Victoria:
I have not experienced the thinning eyebrows, but did with the front
of my hair.I use Nioxin Shampoo Scalp Therapy (#3 or the Gold
lid) that's for fine thinning hair. I don't seem to be losing it as
I did. Also, I now have very naturally curly hair (I use to pay big
bucks for
Hello Ricardo,
Thanks for the reply, glad your son is doing so well, I'll try to stay
and eat healtly. Thanks, Jeff
On Nov 10, 8:13 pm, Ricardo Gadelha ricardodgade...@gmail.com wrote:
Hi, Jeff,
Good evening from Brazil.
In fact it depends on the person. My son had side effects for about 1
Be very careful with Potassium.
Mine went way to high on Gleevec and I got so sick.
Make sure to keep a check on it with CMP blood test.
Blessings,
JEanie3
In a message dated 4/23/2009 3:54:44 A.M. Eastern Daylight Time,
skracml2...@yahoo.com writes:
Potassium loss is listed as one of the
[mailto:cmlh...@googlegroups.com] On
Behalf
Of patrickemailguard-g...@yahoo.com
Sent: Thursday, April 16, 2009 12:34 AM
To: CMLHope@googlegroups.com
Subject: [CMLHope] Re: Gleevec Side Effects
almost exactly my list...
Patrick
--- On Wed, 4/15/09, bikercub biker...@msn.com wrote
Okay, my turn. I was on gleevec for 5 years and experienced all the
side effects you all mentioned. My oncologist dropped me down to 300
mg after a 10 week break because the side effects were so bad. They
seemed to be less frequent but more intense. I switched to tasigna a
little over a year
wow! that is something!
-Original Message-
From: CMLHope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf
Of Barb in AZ
Sent: Saturday, April 18, 2009 7:19 AM
To: CMLHope
Subject: [CMLHope] Re: Gleevec Side Effects
Okay, my turn. I was on gleevec for 5 years
@googlegroups.com
Cc: CMLHope CMLHope@googlegroups.com
Sent: Thu, 16 Apr 2009 8:23 am
Subject: [CMLHope] Re: Gleevec Side Effects
Hi everyone! My name is jeff and though I've never posted before I
really feel like it is time to speak up. I was diagnosed with CML
about 4 months ago and I've been
ide effect...I have a really hard time losing weight! Jody -Original Message- From: CMLHope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf Of patrickemailguard-g...@yahoo.com Sent: Thursday, April 16, 2009 12:34 AM To: CMLHope@googlegroups.com Subject: [CML
Hi Ricardo and Jeff,
I have been on Tasigna for over 6 months now.
Gleevec quit working for me and I went into blast.
When I first started Tasigna, I had a lot of problems.
My counts all dropped and I had to have 2 transfusions.
There are several things that the doctor has to keep an eye on,
-
From: CMLHope@googlegroups.com [mailto:cmlh...@googlegroups.com] On Behalf
Of Bob
Sent: Friday, April 17, 2009 8:06 AM
To: CMLHope
Subject: [CMLHope] Re: Gleevec Side Effects
Hi,
I definitely have the muscle cramps, arch of the foot especially.
Also the long muscle in my back if I
No you are not crazy. I was diagnosed in February 2002 and was lucky
in the sense I went right on Gleevec. I still suffer from most of the
side effects you mentioned. I have the weight gain, nausea, muscle
cramps, fatigue, and diarrhea (that is pretty much always there). I am
warm at times and
@googlegroups.com
Subject: [CMLHope] Re: Gleevec Side Effects
almost exactly my list...
Patrick
--- On Wed, 4/15/09, bikercub biker...@msn.com wrote:
From: bikercub biker...@msn.com
Subject: [CMLHope] Gleevec Side Effects
To: CMLHope CMLHope@googlegroups.com
Date: Wednesday, April 15, 2009, 11:54 PM
I
Hello I also have been on the Gleevec about 7 yrs. Glad to be off the
interferon. I have the same sideeffects as you. water gain-muscle cramps in
the legs really bad if I don't take the potassium for the water pills I have to
take and the fatigue is awful. Its like nap time every hour.
I was diagnosed in 1997, tried Interferon for a year, and then HHT for 14
months, then Gleevec since 1999, and those are my symptoms to a tee! I
usually only get the nausea if I take Gleevec in the morning without enough
food...can take it at night on an empty stomach with no problems. I get
] Re: Gleevec Side Effects
almost exactly my list...
Patrick
--- On Wed, 4/15/09, bikercub biker...@msn.com wrote:
From: bikercub biker...@msn.com
Subject: [CMLHope] Gleevec Side Effects
To: CMLHope CMLHope@googlegroups.com
Date: Wednesday, April 15, 2009, 11:54 PM
I was diagnosed with CML
No your not crazy, I've been on Gleevec for over 9 years and I have the
same problem except I don't get the diarrhea. Very little fatigue any more.
Used to get some Real bad cramps same as you.
greenie
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: [CMLHope] Re: Gleevec Side Effects
almost exactly my list...
Patrick
--- On Wed, 4/15/09, bikercub biker...@msn.com wrote:
From: bikercub biker...@msn.com
Subject: [CMLHope] Gleevec Side Effects
To: CMLHope CMLHope@googlegroups.com
Date: Wednesday, April 15, 2009, 11:54 PM
I was diagnosed
Hi Biker
?? I've been on Gleevec since the beginning (June 2005) its been working for
me so far. I have the fatigue, bone pain, constipation, those
wonderful cramps in my calves in the arch of my foot that usually happens at
night, but its keepting me alive so I'll stick with the
Gleevec. I
Was diagnosed back in Jan. '04started 400mgs. of Gleevec in Feb.
'04 and stayed on it since...have exact same symptoms...maybe not
so severe as in the beginning the fatigue doesn't hit me like it
did, but ever so often nowespecially if I overdo the day or night
before. Then I am
Of Suzieq
Sent: Thursday, April 16, 2009 1:32 PM
To: CMLHope
Subject: [CMLHope] Re: Gleevec Side Effects
Was diagnosed back in Jan. '04started 400mgs. of Gleevec in Feb.
'04 and stayed on it since...have exact same symptoms...maybe not
so severe as in the beginning the fatigue doesn't hit
Hi, I was on Gleevec for 5 years and I had all your side effects and more.
The cramps and swelling were awful.
I'm on Tasigna now and most of the side effects are gone.
Good luck CML WARRIOR and get your rest.
Blessings,
Jeanie3
In a message dated 4/16/2009 12:54:51 A.M. Eastern Daylight Time,
Has anyone tried psyllium seeds for diarrhea?
i had diarrhea really bad when my potassium was high and I started taking
the seeds and it cured my diarrhea. I mean I had it really bad; had tried
other things and nothing worked. I get the ones from the health food store
without any
almost exactly my list...
Patrick
--- On Wed, 4/15/09, bikercub biker...@msn.com wrote:
From: bikercub biker...@msn.com
Subject: [CMLHope] Gleevec Side Effects
To: CMLHope CMLHope@googlegroups.com
Date: Wednesday, April 15, 2009, 11:54 PM
I was diagnosed with CML in May of 1992. I've
Sorry Wayne, I started Gleevec in Feb. 2000 myself but have been lucky
enough not have any diarrhea. Have you tried any of the over the counter
items to
resolve your problem?
Greenie
Springfield, MO.
** See what's new at http://www.aol.com
Hi Wayne: I've been on Gleevec about the same amount of time and had the
diarrhea problem a lot, especially for the first few years. I am also on a
blood thinner, so perhaps there is a connection. I have been on as much as 800
mg. of Gleevec, but at present am on 400 mg. I am not having a
Hi Millie,
I was wondering why you had to go on 800 mgs of Gleevec and why you are now
on 400? My platelets have been going up and my onc upped my gleevec to 600
mgs. It came down a lot and I went back on the 400 but this week my platelets
jumped up again to 500. So I will be back on the
@googlegroups.com
Sent: Thursday, November 15, 2007 4:17 PM
Subject: [CMLHope] Re: Gleevec side effects to millie 800 mgs?
Hi Millie,
I was wondering why you had to go on 800 mgs of Gleevec and why you are now
on 400? My platelets have been going up and my onc upped my gleevec to 600
mgs
Everyone is different. Some get no side effects(adverse) while others seem to be in misery. For most of us it is a matter of identifying what are Gleevec side effects and dealing with those effects. Dealing with them can include other medications, vitamins, minerals, diet, exercise and especially
also help me feel
better soon than later. Thank you again it is very helpful.
From: Terry Dailey [EMAIL PROTECTED]
Reply-To: CMLHope@googlegroups.com
To: CMLHope@googlegroups.com
Subject: [CMLHope] Re: gleevec Side effects
Date: Mon, 19 Jun 2006 09:46:04 -0400
Livia is totally right..give your
Certainly give your body more time. Two weeks is a very short time. I have flu like sympthoms after 1.3 months on Gleevec. You will get used to some side effects and some will dissapear as time goes. Be patient. It may take couple of weeks. Rosie [EMAIL PROTECTED] wrote: I have only been on
Hi,
Tylenol is not recommended because it may have drug interactions with
Gleevec. Both Gleevec and acetaminophen (the active ingredient in
Tylenol) are metabolized through the liver and may interact.
Ibuprofen is told not to be taken only if platelet counts are below
100,000.
Best
Hello Anjana, I have lost my "0" Club number! I am Marcia Beaudry in Minnesota. Can you look it up for me? Thanks Sweetie, Marciaanjana [EMAIL PROTECTED] wrote: Hi,Tylenol is not recommended because it may have drug interactions withGleevec. Both Gleevec and acetaminophen (the active ingredient
Hi there-
i was told to stay way from Tylenol due to interference with kidneys. The acetaminophen is harmful and that is why they suggested Advil.
From:[EMAIL PROTECTED]Reply-To:CMLHope@googlegroups.comTo:"CMLHope" CMLHope@googlegroups.comSubject:[CMLHope] Re: Gleevec side effectsDate:Sun,
I'm curious about the ibuprofen.
My doc told me not to take it or asprin, due to the effect on my blood
counts - I think it was the platelets.
The only other med I was allowed to take was tylenol or similar. If I
had to take pain meds on a regular basis, he gave me a prescription for
something
Well, I'm sticking my 2 cents in for what is worth. I am not a water
person. I was raised on a farm and did drink spring water through my
childhood. My parents did not believe in letting me drink colas so it
was water, tea and milk at my house. Anyway, after reading for so many
years that one
I don't think it matters which meal you take it with, but I do think
that the content and size of the meal can affect the intensity of
nausea and other digestive side effects. I found that these side
effects are minimized if I have a complete protein in the meal
accompanying the Gleevec.
Weight
Long term is OK for me, but my short term memory is totally shot! I have lists if lists because I forget where I put the list!!!
From:"lbailes" [EMAIL PROTECTED]Reply-To:CMLHope@googlegroups.comTo:"CMLHope" CMLHope@googlegroups.comSubject:[CMLHope] Re: Gleevec, side e
Hi Jeanie,
Roy drinks coffee right after his evening meal and Gleevec and he has
been doing that for 4 years. There was some discussion about this
among patients and the only thing we could come up with why coffee may
not be recommended with Gleevec was that it may irritate the stomach
and
I have been on 400mg glivec for 4 months now, and I feel I have the side
effects pretty much under control! I take iboprufen for the bone pain and
headaches that are a normal part of my day now. I take the glivec at lunch
time, as I was told taking it at night was not good (for some reason). I
Allyson Morris" <[EMAIL PROTECTED]>
To: CMLHope@googlegroups.com
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Subject: RE: [CMLHope] Re: Gleevec side effects
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