Re: [QUAD-L] Unidentified subject!

[Johnny Cammon]

I'm sorry for you loss W.

On Sat, Dec 24, 2016 at 2:07 PM, Joan Anglin <poaj...@sbcglobal.net> wrote:

> A very compassionate person who has so much to give to us and continues to
> share.  Merry Christmas
>
> Joan
>
>
>
>
>
> *From:* Jeffrey Gaede [mailto:jsga...@yahoo.com]
> *Sent:* 23 December, 2016 2:45 PM
> *To:* Gail Holmes <fgdhol...@cox.net>; wheelch...@aol.com
> *Cc:* quad-list@eskimo.com
> *Subject:* Re: [QUAD-L] Unidentified subject!
>
>
>
> I'm sorry to hear about the loss, Wheelchair.
>
>
> --
>
> *From:* Gail Holmes <fgdhol...@cox.net>
> *To:* wheelch...@aol.com
> *Cc:* quad-list@eskimo.com
> *Sent:* Friday, December 23, 2016 2:38 PM
> *Subject:* [QUAD-L] Unidentified subject!
>
>
>
> Im thinking of this time of year how with the joy and hope we there is
> often increased sadness for those who have family and friends who have
> passed on to the other side.
>
>
>
> There are probably others on this list who are mourning but I'm
> particularly thinking of "Wheelchair" who had a recent and sudden loss of
> his son.
>
>
>
> Thank you Wheelchair for continuing to contribute to this list even as no
> doubt the pain is still so fresh and raw.
>
>
>
> May  God comfort you and bring you peace.
>
>
>
>
>
> Sent from my iPhone
>
>
> On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote:
>
> Oxy, is a very potent and dangerous drug.  Users, should not advertise its
> use. It can become habit forming is less than 90 days of use.  The FDA, is
> cracking down on pain doctors, on its use for pain meds.  Those seniors
> with shoulder, hips and knee replacements are becoming addicted to the
> drug, without knowing it, which only adds to the health care cost as they
> go into recovery clinic to kick the drug. The symptoms should be reported
> to the doctor that issued the RX.
>
>
>
> Best Wishes
>
>
>
> In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time,
> r.pra...@sbcglobal.net writes:
>
> It is a different shaped pill, usually I get round ones but this time they
> are elongated oval shape. Could be a little different causing the issue. I
> was concerned of my stomach lining maybe getting screwed up.
>
>
>
> Ron
>
>
>
> On Friday, December 23, 2016 12:52 PM, Larry Willis <
> lwillis82...@gmail.com> wrote:
>
>
>
> Ron, have you had a new prescription filled lately? Sometimes I'll get a
> batch that cause me to itch terribly. With the next bottle the itching goes
> away. Bad batch, I assume. Are you taking it in combo with anything else?
>
> Larry Willis
>
> Retired and proud of it
>
>
>
>
> On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT <r.pra...@sbcglobal.net>
> wrote:
>
> Why would taking oxycodone cause my head to sweat and go into mild
> dysreflexia? Ive been on it for 4 years and it never did this to me. I hope
> its not stomach lining damage or something??
>
>
>
> Ron
>
>
>
>
>

RE: [QUAD-L] Unidentified subject!

[Joan Anglin]

A very compassionate person who has so much to give to us and continues to 
share.  Merry Christmas

Joan 

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: 23 December, 2016 2:45 PM
To: Gail Holmes <fgdhol...@cox.net>; wheelch...@aol.com
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Unidentified subject!

 

I'm sorry to hear about the loss, Wheelchair.

 

  _  

From: Gail Holmes <fgdhol...@cox.net <mailto:fgdhol...@cox.net> >
To: wheelch...@aol.com <mailto:wheelch...@aol.com>  
Cc: quad-list@eskimo.com <mailto:quad-list@eskimo.com> 
Sent: Friday, December 23, 2016 2:38 PM
Subject: [QUAD-L] Unidentified subject!

 

Im thinking of this time of year how with the joy and hope we there is often 
increased sadness for those who have family and friends who have passed on to 
the other side. 

 

There are probably others on this list who are mourning but I'm particularly 
thinking of "Wheelchair" who had a recent and sudden loss of his son. 

 

Thank you Wheelchair for continuing to contribute to this list even as no doubt 
the pain is still so fresh and raw.

 

May  God comfort you and bring you peace.

 



Sent from my iPhone


On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com <mailto:wheelch...@aol.com>  
wrote:

Oxy, is a very potent and dangerous drug.  Users, should not advertise its use. 
It can become habit forming is less than 90 days of use.  The FDA, is cracking 
down on pain doctors, on its use for pain meds.  Those seniors with shoulder, 
hips and knee replacements are becoming addicted to the drug, without knowing 
it, which only adds to the health care cost as they go into recovery clinic to 
kick the drug. The symptoms should be reported to the doctor that issued the RX.

 

Best Wishes

 

In a message dated 12/23/2016 12:57:34 P.M. Central Standard Time, 
r.pra...@sbcglobal.net <mailto:r.pra...@sbcglobal.net>  writes:

It is a different shaped pill, usually I get round ones but this time they are 
elongated oval shape. Could be a little different causing the issue. I was 
concerned of my stomach lining maybe getting screwed up.

 

Ron 

 

On Friday, December 23, 2016 12:52 PM, Larry Willis <lwillis82...@gmail.com 
<mailto:lwillis82...@gmail.com> > wrote:

 

Ron, have you had a new prescription filled lately? Sometimes I'll get a batch 
that cause me to itch terribly. With the next bottle the itching goes away. Bad 
batch, I assume. Are you taking it in combo with anything else?

Larry Willis 

Retired and proud of it

 


On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:

Why would taking oxycodone cause my head to sweat and go into mild dysreflexia? 
Ive been on it for 4 years and it never did this to me. I hope its not stomach 
lining damage or something??

 

Ron

 

 

Re: [QUAD-L] Unidentified subject!

[greg]

I use a "Magic Arm" Bogon and Neewer make some. I have 1 for a camera, 1 for my voice ECU in bed. You can get different types of clamps for each end. These are heavy dutty, but they have lighter versions. Standing ones can tip too eay.
 
https://www.amazon.com/Neewer-Adjustable-Friction-Articulating-Monitor/dp/B01H4W7HI4/ref=sr_1_16?ie=UTF8=1482539325=8-16=magic+arm

> Hello, Everyone. Anyone have any special ideas about finding
> something that would hold an electric toothbrush for someone
> without the use of their hands, but who could maneuver around where
> they can brush their own teeth? I have a microphone stand with a
> microphone holder that I'm going to try but I was curious if anyone

Re: [QUAD-L] Unidentified subject!

[Jeffrey Gaede]

Hello, Everyone. Anyone have any special ideas about finding something that 
would hold an electric toothbrush for someone without the use of their hands, 
but who could maneuver around where they can brush their own teeth? I have a 
microphone stand with a microphone holder that I'm going to try but I was 
curious if anyone had more ideas?

  From: Jeffrey Gaede <jsga...@yahoo.com>
 To: Gail Holmes <fgdhol...@cox.net>; "wheelch...@aol.com" <wheelch...@aol.com> 
Cc: "quad-list@eskimo.com" <quad-list@eskimo.com>
 Sent: Friday, December 23, 2016 2:44 PM
 Subject: Re: [QUAD-L] Unidentified subject!
   
I'm sorry to hear about the loss, Wheelchair.

  From: Gail Holmes <fgdhol...@cox.net>
 To: wheelch...@aol.com 
Cc: quad-list@eskimo.com
 Sent: Friday, December 23, 2016 2:38 PM
 Subject: [QUAD-L] Unidentified subject!
  
Im thinking of this time of year how with the joy and hope we there is often 
increased sadness for those who have family and friends who have passed on to 
the other side. 
There are probably others on this list who are mourning but I'm particularly 
thinking of "Wheelchair" who had a recent and sudden loss of his son. 
Thank you Wheelchair for continuing to contribute to this list even as no doubt 
the pain is still so fresh and raw.
May  God comfort you and bring you peace.


Sent from my iPhone
On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote:


 Oxy, is a very potent and dangerous drug.  Users, should not advertise its 
use. It can become habit forming is less than 90 days of use.  The FDA, is 
cracking down on pain doctors, on its use for pain meds.  Those seniors with 
shoulder, hips and knee replacements are becoming addicted to the drug, without 
knowing it, which only adds to the health care cost as they go into recovery 
clinic to kick the drug. The symptoms should be reported to the doctor that 
issued the RX. Best Wishes In a message dated 12/23/2016 12:57:34 P.M. Central 
Standard Time, r.pra...@sbcglobal.net writes:
  It is a different shaped pill, usually I get round ones but this time they 
are elongated oval shape. Could be a little different causing the issue. I was 
concerned of my stomach lining maybe getting screwed up. 
 Ron  

On Friday, December 23, 2016 12:52 PM, Larry Willis 
<lwillis82...@gmail.com> wrote:


Ron, have you had a new prescription filled lately? Sometimes I'll get a 
batch that cause me to itch terribly. With the next bottle the itching goes 
away. Bad batch, I assume. Are you taking it in combo with anything else?

Larry Willis Retired and proud of it 
  
On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:

 
   Why would taking oxycodone cause my head to sweat and go into mild 
dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its 
not stomach lining damage or something?? 
 Ron






   

   

Re: [QUAD-L] Unidentified subject!

[Jeffrey Gaede]

I'm sorry to hear about the loss, Wheelchair.

  From: Gail Holmes 
 To: wheelch...@aol.com 
Cc: quad-list@eskimo.com
 Sent: Friday, December 23, 2016 2:38 PM
 Subject: [QUAD-L] Unidentified subject!
   
Im thinking of this time of year how with the joy and hope we there is often 
increased sadness for those who have family and friends who have passed on to 
the other side. 
There are probably others on this list who are mourning but I'm particularly 
thinking of "Wheelchair" who had a recent and sudden loss of his son. 
Thank you Wheelchair for continuing to contribute to this list even as no doubt 
the pain is still so fresh and raw.
May  God comfort you and bring you peace.


Sent from my iPhone
On Dec 23, 2016, at 3:15 PM, wheelch...@aol.com wrote:


 Oxy, is a very potent and dangerous drug.  Users, should not advertise its 
use. It can become habit forming is less than 90 days of use.  The FDA, is 
cracking down on pain doctors, on its use for pain meds.  Those seniors with 
shoulder, hips and knee replacements are becoming addicted to the drug, without 
knowing it, which only adds to the health care cost as they go into recovery 
clinic to kick the drug. The symptoms should be reported to the doctor that 
issued the RX. Best Wishes In a message dated 12/23/2016 12:57:34 P.M. Central 
Standard Time, r.pra...@sbcglobal.net writes:
  It is a different shaped pill, usually I get round ones but this time they 
are elongated oval shape. Could be a little different causing the issue. I was 
concerned of my stomach lining maybe getting screwed up. 
 Ron  

On Friday, December 23, 2016 12:52 PM, Larry Willis 
 wrote:


Ron, have you had a new prescription filled lately? Sometimes I'll get a 
batch that cause me to itch terribly. With the next bottle the itching goes 
away. Bad batch, I assume. Are you taking it in combo with anything else?

Larry Willis Retired and proud of it 
  
On Dec 22, 2016, at 9:46 PM, RONALD L PRACHT  wrote:

 
   Why would taking oxycodone cause my head to sweat and go into mild 
dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its 
not stomach lining damage or something?? 
 Ron






   

Re: [QUAD-L] Unidentified subject!

[Shelly Kerchner]

 blockquote, div.yahoo_quoted { margin-left: 0 !important; border-left:1px 
#715FFA solid !important; padding-left:1ex !important; background-color:white 
!important; }  Same here, I dread this time of year. It's cold, dark and gray 
until May and also I am stuck inside till then.  I am cold ALL the time and can 
only sleep with 2 heating pads. One under my neck and he other on my chest and 
neck.
I also am in recovery and this time of year is always a struggle for me. Not 
much to do when I am Snowed in.  So my plan now is to take it one day at a 
time, read and dwell on the positive. It can be a daily struggle sometimes, I 
agree Meredith.  Maybe we could keep in touch and make this time more 
manageable for both of us?!
Take care for now!!
Shelly


Sent from Yahoo Mail for iPad


On Monday, November 28, 2016, 5:23 PM, jume9...@comcast.net 
 wrote:

 
I'm freezing and depressed. Any of you feeling this way?




Meredith

 

Re: [QUAD-L] Unidentified subject!

[jume9999]

I live in California but it went from 75 to 53 in a week!
Sent from my LG Mobile



-- Original message--From: greg Date: Mon, Nov 28, 2016 3:19 PMTo: 
jume9...@comcast.net;Subject:Re: [QUAD-L] Unidentified subject!
Where do you live?I moved to AZ just to get warm. Still have cold issues, but 
not as bad. Its really cooling off now, 60 degrees for the high. I'm wearing 
sweaters, hat, blanket, drinking coffee.Greg

> I'm freezing and depressed. Any of you feeling this way?>>> Meredith

Re: [QUAD-L] Unidentified subject!

[Carolyn Boyles]

My hands go numb when I'm asleep in this weather. I have to sleep in 
wrist splints.


Carolyn

Re: [QUAD-L] Unidentified subject!

[Johnny Cammon]

Yes .the deppressed part i always feel ityup .i had a heater broke now
,but i had a remote ,an blew the heated air toward you ..

On Mon, Nov 28, 2016 at 4:38 PM, Danny Hearn  wrote:

> Yep, this is quite common for many of us Quads in the winter months...I
> keep a bed buddy neck wrap handy that I heat up in the microwave and that
> helps me a lot, I also keep a plug in heater in my room that I has 2
> buttons, on for lower heat or both on for higher, that comes in handy
> also.. Dan H**
>
>
> On Monday, November 28, 2016 4:23 PM, "jume9...@comcast.net" <
> jume9...@comcast.net> wrote:
>
>
> I'm freezing and depressed. Any of you feeling this way?
>
> Meredith
>
>
>

Re: [QUAD-L] Unidentified subject!

[Danny Hearn]

Yep, this is quite common for many of us Quads in the winter months...I keep a 
bed buddy neck wrap handy that I heat up in the microwave and that helps me a 
lot, I also keep a plug in heater in my room that I has 2 buttons, on for lower 
heat or both on for higher, that comes in handy also.. Dan H** 

On Monday, November 28, 2016 4:23 PM, "jume9...@comcast.net" 
 wrote:
 

  I'm freezing and depressed. Any of you feeling this way?
Meredith

   

Re: [QUAD-L] Unidentified subject!

[diannal767]

funny, I remember that clearly too. I asked them not to cut it then heard the 
scissors. Sunday will be my 24th anniversary.
dianna

  I did hear the clippers as they shaved off most of my hair and the drill as 
they prepared to place the Crutchfield tongs in my head, but that was all.  

 
 
 
-Original Message-
From: jume jume9...@comcast.net
To: Nan nlg52...@yahoo.com; quad-list quad-list@eskimo.com
Sent: Thu, Jun 12, 2014 1:24 pm
Subject: Re: [QUAD-L] Unidentified subject!



Wow, Nan, that was almost exactly my story, from my boyfriend being there to 
them cutting off a borrowed swimsuit. Some things you never forget.



Meredith




From: Nan nlg52...@yahoo.com
To: quad-list quad-list@eskimo.com
Sent: Wednesday, June 11, 2014 4:34:18 PM
Subject: [QUAD-L] Unidentified subject!





June 7, 1968.  A day just like today.  It was a Friday ... I woke up, did all 
my primping and went to school ... I was a sophomore in HS and my world was 
perfect.  My parents had opened our pool earlier in the week, so I had invited 
my best friend and our boyfriends over for a swim after school.  We got home 
about 2:30 and headed out back - full of youthful enthusiasm.  We hit the pool 
playfully, used the diving board and the slide ... we were having a blast.  
Sometime before 3:30 (the details about time are a bit fuzzy), I took my last 
step. I walked to the slide, climbed the ladder, put my hands over my head and 
gracefully slid down hands first.  The minute my head hit the water I felt a 
zing and everything stopped.  I just floated in the water ... it felt like I 
was doing the jellyfish (aka dead man's) float, but I realized I couldn't move. 
 I knew I was in trouble, and wondered if anyone else knew it.  I directed my 
thoughts to my boyfriend ... Paul, help me.  Please, see me.  Please  He 
was the only one who realized I wasn't playing.  (I think I do believe in 
telepathy.)  They pulled me up into the air, and I could breathe again.  The 
next thing I remember is laying on the pool deck.  It was hard to get a deep 
breath, but I was breathing on my own.  People kept putting my hands across my 
stomach, and they would just fall off... again and again.  I still don't know 
why they did that.  Eventually a sheriff came - he wanted to do artificial 
respiration, but my neighbor sternly told him not to lay a f***ing  finger on 
me.  I was shocked to hear an adult use that word ... no one I knew used it 
back then.  Finally an ambulance came, about 45 minutes after my accident. They 
lifted me onto their gurney (no manual stabilization, no C-collar, no back 
board), slid me into the back of the ambulance and placed a sandbag on either 
side of my neck.  We rode to the hospital with one guy kneeling over me holding 
the sand bags and the other blaring the siren the whole way.  Gave me one hell 
of a headache!  At the hospital they cut off my bathing suit - I was so 
embarrassed.  I was also appalled ... it was a borrowed suit after all - I 
scolded them for wrecking it.  My memories start to fade out at that point.  I 
did hear the clippers as they shaved off most of my hair and the drill as they 
prepared to place the Crutchfield tongs in my head, but that was all.  


Much later, I found out that the doctors had given me a 5% chance ... of 
surviving.
 
I am 62 years old, and have forgotten so much of my life, yet these memories 
remain crystal clear.  Time has not clouded them.  You'd think by now these 
memories would only bring remembrance ... not regret and sorrow.  Usually I 
celebrate each anniversary - the survival of one more year.  This year, 
however, it's hit me hard.  I am not needed as I once was.  I am so lonely.  
Being dependent on others sucks.  I want a do over - another chance.  I don't 
want to be a quad any more.


Thanks, O Quads, for being there to hear me.  

Re: [QUAD-L] Unidentified subject!

[jume9999]

Wow, Nan, that was almost exactly my story, from my boyfriend being there to 
them cutting off a borrowed swimsuit. Some things you never forget. 

Meredith 

- Original Message -

From: Nan nlg52...@yahoo.com 
To: quad-list quad-list@eskimo.com 
Sent: Wednesday, June 11, 2014 4:34:18 PM 
Subject: [QUAD-L] Unidentified subject! 

June 7, 1968. A day just like today. It was a Friday ... I woke up, did all my 
primping and went to school ... I was a sophomore in HS and my world was 
perfect. My parents had opened our pool earlier in the week, so I had invited 
my best friend and our boyfriends over for a swim after school. We got home 
about 2:30 and headed out back - full of youthful enthusiasm. We hit the pool 
playfully, used the diving board and the slide ... we were having a blast. 
Sometime before 3:30 (the details about time are a bit fuzzy), I took my last 
step. I walked to the slide, climbed the ladder, put my hands over my head and 
gracefully slid down hands first. The minute my head hit the water I felt a 
zing and everything stopped. I just floated in the water ... it felt like I 
was doing the jellyfish (aka dead man's) float, but I realized I couldn't move. 
I knew I was in trouble, and wondered if anyone else knew it. I directed my 
thoughts to my boyfriend ... Paul, help me. Please, see me. Please He was 
the only one who realized I wasn't playing. (I think I do believe in 
telepathy.) They pulled me up into the air, and I could breathe again. The next 
thing I remember is laying on the pool deck. It was hard to get a deep breath, 
but I was breathing on my own. People kept putting my hands across my stomach, 
and they would just fall off... again and again. I still don't know why they 
did that. Eventually a sheriff came - he wanted to do artificial respiration, 
but my neighbor sternly told him not to lay a f***ing finger on me. I was 
shocked to hear an adult use that word ... no one I knew used it back then. 
Finally an ambulance came, about 45 minutes after my accident. They lifted me 
onto their gurney (n o manual stabilization, no C-collar, no back board ), slid 
me into the back of the ambulance and placed a sandbag on either side of my 
neck. We rode to the hospital with one guy kneeling over me holding the sand 
bags and the other blaring the siren the whole way. Gave me one hell of a 
headache! At the hospital they cut off my bathing suit - I was so embarrassed. 
I was also appalled ... it was a borrowed suit after all - I scolded them for 
wrecking it. My memories start to fade out at that point. I did hear the 
clippers as they shaved off most of my hair and the drill as they prepared to 
place the Crutchfield tongs in my head, but that was all. 

Much later, I found out that the doctors had given me a 5% chance ... of 
surviving. 
I am 62 years old, and have forgotten so much of my life, yet these memories 
remain crystal clear. Time has not clouded them. You'd think by now these 
memories would only bring remembrance ... not regret and sorrow. Usually I 
celebrate each anniversary - the survival of one more year. This year, however, 
it's hit me hard. I am not needed as I once was. I am so lonely. Being 
dependent on others sucks. I want a do over - another chance. I don't want to 
be a quad any more. 

Thanks, O Quads, for being there to hear me. 

RE: [QUAD-L] Unidentified subject!

[nichole rohling]

prayers for you Nan! you have helped me so much over the last almost 16
years!

 

love ya

Nicki

 

From: Nan [mailto:nlg52...@yahoo.com] 
Sent: Wednesday, June 11, 2014 6:34 PM
To: quad-list
Subject: [QUAD-L] Unidentified subject!

 

June 7, 1968.  A day just like today.  It was a Friday ... I woke up, did
all my primping and went to school ... I was a sophomore in HS and my world
was perfect.  My parents had opened our pool earlier in the week, so I had
invited my best friend and our boyfriends over for a swim after school.  We
got home about 2:30 and headed out back - full of youthful enthusiasm.  We
hit the pool playfully, used the diving board and the slide ... we were
having a blast.  Sometime before 3:30 (the details about time are a bit
fuzzy), I took my last step. I walked to the slide, climbed the ladder, put
my hands over my head and gracefully slid down hands first.  The minute my
head hit the water I felt a zing and everything stopped.  I just floated
in the water ... it felt like I was doing the jellyfish (aka dead man's)
float, but I realized I couldn't move.  I knew I was in trouble, and
wondered if anyone else knew it.  I directed my thoughts to my boyfriend ...
Paul, help me.  Please, see me.  Please  He was the only one who
realized I wasn't playing.  (I think I do believe in telepathy.)  They
pulled me up into the air, and I could breathe again.  The next thing I
remember is laying on the pool deck.  It was hard to get a deep breath, but
I was breathing on my own.  People kept putting my hands across my stomach,
and they would just fall off... again and again.  I still don't know why
they did that.  Eventually a sheriff came - he wanted to do artificial
respiration, but my neighbor sternly told him not to lay a f***ing  finger
on me.  I was shocked to hear an adult use that word ... no one I knew used
it back then.  Finally an ambulance came, about 45 minutes after my
accident. They lifted me onto their gurney (no manual stabilization, no
C-collar, no back board), slid me into the back of the ambulance and placed
a sandbag on either side of my neck.  We rode to the hospital with one guy
kneeling over me holding the sand bags and the other blaring the siren the
whole way.  Gave me one hell of a headache!  At the hospital they cut off my
bathing suit - I was so embarrassed.  I was also appalled ... it was a
borrowed suit after all - I scolded them for wrecking it.  My memories start
to fade out at that point.  I did hear the clippers as they shaved off most
of my hair and the drill as they prepared to place the Crutchfield tongs in
my head, but that was all.  

 

Much later, I found out that the doctors had given me a 5% chance ... of
surviving.

 

I am 62 years old, and have forgotten so much of my life, yet these memories
remain crystal clear.  Time has not clouded them.  You'd think by now these
memories would only bring remembrance ... not regret and sorrow.  Usually I
celebrate each anniversary - the survival of one more year.  This year,
however, it's hit me hard.  I am not needed as I once was.  I am so lonely.
Being dependent on others sucks.  I want a do over - another chance.  I
don't want to be a quad any more.

 

Thanks, O Quads, for being there to hear me.  

 

 

Re: [QUAD-L] Unidentified subject!

[Nan]

I don't know why this got sent again ... ???  Sorry for the duplicate!



On Wednesday, June 11, 2014 7:34 PM, Nan nlg52...@yahoo.com wrote:
 


June 7, 1968.  A day just like today.  It was a Friday ... I woke up, did all 
my primping and went to school ... I was a sophomore in HS and my world was 
perfect.  My parents had opened our pool earlier in the week, so I had invited 
my best friend and our boyfriends over for a swim after school.  We got home 
about 2:30 and headed out back - full of youthful enthusiasm.  We hit the pool 
playfully, used the diving board and the slide ... we were having a blast.  
Sometime before 3:30 (the details about time are a bit fuzzy), I took my last 
step. I walked to the slide, climbed the ladder, put my hands over my head and 
gracefully slid down hands first.  The minute my head hit the water I felt a 
zing and everything stopped.  I just floated in the water ... it felt like I 
was doing the jellyfish (aka dead man's) float, but I realized I couldn't move. 
 I knew I was in trouble, and wondered if anyone else knew it.  I directed my 
thoughts to my
 boyfriend ... Paul, help me.  Please, see me.  Please  He was the only 
one who realized I wasn't playing.  (I think I do believe in telepathy.)  They 
pulled me up into the air, and I could breathe again.  The next thing I 
remember is laying on the pool deck.  It was hard to get a deep breath, but I 
was breathing on my own.  People kept putting my hands across my stomach, and 
they would just fall off... again and again.  I still don't know why they did 
that.  Eventually a sheriff came - he wanted to do artificial respiration, 
but my neighbor sternly told him not to lay a f***ing  finger on me.  I was 
shocked to hear an adult use that word ... no one I knew used it back then.  
Finally an ambulance came, about 45 minutes after my accident. They lifted me 
onto their gurney (no manual stabilization, no C-collar, no back board), slid 
me into the back of the ambulance and placed a sandbag on either side of my 
neck.  We rode to the
 hospital with one guy kneeling over me holding the sand bags and the other 
blaring the siren the whole way.  Gave me one hell of a headache!  At the 
hospital they cut off my bathing suit - I was so embarrassed.  I was also 
appalled ... it was a borrowed suit after all - I scolded them for wrecking it. 
 My memories start to fade out at that point.  I did hear the clippers as they 
shaved off most of my hair and the drill as they prepared to place the 
Crutchfield tongs in my head, but that was all.  

Much later, I found out that the doctors had given me a 5% chance ... of 
surviving.
 
I am 62 years old, and have forgotten so much of my life, yet these memories 
remain crystal clear.  Time has not clouded them.  You'd think by now these 
memories would only bring remembrance ... not regret and sorrow.  Usually I 
celebrate each anniversary - the survival of one more year.  This year, 
however, it's hit me hard.  I am not needed as I once was.  I am so lonely.  
Being dependent on others sucks.  I want a do over - another chance.  I don't 
want to be a quad any more.

Thanks, O Quads, for being there to hear me.  

Re: [QUAD-L] Unidentified subject!

[Gah17582]

Hello broken leg,
 
I was in approximately the same predicament that you are in.  I broke  my 
leg several years ago in three places, just below the knee, just above the  
ankle, and the third was the small bone.  The first thing the doctor asked  
me was do you want me just to amputate.  YEAH RIGHT!
 
This doctor was trying to save another person's leg and it turned into  
gangrene and needed to be amputated.  Sometimes I question in a doctor's  
intelligence.
 
New doctor: my second opinion Dr. wasn't quite sure what to do and his  
young casting assistant suggested a Bob Jones cast.  This cast is soft  cast 
of cotton batting wrapped thickly of round the leg.  The cotton  batting was 
wrapped with Ace bandages and changed every two weeks.  It held  the bones 
in place, and no pressure sores from a hard cast.  Works for  me!
 

Glenn Henry

G.A.Henry  Radio
100 Mill Street
Washington Boro, PA 17582  

 
In a message dated 9/30/2013 7:09:09 P.M. Eastern Daylight Time,  
aa999...@yahoo.com writes:

 
I know it has been quite some time since I have posted anything and sense  
on bed restriction due to a broken leg. Has anybody else had any experience  
with 21st-century products? Well last year I received my new chair, but the 
 breath control was a lot more sensitive than Invacare! After months of 
trying  to reprogram and to adjust it with no difference. My local people 
finally  shipped it off to the manufacturer on their dime and found some issues 
that  they resolve. Knowing that I'm a road warrior no matter the season in 
northern  Indiana. They threw on some lithium ion batteries that's supposed 
to have a  range of 30 miles? Yes that's right and as far as I know the only 
chair in my  area powered by these batteries over $2000 worth. So upon 
receiving this chair  back it was much better but far from perfect. Like with 
anything whether it's  a chair or some other form of technology whole load of 
luck and practice.  After finishing my routine at the local elementary school 
as a volunteer and  paid homework tutor after school for one hour. Just 
needed to pick up a few  things at my local dollar store and is not unusual to 
be out most of the day  without anybody with me. Upon turning onto a main 
isle I caught my foot on the  display shelf and never knew that my foot was in 
harms way. About halfway  through my heard the two bones break about 3 
inches above the ankle. At first  I just thought I must've caught something on 
my armrest but after asking the  cashier the condition of my foot confirmed 
my suspicions. I have broken my  other leg a couple different times but 
nothing quite like this. Being my  independent self I just thought travel 
across 
town to get it x-rayed and a  sample boot type of support device. Boy was I 
wrong and somebody that knew  what was going on call 911 for me and took a 
trip in a ambulance. Placing a  temporary cast almost all the way to my knee 
and thinking the orthopedic  doctor would put a regular cast after examining 
me the following day. He is  wise thinking the temporary would just do fine 
and not to worry?? Our  personalities and his bedside manner was absolutely 
horrible or horrifying. I  went about after that appointment to get a 
second opinion and have great  difficulties finding a specialist willing to do 
that. At first they told me my  insurance Medicare and Medicaid would not 
cover that opinion, well at least  here in Indiana they do. On a follow-up 
appointment the bones were all lined  up and told me to remain on bed rest. 
Then 
three weeks into this waiting game  the bones shifted and he was not happy 
with my attitude with him and vice  versa. He gladly sent me to another 
doctor to deal with this misalignment of  bones. I will be having surgery was a 
nail and screws this coming Thursday and  hoping a couple weeks from now to 
at least get up in my chair? Sorry this post  is so long and will be 
celebrating my 20th anniversary coming up in November  14. Take care and you 
dear 
friend.
Monty C3/4  complete

Re: [QUAD-L] Unidentified subject!

[Nan]

Will Keep you in my thoughts.  Good luck!

Nan



 From: Monty aa999...@yahoo.com
To: quadriplegic quad-list@eskimo.com 
Sent: Monday, September 30, 2013 7:08 PM
Subject: [QUAD-L] Unidentified subject!
 


I know it has been quite some time since I have posted anything and sense on 
bed restriction due to a broken leg. Has anybody else had any experience with 
21st-century products? Well last year I received my new chair, but the breath 
control was a lot more sensitive than Invacare! After months of trying to 
reprogram and to adjust it with no difference. My local people finally shipped 
it off to the manufacturer on their dime and found some issues that they 
resolve. Knowing that I'm a road warrior no matter the season in northern 
Indiana. They threw on some lithium ion batteries that's supposed to have a 
range of 30 miles? Yes that's right and as far as I know the only chair in my 
area powered by these batteries over $2000 worth. So upon receiving this chair 
back it was much better but far from perfect. Like with anything whether it's a 
chair or some other form of technology whole load of luck and practice. After 
finishing my routine at the local elementary
 school as a volunteer and paid homework tutor after school for one hour. Just 
needed to pick up a few things at my local dollar store and is not unusual to 
be out most of the day without anybody with me. Upon turning onto a main isle I 
caught my foot on the display shelf and never knew that my foot was in harms 
way. About halfway through my heard the two bones break about 3 inches above 
the ankle. At first I just thought I must've caught something on my armrest but 
after asking the cashier the condition of my foot confirmed my suspicions. I 
have broken my other leg a couple different times but nothing quite like this. 
Being my independent self I just thought travel across town to get it x-rayed 
and a sample boot type of support device. Boy was I wrong and somebody that 
knew what was going on call 911 for me and took a trip in a ambulance. Placing 
a temporary cast almost all the way to my knee and thinking the orthopedic 
doctor would put a regular cast
 after examining me the following day. He is wise thinking the temporary would 
just do fine and not to worry?? Our personalities and his bedside manner was 
absolutely horrible or horrifying. I went about after that appointment to get a 
second opinion and have great difficulties finding a specialist willing to do 
that. At first they told me my insurance Medicare and Medicaid would not cover 
that opinion, well at least here in Indiana they do. On a follow-up appointment 
the bones were all lined up and told me to remain on bed rest. Then three weeks 
into this waiting game the bones shifted and he was not happy with my attitude 
with him and vice versa. He gladly sent me to another doctor to deal with this 
misalignment of bones. I will be having surgery was a nail and screws this 
coming Thursday and hoping a couple weeks from now to at least get up in my 
chair? Sorry this post is so long and will be celebrating my 20th anniversary 
coming up in November 14.
 Take care and you dear friend.
Monty C3/4 complete

Re: [QUAD-L] Unidentified subject!

[RONALD L PRACHT]

Thats an interesting story. I see the positive here is you are determined to be 
independent and you never give up. You may need to look into a different type 
of footrest maybe that sticks out , so it would hit the shelf instead of your 
foot. a guy on youtube about your same level has such a footrest.type in 
Chris Colwell. This quad has some awesome vids. I knew a girl with spina 
bithida that switched to a power chair and broke her leg going in the 
doorway...she was 24 and died in the hospital from an infection. 
 
Ron
 


 From: wheelch...@aol.com wheelch...@aol.com
To: aa999...@yahoo.com; quad-list@eskimo.com 
Sent: Monday, September 30, 2013 7:18 PM
Subject: Re: [QUAD-L] Unidentified subject!
  


 
Good Luck with your new batteries, keep them both well charged, each 
night.  Being independent also means that you have to be wiser then your 
environment because Nature can be unforgiving and cruel.  But you have 
experienced that already.  Are you doing Methodist in Indy or Memorial in 
South Bend? 

Best Wishes 

In a message dated 9/30/2013 6:09:09 P.M. Central Daylight Time, 
aa999...@yahoo.com writes: 
I know it has been quite some time since I have posted anything and sense  on 
bed restriction due to a broken leg. Has anybody else had any experience  with 
21st-century products? Well last year I received my new chair, but the  breath 
control was a lot more sensitive than Invacare! After months of trying  to 
reprogram and to adjust it with no difference. My local people finally  shipped 
it off to the manufacturer on their dime and found some issues that  they 
resolve. Knowing that I'm a road warrior no matter the season in northern  
Indiana. They threw on some lithium ion batteries that's supposed to have a  
range of 30 miles? Yes that's right and as far as I know the only chair in my  
area powered by these batteries over $2000 worth. So upon receiving this chair  
back it was much better but far from perfect. Like with anything whether it's  
a chair or some other form of technology whole load of luck and practice.  
After finishing my routine at the
 local elementary school as a volunteer and  paid homework tutor after school 
for one hour. Just needed to pick up a few  things at my local dollar store and 
is not unusual to be out most of the day  without anybody with me. Upon turning 
onto a main isle I caught my foot on the  display shelf and never knew that my 
foot was in harms way. About halfway  through my heard the two bones break 
about 3 inches above the ankle. At first  I just thought I must've caught 
something on my armrest but after asking the  cashier the condition of my foot 
confirmed my suspicions. I have broken my  other leg a couple different times 
but nothing quite like this. Being my  independent self I just thought travel 
across town to get it x-rayed and a  sample boot type of support device. Boy 
was I wrong and somebody that knew  what was going on call 911 for me and took 
a trip in a ambulance. Placing a  temporary cast almost all the way to my knee 
and thinking the orthopedic 
 doctor would put a regular cast after examining me the following day. He is  
wise thinking the temporary would just do fine and not to worry?? Our  
personalities and his bedside manner was absolutely horrible or horrifying. I  
went about after that appointment to get a second opinion and have great  
difficulties finding a specialist willing to do that. At first they told me my  
insurance Medicare and Medicaid would not cover that opinion, well at least  
here in Indiana they do. On a follow-up appointment the bones were all lined  
up and told me to remain on bed rest. Then three weeks into this waiting game  
the bones shifted and he was not happy with my attitude with him and vice  
versa. He gladly sent me to another doctor to deal with this misalignment of  
bones. I will be having surgery was a nail and screws this coming Thursday and  
hoping a couple weeks from now to at least get up in my chair? Sorry this post  
is so long and will be celebrating my
 20th anniversary coming up in November  14. Take care and you dear friend. 
Monty C3/4 
complete

Re: [QUAD-L] Unidentified subject!----Spam

[wheelchair]

This mail has a worm.  
 
 
In a message dated 1/20/2012 2:05:47 A.M. Central Standard Time,  
scampe...@yahoo.com writes:


http://pancuit.com/1ndex.php

RE: [QUAD-L] Unidentified subject!

[Dave Krehbiel]

I am sorry to hear about your son's accident.

 

I was on a ventilator with high fevers following my accident, but
fortunately the fevers subsided after four or five months. 

 

Clearly some facilities are much better than others. Would your insurance
allow you to move your son to another state with better facilities?

 

I'm curious... is your son on a ventilator? If he is on a ventilator, this
dramatically lowers your list of options.

 

I would also like to know: what is an M VA 4-10-10 ?

 

Unfortunately, there are some very nasty bugs which are spread in hospitals.
If the primary problems deal with infections and fevers, maybe the best
thing is to try to find the best doctor you can you could help you get these
infections under control.

 

I'm sorry to have any magic answers for you. But I am very glad that you
found this forum. This forum is the best resource which I have found with
the day-to-day issues and problems and complications related to
quadriplegia.

 

Take care,

 

Dave Krehbiel

 

 

 

From: Rene Bullard [mailto:moip...@yahoo.com] 
Sent: Monday, April 25, 2011 2:25 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Unidentified subject!

 

   Well, I'm new to the SCI club. My 19 yr. old son had a M VA 4-10-10 that
left him with a c 6-7. The prob is we have been sick from day 1. After 20
weeks in ICU 4 with rehab that we could not do because sick all the time. We
got home late Aug.of 2010 and been back to hospital 95% of the time. In the
last month we have been home 3-4 days.Well this past fri. we were at OU
hospital and they told me theres nothing rong with him other then drug
withdrows.

 

We went in this time as for all the past : 102.6 temp, vometing, sweating,
pain, UTI, not eatting . OU called back to tell me has staff again #3 for
that one.

 

I just don't know were to turn there is no place in ok. That I have found to
help him get better.  He is going down fast !!! 

Re: [QUAD-L] Unidentified subject!

[wheelchair]

I truly wished that I had the magic answer.  I don't. Its far too complicated, 
knowing no information... which is private.  I am going to forward your email 
to the Chicago Chapter of the Natl Spinal Cord Injury Association.  Perhaps 
Mercedes Raun can reply directly to you.  If not I will forward her answer.
Best Wishes





-Original Message-
From: Rene Bullard moip...@yahoo.com
To: quad-list quad-list@eskimo.com
Sent: Mon, Apr 25, 2011 1:25 pm
Subject: [QUAD-L] Unidentified subject!



   Well, I'm new to the SCI club. My 19 yr. old son had a M VA 4-10-10 that 
left him with a c 6-7. The prob is we have been sick from day 1. After 20 weeks 
in ICU 4 with rehab that we could not do because sick all the time. We got home 
late Aug.of 2010 and been back to hospital 95% of the time. In the last month 
we have been home 3-4 days.Well this past fri. we were at OU hospital and they 
told me theres nothing rong with him other then drug withdrows.
 
We went in this time as for all the past : 102.6 temp, vometing, sweating, 
pain, UTI, not eatting . OU called back to tell me he has staff again #3 for 
that one.
 
I just don't know were to turn there is no place in ok. That I have found to 
help him get better.  He is going down fast !!! 

Re: [QUAD-L] Unidentified subject!

[Eric W Rudd]

what i've gathered, is detox.  but, rest assured, not a single person here will 
'judge' on that. ou? ohio?  ask for complete discharge instruction...what if 
this...(physcian name  #)...

Eric W Rudd
c5sc...@gmail.com
  - Original Message - 
  From: Rene Bullard 
  To: quad-list@eskimo.com 
  Sent: Monday, April 25, 2011 1:25 PM
  Subject: [QUAD-L] Unidentified subject!


 Well, I'm new to the SCI club. My 19 yr. old son had a M VA 4-10-10 that 
left him with a c 6-7. The prob is we have been sick from day 1. After 20 weeks 
in ICU 4 with rehab that we could not do because sick all the time. We got home 
late Aug.of 2010 and been back to hospital 95% of the time. In the last month 
we have been home 3-4 days.Well this past fri. we were at OU hospital and they 
told me theres nothing rong with him other then drug withdrows.

  We went in this time as for all the past : 102.6 temp, vometing, sweating, 
pain, UTI, not eatting . OU called back to tell me he has staff again #3 for 
that one.

  I just don't know were to turn there is no place in ok. That I have found to 
help him get better.  He is going down fast !!! 

Re: [QUAD-L] Unidentified subject!

[hellodaveoc]

_r.pracht@sbcglobal.net_ (mailto:r.pra...@sbcglobal.net) 
 
your mail has been compromised -
 better change your password.
 
 
 
In a message dated 3/28/2011 10:44:26 A.M. US Mountain Standard Time,  
r.pra...@sbcglobal.net writes:

http://www.varietygifts.com.au/admin/info.html

Re: [QUAD-L] Unidentified subject!

[RONALD L PRACHT]

i just changed my email password, you think that will fix it?

--- On Mon, 3/28/11, hellodav...@aol.com hellodav...@aol.com wrote:


From: hellodav...@aol.com hellodav...@aol.com
Subject: Re: [QUAD-L] Unidentified subject!
To: quad-list@eskimo.com
Date: Monday, March 28, 2011, 1:30 PM



r.pra...@sbcglobal.net
 
your mail has been compromised -
 better change your password.
 
 

In a message dated 3/28/2011 10:44:26 A.M. US Mountain Standard Time, 
r.pra...@sbcglobal.net writes:

http://www.varietygifts.com.au/admin/info.html

Re: [QUAD-L] Unidentified subject!

[Danny Hearn]

Greg--how often do you have bowel routine?? in my early stages as a quad, 
myself 
and some others had those problems when they had us trying every day or every 
other day--the nurses in st. louis told us that many quads have better 
resullts going every 3 days or so--the doctors here agreed,...so we started 
doing bowel routine twice a week--worked out great for us !!! been on this 
schedule over 13 years now-- spinal docs told us that going every 3 days or so 
will not cause any problems ( some think that a person must go every day ) but 
this is not true,,, a quads body function slows down for many people---some may 
need to go more often but many do not. I'm not sure if this is related to your 
problem but just a suggestion.  good luck- Danny H. here in snow 
covered 
st. louis, missouri area.  






From: wheelch...@aol.com wheelch...@aol.com
To: g...@eskimo.com; quad-list@eskimo.com
Sent: Mon, January 10, 2011 6:55:46 PM
Subject: Re: [QUAD-L] Unidentified subject!

It is all about diet and if you keep changing your diet, you might continue to 
experience issues.  Have you considered performing a good clean, using Easy Go 
to clean out the upper bowel.  This way you can begin to train your bowel to go 
each day or night at the same time... usually after a meal.  Make sure that 
your 
Primary Doctor is aware of your issue as something like this is so important 
and 
a lazy bowel could happen.

Best Wishes

In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time, 
g...@eskimo.com 
writes:
I'm having such problems with my “bowel routine”
    It use to take 45 minutes using the Enemeez, but they started to not work 
as 
well. Now I'm using the Magic Bullets, but they too are now not working as 
well. 
Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too 
graphic, 
but I start to go ok then things slow down. I can't do this myself, but my 
helper says she can feel stuff there, it just will not drop down. Then after 
numerous tries it might come down or it might go back up. I've tried using a 
second one and it works sometimes. The biggest problem is… hours after I get 
in 
my chair it sometimes then comes down and out. I've tried changing my diet, 
taking different softener type things. It's not that it gets too firm it just 
is 
slow.
    Anyone have this issue that found something that can help things move 
along?
    Thanks

Re: [QUAD-L] Unidentified subject!

[Bob Vogel]

Greg,

If you are *sweating buckets* because of being *backed up* I would suggest 
going to see a knowledgeable Physical Medicine and Rehab doc
for advice and a check-up and options.  Just my opinion.

On Jan 11, 2011, at 10:54 AM, Danny Hearn wrote:

 Greg--how often do you have bowel routine?? in my early stages as a quad, 
 myself and some others had those problems when they had us trying every day 
 or every other day--the nurses in st. louis told us that many quads have 
 better resullts going every 3 days or so--the doctors here agreed,...so 
 we started doing bowel routine twice a week--worked out great for us !!! been 
 on this schedule over 13 years now-- spinal docs told us that going every 3 
 days or so will not cause any problems ( some think that a person must go 
 every day ) but this is not true,,, a quads body function slows down for many 
 people---some may need to go more often but many do not. I'm not sure if this 
 is related to your problem but just a suggestion.  good luck- Danny 
 H. here in snow covered st. louis, missouri area.  
 
 From: wheelch...@aol.com wheelch...@aol.com
 To: g...@eskimo.com; quad-list@eskimo.com
 Sent: Mon, January 10, 2011 6:55:46 PM
 Subject: Re: [QUAD-L] Unidentified subject!
 
 It is all about diet and if you keep changing your diet, you might continue 
 to experience issues.  Have you considered performing a good clean, using 
 Easy Go to clean out the upper bowel.  This way you can begin to train your 
 bowel to go each day or night at the same time... usually after a meal.  Make 
 sure that your Primary Doctor is aware of your issue as something like this 
 is so important and a lazy bowel could happen.
  
 Best Wishes
  
 In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time, 
 g...@eskimo.com writes:
 I'm having such problems with my “bowel routine”
 It use to take 45 minutes using the Enemeez, but they started to not work 
 as well. Now I'm using the Magic Bullets, but they too are now not working as 
 well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too 
 graphic, but I start to go ok then things slow down. I can't do this myself, 
 but my helper says she can feel stuff there, it just will not drop down. Then 
 after numerous tries it might come down or it might go back up. I've tried 
 using a second one and it works sometimes. The biggest problem is… hours 
 after I get in my chair it sometimes then comes down and out. I've tried 
 changing my diet, taking different softener type things. It's not that it 
 gets too firm it just is slow.
 Anyone have this issue that found something that can help things move 
 along?
 Thanks

Re: [QUAD-L] Unidentified subject!

[Don Price]

Greg [and all,]

If you're sitting on your commode chair for two hours your sweating my have 
something to do with pressure--those seats aren't padded very well.

It seems we all have our own systems for bowel programs, but sometimes things 
change.  I'll describe how I do mine, in case it might be of help to others.

As a c5-6 quad I am able to tell when I need to have a bowel movement because 
of 
a certain chill I get, plus some sweating that accompanies that (mild A.D. 
symptoms.)  Generally I need to 'go' every other day, but it depends on how 
much, and what, I've had to eat or drink.

Once I feel the need to use the toilet I inform my caregiver and he transfers 
me 
to my shower/commode chair, pulls my pants down, rolls me over the toilet and I 
do my business.  Generally this takes less than 15 minutes and requires no 
suppository or digital stimulation.  I do, however, use a stimulus that works 
well for me:

Years ago I figured out that when in the shower if I sprayed a blast of hot 
water underneath me [onto my rectum] it would stimulate my bowels every time.  
The water has to be hot, but not hot enough to scald or burn, obviously.  
Anyhow, the hot water sprayed underneath, briefly, causes irritation and 
promotes the parastalsis to begin.

My shower is right next to my toilet, so when I'm sitting on my commode chair 
over the toilet I can still use the [hand-held] showerhead to spray underneath 
me and get things started.  This is also a good way to clean myself underneath, 
after the BM.  Yes, the water does sometimes get all over the bathroom floor, 
but that's an easy cleanup with a towel.

As such, I have found that a set bowel time for me every other day does not 
work.  Because I let my body tell me when it's time my BMs are fairly natural, 
quick and easy.  However, there are drawbacks to this system as well.  First, 
it 
requires access to your caregiver at short notice [my caregiver lives with me, 
so it works out.]  And, second, it's more difficult to schedule around.


[Another thing that has always been a laxative/stimulant for me is coffee.  A 
cup of coffee about 20 minutes before wanting to do a bowel program starts this 
moving for me.]

I hope this info helps someone.
Don.





From: Danny Hearn ddh...@sbcglobal.net
To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com
Sent: Tue, January 11, 2011 11:54:43 AM
Subject: Re: [QUAD-L] Unidentified subject!


Greg--how often do you have bowel routine?? in my early stages as a quad, 
myself 
and some others had those problems when they had us trying every day or every 
other day--the nurses in st. louis told us that many quads have better 
resullts going every 3 days or so--the doctors here agreed,...so we started 
doing bowel routine twice a week--worked out great for us !!! been on this 
schedule over 13 years now-- spinal docs told us that going every 3 days or so 
will not cause any problems ( some think that a person must go every day ) but 
this is not true,,, a quads body function slows down for many people---some may 
need to go more often but many do not. I'm not sure if this is related to your 
problem but just a suggestion.  good luck- Danny H. here in snow 
covered 
st. louis, missouri area.  






From: wheelch...@aol.com wheelch...@aol.com
To: g...@eskimo.com; quad-list@eskimo.com
Sent: Mon, January 10, 2011 6:55:46 PM
Subject: Re: [QUAD-L] Unidentified subject!

It is all about diet and if you keep changing your diet, you might continue to 
experience issues.  Have you considered performing a good clean, using Easy Go 
to clean out the upper bowel.  This way you can begin to train your bowel to go 
each day or night at the same time... usually after a meal.  Make sure that 
your 
Primary Doctor is aware of your issue as something like this is so important 
and 
a lazy bowel could happen.

Best Wishes

In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time, 
g...@eskimo.com 
writes:
I'm having such problems with my “bowel routine”
    It use to take 45 minutes using the Enemeez, but they started to not work 
as 
well. Now I'm using the Magic Bullets, but they too are now not working as 
well. 
Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too 
graphic, 
but I start to go ok then things slow down. I can't do this myself, but my 
helper says she can feel stuff there, it just will not drop down. Then after 
numerous tries it might come down or it might go back up. I've tried using a 
second one and it works sometimes. The biggest problem is… hours after I get 
in 
my chair it sometimes then comes down and out. I've tried changing my diet, 
taking different softener type things. It's not that it gets too firm it just 
is 
slow.
    Anyone have this issue that found something that can help things move 
along?
    Thanks

Re: [QUAD-L] Unidentified subject!

[Derrick]

Greg,
I had this problem too.
Sometimes the poop just goes backup, especially using a 2nd magic bullet or 
enemeez. So, I only use 1 , if it does not come out, I wait 24 hrs and take 
milk/magnesia. this usually makes it come out.

Like what others say, I changed my diet and started taking mirlax.
I go now every other morning, 1 hour instead of 2, and no more digi-stem. 

It took awhile to get cleaned out (a few months) after starting  tweaking my 
diet.
I take 4 senokote the night before. This helps push it down.

good luckI was very depressed with my bp. I dread it.but, thank god 
it is much better now.
Derrick W in PA 
  - Original Message - 
  From: greg 
  To: quad-list@eskimo.com 
  Sent: Monday, January 10, 2011 7:51 PM
  Subject: [QUAD-L] Unidentified subject!


  I'm having such problems with my bowel routine
  It use to take 45 minutes using the Enemeez, but they started to not work 
as well. Now I'm using the Magic Bullets, but they too are now not working as 
well. Not only is it taking 2 plus hours, I'm sweating buckets. Not to be too 
graphic, but I start to go ok then things slow down. I can't do this myself, 
but my helper says she can feel stuff there, it just will not drop down. Then 
after numerous tries it might come down or it might go back up. I've tried 
using a second one and it works sometimes. The biggest problem is. hours after 
I get in my chair it sometimes then comes down and out. I've tried changing my 
diet, taking different softener type things. It's not that it gets too firm it 
just is slow.
  Anyone have this issue that found something that can help things move 
along?
  Thanks

Re: [QUAD-L] Unidentified subject!

[DAANOO]

I was brought to the hospital for pneumonia. A few days after entering, my  
bowels became blocked (my bowels were not moving at all) after coming I was 
 given Miralax along with several large glass of prune juice with no of 
magnesia  1 tablespoon. A few days later it finally started working. I've been 
taking bran  cereal and now I'm taking 10 baby prrunes will along with senna 
and stool  softener's. If I ever don't go I use Miralax  prune juice with 
milk of  magnesia. I also use enemas, which they say not to use in rehab. 
It's important  to eat a lot of green leafy vegetables, whole-grain breads and 
fruits. I also  think it helps to not gain weight
Prunes are easier for me to eat than drink prune juice. The hospital is  
amazed at the number of senna I use, but it works for me. I started out with a 
 small amount and I've had to increase. I rarely have accidents.
Dana
 
 
In a message dated 1/11/2011 4:32:49 P.M. Central Standard Time,  
whe...@cvn.net writes:

  
Greg,
I had this problem too.
Sometimes the poop just goes backup,  especially using a 2nd magic bullet 
or enemeez. So, I only use 1 , if it does  not come out, I wait 24 hrs and 
take milk/magnesia. this usually makes it come  out.
 
Like what others say, I changed my  diet and started taking mirlax.
I go now every other morning, 1 hour  instead of 2, and no more digi-stem. 
 
It took awhile to get cleaned  out (a few months) after starting  tweaking 
my  diet.
I take 4 senokote the night before.  This helps push it down.
 
good luckI was very depressed  with my bp. I dread it.but, 
thank god it is much better now.
Derrick W in PA 

- Original Message - 
From:  _greg_ (mailto:g...@eskimo.com)  
To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Monday, January 10, 2011 7:51  PM
Subject: [QUAD-L] Unidentified  subject!


I'm  having such problems with my “bowel routine”
   It use to take 45 minutes using the Enemeez, but they started to not  
work as well. Now I'm using the Magic Bullets, but they too are now not  
working as well. Not only is it taking 2 plus hours, I'm sweating buckets.  Not 
to be too graphic, but I start to go ok then things slow down. I can't  do 
this myself, but my helper says she can feel stuff there, it just will  not 
drop down. Then after numerous tries it might come down or it might go  back 
up. I've tried using a second one and it works sometimes. The biggest  
problem is… hours after I get in my chair it sometimes then comes down and  
out. 
I've tried changing my diet, taking different softener type things.  It's not 
that it gets too firm it just is slow.
   Anyone have this issue that found something that can help things move  
along?
Thanks

Re: [QUAD-L] Unidentified subject!

[hellodaveoc]

my regular schedule is once every 4 days - I use a 2 qt water enema  and it 
takes about 45 minutes for everything to evacuate.  I seldom have  
accidents since starting this routine 10 years ago.  I never like 'rushing'  to 
the 
Jon in emergency mode.
azdave   c3-4 incomplete 1967
 
 
 
In a message dated 1/11/2011 3:55:32 P.M. US Mountain Standard Time,  
daa...@aol.com writes:

I was brought to the hospital for pneumonia. A few days after entering,  my 
bowels became blocked (my bowels were not moving at all) after coming I was 
 given Miralax along with several large glass of prune juice with no of  
magnesia 1 tablespoon. A few days later it finally started working. I've been  
taking bran cereal and now I'm taking 10 baby prrunes will along with senna 
 and stool softener's. If I ever don't go I use Miralax  prune juice with  
milk of magnesia. I also use enemas, which they say not to use in rehab. 
It's  important to eat a lot of green leafy vegetables, whole-grain breads and 
 fruits. I also think it helps to not gain weight
Prunes are easier for me to eat than drink prune juice. The hospital is  
amazed at the number of senna I use, but it works for me. I started out with a 
 small amount and I've had to increase. I rarely have accidents.
Dana
 
 
In a message dated 1/11/2011 4:32:49 P.M. Central Standard Time,  
whe...@cvn.net writes:

  
Greg,
I had this problem  too.
Sometimes the poop just goes  backup, especially using a 2nd magic bullet 
or enemeez. So, I only use 1 ,  if it does not come out, I wait 24 hrs and 
take milk/magnesia. this usually  makes it come out.
 
Like what others say, I changed my  diet and started taking mirlax.
I go now every other morning, 1  hour instead of 2, and no more digi-stem. 
 
It took awhile to get cleaned  out (a few months) after starting  tweaking 
my  diet.
I take 4 senokote the night before.  This helps push it down.
 
good luckI was very  depressed with my bp. I dread it.but, 
thank god it is much better  now.
Derrick W in PA 

- Original Message - 
From:  _greg_ (mailto:g...@eskimo.com)   
To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Monday, January 10, 2011 7:51  PM
Subject: [QUAD-L] Unidentified  subject!


I'm  having such problems with my “bowel routine”
   It use to take 45 minutes using the Enemeez, but they started to  not 
work as well. Now I'm using the Magic Bullets, but they too are now  not 
working as well. Not only is it taking 2 plus hours, I'm sweating  buckets. Not 
to be too graphic, but I start to go ok then things slow  down. I can't do 
this myself, but my helper says she can feel stuff there,  it just will not 
drop down. Then after numerous tries it might come down  or it might go back 
up. I've tried using a second one and it works  sometimes. The biggest 
problem is… hours after I get in my chair it  sometimes then comes down and 
out. 
I've tried changing my diet, taking  different softener type things. It's not 
that it gets too firm it just is  slow.
   Anyone have this issue that found something that can help things  move 
along?
Thanks

Re: [QUAD-L] Unidentified subject or bowel program

[donald scott]

   i have been a part of the list since all most the beginning. this topic 
comes 
up all the time. there is no set in concrete best way to take care of your 
bowels. eat well, drink lots of water, and  find what works for you. if you 
want 
to know what has worked from day one till now 20 years later for me its this. 
first off im a c5-c6 complete so what works for me might not for you. 


   i do my bowel care every other morning. my caregiver comes in at 7am. im 
laying in bed on my right side with a peach pad under me. a pillow supports my 
back and another between my knees and ankles. caregiver clears the entrance 
with 
finger. puts in one magic bullet and one glycerine suppository. then rubs my 
tummy in circles a couple times. i put a folded one time hand towel on my chest 
for sweating. i try and fall back asleep for a while during the time i go. my 
caregiver also rests and comes back 1 1/2 hours later and cleans me up. results 
are usually good but sometimes not. i always after im cleaned up no matter the 
result, have the caregiver restimulate me and rub my stomach again. we wait a 
1/2 hour more then clean me again if needed. thats it as for doing the deed. no 
sitting on a hard shower chair. i rest right through it most mornings. 


   as far as diet goes i do have some rules for myself. on the days i did bowel 
care i dont eat any spicey foods or drink any alcohol. (good thing there is 
weed.) on the other day i eat anything i want and can drink alcohol if i want. 
thats it. i do eat fairly healthy but not anything special at all.

  as far as pills go i do take senna 1 pill twice a day and docusate 1 pill in 
evening on bowel care day and 2 pills in evening the other day. 
this program has always worked well. i average about 15 accidents a year and 
sometimes thats due to me breaking my rule of no spicy food or booze. also some 
accidents happen from illness or stress.

   i hope my way of taking care of the dirty deed works for someone. 

good luck, donald c5-c6 complete almost 20 years.


From: Don Price donpric...@yahoo.com
To: Danny Hearn ddh...@sbcglobal.net; wheelch...@aol.com; g...@eskimo.com; 
quad-list@eskimo.com
Sent: Tue, January 11, 2011 11:49:20 AM
Subject: Re: [QUAD-L] Unidentified subject!


Greg [and all,]

If you're sitting on your commode chair for two hours your sweating my have 
something to do with pressure--those seats aren't padded very well.

It seems we all have our own systems for bowel programs, but sometimes things 
change.  I'll describe how I do mine, in case it might be of help to others.

As a c5-6 quad I am able to tell when I need to have a bowel movement because 
of 
a certain chill I get, plus some sweating that accompanies that (mild A.D. 
symptoms.)  Generally I need to 'go' every other day, but it depends on how 
much, and what, I've had to eat or drink.

Once I feel the need to use the toilet I inform my caregiver and he transfers 
me 
to my shower/commode chair, pulls my pants down, rolls me over the toilet and I 
do my business.  Generally this takes less than 15 minutes and requires no 
suppository or digital stimulation.  I do, however, use a stimulus that works 
well for me:

Years ago I figured out that when in the shower if I sprayed a blast of hot 
water underneath me [onto my rectum] it would stimulate my bowels every time.  
The water has to be hot, but not hot enough to scald or burn, obviously.  
Anyhow, the hot water sprayed underneath, briefly, causes irritation and 
promotes the parastalsis to begin.

My shower is right next to my toilet, so when I'm sitting on my commode chair 
over the toilet I can still use the [hand-held] showerhead to spray underneath 
me and get things started.  This is also a good way to clean myself underneath, 
after the BM.  Yes, the water does sometimes get all over the bathroom floor, 
but that's an easy cleanup with a towel.

As such, I have found that a set bowel time for me every other day does not 
work.  Because I let my body tell me when it's time my BMs are fairly natural, 
quick and easy.  However, there are drawbacks to this system as well.  First, 
it 
requires access to your caregiver at short notice [my caregiver lives with me, 
so it works out.]  And, second, it's more difficult to schedule around.


[Another thing that has always been a laxative/stimulant for me is coffee.  A 
cup of coffee about 20 minutes before wanting to do a bowel program starts this 
moving for me.]

I hope this info helps someone.
Don.





From: Danny Hearn ddh...@sbcglobal.net
To: wheelch...@aol.com; g...@eskimo.com; quad-list@eskimo.com
Sent: Tue, January 11, 2011 11:54:43 AM
Subject: Re: [QUAD-L] Unidentified subject!


Greg--how often do you have bowel routine?? in my early stages as a quad, 
myself 
and some others had those problems when they had us trying every day or every 
other day--the nurses in st. louis told us that many quads have better

Re: [QUAD-L] Unidentified subject!

[wheelchair]

It is all about diet and if you keep changing your diet, you might continue 
 to experience issues.  Have you considered performing a good clean, using  
Easy Go to clean out the upper bowel.  This way you can begin to train your 
 bowel to go each day or night at the same time... usually after a meal.   
Make sure that your Primary Doctor is aware of your issue as something like 
this  is so important and a lazy bowel could happen.
 
Best Wishes
 
 
In a message dated 1/10/2011 6:51:29 P.M. Central Standard Time,  
g...@eskimo.com writes:

I'm having  such problems with my “bowel routine”
   It use to take 45 minutes using the Enemeez, but they started to not  
work as well. Now I'm using the Magic Bullets, but they too are now not  
working as well. Not only is it taking 2 plus hours, I'm sweating buckets. Not  
to be too graphic, but I start to go ok then things slow down. I can't do 
this  myself, but my helper says she can feel stuff there, it just will not 
drop  down. Then after numerous tries it might come down or it might go back 
up.  I've tried using a second one and it works sometimes. The biggest problem 
is…  hours after I get in my chair it sometimes then comes down and out. 
I've tried  changing my diet, taking different softener type things. It's not 
that it gets  too firm it just is slow.
   Anyone have this issue that found something that can help things move  
along?
   Thanks

Re: [QUAD-L] Unidentified subject! THEY HAVE BEEN SPAMMED!

[DAANOO]

I change my password but I think people are still getting those  e-mails.
 
 
In a message dated 11/11/2010 10:57:43 P.M. Central Standard Time,  
hellodav...@aol.com writes:


I think the fix for this is as easy as changing your password.
AZDAVE
 
 
In a message dated 11/11/2010 6:23:22 A.M. US Mountain Standard Time,  
rollingl...@yahoo.com writes:

http://lafarigoule.org/to.php

Re: [QUAD-L] Unidentified subject! THEY HAVE BEEN SPAMMED!

[hellodaveoc]

I think the fix for this is as easy as changing your password.
AZDAVE
 
 
In a message dated 11/11/2010 6:23:22 A.M. US Mountain Standard Time,  
rollingl...@yahoo.com writes:

http://lafarigoule.org/to.php

Re: [QUAD-L] Unidentified subject!

[Quadius]

I didn't use my chest strap, except in my van, for many years. On one
particular occasion I was daydreaming as I crossed a wooden bridge and then
it donned on me that I was going out into a busy sidewalk. So I sidled over
to the left and accidentally hooked my left rear tire on the corner of the
bridge. Since I was driving a Peachtree, it naturally through me to the left
and I ended up barely off the sidewalk with my face all the way down at my
knees and my rear wheels spinning hopelessly in the air. Thankfully it was a
busy road and some wonderful gentleman who ride around in a golf cart doing
work for the community came by and helped me out. What's truly sad is for 20
minutes cars drove by and did nothing.

Thank goodness my image care at a bar that protected the actuator on the
bottom of the wheelchair. That particular thing hooked a segment of the
sidewalk as I was heading toward the ditch that I ended up dangling over.
Then again there's that time I went off the sidewalk on the side of my
house. I kept thinking I could get back up on the sidewalk in all I
succeeded in doing was sliding further down the incline until I was wedged
up against my neighbors wouldn't fence. Some of my neighbors came by about
20 minutes later and after getting more help from more neighbors, they were
able to pull me out. Thankfully I was in the shade. That would've been a
whole different story if I would've ended up in the sun down here in the
middle of summer. It's 80° today and that's not even bad.

Quadius

PS I live in the Tampa area.




On Wed, Apr 28, 2010 at 10:05 AM, greg g...@eskimo.com wrote:

 The other day I mentioned that I never go out by myself without my chest
 strap on, or without my phone. That night I took my dog for a quick pee
 check before bed. My chair is in the shop, so I'm in my backup. It has no
 chest strap. Usually when I go out alone, I put a strap around my headrest
 and my head and one arm. Since I was just going around the block... I
 didn't... nor did I take my phone.
 I'm part way around and my dog pees, so I turn around because it's shorter.
 My rear wheel slips off the sidewalk into the gravel and is stuck just a
 bit. My error was I was sitting with my back to far upright. So when my
 chair jerks when it gets unstuck, I start to fall/tip forward. I've done
 this before and my reflex is to gun the chair forward to help me sit back. I
 stop myself / the chair, before I get to the edge, the the fast stop makes
 me fall forward even more. I hit the joystick with my arm and off I go,
 right off the curb. Good thing was I was going forward not sideways so no
 tipping over. Plus my legrest hit the street and stopped my chair from going
 further into the street. Bad news was my legrest hits the street and I make
 a dead stop. No momentum to help me sit back up.
 So I'm stuck half off the curb, tipped forward on my lap, with no phone. At
 night not many cars drive by. Luckily I was there only about 3-4 minutes
 when I heard loud taking in the school parking lot across the street. I
 start yelling CAN SOMEONE HELP ME It took a minute of yelling before I
 heard them yelling back that they were on there way over. A man and lady out
 jogging. They were so nice, he was trying to sit me back up first, but was
 so careful. Like he was going to break me. Then they were able to lift my
 front wheels back up on the sidewalk. Then they asked if I needed them to
 walk home with me :-)

 After 28 years, that was the first time going off a curb. Once my 5/6 year
 old niece was on my lap driving and we went off our curb going fast, but it
 is the curved/slopped kind. I go up/down them all the time, but I have to
 tilt my back to go down it, then tilt all the way up to go up the curb, but
 I do it very slow.

 Greg

Re: [QUAD-L] Unidentified subject!

[ladynotes]

Greg, where was your dog, during this ordeal? Was he taking the extra time to 
explore, or being concerned about you and your chair?

Greg, where was your dog, during this ordeal? Was he taking the extra time to 
explore, or being concerned about you and your chair?

Have a Blessed Day, Naomi



-Original Message-
From: greg g...@eskimo.com
To: quad-list@eskimo.com
Sent: Wed, Apr 28, 2010 10:05 am
Subject: [QUAD-L] Unidentified subject!


The other day I mentioned that I never go out by myself without my chest strap 
n, or without my phone. That night I took my dog for a quick pee check before 
ed. My chair is in the shop, so I'm in my backup. It has no chest strap. 
sually when I go out alone, I put a strap around my headrest and my head and 
ne arm. Since I was just going around the block... I didn't... nor did I take 
y phone.
'm part way around and my dog pees, so I turn around because it's shorter. My 
ear wheel slips off the sidewalk into the gravel and is stuck just a bit. My 
rror was I was sitting with my back to far upright. So when my chair jerks when 
t gets unstuck, I start to fall/tip forward. I've done this before and my 
eflex is to gun the chair forward to help me sit back. I stop myself / the 
hair, before I get to the edge, the the fast stop makes me fall forward even 
ore. I hit the joystick with my arm and off I go, right off the curb. Good 
hing was I was going forward not sideways so no tipping over. Plus my legrest 
it the street and stopped my chair from going further into the street. Bad news 
as my legrest hits the street and I make a dead stop. No momentum to help me 
it back up.
o I'm stuck half off the curb, tipped forward on my lap, with no phone. At 
ight not many cars drive by. Luckily I was there only about 3-4 minutes when I 
eard loud taking in the school parking lot across the street. I start yelling 
CAN SOMEONE HELP ME It took a minute of yelling before I heard them yelling 
ack that they were on there way over. A man and lady out jogging. They were so 
ice, he was trying to sit me back up first, but was so careful. Like he was 
oing to break me. Then they were able to lift my front wheels back up on the 
idewalk. Then they asked if I needed them to walk home with me :-)
After 28 years, that was the first time going off a curb. Once my 5/6 year old 
iece was on my lap driving and we went off our curb going fast, but it is the 
urved/slopped kind. I go up/down them all the time, but I have to tilt my back 
o go down it, then tilt all the way up to go up the curb, but I do it very 
low.
Greg

Re: [QUAD-L] Unidentified subject!

[greg]

My dog was great, once I was tipping forward he got real excited. Not sure if 
he was worried about me or excited about me being lower and able reach him (he 
is small).
But once I started yelling for help, he went barking crazy. He continued 
barking even after I stopped yelling, didn't stop until after they had sit me 
up and got my chair back on the sidewalk.

Greg


 Greg, where was your dog, during this ordeal? Was he taking the
 extra time to explore, or being concerned about you and your chair?

Re: [QUAD-L] Unidentified subject!

[DiannaL767]

Greg,
Things only go wrong when ya forget the damn phone!
Dianna-been there once too many.

Re: [QUAD-L] Unidentified subject!

[Eric W Rudd]

not only the phone, but the dog...?

Eric W Rudd
c5sc...@gmail.com
  - Original Message - 
  From: diannal...@aol.com 
  To: g...@eskimo.com ; quad-list@eskimo.com 
  Sent: Wednesday, April 28, 2010 10:44 AM
  Subject: Re: [QUAD-L] Unidentified subject!


  Greg,
  Things only go wrong when ya forget the damn phone!
  Dianna-been there once too many.

Re: [QUAD-L] Unidentified subject!

[Quadius]

I've been using my new Permobile rear wheel drive C350 for about seven weeks
now and I have finally gotten used to the Magitek enough to be able to drive
it at full speed in my community now. I don't try it on the sidewalks, but
I'd definitely use the roads (one of the perks to living in a very small
community). Right now my chair only does around 5 mph, but I can probably
turn it up some. I do, however, think the Magitek dampens down the ability
to drive to much faster than 6 or 7 mph.

BTW, it took me quite a while to get used to the magitek. In fact, I still
mess up at least a couple of times a day, but I'm getting better every day.
Switching over from the Peachtree was a lot more difficult than I thought it
would be, a chin control would have been a little too hard for me to use.
That's just me though, there are more people using chin controls than
magitek.

I didn't realize until a couple of weeks after I started using the new chair
that the magitek forces me to use a few different muscles in the shoulder
and neck then I was using with the Peachtree.
Q

On Sun, Apr 25, 2010 at 11:26 PM, Joan Anglin poaj...@sbcglobal.net wrote:

 That is why I chose to go with the chin controller mounted on the collar
 around my neck.  I really have excellent control and it cannot bounce away
 from me.  I was warned that the sip and puff would have problems in our
 Reno
 climate.  Plus I could not see myself bouncing around on a dirt road trying
 to hang on to something in my mouth.  :-)
 I don't usually go very fast-6-7 miles per hour is about my limit.  I often
 have one, two, or three grandchildren on or about my chair.
 The omega trac can have the hitch installed on the back so you can pull the
 garden cart.  We just hook that cart onto the back and off we go.  Great
 fun.  Joan

Re: [QUAD-L] Unidentified subject!

[greg]

My TDX5 says it goes 7.5 mph. I go full speed any time I can, sidewalk, store 
isles, house hallways, trails walking the dog, etc. I too had the stopping 
speed slowed down so it does not stop real fast. My hand sometimes slips off 
the joystick, and I would tip forward from momentum. Now I always wear my chest 
strap whenever I go out alone.
I want a 21st Century Bounder that can go 11 mph. I had one as my 1st chair 28 
years ago. I don't like the large rear wheel, it's not as agile as my mid wheel 
TDX5, but I just love the faster speeds. It's better looking now than it was 
back then, but still not as nice looking as the TDX series. You really need 
rear wheel drive if you go over 7.5, or you can start to wobble a bit and fish 
tail. I think you get use to the speed
Chairs need a small platform on the back of the chairs that flip down for those 
who accompany us in chairs to stand on. It could have little castor wheels to 
hold the weight. I've thought of going in to a motorcycle shop to see if they 
could make something like that.
SPEED SPEED SPEED, Greg



 Do you guys who like speed really go full speed anywhere except on
 a city street?I have a TDX5 which claims 6.5 mph and wide open,
 my son has to trot rather fast to keep up with me.  I feel VERY
 unstable anywhere except on a very flat paved surface.  I also feel
 rather confident that if I just dropped the joy stick while
 cruising at full tilt, I'd likely be dumped out on my face.I
 don't hardly ever use highest speed. AZDAVE   I hate when I
 just miss a call by the last ring (Hello?  Hello?), but whe

Re: [QUAD-L] Unidentified subject!

[wheelchair]

I agree, but as long as it doesn't void warrantees or subject the chair to  
abuse.
Best Wishes
 
 
In a message dated 4/25/2010 4:14:37 P.M. Central Daylight Time,  
diannal...@aol.com writes:

 
In a message dated 4/25/2010 3:54:57 PM Eastern Daylight Time,  
g...@eskimo.com writes:


Chairs need a small platform on the back of the chairs that  flip down for 
those who accompany us in chairs to stand  on.


my g-daughter always rode standing on my batteries when i had my storm  
series but she got too big and now i have a different chair. it was nice. i  
always knew where she was.
dianna

Re: [QUAD-L] Unidentified subject!

[Monty]

with sip and puff control you just have to make sure you don't lose control of 
it or come apart some bizarre way! Condensation during the winter months is 
truly a pain especially entering and exiting from hot to cold it gets pretty 
tricky at times. It's part of living in northern Indiana and wanting to keep 
active no matter what the weather is! If I could have my friends good hook me 
up with air horns constructing a small flat form would not be difficult by any 
means just need some dimensions?




- Original Message 
From: greg g...@eskimo.com
To: quad-list@eskimo.com
Sent: Sun, April 25, 2010 2:54:27 PM
Subject: Re: [QUAD-L] Unidentified subject!

My TDX5 says it goes 7.5 mph. I go full speed any time I can, sidewalk, store 
isles, house hallways, trails walking the dog, etc. I too had the stopping 
speed slowed down so it does not stop real fast. My hand sometimes slips off 
the joystick, and I would tip forward from momentum. Now I always wear my chest 
strap whenever I go out alone.
I want a 21st Century Bounder that can go 11 mph. I had one as my 1st chair 28 
years ago. I don't like the large rear wheel, it's not as agile as my mid wheel 
TDX5, but I just love the faster speeds. It's better looking now than it was 
back then, but still not as nice looking as the TDX series. You really need 
rear wheel drive if you go over 7.5, or you can start to wobble a bit and fish 
tail. I think you get use to the speed
Chairs need a small platform on the back of the chairs that flip down for those 
who accompany us in chairs to stand on. It could have little castor wheels to 
hold the weight. I've thought of going in to a motorcycle shop to see if they 
could make something like that.
SPEED SPEED SPEED, Greg



 Do you guys who like speed really go full speed anywhere except on
 a city street?I have a TDX5 which claims 6.5 mph and wide open,
 my son has to trot rather fast to keep up with me.  I feel VERY
 unstable anywhere except on a very flat paved surface.  I also feel
 rather confident that if I just dropped the joy stick while
 cruising at full tilt, I'd likely be dumped out on my face.I
 don't hardly ever use highest speed. AZDAVE   I hate when I
 just miss a call by the last ring (Hello?  Hello?), but whe


  

RE: [QUAD-L] Unidentified subject!

[Joan Anglin]

That is why I chose to go with the chin controller mounted on the collar
around my neck.  I really have excellent control and it cannot bounce away
from me.  I was warned that the sip and puff would have problems in our Reno
climate.  Plus I could not see myself bouncing around on a dirt road trying
to hang on to something in my mouth.  :-)
I don't usually go very fast-6-7 miles per hour is about my limit.  I often
have one, two, or three grandchildren on or about my chair.
The omega trac can have the hitch installed on the back so you can pull the
garden cart.  We just hook that cart onto the back and off we go.  Great
fun.  Joan

Re: [QUAD-L] Unidentified subject!

[hellodaveoc]

Do you guys who like speed really go full speed anywhere except on a city  
street?I have a TDX5 which claims 6.5 mph and wide open, my  son has to 
trot rather fast to keep up with me.  I feel VERY unstable  anywhere except 
on a very flat paved surface.  I also feel rather confident  that if I just 
dropped the joy stick while cruising at full tilt, I'd likely be  dumped out 
on my face.I don't hardly ever use highest  speed.
AZDAVE
 
I hate when I  just miss a call by the last ring (Hello?  Hello?), but when 
I immediately  call back,  it rings nine times and goes to voice mail.   
What  did you do after I didn't answer? Drop the  phone and run  away?

_Daveoconnell.com  

 
In a message dated 4/24/2010 5:48:05 P.M. US Mountain Standard Time,  
aa999...@yahoo.com writes:

http://www.pridemobility.com/quantum/powerbases/rearwheel/r4000.asp
Has  anybody had any experience with r4000 by pride? I will require sip 
puff  control system along with tilt seating. According to the manufacturer 
numbers  top speed is pretty decent but I'm wondering at the cost of speed 
versus  distance? I can cover large geographical area let's say in six hours 
and I am  currently using Invacare Ranger X. gearsless brushless motors. I 
have had this  set up for the last two chairs and absolutely finish dealing 
with Invacare  serious electronic problems! So battery life, motor durability 
and electronics  are my most essential areas of concern within the chair may 
choose early next  year. Thanks from Indiana Monty 3/4 16 post injury







_ (http://daveoconnell.com/) 

Re: [QUAD-L] Unidentified subject!

[Dan]

You're right about that Dave. My chair goes about 8 mph, and I only 
use that speed when I'm on a smooth paved surface. When I'm going 
that speed the slightest bump would send me flying. I had to adjust 
the breaking time so that there would be a 12 second pause in case my 
hand slid off the controls. That way, the natural drag of the motors 
slows down the chair much slower then the abrupt stop that the 
electronics give.


Dan



At 09:11 PM 4/24/2010, hellodav...@aol.com said something that 
elicited my response:


Do you guys who like speed really go full speed anywhere except on a 
city street?I have a TDX5 which claims 6.5 mph and wide open, my 
son has to trot rather fast to keep up with me.  I feel VERY 
unstable anywhere except on a very flat paved surface.  I also feel 
rather confident that if I just dropped the joy stick while cruising 
at full tilt, I'd likely be dumped out on my face.I don't hardly 
ever use highest speed.

AZDAVE

I hate when I just miss a call by the last ring (Hello?  Hello?), 
but when I immediately call back,  it rings nine times and goes to 
voice mail.   What did you do after I didn't answer? Drop the  phone 
and run away?


http://daveoconnell.com/Daveoconnell.com

In a message dated 4/24/2010 5:48:05 P.M. US Mountain Standard Time, 
aa999...@yahoo.com writes:

http://daveoconnell.com/http://www.pridemobility.com/quantum/powerbases/rearwheel/r4000.asp
Has anybody had any experience with r4000 by pride? I will require 
sip puff control system along with tilt seating. According to the 
manufacturer numbers top speed is pretty decent but I'm wondering at 
the cost of speed versus distance? I can cover large geographical 
area let's say in six hours and I am currently using Invacare Ranger 
X. gearsless brushless motors. I have had this set up for the last 
two chairs and absolutely finish dealing with Invacare serious 
electronic problems! So battery life, motor durability and 
electronics are my most essential areas of concern within the chair 
may choose early next year. Thanks from Indiana Monty 3/4 16 post injury

Re: [QUAD-L] Unidentified subject!

[DiannaL767]

 
In a message dated 4/24/2010 9:11:34 PM Eastern Daylight Time,  
hellodav...@aol.com writes:

I also feel rather confident that if I just dropped  the joy stick while 
cruising at full tilt, I'd likely be dumped out on my  face.I don't hardly 
ever use highest  speed.


i love the speed. i can get from my house to bella's in no time! (around  
the block). i'm confused though. why would you cruise at full tilt? my ranger 
 couldn't move while tilted. safety feature.

Re: [QUAD-L] Unidentified subject!

[hellodaveoc]

you're so cute - never heard the phrase 'full tilt' before huh?  I'm  not 
THAT much older than you.   It means full speed.   Mine  goes just fine 
tilted and reclined and elevated - a consequence of  re-programming by the 
re-builder.  Bye the way - it's VERY difficult to  drive while fully reclined - 
it 
takes a LOT of space to turn.
 
I hate when I  just miss a call by the last ring (Hello?  Hello?), but when 
I immediately  call back,  it rings nine times and goes to voice mail.   
What  did you do after I didn't answer? Drop the  phone and run  away?

_Daveoconnell.com  

 
In a message dated 4/24/2010 7:06:28 P.M. US Mountain Standard Time,  
diannal...@aol.com writes:

 
In a message dated 4/24/2010 9:11:34 PM Eastern Daylight Time,  
hellodav...@aol.com writes:

I also feel rather confident that if I just  dropped the joy stick while 
cruising at full tilt, I'd likely be dumped out  on my face.I don't hardly 
ever use highest  speed.


I love the speed. I can get from my house to bella's in no time! (around  
the block). i'm confused though. why would you cruise at full tilt? my ranger 
 couldn't move while tilted. safety  feature.


_ (http://daveoconnell.com/) 

Re: [QUAD-L] Unidentified subject!

[DiannaL767]

 
you're so cute - never heard the phrase 'full tilt'  before huh?  I'm not 
THAT much older than you.   It means full  speed.   Mine goes just fine 
tilted and reclined and elevated - a  consequence of re-programming by the 
re-builder.  Bye the way - it's VERY  difficult to drive while fully reclined - 
it 
takes a LOT of space to  turn.

full speed, yes. but with you having a new toy i thought you were speaking  
of your new capability. that being tilt. so wth, are you saying that thing 
moves  while in a tilt position?

Re: [QUAD-L] Unidentified subject!

[Fragile]

I'm considering one as well, just curious, what medication are you planning
on putting in the pump first?

On Sun, Nov 8, 2009 at 8:00 PM, David mrpockets_2...@yahoo.com wrote:

 I'm only 52 and after at least 9 back surgeries, a scare that runs from my
 hairline to my tail bone and a set of rods from my waistline to my shoulders
 I feel more like 65.  My pain tolorences  are pretty high, but the nerve
 pain that I have had lately has forced me to search out a pain pump to
 releive my pain.  I'm due to have it put in 3 weeks and look forward to some
 relief.  I curious if anyone else has had one and how they are getting by?

Re: [QUAD-L] Unidentified subject!

[wheelchair]

Pain pumps can be very effective when using the proper meds and the person  
is trained in its operation.  During the first few weeks its trial and  
error and keep in contact with your doctor if you have any adverse  affects.
 
Best Wishes
 
 
In a message dated 11/8/2009 9:00:54 P.M. Central Standard Time,  
mrpockets_2...@yahoo.com writes:

 
I'm only 52 and after at least 9 back surgeries, a scare that runs from  my 
hairline to my tail bone and a set of rods from my waistline to my  
shoulders
I feel more like 65.  My pain tolorences  are pretty  high, but the nerve 
pain that I have had lately has forced me to search out a  pain pump to 
releive my pain.  I'm due to have it put in 3 weeks and look  forward to some 
relief.  I curious if anyone else has had one and how  they are getting by?

Re: [QUAD-L] Unidentified subject!

[DAANOO]

 
In a message dated 7/29/2009 3:23:41 P.M. Central Daylight Time,  
c5sc...@gmail.com writes:

  
probably BUT beware u'll probably get alot  of spyware, pennies 4 x-number 
of searches, etc., etc.

Eric W Rudd
_c5sc...@gmail.com_ (mailto:c5sc...@gmail.com) 
 





- Original Message - 
From:  _e m treston_ (mailto:missl...@optonline.net)  
To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com)  
Sent: Wednesday, July 29, 2009 2:42  PM
Subject: RE: [QUAD-L] Unidentified  subject!



Is this serious?
 

 From: Angie Novak  [mailto:scaryide...@yahoo.com] 
Sent: Wednesday, July 29, 2009  3:03 PM
To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) 
Subject:  [QUAD-L] Unidentified subject!




 
TO ALL TC SCS MEMBERS,
 
I remember it was last year or so when somebody out there told me  about 
GoodSearch.com. I don't remember the story anymore but it seems  to me that I 
checked with national on it and, whatever happened, it  fell by the wayside. 
Well now I've just heard about it again from  Stephanie at our North 
Carolina chapter. SCS is signed up on it and it  is available to us as an 
excellent source of fundraising.
 
Here's the deal. GoodSearch.com is a search engine that pays  money back to 
your designated charity every time you use it. So every  time you do an 
internet search for something, use GoodSearch instead  of Google or Yahoo or 
whatever. For every search you do they'll pay a  penny or so to SCS. That may 
not sound like much but it will add up,  if we use it! THIS IS A NO-BRAINER 
FOLKS!!! If you're looking  stuff up on the internet you're using a search 
engine so just use the  one that will help us fund a cure. 
 
It's simple to do. Go to _www.goodsearch.com_ (http://www.goodsearch.com/) 
. You'll see  the search box and then you'll see the box to choose your 
charity.  Type in Spinal Cord Society (open up your internet browser in another 
 
window and do this with me now), check to see it's the Fergus Falls  SCS 
then click 'verify'. Now every time you go to GoodSearch, SCS will  be preset 
and all you have to do is start your searches to make us  some money. There 
is also an 'amount raised' button so you can see  just how much money is 
being raised. This money gets sent right to  Fergus Falls.
 
You'll also see GoodShop.com right below that. Do your online  shopping 
from there and it'll do the same thing to make even more  money. AGAIN, THIS IS 
A NO-BRAINER! You can set GoodSearch as your  home page, as a Favorite or 
download their toolbar or just their  search box. All you have to do is just 
USE it.
 
But don't stop there. Forward this to everyone on your address  list who 
you think would be willing to help your cause out. We should  be able to 
quickly get hundreds of people using this and it won't cost  them a cent. Why 
wouldn't you, or they, want to do it? I don't care if  you're searching for the 
best way to pick your nose, we should be  using the heck out of this. It'll 
be easy enough to check with Fergus  to make sure they're getting the 
money. 
 
If you don't want to do this, then all I can say is there is  truly no hope 
for us. 
 
Mike





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RE: [QUAD-L] Unidentified subject!

[e m treston]

 
Is this serious?

  _  

From: Angie Novak [mailto:scaryide...@yahoo.com] 
Sent: Wednesday, July 29, 2009 3:03 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Unidentified subject!


  res://c:\PROGRA~1\Nuance\NATURA~1\Program\web_ie.dll/QMARK.GIF
res://c:\PROGRA~1\Nuance\NATURA~1\Program\web_ie.dll/ARROW.GIF 

TO ALL TC SCS MEMBERS,
 
I remember it was last year or so when somebody out there told me about
GoodSearch.com. I don't remember the story anymore but it seems to me that I
checked with national on it and, whatever happened, it fell by the wayside.
Well now I've just heard about it again from Stephanie at our North Carolina
chapter. SCS is signed up on it and it is available to us as an excellent
source of fundraising.
 
Here's the deal. GoodSearch.com is a search engine that pays money back to
your designated charity every time you use it. So every time you do an
internet search for something, use GoodSearch instead of Google or Yahoo or
whatever. For every search you do they'll pay a penny or so to SCS. That may
not sound like much but it will add up, if we use it! THIS IS A NO-BRAINER
FOLKS!!! If you're looking stuff up on the internet you're using a search
engine so just use the one that will help us fund a cure. 
 
It's simple to do. Go to www.goodsearch.com http://www.goodsearch.com/ .
You'll see the search box and then you'll see the box to choose your
charity. Type in Spinal Cord Society (open up your internet browser in
another window and do this with me now), check to see it's the Fergus Falls
SCS then click 'verify'. Now every time you go to GoodSearch, SCS will be
preset and all you have to do is start your searches to make us some money.
There is also an 'amount raised' button so you can see just how much money
is being raised. This money gets sent right to Fergus Falls.
 
You'll also see GoodShop.com right below that. Do your online shopping from
there and it'll do the same thing to make even more money. AGAIN, THIS IS A
NO-BRAINER! You can set GoodSearch as your home page, as a Favorite or
download their toolbar or just their search box. All you have to do is just
USE it.
 
But don't stop there. Forward this to everyone on your address list who you
think would be willing to help your cause out. We should be able to quickly
get hundreds of people using this and it won't cost them a cent. Why
wouldn't you, or they, want to do it? I don't care if you're searching for
the best way to pick your nose, we should be using the heck out of this.
It'll be easy enough to check with Fergus to make sure they're getting the
money. 
 
If you don't want to do this, then all I can say is there is truly no hope
for us. 
 
Mike

Re: [QUAD-L] Unidentified subject!

[Eric W Rudd]

probably BUT beware u'll probably get alot of spyware, pennies 4 x-number of 
searches, etc., etc.

Eric W Rudd
c5sc...@gmail.com



  - Original Message - 
  From: e m treston 
  To: quad-list@eskimo.com 
  Sent: Wednesday, July 29, 2009 2:42 PM
  Subject: RE: [QUAD-L] Unidentified subject!



  Is this serious?


--
  From: Angie Novak [mailto:scaryide...@yahoo.com] 
  Sent: Wednesday, July 29, 2009 3:03 PM
  To: quad-list@eskimo.com
  Subject: [QUAD-L] Unidentified subject!


 
TO ALL TC SCS MEMBERS,

I remember it was last year or so when somebody out there told me about 
GoodSearch.com. I don't remember the story anymore but it seems to me that I 
checked with national on it and, whatever happened, it fell by the wayside. 
Well now I've just heard about it again from Stephanie at our North Carolina 
chapter. SCS is signed up on it and it is available to us as an excellent 
source of fundraising.

Here's the deal. GoodSearch.com is a search engine that pays money back 
to your designated charity every time you use it. So every time you do an 
internet search for something, use GoodSearch instead of Google or Yahoo or 
whatever. For every search you do they'll pay a penny or so to SCS. That may 
not sound like much but it will add up, if we use it! THIS IS A NO-BRAINER 
FOLKS!!! If you're looking stuff up on the internet you're using a search 
engine so just use the one that will help us fund a cure. 

It's simple to do. Go to www.goodsearch.com. You'll see the search box 
and then you'll see the box to choose your charity. Type in Spinal Cord Society 
(open up your internet browser in another window and do this with me now), 
check to see it's the Fergus Falls SCS then click 'verify'. Now every time you 
go to GoodSearch, SCS will be preset and all you have to do is start your 
searches to make us some money. There is also an 'amount raised' button so you 
can see just how much money is being raised. This money gets sent right to 
Fergus Falls.

You'll also see GoodShop.com right below that. Do your online shopping 
from there and it'll do the same thing to make even more money. AGAIN, THIS IS 
A NO-BRAINER! You can set GoodSearch as your home page, as a Favorite or 
download their toolbar or just their search box. All you have to do is just USE 
it.

But don't stop there. Forward this to everyone on your address list who 
you think would be willing to help your cause out. We should be able to quickly 
get hundreds of people using this and it won't cost them a cent. Why wouldn't 
you, or they, want to do it? I don't care if you're searching for the best way 
to pick your nose, we should be using the heck out of this. It'll be easy 
enough to check with Fergus to make sure they're getting the money. 

If you don't want to do this, then all I can say is there is truly no 
hope for us. 

Mike 

Re: [QUAD-L] Unidentified subject!

[Quadius]

Like many of the other people on this list, I suffer from low blood pressure
frequently.  It can be dangerous if it is too low.  They have told me that
if it's too low it can affect your kidneys and some other problems.  You
should definitely have a pressure cuff in order to see what's going on.  I
have some medicine here to raise my blood pressure, but I choose not to take
it in less it's absolutely necessary.

Definitely question the doctor as to why you need to take this type of
medication if you don't think it's necessary.
q

On Wed, Apr 1, 2009 at 4:39 PM, Danny Hearn ddh...@sbcglobal.net wrote:





-- 
Quadius
C2-3 incomplete
13 years post injury

RE: [QUAD-L] Unidentified subject!

[Danny Espinoza]

If you don't mind me asking, which medication is it that you're taking?
Craig Hospital put me on some while ago but I believe my general
practitioner Dr. had me stop taking it because my blood pressure was doing
okay. My normal blood pressure is about 130/70 unless I have a bladder
infection which then drops to about 100/60. Another thing I have is Nitro
pills for if I start having an autonomic dysreflexia episode and my blood
pressure skyrockets I put one under my tongue, thank God it hasn't gotten
that bad yet.

Thanks in advance for your reply.

 

Danny Espinoza 26/m/California

Occupation before accident

Network engineer / SR. Network security engineer

What happened:

Broke c2,c6,c7 with doner bone at c2

Traumatic brain injury from blood going to central cortex from spinal cord

not vent dependendent anymore. :]

 

My myspace address -  http://www.myspace.com/dannylnx
http://www.myspace.com/dannylnx

My spinal cord injury support website -  http://spinalcordinjured.net/
http://spinalcordinjured.net/

 

From: Quadius [mailto:quad...@gmail.com] 
Sent: Monday, April 06, 2009 3:32 PM
To: ddh...@sbcglobal.net
Cc: quad-list
Subject: Re: [QUAD-L] Unidentified subject!

 

Like many of the other people on this list, I suffer from low blood pressure
frequently.  It can be dangerous if it is too low.  They have told me that
if it's too low it can affect your kidneys and some other problems.  You
should definitely have a pressure cuff in order to see what's going on.  I
have some medicine here to raise my blood pressure, but I choose not to take
it in less it's absolutely necessary.

Definitely question the doctor as to why you need to take this type of
medication if you don't think it's necessary.
q

On Wed, Apr 1, 2009 at 4:39 PM, Danny Hearn ddh...@sbcglobal.net wrote:






-- 
Quadius
C2-3 incomplete
13 years post injury

Re: [QUAD-L] Unidentified subject!

[Eric W Rudd]

Hi Dan,

Are u having other problems or something?  why all the tests  new meds?  my BP 
runs,  has run, 100/60 w/ no probs.  i came home from rehab on 23 different 
meds i now take 2.  this said, i'm no MD but have 12 yrs 1st hand knowledge ;-p

Eric W Rudd
c5sc...@gmail.com



  - Original Message - 
  From: Danny Hearn 
  To: quad-list@eskimo.com 
  Sent: Wednesday, April 01, 2009 2:29 PM
  Subject: [QUAD-L] Unidentified subject!


hi, all... my family doctor is running a lot of blood tests on me 
at this time, he wants me on more new meds,,, i'm afraid of adding more 
different drugs to my list i already take.  He wants me on some drug to raise 
my blood pressure--( i asked why after almost 12 years of low he said 
low can be bad also and i may feel better?? i have the new script but not taken 
any so far because i need to buy a blood pressure cuff to check with. does it 
make sense to take this??  he wants me on more new meds too-i'm a bit 
afraid of more drugs.

   Dan H.  c-6 

Re: [QUAD-L] Unidentified subject!

[John S.]

I have no fear of toolbars except those that redirect my searches. The yahoo 
toolbar doesn't seem to do this and it is easily turned off by going to tools 
then toolbars and unclicking any toolbars you want to stop running.
I do not like Norton and I feel it is only helpful if it is free. Even then I 
have had computers that just slow down incredibly from running it.
If you are going to purchace a suite of security software go to CNET or ZDNET 
to see what people and experts consider to be the best bang for your buck. You 
should have an anti-virus software running and a firewall. By going to tools 
and then internet options then security you can add sites to your 
restricted site list. This can stop others that use your computer from going to 
sites that have viruses, trojans, and worms. Anti-spyware is an important part 
of your computer defence. Don't be afraid to post questiuons to experts and the 
folks selling computers.

john



- Original Message 
From: David O'Connell [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Sent: Saturday, October 4, 2008 10:49:14 PM
Subject: Re: [QUAD-L] Unidentified subject!


I'm running Vista and AOL.   I have had no real problems except one self 
inflicted one.   Careful loading 'add on' toolbars to your browser.  just say 
'no'.
AZDAVE



On Fri, Oct 3, 2008 at 8:59 AM, Danny Hearn [EMAIL PROTECTED] wrote:

 Hi  All,  I have a question about getting a new computer,  do any of  you buy 
the extra protection such as NORTON or MCAFFEE for your  computer safety OR do 
you think it is safe to just use your server site protection such as provided 
by YAHOO and AOL  so on ???   I am not real sure on this and we are getting a 
new computer, Perhaps I could buy a 3 year security plan PLUS use my Yahoo 
security also to make me have even more protection???  
  Thanks for any idea's ---  
Dan H. 


-- 
AZDAVE @  DAVEOCONNELL.COM



  

Re: [QUAD-L] Unidentified subject!

[DAANOO]

 
Hi Greg,

Congratulations on your new computer?  Is it Vista and do you use  Dragon.  
That kind of worries me because my computer came with Norton and I  have that 
on all of my computers.  I have never heard of Kaspersky.  I  have had two 
computers come with Norton.

I really don't like Vista as it  does not work very well with Dragon 9, 
unless I'm doing something wrong.   Dragon doesn't respond to the commands that 
were no problem with XP
 
Does anyone have any suggestions?  What is the best kind of Bluetooth  
microphone to use with Dragon?
 
I am just using a USB wired microphone that will not let me read the  story.  
The microphone did work for more than a month and all of a sudden  stopped 
working.
 
Thank you for any suggestion that can be given.
Dana
 
In a message dated 10/5/2008 4:17:43 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 Hello all---thanks for the advice on the internet  security issue. My 
server yahoo could not provide security on my new  computer now because the new 
computers are 64 bit and they are not up to  that yet...they only can go up to 
36 bit.. they told me they will  probably upgrade later but the new computers 
are ahead of them. So I  went back to the Best Buy store to get Norton and 
they told me that they  no longer will recommend Norton due to problems, and I 
should get the  newest and best of all called Kaspersky.com.  It cost me $80 
bucks  for 1 year, seems like everything is just a sheme to get more money  
these days !  Anyway I'm up and running on my new pc. and by the  time a year 
goes 
by, yahoo will probably be upgraded to newer  security.  thanks,   Dan  H.


 



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Re: [QUAD-L] Unidentified subject!

[John S.]

I'm aware that many comnputers have Norton or Mcaffee already installed, 
usually as a 90 day trial. I try to go to www.cnet.com, or www.zdnet.com to 
find out which anti-virus and or firewall that they recommend. I attribute my 
last 6 years with win XP being so smooth to my use of the shield. When I used 
Norton and Mcaffee I got viruses and trojans and I would spend a week getting 
my computer back to a near normal behavior. These are only my experience. They 
may have improved but I don't hear security people telling others to go get 
Norton or Mcaffee. I think if you feel protected and you stay backed up, then 
whatever you use is fine. 
It is just my opinion, and y'all know it ain't always worth what you pay me :D
 
I certainly wish you all the very best.
john



- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, October 3, 2008 10:41:49 PM
Subject: Re: [QUAD-L] Unidentified subject!

My latest computer came with Norton.
Dana





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Events, News  more. Try it out!


  

Re: [QUAD-L] Unidentified subject!

[lindakrn]

I also have used the free AVG several years now  not had any problems.
Lindaf

Re: [QUAD-L] Unidentified subject!

[David O'Connell]

I'm running Vista and AOL.   I have had no real problems except one self
inflicted one.   Careful loading 'add on' toolbars to your browser.  just
say 'no'.
AZDAVE


On Fri, Oct 3, 2008 at 8:59 AM, Danny Hearn [EMAIL PROTECTED] wrote:

 * Hi  All,  I have a question about getting a new computer,  do any of
 you buy the extra protection such as NORTON or MCAFFEE for your  computer
 safety OR do you think it is safe to just use your server site protection
 such as provided by YAHOO and AOL  so on ???   I am not real sure on this
 and we are getting a new computer, Perhaps I could buy a 3 year security
 plan PLUS use my Yahoo security also to make me have even more
 protection???  *
 *  Thanks for any idea's
 ---  Dan H.*




-- 
AZDAVE @  DAVEOCONNELL.COM

Re: [QUAD-L] Unidentified subject!

[wheelchair]

Yes, by all means.  This is most important if you purchase anything  but a 
MAC computer.
Most to all of those nasty viruses are designed to attack the PC platform  
and you need that protection.
Perhaps the seller will bundle in that software with the sale.  You  only 
have to ask.
 
Best Wishes
 
 
In a message dated 10/3/2008 11:00:09 A.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

 Hi  All,  I have a question about getting a  new computer,  do any of  you 
buy the extra protection such as  NORTON or MCAFFEE for your  computer safety 
OR do you think it is  safe to just use your server site protection such as 
provided by YAHOO  and AOL  so on ???   I am not real sure on this and we  are 
getting a new computer, Perhaps I could buy a 3 year security plan  PLUS use my 
Yahoo security also to make me have even more  protection???  
   Thanks for any idea's  --- 
  Dan  H.





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challenges?  Check out WalletPop for the latest news and information, tips and 
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Re: [QUAD-L] Unidentified subject!

[RONALD L PRACHT]

Dan,
 
you cant use the yahoo virus protection with other virus protections, they will 
conflict with each other. I was told by a computer guy that the yahoo virus 
protection is adequate, I used to buy norton every year before I got yahoo 
highspeed with the virus protection. 
 
 
ron c7

Re: [QUAD-L] Unidentified subject!

[John S.]

It certainly isn't safe without something but I don't like Mcaffee or Norton. I 
use the shield but If I had a computer that needed protection, AVG works very 
good with a free copy of zonealarm. 

If you don't feel safe you probably aren't.

john



- Original Message 
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, October 3, 2008 11:59:45 AM
Subject: [QUAD-L] Unidentified subject!


 Hi  All,  I have a question about getting a new computer,  do any of  you buy 
the extra protection such as NORTON or MCAFFEE for your  computer safety OR do 
you think it is safe to just use your server site protection such as provided 
by YAHOO and AOL  so on ???   I am not real sure on this and we are getting a 
new computer, Perhaps I could buy a 3 year security plan PLUS use my Yahoo 
security also to make me have even more protection???  
  Thanks for any idea's ---  
Dan H. 


  

Re: [QUAD-L] Unidentified subject!

[DAANOO]

My latest computer came with Norton.
Dana



**New MapQuest Local shows what's happening at your destination.  
Dining, Movies, Events, News  more. Try it out!  
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Re: [QUAD-L] Unidentified subject!

[DAANOO]

 

So sorry David.  I know many couples are in that situation.   There must be 
some kind of law for divided assets if you go to a attorney to  work this out.  
You need a disability attorney I think.
To set up some  kind of way for you to not count her income as yours, so this 
will not keep you  from being on the waiver.  I'm sure somebody on the list 
will know  how.
Dana

In a message dated 11/23/2007 9:54:57 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:


 

Curious to know if any of you are suffering from a  syrnix?  I've had on for 
over 2 years and very afraid to do anything  about it.  The reason for this is 
that it is located in the C2 to C5 area  and I'm deathly afraid of ending up 
on a vent or with a trach.  Other  then increased numbness and some 
nueropathic pain, I've been able to control  it with neurontin and darvacet.  

Since I'm only 4'6 and probably  weigh 150 and my wife who is only 4 foot 
tall and only weighs about 112 and  she is really concerned that if I get much 
worse she will not be able to  handle me.  The major problems that we have is 
transfers into the bed,  shower and commode.  I do have a ceiling lift which 
makes it a little  easier, however rolling me from on side to the other can 
wear 
my wife out as  well hurt her back.  I'm able to stand up with the aid of a 
platform  walker to get into my commode but i cant get out or into my 
wheelchair 
on my  own.  The reason for this is because during my last surgery, I had a 
mini  stroke that affected my left side and the syrnix also affects it.  I've  
been trying to find a way that i could get some p/t help to assist my weary  
wife who works on an average of 35 hrs a week. With the income I make from  
SSDI and the monies she makes  we do not qualify for the Home Community  Wavier 
program or the IHSS program.  So you see if I get much worse I  might have to 
go to a assisted living facility or nursing home which would  drive me nuts 
since I'm only 50.

It's really sad that when people  become disabled at such a young age that 
instead of giving assistance to all  that need it they want you to become 
disatute prior to giving you help.   Knowing how much work my wife does for me 
in a 
days time and then she goes and  puts in another 8 hours at a local retail 
store, I don't know how she keeps  from going nuts or maybe she does and just 
hides itt well.  If I lost her  I don't know how I'd carry on.  

If any of you are going through  living life with a Syrnix, please respond so 
that we can compare  notes.


David B.  





 

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(http://us.rd.yahoo.com/evt=51438/*http://www.yahoo.com/r/hs)  


 



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Re: [QUAD-L] Unidentified subject!

[John S.]

She has her provider number but believe it or not the company that oversees 
waiver in Ohio has a special office with one lady in charge of over 1300 
independants in this part of the state. They aren't all waiver. Some are just 
house cleaners for elderly people. I've met some others on waiver. Its an 
abused system. Theres a blind lady that drives. A wealthy politician who's 
autistic 3year old gets 60 hours of care a week so his wife can be vice 
president of the historical society. One guy is simply diabetic and gets 35 
hours a week. now I'm reading where it could take 6 weeks for her first pay 
check. Then again, I only qualify for 15 hours. I use to get 30 hours but they 
did an audit and told me was abusing the system. 

john


- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!


Wow, the waiver pays 13.01 and hour for independent providers in MD. The 
paperwork constantly changes.  Do you have some sort of coordinator to help you 
through it?
 
 
 
Stacy


- Original Message 
From: KK [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS


In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid 
minimum
wage.

Never hired my own so don't know anything about that part.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets to the end, the faster it goes...





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Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.
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RE: [QUAD-L] Unidentified subject!

[RollinOn]

That's one of the hardest obstacles to get past when you're hiring an aide,
the wait time for them to get paid is just too long for some people and who
can blame them?
The system is so overly abused it's disgusting but it's the government so
what can you expect?
 
 

Mark Jackson

   RollinOn

 

 

   _  

From: John S. [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, September 26, 2007 4:19 PM
To: Stacy Harim; quad-list@eskimo.com
Subject: Re: [QUAD-L] Unidentified subject!


She has her provider number but believe it or not the company that oversees
waiver in Ohio has a special office with one lady in charge of over 1300
independants in this part of the state. They aren't all waiver. Some are
just house cleaners for elderly people. I've met some others on waiver. Its
an abused system. Theres a blind lady that drives. A wealthy politician
who's autistic 3year old gets 60 hours of care a week so his wife can be
vice president of the historical society. One guy is simply diabetic and
gets 35 hours a week. now I'm reading where it could take 6 weeks for her
first pay check. Then again, I only qualify for 15 hours. I use to get 30
hours but they did an audit and told me was abusing the system. 
 
john


- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!


Wow, the waiver pays 13.01 and hour for independent providers in MD. The
paperwork constantly changes.  Do you have some sort of coordinator to help
you through it?
 
 
 
Stacy


- Original Message 
From: KK [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS


In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid
minimum
wage.

Never hired my own so don't know anything about that part.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets to the end, the faster it goes...


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No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.488 / Virus Database: 269.13.31/1031 - Release Date: 9/26/2007
12:12 PM



No virus found in this outgoing message.
Checked by AVG Free Edition. 
Version: 7.5.488 / Virus Database: 269.13.31/1031 - Release Date: 9/26/2007
12:12 PM
 

Re: [QUAD-L] Unidentified subject!

[Stacy Harim]

That is a shame.  I was getting 6 a day.  I have lived alone as well.  I didn't 
use them all and now need them increased bc of the fusion limits me more.  I 
won't need them probably more than 6 months after I get rehab I will be able to 
do more and will lprobably be more independent with my transfers again once I 
relearn my balance.  It's really off bc of the amount of spinal fusions.  I 
also need to regain strenght after being in bed since May except the 3 weeks I 
had in rehab until my flap opened up.  It has taken me forever to wait for the 
hours and hopefully next week, I will be able to finally get up when I get the 
help.  I was given a really hard time bc my mom is my paid caregiver but lives 
25 miles away.  6 hours isn't enough time do help me get dressed, help 
w/errands, clean, etc. By the time I get washed up and dressed, it would be 
time for me to go back to bed before she goes and would have no time for 
anything else.

It's a shame how overworked these people are and how we have to wait for them 
to get the papers pushed.  I got really spoiled with my old coordinator.  She 
was working and going to nursing school while really on top of getting what I 
need.  I have to wait sometimes over a week for my new one to call me back.

Hoping to at least get outside next week.  I'm going crazy in this stuffy 
house.  Thank God for the antideppresants because I have only spoken to a 
couple of friends and have had one visit since the beg of aug.  My friends are 
busy with their amilies and its still busy in the restaurants here since the 
weather is holding out here at the beach.  I am hoping I can make the transfer 
into the van so I can get away for a little bit to at least see them where they 
bartend at. There is a lot more to hold on to and the transfer is short so I 
pray when I try, it works out for me.  I want to be able to drive myself to my 
rehab so I don't have to deal with medical transportation.  Especially to 
Baltimore 3 hours away.  Medical transportation picks me up before dark and 
gets me home well after since I am first picked up and last droppped off since 
I live the furthest east.  They take loads of people to Baltimore each day and 
its a nighmare.

Anyhow, It hurts my heart to know that a lot of you are worse off than me and 
cant get the help you need.  I know I can get better since I still have use 
ofmy arms and wonnt need so much permantly.  All I can say is that I'm lucky to 
live in a good state willing to give the help if you can find the resources bc 
they aren't exactly offered unless you get in touch with the right people.

Hope things get better for you,
Stacy


- Original Message 
From: John S. [EMAIL PROTECTED]
To: Stacy Harim [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 5:19:13 PM
Subject: Re: [QUAD-L] Unidentified subject!


She has her provider number but believe it or not the company that oversees 
waiver in Ohio has a special office with one lady in charge of over 1300 
independants in this part of the state. They aren't all waiver. Some are just 
house cleaners for elderly people. I've met some others on waiver. Its an 
abused system. Theres a blind lady that drives. A wealthy politician who's 
autistic 3year old gets 60 hours of care a week so his wife can be vice 
president of the historical society. One guy is simply diabetic and gets 35 
hours a week. now I'm reading where it could take 6 weeks for her first pay 
check. Then again, I only qualify for 15 hours. I use to get 30 hours but they 
did an audit and told me was abusing the system. 
 
john


- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!


Wow, the waiver pays 13.01 and hour for independent providers in MD. The 
paperwork constantly changes.  Do you have some sort of coordinator to help you 
through it?
 
 
 
Stacy


- Original Message 
From: KK [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS


In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid 
minimum
wage.

Never hired my own so don't know anything about that part.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets to the end, the faster it goes...





Be a better Globetrotter. Get better travel answers from someone who knows.
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Re: [QUAD-L] Unidentified subject!

[Stacy Harim]

It is a shame.  I've seen people really needing disability such as a girl I 
knew years ago that had AIDS but someone that has bi polar can get it in a 
heartbeat.  If they took their meds, then a lot of them would be fine.  My 
brother for example took the meds, felt better then stopped.  People take from 
the system then work under the table so they get both.  It really works my 
nervs.  That amognst so many other things such as Medicare wouldn't cover a gel 
overlay for my cushion so my sore got worse.  5 surgeries and an extreme amount 
of homehealth to monitor the sore including 400 bucks for a roho cushion is 
crazy.  I wouldn't have to had suffer and they wouldn't have had to pay so much 
if they would have just forked over the 170 for what I needed in the first 
place.  Now my blood pressure just rose. hehe.  

If I were queen of the world
Stacy


- Original Message 
From: RollinOn [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; Stacy Harim [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 5:33:14 PM
Subject: RE: [QUAD-L] Unidentified subject!


That's one of the hardest obstacles to get past when you're hiring an aide, the 
wait time for them to get paid is just too long for some people and who can 
blame them?
The system is so overly abused it's disgusting but it's the government so what 
can you expect?
 
 
Mark Jackson 
   RollinOn
 
 




From: John S. [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, September 26, 2007 4:19 PM
To: Stacy Harim; quad-list@eskimo.com
Subject: Re: [QUAD-L] Unidentified subject!


She has her provider number but believe it or not the company that oversees 
waiver in Ohio has a special office with one lady in charge of over 1300 
independants in this part of the state. They aren't all waiver. Some are just 
house cleaners for elderly people. I've met some others on waiver. Its an 
abused system. Theres a blind lady that drives. A wealthy politician who's 
autistic 3year old gets 60 hours of care a week so his wife can be vice 
president of the historical society. One guy is simply diabetic and gets 35 
hours a week. now I'm reading where it could take 6 weeks for her first pay 
check. Then again, I only qualify for 15 hours. I use to get 30 hours but they 
did an audit and told me was abusing the system. 
 
john


- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!


Wow, the waiver pays 13.01 and hour for independent providers in MD. The 
paperwork constantly changes.  Do you have some sort of coordinator to help you 
through it?
 
 
 
Stacy


- Original Message 
From: KK [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS


In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid 
minimum
wage.

Never hired my own so don't know anything about that part.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets to the end, the faster it goes...





Be a better Globetrotter. Get better travel answers from someone who knows.
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No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.488 / Virus Database: 269.13.31/1031 - Release Date: 9/26/2007 
12:12 PM



No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.488 / Virus Database: 269.13.31/1031 - Release Date: 9/26/2007 
12:12 PM


   

Be a better Globetrotter. Get better travel answers from someone who knows. 
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Re: [QUAD-L] Unidentified subject!

[wheelchair]

 
In a message dated 9/26/2007 5:37:27 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

I  wouldn't have to had suffer and they wouldn't have had to pay so much if 
they  would have just forked over the 170 for what I needed in the first  
place.  Now my blood pressure just rose. hehe.  
 
If I  were queen of the world
Stacy




Sometimes, you have to put it in writing and receive an official NO.   Then 
later go back in writing with prove and the closing, I believe I told you  
so.  This is an issue that will be discussed in detail at our State  
Convention 
this November with our State Law Makers and Advocates.  It's an  ongoing issue.
Best Wishes



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Re: [QUAD-L] Unidentified subject!

[John S.]

I think there is a limit to how much people can stand being around me. You 
sound all sweet and fuzzy. I'm like a broken frankenstien toy with pieces 
falling off. I print up messages from phone calls and nobody figures them out. 
One aide said I was a 3-D puzzle with missing pieces. 

Just laugh and go beg some money downtown so I can give her something to live 
on.

john



- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 6:30:37 PM
Subject: Re: [QUAD-L] Unidentified subject!


That is a shame.  I was getting 6 a day.  I have lived alone as well.  I didn't 
use them all and now need them increased bc of the fusion limits me more.  I 
won't need them probably more than 6 months after I get rehab I will be able to 
do more and will lprobably be more independent with my transfers again once I 
relearn my balance.  It's really off bc of the amount of spinal fusions.  I 
also need to regain strenght after being in bed since May except the 3 weeks I 
had in rehab until my flap opened up.  It has taken me forever to wait for the 
hours and hopefully next week, I will be able to finally get up when I get the 
help.  I was given a really hard time bc my mom is my paid caregiver but lives 
25 miles away.  6 hours isn't enough time do help me get dressed, help 
w/errands, clean, etc. By the time I get washed up and dressed, it would be 
time for me to go back to bed before she goes and would have no time for 
anything else.
 
It's a shame how overworked these people are and how we have to wait for them 
to get the papers pushed.  I got really spoiled with my old coordinator.  She 
was working and going to nursing school while really on top of getting what I 
need.  I have to wait sometimes over a week for my new one to call me back.
 
Hoping to at least get outside next week.  I'm going crazy in this stuffy 
house.  Thank God for the antideppresants because I have only spoken to a 
couple of friends and have had one visit since the beg of aug.  My friends are 
busy with their amilies and its still busy in the restaurants here since the 
weather is holding out here at the beach.  I am hoping I can make the transfer 
into the van so I can get away for a little bit to at least see them where they 
bartend at. There is a lot more to hold on to and the transfer is short so I 
pray when I try, it works out for me.  I want to be able to drive myself to my 
rehab so I don't have to deal with medical transportation.  Especially to 
Baltimore 3 hours away.  Medical transportation picks me up before dark and 
gets me home well after since I am first picked up and last droppped off since 
I live the furthest east.  They take loads of people to Baltimore each day and 
its a nighmare.
 
Anyhow, It hurts my heart to know that a lot of you are worse off than me and 
cant get the help you need.  I know I can get better since I still have use 
ofmy arms and wonnt need so much permantly.  All I can say is that I'm lucky to 
live in a good state willing to give the help if you can find the resources bc 
they aren't exactly offered unless you get in touch with the right people.
 
Hope things get better for you,
Stacy


- Original Message 
From: John S. [EMAIL PROTECTED]
To: Stacy Harim [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 5:19:13 PM
Subject: Re: [QUAD-L] Unidentified subject!


She has her provider number but believe it or not the company that oversees 
waiver in Ohio has a special office with one lady in charge of over 1300 
independants in this part of the state. They aren't all waiver. Some are just 
house cleaners for elderly people. I've met some others on waiver. Its an 
abused system. Theres a blind lady that drives. A wealthy politician who's 
autistic 3year old gets 60 hours of care a week so his wife can be vice 
president of the historical society. One guy is simply diabetic and gets 35 
hours a week. now I'm reading where it could take 6 weeks for her first pay 
check. Then again, I only qualify for 15 hours. I use to get 30 hours but they 
did an audit and told me was abusing the system. 
 
john


- Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!


Wow, the waiver pays 13.01 and hour for independent providers in MD. The 
paperwork constantly changes.  Do you have some sort of coordinator to help you 
through it?
 
 
 
Stacy


- Original Message 
From: KK [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS


In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid 
minimum
wage.

Never hired my own so don't know anything about that part.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets

Re: [QUAD-L] Unidentified subject!

[Danny Hearn]

SO TRUE STACY...SO MANY COLLECT THAT ARE ABLE BODIED AND SHOULD BE WORKING, 
I KNOW OF 3 DIFFERENT PEOPLE THAT GET IT AND ALL 3 SMOKE CIGARETTS, TAKE DRUGS 
AND ARE ALCOHOLICS.   TO ME IT SEEMS WE PAY THEM SO THEY CAN LAY AROUND AND 
PARTY,, THEN THE REAL DISABLED FOLKS LIKE ALL OF US SOMETIMES HAVE A HARD TIME 
JUST GETTING HELP MANY TIMES.
   DAN

Stacy Harim [EMAIL PROTECTED] wrote:
  It is a shame.  I've seen people really needing disability such as a 
girl I knew years ago that had AIDS but someone that has bi polar can get it in 
a heartbeat.  If they took their meds, then a lot of them would be fine.  My 
brother for example took the meds, felt better then stopped.  People take from 
the system then work under the table so they get both.  It really works my 
nervs.  That amognst so many other things such as Medicare wouldn't cover a gel 
overlay for my cushion so my sore got worse.  5 surgeries and an extreme amount 
of homehealth to monitor the sore including 400 bucks for a roho cushion is 
crazy.  I wouldn't have to had suffer and they wouldn't have had to pay so much 
if they would have just forked over the 170 for what I needed in the first 
place.  Now my blood pressure just rose. hehe.  
   
  If I were queen of the world
  Stacy


  - Original Message 
From: RollinOn [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; Stacy Harim [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 5:33:14 PM
Subject: RE: [QUAD-L] Unidentified subject!

  DIV {  MARGIN:0px;}  That's one of the hardest obstacles to get past when 
you're hiring an aide, the wait time for them to get paid is just too long for 
some people and who can blame them?
  The system is so overly abused it's disgusting but it's the government so 
what can you expect?
   
   
Mark Jackson 
 RollinOn
   

   


-
  From: John S. [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, September 26, 2007 4:19 PM
To: Stacy Harim; quad-list@eskimo.com
Subject: Re: [QUAD-L] Unidentified subject!


  
She has her provider number but believe it or not the company that oversees 
waiver in Ohio has a special office with one lady in charge of over 1300 
independants in this part of the state. They aren't all waiver. Some are just 
house cleaners for elderly people. I've met some others on waiver. Its an 
abused system. Theres a blind lady that drives. A wealthy politician who's 
autistic 3year old gets 60 hours of care a week so his wife can be vice 
president of the historical society. One guy is simply diabetic and gets 35 
hours a week. now I'm reading where it could take 6 weeks for her first pay 
check. Then again, I only qualify for 15 hours. I use to get 30 hours but they 
did an audit and told me was abusing the system. 
   
  john


  - Original Message 
From: Stacy Harim [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!

Wow, the waiver pays 13.01 and hour for independent providers in MD. The 
paperwork constantly changes.  Do you have some sort of coordinator to help you 
through it?
   
   
   
  Stacy


  - Original Message 
From: KK [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS

  In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid 
minimum
wage.

Never hired my own so don't know anything about that part.


KK

Remember: life is like a roll of toilet paper. 
The closer it gets to the end, the faster it goes...

  



  
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Yahoo! Answers - Check it out. 
  



  
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  Moody friends. Drama queens. Your life? Nope! - their life, your story.
Play Sims Stories at Yahoo! Games. 

Re: [QUAD-L] Unidentified subject!

[Stacy Harim]

I saved all of the medicare copies of what they paid out. When I'm up to it,I 
plan to copy them and send them to my representatives to say the least.  I need 
to research who else I may be able to send them to.  I knew what I was doing 
with each letter I saved. I don't know if it will change anything but its worth 
a shot.

Stacy


- Original Message 
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Sent: Wednesday, September 26, 2007 6:56:10 PM
Subject: Re: [QUAD-L] Unidentified subject!


In a message dated 9/26/2007 5:37:27 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
I wouldn't have to had suffer and they wouldn't have had to pay so much if they 
would have just forked over the 170 for what I needed in the first place.  Now 
my blood pressure just rose. hehe.  
 
If I were queen of the world
Stacy

Sometimes, you have to put it in writing and receive an official NO.  Then 
later go back in writing with prove and the closing, I believe I told you so. 
 This is an issue that will be discussed in detail at our State Convention this 
November with our State Law Makers and Advocates.  It's an ongoing issue.
Best Wishes






See what's new at AOL.com and Make AOL Your Homepage.


   

Be a better Globetrotter. Get better travel answers from someone who knows. 
Yahoo! Answers - Check it out.
http://answers.yahoo.com/dir/?link=listsid=396545469

Re: [QUAD-L] Unidentified subject!

[LINDA FERRELL]

Hey Rob welcome back!
Lindaf

Re: [QUAD-L] Unidentified subject!

[David K. Kelmer]

Hi Stacy,I'm glad to hear your surgery went well. They always look big the first few times you see them but it sounds like they did a good job. I will keep you in my prayers. Get feeling better soon and remember we all are with you as your rehabbing your cute butt. Stay strong.With Love,  CtrlAltDel aka DaveC4/5 Complete - 30 Years PostTexas, USA Stacy Harim [EMAIL PROTECTED]
 wrote:Hey everyone,  I just found out from one of the nurses that I could sign on as a guest through their internet connection since that is all my lap top is picking up. I found that pretty exciting.  My surgery was Wed. morning and I just saw the doctor this morning. He said he would send me out of here probably on Monday but I really am considering a rehab hospital. First I will tell you that it does hurt but the pain is finally treatable through the pain pump. I think its something like dylantin. I'm not sure how its spelled but my skin breaks out in reaction to morphine (burning, turns red.) I saw the flap. It's big but does look good. There is a little dark area close to a couple of the staples but the doctor isn't worried about it. It hasnt gotten
 any worse. I just can'tbelieve how bit the incision is for this. Its from close to my anus to close to my knee on the back. He didn't take any skin from anywhere else either which is a plus for me.  The care could be better. I wonder somedays if I would be better off at home because I feel like I'm not getting it here. Last night my catheter leaked so my bed was wet. The cna came in to change it Then it leaked again, just then I knew that it was clogged and it was about time to change it anyhow so I told them I needed a new one. They didn't have the size I needed on this floor and waited for transport to bring it up. He came up an hour later but never got the message about the catheter. I just kept leaking, sitting in a mess. I finally got it a couple of hours after that and I still needed to do my bowel program. I brought the magic bullets with me but things didn't run smoothly. I
 usually go every 3 days considering since I went on Tues., I tried last night. I waited a longtime and nothing. The only thing that did come out was the suppository. I normally go sitting up and change fo diet/meds. I ended up going a couple of hours later but didn't empty. Has this happened to anyone else after doing your bowel program sitting up for so long?  So the patient care whatever's started pushing me out of the door before I could even act like myself. Asking if I were going home or not. The doctor said they asked him 5 times and he said no that he is keeping me. Anyhow I am pretty sure that I will go to a rehab facility but it's a matter of who has a bed. I might have to turn one down. This hospital is rated one of the top 100 but I don't see how with the nursing. Some are nice but the majority aren't really helpling that much. I rarely see them to tell you the truth. I then
 have a few great ones who do everything that they can. Iknow in rehab facilities and nursing homes, the nurses are more underpaid here so there is a shortalge so they are pretty thinned out. I have the weekend to think about it. The mattress was ordered by the case/social worker and can always be cancelled.  All in all, so far health wise I am doing great. Way better than I expected.   Stacy 

Re: [QUAD-L] Unidentified subject!

[RollinOn]

Hey Stacy,
Glad you're on-lineand the surgery went good.
As far as your care goes try to find a nurse you're comfortable with and be vocal with her.
I found just being very talkativedoes wonders becausea lot of peoplejust don't understand paralysis and are really lost about your care so theirmost common way todeal with it is to not deal at all so just strike up an everyday conversation, it opens their eyes and mind.


Mark

---Original Message---


From: Stacy Harim
Date: 06/03/06 15:41:32
To: Quad-List@eskimo.com
Subject: [QUAD-L] Unidentified subject!



Hey everyone,
I just found out from one of the nurses that I could sign on as a guest through their internet connection since that is all my lap top is picking up. I found that pretty exciting.
My surgery was Wed. morning and I just saw the doctor this morning. He said he would send me out of here probably on Monday but I really am considering a rehab hospital. First I will tell you that it does hurt but the pain is finally treatable through the pain pump. I think its something like dylantin. I'm not sure how its spelled but my skin breaks out in reaction to morphine (burning, turns red.) I saw the flap. It's big but does look good. There is a little dark area close to a couple of the staples but the doctor isn't worried about it. It hasnt gotten any worse. I just can'tbelieve how bit the incision is for this. Its from close to my anus to close to my knee on the back. He didn't take any skin from anywhere else either which is a plus for me.
The care could be better. I wonder somedays if I would be better off at home because I feel like I'm not getting it here. Last night my catheter leaked so my bed was wet. The cna came in to change it Then it leaked again, just then I knew that it was clogged and it was about time to change it anyhow so I told them I needed a new one. They didn't have the size I needed on this floor and waited for transport to bring it up. He came up an hour later but never got the message about the catheter. I just kept leaking, sitting in a mess. I finally got it a couple of hours after that and I still needed to do my bowel program. I brought the magic bullets with me but things didn't run smoothly. I usually go every 3 days considering since I went on Tues., I tried last night. I waited a longtime and nothing. The only thing that did come out was the suppository. I normally go sitting up and change fo diet/meds. I ended up going a couple of hours later but didn't empty. Has this happened to anyone else after doing your bowel program sitting up for so long?
So the patient care whatever's started pushing me out of the door before I could even act like myself. Asking if I were going home or not. The doctor said they asked him 5 times and he said no that he is keeping me. Anyhow I am pretty sure that I will go to a rehab facility but it's a matter of who has a bed. I might have to turn one down. This hospital is rated one of the top 100 but I don't see how with the nursing. Some are nice but the majority aren't really helpling that much. I rarely see them to tell you the truth. I then have a few great ones who do everything that they can. Iknow in rehab facilities and nursing homes, the nurses are more underpaid here so there is a shortalge so they are pretty thinned out. I have the weekend to think about it. The mattress was ordered by the case/social worker and can always be cancelled.
All in all, so far health wise I am doing great. Way better than I expected. 
Stacy 

Re: [QUAD-L] Unidentified subject!

[MikeyBird3]

In a message dated 11/15/2005 5:02:59 PM Eastern Standard Time, 
[EMAIL PROTECTED] writes:

  testing

You passed 

BillLeesburg, 
FLC-6 Incomplete since 7/20/68AOL/AIM ID: MikeyBird3Stupidity is NOT 
a handicap! Park 
elsewhere!

Re: [QUAD-L] Unidentified subject!

[David K. Kelmer]

Hi QP,

That sure iswell paying work. :)
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA QuadPirate [EMAIL PROTECTED] wrote:






John check this out.
This is 1 waythey pay people in Iraq!

Willis served as a senior adviser on aviation and communications matters for the CPA during the last half of 2003 and said he was responsible for the operation of Baghdad's airport. 
Describing the transfer of $2 million to one contractor's gunnysack, Willis said: "It was time for payment. We told them to come in and bring a bag." He said the money went to Custer Battles of Middletown, R.I., for providing airport security in Baghdad for civilian passengers.
http://abcnews.go.com/Politics/wireStory?id=496199page=2
See the problem.

Mark


---Original Message---


From: [EMAIL PROTECTED]
Date: 06/13/05 15:06:55
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Sorry

I honestly checked this out. I wondered why would they give a company such a contract without bidding. Haliburton only has one competitor that might be able to bid against them. It seems Bechtel declined the offer to bid on Iraq. 
(Remember, we didn't want to let foreign companies in on the action.)

john

RE: [QUAD-L] Unidentified subject!

[Eric W Rudd]

Title: Message




List-Post: mailto:quad-list@eskimo.com
List-Help: mailto:[EMAIL PROTECTED]
List-Subscribe: mailto:[EMAIL PROTECTED]
List-Unsubscribe: mailto:[EMAIL PROTECTED]
Digest-Subscribe: mailto:[EMAIL PROTECTED]
Digest-Unsubscribe: mailto:[EMAIL PROTECTED]
URL: http://www.makoa.org/quadlist.htm


Eric W Rudd
[EMAIL PROTECTED]

  
  -Original Message-From: Philip Pearson 
  [mailto:[EMAIL PROTECTED] Sent: Wednesday, February 23, 2005 
  9:07 AMTo: quad-list@eskimo.comSubject: [QUAD-L] 
  Unidentified subject!
  I would like to cancel my input but cannot find the website 
  Please help
  Philip Pearson

Re: [QUAD-L] Unidentified subject!

[Jerre Dowty]

Thank you so much, Dave! You can never have too much positive energy or too many prayers. I'm hoping to hear from the doctor today.

Love ya,
Jerre

---Original Message---


From: David K. Kelmer
Date: 10/27/04 22:49:23
To: Jerre Dowty; Quadlist
Subject: Re: [QUAD-L] Unidentified subject!

Hi Jerre,

I hope when you get those tests back they'll find the problem and get it taken care of! I'll cross my fingers, send you positive energy, and say a prayer. 

With Love,

CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA Jerre Dowty [EMAIL PROTECTED] wrote:







Hi Dave!

I'm having the bone scan tomorrow but they told me it didn't involve atube...ha! I don't mind the enclosurehaving an MRI, but I have too much body to squeeze comfortably through an MRI tube! I'm just hoping theywill diagnose something that can be fixed or at least treated! I cannot continue taking 6 pain killers a day just to exist. Please cross your fingers that it isn't a result of our increasing ageAs I turned 52 this year. I will let ya'll all know the results when I get them. I assume it will take a few days to get the results back.

I am also in good shape for the shape I'm in (9 years post)!

Love ya back,
Jerre

---Original Message---


From: David K. Kelmer
Date: 10/21/04 14:33:04
To: Jerre Dowty; Quadlist
Subject: Re: [QUAD-L] Unidentified subject!

Hi Jerre,

Was the full body scan a MRI? I have noticed my pain has been getting worse in the past few years, but I know most of it is because after my right leg was removed in '89 my body has started to warp. It must be that because I'm ONLY 51...still young at heart. For the shape I'm in...I'm in good shape!

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA Jerre Dowty [EMAIL PROTECTED] wrote:






Hey guys!
I'm looking for someone who can tell me what is wrong with me. For several months I have been having pain in my left knee and hip. It has progressively become worse to the point it is not tolerable. I am taking Hydrocodone 5mg/325 for the pain now. The doctor thought maybe it was neuropathic and gave me some Lidoderm patches to try. That didn't do anything for it. So next he took x-rays of my knee and hip from every direction imaginable. They showed nothing except poor bone density (big surprise..haha). So next Monday 10/25 for another bone density test and a full body bone scan. I have no pain when I am in bed, but when I am up in my chair it is really bad. My left side is my weak side and I tend to lean that way when I'm in my chair. I'm wondering if it could be connected to the way I sit in my chair.

Has anyone else had similar pain? I am desperate for a diagnosis and treatment. I don't like taking the pain pills everyday butI just can't handle thepain, and I have a pretty high tolerance forpain. HELP!!!

Jerre


all some people need is a hand
tohold and a heart to listen

Jerre K. Dowty
Lady Quad in Texas
[EMAIL PROTECTED]
MSN Messenger - [EMAIL PROTECTED]

Re: [QUAD-L] Unidentified subject!

[David K. Kelmer]

Hi Jerre,

I hope you're feeling okay. Whattestsdid they run on you?Areyou gettingany rain there? We've been cloudy, foggy, with a drop or two of rain today, but the temps are staying warm in the evenings (64F). We need rain but this kind of weather gets my musclestight, so I hope you have sun!

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA .  Jerre Dowty [EMAIL PROTECTED] wrote:






Not yet. I have another series of tests on Monday the 25th.

Jerre

---Original Message---


From: [EMAIL PROTECTED]
Date: 10/17/04 18:23:22
To: [EMAIL PROTECTED]
Cc: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Unidentified subject!


In a message dated 16/10/2004 01:04:27 GMT Standard Time, [EMAIL PROTECTED] writes:

Hey guys!
I'm looking for someone who can tell me what is wrong with me. For several months I have been having pain in my left knee and hip. It has progressively become worse to the point it is not tolerable. I am taking Hydrocodone 5mg/325 for the pain now. The doctor thought maybe it was neuropathic and gave me some Lidoderm patches to try. That didn't do anything for it. So next he took x-rays of my knee and hip from every direction imaginable. They showed nothing except poor bone density (big surprise..haha). So next Monday 10/25 for another bone density test and a full body bone scan. I have no pain when I am in bed, but when I am up in my chair it is really bad. My left side is my weak side and I tend to lean that way when I'm in my chair. I'm wondering if it could be connected to the way I sit in my chair.

Has anyone else had similar pain? I am desperate for a diagnosis and treatment. I don't like taking the pain pills everyday butI just can't handle thepain, and I have a pretty high tolerance forpain. HELP!!!

Jerre

Hi Jerre,

Have you had luck on getting a diagnosis on the problem?

Love Smurf xxx

Re: [QUAD-L] Unidentified subject!

[Jerre Dowty]

Hi Dave!

I'm having the bone scan tomorrow but they told me it didn't involve atube...ha! I don't mind the enclosurehaving an MRI, but I have too much body to squeeze comfortably through an MRI tube! I'm just hoping theywill diagnose something that can be fixed or at least treated! I cannot continue taking 6 pain killers a day just to exist. Please cross your fingers that it isn't a result of our increasing ageAs I turned 52 this year. I will let ya'll all know the results when I get them. I assume it will take a few days to get the results back.

I am also in good shape for the shape I'm in (9 years post)!

Love ya back,
Jerre

---Original Message---


From: David K. Kelmer
Date: 10/21/04 14:33:04
To: Jerre Dowty; Quadlist
Subject: Re: [QUAD-L] Unidentified subject!

Hi Jerre,

Was the full body scan a MRI? I have noticed my pain has been getting worse in the past few years, but I know most of it is because after my right leg was removed in '89 my body has started to warp. It must be that because I'm ONLY 51...still young at heart. For the shape I'm in...I'm in good shape!

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA Jerre Dowty [EMAIL PROTECTED] wrote:







Hey guys!
I'm looking for someone who can tell me what is wrong with me. For several months I have been having pain in my left knee and hip. It has progressively become worse to the point it is not tolerable. I am taking Hydrocodone 5mg/325 for the pain now. The doctor thought maybe it was neuropathic and gave me some Lidoderm patches to try. That didn't do anything for it. So next he took x-rays of my knee and hip from every direction imaginable. They showed nothing except poor bone density (big surprise..haha). So next Monday 10/25 for another bone density test and a full body bone scan. I have no pain when I am in bed, but when I am up in my chair it is really bad. My left side is my weak side and I tend to lean that way when I'm in my chair. I'm wondering if it could be connected to the way I sit in my chair.

Has anyone else had similar pain? I am desperate for a diagnosis and treatment. I don't like taking the pain pills everyday butI just can't handle thepain, and I have a pretty high tolerance forpain. HELP!!!

Jerre


all some people need is a hand
tohold and a heart to listen

Jerre K. Dowty
Lady Quad in Texas
[EMAIL PROTECTED]
MSN Messenger - [EMAIL PROTECTED]

Re: [QUAD-L] Unidentified subject!

[David K. Kelmer]

Hi Jerre,

Was the full body scan a MRI? I have noticed my pain has been getting worse in the past few years, but I know most of it is because after my right leg was removed in '89 my body has started to warp. It must be that because I'm ONLY 51...still young at heart. For the shape I'm in...I'm in good shape!

With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA Jerre Dowty [EMAIL PROTECTED] wrote:






Hey guys!
I'm looking for someone who can tell me what is wrong with me. For several months I have been having pain in my left knee and hip. It has progressively become worse to the point it is not tolerable. I am taking Hydrocodone 5mg/325 for the pain now. The doctor thought maybe it was neuropathic and gave me some Lidoderm patches to try. That didn't do anything for it. So next he took x-rays of my knee and hip from every direction imaginable. They showed nothing except poor bone density (big surprise..haha). So next Monday 10/25 for another bone density test and a full body bone scan. I have no pain when I am in bed, but when I am up in my chair it is really bad. My left side is my weak side and I tend to lean that way when I'm in my chair. I'm wondering if it could be connected to the way I sit in my chair.

Has anyone else had similar pain? I am desperate for a diagnosis and treatment. I don't like taking the pain pills everyday butI just can't handle thepain, and I have a pretty high tolerance forpain. HELP!!!

Jerre


all some people need is a hand
tohold and a heart to listen

Jerre K. Dowty
Lady Quad in Texas
[EMAIL PROTECTED]
MSN Messenger - [EMAIL PROTECTED]

Re: [QUAD-L] Unidentified subject!

[Jerre Dowty]

Not yet. I have another series of tests on Monday the 25th.

Jerre

---Original Message---


From: [EMAIL PROTECTED]
Date: 10/17/04 18:23:22
To: [EMAIL PROTECTED]
Cc: [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Unidentified subject!


In a message dated 16/10/2004 01:04:27 GMT Standard Time, [EMAIL PROTECTED] writes:

Hey guys!
I'm looking for someone who can tell me what is wrong with me. For several months I have been having pain in my left knee and hip. It has progressively become worse to the point it is not tolerable. I am taking Hydrocodone 5mg/325 for the pain now. The doctor thought maybe it was neuropathic and gave me some Lidoderm patches to try. That didn't do anything for it. So next he took x-rays of my knee and hip from every direction imaginable. They showed nothing except poor bone density (big surprise..haha). So next Monday 10/25 for another bone density test and a full body bone scan. I have no pain when I am in bed, but when I am up in my chair it is really bad. My left side is my weak side and I tend to lean that way when I'm in my chair. I'm wondering if it could be connected to the way I sit in my chair.

Has anyone else had similar pain? I am desperate for a diagnosis and treatment. I don't like taking the pain pills everyday butI just can't handle thepain, and I have a pretty high tolerance forpain. HELP!!!

Jerre

Hi Jerre,

Have you had luck on getting a diagnosis on the problem?

Love Smurf xxx

Re: [QUAD-L] Unidentified subject!

[Smurfonwheels]

In a message dated 18/10/2004 19:08:23 GMT Standard Time, 
[EMAIL PROTECTED] writes:

  


  
Not yet. I have another series of tests on Monday the 
25th.

Jerre

Hi Jerre,

Good luck with them, I hope they can give you some answers! keep us 
posted won't you

Love Smurf xxx

Re: [QUAD-L] Unidentified subject!

[Smurfonwheels]

In a message dated 16/10/2004 01:04:27 GMT Standard Time, 
[EMAIL PROTECTED] writes:

  Hey guys!
  I'm looking for someone who can tell me what is wrong with me. For 
  several months I have been having pain in my left knee and hip. It has 
  progressively become worse to the point it is not tolerable. I am taking 
  Hydrocodone 5mg/325 for the pain now. The doctor thought maybe it was 
  neuropathic and gave me some Lidoderm patches to try. That didn't do 
  anything for it. So next he took x-rays of my knee and hip from every 
  direction imaginable. They showed nothing except poor bone density (big 
  surprise..haha). So next Monday 10/25 for another bone density test and 
  a full body bone scan. I have no pain when I am in bed, but when I am up 
  in my chair it is really bad. My left side is my weak side and I tend to 
  lean that way when I'm in my chair. I'm wondering if it could be 
  connected to the way I sit in my chair.
  
  Has anyone else had similar pain? I am desperate for a diagnosis 
  and treatment. I don't like taking the pain pills everyday butI 
  just can't handle thepain, and I have a pretty high tolerance 
  forpain. HELP!!!
  
  Jerre

Hi Jerre,

Have you had luck on getting a diagnosis on the problem?

Love Smurf xxx

Re: [QUAD-L] Unidentified subject!

[Brian Stocker]

I have had huge success with d-mannose as a prophylactic against  UTI's 
I have heard that excess vit c is not much of a deterrent.  Do a search 
of this substance and finf=d both scientific papers and places to buy it.

http://www.healingtherapies.info/D-Mannose.htm
http://www.clearmax.net/
Brian
I recently acquired a UTI and the lab checked the potential of levaquin 
and cipro to cure it.  The tests showed that these 2 drugs no longer 
worked and the doc  had to prescribe something different.  Have many of 
you been through this?

Brian
Jerre Dowty wrote:
 
Tony, I guess it is different for everyone but I never had any feelings 
that something might be wrong.  I had gone about 4 or 5 years without 
going to the Urologist and just figured it was time.  He found them by 
accident because the hospital could not find the x-rays, however, he 
showed me later where they were on the x-rays.  Your Urologist could 
just take x-rays and be able to tell if you have anything growing!  I 
also did some research on bladder stones and discovered that 95% of all 
bladder stones are found in men.  The ones I had were way to big to 
pass.  I drink lots of water so I don't think that effects it.  They are 
formed from acids and chemicals in the body.  Excess Vitamin C is 
probably my problem because I take 2000mg per day.  It was suppose to 
help purify the urine and help prevent UTI's!  Ha! Which is 
worse.UTI's   Bladder stones
 
Jerre 

- Original Message -
From: [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
To: [EMAIL PROTECTED] mailto:[EMAIL PROTECTED] ;
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
Cc: [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
Sent: Monday, September 27, 2004 7:06 PM
Subject: Re: Fw: Re: [QUAD-L] hello every1!
In a message dated 9/27/2004 7:09:52 PM Eastern Standard Time,
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED] writes:
I'm doing great now.  I had pain for a couple of days but now all
is well!  In a couple of years we will do the x-rays again to see
if they have returned.
 
Jerre
 


heyyy Jerre.youb got me thinkin about bladder stones.  I never
realize they could pile up.my bladder, at times, sticks out very
far on the right side of my bellyit's very hard, looks like a
grapefruit in there.  Sometimes it's not so big...strange to me!!  I
hardly ever get UTIs, but i don't drink as much as most quads, and i
wonder if i got stones piled up...got any ideas???
thanks, tony 

 
all some people need is a hand
to hold and a heart to listen
 
Jerre K. Dowty
Lady Quad in Texas
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
MSN Messenger - [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
 
 
 


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Re: [QUAD-L] Unidentified subject!

[Quietstream25322]

 Hi Jerre, I been taking 1000mg vitamin c about 3 times a week because I keep having UTI troubles lately. My Doc said be careful with to much vitamin c or calcium because they can cause stones easily.but he hates to give me any anti-biotics, so I been trying D-mannose which don't seem to be helping much this time and trying to drink more water .. Do you still take the vitamin c ? 
 Thanks, Dan

Re: [QUAD-L] Unidentified subject!

[River Wolfe]

I second that Brian !!!
River
On Sep 29, 2004, at 12:35 PM, Brian Stocker wrote:
I have had huge success with d-mannose as a prophylactic against  
UTI's I have heard that excess vit c is not much of a deterrent.  Do a 
search of this substance and finf=d both scientific papers and places 
to buy it.

http://www.healingtherapies.info/D-Mannose.htm
http://www.clearmax.net/
Brian
I recently acquired a UTI and the lab checked the potential of 
levaquin and cipro to cure it.  The tests showed that these 2 drugs no 
longer worked and the doc  had to prescribe something different.  Have 
many of you been through this?

Brian
Jerre Dowty wrote:
 Tony, I guess it is different for everyone but I never had any 
feelings that something might be wrong.  I had gone about 4 or 5 
years without going to the Urologist and just figured it was time.  
He found them by accident because the hospital could not find the 
x-rays, however, he showed me later where they were on the x-rays.  
Your Urologist could just take x-rays and be able to tell if you have 
anything growing!  I also did some research on bladder stones and 
discovered that 95% of all bladder stones are found in men.  The ones 
I had were way to big to pass.  I drink lots of water so I don't 
think that effects it.  They are formed from acids and chemicals in 
the body.  Excess Vitamin C is probably my problem because I take 
2000mg per day.  It was suppose to help purify the urine and help 
prevent UTI's!  Ha! Which is worse.UTI's   Bladder stones
 Jerre - Original Message -
From: [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
To: [EMAIL PROTECTED] mailto:[EMAIL PROTECTED] ;
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
Cc: [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
Sent: Monday, September 27, 2004 7:06 PM
Subject: Re: Fw: Re: [QUAD-L] hello every1!
In a message dated 9/27/2004 7:09:52 PM Eastern Standard Time,
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED] writes:
I'm doing great now.  I had pain for a couple of days but now all
is well!  In a couple of years we will do the x-rays again to see
if they have returned.
 Jerre
heyyy Jerre.youb got me thinkin about bladder stones.  I never
realize they could pile up.my bladder, at times, sticks out 
very
far on the right side of my bellyit's very hard, looks like a
grapefruit in there.  Sometimes it's not so big...strange to me!! 
 I
hardly ever get UTIs, but i don't drink as much as most quads, 
and i
wonder if i got stones piled up...got any ideas???
thanks, tony  all some people need is a hand
to hold and a heart to listen
 Jerre K. Dowty
Lady Quad in Texas
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
MSN Messenger - [EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
   
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Re: [QUAD-L] Unidentified subject!

[David K. Kelmer]

Hi Jerre,

Do you take Methenamine, Hiprex, orUrex?These medicinesbelong to the family of medicines called anti-infectives. It is used to help prevent and treat infections of the urinary tract.

"Before you start taking this medicine, check your urine with phenaphthazine paper or another test to see if it is acid. Your urine must be acidic (pH 5.5 or below) for this medicine to work properly . If you have any questions about this, check with your health care professional.
The following changes in your diet may help make your urine more acid; however, check with your doctor first if you are on a special diet (for example, for diabetes). Avoid most fruits (especially citrus fruits and juices), milk and other dairy products, and other foods that make the urine less acid. Also, avoid antacids unless otherwise directed by your doctor. Eating more protein and foods such as cranberries (especially cranberry juice with vitamin C added), plums, or prunes may also help. If your urine is still not acid enough, check with your doctor."
http://www.mayoclinic.com/invoke.cfm?objectid=47FBE56B-C4EF-4A77-94F5D39821E256E5
That sounds like why your Urologist may have youtaking high does of vitamin C, but if you're not taking anything to workwith the vitamin C maybe it's the cause of the stones, so check with the Uro.
With Love,
CtrlAltDel aka DaveC4/5 Complete - 28 Years PostTexas, USA 
Jerre Dowty [EMAIL PROTECTED] wrote:






 
Tony, I guess it is different for everyone but I never had any feelings that something might be wrong. I had gone about 4 or 5 years without going to the Urologist and just figured it was time. He found them by accident because the hospital could not find the x-rays, however, he showed me later where they were on the x-rays. Your Urologist could just take x-rays and be able to tell if you have anything growing! I also did some research on bladder stones and discovered that 95% of all bladder stones are found in men. The ones I had were way to big to pass. I drink lots of water so I don't think that effects it. They are formed from acids and chemicals in the body. Excess Vitamin C is probably my problem because I take 2000mg per day. It was suppose to help purify the urine and help prevent UTI's! Ha! Which is worse.UTI's Bladder stones

Jerre 

- Original Message - 
From: [EMAIL PROTECTED] 
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] 
Cc: [EMAIL PROTECTED] 
Sent: Monday, September 27, 2004 7:06 PM
Subject: Re: Fw: Re: [QUAD-L] hello every1!
In a message dated 9/27/2004 7:09:52 PM Eastern Standard Time, [EMAIL PROTECTED] writes:
I'm doing great now. I had pain for a couple of days but now all is well! In a couple of years we will do the x-rays again to see if they have returned. Jerre  heyyy Jerre.youb got me thinkin about bladder stones. I never realize they could pile up.my bladder, at times, sticks out very far on the right side of my bellyit's very hard, looks like a grapefruit in there. Sometimes it's not so big...strange to me!! I hardly ever get UTIs, but i don't drink as much as most quads, and i wonder if i got stones piled up...got any ideas???thanks, tony 

all some people need is a hand
tohold and a heart to listen

Jerre K. Dowty
Lady Quad in Texas
[EMAIL PROTECTED]
MSN Messenger - [EMAIL PROTECTED]










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