Since I have been a quad 21 years ago I mildly sweat(dysreflexia) whenever I an
having a bowell movement, fart or anything much going on there. Not the same
thing as you exactly but I would be concerned if something changes from the
norm you experience. Only you know what you feel on a daily
I used a full electric blanket yrs ago after my injury. One night I rolled on
my side and the blanket got wedged between my knees. When I woke up I had two
burns with blisters on the insides of my legs. Thats the danger, if the blanket
gets on the skin ith weight and you dont move.
Ron
Does anybody know where I can buy a Wanchiks writer for a right handed quad?I
know sammons preston is not out there anymore. For people that dont know what
it is..its a device that goes onto your hand that allows a pen to be
inserted and you write. Also I cant find the old phone holders
It depends on the situation. If she was new or been with a person for awhile.
I think back to b4 I was a quad and how I felt then and what I possibly would
have said. In the end, shes not your friend.just a person to get you
through the day. Letting it go is probally the right answer
I was injured in 98. I had a burst appendix for 5 days and almost died. I
grabbed onto the back of a car and flipped my chair. I flipped my chair
backwards and hit head on couch. Ive been hit by a car. Almost drowned. been at
the point of heat exhaustion with no water or a/c several times.
I haven"t seen Dianna Lawson post on here in a long time guys. does anyone know
if shes ok?
Ron
Hey guys,
Im a c7 quad coming up on 21 years post. Ive done the every other day bowell
routine on a bowell chair. I use majic bullets with bisacodyl and miralax the
night b4. im on a bunch of pain meds and its slowing my system to a crawl.
Whats the best laxatives to take to combat this?How
Has anybody been to see the Freddie Mercury movie, Bohemian Rhapsody??
Hey I have a perfect set of Monarch 1-A hand controls that were on my 84 Ford
Van for 2 yrs until the engine blew. The state bought them for me and paid like
1500.00 with all the options back in the early 2000s. They are push for brake,
pull down for gas. Im a c7 and they worked well for me. I
I had an issue going on a month ago where the cathe tube wouldn't go in at
all. Instead on scoping my penis and figuring out what was blocking it they put
a bard foley bag on for a month. Well two Fridays ago a mild fever started 99.6
and the urologist is only there on thursdays. His office
Ive had a foley catheter for approx.2.5 weeks. I started taking Flomax and it
changed the color, then it started smelling( the urine) I felt kinda weak today
and checked my temp and Im at 99.7. With a foley when should you get an
antibiotic? is it normal to run with light fevers with a foley?
On Tuesday, May 1, 2018 1:33 PM, Greg <g...@eskimo.com> wrote:
Ask your doc, but I think if you dont like the Suprapubic, you can just take
it out.
Greg
On 5/1/2018 11:02 AM, RONALD L PRACHT wrote:
I cant understand how this can change in the matter of a few days but it di
dent
On Tue, May 1, 2018 at 4:37 AM, RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:
Im a c7 quad, 20 years post that has been straight cathing for 20 years with
little issue. Three years ago I started leaking a bit but just dealt with it
until the tubes wouldn't go in( pass sphi
Im a c7 quad, 20 years post that has been straight cathing for 20 years with
little issue. Three years ago I started leaking a bit but just dealt with it
until the tubes wouldn't go in( pass sphincter) without an hour of pushing and
sometimes 5 tries. 3 months ago things got so bad that my
Things such as a legbag or an adjustment I wouldn't ask for a stranger to do
unless I was in dire straits and its a matter of living or dieing. I was in my
manual chair once trying to get home from the mall on a hot day. I started
passing out a guy pulled over in a truck and I said man, Im in
If you have an adjustable bed I can tell you about a neat trick to please your
female partner she will love. Raise the end of the bed all the way up, have her
lay back on the end. Drive your chair forward into the end of the end of the
bed between her legs and go for it. Three orgasms will do
Your a tough woman bobbie. You could write several books on your adventures and
life experiences. I have always enjoyed your posts on the list. I don't care
for holidays much since quadom, but we do what we can. Keep on rolling for your
50th. Be sure to give Pete a big hug for him being a part
I was almost in trouble today people. I got ready to attach my handcycle and
headed out as normal. Made it just over a mile and dysreflexia started in with
a combination of the sun and my blood pressure started creeping up like a
monster. For some reason since I take pain pills a small amount
Pain is something personal. No one knows how bad another persons pain is unless
they have dealt with pain themselves and even still we all handle it different.
The true judge of pain is..can you sleep, do tasks without
stopping..basically real life changing pain stops normal daily
Never say never about a nursing home. All is takes is your family to die off.
Money cant save you in most cases. The key is enjoy today.
Ron
On Wednesday, March 22, 2017 4:41 PM, Jeffrey Gaede
wrote:
I didn't need to read this to know I'll never be going into a
You drive don't you? You could still be a threat and so could the rapist in the
article. It wouldnt be fair to the possible new victims. He wont live much
longer in jail anyway.
On Tuesday, March 21, 2017 9:45 PM, greg wrote:
#yiv6030785435 #yiv6030785435
I picked a used hoyer lift up off craigslist for 125.00. They sell cylinder
rebuild kits on ebay for the Invacare model. It depends on if you can be
without it a few days and can get someone to take the cylinder off and take it
apart.
Ron
On Thursday, March 16, 2017 11:45 AM, Derrick
Can anybody hook me up with a link to watch the new flick You b4 Me?
Ron
I watch a lot of tv but never came across this movie until I was on youtube
last night. Its about three guys that get paralyzed and their stuggles to deal
with it. Has Helen Hunt, Wesley snipes and others in the 1992 flick Waterdance.
Pretty realistic for a movie.
1992 The Waterdance
Ron
I watch a lot of tv but never came across this movie until I was on youtube
last night. Its about three guys that get paralyzed and their stuggles to deal
with it. Has Helen Hunt, Wesley Snipes and others in the 1992 flick Waterdance.
Pretty realistic for a movie. Just type in waterdance in
One possible answer would be buy some duralock plastic Velcro and stick the
edges down. Im sure this wont be popular with the housekeeper. Or like you say
find some plastic edging to lay on the start of the rug, might still need the
plastic Velcro though called duralock.
ron
On Thursday,
I was looking around and saw a quad on youtube wearing the new self lacing
tennis style shoe. You put it on and press a button and the laces tighten on
their own. They are made by nike and list for 720.00..lol. Maybe someday
they with go for a couple hundred and I will buy a pair.
Ron
I have used a guardian self propel shower chair for 15 years. A cushion was
made for it 10 years ago, but it finally cracked and is held together with duck
tape but still limping along. After about 2 years of searching, talking and
compiling information I was looking for a used Raz mobile
Come on down to Missouri(Misery)where a quad has to hibernate between
Nov-April. Every year I think Im going to be tough, but cant fight below 30 in
my old quad years.
Ron
On Sunday, February 19, 2017 5:19 PM, greg wrote:
I hate these rainy days.
I get so sore.
Its
If that's the case then they need to offer an alternative b4 a person is peeing
razorblades and bleeding . Ive never been told I had an option.
On Friday, February 10, 2017 9:24 PM, greg wrote:
#yiv5660032499 #yiv5660032499 --body{font-size:14pt;}#yiv5660032499
I take cipro 1-2 times a year as a defense to a uti that presents as at least
some blood in the urine. Once every few years the first round of cipro isn't
enough and it gets stepped up to something stronger. These doctors have been
giving people antibiotics every time they have a discomfort,
I love hearing your story Lori. What happened to your father? What did you do
after your mother died for care?How did you get involved with school in those
dark ages for disabled?
Ron
On Saturday, January 28, 2017 9:35 PM, Lori Michaelson
wrote:
Same as Larry.
What it comes down to is there is no option other than suicide to get out of
it. What has helped me is the realization that life is short for everybody and
in 50 years nobody will know the difference who was a quad or not. Life is a
gift, even as a quad and each of us have to find our own
I use a triple thick carhartt hoody, beanie hat, covers over head, stand up
heater on. I wish I would of went with a heated bed but got a tempurpedic
instead. I tried the heated blanket approach years ago but got burned. The
worst part is every 4 hours or less I have to get up and straight
I was scheduled to go to craig and get surgery. They had looked at my mri, gave
me a surgery date and all. Then they called and said they couldn't take my
united healthcare insurance. I was devastated, it made my so upset.
Ron
On Tuesday, January 24, 2017 2:59 PM, Lori Michaelson
Everyone that has a spinal injury has a cyst of some sort at the injury site.
When that cyst fills with fluid and causes symptoms is when its called post
traumatic syringomeyelia. Some individuals with syrinxes go their whole injury
without any sort of medical intervention. An mri will reveal
Ive gotten two manual chairs since 1998. My first one was an action mvp and the
second and current chair is a quickie 2 which I have held together from ebay
parts from (2001-2017). I have replaced everything on the chair at least once
except the red frame, which is wobbly because its a folder.
I made the mistake of using my real name for the list. Somebody I know was
searching my name via google and found some info they didn't like and it was
bad. I didn't realize years ago there was the ability to look at all previous
quad posts. Now I watch what I post.
Ron
On Monday,
I take a supplement with Glucosamine, Chrondroitin and Msm to fight the
shoulder issues I had. What an expert told me I was dealing with was an
impingement. Can you lift your arm straight up without pain? When does the pain
start to your knowledge? That's the questions to start with.
Ron
The people against national health insurance are the people that have great
insurance through their employer. They say screw everyone else. We need an
across the board national healthcare for everyone, then if you want better or
extra coverage buy it.
Ron
On Thursday, January 5, 2017
I own a p-222 . I believe that is a package above the standard. Its a tough,
fast chair though.
ron
On Monday, January 2, 2017 5:42 PM, greg wrote:
These are the chairs I'm
thinking of. I haven't had rear wheel in 25 years.Does anyone know if the P-222
is standard
I often imagine what I could do if I had more finances and let my mind wander.
What would you guys do?
Ron
I woke up one day to a horror. Someone had bought 11 computer monitors on my
paypal using my name, but it was caught.
On Saturday, December 31, 2016 4:50 PM, Johnny Cammon
wrote:
Nodoubt..wow Yes that was a close one.good thing your bank caught that
I got a portable dvd player for my table by my bed. An Atari portable to
relive my childhood games. A hobby mat to work on my r/c models. Other misc
junk.
How about you?
Ron
I need to make some changes to my quadself for the new year but im stuck in a
rut.
On Sunday, December 25, 2016 8:27 PM, "jume9...@comcast.net"
wrote:
Happier new year to all of you!! Can't be worse eh?Meredith
Sent from my LG Mobile
-- Original
ds help with A.D. Do you think you might have an infection or
constipation? I'm curious, do you feel after 4 yrs that the oxy does not work
as well as in the beginning? Meredith
Sent from my LG Mobile
-- Original message------From: RONALD L PRACHT Date: Thu, Dec 22, 2016 6:48
PMTo: Quad-l
, at 9:46 PM, RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:
Why would taking oxycodone cause my head to sweat and go into mild
dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its
not stomach lining damage or something??
Ron
Why would taking oxycodone cause my head to sweat and go into mild
dysreflexia? Ive been on it for 4 years and it never did this to me. I hope its
not stomach lining damage or something??
Ron
Watch a quad on youtube named chriscolwell. He is a c4-5 that has adapted and
perfected the adaptation of the sticks to fly a drone. Awesome guy to learn
quad things from, he has like a thousand vids.
Ron
On Tuesday, December 20, 2016 9:28 AM, greg wrote:
I wish I
ray <daano...@gmail.com> wrote:
Does your trust affect your ability to get Medicaid funded care? I think
you're limited to having $2000 in your checking or savings account to qualify
for Medicaid.Dana C 4-5 quadriplegia, 42 years post injury.
On Sat, Dec 17, 2016 at 1:25 AM, RONALD L PRACHT <r.p
This is awesome Jim. I paid big money to get mine set up, but its the way to go.
ron
On Saturday, December 17, 2016 12:09 AM, Jim Lubin
wrote:
https://www.disabilityscoop.com/2016/12/16/new-access-special-needs-trusts/23140/
New Law Expands Access To Special Needs
you are right, humidity or something close to it changes it all
Ron
On Tuesday, November 29, 2016 8:51 AM, greg wrote:
I have a remote for a
space heater, I attach it to he cord of my bed remote. I can use it, but must
pull my arm out from the covers, but often can
understand
and I try to make it.
Ron
On Thursday, November 24, 2016 8:29 PM, RONALD L PRACHT
<r.pra...@sbcglobal.net> wrote:
I get so cold while Im in bed I wear a hoodie and a knit cap to try to stay
warm. I even put a heater next to my bed I can turn on. Its crazy but I do
I wanted to thank you Lori for that long , vivid story you told. Over the years
I have enjoyed your brutal honesty in your posts. I think when your a quad you
see things in more detail and very different from the average person. Im glad
you are doing a lot better than you were awhile ago. You
What area in Arizona? How many miles do you put in on a nice day..tell
about your adventure!
On Friday, November 18, 2016 6:15 PM, greg wrote:
This is sunburn season here in AZ. Finely
cooled off enough to spend the day in the sun. I spent the day just
How can a doctor really examine a quad other than bring in a photo? I think
quads that run to the doc at every whim aren't going to live very long. You got
to clean between your legs in the shower, then dry it out. Get clean of any
accidents as quick as possible. Use cream when it gets red. My
lobal.net writes:
Ron...many of the power chair makers have a tech line to call for helpmy
chair guys used to always call when they had problems, perhaps quickie can give
you the answer. Dan H**
On Wednesday, September 28, 2016 7:32 PM, RONALD L PRACHT
<r.pra...@sbcglobal.net>
al Daylight Time, ddh...@sbcglobal.net writes:
Ron...many of the power chair makers have a tech line to call for helpmy
chair guys used to always call when they had problems, perhaps quickie can give
you the answer. Dan H**
On Wednesday, September 28, 2016 7:32 PM, RONALD
..many of the power chair makers have a tech line to call for helpmy
chair guys used to always call when they had problems, perhaps quickie can give
you the answer. Dan H**
On Wednesday, September 28, 2016 7:32 PM, RONALD L PRACHT
<r.pra...@sbcglobal.net> wrote:
I have a 2001 Quickie
I take it and order it as well. They say you cant overdose on it. ron
On Thursday, September 22, 2016 4:50 AM, Carolyn Boyles
wrote:
Also be sure to get plenty of Vitamin C. If you're not on blood thinners or
other prescription medications that would prohibit its
John s
Original message
From: RONALD L PRACHT <r.pra...@sbcglobal.net>
Date: 09/21/2016 7:10 PM (GMT-05:00)
To: Quad-list Post <quad-list@eskimo.com>
Subject: Re: [QUAD-L] Dreams
Has anybody had a dream that you realized was a dream therefore did what you
want. I think its cal
ilable to the public, when they
can get the cost of them down to a more affordable price range. Dan H**
On Wednesday, September 21, 2016 10:42 AM, RONALD L PRACHT
<r.pra...@sbcglobal.net> wrote:
Sometimes Im in a chair, sometimes not.but Im always fighting or cant
keep up. somethi
Sometimes Im in a chair, sometimes not.but Im always fighting or cant
keep up. something is always wrong even if a chair isn't involved.
Ron
On Wednesday, September 21, 2016 9:22 AM, greg wrote:
When you dream, are you
paralyzed, walking, or both? I go back
I was wheeling in my neighborhood and a fire truck stopped and the guys told me
to call in and tell them Im paralyzed, my address and where I sleep in the
house.
Ron
On Tuesday, August 2, 2016 9:23 AM, "wheelch...@aol.com"
wrote:
If it is not available in your
http://pmj.bmj.com/content/81/952/108.full.pdf
Im in my 18th year as well Nicole. Quad life is like a space mission, you
travel through unknown territory and no matter how much you prepare its still
not enough, lol. You are doing well though, I always enjoy your posts.
Ron
On Monday, June 27, 2016 6:58 PM, nichole rohling
I have boxes of sealed 200 count dover 14 French cath tubes. They are the
stiffer rubber easier for quads to insert, individually packaged...200 per
box.If anyone is interested let me know and I will give you a steal of a deal.
Price will depend on shipping cost.
Ron
Im very sorry for such a loss. The only good is he went out on top doing what
he wanted and that's more than even many abs get. God bless
Ron
On Sunday, June 5, 2016 2:28 PM, Larry Willis
wrote:
Wow..just, wow! I am speechless. All my love,
I watched another quad movie called "The Sea Inside Me", where the guy gets
paralyzed diving I believe and lives for 20years and its clearly seen as a
burden to at least his brother, then he meets a woman that becomes his friend
and eventually helps him commit suicide. Another movie that
ardly used, I've always hated it. so big my
feet tangled. I give up on showers. I could get pics and dimentions if any one
wanted to make a trip to ohio.dianna.sending this to you because my mail to
quads list gets returned.
-Original Message-----
From: RONALD L PRACHT <r.pra...@sbcg
Ive got some answers. Will post later. Im in the exact situation. They don't
make the guardian stainless anymore, Im a 6'2 225. I found some possible
solutions. Talk later.
Ron
On Wednesday, May 25, 2016 3:07 PM, "sjg1073...@aol.com"
wrote:
does anyone know where
n 5/19/16, RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:
> Im in a search for a rolling shower/commode chair I found one called a
> Ezeelife aluminum shower chair. Im probally going with the 20 inch model
> with the 24 inch rear wheels for user mobility. Its blue and has a rigid
I found a replacement Invacare seat for 95.00 plus shipping.Its a u shaped deal
but only like 16 deep. I guess I could mount it a little forward to accomadate
it being short. I like the cutout towards the back of chair for easier
transfers.Or I could just take my existing cushion off the
I have an older Guardian roll around shower chair. Im a big, tall guy so years
ago I had the seat cushion custom made then dipped in a grey plastic coating.
An organization called Adaptability actually had the cushion made for me. It
tore a hole in it and is getting water inside and making the
I was going to go to craig hospital in Colorodo for my syrinx surgery. I had an
appointment with dr. Scott Falci and everything seemed wonderful . Somehow they
decided they wouldn't take my United Healthcare insurance and they wanted
50,000 dollars to start out of my pocket, lol. I was so upset
Ive never heard of a post traumatic syrinx causing bowell issues with a quad.
Syrinxes are very complicated in their symptoms though. If you read about it,
ore than likely it will confuse you. Ron
On Thursday, May 12, 2016 12:15 PM, nichole rohling
wrote:
I
Its really troubling that a doctor cant properly organize getting a urine
specimen back in a timely manner. I would feel like they were giving me the run
around or not taking me seriously. Think about it...if a young mother
brought her little daughter in to get a specimen checkeddo
All over the internet you can find things to keep coolthey have
something sold called a Misty Mate they will mist water of you. I use the old
trusty small spray bottle 3/4 filled with water, when I over heat, just spray
your head and your golden. Always wear a hat and sunglasses as
Everybody that lives as a quad has a different situation. The most important
factor is a support system. Some of us have tons of support and some have very
little. In any case we all still have life and we try to do the best we can
with what we have left. The guy with the crushed legs is no
The biggest thing people or the movies don't get is that not walking is the
least of a paralyzed individuals problems and everybody isn't paralyzed from
the waist down. Most also believe that people that can move their arms a little
are not quads. The movie is fun to watch but doesn't show any
Hey Hosni, how have you been doing man. I haven't heard from you in awhile.
Ron
On Sunday, May 1, 2016 5:47 AM, HOSNI AL-KHATIB
wrote:
#yiv0914586217 #yiv0914586217 --.yiv0914586217hmmessage
P{margin:0px;padding:0px;}#yiv0914586217
touching movie bobbie
On Saturday, April 30, 2016 4:31 PM, Gmail
wrote:
https://m.youtube.com/watch?v=Eh993__rOxA
Check out this trailer of a new movie of a male high level quad.Bobbie
Smile Everyday
You can look at Wal-Mart in the workout section they have several different
kinds. Ebay has hundreds of fingerless workout type gloves. Those are the
cheapest places to pick them up, medical outlets charge more
ron
On Friday, April 29, 2016 11:49 AM, "wheelch...@aol.com"
Have any quads on the list let the fire department know they use a wheelchair
and what bedroom they are in?
Ron
On Wednesday, April 27, 2016 10:45 PM, Jim Lubin wrote:
The hotter it is outside the more the air conditioner runs inside even if the
thermostat is turned up a bit. The humidity lowers inside combined with the
fact you are a quad is probally making you cold. Its hard to fight this because
your movement is limited. If you have a fever chills would be
, even if it’s their time frame and not mine. Ron,
I hope you have a good time with the Rio, I will be jealous but hope that you
can enjoy it soon. Joan From: Danny Hearn [mailto:ddh...@sbcglobal.net]
Sent: Friday, April 22, 2016 9:37 AM
To: RONALD L PRACHT <r.pra...@sbcglobal.net>; Qu
Well peeps, I get my rio dragonfly( attachable powered handcycle) from ebay
last week and I was happy about potential fun I would have with it this
spring/summer. This guy I know told me he would come and help me get it fitted
either tues, wed or thurs of this week. in preparation I read
Both you ladies are amazing! I know Ive fought to hard and burned the candle to
much to make it to 40 years post. I doubt I will get 30 yrs post b4 im gone.
Big accomplishment you guys have made.
On Wednesday, April 20, 2016 9:03 PM, "daano...@gmail.com"
t good enough in a manual chair except to move around in level stores
while shopping, been in a powerchair for over 18 years now. I bet you could
really enjoy that on trails . Dan H***
On Monday, April 18, 2016 11:14 AM, RONALD L PRACHT
<r.pra...@sbcglobal.net> wrote:
I have b
I have been using my rio dragonfly handcycle since 2010, so I decided to
upgrade and get the electric powered rio firefly. I found one never used on
ebay for 1500.00 dollars shipped. It looks great, attaches to the front of a
manual chair and has a speedometer and odometer, capable of speeds
t 5:33 PM, RONALD L PRACHT <r.pra...@sbcglobal.net> wrote:
Well Lori, the reason is lack of movement. When I swam just twice a week my
feet were in decent shape. Four years later and Im barely able to cram a shoe
on. Im told the only way to fight it is with passive movement, like in some
s
Well Lori, the reason is lack of movement. When I swam just twice a week my
feet were in decent shape. Four years later and Im barely able to cram a shoe
on. Im told the only way to fight it is with passive movement, like in some
sort of lower exercise for like 20 mins at a time. I found a
For awhile I took a little pillow and rigged some Velcro straps on it to hold
it on my right leg. I sleep on left side,so I would gently set the pillow on my
left knee. Now that my stomach is bigger is holds me further on my side and I
can take the right leg and lay it beside the other leg.
Ron
She has to dwell on survival until living gets to a point where she can breath.
Lori is one of the smartest quads on the list and I have no doubt she will
handle this. God cant help a stopped train, as long as you keep pushing you
will reach the next stage of life. My offer to Lori or any
Simple. Either keep it, which is probally far fetched to keep 2 mobility vans
going and parked or sell it to a person who needs it. I sold one on ebay and
got good money or you can try your hand at craigslist, but without a title its
not much good..you need that.
Ron
On Thursday,
Ive read all about people that have a sexual desire to be with a disabled
individual, be disabled themselves or have a certain disabled fetish like
crippled feet or legs. Ive had men come on to me for that reason, women pretend
to be disabled and phone me. There are paralyzed girls online that
I cant imagine trying to immobilize a shoulder being a quad. I don't have
enough people to care for me to get through that, but I guess you do it when
you must.
Ron
On Monday, March 28, 2016 8:18 PM, "wheelch...@aol.com"
wrote:
Hey, let Carolyn be the 1st and let
Some people say that opioids cause pretty bad scalp itch
Ron
On Friday, March 18, 2016 2:03 PM, greg wrote:
I thought I had my head
itching under control, but the coconut oil topped working. I finely went to a
Dermatologist. About scalp itching and a mole nerve. Can't
What I do with appointments now is I have THEM write the appointment on their
sheet and give it to me. Then I bring the sheet on my clipboard and if there is
any confusion I hand them the conformation they wrote. Either this method or
appointment conformation is the way to go because its a full
It would really depend on the situation how I would perceive a person imitating
me. A gf or mother could get away with a lot, in your case a bro is ok, but a
stranger doing that could upset me. I can say Ive had people imitate how I push
my chair and gfs being funny. A guess its all in the
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