Re: [QUAD-L] BP

[Quadius]

I forgot to mention today was a terrible day. Suffered from a bout of A.D.
which had my BP at 172/99 only to see that dropped to 60/38 about an hour
later when I got up into the wheelchair. It did bounce back, only to drop
once again after I ate.

Suffering from A.D. and orthostatic hypotension is a monster. :-)

On Sat, Oct 15, 2016 at 10:47 PM, Quadius <quad...@gmail.com> wrote:

> Yes Bobbie I have been lower, but I take my blood pressure pretty
> regularly and it gets quite often. I, however, take midodrine as well as
> drink Mountain Dew in order to try to keep it from dipping too low anymore.
> I try to keep mine at around 80/50 or above, but sometimes when I sit up
> after eating or when I first get up, it will dip into the 50s over the 30s.
>
> If you were that low and didn't feel the effects, that could mean that
> your running pretty low most of the time.
>
> I was admitted to the hospital a couple of different times and it wasn't
> until I saw that I hadn't urinated more than 5 mL in four hours that I
> realize how dangerous the low blood pressure can be. They explained to me
> that your organs shut down when the blood pressure gets too low and it can
> cause lasting effects if this happens too often or too much. I ended up
> spending two weeks in the hospital a couple of years ago to see if they
> could determine why my blood pressure fluctuates between extremely high and
> exceedingly low. The specialist decided they would rather it be slightly
> high than too low. Therefore I take quite a bit of midodrine often on.
> Quadius
>
> On Wed, Oct 12, 2016 at 10:40 PM, Bobbie Humphreys <
> bobbiehumphre...@gmail.com> wrote:
>
>> I went to the Doctors today and my BP was 54 over 48
>> Anybody else have low BP?
>> Bobbie
>>
>> "You must fail in order to succeed"
>>
>>
>

Re: [QUAD-L] BP

[Quadius]

Yes Bobbie I have been lower, but I take my blood pressure pretty regularly
and it gets quite often. I, however, take midodrine as well as drink
Mountain Dew in order to try to keep it from dipping too low anymore. I try
to keep mine at around 80/50 or above, but sometimes when I sit up after
eating or when I first get up, it will dip into the 50s over the 30s.

If you were that low and didn't feel the effects, that could mean that your
running pretty low most of the time.

I was admitted to the hospital a couple of different times and it wasn't
until I saw that I hadn't urinated more than 5 mL in four hours that I
realize how dangerous the low blood pressure can be. They explained to me
that your organs shut down when the blood pressure gets too low and it can
cause lasting effects if this happens too often or too much. I ended up
spending two weeks in the hospital a couple of years ago to see if they
could determine why my blood pressure fluctuates between extremely high and
exceedingly low. The specialist decided they would rather it be slightly
high than too low. Therefore I take quite a bit of midodrine often on.
Quadius

On Wed, Oct 12, 2016 at 10:40 PM, Bobbie Humphreys <
bobbiehumphre...@gmail.com> wrote:

> I went to the Doctors today and my BP was 54 over 48
> Anybody else have low BP?
> Bobbie
>
> "You must fail in order to succeed"
>
>

Re: [QUAD-L] Blood pressure

[Quadius]

Greg,
There is no doubt in my mind that you have a similar problem. They tell me
it's orthostatic hypotension. It can come from eating as well as standing
or sitting up too quickly.

When they have trouble getting your blood pressure, try tilting back as far
as you can. I have to tilt back when I eat, because my blood pressure drops
too drastically. That is why I end up taking midodrine every time I eat
when I haven't consumed food in four or five hours.

I usually take my blood pressure just prior to eating in order to determine
whether one-half midodrine will do the trick.

Quadius
PS take this seriously. I was put in the hospital twice for low blood
pressure in the cardiologist and renal doctors were adamant that I needed
to keep my blood pressure higher than 80/50. Even if I went a little too by
for a while. They would prefer my blood pressure to be higher rather than
lower.
I have seen mine dipped down to the mid-50s over 30 something. That's not
healthy.

On Sat, Oct 15, 2016 at 8:36 PM, greg <g...@eskimo.com> wrote:

> I can get super dizzy after eating. And maybe 10% of the time the nurses
> can't hear/find my blood pressure.
> Not sure if related, but think it could be, about 10% of the time they
> can't find a vain to draw blood. When it's that bad, even the light machine
> can't find a vain.
> Greg
>
>
>
> > I have problems with this occasionally, especially after I eat or
> > first get seated in the chair. It's definitely not good to have
> > this low. It's hard on your heart and your kidneys, not to mention
> > all of the other internal organs.
> >
> > Just FYI, if you can't get a reading sitting up, try tilting back
> > as far as you can in the wheelchair or in bed and see if you get
> > one. If it's low, then you might need to talk to a physician about
> > whether it's beneficial to take medication to raise it. They have
> > me taking medication part of the day, but when I get into bed I
> > have pain issues which elevates my blood pressure. So it's a bit of
> > a seesaw as well as a balancing act.
> >
> > Quadius
> >
> >
> > On Fri, Oct 14, 2016 at 11:45 AM, Danny Hearn
> > <ddh...@sbcglobal.net> wrote:
> >
> >> Yes, most quads range very low in blood pressure.mine is the
> >> same as you guys and have had times they can't even get a reading
> >> also.  Dan H***
> >>
> >>
> >> On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net"
> >> <jume9...@comcast.net> wrote:
> >>
> >>
> >> My blood pressure is very like yours Bobbie all the time. They
> >> sometimes can't even get a reading.
> >>
> >>
> >> Meredith
> >> Sent from my LG Mobile
>

Re: [QUAD-L] Blood pressure

[Quadius]

I have problems with this occasionally, especially after I eat or first get
seated in the chair. It's definitely not good to have this low. It's hard
on your heart and your kidneys, not to mention all of the other internal
organs.

Just FYI, if you can't get a reading sitting up, try tilting back as far as
you can in the wheelchair or in bed and see if you get one. If it's low,
then you might need to talk to a physician about whether it's beneficial to
take medication to raise it. They have me taking medication part of the
day, but when I get into bed I have pain issues which elevates my blood
pressure. So it's a bit of a seesaw as well as a balancing act.

Quadius

On Fri, Oct 14, 2016 at 11:45 AM, Danny Hearn <ddh...@sbcglobal.net> wrote:

> Yes, most quads range very low in blood pressure.mine is the same as
> you guys and have had times they can't even get a reading also.  Dan H***
>
> On Thursday, October 13, 2016 10:43 PM, "jume9...@comcast.net" <
> jume9...@comcast.net> wrote:
>
>
>
> My blood pressure is very like yours Bobbie all the time. They sometimes
> can't even get a reading.
>
> Meredith
> Sent from my LG Mobile
>
>
>

Re: [QUAD-L] Back on the list/ pills

[Quadius]

I don't want to jinx myself, but I guess I am luckier than most. I have
pain in my bladder and shoulder.  The shoulder pain is a muscular pain
which can radiate into my neck. If it gets bad enough I have to take
Tylenol three, but I try not to. Knock on wood, I try to take as few of
these as possible. Usually below eight or nine or year.

There are times when I have to take something for the bladder pain, but
right now I don't have anything prescribed. You can buy it
over-the-counter, but I'm trying not to take too much of that because it
can be really hard on the liver.  I usually only take medication for
bladder pain when it is elevated blood pressure.
Q
On Monday, October 10, 2016,  wrote:

> Hi everyone, nice to finally get to read your posts again!
>
> I keep trying to stay on the list but my computer e-mails bounce so now I
> will try again and maybe post from my phone. I am interested in this
> subject of how many pills you fellow quads are taking especially pain meds.
> I have been noticing that my meds do not work as well as they used to and
> my Dr. says that happens in 1 and 5 people but does that happen for any of
> you? If don't mind me asking what you currently taking and if they work for
> you??
>
> Meredith
>

Re: [QUAD-L] How many pills?

[Quadius]

It depends on whether you consider supplements and vitamins. If I count
everything is probably around 10 different tablets. I think it's around six
medications.


On Monday, October 3, 2016, Bobbie Humphreys 
wrote:

> I was wondering, how many different kinds of pills do you guys take?
> I take 3 different kinds.
> Bobbie
>
> "You must fail in order to succeed"
>
>

Re: [QUAD-L] Headgear or tongue drive?

[Quadius]

I use magitex.

On Thursday, September 29, 2016, Gail Overton  wrote:

> Another question for the list. Do you know of any commercially available
> headgear, eye-tracking, or tongue-drive systems for a quadriplegic to drive
> their own chair. The Internet seems to have very little information.
>

Re: [QUAD-L] mattress overlay to rotate the body to avoid bedsores

[Quadius]

https://www.amazon.com/gp/product/B002VWK1B8/ref=oh_aui_detailpage_o00_s00?ie=UTF8=1


On Mon, Sep 26, 2016 at 6:18 PM, DEBRA DEW  wrote:

> someone posted a wonderful inexpensive alternative to buying a whole
> mattress that is very expensive.
>
>
> It was something you laid on top of a mattress and it had air pressure in
> it, that would inflate and deflate to relieve the pressure on one's body to
> avoid bedsores.
>
>
> Somehow I managed to lose the information and I desperately need to have
> it because I am suffering from pressure areas on my bottom. Currently.
>
>
> I would really appreciate any information about this.
>
>
>
>
>
>
>
> *Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot Currently: Quadrapeligic
> due to advanced MS and living in a nursing home Phone: 561-743-5093
> <561-743-5093> Room 227B SC student 20yrs  ROMANS 8:28*
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
>

Re: [QUAD-L] Dreams

[Quadius]

Most of the time now I am paralyzed, but never to the extent that I
actually am. For some reason I'm capable of moving my arms and doing things
that I'm not able to, but I am somewhat paralyzed in my dreams.

Visions of me walking in my head have pretty much diminished over the last
10 years or so.
Q

On Thu, Sep 22, 2016 at 12:13 AM, RONALD L PRACHT 
wrote:

> It doesn't happen to often. I was reading something that was trying to say
> that you can get yourself in tune for such a dream. I just simply am having
> a dream but realize its a dream while the dreams going on. I didn't know if
> such a thing had a name. I thing its a lucid dream. Im sure Im not the only
> person on the list to have one. When Im in a lot of pain I dream more.
>
>
> On Wednesday, September 21, 2016 9:45 PM, alcibiates2 <
> alcibiat...@yahoo.com> wrote:
>
>
> Yes, I have had dreams that I seemed to be in control of. I was doing
> drugs at that time.
> Best Wishes,
> John s
>
>
>  Original message 
> From: RONALD L PRACHT 
> Date: 09/21/2016 7:10 PM (GMT-05:00)
> To: Quad-list Post 
> Subject: Re: [QUAD-L] Dreams
>
> Has anybody had a dream that you realized was a dream therefore did what
> you want. I think its called as lucid dream.
>
> ron
>
>
> On Wednesday, September 21, 2016 11:16 AM, Danny Hearn <
> ddh...@sbcglobal.net> wrote:
>
>
> Sometimes I dream that I can get up out of my chair and walk but not
> smoothly, I walk like a disabled person but everyone around seems thrilled
> about it, not sure what that dream is about but I have had that type a few
> times.   What do you guys think of the exoskeletons that were originally
> invented for the military but in the future they want to make available to
> the public, when they can get the cost of them down to a more affordable
> price range. Dan H**
>
>
> On Wednesday, September 21, 2016 10:42 AM, RONALD L PRACHT <
> r.pra...@sbcglobal.net> wrote:
>
>
> Sometimes Im in a chair, sometimes not.but Im always fighting or
> cant keep up. something is always wrong even if a chair isn't involved.
>
> Ron
>
>
> On Wednesday, September 21, 2016 9:22 AM, greg  wrote:
>
>
> When you dream, are you paralyzed, walking, or both?
>
> I go back and forth. I'd say:
> 50% of my dreams I walk.
> 25% of the time I'm in my chair.
> 25% of the time I'm both. Like I'm in my chair, but I can get up and walk,
> but its very hard and I strugle. Like I'm paralyzed, but I get up and
> strugle to get up to go to the bathroom. Very wierd feeling.
>
> Greg
>
>
>
>
>
>
>
>
>

Re: [QUAD-L] Aaaaaaaaaaaaahhhhh

[Quadius]

I've got a few on my chest which of just appeared over the last six months
and they say their sunspots. Strange, my chest hasn't seen the sun in 21
years.

Maybe next time I'm at the dermatologists I can get them to burn them off
with all of the other stuff :-)

On Sat, Sep 10, 2016 at 8:44 PM, greg  wrote:

> I AM TURNING INTO MY GRAMPA...
> I am getting big spots on my hands, he called them Gingersnaps, liver
> spots, and sun kisses.
> Dime size dark red/brown. Had them checked to be safe, no problems.
> I spend sooo much time in the sun, I worry a bit about skin cancer.
>
> Greg
>

Re: [QUAD-L] Redoing my ileoconduit on Wednesday

[Quadius]

Like everyone else I'm praying that you have a really good outcome and for
the best.
When you say you haven't ilio conduit, do you mean you have a stoma or is
yours go through your bellybutton?

I honestly just know enough to be dangerous :-)

I have what I referred to as a urostomy, but basically I have a stoma which
is attached to my bladder via 9 inches of intestines.  While mine is still
working and is much better than it used to be, I still suffer quite a bit
of pain, but my bouts with A.D. have diminished significantly.

Sorry I really can't be a big help, but I do hope you get everything you
need to get done. Keep us informed.
Q

On Sunday, September 4, 2016, Dana Wray  wrote:

> I have been suffering numerous UTI for the last year and had a number of
> testing. I was just told a week and a half ago that my ileoconduit was no
> longer working and I needed a new one. I didn't realize that urologist I
> had been seeing realized what I was facing. He had given me 4 lithotripsy
> to break kidney stones. The urologist gave me three doctors. I had to look
> up the numbers and call each office. None of the three doctors could do
> that kind of surgery. One of the office managers gave me the name of
> somebody that he thought might do this type of surgery. I had been in the
> hospital for two weeks with sepsis and another urinary tract. The doctor
> said that he had performed over 100 of the surgeries. Two out of three
> people had complications and he had lost some of his patients,
>I don't have any other option. Has anyone ever heard problems on your
> ileoconduit no longer function. Dr. Wyre said that in normal ileoconduit
> will last at the most 40 years. I hope I will hear from someone. I may be
> looking at the wrong words but I'm not really finding documentation about
> the surgery. He will have to cut another 6 inches off my small intestine to
> make a stoma. I don't know the ureters are working properly. I didn't ask
> that question. I had just completed 14 days using a central line after I
> got out of the hospital and I'd already developed another infection. So
> please provide any information.
>   I don't think I have any option, but I'm trying to prepare myself. My
> disability C4-5 quadriplegic complete, 42 years post. Ileoconduit was
> performed after bladder cancer 86. I just had 10 inches taken out of my
> large intestine: in November 2015. Seven lymph were remitted that were
> cancerous. Three were not. I took chemotherapy for a couple months but it
> just cause bleeding. So it was no longer a candidate. They are going to
> peat scan after my surgery,the surgery is going to be 10 hours long at KU
> hospital on 9/7/16.
> There is also something on my ovaries and a couple modules on my lungs. I
> wanted to share this with all of my Quad friends, if anyone can offer any
> information to my medical situation, please respond. It will be hard for me
> to check my messages or the on my computer to read about other persons with
> spinal cord injury with the same problem. Thank you for any input you can
> provide.
>
>
>

[QUAD-L] echo

[Quadius]

I made a discovery today. I decided to pair my iPad to my Amazon Echo and
it worked well. The interesting part was when I started playing a book from
my Talking Books app and simply asked Alexa to pause or stop, not only did
it pause in the room where I was at, but it stopped and started the app on
the iPad.

This a significant for me because it allows me to have a little bit of
control over the playback of the talking books. With the current digital
player I don't any control, but I so enjoy the ability to download books
directly from the Internet. It also has a really good rewind and fast
forward function. The iPad app doesn't have as good a navigational
function, but all in all I like it.

Just thought I would share.
Quadius

[QUAD-L] echo

[Quadius]

I am presently using X 10 to operate lights and fans, but I would like to
switch to a newer system because X 10 is becoming more and more difficult
to acquire and it isn't that effective any longer.

I purchased an Amazon Echo, but I'd like to get a hub which can work with
different devices in order to open locks, operate door openers if possible,
turn on lights and fans. I would eventually like to switch over to
something I can operate with my cell phone, but right now my phone doesn't
work well with Google Now. So I am currently using Dragon Mobile Assistant
to make all of my phone calls and text messages, but this doesn't really
give me full access to my mobile phone.

I would generally just like some feedback on what's good, price effective
and actually works well. It would be a plus if it's not too difficult to
set up.

I'm thinking about purchasing the device which allows me to operate TV and
things like that with echo, but I'm wondering if you have to have one for
each area your operating. I also don't like the fact that you have to tell
echo to turn on something through whatever the name of the device is. I
presently just have to activate my ECU, then give the TV command and say
turn on and then I can do a multitude of things from there.

Hopefully this isn't too confusing.

So basically I just like to know what you're using with your echo and what
you recommend. I would really rather not reinvent the wheel, if you know
what I mean.
Quadius

Re: [QUAD-L] Years they fly

[Quadius]

Congrats

On Sunday, August 7, 2016, Bryce Willis  wrote:

> Hey peeps. On this fine day 45 years ago I entered the world of Quadom.
> August 7, 1971, I made a simple two-foot jump into Green River Lake. My c-5
> vertebra went CRACK and so did my life. Now here I am at age 64 still
> trying to make sense of it all.
>
> Sent from my iPad
>

Re: [QUAD-L] Amazon Echo

[Quadius]

If I have an android on my chair and I currently use Dragon mobile I am
wondering if I could use this to interface with Echo and Blumoo.
Honestly it looks more efficient than the really expensive environmental
control unit the VA had the test for the last couple of years.

I'm still using an older ECU which I've had for 10 years. At least this
version of it and I still like it, but it uses X 10. I'm thinking about the
future and this looks like it could be an extremely viable option.

Thanks for the info.
Quadius

On Tue, Jul 19, 2016 at 3:01 AM, Jim Lubin <jlu...@eskimo.com> wrote:

> here's an example video
> http://support.blumoo.com/support/solutions/articles/1101578-voice-control-version-1-0-features
>
>
>
> On Mon, Jul 18, 2016 at 10:41 PM, Jim Lubin <jlu...@eskimo.com> wrote:
>
>> I've had it for 3 months now. I'm on my computer all day so I can really
>> do everything on the computer that I can do with the Echo. However, I find
>> I am listening to music more often on the Echo, just ask Alexa to play an
>> artist, album, song or a playlist.
>>
>> I also use the Flash Briefing, trivia games, audio books from Prime and
>> Audible.
>>
>> I have not gotten a device to control lights or other electronics.
>>
>> I just got a device to control IR devices (TV, DVR, Bluray, Roku). I got
>> the Blumoo https://smile.amazon.com/gp/product/B00JEMMD9Q/
>> My nurse was helping me set it up today. First, it says it works with an
>> Android or iOS app to do the setup. HOWEVER, to use voice control with the
>> Amazon Echo you MUST USE an IOS device. So keep this in mind if you don't
>> already have an iOS device.
>>
>> We installed the Blumoo app on my iPad Air. Plug in the Blumoo device.
>> All the setup is done on the app. You use the menus to add the devices you
>> want to control. You select the type of device, manufacturer, model. Blumoo
>> sends IR codes to turn the device power on. At this point you now have a
>> virtual remote for each device and can use your iOS device as your remotes.
>> You enter your zip code and select your guide.
>> You can setup macros to do multiple functions with a single press.
>>
>> For the Echo setup, you first enable the blumoo skill on the Echo. Next
>> on the Blumoo app you enable voice, then ask Alex to register your Echo,
>> she gives you a pin number to enter in the Blumo app. You then have to
>> setup voice commands from a fairly large pre-defined menu. We did not see a
>> way to add a custom voice command. Something that worked without
>> programming, "Alexa, tell blumoo to watch channel six five five" and Alexa
>> tells you she is changing to channel number and what program is currently
>> showing.
>>
>> We added voice commands for "volume up" "volume down" "mute" "watch roku".
>>
>> We had to move the Echo to a new location so it could hear my voice over
>> the tv sound. Once doing that it worked good, that is, when Alexa
>> understood me. A few misses and have to repeat.
>>
>
>

Re: [QUAD-L] Amazon Echo

[Quadius]

After reading about all of that uses you guys are getting out of it, I
decided to go ahead and buy one. I was going to wait for Black Friday, but
last week they had prime day and I was able to get one for the same price
as it was on Black Friday. Basically saved about $50.
Q

On Sunday, July 17, 2016, Ed Tessier  wrote:

>  this is exactly the way I am using my Eco as well, with the addition of
> setting alarms, setting timers for kids homework, checking on my Google
> calendar, etc.
>
> The big thing I'm missing (and it might be out there but I don't have time
> to be constantly hunting) would be the ability to place a hands-free call
> to my attendant at the other end of my house either via voip or my iPhone
>
>  basically I'm a huge fan. Even my wife thinks and I was able to it's a
> useful gadget!
>
> *Ed Tessier*
> 909-623-0535
> Mobile: (909) 994-5900
> 909-623-2082
>
> *Jeved Management, Inc.*
>
> On Fri, Jul 15, 2016 at 7:48 PM, Bobbie Humphreys <
> bobbiehumphre...@gmail.com
> 
> > wrote:
>
>> I got my Echo about 4 months ago and use it everyday.
>> I use it to turn on lights via a hub called Wemo Switch, no special light
>> bulb required.
>> I have 2 Wemo Switches for 2 different lamps. The Wemo will turn on any
>> devivpce you have it plugged into.
>> It was a very easy set up through my iPad. I can turn on/off my lights
>> verbally or on th app on my iPad.
>>
>> I also ask my Echo for "Flash Briefing" everyday witch is a 2-3 minute
>> news update.
>>
>> Recently, I've been playing jeopardy, it will ask 6 questions daily.
>>
>> I can get weather in my town or anywhere in the world.
>>
>> I ask Echo to Wikipedia anything I can on the internet.
>>
>> It will tell you jokes, help you with math, spelling or definitions of
>> words.
>>
>> The Echo will also play music with outstanding sound.
>>
>> If your interested in how to set it up and what is involved, go to
>> YouTube.
>> Bobbie
>>
>> Smile Everyday
>>
>
>

Re: [QUAD-L] Interesting Legal Decision

[Quadius]

The big deal for me is entertainment venues. It cost me a fortune to go
watch a sports event because I have to buy two tickets, same thing for
movies and even the museum.
Q

On Sunday, July 3, 2016, donald scott  wrote:

>
> So how do we use this information to help us in our local area and in our
> lives?
>
> *Subject:* Re: [QUAD-L] Interesting Legal Decision
>
> found it
>
> https://www.paed.uscourts.gov/documents/opinions/16D0367P.pdf
>
> On Sun, Jul 3, 2016 at 1:21 PM, donald scott  > wrote:
>
> WOW, That is kind of a big deal. Who has more information about the
> decision and how do we go about enforcing it? I live with my caregiver and
> we go most places together. So is it saying that the PCA gets in free
> basically everywhere? Where it says restaurants and bars it can't mean free
> food and drinks right?
>
> Thanks, Don
> Norwalk, CA. C5-C6
>
> --
> *From:* Eric Olson  >
> *To:* quad-list@eskimo.com
> 
> *Sent:* Sunday, July 3, 2016 11:27 AM
> *Subject:* Re: [QUAD-L] Interesting Legal Decision
>
> Caregivers should get in free but I don't ever see that happening.  Maybe
> if more people start legal action, something will come of it.
>
> On 6/27/2016 1:46 PM, Don Price wrote:
>
> On May 6, 2016, after three years of litigation, a Title III federal court
> case that held that a paid PCA could not be required to pay an admission
> fee to a "public accommodation" when the PCA was working with a PWD.  The
> defendant, the Franklin Institute, did not appeal so it is a final order.
>
> The legal reasoning applies to all Title III entities as the ADA defines
> them below:
> “(7) Public accommodation:
> The following private entities are considered public accommodations for
> purposes of this subchapter, if the operations of such entities affect
> commerce—
> (A) an inn, hotel, motel, or other place of lodging, except for an
> establishment located within a building that contains not more than five
> rooms for rent or hire and that is actually occupied by the proprietor of
> such establishment as the residence of such proprietor;
> (B) a restaurant, bar, or other establishment serving food or drink;
> (C) a motion picture house, theater, concert hall, stadium, or other place
> of exhibition or entertainment;
> (D) an auditorium, convention center, lecture hall, or other place of
> public gathering;
> (E) a bakery, grocery store, clothing store, hardware store, shopping
> center, or other sales or rental establishment;
> (F) a laundromat, dry-cleaner, bank, barber shop, beauty shop, travel
> service, shoe repair service, funeral parlor, gas station, office of an
> accountant or lawyer, pharmacy, insurance office, professional office of a
> health care provider, hospital, or other service establishment;
> (G) a terminal, depot, or other station used for specified public
> transportation;
> (H) a museum, library, gallery, or other place of public display or
> collection;
> (I) a park, zoo, amusement park, or other place of recreation;
> (J) a nursery, elementary, secondary, undergraduate, or postgraduate
> private school, or other place of education;
> (K) a day care center, senior citizen center, homeless shelter, food bank,
> adoption agency, or other social service center establishment; and
> (L) a gymnasium, health spa, bowling alley, golf course, or other place of
> exercise or recreation.”
>
>  This makes sense to me because a person with a disability who requires a
> caregiver to be with them is essentially charged double to enter a
> museum/restaurant/zoo etc.
>
> Don.
> Tempe, AZ
> C5-6
>
>
>
>
> --
> [image: Avast logo] 
> This email has been checked for viruses by Avast antivirus software.
> www.avast.com 
>
>
>
>
>
>
>

Re: [QUAD-L] I'm looking for a better way to click a mouse button

[Quadius]

I have found that I use a simple trackball. Usually logitech is good for me
and a simple mouth stick. It's quicker most of the time, but occasionally I
still use the mouse grid in dragon in order to operate the mouse.

On Monday, July 4, 2016, Dave Krehbiel  wrote:

> Right now I'm using Dragon NaturallySpeaking, and for me the most tedious
> part is moving and clicking the mouse.
>
>
>
> I would like to deliver a presentation using Microsoft PowerPoint or
> something similar, and I would like to have some sort of a hardware option
> to click a mouse. ( I would probably either shut off the Dragon
> NaturallySpeaking microphone or exit the program before delivering the
> presentation.)
>
>
>
> Is there anyway I can use one of my existing micro switches? Maybe modify
> a standard mouse, removing the ball and trying to enlarge the mouse button?
> Any ideas or suggestions are very much appreciated.
>
>
>
> Thanks so much, and take care,
>
>
>
> Dave Krehbiel
>

Re: [QUAD-L] 50 years

[Quadius]

Congratulations. I thought 20+ years was a milestone, 50 is unbelievable.

On Friday, July 8, 2016,  wrote:

> On Sunday, July 10, I will have reached a milestone. I have not known many
> people with severe spinal cord injuries reaching this milestone. On July 10
> it will be 50 years post spinal cord injury. In the past, those on the
> world of  quadriplegics were not expected to reach this milestone. In
> fact, in 1968 after 2 ½ years post injury, my parents made the decision to
> bring me home from the Elizabethtown Cripple Children’s Hospital.  The
> head nurse took my father aside and gave him some advice.  Her advice,
> take him home, buy him a television and wait for him to die. It sounds
> cruel, but the thinking in the 1960s was quadriplegics do not survive a
> long life.
>
>
>
> There are several reasons I have reached this milestone, the first is by
> the grace of God and second is the Vietnam War. During the Vietnam War the
> MASH units were advanced resulting in many soldiers returning home
> severely wounded with many spinal cord injuries and our government pushed
> research on how to better their lives.
>
>
>
> Throughout the years after 1966, many trials, tragedies, blessings and
> lessons were learned. The 2 ½ years I spent in Elizabethtown Hospital
> helped prepare me for these 50 years. Being exposed to all kinds of
> children with illnesses, injuries and birth defects helped prepare me for a
> life much different than I would’ve ever dreamed.
>
>
>
> Starting a small business in the early 1970s seem to reinforce the fact
> that with God’s help I could do anything. I believe that physical issues or
> injuries to a person when they are young gives them the stamina and drive
> to succeed.
>
>
>
> I wanted to work in electronics, but was encouraged by OVR (Office of
> vocational rehabilitation) not to go into this field.  I always was
> interested in electronics and enjoyed making things spark. I told my OVR
> counselor, if you were not helping me to take a correspondence course, I
> would pay for it myself. The Lord put the need on people’s hearts and I
> would take money sent to me in get well cards and put that toward a
> correspondence course. After I had completed three quarters of the course,
> the counselor realized I was serious and OVR paid the last part of my
> education.
>
>
>
>
>
> The Lord always put you in the right place at exactly the right time. In
> the 1970s and early 1980s our country had a gas crisis. One of the things
> jumping in popularity was the citizens band radio. This was the start of my
> journey into the electronics field. The Lord guided me to treat my
> customers with respect and honesty. I definitely followed his lead. We
> migrated from consumer electronics into business communications, then into
> the public service. In 1998, when we sold the business, we had serviced
> fire equipment through our mail in division to 49
>
> States.
>
>
>
> Throughout the years I learned many lessons, some hard and some easy, but
> I learned that God was guiding my life. In the mid-1990s my wife had a hip
> replacement surgery go bad and as she was my main caregiver, outside people
> were hired taking pretty much everything we had saved. No bitterness, this
> is God’s plan, suck it up and follow him. That has been pretty much what I
> have done all my life.
>
>
>
> The last two years have been quite a roller coaster ride. There were days
> that I did not believe I would make it through, other days I felt like I
> could lick the world. Things are still happening physically, but we keep
> our focus on Him and we take each day as it comes.
>
>
>
> I’ve been on the quadlist, probably over 20 years and many times found
> information from others helpful.
>
>
>
> I’m going to “ suck it up”, 51 is only 365 days away.
>
>
>
> Glenn Henry
>

Re: [QUAD-L] Blood Pressure up and down,

[Quadius]

try giving us an example of what kind of high is when you're in bed. Also
give us a example of what it's like in your chair. If you would like I can
go into great deal and to mine, because I probably take my blood pressure
anywhere from 5 to 10 times a day depending on how much trouble I'm having.
I do have high blood pressure in bed often, but a lot of times it's related
to bowels or bladder, but occasionally were not sure. I also have a kidney
stone which might be causing it to remain elevated when I am in bed.

My blood pressure drop significantly whenever I eat, especially when the
blood pressure is not too elevated. I'll give you examples, but let's wait
and see what blood pressure you're talking about first.

Take care,
Quadius
21 years post right now I am functioning as a C4 quadriplegic
although my initial injury was at the C2 vertebrae

On Mon, Jun 6, 2016 at 7:15 PM, DAVID LEWIS <curlyle...@verizon.net> wrote:

> It seems that my blood pressure is kinda ghigh in bed and mostly always
> low.
> Is that what you Quads get ?
> Does anyone take meds for their blood pressure?
> Thanks
>

Re: [QUAD-L] Chris Karson Passes At 46 Years.

[Quadius]

My condolences and prayers go out to you and your family.

On Sunday, June 5, 2016,  wrote:

> My son Chris passed today.  It wasn't his fault.  Injured at 19 years with
> a C4/5 SCI injury from a vehicle crash, he went on to attend at graduated
> Ball State University with a degree is Family Science and Social Service.
> During his rehab period and while attending Ball State U, he designed,
> supervised the construction of North America Fastest Drag Van (10 Seconds @
> 1/4 Mile).  His travels in racing took him all over the Midwest.  During
> the same period, Chris became friends with custom vans and custom vans in
> North America.  He became a Vanner and partnered with the Midwest Vans
> Limited and celebrated with them at so many "truck ins" and Nationals
> (Nats)  Chris, always found time to speak at prisons, to imates and
> juvenile centers with his special messages, several times a year. He
> inspired thousands of people over the years.
>
> Today, as he was returning from a car showing, sitting in the tow van,
> when his driver was towing his trailer and drag van,  along with 4 other
> custom vanners in a convoy,  his van was hit head on by a mini van driving
> at a high rate of speed the wrong way.  The force of the crash caused
> the mini van to catch fire and the fire spread to Chris's tow van.  His
> driver was able to escape thru the broken driver's window and was pull to
> safety while his van friend's tried to open the doors of the tow van and
> deploy the gate lift. The fire was intense. The impact forced Chris and his
> chair up against the lift ramp and he had a seat belt on. His friends burnt
> their hands and arms while trying to get Chris out of the van... to no
> avail and then the fire department and rescue arrived.  Chris lost his life
> quickly, per the corners conversation to me.  Its late this night and I am
> trying to reflex all that has happened today as well as Chris's sudden
> passing.
>
> You have to see his Facebook and the comments that continue to pour in
> from around the world as the people media reacts.  You can visit his
> website: www.karsonracing.com and see for yourself how he inspired
> others.  His facebook:  Chris Karson.
>
> As most can tell, my heart is heavy with grief and the thousand of people
> he affected.
> Best Wishes
>

Re: [QUAD-L] quad movie-You Before Me

[Quadius]

Just let you know the movie is called Me before You.

I choose not to watch movies about quads anyway. I live the life, so why do
I want to go to a movie and see more about that. That's just my personal
opinion.

I'm in favor of death with dignity, but they're definitely should be
constraints so that mentally incompetent people are not putting other
people in a terrible position. Just my two cents.

On Fri, Jun 3, 2016 at 1:05 AM, Jim Lubin  wrote:

> I agree Gail.
>
> I remember when when WA passed the Death with Dignity Act, i.e.
> assisted-suicide, I was contacted by a reporter who wanted my option as a
> ventilator dependent quadriplegic and assumed I was against it.The reporter
> said a person in my condition might be pressured to using it. I replied
> that I was in favor of the Act. I think people should have the right to
> decide. Also pointed out that the Act as signed into law in Washington
> state would never apply to me in my condition. For one, you must be
> suffering from a terminal disease and have less than six months to live,
> which I am not. If I did ever end up suffering from a terminal disease, I
> don't meet one of the other provisions that the patient must
> self-administer the medication, which I am unable to do.
>
> The reporter never replied to me.
>
> On Thu, Jun 2, 2016 at 8:12 PM, Gail Overton  wrote:
>
>> The decision to live is a personal one, and humans should not be
>> criminalized for committing suicide if they choose. Everyone has different
>> levels of disability and deals with them differently. In the wild, injured
>> wolves are shunned by the pack. Humans say they are different, but should
>> they be? Not everyone has a great support system and living can be more
>> painful than dying in many cases. The right to death should be judged no
>> more than the right to life.
>>
>>
>>
>> *From:* Lori Michaelson [mailto:lorilivin...@gmail.com]
>> *Sent:* Thursday, June 02, 2016 5:53 PM
>> *To:* Ben Mattlin; quad-list
>> *Subject:* Re: [QUAD-L] quad movie-You Before Me
>>
>>
>>
>> The movie Whose Life Is It Anyway? [opened December 1981] starring
>> Richard Dreyfuss is another movie. I watched it several years ago and still
>> have it.  Plot below:
>>
>>
>>
>> *Whose Life Is It Anyway? *is a 1981 film adapted by Brian Clark
>> 
>>  and Reginald Rose
>> 
>>  from
>> a 1972 television movie and Clark's play of the same title. The film is
>> directed by John Badham
>> 
>>  and
>> stars Richard Dreyfuss
>> 
>> .
>> Plot
>>
>> After a car accident, sculptor Ken Harrison becomes a quadriplegic
>> 
>>  who
>> sues for the right to end his life
>> ,
>> no longer able to create art, make love or have any semblance of a normal
>> existence. He hires a lawyer (Bob Balaban
>> )
>> who, reluctantly at first, represents Harrison while knowing that he is
>> trying to win his client a death sentence
>> 

Re: [QUAD-L] 27 years ago...

[Quadius]

You have made an enormous difference in many peoples lives and I for one am
grateful.

On Tuesday, May 17, 2016, Jim Lubin  wrote:

> 27 years ago today I woke up with a pain in my shoulder. Less than 2 hours
> later I could not stand, stopped breathing and my heart stopped. Paramedics
> revived me. I woke up in a hospital unable to move, unable to speak and in
> so much pain I just wanted to die. Two weeks later I was given a diagnoses
> of acute transverse myelitis. Today, still paralyzed from the neck down,
> dependent on a ventilator to breathe, but otherwise good health and rarely
> any pain.
>

Re: [QUAD-L] One Comment and Two Questions Needing Advice On

[Quadius]

I was advised to have a current list of medications on my refrigerator and
have it labeled as such. My refrigerator is a bit chaotic, but everyone in
my family knows that the list is there so I don't even have to tell anyone
if I'm unable to communicate in case of an emergency.

It's also a good idea to have a list near your bed.

Quadius

On Thu, May 5, 2016 at 10:02 PM, Carolyn Boyles <cboy...@swbell.net> wrote:

> First, thanks to all of you. I have learned so much I didn't know since
> joining the loop.
>
> Second, both my husband and myself have medical conditions. We are on
> prescription medications. In the job he has just started he has to drive
> himself all over the state unlike his previous job where there was always
> an investigator with him. Also, we aren't getting any younger. We know it
> is possible that a situation might arise for either one of us where we have
> to call for an ambulance but might not be able to communicate what is the
> immediate concern, our medical histories, and what prescription drugs we
> are on. I know there are companies in the US that make a variety of
> products for this purpose. I have seen an ad for Road ID. We tried medic
> alert bracelets for just basic information, but they just don't hold up
> over time (but for that matter, neither have we:-)). I am looking for
> recommendations of products/services in the US for something we can carry
> with us to communicate necessary information.
>
> Third, before my injury, I sweated like a pig. Since the injury unless I'm
> about to go into autonomic dysreflexia, I don't sweat. I live in a hot,
> humid Southern state in the US. I am looking for recommendations on gear I
> can buy to keep me cool. I have a baseball cap that holds water in it, but
> it's not enough. Please advise.
>
> Thanks.
>
> Carolyn
>

Re: [QUAD-L] Donate a power chair

[Quadius]

If it still functional, contact your nearest ALS organization. I believe
it's the one that received a lot of money from that ice bucket challenge. A
long time ago I was able to donate things to them that others wouldn't take.

On Monday, April 25, 2016, greg  wrote:

> I wanted to donate  chair for a tax deduction. It was real hard to find a
> place. It was hard enough finding a place to just give it away. If you
> don't want a deduction, try like Craigs List, or often local papers have
> free classifieds for donation stuff.
>
> Greg
>
> > Does anybody know where or how I can donate my old power chair?
> > Bobbie
> >
> > Smile Everyday
>

Re: [QUAD-L] itching

[Quadius]

I have an interesting problem until recently. I had a tremendous amount of
itching and flaking problems for the better part of the first 18 1/2 years
I was injured. I, however, have pretty much resolved my dandruff and in
large part the itching problems I had.

I began working on this eager and a half ago. I worked with the product T
gel shampoo whenever the dandruff was really bad, but the key was to let
the product sit on your scalp for 5 to 7 minutes. I also had to wash my
hair at least every third day, preferably every other day because my hair
was so oily and looked disgusting.

Well I started to use hats in order to drive my chair with a Magictek. So
even though my hair got oily, I started watching it less and less and
noticed a significant improvement in the flaky scalp. After about eight
months of this I noticed that the oiliness had diminished to the point
where I didn't have to wash my hair but once a week. It still looks good
throughout the majority of the week.

My hairstylist said that when you wash it too much it encourages the hair
to produce too much oil. Anyway, I was able to gradually use generic forms
of head and shoulders in order to control the dandruff and right now (knock
on wood) I haven't had to use a dandruff controlling shampoo in more than a
year.

Good luck on getting rid of the itching.

Quadius
PS in an effort to disclose everything, I do have problems with itching on
my face and hair whenever my blood pressure goes up or I have minor A.D. I
don't consider this part of the itching scalp problem because this is
purely neurological.

PSS sorry if I made too many mistakes, I was in a hurry and didn't really
go through my correspondence to carefully.

On Sat, Mar 19, 2016 at 4:56 PM, <airgant...@aim.com> wrote:

> Me tooI thought it was just me, but I see otherwise.  As soon as I
> lay down, I have my aide take a pick and go to work in my head :-).  Feels
> s good.  Right up there with orgasms and q-tips in your ears :-).
>
>
> Larry
>
>
>
> -Original Message-
> From: William Lang III <blan...@icloud.com>
> To: greg <g...@eskimo.com>
> Cc: quad-list <quad-list@eskimo.com>
> Sent: Sat, Mar 19, 2016 12:23 pm
> Subject: Re: [QUAD-L] itching
>
> I had terrible flaking and itching from my scalp for years until I
> switched to TGEL shampoo. Expensive but store brand alternatives work just
> as well.
>
> Our skin does not have 'oils' secreeted from the organ. Just as most of us
> don't sweat. Still, I enjoy getting my head scratched every night before I
> go down.
>
> Bill Lang via IPAD HD
>
>
> On Mar 18, 2016, at 15:03, greg <g...@eskimo.com> wrote:
>
> I thought I had my head itching under control, but the coconut oil topped
> working. I finely went to a Dermatologist. About scalp itching and a mole
> nerve. Can't do much about the mole nerve. I need to see a Neurologist,
> about maybe killing the nerve.
> She gave me a bottle of Tarsum, you put it on before you shower, let set.
> Over The Counter, but you have to get the pharmacy to order it usually.
> Hopefully it helps,
> Greg
>
>

Re: [QUAD-L] Incomplete quads -- ability to gain strength?

[Quadius]

so true. I myself never gained any use of my muscles, but my ability to sit
upright and do things increased much more through repetitive work. I was
able to get the use of my diaphragm and therefore don't have to use a
ventilator to breathe. I am a C23 quadriplegic incomplete.
Q

On Mon, Mar 28, 2016 at 2:38 PM,  wrote:

> Para's are much more easier to compare, physical strength.Quads are so
> much different, like snowflakes. One issue with C-Quads is muscle fatigue.
> Physical Therapist, that work with C-Quads know that if they allow a client
> to over exercise a muscle, permanent damage could occur.  Therapist know
> how much strength they can get from a client.   Generally, its not to
> improve, but to preserve.
> I hope this helps
> Best Wishes
>
> In a message dated 3/25/2016 1:41:19 P.M. Central Daylight Time,
> ga...@pennwell.com writes:
>
> My husband is an incomplete C3 quad able to move every muscle except still
> weak after almost 1.5 years of therapy (started out at 6 hours per week and
> now up to 10 hours per week). People tell me ten hours of therapy per week
> is not enough, especially when they only work on one muscle group 15
> minutes say 2 to 3 times a week. Are there any “incomplete” quads out there
> with this type of experience and trying out therapy only to find they
> cannot get stronger? HELP!
>
>

Re: [QUAD-L] foleys

[Quadius]

I had a supra pubic for about 17 years. I had to have my bladder diverted
into a urostomy due to bladder atrophy, pain from the catheter rubbing
against the bladder and terrible bladder spasms. I was having three or four
battles with A.D. every week.

Unfortunately the urostomy hasn't been the fix everyone thought it would be
for me. I still have significant trouble with pain, but it is much better
than the last couple of years with the SP.

Like Bob said, a suprapubic is easily reversed. You can simply let the hole
close and go back to a normal catheter if necessary.

I wish you the best of luck
Q

On Mon, Mar 28, 2016 at 3:19 PM, Fragile  wrote:

> When I 1st switched over to a suprapubic, it caused Autonomic
> dysreflexia. After about 6 months, I started using a Duette instead of
> the standard catheter, made a big difference.
>
> On 3/28/16, diannal...@aol.com  wrote:
> >
> > i'm going to a urologist in april to discuss getting a suprapubic foley.
> > I've been a quad for 25 yrs. can I get some feedback on pros and cons
> before
> > I go?
> > dianna
> >
>
>

Re: [QUAD-L] One More ?

[Quadius]

I have heard all kinds of different answers. Me personally I charge my
cheer every other day. Do you had another charge port?  What type of
chair do you have? One thing I do is check to see if the chair is charging
by turning my display on.

On Thursday, March 24, 2016, Danny Hearn  wrote:

> They tell me to try and never let it get low and to charge every
> nightthey said waiting to charge it would weaken the batteries.  Dan
> H***
>
>
> On Thursday, March 24, 2016 3:50 PM, nichole rohling <
> zoocr...@windstream.net
> > wrote:
>
>
> If you have Group 24 Gel Cell batteries do you charge your chair every
> night even if you barely use it or charge it once it gets low?
> I’ve been told both ways so I’m asking the experts J
>
> Thank you
> Nicki
>
>
>

Re: [QUAD-L] Manicure/pedicure?

[Quadius]

Which nails are thick? Toenails or fingernails?

I go to a professional in order to get my nails done. They do use a file
for some of it, but they tend to use a very soft one which doesn't bother
me at all. If the file is to rough it can cause bad sensation.

As for bleeding under the nails, I might suggest that you soak his fingers
in a basin for about 10 to 15 minutes. It would also be a good idea to try
to exfoliate all of dead skin off of the hands. There is some really good
tools which have a rubber end on them (most manicurist have them available
in my give one to you if you explain what you need it for) so you can clean
under the nails in order to get all the debris out without causing bleeding.

I have problems with bleeding also, but I tend to use lotion under the
nails in order to keep the fingertips from being too dry.

If you can find a really good manicurist, they can really help with the
nails and get them whether not so crusty. Lately I've had to have a
pedicure done because I was having some difficulty with fungus. It has
helped considerably, but you need to find a manicurist who understands
English and is willing not to be too aggressive on the feet.

Also I might recommend soaking the fingers before you cut the nails and
then using the smallest clippers you can get. There also baby nail clippers
which might help you out. Sometimes I have to close my eyes and try not to
think about the nails when they are cleaning out the bottom of them because
I am sensitive to that also. It drives me up a wall, but I would rather
have my nails clean and fungus free, so I put up with the discomfort for a
little while.

Good luck. And the suggestion about a podiatrist is a good one especially
when it comes to toenails. From my experience are pretty aggressive
though.
Q

On Thu, Mar 3, 2016 at 12:47 AM, Gail Overton  wrote:

> My husband is a quadriplegic but with full sensory feeling from head to
> toe. As his caregiver, I am frustrated because the only way I was taught to
> trim and file nails is by using a nail file. His nails are so thick and he
> is so sensitive that he cannot stand a file and so I tried to use a dremel
> tool with grit bit but more often I make him bleed. Does anyone know how to
> trim a quad’s finger and toenails? He doesn’t want to go to a manicurist
> because they would probably file them too…..
>

Re: [QUAD-L] Temp

[Quadius]

Mine is 97.8.  This is a problem whenever you go to the hospital or have
any shoe with a temperature. They think 99° is nothing and when you and
Abby normal body temperature 1° below everyone else, 99 is a kin to 100.
I really hate the one size fits all approach to medicine. When I woke
around 100 that's the same as a normal person's 101. Therefore I am running
a serious temperature of 100.
Q

On Tuesday, February 16, 2016, greg  wrote:

> What's your averge body temp?
> Mine ranges between 95.7 and 96.5
> On good days.
> Greg
>

Re: [QUAD-L] Fwd: [Spinal Cord Peer Support USA] What year were ya'll injured, what level & how?

[Quadius]

95
C2-3 incomplete

On Sunday, February 7, 2016, Bryce Willis  wrote:

> August 7, 1971, Saturday about 1:30 pm. C-4-5-6, 19 years old, taken to
> hospital in a hearse cause there were no ambulances. About 45 years ago.
> Bummer X 100.
>
> Sent from my iPad
>
> Begin forwarded message:
>
> *From:* "Bobbie Humphreys"  
> >
> *Date:* February 7, 2016 at 9:19:50 PM EST
> *To:* Spinal Cord Peer Support USA  >
> *Subject:* *[Spinal Cord Peer Support USA] What year were ya'll injured,
> what level & how?*
> *Reply-To:* Reply to Comment <
> g+40jykwud00bjyk3y00gosx8x14za000zg3lonev134...@groups.facebook.com
> 
> >
>
>   Bobbie Humphreys posted in Spinal Cord Peer Support USA .   Bobbie
> Humphreys February 7 at 9:19pm   What year were ya'll injured, what level &
> how? 1973 C4,5,6,7. Motorcycle   Like Comment
>
>
>
> 
> Facebook
> 
>
>
>
> Bobbie Humphreys
> 
> posted in Spinal Cord Peer Support USA
> 
> .
>
> 
> Bobbie Humphreys 
> February 7 at 9:19pm
>
> What year were ya'll injured, what level & how?
>
> 1973 C4,5,6,7. Motorcycle
>
> Like
> 
> 
> Comment
> 
> 
>
>
>
>
> View on Facebook
> 
> 
>
> Edit Email Settings
> 
> 
>
>
> Reply to this email to comment on this post.
>
>
>
> This message was sent to lwillis82...@msn.com
> . If you don't want
> to receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025
>
>
>

Re: [QUAD-L] Shoulders

[Quadius]

Where does it hurt on the shoulder blade. Is it where the shoulder blade
and the neck attached? That's where I get my pain. Some of mine is caused
because I don't have any support for the back of your arms when I lean back.
I have some suggestions if it's back there, but don't really know much
about shoulder joint pain. My pain is always starts on the upper left-hand
portion of the shoulder blade and then radiates up into the neck and the
head.

On Thursday, February 11, 2016, greg  wrote:

> My shoulder is so sore, like a knife stuck in my left shoulder blade. It
> can hurt so bad some days I want to throw up. Other days nothing. The sun
> or heat pad helps, but nothing else. No pain meds even dent the pain. Even
> though I have no feeling in most of my arm, it often feels like I have a
> numb nerve going down my arm out my middle finger. Like I banged my elbow
> really hard on something.
>
> I have weird shoulder blades, but doc said not sure that would cause my
> issues. From years in a chair, and sitting back with shoulders back, my
> shoulder blades touch. Sometimes even over lap.
>
> Greg
>

Re: [QUAD-L] Falling forward

[Quadius]

I've indicated I have a chest strap, but actually mine is more of a
shoulder strap. He said it is very similar to the way a car seatbelt strap
to cross the shoulder from the driver side.
No dangers with breathing problems that way.

On Thursday, December 31, 2015, Larry Willis  wrote:

> Wow. I did something very similar a few years ago, but thank goodness was
> rescued in time. It scared the heck out of me though.
>
> Larry Willis
> Retired and proud of it
>
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
> 
> *From:* glenn henry  >
> *Date:* December 31, 2015 at 4:29:24 PM EST
> *To:* quad-list@eskimo.com
> 
> *Subject:* *[QUAD-L] Falling forward*
>
> Weird but true:
>
> I've read several posts about wearing a chest strap. I am a C-5/6 with
> some balance, but I had a friend who was a C4/5.
>
> I have never worn a chest strap, but my friend always wore one. For some
> unknown reason, when by himself, he decided to go down a steep hill by his
> barn. The area was grass and the front wheel sunk into the ground throwing
> him forward. The foot rests of his wheelchair kept him from falling
> forward, but there he was his body stuck in midair. They found him several
> hours later, but too late as the chest strap would not allow him to breathe.
>
> Just weird but true.
>
>

Re: [QUAD-L] Can i ask everyone how much Baclofen they take daily?

[Quadius]

80 mg Baclofen, 75 mg dantrolene and 2.5 mg diazepam
Q

On Tuesday, February 2, 2016, DAVID LEWIS  wrote:

> Im a quad, i have more spasms now. I have to up my Baclofen to 65 mg a day.
> How much u guys take daily.?
> thanks
>

Re: [QUAD-L] Could use some help: Debris in the suprapubic catheter tube

[Quadius]

I would recommend talking to your urologists and possibly looking at the
likelihood you might have developed stones. In the past the increased
sediment for my SP was almost always due to bladder stones. However, it
also might be what you're drinking. If for instance you are drinking things
that have a high acidity, it might be causing your urine to become more
deluded. For instance I have had this problem with lemonade in the past.

On Thu, Jan 28, 2016 at 11:09 PM, Paul Jacobson 
wrote:

> Hello SCI people,
>
> I am a healthy 52 yr old using a sp tube for 11 years.  I normally change
> it
> every 3 weeks but in the last few months I have had a good deal of debris
> in the tube and am forced to change it once per week.
>
> I have tried to flush using 30 cc of Renacidin solution and distilled
> water,
> but I get AD from the flushing.  In addition, I get bladder spasms (which
> I take
> 4 mg of Detrol LA 1x/day and 8 mg of Cardura 1x/day) throughout the day
> which also cause AD.  Trying to get back to normal!
>
> Any input would be so helpful.
>
> Best,
> Paul  c5/6
>
>

Re: [QUAD-L] Pain

[Quadius]

When this happened to me and caused my shoulder muscle to spasm so badly
that I had to be rehabilitated. I still reinjure the shoulder periodically.
Good luck on dealing with the pain issues.
q

On Mon, Jan 4, 2016 at 1:37 PM, greg  wrote:

> I think I figured out why I was so ^#$2# sore the last few days. My right
> lateral support was bent out a bit. So I was sitting slightly tilted over,
> right shoulder dipping down. Once I got it fixed I feel much better. Still
> have my regular pain issue, but lots better.
> Greg
>
>

Re: [QUAD-L] Fwd: The Comfort Company Adjuster Vicair Cushion vs. Roho Wheelc...

[Quadius]

how much does it cost?

On Mon, Dec 28, 2015 at 1:44 PM, Larry Willis 
wrote:

>
> No, I haven't tried it. Just saw it advertised. It's pretty expensive.
>
> -- Forwarded message --
> From: 
> Date: Monday, December 28, 2015
> Subject: Re: [QUAD-L] Fwd: The Comfort Company Adjuster Vicair Cushion vs.
> Roho Wheelc...
> To: lwillis82...@gmail.com, quad-list@eskimo.com
>
>
> Larry, Have you tried  this cushion?
>
> In a message dated 12/27/2015 8:05:09 P.M. Eastern Standard Time,
> lwillis82...@gmail.com writes:
>
>
> You guys know anything about this cushion?
> Vicair by comfort company.
> Larry Willis
> Retired and proud of it
>
>
> Begin forwarded message:
>
> *From:* lwillis...@yahoo.com
> *Date:* December 27, 2015 at 8:00:42 PM EST
> *To:* "lwillis82...@gmail.com" 
> *Subject:* *The Comfort Company Adjuster Vicair Cushion vs. Roho
> Wheelchair Cushion!*
>
> Check out this video on YouTube:
>
> http://youtu.be/vEz86ggv8pw
>
>
> Sent from my iPad
>
> =
>
>
>

Re: [QUAD-L] Wow

[Quadius]

I thought these things were much more cost-effective. Possibly around $1000?

On Wed, Dec 23, 2015 at 7:57 PM, Danny Hearn  wrote:

> Yep, It's a shame Larry...even with insurance folks can hardly afford to
> get things done. Dan H**
>
>
> On Wednesday, December 23, 2015 6:50 PM, Larry Willis <
> lwillis82...@gmail.com> wrote:
>
>
> Here is something that makes me sick to my stomach. My wife is making
> arrangements to get a defibrillator. The hospital sent us a projected cost
> statement today. This is based on entering the hospital at 10:30 am,
> installing the device, and leaving before lunch the next day. Est. cost -
> $150,000. That is double what my house cost. This does not include doctor
> bills. I am at a loss for words. Perhaps these might work - greed, evil,
> immoral, senseless, disgusting, unfair, crazy, sickening. Any thoughts on
> this?
>
> And other countries provide free healthcare?
>
>
>

Re: [QUAD-L] colostomys

[Quadius]

I have the surgery performed in late May. The recovery was next to nothing.
I didn't have any problems with pain or anything like that.

I had difficulty with my bowels transitioning to the colostomy. My body
kept wanting to put out a large amount every 48 hours because I had been
doing that for 20 years.  We ended up going to bowel irrigation (similar to
an enema through the colostomy stoma).  We do this every two days and it
really helps with my bowels. Don't have too many problems with stoll coming
out at odd times.
Wish I had done it earlier.
Q
On Saturday, December 5, 2015, jume9...@comcast.net 
wrote:

> Please, those of you who have colostomy's. I need some answers. I have had
> it! My aide didn't show up AGAIN so of course gotta find a new person. I
> can't take one more day training and hoping to keep someone for BM
> mornings. Not to mention how they rule my schedule. Could I please get some
> info about how severe is the surgery, recovery, problems that I may
> encounter such as infections etc. I am truly afraid od of surgery but I
> need to do something!!
>
> Meredith
>

Re: [QUAD-L] Recommendations for a trackball please

[Quadius]

Dave,
I use a mouse stick and Dragon, not to mention my trackball. I have been
using the same trackball for a good eight years now. I simply got one from
logic Tech and it had no problem with it whatsoever. In fact I don't really
like the newer models, so I've stuck with the old one. Even though it is
wired.

The really not that expensive and they are much better than a mouse, in my
opinion.
q

On Fri, Dec 4, 2015 at 2:43 PM, Dave Krehbiel 
wrote:

> I can move my arms but not my fingers, and I am using Dragon
> NaturallySpeaking with Windows 8. In some cases, it can be tedious or
> difficult or impossible to move the mouse pointer using Dragon
> NaturallySpeaking. Does anyone use a trackball which they recommend?
>
>
>
> Thanks so much,
>
> Dave Krehbiel
>

Re: [QUAD-L] SP Cath size

[Quadius]

I used 22 French and 24 fr when I have a suprapubic. Have you tried putting
a little bit more fluid in the balloon?  Also you might want to try getting
some sort of device to tether the catheter to your body.

I had a great success with this when I had my suprapubic.
Q
On Tuesday, November 24, 2015, greg  wrote:

> Those with a SP cath, what size do you use? After how many years?
>
> For about 15 years I used a 16F, but it started leaking around the cath
> itself, through the incision. So I changed to a 18F. But after only a few
> years, it's leaking again. Only at night. No idea why. Not blocked, not
> plugged, no junk in it, no sweating. In the morning everything is wet,
> night bag 1/4 full. So it's draing some, but not backing up causing AD or
> anything. I don't want to keep going up in size. How often do you go up in
> size?
>
> Thanks, Greg
>

Re: [QUAD-L] Motorcycle?

[Quadius]

I can almost guarantee you there at the garage down there in Las Vegas for
the show counting cars to do it, but like wheelchair pointed out the
capital outlay would be very significant.

On Wednesday, November 18, 2015, greg  wrote:

> Can they add the joysick drive system from a van, onto a 3 wheel
> motorcycle?
> I've seen some cool looking wheelchair accessible motorcycles, but they
> still use hands to drive from manual chair. lt looks like it should be
> easier than setting up a van. I think that would be cool. Greg
>
>

Re: [QUAD-L] Shingles vaccine

[Quadius]

Problem with me is I don't know if I ever contracted chickenpox or not. I
was exposed several times, but didn't break out with the full illness.

On Thursday, November 12, 2015, Gmail  wrote:

> Everybody out there.
>
> Get the shingles vaccine if you have not already.
>
> I did it. The inject you at the back of you upper arm (I'm not sure why)
> but I have no feeling there.
>
> I had to hang out near the pharmacist to see if I had a reaction.
>
> I live in a senior citizen apartment building and somebody always seams to
> have shingles.
>
> I know one person on this list who got it on their face and in their eye.
>
> Bobbie
>
> Smile Everyday
>
> > On Nov 12, 2015, at 2:09 PM, greg >
> wrote:
> >
> > I'm falling apart as I'm getting older. Bad hip, bad shoulder, spine
> curving, heavy chest when laying flat, anxiety issues, uncontrollable
> shaking feeling frozen if head not up high enough in bed (even if too hot).
> Just got over a UTI and the antibiotics caused a very painful yeast
> infection in crotch, then yesterday I find out a rash I have is Shingles.
> >
> > I was spasming so bad last night I new if I was in bed I'd not sleep and
> go stir crazy, so I stayed up in my chair all night. The yeast infection is
> so painful, just toughing anywhere in the area causes spasms so hard, AD
> makes my head feel like it's going to explode. Hopefully 24 houses on meds
> and cream will take some tenderness away tonight.
> >
> > Greg
> >
>
>

Re: [QUAD-L] Amazon Echo or other voice control device

[Quadius]

does anyone have a link to the new mobility article on this? I am always
interested in ECU type technology.

On Tue, Nov 17, 2015 at 4:23 PM,  wrote:

> That item was featured in this month's issue of New Mobility Magazine
> Best Wishes
>
> In a message dated 11/17/2015 2:57:38 P.M. Central Standard Time,
> wheel...@centurylink.net writes:
>
> Has anyone purchased the Amazon Echo to control lights and other plug in
> devices?
> I seen "Smarthome.com" is having a sale on it with Insteon Home Control
> Hub. This Insteon & Amazon Echo Starter Kit includes an Amazon Echo and
> an Insteon Home Control Hub.
>
> I have the Imperium 200h which is an environmental control unit that can
> work with tv, hospital bed and x-10 plug ins to control anything plugged
> into the plugs.
> It uses a 2 way button. I would rather have voice control. If any6body
> that has an old Imperium 200H or is interested in buying mine, let me know.
>
> If you have the Amazon Echo please email me whe...@cvn.net
> Thanks,
> Derrick W in PA
>
>

Re: [QUAD-L] Gallbladder problems?

[Quadius]

I had a colostomy surgery performed in late May, but I had some
difficulties with too much still coming out every other day and blowing the
waffer.  I was at wits and when I contacted the store when yours from the
colostomy supply company as well as my own stoma nurse. They both suggested
bowel irrigation.  Since my body have been used to doing the bowel regimen
every other day for 20 years, we switch to irrigating my bowels every other
day and have had tremendous success with that.  It's not for everybody, but
it has made my somewhat irritable bowel problem much easier to control.
That way if I get diarrhea I am able to put on an irrigation sleeve and
repeat my bowel regimen.
Q

On Wednesday, November 4, 2015, nichole rohling 
wrote:

> I had a major hemorrhoidectomy last December and considered a colostomy
> then.
>
> The amount of feces coming out at night would probably blow a colostomy bag
> offseriously.
> However, I am having pain when sitting on shower chair and I think it's my
> rear (hemorrhoids), we just don't see any prolapsed yet.
>
> I will again be considering a colostomy if more problems present.
>
> Nicki
>
> -Original Message-
> From: greg [mailto:g...@eskimo.com ]
> Sent: Wednesday, November 04, 2015 6:08 PM
> To: nichole rohling
> Subject: Re: [QUAD-L] Gallbladder problems?
>
> I was having issues like that, also about 1 or 2 times a week I was leaking
> just enough to leave a mark and smell. I was embarrassed every time I had
> to
> get lifted out of my chair. I finely got a colostomy. I only wish I would
> have gotten it 30 years ago. I put it off thinking it would be
> embarrassing,
> but it was s much nicer. Fast, easy, clean, 2 minutes a day, 5 minutes
> once a week or so. And that's over estimating. I recommend looking into it
> and asking your Doc.
> Greg
>
>
> > For about 3 ½ months I have been having problems w/ having to call one
> > of my caregivers to come and get me up on my shower chair at night
> > about 3.5 to 4 hours after I eat dinner.
> >
> >
> > It was once a week then I quit taking Culterelle and I've been going
> > about 10 to 14 days in between episodes. No particular type of food
> > sets it off, Monday night it was stew.
> >
> >
> > The stool isn't watery but lacks form, kind of like a cow
> > patty...I know, gross.
> >
> >
> > I do bowel program on M W F and it has been both on bowel program days
> > and not on bowel program days.
> >
> >
> > Open to any and all experiences or suggestions..calling dr in the
> > morning.
> >
> >
> > Nicki
> >
> > C5/6
>
>
>

[QUAD-L] work from home

[Quadius]

Hello everyone,
I haven't written in a while to write a question. I do remember someone
mentioning a while ago about ways to work at home. Well, my brother has
recently reinjured his back and is unable to go back to work right now.
Does anyone have any ideas on work from home.

He is really struggling financially. He's eliminated landline, cable, and a
multitude of other things. I remember someone mentioning you can earn some
money by doing surveys.

I really do appreciate your feedback. The way I look at it this information
can help many of us on here.
Quadius

Re: [QUAD-L] Wife recent SCI

[Quadius]

The new Roku 2 can actually be operated with a universal remote. You have
to look carefully, but there is some information on it out there. The new
systems are operating with infrared as opposed to Bluetooth.

On Wednesday, October 21, 2015, Dave Krehbiel 
wrote:

> Sorry to hear about your wife, but you have come to the right place.
> Personally I use Dragon NaturallySpeaking on a Windows 8 PC, and I use my
> computer to change the channels on the television using the xfinity web
> site. press my television is seven or so years old, and I'm sure the newer
> models have additional wireless functionality. And there is a program
> called Remoku which allows you to control your Roku box (for Netflix) using
> your computer browser.
>
>
>
> Dragon NaturallySpeaking can be quite frustrating. I find it is most
> accurate and least frustrating when you dictate letter by letter. It is
> tedious to try to move the mouse using Dragon. And some Windows software
> doesn't work very well with Dragon. But I use it every day nonetheless.
>
>
>
> Regarding friends: someone on this forum once said that most of their
> current friends are people they have met post accident. I have found this
> to be true in my case as well.  I have a number of wonderful friends who
> have stuck with me over the years, but a much larger number of my former
> friends I just don't see anymore. Don't be afraid to go out and make new
> friends.
>
>
>
> Good luck, and take care,
>
> Dave Krehbiel
>
>
>
> *From:* Dr.Ron and Sharion Austin [mailto:ronausti...@gmail.com
> ]
> *Sent:* Wednesday, October 21, 2015 9:38 AM
> *To:* quad-list@eskimo.com
> 
> *Subject:* [QUAD-L] Wife recent SCI
>
>
>
>
> ​My wife is a recent SCI C5 (may 31). While we are dealing with a lot now
> (as most of you know better than I) we will get through this leaning on our
> faith, family and friends. Bruce had mentioned voice activated software to
> be able to use her I-pad and computer.  What are most of you using?  How
> about being able to control the TV?
>
> Also have any of you used or have an opinion of the MOTO med movement
> therapy (an exerciser for legs and/or arms).
>
> Thanks for any info
>
> Ron Austin​
>
>
> --
>
> Living in God's Grace
>
> Ron
>

Re: [QUAD-L] Weather

[Quadius]

Last week it was pretty decent around here. High 70s and low 80s for the
hottest period of the day. The Low actually got to around 68° yesterday

On Tuesday, October 20, 2015, greg  wrote:

> I'm so spoiled with the weather here in Phoenix. It's just now starting to
> cool off, below 100. This week we've had some clowds and rain, so it's
> dropped to the 80s. I'm inside feezing, all wrapped up. I feel tight, bone
> cold. I used an electric blanket last night after dinnr. I ennded up giving
> myself a fever by bedtime. Greg
>
>

Re: [QUAD-L] Calcium

[Quadius]

I had osteopenia, but they still took me off excessive amounts of calcium
about 10 years ago. There was a study on this back then which said the same
thing. I have had copious amounts of bladder stones and a large kidney
stone which developed. So far I am doing better with the bladder stones and
a kidney stone is 9 mm, but in a position where it doesn't seem to be
causing too much problem.

It's better to just get the calcium in a multivitamin and take it in
through other vegetables.

Quadius

On Wed, Sep 30, 2015 at 7:25 PM, Bryce Willis <lwillis82...@msn.com> wrote:

> Well, just watched an ABC news report that said calcium supplements do
> absolutely no good and may actually cause organ damage. Calcium has always
> been a quad's main defense against osteo.hasn't it?  am
> a man of constant sorrooow...I've seen troubles all my days! We got us
> some obstackles boys! He done gone and got saved!
>
>
> Sent from my iPad
>

Re: [QUAD-L] Calcium

[Quadius]

I do range of motion. No I don't have any other medication for bone
building that I am aware of.
Q

On Wednesday, September 30, 2015, Gmail <bobbiehumphre...@gmail.com> wrote:

> I do a serious of stretching for a good 10 minutes ... then I meditate.
> Bobbie
>
> Smile Everyday
>
> On Sep 30, 2015, at 9:02 PM, Larry Willis <lwillis82...@gmail.com
> <javascript:_e(%7B%7D,'cvml','lwillis82...@gmail.com');>> wrote:
>
> Quadius, do you take any of the other "bone-building" drugs? Or exercise?
>
> Larry Willis
> Retired and proud of it
>
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
> <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>
> *From:* Quadius <quad...@gmail.com
> <javascript:_e(%7B%7D,'cvml','quad...@gmail.com');>>
> *Date:* September 30, 2015 at 8:00:08 PM EDT
> *To:* Bryce Willis <lwillis82...@msn.com
> <javascript:_e(%7B%7D,'cvml','lwillis82...@msn.com');>>
> *Cc:* "quad-list@eskimo.com
> <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>" <
> quad-list@eskimo.com
> <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>>
> *Subject:* *Re: [QUAD-L] Calcium*
>
> I had osteopenia, but they still took me off excessive amounts of calcium
> about 10 years ago. There was a study on this back then which said the same
> thing. I have had copious amounts of bladder stones and a large kidney
> stone which developed. So far I am doing better with the bladder stones and
> a kidney stone is 9 mm, but in a position where it doesn't seem to be
> causing too much problem.
>
> It's better to just get the calcium in a multivitamin and take it in
> through other vegetables.
>
> Quadius
>
> On Wed, Sep 30, 2015 at 7:25 PM, Bryce Willis <lwillis82...@msn.com
> <javascript:_e(%7B%7D,'cvml','lwillis82...@msn.com');>> wrote:
>
>> Well, just watched an ABC news report that said calcium supplements do
>> absolutely no good and may actually cause organ damage. Calcium has always
>> been a quad's main defense against osteo.hasn't it?  am
>> a man of constant sorrooow...I've seen troubles all my days! We got us
>> some obstackles boys! He done gone and got saved!
>>
>>
>> Sent from my iPad
>>
>
>

Re: [QUAD-L] outdoor ramp in snow

[Quadius]

I should've mentioned that I am forced to back into my van because I am too
tall. Going in forward is not an option because I would hit the driver seat.

On Saturday, September 26, 2015, Derrick <wheel...@centurylink.net> wrote:

> This is what I used on van ramps and home ramps.
> http://www.noskidsafety.com/anti-slip-tape-non-slip-tapes.aspx
> It stays on van ramps but I have to replace on outdoor wood ramp every
> other year depending how much shoveling .
>
> I have a long outdoor ramp and it costs $150 of tape. That's why I was
> looking for something last longer or cheaper.
> Derrick
>
> On 9/24/2015 6:08 PM, Quadius wrote:
>
> I don't have to deal with snow, but you brought up something that I deal
> with fairly regularly and haven't come up with a good solution yet. When I
> go enter my van (minivan) I have problems with my wheelchair not getting
> any traction when it is raining. What do you guys use to get into your vans
> during the winter months or when it's raining?
> Q
>
> On Thursday, September 24, 2015, Derrick <
> <javascript:_e(%7B%7D,'cvml','wheel...@centurylink.net');>
> wheel...@centurylink.net
> <javascript:_e(%7B%7D,'cvml','wheel...@centurylink.net');>> wrote:
>
>> hi,
>> For those who live in the frigid winters in the nothern states, what do
>> you use for traction on wooden ramps?
>> I have used the anti-slip tape($150) but it does not last more than 1-2
>> winters nor give you great traction.
>>
>> I have stained my ramp. My friend tried sand in paint but it did not last
>> or turn out good.
>>
>> I am researching and trying to find a conveyor belt and/or rubber matting
>> with ribs.
>> Has anyone ever tried this?
>>
>> What do you use on your ramp?
>> Thanks,
>> Derrick W
>> ps: sorry for bringing up the cold snow topic. if you live in the north
>> you will understand that "snow" is not spoken of ..lol
>>
>>
>

Re: [QUAD-L] outdoor ramp in snow

[Quadius]

I have an additional problem because I am tall and have to tilt back in
order to get into my van. You would think this would make it easier to get
traction on the back wheels, but it doesn't. Worst part is that because I'm
tilted back it won't let me go up the ramp at full speed. Therefore I don't
get a lot of power.

On Friday, September 25, 2015, Larry Willis <lwillis82...@gmail.com> wrote:

> Quadius, I have that same problem. Getting on the lift requires a bit of
> speed, but going lift to van requires traction. My weight tilts the van and
> creates an incline. When the lift is wet, I require a bit of assistance.
> Let me know when you find a solution.
>
> Larry Willis
> Retired and proud of it
>
>
> Begin forwarded message:
>
> *Resent-From:* quad-list@eskimo.com
> <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>
> *From:* Quadius <quad...@gmail.com
> <javascript:_e(%7B%7D,'cvml','quad...@gmail.com');>>
> *Date:* September 24, 2015 at 6:08:45 PM EDT
> *To:* Derrick <wheel...@centurylink.net
> <javascript:_e(%7B%7D,'cvml','wheel...@centurylink.net');>>
> *Cc:* "quad-list@eskimo.com
> <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>" <
> quad-list@eskimo.com
> <javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');>>
> *Subject:* *Re: [QUAD-L] outdoor ramp in snow*
>
> I don't have to deal with snow, but you brought up something that I deal
> with fairly regularly and haven't come up with a good solution yet. When I
> go enter my van (minivan) I have problems with my wheelchair not getting
> any traction when it is raining. What do you guys use to get into your vans
> during the winter months or when it's raining?
> Q
>
> On Thursday, September 24, 2015, Derrick <wheel...@centurylink.net
> <javascript:_e(%7B%7D,'cvml','wheel...@centurylink.net');>> wrote:
>
>> hi,
>> For those who live in the frigid winters in the nothern states, what do
>> you use for traction on wooden ramps?
>> I have used the anti-slip tape($150) but it does not last more than 1-2
>> winters nor give you great traction.
>>
>> I have stained my ramp. My friend tried sand in paint but it did not last
>> or turn out good.
>>
>> I am researching and trying to find a conveyor belt and/or rubber matting
>> with ribs.
>> Has anyone ever tried this?
>>
>> What do you use on your ramp?
>> Thanks,
>> Derrick W
>> ps: sorry for bringing up the cold snow topic. if you live in the north
>> you will understand that "snow" is not spoken of ..lol
>>
>>

Re: [QUAD-L] Adaptive dress cothing for men

[Quadius]

I can wear button-down shirts and other things, but I have to wear my strap
across my body. It goes from my left shoulder down to my right hip. Just
like a seatbelt.

I have a friend that did the same thing Joan did and it worked out fine for
him.
I I have found that pants aren't as difficult as you might think to wear.
I basically wear boxer briefs below my pants to protect my skin and because
my urine bag comes off the side of my right leg I have had someone cut
Velcro into the side so I can put the bag through there.

I know one company that does it for veterans, but I'm not sure if there are
any other companies out there to do is type of service for reduced rates.
Q

On Wednesday, September 23, 2015, Dave Krehbiel 
wrote:

> I'm getting tired of T shirts and stretch pants. I have a chest strap
> which helps hold me upright in my chair (along with lateral supports). In
> order to hide it,  I have a modified sweatshirt (split down the back) which
> hides the strap, but I'm looking for some more dressy options. Do you know
> of a source of adaptive clothing which can hide a chest strap?
>
>
>
> Thanks,
>
> Dave Krehbiel
>

Re: [QUAD-L] not gettig any posts

[Quadius]

Not sure if anyone's posting it all. I haven't had one in a couple of days
myself.
Q

On Monday, September 21, 2015, carolyndeand...@comcast.net <
carolyndeand...@comcast.net> wrote:

>

Re: [QUAD-L] New Chairs

[Quadius]

If you're using a magitex it will dampen the amount of speed. My chair
can usually do about 7 miles an hour, but I'm only able to do 5.8 with my
magitex

On Saturday, July 25, 2015, linda...@comcast.net wrote:

 Greg I had a Quickie PS 320  loved it then I got a Quantum with the
 Majitek Drive system which was really fast but the Chair tech could never
 get it programmed right for me. Now I have a Quantum 4000 with their
 control system  it is fast also in speed three.
 Linda F.

Re: [QUAD-L] That look

[Quadius]

I know what you mean. I am not big on reality shows, but I was recently
watching Who Do You Think You Are and I saw an advertisement for a new
reality show entitled My Giant Life. I was intrigued, so I decided to watch
the first episode today. Even though I'm not that tall, I can relate in a
small degree do what their going through. It's different, but it rings so
familiar in how we have to deal with people in public.

If you get a chance check it out. It's worth watching at least one episode
to get an idea.

Quadius

On Mon, Aug 3, 2015 at 3:01 AM, Naomi Hudson ladyno...@aol.com wrote:

 I went to Outback Steakhouse today also. I go there often and I find the
 staff quite helpful. They even sat me and my husband in a section that was
 closed because it was more convenient for me and my wheelchair. I know
 that's just at Outback, but we can get the look at any time, at any
 place. It makes you want to say I'm not contagious. You won't catch
 anything It's just sheer ignorance! I guess I've gotten past that point,
 because I don't pay attention to people's reaction of me anymore.

 Have a Blessed Day, Naomi


 -Original Message-
 From: Gmail bobbiehumphre...@gmail.com
 To: quad-list quad-list@eskimo.com
 Sent: Sun, Aug 2, 2015 5:09 pm
 Subject: [QUAD-L] That look

 Today I went to outback by myself and when I left I asked the hostess to open
 the door, she did but gave me that look as if what I have was contagious.
 I
 haven't seen that look in a long, long time.

 Smile Everyday

Re: [QUAD-L] Belly binder

[Quadius]

I've been using abdominal binders for 20 years now. They aren't that
difficult to put on it you know how to do it or have the help. Because if
you're doing it by yourself it is difficult.

As for me, it keeps my posture straight which helps me prevent the shoulder
injuries whenever I'm not in proper position. It also aids in my breathing,
blood pressure, and appearance. I don't use it for the bowels anymore. I
got more out of abdominal massage therapy when I was doing my bowel
regimen. Now I have a colostomy, so that doesn't apply.

I used an abdominal binder with a suprapubic for about 17 years and had no
difficulty with it whatsoever. I have boys worn my abdominal binder about
an inch or two above where the suprapubic goes in. I did have problems with
my suprapubic, but that was because of bladder atrophy.

My abdominal binder woes are pretty complicated now. I have an urostomy and
a colostomy, which requires a special type of abdominal binder. Whenever I
wear the top binder without the lower one to support my belly protrudes a
little too much down there and causes difficulty with the way first.

I have ordered a new abdominal binder, but right now I'm using one which
was designed for a urostomy and I cut a hole in the other side. It works,
but it's not the greatest.

I do have a slight quad gut, but if I take the abdominal binders off it's
much more pronounced in my spine curves a lot more. That's why it's
important to where the abdominal binders for many people. You can
definitely tell the difference between someone who wears them all the time
and people who do not. At least that's my opinion. I'm sure there are some
people who are able to maintain posture without abdominal binders.

Hopefully that helps a little.
Quadius
sorry about the errors, I'm in a hurry and I'm bouncing around a little bit
in my chair. Therefore my desk microphone is it necessarily picking up my
voice the way it should be. It's my fault, but I need to exercise while I'm
dictating. :-)

On Tue, Jul 14, 2015 at 9:52 PM, Fragile swl...@gmail.com wrote:

 any chance that you, or anybody else here uses one of these and also
 has a suprapubic catheter? Does the catheter get in the way?

 On 7/14/15, greg g...@eskimo.com wrote:
 
  I use a binder on and off. When my breathing is not well, or when my
 stomach
  is not feeling well, or just going out somewhere nice.
  There are lots of types of binders, some have up to 6 straps to tighten
 and
  close. I use a real simple one. Very easy to use and no straps. It just
  folds over tight. Best one I've used and least cost.
 
 
 http://www.amazon.com/gp/product/B002WUZ7GI?psc=1redirect=trueref_=oh_aui_detailpage_o00_s00
 
  Greg
 
 

Re: [QUAD-L] doctors

[Quadius]

I'm usually required to see my doctor a couple of times a year, but my Dr.
will do video chats, so I actually don't have to go in that often to see
her.


On Wed, Jul 8, 2015 at 12:52 PM, diannal...@aol.com wrote:

 how do you get doctors to make home visits?

 Now I’ve only got 1 doctor I see and he does a visit to my house once a
 month.




 -Original Message-
 From: Danny da...@immortaldesigns.co
 To: diannal767 diannal...@aol.com; jlubin jlu...@eskimo.com;
 quad-list quad-list@eskimo.com
 Sent: Wed, Jul 8, 2015 4:40 am
 Subject: RE: [QUAD-L] doctors

   Now I’ve only got 1 doctor I see and he does a visit to my house once a
 month.

 -Danny

 *From:* diannal...@aol.com [mailto:diannal...@aol.com
 diannal...@aol.com?]
 *Sent:* Tuesday, July 07, 2015 9:41 PM
 *To:* jlu...@eskimo.com; quad-list@eskimo.com
 *Subject:* Re: [QUAD-L] doctors

 gp, rarely. pain management every 6 mos. wound doc is new due to pressure
 sore on my elbow and oncologist every 3 mos. cat scan every 6 mos. i'm
 tired of doctors. too many visits to the cleveland clinics!! on the other
 hand, i'm grateful for free health care when needed.
  dianna

 quads, do you see a doctor on a regular bases?

  I'm in good health so I don't see a need to a doctor, and it is
 difficult to go to out.



  -Original Message-
 From: Jim Lubin  jlu...@eskimo.comjlu...@eskimo.com
 To: quad-list  quad-list@eskimo.comquad-list@eskimo.com
 Sent: Tue, Jul 7, 2015 3:14 pm
 Subject: [QUAD-L] doctors
  quads, do you see a doctor on a regular bases?

  I'm in good health so I don't see a need to a doctor, and it is
 difficult to go to out.

Re: [QUAD-L] Sprained my ankle.

[Quadius]

friend of mine did this to and ended up with a spiral fracture. Good luck
hopefully you'll get better quickly.

On Wed, Jul 8, 2015 at 2:52 PM, DAVID LEWIS curlyle...@verizon.net wrote:

 There's always a new twist to us Quads.
 About 6 weeks ago i turned my wheelchair quickly and i caught my foot on
 something and twisted it bad.
 That night it was really swollen. They came to my house and x -rayed it
 and they  said from what they saw there's no broken bones.
 The thing is, it still swells up during the day [ its the leg bag leg ]
 but goes down in the morning. Thats all fine but now my leg spasms really
 bad as if someone is grabbing it now.
 I think i messed a tendon up or something to make that nerve fire out for
 a spasm. What u think i should do?
 Anything happen like that to you. Please let me know.

Re: [QUAD-L] Oxygen

[Quadius]

the dizziness you're experiencing when you get up could be low blood
pressure. You can also get it from not being able to breathe well, but my
experience low blood pressure is mainly the cause of my lightheadedness.

On Tue, Jul 7, 2015 at 2:26 PM, Larry Willis lwillis82...@gmail.com wrote:

 I experience that every now and then, especially when I am lying on my
 side and my quad gut flops out. I am also weak and dizzy when I first get
 up, but I think that is normal.

 Larry Willis
 Retired and proud of it


 Begin forwarded message:

 *Resent-From:* quad-list@eskimo.com
 *From:* greg g...@eskimo.com
 *Date:* July 6, 2015 at 10:17:29 PM EDT
 *To:* quad-list@eskimo.com
 *Subject:* *[QUAD-L] Oxygen*

 Do any of you non vent quads feel like you need oxygen ?
 I'm a C/5 and often feel like I'm not getting enough air, like I can't
 breath deep enough.
 My oxygen count is high enough, around 94 or higher.


 Thx, Greg

Re: [QUAD-L] Old

[Quadius]

very well put Dave.  I have also noticed how someone recovers pretty nicely
or gets a little more return than others it might be because of their
faith. Don't they understand that it implies those of us in don't get
better don't have faith or don't have strength of character.

Every time someone says I look better than most quads, I am quick to say I
have a good support system. Not everyone can say that. I used to do more in
the advocacy area, but over the last several years I haven't been healthy
enough to do so. I'm hoping that I can get back to my old self. Right now
I'm having a few bad days myself, but since my colostomy surgery I am doing
a bit better than I was before.

Knock on wood.
Q

On Wed, Jul 8, 2015 at 8:50 AM, Dave Krehbiel davekrehb...@earthlink.net
wrote:

 Someone on this forum said, quadriplegics are like snowflakes, they are
 all different.



 I sometimes feel offended when some person who has a different injury than
 mine and much more support than I have is presented in the news as a role
 model. The TV show seem to present the idea that the reason this person is
 overcoming their difficulties is because of their strength of character and
 positive mental attitude and persistence. The implication is: the rest of
 us just are not trying hard enough and have a bad attitude.



 The reality is: some of us are having a pretty rough go of it. But nobody
 wants to see a story about that on television.



 Dave Krehbiel



 *From:* RONALD L PRACHT [mailto:r.pra...@sbcglobal.net]
 *Sent:* Saturday, July 4, 2015 1:07 PM
 *To:* Quad-list Post
 *Subject:* Re: [QUAD-L] Old



 I was told once that if you cry you will cry alone. These special quads
 have learned the art of giving people what they want to see and hear and
 cry at home behind closed doors. It has allowed them to be a roll model and
 receive support. The one thing that all super quads have is
 support...they have much family, friends, checkbook, donations,
 caregivers. The average quad just doesn't have all that behind them and
 sadly the disabled community is more like I have it and you don't rather
 than helping every disabled individual get the support they need. There
 isn't anything fair about how things are dolled out to help the
 disabled.Its who you know, are you worth spending money on (Voc Rehab) and
 the sqeaky wheel gets the oil.



 Ron





 On Saturday, July 4, 2015 11:48 AM, greg g...@eskimo.com wrote:



 They are faking it!




  meds I take, thank goodness not all days are real bad...I have some
  pretty good days but on other days I feel like I'm turning into a
  grumpy old man--i don't see how Joni Erickson Tada and a few others
  can be s cheerful all the time, I try but it is a
  stuggle !  Happy 4th to yopu all today !!!

Re: [QUAD-L] oldest quad

[Quadius]

I spoke with Mr. Boyd, or should I say I was in contact with him via email
after the first article about the oldest living quad came out.
At that time I believe he was the oldest living quad as far as long-term
injury goes, but I think it's all up in the air when you determine who has
been a quad for the longest.

Hopefully he is still with us.
Q

On Thursday, July 2, 2015, linda...@comcast.net wrote:

 Mr Boyd  was a great person.
 lindaf

 --
 *From: *wheelch...@aol.com
 javascript:_e(%7B%7D,'cvml','wheelch...@aol.com');
 *To: *gah17...@gmail.com
 javascript:_e(%7B%7D,'cvml','gah17...@gmail.com');, quad-list 
 quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');
 *Sent: *Wednesday, July 1, 2015 2:50:28 PM
 *Subject: *Re: [QUAD-L] oldest quad

  I remember Mr Boyd in Louisiana some years back.  He was a pilot in WW
 II and was in his 90's.  He was quite the English Freak and spoke the
 King's English and a poet too.   I hope he is still doing well.
 Best Wishes

  In a message dated 7/1/2015 1:41:31 P.M. Central Daylight Time,
 gah17...@gmail.com javascript:_e(%7B%7D,'cvml','gah17...@gmail.com');
 writes:

  Anybody know how long the oldest post sci quad lived?

 GA

Re: [QUAD-L] Bowel Blockage

[Quadius]

Whenever I've had a similar situation I use a little more magnesium
citrate. It eventually works its way through my system.

Good luck.


On Sun, Jun 21, 2015 at 12:55 PM, William Lang III blan...@icloud.com
wrote:

 Quad Buddies,

 Having trouble with SEVERE constipation. Blocked up real bad this time,
 enemas don't seem to work. Getting to the point where AD is an issue.
 Really want a top down solution. Took Citrate of Magnesia did not help.

 Anything I can take to guarantee to make me go?

 X-ray showed no blockage just a lot of stool.

 Stopped up in NJ

 Bill Lang via IPAD HD

[QUAD-L] more colostomy issues

[Quadius]

I apologize in advance for the graphic nature of the email. So, if you are
squeamish or don't really care to read about colostomy difficulties please
disregard.

I am writing on this website because I have the unique problem of being a
quad with a colostomy and unable to use my hands to do a lot of the
maintenance issues which able-bodied people are able to win may have
colostomy's.

I am having difficulty with pancaking. For those of you, like me up until
at least a few minutes ago, who had no idea what this is, it is when the
stool collects at the stoma and doesn't push down into the bag.

Do any quadriplegics have that problem with their colostomy and if so what
do you do to alleviate the problem? I am presently using a deodorizer which
has some lubricant in it in addition to a cleanser which also is supposed
to facilitate the movement of the stool. Neither is working effectively.

The stool is soft, but it's not diarrhea type.

Thanks,
Quadius
PS we were doing pretty well with the colostomy wafer. Basically I'm using
the same technique I use for my urostomy, just adding a little bit of stoma
paste.
However, pancaking does create a problem even for a well sealed colostomy
wafer.

[QUAD-L] magic bullets

[Quadius]

Okay, here's the deal. Since I have a colostomy I no longer need my magic
bullets. I have some which have been in the refrigerator for a while and
might be slightly expired. They will still work, but might not be as
effective as the brand-new ones.

Sometimes I don't get the magic bullets until they only have one month left
on the expiration date. That's the problem with getting them from the VA,
but I don't want to waste them and throw them out.

If you would like some of them, please contact me privately and I will see
what I can work out with you. Don't worry, I'm not looking to make money at
all. Just email me and we can chat about it.
Quadius

Re: [QUAD-L] Live in Aide

[Quadius]

Yes that's very true. It might be a good idea to try to get some pro bono
legal help in order to make sure you don't have a squatter situation.

On Tuesday, June 16, 2015, diannal...@aol.com wrote:

 one more bit advice that i forgot in my reply, write a CONTRACT or you
 might get stuck with a squatter who dooes the very least!!


 -Original Message-
 From: Danny Hearn ddh...@sbcglobal.net
 javascript:_e(%7B%7D,'cvml','ddh...@sbcglobal.net');
 To: diannal767 diannal...@aol.com
 javascript:_e(%7B%7D,'cvml','diannal...@aol.com');; lwillis82153 
 lwillis82...@gmail.com
 javascript:_e(%7B%7D,'cvml','lwillis82...@gmail.com');; memyself 
 memys...@cox.net javascript:_e(%7B%7D,'cvml','memys...@cox.net');;
 quad-list quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');
 Sent: Tue, Jun 16, 2015 11:34 am
 Subject: Re: [QUAD-L] Live in Aide

   True, Like Dianna and others said, It depends on whom you hire and what
 they are willing to do as a live in caregiver.In my area sleeping rooms
 alone go for an average of $100-$150 each week, So you figure that person
 can save at least $600 per month on rent, Plus they will not need to pay
 utility bills if you do, so they save that way also,After figuring that
 stuff in, then you need to write a list of all you want done and see how
 much cash they want on top of the free live in home, Like Dianna said if
 they just want pay under the table, they usually take a bit less, but you
 need to work out a monthly pay for them that you can both be happy with.
 Good luck, let us know how it works out when you get it all set up down the
 road.  Dan H.***



On Tuesday, June 16, 2015 10:02 AM, diannal...@aol.com
 javascript:_e(%7B%7D,'cvml','diannal...@aol.com'); diannal...@aol.com
 javascript:_e(%7B%7D,'cvml','diannal...@aol.com'); wrote:


  no one can answer this question. it has a realm of questions in itself
 and the individual your hiring. will they have a $400.00 car paymnt,
 insurance, other expenses such as clothing. are you paying them under the
 table or will they need to pay taxes? i'm going to chime in at $2,000 a
 month. now anyone NEEDING a place to stay just might be the one you can't
 depend on.  could also depend on where you live.
 dianna


 -Original Message-
 From: memys...@cox.net javascript:_e(%7B%7D,'cvml','memys...@cox.net');
 [mailto:memys...@cox.net
 javascript:_e(%7B%7D,'cvml','memys...@cox.net');]
 Sent: Monday, June 15, 2015 9:25 AM
 To: quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');
 Subject: [QUAD-L] Live in Aide


 Those with live-in attendants, other than room and board, how much do you
 pay them?

 And what is asking too much for them to do?
 If they work weekdays, when food shopping, is asking them to get groceries
 for weekend too much?
 Or when making dinner, adding more for a live-in failmy member too much?
 As far as cleaning, what's too much? Keeping cupboards and frig cleaned
 out?
 Wiping floors off,
 Things have changed over the years, I need more, but can't afford to pay
 more.
 But I've ask for so little over the years, asking for more now is like
 askig for a lot more, even though it still seems less than other quads
 probably ask for.

 I'd like to find out what others pay for live-in help. Not hourly, just
 monthly.




  -Original Message-
 From: Larry Willis lwillis82...@gmail.com
 javascript:_e(%7B%7D,'cvml','lwillis82...@gmail.com');
 To: quad-list quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');
 Sent: Mon, Jun 15, 2015 4:24 pm
 Subject: Fwd: [QUAD-L] Live in Aide

   Don't know. But I do know it's considerably more than I could possibly
 afford. Don't want to be a downer, but there is no easy answer to quad
 life, unless you are wealthy. Would all the quad millionaires please raise
 your hand! Not all at once now! Might overload the net!

 Larry Willis
 Retired and proud of it


 Begin forwarded message:

   *Resent-From:* quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');
 *From:* Gail Overton  ga...@pennwell.com
 javascript:_e(%7B%7D,'cvml','ga...@pennwell.com');
 *Date:* June 15, 2015 at 12:33:56 PM EDT
 *To:*  memys...@cox.net
 javascript:_e(%7B%7D,'cvml','memys...@cox.net');  memys...@cox.net
 javascript:_e(%7B%7D,'cvml','memys...@cox.net');, 
 quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com'); 
 quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');
 *Subject:* *RE: [QUAD-L] Live in Aide*

   I'd like to know as well, having been paying $13 an hour for caregivers
 but thinking of moving back home and hiring live-in help. Will not ask them
 to pay room and board and will buy all groceries, but would be curious to
 know what someone would need to be paid monthly if housing and meals are
 taken care of. ROGER


 -Original Message-
 From: memys...@cox.net javascript:_e(%7B%7D,'cvml','memys...@cox.net');
 [mailto:memys...@cox.net
 

Re: Fw: [QUAD-L] 47th Anniversary - 6/7/68 - Did anyone see my post?

[Quadius]

I hope things will get a little better for you. I myself have been having
many health related issues over the last couple years, but I'm pretty
confident it's going to get better at least for a while.
You are 100% correct about getting old as a quad sucks, but the alternative
is much worse for most of us.

On Friday, June 12, 2015, Nan nlg52...@yahoo.com wrote:

 I posted this on 6/7, but never saw it post to my email.  Just wondering
 if folks saw it...

 On Jun 7, 2015, at 9:02 PM, Nan nlg52...@yahoo.com
 javascript:_e(%7B%7D,'cvml','nlg52...@yahoo.com'); wrote:

 Well, another year down.  The last 6 months have been fraught with medical
 problems ... 3+ weeks in ICU in December. Spiraled downhill after putting
 my dog down.  Didn't eat or drink - ended up septic ... vent, pic line,
 feeding tube, pull the plug discussions - the whole 9 yards.  Don't
 remember much which I am very thankful for.  Another week in the hospital
 in March - my potassium skyrocketed and they called me at 10PM to tell me
 to go to ED.   Got that under control.  Nurse smashed my knee while in
 during March, nice sore there now.  My legs got so thin from being in bed,
 so now I have 3 sore on my left leg, one is down to the bone. The Wound
 Care Clinic is beginning to feel like home!  Feeling much better now.
 Hopefully things will start to look up now.

 Getting to be an old quad sucks ... but, I still think it's better than
 the alternative!

 Hope everyone is well.

 Nan

[QUAD-L] Re: problems with colostomy wafer

[Quadius]

Thanks everyone. I really appreciate you taking the time to respond. I also
have a urostomy and am perplexed as to why I'm having difficulties right
now. We did try using just a little stone and paste and we also decided to
use the same method we use for the urostomy.  So far it seems to be working
considerably better than it was the way they showed us.

Unfortunately my nurse friend from down the road is on vacation. She's the
one that showed me all the tricks for the urostomy.


On Saturday, June 13, 2015, Gmail bobbiehumphre...@gmail.com wrote:

 Quadius, I have a Urostomy and had a wound underneath the adhesive part.
 That was after playing around with different stoma appliance companies and
 brands.
 I strongly recommend you talk to, or go see, a stoma nurse.
 Every hospital had one and many visiting nursing companies (or
 competitors) should have a stoma nurse on staff.
 Good luck,  Bobbie

 Smile Everyday

 On Jun 12, 2015, at 5:33 PM, Quadius quad...@gmail.com
 javascript:_e(%7B%7D,'cvml','quad...@gmail.com'); wrote:

 I hope you guys can help me out. I have had a urostomy for more than three
 years now and have no problems with that wafer leaking or urine getting
 underneath the wafer. I am, however, having nothing but difficulties with
 the colostomy wafer. First thing to note is my urostomy wafer as a small
 room on the inside with quite a bit left over to it here to the skin. The
 colostomy one, on the other hand, has a lot bigger ring in the middle of
 it. I believe it's 57 mm or 2 1/4 inch.

 Have a small indentation at one corner of my stoma and therefore they say
 I need stoma paste. We've never had to use this on my urostomy, so were not
 sure exactly how much to apply. The last two days we have had the colostomy
 wafer leak and it appears like the fecal matter is immediately seeping
 under the wafer and compromising the integrity of my skin. Not to mention
 it stinks to high heaven.

 Any advice on how you guys do it or suggestions would be welcome. As far
 as my urostomy, we basically use two or three skin preps, but they told us
 we really didn't need to use them for the colostomy. Last night we decided
 to go ahead and use skin prep on the colostomy as well as a little bit of
 stoma paste where the intention is on my stoma.

 I want to thank you in advance for the help. Normally I'm able to call on
 a nurse friend of mine who lives down the road to help me out, but she's
 out of town on vacation right now.
 Quadius

Re: [QUAD-L] Sleep boots

[Quadius]

I used to wear them religiously, but then I had a little difficulty with
skin integrity on my heel. You have to watch them for any degradation in
the padding. I still wear them occasionally when I feel like my Achilles
tendon is allowing my foot to drop a little too much.

I wear something akin to the new Sketcher's (spelling) steel toe work
shoes. They really helped my feet and I find that wearing a simple bunny
boot is sufficient when I go to bed to protect my delicate heels.

On Mon, Jun 8, 2015 at 11:02 PM, Gmail bobbiehumphre...@gmail.com wrote:

 Do any of you peeps wear boots to bed?
 My podiatrist strongly suggested that wear them every night and to start
 looking into a boot that I would wear all day and well.
 I asked if he could help me get them and he said I don't do that.or I
 can't help you with that. Which is Pure bull shit.
 He told me go just go yo Kessler.

 I have some boots but they are from 1999 and I'm quite sure things have
 improved since then.

 I have drop foot problems from being a Quad for over 42 years

 He also suggested I go see an Ortopidic

 Bobbie

 Smile Everyday

[QUAD-L] problems with colostomy wafer

[Quadius]

I hope you guys can help me out. I have had a urostomy for more than three
years now and have no problems with that wafer leaking or urine getting
underneath the wafer. I am, however, having nothing but difficulties with
the colostomy wafer. First thing to note is my urostomy wafer as a small
room on the inside with quite a bit left over to it here to the skin. The
colostomy one, on the other hand, has a lot bigger ring in the middle of
it. I believe it's 57 mm or 2 1/4 inch.

Have a small indentation at one corner of my stoma and therefore they say I
need stoma paste. We've never had to use this on my urostomy, so were not
sure exactly how much to apply. The last two days we have had the colostomy
wafer leak and it appears like the fecal matter is immediately seeping
under the wafer and compromising the integrity of my skin. Not to mention
it stinks to high heaven.

Any advice on how you guys do it or suggestions would be welcome. As far as
my urostomy, we basically use two or three skin preps, but they told us we
really didn't need to use them for the colostomy. Last night we decided to
go ahead and use skin prep on the colostomy as well as a little bit of
stoma paste where the intention is on my stoma.

I want to thank you in advance for the help. Normally I'm able to call on a
nurse friend of mine who lives down the road to help me out, but she's out
of town on vacation right now.
Quadius

[QUAD-L] just got home

[Quadius]

I just arrived home a few hours ago and wanted to once again thank all of
you for your positive comments and thoughts. Everything is going well so
far. It is a little strange adjusting to the colostomy, but my biggest
problem is because I have a urostomy on the other side and trying to get an
abdominal binder which will fit both is a little tricky.

Take care and have a wonderful week.
Quadius

Re: [QUAD-L] HEY PEEPS!

[Quadius]

so what is the problem? I'll take a look at the group later. Thanks.

On Fri, Jun 5, 2015 at 8:51 PM, Larry Willis lwillis82...@gmail.com wrote:

 There is a quad group on Facebook with this name:
 I
 *use a wheelchair, so what's the problem?*
 It has a lot of members including me. It's worth a look.
 Larry Willis
 Retired and proud of it

[QUAD-L] colostomy question

[Quadius]

all of you who have colostomy's, do you guys still get some paintings or
sensation in your lower colon. I swear that I almost feel as if I need to
go to the bathroom out the rectum. The x-rays, however, was said to look
normal couple of days ago. I wouldn't think that they would miss if the
colostomy wasn't done correctly.

Quadius

[QUAD-L] Re: just waiting

[Quadius]

Update on my surgical recovery. I'm still waiting on the bowels to move.
They have really good bowel sounds and I have produced a lot of gas, but
for some reason I still haven't produced stool. Just some liquidy substance.

Two days ago they gave me an extra dose of MiraLAX and a half a bottle of
magnesium citrate. So far nothing, so there having me take another half
bottle of magnesium citrate. The x-ray they took the day before looked
pretty good, but they still want me to produce stool before I'm able to be
discharged. Looks like around Tuesday right now if I can get something
going in the next two days.

Thanks for the well wishes.
Q

On Mon, Jun 1, 2015 at 9:51 PM, Quadius quad...@gmail.com wrote:

 Well, I had my colostomy surgery on Thursday everything went pretty well.
 So far my lungs have remained clear and hopefully they will continue to do
 so. Anyway, I can't leave the hospital until my bowels start to work.

 The doctors decided to start me on a regular diet today, but I'm not
 supposed to eat too much. Anyway, I'm just sitting here waiting for the
 bowels to start working so I can try to get out of here shortly thereafter.

 Quadius

[QUAD-L] Re: just waiting

[Quadius]

I forgot to mention that my bowels are producing gas and have some bowel
sounds. My bowels better today after eating a very small amount. Hopefully
they will let me get up in my chair in a couple of days so I can get ready
to get out of here shortly.

Thanks for the positive thoughts.
Quadius

On Mon, Jun 1, 2015 at 9:51 PM, Quadius quad...@gmail.com wrote:

 Well, I had my colostomy surgery on Thursday everything went pretty well.
 So far my lungs have remained clear and hopefully they will continue to do
 so. Anyway, I can't leave the hospital until my bowels start to work.

 The doctors decided to start me on a regular diet today, but I'm not
 supposed to eat too much. Anyway, I'm just sitting here waiting for the
 bowels to start working so I can try to get out of here shortly thereafter.

 Quadius

[QUAD-L] just waiting

[Quadius]

Well, I had my colostomy surgery on Thursday everything went pretty well.
So far my lungs have remained clear and hopefully they will continue to do
so. Anyway, I can't leave the hospital until my bowels start to work.

The doctors decided to start me on a regular diet today, but I'm not
supposed to eat too much. Anyway, I'm just sitting here waiting for the
bowels to start working so I can try to get out of here shortly thereafter.

Quadius

[QUAD-L] Re: Uro ostomy

[Quadius]

I will try, but right now I'm preparing to get a colostomy. If you haven't
heard from you in about two weeks, please send me an email. I haven't been
getting that much done lately.  Unfortunately my email account is way
behind. Sorry.

On Tuesday, April 7, 2015, gah17...@aol.com wrote:

  I'm probaby in need of a urostomy in the near future and looking for all
 the pro/cons out there.

 Give me your story.

 GA

Re: [QUAD-L] Bowel rouitine question,

[Quadius]

I wonder if this thing would work to clear the bowels for a colonoscopy?

On Friday, May 1, 2015, Robert Vogel rhvsh...@me.com wrote:

 Hi Johnny,

 I’m not sure what you are referring to.  However, I have been using a
 system called Peristeen made by
 Coloplast that empties me out in 30 minutes and has eliminated accidents.

 I am a T10 complete para, 55 years old, 30 years post injury.  I exercise,
 drink plenty of water
 and get plenty of fiber, however my system has slowed down quite a bit
 over the past 5 or more years—probably
 closer to 10, and I had a problem with chronic constipation.  I started
 using it a little over 2 years ago and
 it started working the first time I used it.
 Here are a couple of links to articles I wrote about it in New Mobility:
 http://www.newmobility.com/2014/04/peristeen-for-bowel-management/

 Also, in my ‘survey of one’ since using it my hemorrhoids have
 dramatically shrunk and are no longer a problem:
 http://www.newmobility.com/2015/01/dealing-with-hemorrhoids/

 Hope the information helps.

 Sincerely
 Bob Vogel

 On Apr 30, 2015, at 5:32 PM, DAVID LEWIS curlyle...@verizon.net
 javascript:_e(%7B%7D,'cvml','curlyle...@verizon.net'); wrote:

 i saw that they have a bowel stimulater on the net.
 its only 9 inches. is there any attachment for that.
 i thought i saw some unique ones before./

 please show me any links.
 thank you.

 johnny

Re: [QUAD-L] Low sodium in blood

[Quadius]

Yes I have this frequently. It depends on what your numbers are, but for
most people all you have to do is solve some food for a while and lower
your fluid intake. For me it's quite Bit more extreme. I take four tablets
of salt per day. My sodium it is usually around 129 to 132.
Q

On Monday, May 4, 2015, DAVID LEWIS curlyle...@verizon.net wrote:

 I have been sick last 2 weeks with pneumonia.
 I feel way better now. But i have low sodium from my blood work. Has
 anyone else had this.?
 Thanks

Re: [QUAD-L] Weakness

[Quadius]

When I get like this, albeit not that extreme, I usually have some sort of
a deficiency. Usually sodium and potassium, but it might be something else
in your situation.

On Friday, May 1, 2015, lwillis82...@gmail.com wrote:

  You guys ever have days that you feel unusually weak? I have days, like
 today, that I can barely hold my arms up. Don't know why.

 Sent from Surface

[QUAD-L] colostomy

[Quadius]

I'm doing this little backwards, but I have a scheduled date for my
colostomy surgery and would like to hear from individuals who have a
colostomy, especially those who wear abdominal binders.

I would like to know if the individuals who have the colostomy done had
problems like lactose intolerance or irritable bowel issues. I would love
to hear from anyone who has a colostomy and would like to share.

Thanks,
Q

Re: [QUAD-L] Quadriplegic Cost

[Quadius]

There are so many variables. Does this include medical coverage? How many
hours of care one person needs depending on their level of injury. For
example, I require a lot more work than a quadriplegic who has more
returned and I do.

This may sound high, but if your factory and loss of income and a lot of
other things including care, it could be more than 10,000 a month.

Q

On Monday, April 27, 2015, Thomas E. Cusack tecn...@sbcglobal.net wrote:

 Since no two injuries are the same and no two factors are the same, it's
 impossible to come up with an empirical formula

 Tom c.
 C6/7
 44 years



   On Monday, April 27, 2015 12:08 PM, wheelch...@aol.com
 javascript:_e(%7B%7D,'cvml','wheelch...@aol.com'); wheelch...@aol.com
 javascript:_e(%7B%7D,'cvml','wheelch...@aol.com'); wrote:


  Great question but very, very difficult to answer. There are so many
 different levels of Quads, hence the difference is cost to maintain and
 service.
 Honestly, this drives lawyers crazy as they are often asked to submit
 maintenance costs for an person with a C4-5 injury.

 Could you be more specific?
 Thanks

 Best Wishes

  In a message dated 4/27/2015 11:07:41 A.M. Central Daylight Time,
 hosnialkha...@hotmail.com
 javascript:_e(%7B%7D,'cvml','hosnialkha...@hotmail.com'); writes:

 *Hi My Fiends*

  *I Want To Ask You,How Much It Costs,The Care Of A Quadriplegic In The
 Day,Month Or Year ? For The Most Important Things*

  *Thank You Very Much*
 *God Bless You*

Re: [QUAD-L] Does exercise help with depression

[Quadius]

Getting out and riding around the neighborhood makes me feel better.

On Wednesday, April 22, 2015, Bob Vogel rhvsh...@mac.com wrote:

 I am doing an article for New Mobility magazine about exercise and its
 role in
 helping with depression.  I have studies on how it can help by increasing
 and
 or releasing endorphins in the brain, and have read that even being up in
 our
 wheelchair vs. laying down helps this process.

 In my *survey of one* I find this to be true--clinical depression runs in
 my family--
 my dad had it, and running and/or riding an exercise bike helped him a
 great deal.
 I have it as well and find pushing my chair and/or getting my heart rate
 up by peddling
 my stationary hand cycle helps.

 Does anybody find that exercise helps fight the blues?  If so, I am
 looking for people
 that could do a short phone interview, for a quote or two for the article.

 Please contact me at rhvsh...@mac.com javascript:;

 Sincerely,
 Bob Vogel
 Senior Correspondent/New Mobility magazine
 www.NewMobility.com

Re: [QUAD-L] I have Bronchitic.

[Quadius]

Robitussin is good, but you could also take Mucinex which of the same thing
but in pill form. Make sure you drink a lot of fluids in order to get the
secretions out as quickly as you can.

It's best to get into a Trendelenburg position and hang in there position
for quite a while. Using the quad cough is essential once the secretions
have moved to the upper part of the lung.  I often use a large vibrator on
my side as I lie in the Trendelenburg position. This facilitates the
secretions coming up and if I am not able to get it out by myself then I
have someone help me with Quad coughing. Make sure you get the secretions
out or you could develop pneumonia. Sitting up is essential once you're
free of secretions. Getting up in your chair as much as possible is also
important.
I have a lot of experience with this.
Q
On Saturday, April 18, 2015, Don Smith scamper2...@gmail.com wrote:

 Try robutusin (ask parmicest which one is best to loosen up phleghm) then
 take a mouthful and lay on both sides switching every 2 hours, feet higher
 is better

 Don
 In dry Ca.

 On Thu, Apr 16, 2015 at 5:34 PM, Larry Willis lwillis82...@gmail.com
 javascript:_e(%7B%7D,'cvml','lwillis82...@gmail.com'); wrote:

 No easy answer, Dave. First, visit your doctor. Second, monitor closely.
 It can easily slip into pneumonia, and that's bad. If you have a problem
 coughing up phlegm, lie on your back with head lowered and feet elevated.
 Have someone pound rapidly on your chest to loosen the gunk. Try to bring
 it up and out. This saved my life a few years ago.


 -- Forwarded message --
 From: *DAVID LEWIS* curlyle...@verizon.net
 javascript:_e(%7B%7D,'cvml','curlyle...@verizon.net');
 Date: Thursday, April 16, 2015
 Subject: [QUAD-L] I have Bronchitic.
 To: Quad-list Post quad-list@eskimo.com
 javascript:_e(%7B%7D,'cvml','quad-list@eskimo.com');


 I have bronchitis. It sucks. Hard to breath always coughing. But the
 worst is when your in bed. You cant cough it up or stop coughing so you get
 no sleep.
 How did any of you handle it?

Re: [QUAD-L] Bad bugs

[Quadius]

They really shouldn't be treating you unless you were symptomatic.
Suffering from fever, spasms, bladder pain etc.

On Friday, April 17, 2015, Gmail bobbiehumphre...@gmail.com wrote:

 I have a Urostomy since 1999

 My symptoms are not bad at all really. I'm on cipro for one of the bugs.

 Smile Everyday

 On Apr 17, 2015, at 7:20 PM, Danny Hearn ddh...@sbcglobal.net
 javascript:_e(%7B%7D,'cvml','ddh...@sbcglobal.net'); wrote:

 Bobbie are you having bad reactions from them? When they check me they
 said I have always had 2 to 3 types of bacteria's  present just because I
 have an indwelling supra-pubic catheter, they won't even treat me unless
 I'm sick with problems such as bad spasms-fevers or chills and stuff like
 that.   Dan H^



   On Friday, April 17, 2015 2:18 PM, Gmail bobbiehumphre...@gmail.com
 javascript:_e(%7B%7D,'cvml','bobbiehumphre...@gmail.com'); wrote:


 Today is my 43 anniversary! Can't freaking believe it.

 I saw my GP Monday 4/14 and brought a urin specimen for now reason really,
 mostly because I was going anyway. He called Thursday and said I have 2
 bugs staphylococcus and pseredomon.
 He ordered cipro for staphylococcus and a referal to see an infectious
 disease Doctor for pseredomon but I can't get a date till 5/5!!



 Smile Everyday

Re: [QUAD-L] quad belly belt

[Quadius]

is a 12 inch for 10 inch abdominal binder from the company orthotics out of
Tampa Florida.

On Thu, Apr 9, 2015 at 7:17 PM, wheelch...@aol.com wrote:

  Hiya VC,
 Thanks for the info.  Was this custom fitted for you or did it come off
 the shelf for general use?
 Best Wishes

  In a message dated 4/9/2015 6:09:02 P.M. Central Daylight Time,
 vcler...@rogers.com writes:


  *Hi everyone:*
 *I am a C5/6 complete quadriplegic since 2000 and have been reading the
 posts here for many years.*
 *I have been wearing a back brace in order to hold me up straight in the
 chair, as well as to help me breathe.  *
 *Is there anyone else out there that wears a brace to help breathing? If
 so, can you please tell me what you are using.*
 *Take care and have a great evening!*

  Val Cleroux
 Communication is the key to success

[QUAD-L] bladder pain

[Quadius]

Does the individual who has a tremendous amount of bladder pain from a
suprapubic still contribute to the list? I was thinking about this problem
the other day and I might have a possible reason this might be occurring.

I discovered that I have a strange allergy or intolerance to silicone
materials being placed my body. This was first discovered when they changed
me from a plastic tracheotomy device to a silicone one. My skin grow around
the device and it had to be yanked out of my neck. Yes it hurt like hell
and caused a mammoth scar which I had to have corrected later on.

After about four years my supplies of catheters were changed from  latex to
silicone.  I started having massive bladder spasms and terrible UTIs. I
discovered this was the problem when I changed my catheter and put in a
latex catheter which I forgot I had. The spasms and pain stopped within
five minutes. Anytime I have something which is pure silicone in my body
for any length of time I developed problems.

Re: [QUAD-L] Binder and Colotomy

[Quadius]

I'm wearing one right now for my urostomy, which is essentially the same
thing. I'll get the information for you. I don't like it as well as my
other one. US orthotics based here in Tampa can do one for you, but you
need to go through your local people to get them to order it.
Q

On Sunday, April 5, 2015, greg g...@eskimo.com wrote:

 Anyone with a colostomy also wear a abdominal binder?
 I can't find a binder that fits over one. Right now I just cut a hole in
 the binder, but it just frays apart real fast.
 Plus, the binder moves and can cut into the stoma. I am going to buy a new
 binder and just put it on over the stoma and bag and see if it can still
 work and drain ok. I don't go much during the day usually.
 I just found a binder/belt that has a ring built into it that  bag snaps
 onto. Made so you don't need to glue/tape a wafer onto the skin. I just
 worry that the binder would move just a bit, then anything that comes out
 goes right under the binder... messy mess. Plus, it only comes up to 9
 inches tall and I use 12. Good idea though.
 I think a binder with a pouch bubble over the stoma area would be  good
 idea. You just need a binder that does not over lap itself. Or you would
 have to line up 2 pouches on the binder. The binder I use now over laps
 itself, so I had to cut 2 holes in the binder in that spot.

Re: [QUAD-L] Binder and Colotomy

[Quadius]

The one that I'm using is only 9 inches tall also. Because I have a long
torso I use a 10 inch regular binder above the binder that I use for my
lower abdominal region.
You need to adhere the colostomy/urostomy to the skin and then the binder
will help prevent any problems. If you get the right size it should move it
all and it is pretty easy to put on.

My problem is going to be that I I am considering getting a colostomy along
with the urostomy I already have. Then getting a binder that I can wear
with both of them will be a little more tricky.
Q

On Sunday, April 5, 2015, greg g...@eskimo.com wrote:

 Anyone with a colostomy also wear a abdominal binder?
 I can't find a binder that fits over one. Right now I just cut a hole in
 the binder, but it just frays apart real fast.
 Plus, the binder moves and can cut into the stoma. I am going to buy a new
 binder and just put it on over the stoma and bag and see if it can still
 work and drain ok. I don't go much during the day usually.
 I just found a binder/belt that has a ring built into it that  bag snaps
 onto. Made so you don't need to glue/tape a wafer onto the skin. I just
 worry that the binder would move just a bit, then anything that comes out
 goes right under the binder... messy mess. Plus, it only comes up to 9
 inches tall and I use 12. Good idea though.
 I think a binder with a pouch bubble over the stoma area would be  good
 idea. You just need a binder that does not over lap itself. Or you would
 have to line up 2 pouches on the binder. The binder I use now over laps
 itself, so I had to cut 2 holes in the binder in that spot.

Re: [QUAD-L] Binder and Colotomy

[Quadius]

http://www.nu-hope.com/beltlit.pdf

I use the second belt down.

On Sunday, April 5, 2015, greg g...@eskimo.com wrote:

 Anyone with a colostomy also wear a abdominal binder?
 I can't find a binder that fits over one. Right now I just cut a hole in
 the binder, but it just frays apart real fast.
 Plus, the binder moves and can cut into the stoma. I am going to buy a new
 binder and just put it on over the stoma and bag and see if it can still
 work and drain ok. I don't go much during the day usually.
 I just found a binder/belt that has a ring built into it that  bag snaps
 onto. Made so you don't need to glue/tape a wafer onto the skin. I just
 worry that the binder would move just a bit, then anything that comes out
 goes right under the binder... messy mess. Plus, it only comes up to 9
 inches tall and I use 12. Good idea though.
 I think a binder with a pouch bubble over the stoma area would be  good
 idea. You just need a binder that does not over lap itself. Or you would
 have to line up 2 pouches on the binder. The binder I use now over laps
 itself, so I had to cut 2 holes in the binder in that spot.

[QUAD-L] Re: Permobil c350 tilt

[Quadius]

It was supposed to be repaired, service, but I think it sounds as if to me
that it was replaced.

On Sunday, March 22, 2015, wheelch...@aol.com wrote:

  Consider calling Permobil in Tennessee at 800-736-0925.  Make sure you
 have your serial number available when you talk with Tech Services.28
 seconds sounds slow to me.  Tilt actuators operate off of 24 volts and to
 the best of my knowledge are not adjustable in time cycle.  Your actuator
 could be binding. The push arms on actuators are not lubed as lube attracts
 dirt and moisture.  Was yours replaced or repaired?

 Best Wishes

  In a message dated 3/22/2015 8:02:44 P.M. Central Daylight Time,
 quad...@gmail.com javascript:_e(%7B%7D,'cvml','quad...@gmail.com');
 writes:

 Is there anyone on the list to has a C350? If so, how long does it take
 you to tilt back. I recently had my tilt mechanism service and it sounds
 completely different hand is running so slow that I'm having difficulty
 with it. It takes me 28 seconds to go from the lowest position to the for
 this position back.

 Would love to hear what your experiences are.
 Quadius

[QUAD-L] Permobil c350 tilt

[Quadius]

Is there anyone on the list to has a C350? If so, how long does it take you
to tilt back. I recently had my tilt mechanism service and it sounds
completely different hand is running so slow that I'm having difficulty
with it. It takes me 28 seconds to go from the lowest position to the for
this position back.

Would love to hear what your experiences are.
Quadius

[QUAD-L] Bliister

[Quadius]

woke up this morning and discovered that I have a blister on my rear end.
It's in a bad place.  It appears to be about 0.5 cm x 0.25 cm. Does anyone
have any idea how I can heal this without breaking the blister open?
I have bagbalm I'm available as well as the healing honey. Any suggestions
would be appreciated. I don't want to have to go to the wound doctor,
because this right now is very small and I'm afraid it will get worse if I
get in the chair. Quadius

Re: [QUAD-L] Bliister

[Quadius]

Well, bad news is the blister busted.

I have no idea how it happened. I normally have pristine skin, but a small
blister on the rear end today. Was lying in bed yesterday on my alternating
pressure overlay. The only thing I can think of is that maybe there was
something under me when I was in my chair the day before.

Anyway, we change the mattress out to my low air loss mattress. That's why
I keep it as a backup just in case I have a small irritation. Right now I
decided to put bag balm on the blister/slightly opened area.

Thanks for the advice. If it gets worse I will definitely look at the
bandages.

On Sun, Mar 8, 2015 at 5:35 PM, linda...@comcast.net wrote:


 I have found that calmoseptine works really well. You can get it at a drug
 store or order it from Medical Express Supply. I keep it on hand  use it
 on the smallest blemish or blister.
 Lindaf
 --
 *From: *Quadius quad...@gmail.com
 *To: *quad-list quad-list@eskimo.com
 *Sent: *Sunday, March 8, 2015 1:33:15 PM
 *Subject: *[QUAD-L] Bliister

 woke up this morning and discovered that I have a blister on my rear end.
 It's in a bad place.  It appears to be about 0.5 cm x 0.25 cm. Does anyone
 have any idea how I can heal this without breaking the blister open?
 I have bagbalm I'm available as well as the healing honey. Any suggestions
 would be appreciated. I don't want to have to go to the wound doctor,
 because this right now is very small and I'm afraid it will get worse if I
 get in the chair. Quadius

Re: [QUAD-L] pain in neck pillow

[Quadius]

I have been using what I think is a buckwheat horseshoe pillow to allow my
neck and shoulder to heal.
I have used a water pillow, but I didn't find it to be too affected for me.

On Thursday, February 19, 2015, Bill Lang blan...@verizon.net wrote:

 Derrick,

 I use a buck wheat pillow with no adverse effects. It works well for me
 lying and sitting up. I went to it because I would get stinging pains in
 the
 side of my neck down to my traps.

 -Original Message-
 From: Derrick [mailto:wheel...@centurylink.net javascript:;]
 Sent: Wednesday, February 18, 2015 7:37 PM
 To: quad-list@eskimo.com javascript:;
 Subject: [QUAD-L] pain in neck pillow

 Has anyone tried or use a pillow with water in it?
 I am worried about it being heavy and sliding down my back when sitting up
 in bed?

 I have tried a dozen pillows and none helped with my neck pain.
 I usually end up sleeping with no pillow.

 Thanks,
 Derrick W

Re: [QUAD-L] quadriplegic remote control

[Quadius]

Wondering if anybody has found a way to operate devices that are using the
new Bluetooth technology as a remote. I can capture most infrared signals
and operate them through environmental control unit, but the Bluetooth
technology is another beast.

Quadius

On Sat, Jan 31, 2015 at 1:54 AM, Jim Lubin jlu...@eskimo.com wrote:

 I use my windows 8 notebook from bed with the program IRCommand2 with
 the USB-UIRT to operate the smart tv, dvr and blu-ray.
 For changing channels I find it easiest to use my cable provider's web
 page Xfinity.

 Do you have an ipad or iphone? you can control it with one or two
 switches. You need one of these

 http://ndipat.org/blog/ipad-bluetooth-switch-interfaces-4-great-choices-for-hands-free-control-2/

 next to control ir devices you need this
 http://www.logitech.com/en-us/product/harmony-smart-control?crid=60


 On Wed, Jan 28, 2015 at 9:35 AM, HOSNI AL-KHATIB 
 hosnialkha...@hotmail.com wrote:

 *Hi My Friends*



 *I Want To Ask You,What Kind Of Remote Controls You Use For TV,And Which
 One Is The Best.*

 *I Need A Remote To Use It When I’m In Bed,To Change Channels With A
 Click By My Head.*



 *Thank You *

Re: [QUAD-L] Alternating pressure pads

[Quadius]

if you ever get a hole in the mattress, which I did, it can be easily
patched with the patch kit that comes from Roho.

On Wed, Feb 11, 2015 at 9:19 PM, Quadius quad...@gmail.com wrote:


 http://www.amazon.com/gp/product/B002VWK1B8/ref=oh_aui_detailpage_o00_s00?ie=UTF8psc=1

 this is what I'm presently using, but I am firm believer that low air loss
 mattresses that alternate are the best to use for open wounds. Just use a
 simple sheet over the mattress and something so that your wound gets the
 maximum amount of air.
 Quadius

 On Wed, Feb 11, 2015 at 9:12 PM, Gmail bobbiehumphre...@gmail.com wrote:

 I'm looking for a APP to put on top of my mattress for high risk wound
 care. Any suggestions? I'm looking for something very good.

 Last night
 Tee changed my bandage and said the wordps we all dread;
 Oh Bobbie, this is bad, really, really bad. Your butt is bleeding and
 open in 3 different spots.
 Thus just came out if the blue. I'm not doing anything different at all.
 I have an appointment ate the wound center a week from today (Tuesday)
  Bobbie

 Smile Everyday

Re: [QUAD-L] Alternating pressure pads

[Quadius]

http://www.amazon.com/gp/product/B002VWK1B8/ref=oh_aui_detailpage_o00_s00?ie=UTF8psc=1

this is what I'm presently using, but I am firm believer that low air loss
mattresses that alternate are the best to use for open wounds. Just use a
simple sheet over the mattress and something so that your wound gets the
maximum amount of air.
Quadius

On Wed, Feb 11, 2015 at 9:12 PM, Gmail bobbiehumphre...@gmail.com wrote:

 I'm looking for a APP to put on top of my mattress for high risk wound
 care. Any suggestions? I'm looking for something very good.

 Last night
 Tee changed my bandage and said the wordps we all dread;
 Oh Bobbie, this is bad, really, really bad. Your butt is bleeding and
 open in 3 different spots.
 Thus just came out if the blue. I'm not doing anything different at all.
 I have an appointment ate the wound center a week from today (Tuesday)
  Bobbie

 Smile Everyday

Re: [QUAD-L] air mattress

[Quadius]

if your mattress alternates or varies between pressure, you really don't
need to be turned. I use a really inexpensive system, also by Drive, which
is just a simple overlay. I had to go to the system because the low air
loss I was using wouldn't harden enough to do my bowel regimen.

It cost me around $55.  I started using the system in March and had to
replace the control box, but that particular mattress was about seven years
old, even though it hadn't been used that often. I'm hoping this one last
at least a year or more. The mattress itself has worked wonderful, because
I took the cover off my low air loss and put it over the overlay and
mattress. It protects the mattress.
Quadius

On Mon, Feb 9, 2015 at 10:19 PM, greg g...@eskimo.com wrote:


 I recently bought a Low Air Loss Mattress and really like it. I tied few
 and never liked them. They hurt my shoulders. I would sink in too much.
 But, I found one that really felt great and seems to do the job well. It's
 by Drive, it has 8 inch purple tubes. I don't know the difference, but one
 is listed at about $330 and another at $5000. Looks like same photo. I
 bought the one that was about $330. If you get a flat, you can buy extra
 tubes and change them. Half the tubes inflate while the other half
 deflates. The hospital says you should still get turned every 2 hours, but
 I go all night without getting turned. Anyway, The one I got looks just
 like this one.


 http://www.amazon.com/Drive-Medical-Mattress-Replacement-Alternating/dp/B002VWKO9W/ref=sr_1_2?ie=UTF8qid=1422130962sr=8-2keywords=air+mattress+low+air+loss

 Good luck, Greg

  Has anyone got a new low pressure air mattress?
  The bed and mattress that I got in 1998 is on last leg. I had a
  Sunerise Medical pump that is no longer around and the mattress
  will not hold air at my feet.
  Medi-i-dont-care will not buy me any new mattress. I did get new
  bed frame. There is so many different manufactures and various
  kinds and prices and of course you can not ship it back after
  using/trying it out. If anyone has any suggestions of what mattress
  and pump worked best and where did you purchase it. If you could,
  provide the model number. Thanks in advance,
  Derrick...if you reply and get a reply message from my isp spam
  blocker do not worry, I can still get your email in my Suspect
  Folder.