a message dated 2/9/05 8:18:07 AM, [EMAIL PROTECTED] writes: Hey Wheel, What is this FLY? Silas
[QUAD-L] Scary Movie.... SLEEPY MOVIE
Title: Scary Movie SLEEPY MOVIE I fell asleep when he was at the fat guys house the second time woke up it was time 2 go. I think its a good sleepy movie but not scary at all. On 2/8/05 3:34 PM, B. Kimberlin [EMAIL PROTECTED] wrote: I respectfully disagree with River's analysis of the movie. While I found Michael Keaton compelling as normal, I felt the movie was seriously lacking. It is possible I went in with expectations that were entirely too high, but I would recommend waiting for DVD. However, that is my opinion and River's opinion is just as valuable. Yours, Billy from Tampa C2-3 9 years post My blog: http://quadius-superbus.blogspot.com/ River Wolfe [EMAIL PROTECTED] wrote: Hi Smurf: I don't usually see movies more than once, so no I wouldn't see it again. Enjoy! River Do you Yahoo!? Yahoo! Search presents - Jib Jab's 'Second Term' http://us.rd.yahoo.com/evt=30648/*http://movies.yahoo.com/movies/feature/jibjabinaugural.html
Re: [QUAD-L] about the quad dating theory, (c7 quad former cop)
I can honestly say that I did not care. I just never knew anyone on a personal level to get to that point. I waited on many people in chairs here in Ocean City and found some attractive. I have always just wanted someone who will treat me well. I never went for the best looking or who had the best car either. That kind of stuff doesn't matter to me. I was taught that way by my Mom. She is the same way. I have always been a very caring person. I have always had a soft spot for people with mental disabilities, children with disabilities. I actually started going to college to become a special ed teacher. Problem was that I substitute taught at a special ed school and took it home with me. I couldn't shake it so I switched my major. That is not to get mixed up with a general person in a chair because I never felt sorry for anyone.The point is if I was to meet someone in a chair, they had a good sense of humor, somewhat attractive (took care of themselves), and we had a good conversation then there would be no reason for me to not want to see more of them. I always thought that is how people were until I became in a chair. I guess I was naive to think that. I was faced with a hard truth when I came home from the hospital and had a chance to see how people really are. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, February 09, 2005 1:47 AM Subject: [QUAD-L] about the quad dating theory, (c7 quad former cop) Ive read all your post regarding the quads having harder times getting dates. I agree with this but we all must remem,ber that in the end all of us only want to impress one person from the oppossite sex and make the most of it , possibly a life partner. Just because billy bob para can get 35 more women who really cares, that's 34 more than he needs. Lets fface it once your in a chair for a few years we all arent as shallow as we used to be. But I will tell you guys this funny little story about when I first had my injury in the hospital. I was a new cop at the time dating a female cop in training. I had my accident 8 weeks after I started. My gf stayed by my side for about two months then said she needed to get ready for softball and broke off the relationship and left me in the hospital bed. I cried cussed and beat the walls a little. But nearly a year later I saw her again, she asked me if I was angry. I said no i understand what u did and why you did it.you were dating a mustang then it turned into a pinto...you dont want a pinto you want a mustang. She just looked at me, then we continued a conversation and went for a bite to eat. The moral to all this is theirs always someone lower on the totem pole than you and always someone higher, it will be what you make it..at the same time put yourself in the shoes of the walking people , back when you were on your feet would you have dated a chair person quad, para, stroke or any other?We are all in the same club now. Hope I made people think... Ron c7
[QUAD-L] grapefruit/valium
My valium prescriptions have a warning sticker right on the bottle that says do not take with grapefruit. Bri
[QUAD-L] Being gainfully employed
This post is mainly directed at the quadriplegics here on the Quad List. Everybody that is going to school to better themselves and to try to make a living and be productive in the community my hat goes off to you. I myself have been giving it a lot of thought to go back to school to learn, actually, to refresh myself with architectural drawing and drawing by using AutoCAD. I'm a union sheet metal worker by trade and if I was able to do this efficiently I would be making union scale at over $30 per hour plus all my benefits. However, doing the drawings is the easy part. The hard part is dealing with all the paperwork such as, blueprints, copiers, plotters etc.. I even went as far as going to the Mayo Clinic for an evaluation for tendon transfers. They can do tendon transfers on one arm but there is no guarantee how much more use I would get out of the tendon transfers. They might not even work at all and I would lose what I have. If I was to lose the movement that I have now, I would not be able to do the work that I am doing now part-time. I'm fortunate enough to work for the same company that I did before my injury and most of the employees are my friends for many years. Right now, the job that I am doing consists of putting purchase orders, paying invoices and receivables into our computer system for billing. Each person that gives me this work puts everything in order and stacks the paper on top of each other so all I have to do is slide off each piece when I'm done with it. When some of the paper is stapled together or paperclip that is when I really struggle. There is no way I could handle blueprints in my condition. Even though I have the knowledge and the desire and willpower to do the job I am not physically able to. That is the reality of our conditions that we must face every day. I'm very fortunate to have a job but in reality I do not think I would be working and have what I have if my employer would not have told me I would have a job when I was ready to come back. They knew my character and my work ethic so they knew exactly what they were getting. I would like nothing more than to get off the system and fend for myself but in reality that would be a big mistake because of my disability. I already jumped through all the hoops the once and I guess I'm not willing to do it again because of the consequences if something was to happen to where I was unable to work again. I have even given it a lot of thought about going back to school for architecture so I could go into business specializing in designing handicapped homes and buildings. But I'm not sure that I want to commit to all that. My point is. You not only have to do what is best for you but if you are going to go out into the work force you have to be realistic with what you are physically able to do and put yourself into your potential employer shoes. After all, they are in business to make money. Jim
[QUAD-L] Relationships and Romances
I'm like Ron to where I have read all these posts but I will sit here and smile, chuckle and shake my head. We have talked about this subject many times before and it's OK to continue because of the new members on the list. There is no right or wrong answers to all the questions just like there is no wrong questions to ask. I have what so many of you want because I am married.. But do I? I'm going on 23 years of marriage with absolutely no romance at all. My wife was not very sexual to begin with even while I was walking and since my injury she has not touch me in any sexual or romantic way at all. I feel fortunate enough to get a peck in the mornings when she is going off to work and maybe I will get one when I go to bed. That is the extent to our physical contact. She has never been a good communicator and would always get upset if I ask to many questions and that continues to this day. She has always been a homebody and for the most part would only go out if we had something planned with friends or family. Basically, she would do what she wanted to do and do what she had to do. Is this romance or a relationship? I would have to say no. Personally, I think she is only sticking around because of finances but truthfully our relationship has not changed all that much since I've been injured except for the fact she is more stubborn and has started smart remarks. Should I divorce her? My answer is no. Why should I give up my home that I worked so hard to get and keep and why should I give up seeing my children on a daily basis? There is that old saying "It's always greener on the other side of the fence." In my experience through life it is NOT always greener on the other side of the fence. I have a good situation with my living because my place is pretty accessible plus I'm able to be around my children. I live my life day by day and make the best out of my situation. I know my life could be a lot worse and I know that there are others in worse predicaments then myself. There is all this talk about having a relationship with an able-bodied person. Why isn't there any talk about having a relationship with somebody else in a wheelchair? Can't two quadriplegics or two paraplegics or a paraplegic and a quadriplegic hookup and have a wonderful relationship? Of course they can but that is never brought up. Having a sexual relationship might be very tough to have or even out of the question but there is so much more to a relationship than sex. Sex is so far down on my list of wants and needs that I do not even think about it hardly anymore. I would take a relationship with loving and caring and good companionship with communication over just a sexual relationship anytime. Yes, it would be great to have both but in our conditions that just might not be possible. I can continue but I will stop for now. Jim
[QUAD-L] branson
HI EVERYONE I'M PLANNING A TRIP TO BRANSON IN JUNE AND JUST WONDERED IF ANY OF YOU CAN RECOMMEND A NICE PLACE TO STAY THAT HAS MORE THAN JUST ACCESSIBLE ROOMS - LAST YEAR WE STAYED AT A PLACE THAT WAS NOTHING MORE THAN A ROOM WITH A ROLL IN SHOWER THAT I COULD BARELY FIT IN. I NEED SPACE! NICKI
[QUAD-L] UTI'S
I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI
[QUAD-L] Grrrrrrrrrrrrrrr
Too early now to know if GSE will work ... I'm so depressed and bummed. I finished my 2-week antibiodic for myproteas infection 9 days ago It was obviously working as my urine was real clear, no odor, etc. This past Monday night I got my cath changed. Yesterday morning husband Dave said "your urine smells real strong." Which is never the case so shortly after a cath change. Then last night I got the indicative shakes and my temp was going up. Shit! I took Tylenol to bring the fever down as those shakes nearly kill me. Plus slight nausea - more like reflux. With Cipro on hand I took that too. My shakes stopped and I slept well but but temp is 100.5 this morning. This proteaus infection began way back on Dec 13th! But the antibiodic Cefuroxime-axetil, in all areas, seemed to be doing the trick. We took an hour drive north yesterday to get out on a lovely day here in AZ. I had some pain on the trip but it pretty much went away after getting home. Then last night We need such a break from all these factors. Dave still has insomnia and is exhausted. Bad news everywhere ... A gem of an aide began here 2 months ago. Now she's 'moving on.' I just wishshe would have been upfront unless it was a decision recently made. More opportunity and money she says. But they need more people like her in the health care field. When I first met her she said taking care of people is what she's always wanted to do even though she's only 21. But 21 going on 35. I'm awaiting a call from my Dr's office on what to do. I feel 'ok' now but Tylenol Cipro is kicking in. I hope to get my culture results tomorrow. My nurse took a sample Monday just to see if the other infection was gone. These back-to-back UTIs are unsolvable. I just started my GSE tablets yesterday. But if the infection was already there (no doubt now that it was) thenit won't work as a prophylactic. I'll be in bed tomorrow as Dave has to take my chair downtown to put the new part in. I need to be out of the chair for them to do the job. With rain .. good day as any to have to stay in bed. Depressed, confused and bummed, Lori
Re: [QUAD-L] UTI'S
I too have tried Macrobid as a preventative. I keep it on hand - have been for 2 yrs or so. Helps the smell of my urine/catheter when it gets skunky smelling at times but doesn't keep my UTIs at bay. No side effects from it for me. I used to irrigate with clorpactin (a chlorine irrigant like clorox!). And renacedin (sp?). But both, I'm told, need to sit in the bladder 5 minutes and I can't hold it. I wasn't getting UTIs then ... just sludge and sand. I went back to vinegar/sterile water to keep my cath clear. No UTIs then. I best try doing that again with my UTI streak since stopping that daily routine. I stopped because my sludge/ sand decreased or diminished. Hubby thinks pushing anything into the bladder isn't cool. But I didn't have UTIs then! Lori ---Original Message--- From: Nichole Rohling Date: 02/09/05 11:42:36 To: QUADLIST Subject: [QUAD-L] UTI'S I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI
Re: [QUAD-L] UTI'S
I know I've mentioned this before but I'll say it again. MANNOSE has worked wonders for me. NO infections for 3 yrs and I used to have them constantly. Here's the literature: http://www.healingtherapies.info/D-Mannose.htm On Feb 9, 2005, at 1:43 PM, Nichole Rohling wrote: I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI peaceandlovingkindness, River www.hodohio.com
Re: [QUAD-L] Scary Movie.... SLEEPY MOVIE
Wow...can't believe you fell asleep. LOL R On Feb 9, 2005, at 11:06 AM, Houston809 wrote: I fell asleep when he was at the fat guys house the second time woke up it was time 2 go. I think its a good sleepy movie but not scary at all. On 2/8/05 3:34 PM, B. Kimberlin [EMAIL PROTECTED]> wrote: I respectfully disagree with River's analysis of the movie. While I found Michael Keaton compelling as normal, I felt the movie was seriously lacking. It is possible I went in with expectations that were entirely too high, but I would recommend waiting for DVD. However, that is my opinion and River's opinion is just as valuable. Yours, Billy from Tampa C2-3 9 years post My blog: http://quadius-superbus.blogspot.com/ River Wolfe [EMAIL PROTECTED]> wrote: Hi Smurf: I don't usually see movies more than once, so no I wouldn't see it again. Enjoy! River Do you Yahoo!? Yahoo! Search presents - Jib Jab's 'Second Term' http://us.rd.yahoo.com/evt=30648/*http://movies.yahoo.com/movies/feature/jibjabinaugural.html>
Re: [QUAD-L] Relationships and Romances
Wow - Jim, Our length of marriage and situation is almost IDENTICAL lol ! I think we are very fortunate - and like you say companionship is more important because as you age for most people sex becomes less important anyway.I'm blessed with a wife who is my care-giver also, we have 4 kids- my youngest daughter is still at home going to career school, and we have 4 grandkids so far lol ! I have a pet boxer dog I taught to do tricks before i got hurt- also a cool neighborhood to run around in my power chair... plus lots of support from family, friends and church. At times I get frustrated but then think how blessed I am and how so Many are much much worse off...because in every SITUATION things could be better or could be worse.Like you I try to take it all one day at a time and enjoy what I can ! Bless You All ! and may all of you looking for companionship find it ! *Dan* c-6- post 71/2 years
Re: [QUAD-L] Working from home
Keep looking Kathy a lot of them put you in drawings and if they're short ones I'll do them but if they're 30 minute surveys I delete them unless they're offering cash and usually the ones offering cash you have to meet a certain profile but you have to search for the paying sites andmost sites have paying surveys and have surveys with drawings also so just because you don't see a paying survey at first doesn't mean they don't have them. Keep searching. Survey Spot is a good one to start with and the mistery shopping is a great one if you can drive. Mark ---Original Message--- From: [EMAIL PROTECTED] Date: Tuesday, February 08, 2005 4:17:00 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Working from home The surveys that I do enter me into drawers, and so far, I have not won the jackpot, haha. Thanks so much for the info and the list and I am going to look through it. Kathy from Mississippi
Re: [QUAD-L] Relationships and Romances
Dan, My wife and family were also my main caregivers until the Friday after Thanksgiving. Since I work, I qualify for a new program here in Minnesota that lets disabled people qualify for medical assistance and PCA care. Before, because I did work, I made too much money to qualify for any PCA care. Having the PCA's has taken a lot of stress off of my wife and myself also. They are very limited on what they can do such as housecleaning, dishes and laundry for the rest of the family but they can do everything that pertains to me. I consider myself a very "user-friendly" quadriplegic. I do not need any care during the day except to have my lunch made and placed in refrigerator and my daily ration of pills laid out on the countertop. If I need or want to go somewhere during the day I just have to make sure I am dressed accordingly and that I have my chest strap on so I can drive otherwise, I entertain myself with TV, computer and books. The company that I go through for my PCA care is called "Student Experience." This company is quite unique I believe because they only higher college students that are going into the medical field. I have three girls. One is getting her masters in nursing and possible medical school. One is getting her doctorate in physical therapy and the last one is getting her masters in psychology. I was very reluctant to have such young people take care me because of their reliability. But all three of these girls are wonderful and are very focused on their futures. I used to deal with young people all the time at work and frankly, they can be nothing but headaches especially when they turn 21 and are legal age to drink. I've only been a quadriplegic for 4.5 years and I have a lot to learn. A very fortunate that I have not had a lot of the troubles that some of these people have but I'm sure my time is coming. Jim
Re: [QUAD-L] UTI'S
I NEED TO GET RID OF THE SLUDGE/SAND AND WAS SUCCESSFULL WHILE ON CRIPO. CHANGED CATH AND 4 DAYS LATER - WHITE BUILDUP IN DRAINAGE TUBE. WHAT KIND OF VINEGAR AND WHAT RATIO DID YOU USE? THANKS LORI - Original Message - From: Lori Michaelson To: Quad Sent: Wednesday, February 09, 2005 1:06 PM Subject: Re: [QUAD-L] UTI'S I too have tried Macrobid as a preventative. I keep it on hand - have been for 2 yrs or so. Helps the smell of my urine/catheter when it gets skunky smelling at times but doesn't keep my UTIs at bay. No side effects from it for me. I used to irrigate with clorpactin (a chlorine irrigant like clorox!). And renacedin (sp?). But both, I'm told, need to sit in the bladder 5 minutes and I can't hold it. I wasn't getting UTIs then ... just sludge and sand. I went back to vinegar/sterile water to keep my cath clear. No UTIs then. I best try doing that again with my UTI streak since stopping that daily routine. I stopped because my sludge/ sand decreased or diminished. Hubby thinks pushing anything into the bladder isn't cool. But I didn't have UTIs then! Lori ---Original Message--- From: Nichole Rohling Date: 02/09/05 11:42:36 To: QUADLIST Subject: [QUAD-L] UTI'S I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI
Re: [QUAD-L] Grrrrrrrrrrrrrrr
Ya... you males who have 'external plumbing' have that option (condom caths). I've heard equally good and bad from females or males on getting a suprapubic. The cath is still going in the bladder so it's not THE solution either. Bladder augmentation is scary to me. There are so many surgical f-ups these days and messing with the bowel isn't a cool idea for me. A neurosurgeon nearly killed me in '95. I have no faith in the health care industry anymore. :-( Lori ---Original Message--- From: [EMAIL PROTECTED] Date: 02/09/05 12:31:26 To: [EMAIL PROTECTED] Subject: Re: [QUAD-L] Grrr Lori, I feel for you and I totally understand what you are going through. Every single time I am cathed I end up with a UTI. Sweats, shakes, high temperature etc. just kill me. Since I have been using a condom catheter I have not had a UTI for over 3.5 years. I do not remember the type of bacteria that I would get but Cipro would not touch it so they gave me and antibiotic that started with L. Like I said, it's been a long time since I had a UTI. I'm sure I can speak for everybody here. Hang in there and we are feeling for you. Jim
Re: [QUAD-L] Being gainfully employed
Hey Jim your job is almost exactly what I do, I have to put all the purchase orders and work orders and follow up with home owners and schedule the subs on our houses and we build around 50 homes a year which can get hectic trying to schedule if it's across town but I actually live in one subdivision so I can go out and see for myself what's going on. Like you I knew my employer and he knew my character and work habits because I used to subcontract framing with him but I did need to call him several times and convince him to give me a shot and it worked out beautifully I've been here almost 3 years now and I've saved him a ton of money pricing material through several different lumber yards by getting bids on lumber and other material which he never had time to do. I know I'm lucky to have this job and I couldn't ask for a better employer and he has built me another house around the corner with a better design for me like 4' halls and open spaces so I'm one happy quad. Mark ---Original Message--- From: [EMAIL PROTECTED] Date: Wednesday, February 09, 2005 12:20:35 PM To: quad-list@eskimo.com Subject: [QUAD-L] Being gainfully employed This post is mainly directed at the quadriplegics here on the Quad List. Everybody that is going to school to better themselves and to try to make a living and be productive in the community my hat goes off to you. I myself have been giving it a lot of thought to go back to school to learn, actually, to refresh myself with architectural drawing and drawing by using AutoCAD. I'm a union sheet metal worker by trade and if I was able to do this efficiently I would be making union scale at over $30 per hour plus all my benefits. However, doing the drawings is the easy part. The hard part is dealing with all the paperwork such as, blueprints, copiers, plotters etc.. I even went as far as going to the Mayo Clinic for an evaluation for tendon transfers. They can do tendon transfers on one arm but there is no guarantee how much more use I would get out of the tendon transfers. They might not even work at all and I would lose what I have. If I was to lose the movement that I have now, I would not be able to do the work that I am doing now part-time. I'm fortunate enough to work for the same company that I did before my injury and most of the employees are my friends for many years. Right now, the job that I am doing consists of putting purchase orders, paying invoices and receivables into our computer system for billing. Each person that gives me this work puts everything in order and stacks the paper on top of each other so all I have to do is slide off each piece when I'm done with it. When some of the paper is stapled together or paperclip that is when I really struggle. There is no way I could handle blueprints in my condition. Even though I have the knowledge and the desire and willpower to do the job I am not physically able to. That is the reality of our conditions that we must face every day. I'm very fortunate to have a job but in reality I do not think I would be working and have what I have if my employer would not have told me I would have a job when I was ready to come back. They knew my character and my work ethic so they knew exactly what they were getting. I would like nothing more than to get off the system and fend for myself but in reality that would be a big mistake because of my disability. I already jumped through all the hoops the once and I guess I'm not willing to do it again because of the consequences if something was to happen to where I was unable to work again. I have even given it a lot of thought about going back to school for architecture so I could go into business specializing in designing handicapped homes and buildings. But I'm not sure that I want to commit to all that. My point is. You not only have to do what is best for you but if you are going to go out into the work force you have to be realistic with what you are physically able to do and put yourself into your potential employer shoes. After all, they are in business to make money. Jim
Re: [QUAD-L] Grrrrrrrrrrrrrrr
While I was in rehab, the nurses and a couple of the doctors were pushing for me to have a suprapubic. My doctor told me not to do anything for the first three years because my body is going to change and he was right. I'm fortunate enough to have a spontaneous bladder that empties when it gets full on its own. I never had a UTI while I was walking but I can only imagine how painful that would be because of the way my body reacts to them now. With all the UTIs that are going around this group with you females, would it help if you were able to be stood up or at least partially stood up daily for a few minutes to help the flow? Jim
Re: [QUAD-L] Relationships and Romances
I think age CAN be a factorfor some, Jim, butI've noticed that the older 'men' are ... the better lovers they are. They're past the pure lust of youth and begin to want to please their female FIRST before their own pleasures. And I've heard SCI men here say over over that now they'd just be happy to hug and kiss and just love (if they only had a mate). My husband I just talked abt this the other day. A Dr Phil show helped bring it up. No.. it was talking abt a friend we met here soon after moving here to AZ. She's an intelligent, *very worldly* woman (my age - 39-40). She was very Christian and able bodied but DESPERATE for a husband. So desperate that she married (within 2 months of knowing the guy) a mental midget. I knew something was "off" about him but she seemed to like to hide him. Strange. We had become friends so I finally asked her if he had some learning difficulty or??? Her reply was "I *think* his deficits are from fetal alcohol syndrome." She THINKS? Hmmm. I've worked w/ that population and most are retarded or borderline retarded. He had an unsteady gait too but not 'obvious.' ANYWAY ... While both me my husbandare very sexual beings ... we've had to sacrifice alot sexually with all my secondary problems that keep snowballing (frustrating). But communication and companionship take precedence for both of us. My husband remarked the other day (after talking abt my friend) ... "one needs mentally stimulating communicationin a relationship." My friend was very intelligent yet nose-dived into marrying one who can barely think. She was soo desperate that once she bought a wedding dress for the future! It was almost as if she would marry anything that crawled by. My husband also said "My ex and I NEVER were able to talk like you and I do daily." Along with .."if it gets too bad for the one *not getting any* they can resort to their palm and fingers." At least the able-bodied spouse that is :-) Our love for eah other and our open-communication is #1 in our marriage. MOST guys who have affairs ... want to feel what they once felt w/ their wife ... to feel special. People start taking their spouses for granted and either party (because of communication breakdown) sometimes turn elsewhere or outside the marriage to solve the problem. Bad move. We use alot of sex talk. I think our internet dating allowed us to venture into saying what's exactly on our minds. No inhibitions. The "normal" dating scene doesn't usually let one talk explicitly and they 'hold back' alot of things in the name of politeness. After thousands of emails over a year on the net ... we knew everything intimate about each other in a short time. Right now, BOTH of us have medical issues so sex itself is not on our radar screen. But we have each other for our 'down days' but the 'down days' are usually directly cuz of an SCI issue .. aide quits, UTIs, wounds, etc.. So bottom line - love will keep us together. Lori ---Original Message--- From: [EMAIL PROTECTED] Date: 02/09/05 12:31:06 To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Relationships and Romances Wow - Jim, Our length of marriage and situation is almost IDENTICAL lol ! I think we are very fortunate - and like you say companionship is more important because as you age for most people sex becomes less important anyway.I'm blessed with a wife who is my care-giver also, we have 4 kids- my youngest daughter is still at home going to career school, and we have 4 grandkids so far lol ! I have a pet boxer dog I taught to do tricks before i got hurt- also a cool neighborhood to run around in my power chair... plus lots of support from family, friends and church. At times I get frustrated but then think how blessed I am and how so Many are much much worse off...because in every SITUATION things could be better or could be worse.Like you I try to take it all one day at a time and enjoy what I can ! Bless You All ! and may all of you looking for companionship find it ! *Dan* c-6- post 71/2 years
Re: [QUAD-L] Grrrrrrrrrrrrrrr
"With all the UTIs that are going around this group with you females, would it help if you were able to be stood up or at least partially stood up daily for a few minutes to help the flow? Jim" I don't think so. I think it's all because of the cath being a foreign object in the body. After I get rid of this bug ... I think, albeit a pain in the ass w/ one more thing to do, I'm going to go back to irrigating with vinegar sterile water. I had no UTIs when that was part of my regimen. Lori
Re: [QUAD-L] Relationships and Romances
That's exactly what I'm talking about. Sex is so far down the list I normally don't worry about it anymore. I can't say I never think about it not it does not frustrate me like it used to. Having a loving relationship is way more important than having a sexual relationship. But at age 45 I can say that because I've been there and done that. Jim
Re: [QUAD-L] Grrrrrrrrrrrrrrr
For all the MALES...How did you know you could use comdom caths?? My doc's had me having Caths done every 6 hours or so for the 1st 31/2 years after my injury..after a while I got blockage inside where they had to do surgury 2 times to clear opening for me to continue being Cathed, After that I was told due to this trouble I need to consider supra-pubic -- which I ended up doing.My Question is, they never ever told me I could use comdom Cath ? Now I always hear how with those you all have few UTI'S . I wonder if Doc's just wanted to do this to make money..cause my Urologist was pushing me for supra-pubic surgury ? Now with my infections He say's well if I have to i'll RE-ROUTE your bladder to the side and give you a side bag? I told my wife No-Way - Like Lori Stated they may kill me or me or make things worse ! *Dan*
[QUAD-L] UTIs - Kevin
Kevin writes "1000 MG Vit C a day, cranberry juice and lots of water will keep you UTI free" Been doing that for yrs. Still stumped. And, yes, we're VERY CLEAN there. Smooth-going sterile cath changes. Gosh,BEFORE I began 1000mg of Vit C and drinking nearly a gallon of water and drinking juices ... I was getting UTIs maybe once in 3 yrs - excellent record for a foley user. I better consider going back to getting down dirty! LOL Lori
[QUAD-L] running against da wind-working with NASA, as crash dummy
In a message dated 2/9/05 10:38:52 AM, [EMAIL PROTECTED] writes: Things are really tight around here on the farm, may have to start jacking off the dog to feed the cat. Be careful in life, what you ask for. All you need is every dog in the neighborhood barking at your door at all hours of the day and night, because one dog was a big mouth. lol W
Re: [QUAD-L] UTI'S
i have uti's all the time. i take cranbarry juice tables ever day. i have one now. i drink a lot o water too. wheelchair warriorLori Michaelson [EMAIL PROTECTED] wrote: I too have tried Macrobid as a preventative. I keep it on hand - have been for 2 yrs or so. Helps the smell of my urine/catheter when it gets skunky smelling at times but doesn't keep my UTIs at bay. No side effects from it for me. I used to irrigate with clorpactin (a chlorine irrigant like clorox!). And renacedin (sp?). But both, I'm told, need to sit in the bladder 5 minutes and I can't hold it. I wasn't getting UTIs then ... just sludge and sand. I went back to vinegar/sterile water to keep my cath clear. No UTIs then. I best try doing that again with my UTI streak since stopping that daily routine. I stopped because my sludge/ sand decreased or diminished. Hubby thinks pushing anything into the bladder isn't cool. But I didn't have UTIs then! Lori ---Original Message--- From: Nichole Rohling Date: 02/09/05 11:42:36 To: QUADLIST Subject: [QUAD-L] UTI'S I WENT TO UROLOGIST MONDAY AND HE WANTS TO PUT ME ON A HALF DOSE OF MACROBID FOR INFECTION PREVENTION. I OPTED TO WAIT AND SEE IF I GET ANOTHER INFECTION AND I BELIEVE I'M THERE! ANYONE USE A SOLUTION THAT HAS ANTIBIOTIC IN IT TO FLUSH THEIR BLADDER? IF SO, WHAT IS IT? ANYONE ON A MAINTENANCE DOSE OF ANTIBIOTIC AND DO YOU SUFFER ANY SIDE EFFECTS FROM IT? NICKI __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] about the quad dating theory, (c7 quad former cop)
In a message dated 2/9/2005 1:48:58 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Ive read all your post regarding the quads having harder times getting dates. I agree with this but we all must remem,ber that in the end all of us only want to impress one person from the oppossite sex and make the most of it , possibly a life partner. Just because billy bob para can get 35 more women who really cares, that's 34 more than he needs. Lets fface it once your in a chair for a few years we all arent as shallow as we used to be. But I will tell you guys this funny little story about when I first had my injury in the hospital. I was a new cop at the time dating a female cop in training. I had my accident 8 weeks after I started. My gf stayed by my side for about two months then said she needed to get ready for softball and broke off the relationship and left me in the hospital bed. I cried cussed and beat the walls a little. But nearly a year later I saw her again, she asked me if I was angry. I said no i understand what u did and why you did it.you were dating a mustang then it turned into a pinto...you dont want a pinto you want a mustang. She just looked at me, then we continued a conversation and went for a bite to eat. The moral to all this is theirs always someone lower on the totem pole than you and always someone higher, it will be what you make it..at the same time put yourself in the shoes of the walking people , back when you were on your feet would you have dated a chair person quad, para, stroke or any other?We are all in the same club now. Hope I made people think... Ron c7 Rongreat post!! I just got home from work, so this will be short, but i've always thought i'm a Corvette engine inside this beat up rusted Corvette bodyif the girl ever opens her mind to feel the power of my engine, they fall for me, and for the most part it's true...but if they put the wall up, they will only see the beat up Corvette. Funny thing, when i was in hospital in TERRIBLE looking shape...i had a lot of nurses/therapists attracted. First girl i had sex with after my accident was a nursea respitory therapist used to kiss me (hard sexual kiss) at night. I never understood that attraction, except that maybe i touched a maturnal nerve in them, and it drew them to me...not sure peace...tony c5c6
Re: [QUAD-L] running against da wind-working with NASA, as crash dummy
True so true. Lol - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, February 09, 2005 1:18 PM Subject: [QUAD-L] running against da wind-working with NASA, as crash dummy In a message dated 2/9/05 10:38:52 AM, [EMAIL PROTECTED] writes: Things are really tight around here on the farm, may have to start jacking off the dog to feed the cat. Be careful in life, what you ask for. All you need is every dog in the neighborhood barking at your door at all hours of the day and night, because one dog was a big mouth. lol W
[QUAD-L] ~pt.2~DONKEY TRACKS ~~ from: The White Donkey Society February 9, 2005
~pt. 2~DONKEY TRACKS" ~~ from: The White Donkey SocietyFebruary 9, 2005 ~TRAILSofLIVING~ Wind against your face The faster you move forward, the more intensely you'll feel the wind against your face. The more progress you make, the more resistance you're likely to encounter. When the challenges become more formidable, it's because you've become strong enough to handle them. Failure rarely meets much opposition. Success, on the other hand, is often challenged at every turn. When you're meeting up with resistance, it's because you're having an effect. That's one of the strongest signals you could ever receive to keep on keeping on. Achievement does not come easy. That's why it is so celebrated and valuable. Each challenge serves to further prove the value of your pursuit and the depth of your strength. Persist and endure, for the challenges confirm that you are already making it happen. Meet the challenges When you run from challenges you are rewarded only with excuses and regrets. By contrast, when you seek out and confront those challenges you are rewarded with success and accomplishment. The sooner you confront your challenges, the more positive the outcome will be. It will always be an effort. That's the essential nature of challenge. But the longer you put it off, the more you run from it, the worse the necessary effort will eventually be. Stand up, step forward and walk out to meet your challenges. Put yourself in a position of strength. Put yourself in a position where you can gain from your own efforts. Be aggressive at meeting challenges and you'll make the most of them. That's a whole lot better than hiding from them and letting them drain you. What challenge can you face head on and conquer today? It's out there, and when you go out to meet it you'll be moving yourself positively forward.-- Ralph Marston ~TRAILS ofLIFE~ Today, when I awoke, I suddenly realized that this is the "Best Day Of My Life," ever! There were times when I wondered if I would make it to today; but I did! And because I did I'm going to celebrate!Today, I'm going to celebrate what an unbelievable life I have had so far: the accomplishments, the many blessings, and, yes, even the hardships because they have served to make me stronger. I will go through this day with my head held high, and a happy heart. I will marvel at God's seemingly simple gifts: the morning dew, sun, clouds, trees, flowers and birds.Today, none of His miraculous creations will escape my notice.Today, I will share my excitement for life with other people. I'll makesomeone smile. I'll go out of my way to perform an unexpected act ofkindness for someone I don't even know.Today, I'll give a sincere compliment to someone who seems down. I'll tell a child how special he is, and I'll tell someone I love just how deeply I care for them and how much they mean to me.Today is the day I quit worrying about what I don't have and start beinggrateful for all the wonderful things God has already given me. I'llremember that to worry is just a waste of time because my faith in God and his Divine Plan ensures everything will be just fine.Tonight, before I go to bed, I'll go outside and raise my eyes to theheavens. I will stand in awe at the beauty of the stars and the moon, and I will praise God for these magnificent treasures. "Everyone was gripped with great wonder and awe. And they praised God, saying over and over again; "We have seen amazing things 'TODAY' Luke 5:26." NLT As I go to sleep I will lay my head down on my pillow, I will thank Almighty God for "The Best Day Of My Life." And I will sleep as a contented child, excited with expectation because I know tomorrow is going to be .."The Best Day Of My Life!"Father today I give you all the praise and glory for everythingthat happens to me. For this truly is the "Best Day Of My Life by Dick Innes ~TRAILSofSCRIPTURE~ "Let no unwholesome word proceed from your mouth, but only such a word as is good for edification according to the need of the moment, that it may give grace to those who hear." Ephesians 4:29 (NASB)Giving GraceBefore this day is done, an occasion will arise in your life that todays verse calls the need of the moment. It will happen this way: God has someone in mind he wants to touch today. He has grace available for this person. At the same time, Gods looking for another person to serve as his conduit. What does he do next? He crosses your paths. He puts the two of you together in a grocery check-out line, on a golf course, at choir rehearsal, in Chemistry class, in the parking lot or at the ATM booth. What happens after that is up to you. You have before you a need of the moment. You also have God who desires to give divine help. You can choose to side-step the moment and, thus, miss the opportunity, or you can give such a word as is good for edification... that it may give grace to those who
Re: [QUAD-L] Being gainfully employed
In a message dated 2/9/2005 3:03:42 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Like you I knew my employer and he knew my character and work habits because I used to subcontract framing with him but I did need to call him several times and convince him to give me a shot and it worked out beautifully I've been here almost 3 years now and I've saved him a ton of money pricing material through several different lumber yards by getting bids on lumber and other material which he never had time to do. Marki think that's great you were able to work that out, but i'm sorry convincing a prospective employer isn't easier on most quads. It's a really difficult thing to do, not knowing the person. I was lucky by working at a lower job, then writing a letter to a higher up boss in the building asking for a shot in the Survey Processing Dept. I got the shot, and i've been there since... -tony c5c6
Re: [QUAD-L] UTI'S
---Original "WHAT KIND OF VINEGAR AND WHAT RATIO DID YOU USE? THANKS LORI" I'll have to get back to you on that. Need to ask my husband and he's resting. I use this huge jug (see through) we have so it'll last awhile. They say 3 days of the sterile solutionsitting around is the max ... but we didn't do that. Mine usually lasted a good while. Lori
Re: [QUAD-L] Grrrrrrrrrrrrrrr
Dan, While I was in rehab my indwelling catheter started to erode my urethra so they started to cath me every six hours also. When they would Cath me I would have anywhere between 1000 CC and 1500 CC of year in all the time, that his way too much for the bladder to hold. They told me that since I was a construction worker my bladder was larger than most people because of the absence of toilets. While all this was being done to me I had a perpetual UTI, which was driving me crazy. I started leaking urine when my bladder was getting full and then all of a sudden I would urinate. They told me that I am starting to get a spontaneous bladder and that they wanted to try condom catheter on me. So, I guess answer to your question is. If you bladder gets full and you urinate on your own use be able to use a condom catheter. If you cannot urinate on your own then you are stuck with a Foley or a suprapubic. Jim
Re: [QUAD-L] Grrrrrrrrrrrrrrr
Lori, We seem to be having similar luck. I am starting my 4th uti since early december. I was in the hospital when the first began on iv antibiotics for other health problems. There is no doubt the infection is there because the urine turns red, and I have all the symptoms you mentioned, usually following the discolored urine. I had been on home health and they were here on friday and they haddischarged me. I went to the front door and was going to stop,and look outbut my chair kept going forward and then went down the ramp. I told my husband behind me that I didn't mean to go down and he saw the right arm of my chair was falling backwards and as it did my grip caused the joystick to press forward and I ended up turned up in the shrubs trapped between them and the rock work. My left side is badly bruised and having a heck of a time with spasms. I got a whip lash type injury when I came out of the shrubs. Oh, by the why, I was admitted back to home health today. It is a terrible, humble feeling when you are grounded due to illness, and to know you don't have a wheelchair you can get into in case of need to go to the doctor or other type of emergengy. Kathy from Mississippi
Re: [QUAD-L] Grrrrrrrrrrrrrrr
In a message dated 2/9/2005 4:03:00 PM Eastern Standard Time, [EMAIL PROTECTED] writes: For all the MALES...How did you know you could use comdom caths?? My doc's had me having Caths done every 6 hours or so for the 1st 31/2 years after my injury..after a while I got blockage inside where they had to do surgury 2 times to clear opening for me to continue being Cathed, After that I was told due to this trouble I need to consider supra-pubic -- which I ended up doing.My Question is, they never ever told me I could use comdom Cath ? Now I always hear how with those you all have few UTI'S . I wonder if Doc's just wanted to do this to make money..cause my Urologist was pushing me for supra-pubic surgury ? Now with my infections He say's well if I have to i'll RE-ROUTE your bladder to the side and give you a side bag? I told my wife No-Way - Like Lori Stated they may kill me or me or make things worse ! *Dan* Dan.they right away started me on condom caths, and tried to get me tapping my bladder. I don't trust doctors, don't think most know what their talkin about with SCI...i like my doc, but i know he doesn't know much about my body. Don't let em experiment on you... -tony c5c6
Re: [QUAD-L] ...the farm
In a message dated 2/9/2005 4:20:01 PM Eastern Standard Time, [EMAIL PROTECTED] writes: message dated 2/9/05 10:38:52 AM, [EMAIL PROTECTED] writes: Things are really tight around here on the farm, may have to start jacking off the dog to feed the cat. Be careful in life, what you ask for. All you need is every dog in the neighborhood barking at your door at all hours of the day and night, because one dog was a big mouth. lol W lolhell, i'm getting in line too!! -tony
Re: [QUAD-L] Grrrrrrrrrrrrrrr
Thank's for the info. on this guy's-- I wish i'd have tried condom cath's before supra-pubic, but was never told it was an option, I think it would have worked for me but Doc's kept me thinking if bladder got to full it could stretch or harm it. Like some of you said-- we know our bodies more than they do. Dan
[QUAD-L] Running against da wind-working with NASA, as a crash dummy
When all else fails, you can always become a sperm donor. It pays and you only have to make deposits when they call for your DNA. Support the Navy, and keep those seamen happy and make sure they keep swimming upstream. Best Wishes W In a message dated 2/9/05 10:02:24 AM, [EMAIL PROTECTED] writes: I want 2 put in an application. A friend was telling me about a job making 22 hour I didn1t think it was 4 me ... Putting rubbers on roosters and milking hens :)
Re: [QUAD-L] Relationships and Romances
Now your singing the write song Tony, man I can't imagine life without a little spice. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Wednesday, February 09, 2005 2:12 PM Subject: Re: [QUAD-L] Relationships and Romances In a message dated 2/9/2005 3:53:48 PM Eastern Standard Time, [EMAIL PROTECTED] writes: That's exactly what I'm talking about. Sex is so far down the list I normally don't worry about it anymore. I can't say I never think about it not it does not frustrate me like it used to. Having a loving relationship is way more important than having a sexual relationship. But at age 45 I can say that because I've been there and done that. Jimwell, everybody's different, but for me, i'm 46, sex is very importantit doesn't have to be the conventional kind, but it's damn important to me in relationship. And i think about it a LOTeverytime a hottie walks by at work!! lol-tony c5c6
[QUAD-L] Bladder Thumping.... an artform
Tapping or thumping one's bladder to empty using a condom cath is definitely not for everyone. As the bladder fills and you have the feeling to void, some make a fist and thump the bladder to void. The urine in the bladder is then forces the sphincter muscle to (smile) or open, allowing the urine to flow from the penis into the condom cath. This procedure can only be done by 10% of the quad-population and doctors think that everyone should at least try to reduce UTI's. Once you realize that you are the 90%, you have to tap the bladder with cath tube or have an indwelling cath. W In a message dated 2/9/05 4:08:27 PM, [EMAIL PROTECTED] writes: Dan.they right away started me on condom caths, and tried to get me tapping my bladder. I don't trust doctors, don't think most know what their talkin about with SCI...i like my doc, but i know he doesn't know much about my body. Don't let em experiment on you... -tony c5c6
Re: [QUAD-L] The Fly- Computer In a Pen
This is a link to some info http://www.mobilemag.com/content/100/102/C3615/ In a message dated 2/9/2005 7:18:12 AM Mountain Standard Time, [EMAIL PROTECTED] writes: Hey Wheel,What is this FLY? Silas
Re: [QUAD-L] The Fly- Computer In a Pen
Thanks Moon, I'm still trying to figure out how to use it... when it does come out. W In a message dated 2/9/05 4:54:47 PM, [EMAIL PROTECTED] writes: This is a link to some info http://www.mobilemag.com/content/100/102/C3615/ In a message dated 2/9/2005 7:18:12 AM Mountain Standard Time, [EMAIL PROTECTED] writes: Hey Wheel, What is this FLY? Silas
[QUAD-L] Quad on Regis Kelly
Did any one see this? My aid was watching Regis Kelly this morning and they are giving him and his bride to be a wedding ceremony I guess they were picked out from a bunch of entries. He was very clean cut and outgoing and well spoken so a very good public figure for the rest of us. Just thought this was interesting. Mark
FW: [QUAD-L] Bladder Thumping.... an artform
I've been a c-5 since 1971 and until two years ago was able to stimulate my bladder with slight pressure. I very very rarely had infections. Suddenly I started getting sweats, fever, and infections from hell. For some reason my bladder just quit working. Now I am a member of that 90% that caths. From: [EMAIL PROTECTED] To: quad-list@eskimo.com Subject: [QUAD-L] Bladder Thumping an artform Date: Wed, 9 Feb 2005 17:46:55 EST Tapping or thumping one's bladder to empty using a condom cath is definitely not for everyone. As the bladder fills and you have the feeling to void, some make a fist and thump the bladder to void. The urine in the bladder is then forces the sphincter muscle to (smile) or open, allowing the urine to flow from the penis into the condom cath. This procedure can only be done by 10% of the quad-population and doctors think that everyone should at least try to reduce UTI's. Once you realize that you are the 90%, you have to tap the bladder with cath tube or have an indwelling cath. W In a message dated 2/9/05 4:08:27 PM, [EMAIL PROTECTED] writes: Dan.they right away started me on condom caths, and tried to get me tapping my bladder. I don't trust doctors, don't think most know what their talkin about with SCI...i like my doc, but i know he doesn't know much about my body. Don't let em experiment on you... -tony c5c6
[QUAD-L] Bladder Thumping.... an artform
I wouldn't feel bad about being in the 90% group. While you used the condom cath that had to be removed in the evening before bed also was known for causing pustules around the head. Some were painful and you had to keep the area clean and dry for several hours before you could reinstall the condom. W In a message dated 2/9/05 5:08:18 PM, [EMAIL PROTECTED] writes: I've been a c-5 since 1971 and until two years ago was able to stimulate my bladder with slight pressure. I very very rarely had infections. Suddenly I started getting sweats, fever, and infections from hell. For some reason my bladder just quit working. Now I am a member of that 90% that caths.
Re: [QUAD-L] My theory
Hey all, I had to jump in here I do agree with Stacy people look at the chair first, I have Cerebral Palsy and limited use of my arms and legs because of the Spasms not letting me do a lot of simple things Like tie my shoes. Then I listen to some of you all and I should not complain at all I am lucky and I know it!!! But relationships in general have been tough for me because of my Disability!! Hugs, Sharon. - Original Message - From: Stacy Harim To: quad-list ; dillon awe Sent: Tuesday, February 08, 2005 3:56 PM Subject: Re: [QUAD-L] My theory Dillon, I'm a para (T 7/8). I have been in the chair for 4 years and have only dated one guy for a very short time. I think he couldn't handle the chair personally. I don't know about your theory. Of course I can do more on my own. I live alone, not quite driving yet, go to school and push myself around. I don't think that you theory is quite accurate. If a quad and a para are sitting next to each other then yes, the para would have the better chance, yet in a normal situation in general public you would probably see one or the other. People can be very superficial and see the wheelchair. And at that point a chair is a chair. I'm sure that a lot of people don't look at a quad and think well if they could move their arms more or they were a para then I would date them. It's a wheelchair and that's all they see. I think that I am an attractive person. I take care of myself and think that I am fairly OK to look at and haven't gotten near the attention that I used to. Honestly I haven't been hit on since I got sick. And River, I feel exactly the same way as you. I know that para's can transfer themselves without the board. They just hop right over. I hear about it from people all the time. They tell me how they know someone in a chair and what they do and I feel inferior sometimes. Like why can't I do any of those things? Then I think I am not them. I am me and this is what I can do. I would only hope that you feel the same way about it. - Original Message - From: dillon awe To: quad-list Sent: Monday, February 07, 2005 8:58 PM Subject: [QUAD-L] My theory I have a theory about sexuality and spinal cord injuries. I believe that the lower the injury level or higher the function is for SCI individuals the more attractive women or men will be to that person. Though I hold no grudge against paraplegics or low level quadriplegics, I think it is so much easier to introduce yourself to women and break the ice as well as develop a relationship when that person is not confronted with a bulky electric chair etc.. I might be wrong and I hope I am but does it not just seems paraplegics have it so much easier. Not only from personal observation but in advice columns I read, magazines and even on the covers of disability magazines, all I see or read about his couples who are paraplegics or low level quadriplegics/higher functioning. I never read about quadriplegics with very little function either through their neck or upper arms getting the girl. What do you think? Please prove me wrong Dillon
Re: [QUAD-L] about the quad dating theory, (c7 quad former cop)
I have followed this thread and even the tributaries. I personally feel this particular round seems to be hitting the situation in the right light. Similar to Tony, I had more women interested me when I was in the hospital rehabilitating. This could be because I was in close proximity and continuous contact with many of the individuals or It could be maternal. Don't know, don't care. What I do know is that I have always tried to put myself in the position of an able-bodied person. I know when my wife (now ex-wife) decided to remain living in Germany, I was extremely hurt, but also understood that if I was in the same position I may have done the same thing. I don't know if I would have given up my profession and my chosen country to be by her side, so I chose not to blame her for her actions. I knew deep inside if she was able to get me to move to Germany we would still be together today. Actually, she is seriously considering relocating here now after almost 10 years. Stacy, you are a remarkable individual which had the luck of having a mother which had the foresight to instill certain beliefs in your young mind which not all of us enjoyed. While my mother tried her very best to make sure I was brought up with proper values and morals, she is a product of her time. When I was young, she was the one nudging me not to stare and telling me it was impolite. Now that I am in the chair she doesn't think that way anymore. She understands that is more beneficial to answer the question of a child then it is to brush it off. I wish I could say I would have definitely been attracted to person in a wheelchair regardless of the wheelchair, but I can make no positive assurances. I was never in the position. Much like those individuals who consistently tell me they would have stuck by me to the bitter end if they were in my wife's position. I try my best to tell them they were not in that position and therefore cannot judge. Not everyone is the same ! and we need to embrace the differences in individuals.Billy from TampaC2-39 years postMy blog: http://quadius-superbus.blogspot.com/[EMAIL PROTECTED] wrote: In a message dated 2/9/2005 1:48:58 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Ive read all your post regarding the quads having harder times getting dates. I agree with this but we all must remem,ber that in the end all of us only want to impress one person from the oppossite sex and make the most of it , possibly a life partner. Just because billy bob para can get 35 more women who really cares, that's 34 more than he needs. Lets fface it once your in a chair for a few years we all arent as shallow as we used to be. But I will tell you guys this funny little story about when I first had my injury in the hospital. I was a new cop at the time dating a female cop in training. I had my accident 8 weeks after I started. My gf stayed by my side for about two months then said she needed to get ready for softball and broke off the relationship and left me in the hospital bed. I cried cussed and beat the walls a little. But near! ly a year later I saw her again, she asked me if I was angry. I said no i understand what u did and why you did it.you were dating a mustang then it turned into a pinto...you dont want a pinto you want a mustang. She just looked at me, then we continued a conversation and went for a bite to eat. The moral to all this is theirs always someone lower on the totem pole than you and always someone higher, it will be what you make it..at the same time put yourself in the shoes of the walking people , back when you were on your feet would you have dated a chair person quad, para, stroke or any other?We are all in the same club now. Hope I made people think... Ron c7Rongreat post!! I just got home from work, so this will be short, but i've always thought i'm a Corvette engine inside this beat up rusted Corvette bodyif the girl ever opens her mind to feel the power of my engine, they fall for me, and for the most part it's true...but if they put the wall up, they will only see the beat up Corvette.Funny thing, when i was in hospital in TERRIBLE looking shape...i had a lot of nurses/therapists attracted. First girl i had sex with after my accident was a nursea respitory therapist used to kiss me (hard sexual kiss) at night. I never understood that attraction, except that maybe i touched a maturnal nerve in them, and it drew them to me...not surepeace...tony c5c6 Do you Yahoo!? Yahoo! Search presents - Jib Jab's 'Second Term'
Re: [QUAD-L] UTI'S
Diane, my doc only gave me one syringe to flush and one to fill balloon in the bladder--he said just clean and dry on paper towels and re-use. I asked for more but they said that was enough. How or where do you get clean new ones? Each time you ever need to flush you use a brand new syringe ?? Hope we all become experts on this stuff LOL ! Thanks, Dan
Re: FW: [QUAD-L] Bladder Thumping.... an artform
In a message dated 2/9/2005 6:08:18 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I've been a c-5 since 1971 and until two years ago was able to stimulate my bladder with slight pressure. I very very rarely had infections. Suddenly I started getting sweats, fever, and infections from hell. For some reason my bladder just quit working. Now I am a member of that 90% that caths. wow, hope i don't end up therethat would blow a hole in my life if i had to cath. i have had more UTIs than usual over the last year or two, but was thinkin it was my terrible drinkin habits, or small stone...coz mine were from hell too. peace...tony c5c6 car vs tree almost 25 yrs
Re: [QUAD-L] Quad on Regis Kelly
In a message dated 2/9/2005 6:04:53 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Did any one see this? My aid was watching Regis Kelly this morning and they are giving him and his bride to be a wedding ceremony I guess they were picked out from a bunch of entries. He was very clean cut and outgoing and well spoken so a very good public figure for the rest of us. Just thought this was interesting. Mark Coolthe more well-spoken adjusted people in the public eye the better. i had dreams, at one time, of being the first REAL popular crossover musician to make it in the public eye, but looks like that won't happen. i'll take the little success i've had on a local level, and run with it... here's my two websites where my tunes are, if u haven't heard Free Spirit CD The Art of Anthony Rain Starez tony c5c6
Re: [QUAD-L] ...burn calories
QPi have a question: do we burn calories with spasms??? I'm always thinkin it's a light-form of a workout, but i may be off base. I purposely cause spasms during my days at work, sometimes cause theyre ready to explode if i'm still too long, but sometimes just coz i want to muscles to contract. I also push my chair, do i burn a lot doing that??? -tony c5rc6
[QUAD-L] burn calories
You are actually burning calories while sleeping. So it stands to reason that when you are sitting, standing and having spasms, you are burning calories. Bodies submerged in water that is cooler than your body temperature is another way to burn calories. As your body heats up to compensate for the temperature differential, you burn calories. Having an infection in your body is a poor way to burn calories, but you can burn calories even that way. Best Wishes W In a message dated 2/9/05 7:41:00 PM, [EMAIL PROTECTED] writes: QPi have a question: do we burn calories with spasms??? I'm always thinkin it's a light-form of a workout, but i may be off base. I purposely cause spasms during my days at work, sometimes cause theyre ready to explode if i'm still too long, but sometimes just coz i want to muscles to contract. I also push my chair, do i burn a lot doing that??? -tony c5rc6
Re: [QUAD-L] burn calories
W, If you burn calories with spasms, I should have a body of a beauty queen. Wheelchair Warrior[EMAIL PROTECTED] wrote: You are actually burning calories while sleeping. So it stands to reason that when you are sitting, standing and having spasms, you are burning calories. Bodies submerged in water that is cooler than your body temperature is another way to burn calories. As your body heats up to compensate for the temperature differential, you burn calories. Having an infection in your body is a poor way to burn calories, but you can burn calories even that way.Best WishesWIn a message dated 2/9/05 7:41:00 PM, [EMAIL PROTECTED] writes: QPi have a question: do we burn calories with spasms??? I'm always thinkin it's a light-form of a workout, but i may be off base. I purposely cause spasms during my days at work, sometimes cause theyre ready to explode if i'm still too long, but sometimes just coz i want to muscles to contr! act. I also push my chair, do i burn a lot doing that???-tony c5rc6 __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Relationships and Romances
Will, It"s ash Wednesday and I gave up sex for lent. Beside all the men only wants my as a friend. So I'm making it easy for all my men friends by giving up sex. They are safe until Easter. Which out GUYS after Easter! Wheelchair WarriorSilas Shelburne [EMAIL PROTECTED] wrote: Now your singing the write song Tony, man I can't imagine life without a little spice. - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Wednesday, February 09, 2005 2:12 PM Subject: Re: [QUAD-L] Relationships and Romances In a message dated 2/9/2005 3:53:48 PM Eastern Standard Time, [EMAIL PROTECTED] writes: That's exactly what I'm talking about. Sex is so far down the list I normally don't worry about it anymore. I can't say I never think about it not it does not frustrate me like it used to. Having a loving relationship is way more important than having a sexual relationship. But at age 45 I can say that because I've been there and done that. Jimwell, everybody's different, but for me, i'm 46, sex is very importantit doesn't have to be the conventional kind, but it's damn important to me in relationship. And i think about it a LOTeverytime a hottie walks by at work!! lol-tony c5c6 Do you Yahoo!? Yahoo! Search presents - Jib Jab's 'Second Term'
