Hi guys,
I was on atenolol for about 15 years. Never had a bit of trouble with it.
Before I was diagnosed with the PH, I noticed my atenolol had a HORRIBLE
taste - this had never happened before. Also, I could relate how lousy I
felt after taking my morning meds (atenolol, etc.)...So, I cut my
Hi Jeanie,
PE can also stand for Pulmonary Embolism - which I also suffered from due
to the pulmonary hypertension - that's what sent me via ambulance to
Cleveland Clinic in the first place at which time they diagnosed pulmonary
hypertension. I'll tell you, the pulmonary hypertension snuck up
Thanks everyone for your good wishes!! It has been a long haul, that's for
sure. Patrick, I'm sorry, I screwed up - I am on 200 mg a day of Tasigna. 1
capsule once a day.
Kelly
On Saturday, September 29, 2012 10:15:49 AM UTC-4, kellyelise wrote:
Hi folks!
It's been awhile since I last
Hi folks!
It's been awhile since I last posted...but, I had such good news, I had to
share! Some of you might remember that I developed a severe case of
pulmonary hypertension. My docs were in disagreement as to the cause of
this, but, with recent testing - I have completely recovered!
This
Hi ladies and gents!
I thought I posted my current status but am having trouble finding it,
maybe it didn't post or maybe I'm just not finding it :) So, 4 months of
Tasigna and I am in complete remission (Hurray!). Also, saw my
pulmonologist and they are going to try to wean me off the
Hi folks!
Just thought I'd let you know I received a GREAT birthday present.
My last BCR/ABL revealed that I am in major molecular response!! No
transcripts detected.
So...on 200 mg of Tasigna a day (which I fight tooth and nail to
remain on a low dose) - I achieved major molecular response in
Thank you Patrick. I have taken the Tasigna late at night since
initiation because I was afraid of the food/Tasigna issue which I
thought was AFIB or could cause long QTwhen I mentioned this to my
onc she laughed and said oh no, it's just an absorption issue. Did
AFIB cause the
You are so right, Millie! Writing down everything is so much easier
than talking about it.
I hate to burden my family and friends,,,so, I have my family here who
understands what
I'm talking about and I don't feel as though I am burdening everyone
with my woes.
You know what's crazy? My onc who
: kellyelise kellyeli...@aol.com
To: CMLHope cmlhope@googlegroups.com
Sent: Sun, Apr 15, 2012 2:40 pm
Subject: [CMLHope] Re: Depressive side effects
Millie,
live in Ohio. If you're not too far - I would LOVE to come visit
ou. I am in the NE corner - right across the border of PA. Give me
Thank you Beth, I have no choice but to fight the fight! I really
never see it as
being that hard, until I take on a task that I could do with ease at
one time, and
is 'near impossible now. Then I get frustrated. I hate sounding like a
whiner, lol.
A constant discussion fueled with encouragement
Thank you so much Millie, Marty, Greenie, Susan, etc, etc. Ha ha.
Truth is, I have to let myself go down that trail of tears before I
can come back up. No, I don't want anyone else's paper bag. If I could
control this, believe me, I would. Music helps me. I listen to a lot
of old music from my
Millie,
I live in Ohio. If you're not too far - I would LOVE to come visit
you. I am in the NE corner - right across the border of PA. Give me a
holler.
I can't imagine losing a child. My son is disabled (never diagnosed -
some form of autism) - and he was always very ill when he was a
youngster.
You live too far, I'm afraid. I've never even heard of Homeworth,
Ohio..,lol. I live in Ashtabula County and PA is a BIG state to go
across. Oh well, we have technology on our side :) I am going to stop
the Tasigna until MDAnderson tells me I have to go back on it. My BCR/
ABL was weakly
these episodes. Today is a good
day :)
Thanks everyone!
18s
Kelly
On Apr 11, 6:49 pm, kellyelise kellyeli...@aol.com wrote:
Does anyone else suffer from severe cycles of depression related to
the TKI's? I have taken all 3 (Gleevec, Sprycel and Tasigna).
During vacations from these drugs
Does anyone else suffer from severe cycles of depression related to
the TKI's? I have taken all 3 (Gleevec, Sprycel and Tasigna).
During vacations from these drugs and prior to diagnosis, I had
never experienced such severe depressive episodes.
I'm talking about a tornado touchdown with complete
Thank you for your response, Susan. Quite frankly, it feels as though
these drugs are sucking the life right out of me. I hate them with a
passion. Good for you for managing so long without them. I am sorry
you suffered such awful side effects to the Gleevec. The insurance
issue is a huge problem
Hi folks,
Been a long time since I've posted. For those who don't remember, I
developed pulmonary arterial hypertension (PH or PAH) from Sprycel. I
was put on a continuous infusion pump of Remodulin via Hickman to help
with the PH and I was also taken off the Sprycel. No TKI's for a year.
My onc
Please be aware of the Sprycel/Pulmonary Hypertension risk.
Unfortunately, I am living testament to acquiring such a horrible
disease as a result of Sprycel 70 mg p.o. q.d. As a result, I will
never advocate Sprycel and I live in constant fear. Working on this :)
Four days after I saw Dr. Jorge
.
You must consider yourself very lucky (if that is the right word to use)
None of these drugs were available for me when i had to deal with that bone
marrow transplant.
You just go out there and enjoy your life
18's
Marty
On Mon, Oct 31, 2011 at 9:24 PM, kellyelise kellyeli...@aol.com
Marty...tweet, tweet? Ha ha ha!! You are so funny!!
AnywayMy PA from MDAnderson in compliance with Dr. Cortes have
allowed me to take Tasigna @ 200mg daily. It is less that the
recommended dose but they are hoping to lessen side effects but at the
same time put the CML back under control. I
at 1:00 AM, kellyelise kellyeli...@aol.com wrote:
Thank you everyone
I saw Dr. Cortes and they did a BMA and a BMB (no drill...but an
excellent physician performed them and it was not bad at all!!!). Dr.
Cortes informed me that he has never treated a patient with both CML
and PAH
/cmlhope/topicsOnControl[2
Updates] Topic:OnControl
kellyelise kellyeli...@aol.comOct 12 10:00PM -0700^
Thank you everyone
I saw Dr. Cortes and they did a BMA and a BMB (no drill...but an
excellent physician performed them and it was not bad at all!!!). Dr.
Cortes informed me
Thank you everyone
I saw Dr. Cortes and they did a BMA and a BMB (no drill...but an
excellent physician performed them and it was not bad at all!!!). Dr.
Cortes informed me that he has never treated a patient with both CML
and PAH... wowI was sure he did!! So, pending results - if I am
Well, I hope they use that sucker on me!! I'm schedule for a battery
of tests (including bone marrow aspiration) on Monday, Oct 10th. :)
Kelly
On Oct 6, 5:56 pm, zippimom zippi...@earthlink.net wrote:
I was at MDAnderson to for my six month check up. I'm on SKI-606 for 5
years now and still at
Thank you Millie!
I will stay in contact and report back on any news I gather at MD
Anderson. I've avoided researching, seeking a specialist, CMLHope,
EVERYTHING...because of the PAH~~~I guess I was angry that no one
caught it sooner, despite my best efforts to get SOMEONE (docs) to
listen to me.
I wish my doc had listened to my complaints. He originally put me on
140 mg of Sprycel - within a week, I could not catch my breath. I
stopped it on my own - then - my husband was laid off and I took a 8-9
month vacation due to no insurance. My onc then placed me on 100 mg
of Sprycel, which I
Suzieq,
You are not whining or complaining!! We all have to vent sometime!
Quite frankly, I am grateful to be off all TKIs as of now. The Sprycel
about did me in. I don't know if you remember, but, I now have PAH
(pulmonary arterial hypertension) as a result of the Sprycel. I
underwent a heart
The reason I have labs already is also a reason I would be concerned about
maxing-out Tasigna: I have had base-line, one and three-week EKGs because the
major although uncommon adverse reaction to Tasigna is QT prolongation.
From Tasigna.com, Tasigna can cause a possible life-threatening
Hi folks:
I don't know who has read my previous posts, but, I am asking for some
help here. I was diagnosed with pulmonary hypertension as a result of
taking Sprycel. My heart is severely damaged to the point where it
cannot pump enough oxygenated blood into my lungs. I know have a
Hickman
Funny you should mention the deep freeze chills. I was SO cold when I
was on Gleevec that my husband would actually have to put me in a bear
hug with tons of blankets to try to fight that cold. It was impossible
to get rid of. Gleevec made me so tired. Then it messed my eyesight up
and my memory
No, I live in the heartland (lol) - Ohio. So far, I don't have C-PAP
or require home oxygen. My resting pulse ox on room air at last visit
was 98% - so, that's fantastic compared to when I was first admitted.
Any information you can provide would be greatly appreciated!!
Thank you!!
Kelly
On Feb
Hi Jeanie:
My EKGs were okay, too. They only noticed a problem on an
echocardiogram. They put me on Demadex and Aldactone (diuretics) and I
lost 25 lbs. in 15 days! I felt great after that. I thought that cured
the problem, but I was wrong. Truthfully, this kind of snuck up on me.
I had no idea I
Here is an interesting link relating TKIs to CML
http://www.asco.org/ascov2/Meetings/Abstracts?vmview=abst_detail_viewconfID=74abstractID=48400
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are
Hi Folks:
I thought it prudent to advise those who are on Sprycel about my
current situation. This may not apply to any other Sprycel user, but,
being informed is forewarned.
Gleevec caused serious vision problems for me, so it was discontinued
after 8 months of therapy. I was then started on
Hi Folks,
I haven't posted for some time. I was recently taken by ambulance to
CCF from a local hospital due to a pulmonary embolism (blood clot in
the lung) and pericardial effusion (fluid around the heart). During
the course of testing and treatment they found I also have pulmonary
Hi folks!
Thanks so much for all of your input and suggestions regarding the
chest heaviness I was experiencing. I had noticed some time ago that
my atenolol had a terrible taste when before it was virtually
tasteless. I figured it was just a different manufacturer. Well,
strange as it sounds, I
Hi Folks!
Been a long time since I posted anything. I have a question.I've
been on Sprycel 100 mg since May of 2009. Much, much better than
Gleevecwhew!! Anyway, I've been experiencing chest heaviness any
time I exert myself, AT ALL. Even walking DOWN stairs, I feel like
someone is pushing
Hi Pat:
I started out taking the Sprycel at night because I was used to taking
the Gleevec at night to sleep through the worst of the side effects. I
have found that if I take the Sprycel after 4:00 p.m., I can't lie
down to sleep - I will cough and cough and cough. PE? Probably. If I
take it
Hi ya'll,
I had to hunt this article down in another newspaper, but, I thought
it worthy of consideration:
http://www.mercurynews.com/opinion/ci_14498573
Great news, Jeannie!!
Blessings,
Kelly
--
[CMLHope]
A support group of http://cmlhope.com
-
Hi Pat,
Did you get my email from Feb. 11th? I sent it to you privately.
Possibly it went into your spam folder? Your onc should know better
than to prescribe you Nexium for your stomach. Wellmy onc didn't
know any better at first and they started counting my pills every
month instead of
Hi Fellow Warriors!
I am worried about a progressive problem that I have chosen to ignore
for some time. I have 2 steps leading into my house. One small step to
the porch, then a step into the house. I cannot negotiate these steps
if I am carrying anything. I have had gradual weight loss (about 5
Thank you Marty,
It isn't even just unsteadiness - it's a progressive weakness. I want
to be stronger. I read about the Karnofsky Scale. It's the standard
shorthand measure of a cancer patient's condition. Ninety percent or
above means close to fully functional. 30% - bedbound; 10% moribund.
At
No problem Pat. Anything I can do to help!!
On Feb 10, 2:47 am, pat2202...@yahoo.com pat2202...@yahoo.com
wrote:
Would you mind if I privately emailed you concerning the Gleevec side
effects we both seem to have shared. I'm leery of sprycel but I'm also
so miserable, I'm desperate. Thanks, Pat
Hi Susan:
Sorry to say but a simple water pill won't help. I take Lasix every
day, didn't help. I did find that by taking Pristiq (antidepressant),
I have no water retention whatsoever now. It is the only
antidepressant (that I know of) that is excreted through the kidneys
rather than metabolized
Oh Pat,
You are truly suffering - much like I did on the Gleevec only I didn't
last as long on it as you have. There is no reason for you to be so
miserably sick on this drug! I'm surprised you can take the Nexium and
Zantac. I was prescribed a PPI like that and my doc started counting
my Gleevec
Hi Jeanie,
I wrote a post to Pat in TN about the Sprycel and how I am doing on it
- which is GREAT! The Gleevec was hell on earth as far as I'm
concerned. I, too, have been eating yogurt daily for the most part and
Dannon is my preferred brand. I cut up bananas into it sometimes - but
I like the
Hi Jeanie,
I was taking the Sprycel before bedtime until I finally realized it
was the cause of my constant cough (had a bad flu which seems to have
instigated this). I then started taking it earlier and earlier and
found out from my onc that I could take loratadine (Claritin) or
Mucinex to help
I must mention, yesterday I had to spend hours at the service station
so I didn't get to take my Sprycel until 7 p.m. Shortly thereafter I
coughed and coughed and coughed to the point of almost vomiting. I was
short of breath and miserable. I then took a loratadine (my nose was
running like a
I'm with you Michael! And Suzieq, I too, have quit watching the news
because I'm sick and tired of the untruths and attempts to manipulate
the American people. We are all in this together and healthcare
affects our group to a great degree regardless of political
affiliation. I worry far too much,
to be a Christian when
he/she is opposed to one of it's most profound
duties.
We are all our brothers keepers.
signed
ex republican and now real Christian
Daniel
dx/cml 7/5/2001, bmt 4/15/2004
On Dec 27, 9:33 pm, kellyelise kellyeli...@aol.com wrote:
Not if this site, amongst many
I'm with you Pat.and we can extend that list beyond wars based on
lies...there is no reason, other than paying CEO's of major insurance
companies $57,000 per hour, why we can't have Medicare for
everyone...
On Jan 3, 3:57 pm, pat2202...@yahoo.com pat2202...@yahoo.com
wrote:
What is so
Not if this site, amongst many, is any indication of the American
Mentality. The real kicker is they call themselves Christians and
despise the poor. Yeah, yeah, I've heard all the BS about welfare
recipients driving Escalades and eating steak. I've been poor my whole
life until I became middle
It's too bad the dems had to give in to the blue dogs just to get
ANYTHING passed; hence, give-aways. Why do you think the monster
healthcare industry was spending over a million dollars a day to fight
healthcare reform - for our best interest? But of course, we don't
want the government to choose
I was told not to take Tylenol with either the Gleevec or the Sprycel.
I was told I can take NSAIDs (ibuprofen, Advil, etc.). I rarely took
Tylenol before the CML because a friend went to Europe on vacation and
died unexpectedly. Autopsy showed liver failure due to daily use of
Tylenol. Ever since
Hi Kevin,
I, too, have a feeling of being too hot at times. My face feels really
hot. I don't sweat. I have taken my temp and found I am running a low-
grade fever (I normally run 97 degrees, it only goes up to 99.8). I
mentioned it to my onc and they checked with the CCF pharmacy and
found I can
Hi everyone!
I have an appointment this Friday, so I guess I will find out where I
stand as far as my numbers go with the Sprycel.
My question is: Does anyone else on Sprycel suffer from runny nose
and nonstop coughing about an hour or so after taking the Sprycel?
I had gotten into the habit
Jeannie, Lenda and Tony:
Thank you all for your responses. Wine gives me serious heartburn,
too. Oatmeal gives me heartburn but orange juice doesn't, how's that
for odd! LOL! I think a milk drink like Kahluah and cream might be the
ticket. I think you're rght, Jeannie, about the martini's too -
Hello,
I thought I would add, as an afterthought.having a few drinks
with my friends helps me feel normal and it seems to alleviate the
worries of my friendsyou know how they walk on eggshells with the
dreaded cancer word. I have found just recently, I cannot drink beer
AT ALL now.
Hi Jeannie:
I've been on Sprycel since May. I did get a severe headache that
lasted for 3 days which sent me to the ER. Well, they OD'd me on
Dilaudid, Versed and Toradol (code blue). So..I won't be going
back to that hospital again. I have found that if I eat and drink a
lot of fluids when
Hi Tom:
I am on Sprycel, too. With regards to alcoholwhat's a glass of
wine? I go out with my girlfriends about once a month and have a few
beers/drinks right along with them. I have not noticed any side
effects. It's probably not the healthiest thing I do, but, I have
given up so much
Hi Jeanie:
There is no way I am offended by ANYONE'S religion or faith in Jesus.
I was raised a Christian and still consider myself a Christian with an
open mind to all religious philosophies. I just don't march to a rigid
drummer in that regard. You are always so sweet and helpful.how
could
Thank you for your thought provoking, insightful post, Dorothy.
Kelly
On Oct 19, 6:53 pm, doem...@charter.net doem...@charter.net wrote:
I don't want to start any battles here or even contribute to them but
as someone who has had CML for over 9 years I must admit to having
trouble
...@bellsouth.net maggy...@bellsouth.net
wrote:
Now I need to pipe in. Stop blaming the prior administration for all your
healthcare woes.
-- Original message from kellyelise kellyeli...@aol.com:
--
If people would really READ Cindy's post, she is not attacking
If people would really READ Cindy's post, she is not attacking
religion. She is attacking the fact that her tax dollars are used to
promote faith based initiatives - of which she has every right to
disagree with. Christianity isn't the only religion and to promote and
believe it is the only
Thanks Cindy!! I appreciate someone who isn't afraid to speak their
mind. We've been brainwashed by the media as to what is acceptable and
what isn't. Well, I dig my heels in when someone is trying to
manipulate my beliefs and opinions. Lest I forget, I totally agree
with you! But, I also must
I would have to say, I'm for Medicare for everyone. It doesn't get any
simpler than that. I won't blather on about all of the horrors I've
dealt with during and after my dx of CML. Even when my onc told me I
could wait at minimum 2 years before receiving any treatment for my
CML. Huh. I wonder
Hi everyone:
Been quite some time since I've posted... I have the stinking flu.
Went straight to my chest. I have a terrible cough, low-grade fever,
headache, sore throat (diminishing), and runny nose. How do you know
when to go to the doc and when to just let it run its course? I guess
I feel
Hi Tom:
I don't remember much of my history (sheesh). I did not get a rash
with the Gleevec. I had memory loss, visual disturbances (especially
after reading and sunlight affected my sight something fierce -
sunglasses made no difference) and nasty nightly headaches.
Onc sent me to a
, the doctor will not advise
without seeing you personally. You might need a antibiotic or a
prescription strength cough medicine. Thats just my opinion, and I
hope your feeling better.
Suzzie
On Oct 9, 2:46 pm, kellyelise kellyeli...@aol.com wrote:
Hi everyone:
Been quite some time since I've
Hi Tracey:
I was dx'd in November/December 2007. I was on Gleevec 400 mg 1 q.d.
In October of 2008, they had to take me off of it due to vision loss,
severe memory loss (I couldn't even remember a conversation from the
day before) and cognitive difficulties. I had a short (2 week) bout of
Hi everyone!
PSI called me this morning and said they will pay my copay! I talked
to so many people yesterday I couldn't remember if I applied with them
or not. They said I was not in their system, but, they were the
organization my NP recommended. So, let's just say Divine Intervention
Hi Greenie:
I am so thrilled you got such good news!
God Bless,
Kelly
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google
Hi everyone!
I know ya'll have posted numerous times various Rx assistance
programs. I've applied and called at least 5 provided by my doc - to
no avail. Since I have COBRA, most say I don't qualify. Problem is, my
copay for the Sprycel is $300.00 and I just can't swing it. Even
Bristol Mayers
I am so sorry Greenie. This is some hard news to take, I am sure, for
you and your family. I will pray for you and Grace and ask that all
turns out well.
God Bless you,
Kelly
Hi Group, this will be very short. Grace has been tested here at
Northwestern and she does have OV cancer. They
Hi Everyone,
Great news! My husband's employer called to let us know that the new
stimulus package will be paying 65% of our Cobra. Whoo-hoo!! From $800
a month to $275. Wow. What a relief. Maybe I can get started on some
medication finally.
Thank you for your thoughts and prayers!
That is fantastic Ricardo! I am so happy for you and your family! Give
the credit where the credit is due - to God! It makes me feel great to
know I contributed in a small way!
Bless you!
Kelly
On Feb 13, 7:35 pm, Ricardo Gadelha ricardodgade...@gmail.com wrote:
My friends,
My son was having
Hi Boogie Woogie:
I was only Gleevec for 9 months and after being taken off of it in
October, I had severe pain in my knees (NEVER had that before)
shoulders, fingers - knees were especially painful. Went to a
rheumatologist and he dx'd me with osteoarthritis in all of those
areas. He said I'm
Congratulations Lori!!
I wish you the best with your bundle of joy! Don't worry about being
off the Gleevec right now - I've been off of it for 4-5 months and my
blood work still looks good (and I only took it for 9 months), Hang in
there..you'll be fine!
Kelly
Hi Daniel:
I was put on an antidepressant about the same time I started the
Gleevec. I was told that the only antidepressant I could take was
Wellbutrin. The SSRI's are not a safe choice. Also, Wellbutrin does
not cause sexual side effects common with SSRI's.
Good luck!
Kelly
Congrats Suzieq!!!
I pray I am as lucky as you! Still no insurance (COBRA)...they fix
it just so..of course I am covered but I have no insurance card,
policy number or anything of any use so I can go to the doc. They
waited until the end of January (this week) to ask for more forms to
be
Thank you Daniel, Rhonda and Cheryl:
We just received COBRA paperwork from my husband's employer - it will
run around $800 per month (yikes!) - but, we know we have to have it.
As soon as we get that together, I will return to my doctors. I
questioned my nurse practitioner as to why I was put on
would be able to collect your payments. Any one else have
any thoughts on this.
Suzan
--- On *Thu, 1/1/09, kellyelise /kellyeli...@aol.com/* wrote:
From: kellyelise kellyeli...@aol.com
Subject: [CMLHope] where to turn?
To: CMLHope CMLHope@googlegroups.com
Date
Thank you Barb,
The HR personnel at my husband's place of work told him that they just
changed insurance companies and therefore she did not have any
paperwork or anything at that point so we could apply immediately for
COBRA. So, it is a sit and wait kind of situation until we find out
who
Hi Everyone!
I hope everyone had a nice Christmas and New Years. I believe I
mentioned before that I was taken off of Gleevec 400 mg q.d. in
October and started Sprycel 70 mg x2 q.d. I was absolutely miserable
on the Sprycel. I was so full of fluid, it was miserable to even eat
not to mention
Thank you Patrick:
When Cleveland Clinic gave me that stack of papers listing the meds I
had to avoid, I took notice of the antifungals because at that time I
was experiencing the redness, itching of my left foot which I
suspected was athlete's foot and was applying OTC cream to eliminate.
I
Hi Patrick:
Fortunately, I have not had the misfortune of experiencing the
Gleevec rash. I have been taken off of the Gleevec due to increasing
visual problems, pronounced memory loss and headaches (started Gleevec
02/08/08). Just had another bone marrow biopsy today (4th one since
November
Hi Suzie:
According to Dr. Servan-Schreiber, author of Anti-Cancer, A New Way
of Life (thank you Ricardo!) - green tea should be steeped for 10
minutes and you need to drink it in less than 2 hours or it loses its
benefits (I tend to let hot drinks sit and go cold, so I understand
the need to
Hi Everyone:
Well, I've been off the Gleevec for a total of 29 days now due to
visual disturbance, headaches and memory loss. My onc at Cleveland
Clinic has decided to pull me out of the clinical trial (can't
participate if I cannot take med due to side effects). He believes
that reducing the
Hi Vivi:
I just had an appointment with a neurologist/ophthalmologist due to
the severe double vision/blurred vision, headaches, long and short-
term memory loss and cognitive difficulties I am experiencing. They
did an MRI/MRA of the brain and ruled out anything concerning there
(whew!). Some
and yours!!
Kelly
On Oct 27, 9:12 pm, Ricardo Gadelha [EMAIL PROTECTED]
wrote:
Kely,
We discussed with the Doctor and now my son is taking wellbutrin.
Thank you so much.
Ricardo.
Ps: he is also taking garlic capsules and green tea every day.
On 10/17/08, kellyelise [EMAIL PROTECTED] wrote
.
Ps: he is also taking garlic capsules and green tea every day.
On 10/17/08, kellyelise [EMAIL PROTECTED] wrote:
Hi Ricardo:
I was told by my physicians at Cleveland Clinic Foundation when I was
put on imatinib 400 mg/day that the only antidepressant I could take
was Wellbutrin XL
Hi Everyone:
I recently had my 3-month checkup at Cleveland Clinic. I have been
experiencing double vision - notice it most when outside (sun) and
driving. People 10 feet away - their faces are just a blob. Road signs
are 2 of them superimposed upon each other, just about impossible to
read. I
Thank you Timothy for your information. Yes, I did have a BMA done and
it showed me to be in complete cytogenic remission. I also read a
medical journal by Dr. Druker et al in which they did followup studies
on the 5-year status of patients on Gleevec. I found out that those
that responded
Hi Suzzie:
My doc tried putting me on a similar drug (can't remember if it was
Zoloft or not) and I was told by Cleveland Clinic the ONLY
antidepressant I can take is Wellbutrin. Cleveland Clinic told me that
the Gleevec ramps up the strength/side effects of other
antidepressants such as SSRIs,
Hi Suzzie:
I not only have short-term memory loss; I also have long-term memory
loss. I cannot for the life of me remember my granddaughter getting
hit by a car (a HUGE event to be sure) - but, I have absolutely no
memory of this and this occurred before CML dx or inception of
Gleevec. I don't
Hi Jeanie:
I'm so sorry for your news..but trust and faith will see you
through. I will say fervent prayers for you.
Love,
Kelly
On Sep 16, 4:21 pm, [EMAIL PROTECTED] wrote:
Hi all,
I got some bad news today.
My Chronic CML has gone into accelerated phase.
I don't know what they are
Oh Suzzie, please don't fret over the additional testing. Some docs
test for things they don't even suspect, they are just covering all
the bases (I've worked with many). He is probably just eliminating the
need for you to go in for MORE bloodwork - might as well do it in one
fell swoop. There
As an added note, I have a friend who has or had:
1. Myasthenia gravis.
2. Two heart attacks before the age of 40.
3. Non-Hodgkins lymphoma with large and small cell bone cancer (in
over 10 years' remission).
4. Lupus.
5. Fibromyalgia.
She is doing GREAT. It is believed that the heart
Hi Greenie:
I also had stomach pain with the Wellbutrin and it seemed to get worse
as time went on. But, I always took it with my other meds that I have
to take with no food. Now, I always take it with food and the stomach
pain has disappeared. It took me awhile to make the connection that it
was
Hi Suzzie:
I went to a psych in February 2008 due to the extreme depression and
anxiety I was experiencing (about 2 weeks after starting the Gleevec).
He put me on leave of absence from work that day. I have not returned
to work. I really don't think I can do it anymore. The neck, thoracic
and
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