[QUAD-L] Do you know of a good way to send and receive text messages ?

[Dave Krehbiel]

I'm using Dragon NaturallySpeaking, and I do most of my communication by
email. But there are lots of people who prefer text messages.

 

Do you have a favorite way of sending and receiving text messages?

 

Thanks so much, and take care,

 

Dave Krehbiel

Olney, MD



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RE: [QUAD-L] employer/employee contracts to share

[Dave Krehbiel]

Dana, sorry to hear about the third-degree burns.



I bought an oven thermometer for less than 10 dollars so that aides can easily 
check the temperature of my coffee.



My aides like it, as they are being careful not to give me something that’s too 
hot.



I enjoy it, because I can safely enjoy coffee at my favorite temperature 
(between 139-140 degrees Fahrenheit).



Take care,



Dave Krehbiel

Olney, MD





From: poaj...@sbcglobal.net [mailto:poaj...@sbcglobal.net]
Sent: Monday, November 5, 2018 5:36 PM
To: 'Dana Wray'; quad-list@eskimo.com
Subject: RE: [QUAD-L] employer/employee contracts to share



Drink aide has gone out of business, so the fleximug is a safer choice.  I have 
had the drink aide for several years, and we’ve replaced the mug itself with a 
generic one.  I also have another large drink cup that we put a long flexible 
straw in and zip tie it to a roll around stand so I can always get more to 
drink.

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn









From: Dana Wray 
Sent: Sunday, November 04, 2018 7:40 PM
To: Jim Lubin 
Cc: Eric Olson ; Joan Anglin ; 
Quad-list 
Subject: Re: [QUAD-L] employer/employee contracts to share



 Hi fellow members:

 Wondered if anyone would  be willing to share  employer/employee contracts 
they have figured out. I would appreciate any help.

 Thank you, Dana C 4-5, 44Years post good yeah they are



 I wanted to share with you In  great insulated glasses. They have a number of 
links   Of adjustable straws by  Fleming Fleximug. I have been using Drink Aide 
. My straw broke  allowing siphoning causing third-degree burns and I had to 
have surgery and skin graph.  You can buy them through Amazon or Fleming. They 
were made for a mother with MS.   I had a wound VAC and I had to be 
hospitalized.  They are expensive but well worth that cost. They can be use for 
cold or hot drinks.



On Fri, Nov 2, 2018 at 2:14 PM Jim Lubin  wrote:

I think I did before Mobizen but couldn't get it to work. Vyor is working good 
for me.



Yes, Android, moto g6. When first deciding on which phone to get I could not 
find any way to control and iphone from a Windows pc. I can mirror an 
iphone/ipad to my pc but can't control it. With Android I can use my pc (with 
my adaptive keyboard/mouse) to control the phone.



On Fri, Nov 2, 2018 at 10:05 AM Eric Olson  wrote:

Have you ever tried Airdroid (assuming you have an Android phone)?




 
<https://www.avast.com/sig-email?utm_medium=email_source=link_campaign=sig-email_content=webmail_term=icon>

Virus-free.  
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On Thu, Nov 1, 2018 at 7:00 PM Jim Lubin  wrote:

Glad it works for you! It was working for me, but then it stopped working with 
my new phone. It was mirroring but I was no longer able to control the phone.



I am now using Vyor Pro https://www.vysor.io/

It works pretty much the same as Mobizen but nothing needs to be running on the 
phone.



On Thu, Nov 1, 2018 at 12:34 PM  wrote:

Jim

I want to thank you for telling me About Mobizen.  It has given me another step 
of independence as I now I don’t have to ask for help with my phone.  Each and 
every thing helps just a little.   Joan



"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn







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RE: [QUAD-L] Broken and bruised toes banging into everything

[Dave Krehbiel]

Here are a couple of ideas:

 

You could try steel toed shoes.

 

you may also be able to bolt a larger steel plate or a piece of word to the
existing plate. On my wheelchair, those steel plates fold upwards, and so if
I tried to add something, I would probably cut and bolt some plywood to the
bottom of those steel plates.

 

Anyone else have any better ideas?

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Tuesday, October 9, 2018 6:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Broken and bruised toes banging into everything

 

I use a regular old style wheelchair with each foot having an individual
plate underneath the foot.

 

I have broken toes and injuries from banging into everything with my feet
hanging off out in front.

.

I need a protector for my toes. 

 

If you could recommend something please tell me as I'm having no luck
finding something on the Internet.

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: tetrapeligic due to advanced MS and living in a nursing home hell
18 years
Phone: 561-58 6-9399
SC student 20yrs  . can not brag about my love for YHVH God because I fail
Him daily, but I can brag about His love for me because He never fails me.
ROMANS 8:28. Kindness is the language the deaf can hear and the blind can
see - Mark Twain 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH

THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS
A LOT ABOUT ANTICIPATED TRAFFIC NUMBERS

Jesus is the living word



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RE: [QUAD-L] how to completely delete Dragon tutorial from Dragon naturally speaking

[Dave Krehbiel]

I'm curious, did you check www.knowbrainer.com ?

 

Personally, I find this item will be difficult to understand and navigate.
However, they seem to have quite a bit of information about Dragon Naturally
Speaking. 

 

>From my perspective, the funny thing about Dragon NaturallySpeaking is that
you can use it to control almost any software, except itself. 

 

Good luck, and take care,

 

Dave Krehbiel

Olney, MD 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Wednesday, August 1, 2018 7:00 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] how to completely delete Dragon tutorial from Dragon
naturally speaking

 

sometimes by mistake the tutorial will open, and waited does it
automatically turns off my mic. Since I have no way to turn it back on
because my arms are paralyzed it is a real problem for me.

 

I have searched all over the Internet trying to figure out how to just get
rid of it forever to no avail. Please assist

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: tetrapeligic due to advanced MS and living in a nursing home hell
18 years
Phone: 561-58 6-9399
SC student 20yrs  . can not brag about my love for YHVH God because I fail
Him daily, but I can brag about His love for me because He never fails me.
ROMANS 8:28. Kindness is the language the deaf can hear and the blind can
see - Mark Twain 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH



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RE: [QUAD-L] Breathing

[Dave Krehbiel]

When I was having trouble breathing, I would do breathing exercises several 
times a day with a spirometer. I think it helped quite a bit.



>From a quick Google search, I think you can buy one for less than ten dollars. 
>You might want to talk to your doctor or nurse or therapist about this.



Good luck, and take care,



Dave Krehbiel

Olney, MD





From: Amy Elizabeth Baldwin [mailto:the.littleq...@yahoo.com]
Sent: Thursday, July 12, 2018 9:38 PM
To: g...@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Breathing




 Do you have a physical rehabilitation doctor??

They usually know what to say when you have a problem like this.

 If maybe they will send you to a pulmonologist, who should have a answer for 
you!

 Many years ago when I went to one he gave me a breathing apparatus where I 
have to suck on a tube and hold air for a few seconds so bro times a day. 

I hope you can get well soon!



 •~•♡•~• LittleQuad •~•♡•~•





Sent from Yahoo Mail on Android 
<https://go.onelink.me/107872968?pid=InProduct=Global_Internal_YGrowth_AndroidEmailSig__AndroidUsers_wl=ym_sub1=Internal_sub2=Global_YGrowth_sub3=EmailSignature>



On Wed, Jul 11, 2018 at 5:24 PM, Greg

 wrote:

My breathing has been strange for months now. Like I can’t get a big enough 
breath. So I end up taking lots of fast quick breaths. I can take deep breaths 
but have to force myself. Wearing a binder really helped, but hasn’t been 
helping much lately.

Its mostly when sitting up all the way, or laying down all the way.  I have no 
idea what kind of doc to see, a lung doc or rehab doc.

Anyone else have this issue?

Greg



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RE: [QUAD-L] Tipped Over, Ouch

[Dave Krehbiel]

Sorry to hear that.



I very nearly tipped over once. We use a barrier free  lift with a sleighing to 
transfer me to the wheelchair, and (unfortunately) I said on that when I’m up 
in the chair. One time I was going full speed downhill and the strap from the 
sling got caught in one of the drive wheels. It stopped that we’ll immediately, 
and spun me around quickly, but somehow I did not tip over. These days I’m very 
careful to be sure that the straps from my sling are securely rolled up.



Another day, I was riding home and noticed that one of my feet and slid off the 
foot rest and was dragging on the ground. I asked my wheelchair salesperson 
about it, and he said, “oh yes, I know another fellow that happened to, and it 
flipped him over and broke his leg in three places.”  I wondered, why didn’t 
you tell me about this? I guess because he can’t make money selling inexpensive 
straps. Now, I have an adjustable (and unfortunately, unpadded) strap which my 
aides fasten around my ankles and the back of the foot rest of my wheelchair, 
keeping my feet on the foot rests.



Take care,



Dave



From: Greg [mailto:g...@eskimo.com]
Sent: Wednesday, July 4, 2018 2:23 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Tipped Over, Ouch



Bad Day for me yesterday. First I get stuck on a packed gravel trail I’ve used 
for years. No one around, so I called home. My helper comes out and gets me 
unstuck. I take off again and in the rear view mirror, my helper sees me spin 
and flip over. 1st time in 36 years I've ever when completely over…

I think I hit a rut in middle of a main street, it spun me around and me and my 
chair go down. Broke my shoulder. Clavicle. Luckily its still lined up, so as 
long as it heals strait, no surgery.

It took 5 guys to stop and tip me back up. I never had such pain. As I’m laying 
there thinking “I hope someone stops to help soon.” I'm saying out loud “O 
Fuc* Me”

Spent the afternoon in the hospital getting x-rays, ribs, neck, arms, wrist. 
Only issue is shoulder.

Greg



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[QUAD-L] I don't seem to be getting any emails.

[Dave Krehbiel]

Is there something wrong? Do I need to reapply or something?

 

Thanks, and take care,

 

Dave Krehbiel

Olney, MD



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[QUAD-L] Protein for wound healing

[Dave Krehbiel]

I have a wound on my backside, and it has been very very close to being
completely closed. Sometimes it will stay close for a day or two, as it is
now.

 

My wife has been buying Juven Therapeutic Nutritional Powder, and we think
it is helping, but it is very expensive. Recently she has been buying it on
Amazon, but it seems expensive, about a dollar for a package (I take one or
two daily). 

 

Does anyone know of any less-expensive sources?

 

Or, does anyone recommend a different sort of nutritional or protein powder,
or other source of protein?

 

Thanks so much, and take care,

 

Dave Krehbiel

(301)924-4530

 



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[QUAD-L] Regarding Dragon Naturally Speaking

[Dave Krehbiel]

FYI - It seems to me that Dragon NaturallySpeaking performs better when
DragonPad is also running.

 

I have Dragon configured so that DragonPad always starts up, and I minimize
it.

 

Take care,

 

Dave Krehbiel

Olney, MD



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RE: [QUAD-L] An inquiry about using multiple microphone utilizing Dragon naturally speaking

[Dave Krehbiel]

Maybe something like this could work. But you might need some help setting
up Dragon macros.

 

I have never successfully set up a Dragon Naturally Speaking macro. but I
wonder if you can set up a macro one computer number one what that computer
to sleep, and another macro to put the second computer to sleep, and a third
macro to put the third computer to sleep.

 

You can say, "wake up" to wake up all three, and then use the appropriate
macros to turn off each of the other two.

 

Good luck,

 

Dave Krehbiel

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Saturday, January 13, 2018 5:44 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] An inquiry about using multiple microphone utilizing
Dragon naturally speaking

 

 

An inquiry about using multiple microphones with Dragon naturally speaking.

 

 

I have two laptops in front of me and I figured out how to put one
microphone to sleep and turn the other one on, by keeping one headset on my
head and one lying on my chest in front of me with the microphone positioned
on top of my left arm. If I turn my head away from the microphone and
whisper very softly into the one on my head, I am able to leave one
microphone on while the other one is off. I just taught myself had to do
this a few days ago out of necessity, because I'm not able at times to even
get a nurse here to take my headset off my head and put the other one on my
head. Sometimes I have to wait many hours before I see a nurse.

 

What I am inquiring of you is if you know of any way I could control the
microphones on three different laptops consecutively. I have a new laptop
but it is not installed with Dragon yet, but when it is I would like to have
all three of them in front of me. For years I have asked people if there
would be a way to turn one Mike off and the other on and I've always been
told I would have to physically be able to toggle a switch. 

 

I'm certain I am not the only paralyzed person in the world that is using
more than one laptop at a time, especially if someone is writing and having
to do research on one and transpose the information to the other while they
are reading it, which is what I am doing because I am writing a book using
the Bible as reference & it requires reference and research constantly
between one source or the other.. Thank goodness for computers or I would
have to have 10 or more volumes of materials open in front of me on the
table constantly looking from one to the other.

 

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: tetrapeligic due to advanced MS and living in a nursing home hell
18 years
Phone: 561-58 6-9399
SC student 20yrs  . can not brag about my love for YHVH God because I fail
Him daily, but I can brag about His love for me because He never fails me.
ROMANS 8:28. Kindness is the language the deaf can hear and the blind can
see - Mark Twain 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH



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[QUAD-L] has anyone tried a pillow speaker?

[Dave Krehbiel]

I am using Dragon NaturallySpeaking. But it is hard to watch YouTube videos,
since Dragon hears the dialogue and gets confused. 

 

While I'm in bed, I spent most of my time on my side, and so headphones
don't work so well. I'm thinking about getting a pillow speaker.

 

Has anyone tried that? Or, have you found some other way to watch YouTube
videos while using Dragon?

 

Thanks, and take care,

 

Dave Krehbiel

Olney, MD



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RE: [QUAD-L] Cell phones

[Dave Krehbiel]

I don't use mobile phones personally. If I'm traveling someplace with an aide, 
I will ask her to take my phone. That way, if we get separated, I can ask some 
kind stranger to call that number and track her down. Having the cell phone 
with me help, since I cannot answer it.



For making hands-free phone calls, I sometimes use Dragon Naturally Speaking to 
control  Skype on my PC (it costs about three dollars a month for unlimited 
calling in the domestic US) and sometimes I use Google home.



one of my biggest problem with placing phone call is navigating voicemail.



From: Jeffrey Gaede [mailto:jsga...@yahoo.com]
Sent: Monday, December 11, 2017 6:41 PM
To: Quad-list Post
Subject: [QUAD-L] Cell phones



What are the best cell phones and/or apps for complete hands-free use that you 
guys know of?



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RE: [QUAD-L] So Cold

[Dave Krehbiel]

I've started wearing a scarf when it is cold, and it really helps.

- Dave Krehbiel



From: Danny Espinoza [mailto:da...@immortaldesigns.co]
Sent: Wednesday, December 6, 2017 11:00 PM
To: 'Larry Willis'; quad-list@eskimo.com
Subject: RE: [QUAD-L] So Cold



I need my vicoprophen, soma and a heating pack when I get cold because my body 
tenses up/shakes and my neck/head are bent over toward my right shoulder since 
I’ve got feeling there due to my S.C.I. being an asymmetrical injury. I assume 
that it’s from a combination of all the metal in me, the bones I 
broke/shattered and the inability to regulate my own body temperature due to my 
S.C.I.. What do you guys think? I’m a newer quad and am still learning a lot 
about myself/my body as a quad.
-Danny



From: Larry Willis [mailto:lwillis82...@gmail.com]
Sent: Wednesday, December 6, 2017 7:39 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] So Cold



I understand. It is supposed to be in the mid-thirties for highs the next two 
weeks here in old Kaintuck. I hug a heater all day. Yep, the sun shines bright 
— somewhere!

Sent from my iPad


Begin forwarded message:

Resent-From: quad-list@eskimo.com
From: Lissette Whitehead <lissw...@hotmail.com>
Date: December 6, 2017 at 8:48:41 PM EST
To: Greg <g...@eskimo.com>, "quad-list@eskimo.com" <quad-list@eskimo.com>
Subject: Re: [QUAD-L] So Cold

Tell me about it! I live in Rosarito Beach, Mexico, I went out today for a 
little while and I could barely handle it, I was having trouble driving my 
power chair cause I was shaking so bad, my boyfriend had to drive me. My neck 
and shoulders are so sore, I have trouble falling asleep at night. Wine is the 
only thing that helps but I can't be drinking wine every day. Ginger with 
cinnamon tea helps a bit too. Seriously, I feel for those living in colder 
regions.



Stay warm guys!





Lissette Whitehead

416 W. San Ysidro Blvd.

San Ysidro, CA 92173

 <http://www.lwgripgloves.com> www.lwgripgloves.com



  _


 <http://www.lwgripgloves.com><http://www.medirub.com>   
<http://www.clubrosarito.org>




  _


From: Greg <g...@eskimo.com>
Sent: Wednesday, December 6, 2017 5:37 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] So Cold



We finely started getting some cooler weather. I’m miserable. Just shaking 
cold. Hats, hoodie, blanket, coffee, etc. I’m shaking so bad I can hardly type. 
I don’t know how you guys can take it in colder areas.



Greg



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RE: [QUAD-L] Low Air Loss Mattress Question

[Dave Krehbiel]

I have the same style mattress. I've had very good luck with it.



I had a similar problem at one point. There is a zipper down the side of the 
mattress. If you unzip it, you'll find a collection of tubing which runs from 
the air pump to the various cells in your mattress. It is possible that one of 
the hoses has come loose.



( The air pump is connected to two sets of tubes. it alternates between 
inflating one set, and then the other set.)



If you can find a loose connection, just push the hose back in, and that might 
solve your problem.



Good luck,



Dave Krehbiel

Olney, MD





From: Nan [mailto:nlg52...@yahoo.com]
Sent: Wednesday, October 4, 2017 2:29 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Low Air Loss Mattress Question



I currently have a Drive Medical Lateral Rotation Mattress with on Demand Low 
Air Loss 10" 
(https://www.4mdmedical.com/catalog/product/view/id/349332/?CAWELAID=12014131056386
 
<https://www.4mdmedical.com/catalog/product/view/id/349332/?CAWELAID=12014131056386_source=criteo>
 _source=criteo).  I do not use the lateral rotation,.  My mattress is not 
working properly - the right side will not stay inflated, so the motor is 
running constantly.  It tips me down so much that I have to use a standard 
pillow on that side negating the benefit to my skin.  This mattress has worked 
so well for me - getting me through a pressure ulcer, a flap, recovery and 
keeping my skin in amazing shape since last October.  I think it is time to 
replace this mattress.  So, I have a few questions:

1. For those of you who use a low air loss mattress - what kind do you have?  
Will it last more than 2 years?  Is it comfortable?  Is it good for your skin?

2. Does anyone know where I might find someone to repair my pump?  I'm on 
Medicare now and they won't touch this bed because it was purchased before I 
turned 65. They also say I must have a stage 4 pressure ulcer to qualify for a 
replacement.  Lincare, the people who provided the bed have no record of my 
mattress, so as far as they're concerned, it doesn't exist - they hung up on me 
the last time I called.

3. I'm on SSI, so money is an issue.  Does anyone know of any grants, etc. that 
might help me get a new mattess?





I'd appreciate any input.





Thanks all!



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[QUAD-L] What do you wear in rainy weather?

[Dave Krehbiel]

On a couple of occasions, I've needed to go out in a bit of rain or drizzle.
I'm thinking about buying some rubber boots, and maybe a poncho or a number
of disposable ponchos. Made in the lecture piece of plastic or something to
cover my legs and keep them dry.

 

How do you guys stay warm and dry?

 

Thanks, and take care,

 

Dave Krehbiel

Olney, MD



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RE: [QUAD-L] Wondering

[Dave Krehbiel]

What I think is: let's keep politics off this discussion group, as much as
possible.

 

Take care,

 

Dave Krehbiel

Olney, MD

 

From: Ismael Cavazos [mailto:ismaelcavaz...@gmail.com] 
Sent: Monday, September 25, 2017 6:54 AM
To: Blue
Subject: [QUAD-L] Wondering

 

Hello my friends I was wondering any you guys watch football the reason I'm
asking I was wondering what you guys think what the president said about the
NFL players thank you and God bless you



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RE: [QUAD-L] Taxicabs for wheelchair users??? With an attendant? Info needed please

[Dave Krehbiel]

Debra, where do you live? What city and state are you trying to arrange
transportation to?

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Saturday, September 9, 2017 10:25 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Taxicabs for wheelchair users??? With an attendant? Info
needed please

 

I desperately need to get to one appointment with vocational rehabilitation,
because they will purchase the $40,000 Permobil power chair with a Puff and
sip navigation system so I would not have to be in the bed 24 seven as I
currently have been for years.

 

They have a rule that without any exceptions, a potential client must show
up at their office for one initial appointment.

 

I have begged for someone from my family to provide transportation for me to
one appointment for quite a while now, and it is become painfully obvious no
one is going to step up to the plate and assist me in this endeavor, so I'm
asking you guys what can I do to hire somebody like a taxi for wheelchair
people and an attendant, because I'm paralyzed from the neck down so I
cannot possibly use my arms to wheel myself around to even get into the
building.

 

I don't even know what to search for to find out how to do this so please
explain it to me as if I knew nothing, because I truly don't know anything
about this. Since my arms became paralyzed, I've only been out of my room at
the nursing home on Thanksgiving and Christmas when one of my children would
come take me home each year.

 

And to sit in the horrible wheelchair they provide for me at the nursing
home, is so uncomfortable I cry even though they line it with bed pillows
underneath my bottom and back and feet. And when I had my power chair, the
chair was fully articulating and was much more comfortable than being in
bed. Whenever I needed to I could reposition myself in the chair without
having to wait for somebody to come assist me, which is a constant dilemma
in an understaffed nursing home. 

 

As an aside, I need someone to come stretch my legs and arms every day to
move them because I get unbearable cramps which I did not get when I had a
volunteer coming to stretch me every day, but she had to go back north.
Please advise me as to how I could hire someone to do this or get someone
from Medicaid to provide this service for me.

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 



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RE: [QUAD-L] Help for a urinary tract infection

[Dave Krehbiel]

Regarding the cloudiness: my urine used to be cloudy. At the time, I was asking 
my aides to add lemon juice to my water, hoping that it would decrease UTIs and 
help me drink more water. But then I read on this forum that lemon juice can 
result in cloudy urine. I discontinued the lemons, and the cloudiness went away.



Regarding UTIs, I have heard that cranberry juice is a good thing. Good luck.



From: Ron M Pracht [mailto:qua...@yahoo.com]
Sent: Saturday, September 9, 2017 4:39 AM
To: Quad-list Post
Subject: [QUAD-L] Help for a urinary tract infection



I currently have a uti. My urine is very cloudy when I look at it but my temp 
is only 99.1. Ive had much worse in my quad years but still I don't think it 
will go away on its own. Any suggestions on how to possibly get rid of this 
without a doc visit and cipro? I cant really drink tons at once because I 
straight cathe and leak a bit( that's another issue). Any insight would be 
appreciated, cant get to doc until next week.



Ron c7 quad since 98



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[QUAD-L] Totally hands-free calling using Google home

[Dave Krehbiel]

FYI: you can now make telephone calls hands-free using Google Home. I have
tested it a bit, and it works great. 

 

Take care,

 

Dave Krehbiel

Olney, MD



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RE: [QUAD-L] question about contracting muscles atrophying, etc.

[Dave Krehbiel]

Regarding contraction, while in a nursing home, I had a similar problem to a
lesser extent. In order to straighten my arms, they attached some sort of a
pillow or a brace to each arm to try to straighten each arm and to help hold
it straight. This sounds to me like a job for a physical therapist or
occupational therapist. It helped me. After using the device, I have become
a better extending and straightening my arms while in bed.



In the long-term, you might consider e-stim. If your biceps are contracted,
that means that your triceps are extending and lengthening. You can
electrically stimulate your triceps, and other muscles, to help them
contract and strengthen. If you have partial control over your triceps, this
can help you increase that control.



If you Google estim, unfortunately, you will find a number of sexually
related devices.



But here is a place you can start:
http://www.lgmedsupply.com/tensproducts.html



after the system has been selected and configured and placed on the
appropriate muscles, is relatively easy for people who are not physical
therapists to attach the pads and device.



Has anyone else tried this? How did this work for you?



Take care,



Dave Krehbiel

Olney, MD





From: DEBRA DEW [mailto:n14...@hotmail.com]
Sent: Sunday, June 11, 2017 11:01 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] question about contracting muscles atrophying, etc.



my arms and legs are contracted at about a   45° angle,, which makes sitting
in a wheelchair rather awkward with my legs..





I've seen pictures of long-term paralysis patients, aand eventually their
knees are touching their bottom and there hands are touching their chin.
Looks very uncomfortable and like a pretzel. Years ago I inquired about what
could be done  to stop the progression, and I was told they would have to
put braces on me that are very bulky and uncomfortable, so I  decided not to
do that. It's hard enough to maintain comfort now without that, on top of
it.



My life expectancy is about another 20 years, and I really do wonder what's
going to happen to my body with these contractions  of my muscles. Please
share whatever knowledge you possess about this.  And I wonder if I had
physical therapy, If it would have done anything  to make me more
comfortable.  I have one CNA that moves my arms  ggently to open them  and
it does feel good while she is doing it.  I had physical therapy for a few
months, that my insurance stopped paying for it quite quickly  (Medicaid)..
Is there any way to force Medicaid to provide for physical therapy?





I found this in an encyclopedia:Even with "complete" injuries, in some rare
cases, through intensive rehabilitation, slight movement can be regained
through  <https://en.wikipedia.org/wiki/Synaptic_plasticity> "rewiring"
neural connections, as in the case of the late actor
<https://en.wikipedia.org/wiki/Christopher_Reeve> Christopher Reeve.
<https://en.wikipedia.org/wiki/Tetraplegia#cite_note-9> [9]







Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9

Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs
ROMANS 8:28

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH



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RE: [QUAD-L] get some kind of a splitter and have both computers on all the time and switch by voice between one and the other.

[Dave Krehbiel]

Another option would be to use one of the computers to remotely control the
other computer. 

 

What are you trying to do? Do you need more screen space? Have you
considered adding a second monitor to one of your computers?

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Tuesday, May 30, 2017 3:33 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] get some kind of a splitter and have both computers on all
the time and switch by voice between one and the other.

 

 

could I get some kind of a splitter and have both computers on all the time
and switch by voice between one and the other. I have two laptops on the bed
table in front of me.

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 



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RE: [QUAD-L] Who cares for the family caregivers?

[Dave Krehbiel]

My wife works full-time. We have caregivers to provide activities of daily
living, and since she has good insurance through the state of Maryland, I've
been able to see a variety of doctors and nurses and so forth. But she has
been taking care of me at the expense of taking care of herself. And she
spends time nearly every day fighting with insurance companies and various
service providers while at work. The daily battles are taking their toll.

 

It seems to me that being a family caregiver can be very socially isolating.
Someone on this forum said, the majority of people they are friends with now
are people they met after the accident. The two of us can't go to many
social events (e.g. a 30th wedding anniversary party for good friends)
because most homes are not wheelchair accessible. Most social events have to
be here, and that needs cleaning up before, cooking, shopping, hosting, and
cleaning up afterwards. Regarding maid service, I think that could be very
helpful, especially around the holidays.

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Friday, May 19, 2017 9:18 AM
To: davekrehb...@earthlink.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Who cares for the family caregivers?

 

Dave, your wife is an angel. Have you checked out your local Independent
Living Center (ILC) Do you qualify for home health or maid service in your
area?

Best Wishes

 

In a message dated 5/19/2017 7:51:26 A.M. Central Daylight Time,
davekrehb...@earthlink.net writes:

I have been a quadriplegic for nearly 10 years now, and as a consequence, my
wife has taken on the role of being a family caregiver for almost 10 years.

 

She needs help. I have some ideas about setting up an organization to help
support family caregivers, and right now I am doing some research.

 

Are you aware of any helpful programs or resources or information or
organization supporting family caregivers?

 

Thanks so much, and take care,

 

Dave Krehbiel

Olney, MD

 


 
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[QUAD-L] Who cares for the family caregivers?

[Dave Krehbiel]

I have been a quadriplegic for nearly 10 years now, and as a consequence, my
wife has taken on the role of being a family caregiver for almost 10 years.

 

She needs help. I have some ideas about setting up an organization to help
support family caregivers, and right now I am doing some research.

 

Are you aware of any helpful programs or resources or information or
organization supporting family caregivers?

 

Thanks so much, and take care,

 

Dave Krehbiel

Olney, MD



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RE: [QUAD-L] Question about headset for Dragon NaturallySpeaking and listening to videos

[Dave Krehbiel]

I have had pretty good luck using Google home and Chromecast (plugged into
an HDMI port of a TV). I can access video playlists. I would like to find a
way to set up my own playlists using my PC and access them via voice. I've
also used this technology to connect Netflix. The search function using
Google home is not as powerful or precise as www.google.com

 

One big advantage of watching videos using Google Home and Chromecast is
that you can use your voice to pause and rewind videos. after it is set up
(which requires a smart phone or tablet) you don't need a PC or microphone
or headset. You need a Google account, WiFI access, Google Chromecast ($25),
Google Home ($114), access to a TV or monitor with an HDMI port, and someone
to configure it using a tablet or smartphone. One advantage is, since the
video is not running on the computer, it doesn't seem to interfere us much
with running Dragon NaturallySpeaking at the same time.

 

I had been using an external "shotgun" microphone on a microphone stand,
attached to a very large and heavy duty rolling cart I use as a rolling
computer table for my all in one computer. I was using the computers
speakers, and that worked okay. I did not need to wear a headset, and I was
not connected by any wires to the computer mouse up in the chair, but it was
difficult to watch YouTube videos because the sound from the computer
speakers was picked up by my microphone.

 

recently my microphone stand broke, and so I have begun using the internal
microphone on my computer. After some retraining with Dragon
NaturallySpeaking, it works pretty well for applications without audio. If I
want to watch YouTube videos on the computer, or go to websites with audio,
or make phone calls using Skype, I can ask someone to plug in and put on an
audio headset. if I am surfing the web, I will often plug in the headset
even though I am not wearing it, so that Dragon does not get confused if I
end up in a website with audio text.

 

I'm at home, and not a nursing home, and I have my own private TV. If I were
in a nursing home, I would probably buy another microphone stand and attach
it to my rolling table, since this is much easier for aides to understand
and position. The microphone worked best when it was positioned about 1 inch
away from my mouth. You will need a heavy-duty table, a microphone stand, a
set of wired headsets, and a shotgun microphone.

 

My biggest headache with these various options is voicemail. It is very easy
to use Skype to make phone calls, but I find it very difficult to navigate
voicemail. I think the solution is to set up a Dragon macro which will
initiate a call and then bring up the Skype keypad to navigate voicemail by
voice.

 

Good luck, and take care,

 

Dave Krehbiel

C4/5 quad since 8/2007

Olney, MD

 

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Monday, May 8, 2017 7:37 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Question about headset for Dragon NaturallySpeaking and
listening to videos

 

My headset and microphone I use for Dragon NaturallySpeaking is giving me
difficulties because a nurse moved it earlier today and I told her not to
(98% of the people in nursing homes are mentally demented, and I am treated
like one of them sometimes)  because it is so difficult to get it put back
on to my ears in a position where I can hear the sound. It is now 6 hours
later and I've had 3 people try to adjust them without hitting the sweet
spot. It is a game of chance just to hit the right spot and I'm tired of
playing it. It is especially aggravating to me because I study something
using YouTube videos and obviously I cannot hear them without my headset
being positioned properly. It would be all right if I could use my arms to
position them myself and not be dependent on other people to help me; as it
is, I am in a nursing home in Florida and they are chronically understaffed
and caring for a quadriplegic is really overextending what they have time to
do. I had no difficulties when I just had paralyzed legs but when my arms
became paralyzed and I needed someone to do everything I was doing with my
hands, private nursing care is really required, and unless one of my
children marries a billionaire I don't suppose I'll be receiving private
care in this lifetime, unless I could move to another state. Florida is the
worst place to get crippled in because they spend the least money on
handicap people.

 

Anyway back to the problem at hand. I am using a


Sennheiser PC 8 USB - Stereo USB Headset for PC and MAC with In-line Volume
and Mute Control


headset currently and it is lightweight and doesn't cause any pain when I
must wear it 24 7 which my original headset did, And actually put blisters
on my ears. The problem is I have it positioned exactly, or I cannot hear
with it. I was wondering if anyone else is using something that they can
hear with whenever it is put back on their head without a lot of adjusting
and moving around. Please tell

RE: [QUAD-L] Mouth stick

[Dave Krehbiel]

A big problem with Dragon NaturallySpeaking is, you can use it to control
just about every program except Dragon NaturallySpeaking.

 

For example, there is no way you can use voice controls when you are trying
to train the program.

 

I also had the problem with multiple profiles on Dragon NaturallySpeaking.
My solution was to delete all the other profiles, leaving just one single
profile. Then I can restart or reboot without assistance.

 

Good luck,

 

Dave Krehbiel

 

From: DEBRA DEW [mailto:n14...@hotmail.com] 
Sent: Sunday, April 23, 2017 7:23 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Mouth stick

 

 

I need one very badly and I wish you would tell me what works for you
please. I am in nursing home and so it takes about an hour or so for me to
get someone to my room to assist me so I need some way to grab it into my
mouth independently. I have my laptop sitting on the over the bed table in
front of me in my bed. I thought maybe there would be some kind of a holder
that the stick would lay in and I could lean my head forward and grab the
end of it with my mouth perhaps.

 

It is imperative I have one to be able to touch my computer screen when
necessary when I am doing a restart and have to open the profile for Dragon
NaturallySpeaking. I have the Smart speech program which is supposed to open
the profiles automatically, and was written by a quadriplegic so that he
would be able to use his computer independently without waiting for
assistance but it worked for a few months as advertised and then suddenly it
stopped loading the profile for me so I have to touch the screen to touch
the open button.

 

It is such a great blessing to have others to talk to that are in my
situation and have answers no one else can provide without the experience of
being like this. Lorrie Michelson was kind enough to tell me about you guys
and I'm so appreciative for the information. I hate do is say this, but I
have always gotten all my useful and valuable information from other people
in my situation sharing their day-to-day living experiences with me. Thank
you all so much (yes you all I am Southern)

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: Quadrapeligic due to advanced MS and living in a nursing home
Phone: 561-588-4333
SC student 20yrs  
ROMANS 8:28 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH 



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RE: [QUAD-L] Respite 24 hour care in Phoenix?

[Dave Krehbiel]

Have you tried posting on www.care.com ?

 

From: Gail Overton [mailto:ga...@pennwell.com] 
Sent: Friday, March 31, 2017 12:48 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Respite 24 hour care in Phoenix?

 

Does anyone know of any respite or caregiving agencies that offer 24-hour
care to a quadriplegic in Phoenix, AZ? My husband needs a caregiver April
10-12 and even Ability 360 can't find anyone



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[QUAD-L] Power wheelchair getting stuck on oriental rug.

[Dave Krehbiel]

We have hardwood floors, and in one room we have an oriental rug. At first I
was able to drive my chair into the room without any problems. But lately,
my wheelchair seems to be grabbing the Oriental rug, and the rug and up
wrapped around my drive wheels.

 

Maybe it is because the rug is getting older. Maybe it is because I'm
driving a different wheelchair. But I'm wondering, has anyone else had this
problem? I'm considering buying one of those clear plastic mats people buy
to put under their desks in office spaces, and to use that as a sort of a
pathway for bridge onto the rug.

 

Does anyone have any experience or suggestions or ideas?

 

Thanks so much, and take care,

 

Dave Krehbiel



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RE: [QUAD-L] Back, pain, back!!!

[Dave Krehbiel]

Sorry to hear about the pain. I don't know if any of these ideas will help,
but here goes.

Some time ago, I had a problem with shoulder pain, and I scheduled an
appointment with a physical therapist. She said that in many cases shoulder
pain can be caused by poor positioning in the wheelchair. We made an
appointment for someone to check the armrests on my chair. The armrests were
replaced with wider armrests, and they were raised several inches, and my
shoulders started feeling a lot better.

A second option might be electronic stimulation. Your shoulder joint
requires a certain amount of stabilization by muscles and tendons, and I'm
guessing that some of those muscles are falling down on the job these days.
You can hook up a device which will stimulate and contract and strengthen
those muscles, helping to stabilize the joint, and possibly also reducing
the amount of pain. I don't know what the regulations are where you live,
but the preference of the physical therapists in Maryland is to train aides
to set up and turn on the equipment two or three times per week.

Another thing which has helped me is hot showers. I have a shower chair (I
can send a picture if you like) and a shower I can roll into. These days I
mostly get bed baths. But I had an aide a few years ago that would give me a
shower once a week, and that always made me feel better.

I am a C-4/C-5 quadriplegic, and so I have partial control over my
shoulders. When I'm laying on my back, I contract and exercise the muscles I
have, and that seems to reduce the pain for me.

Good luck, and take care,

Dave Krehbiel


-Original Message-
From: Larry Willis [mailto:lwillis82...@gmail.com] 
Sent: Wednesday, January 18, 2017 11:00 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Back, pain, back!!!

Ok guys, things are getting serious. My neck and right shoulder hurt so bad
I want to cry. It seems to start in the back of my neck and radiate into my
right shoulder joint. The only thing that helps is to stack some thick
towels in front of me and lay my arm on top of them. Does anyone have a
better solution? I've tried salves and lotions, Percocet and ibuprofen.
Nothing. Btw,one year ago this week, my wife MELISSA, had her harrowing
experience with a pacemaker. Prayers for her and a few miracles for all of
us! Night peeps.

Larry Willis
Retired and proud of it


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[QUAD-L] Regarding Medicare

[Dave Krehbiel]

I don't want to get too political, but I would like to make a comment on
health insurance in general.

 

I don't know if insurance is the right word.

 

For example, if I have car insurance, and I wrecked my car, I'm not
prevented from having a checking account or trying to work for a living. I
don't have auditors and regulators and who knows who looking at my family's
income year after year.

 

If I have home insurance, and my home burns down, the government doesn't
suddenly get to run my life.

 

I don't personally have direct experience with all the rules and
regulations, my wife handles those things. But it just doesn't seem like
insurance to me.

 

Take care,

 

Dave Krehbiel



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RE: [QUAD-L] Room Automation

[Dave Krehbiel]

I'm very new to the area of home automation. My son bought me Google Home for 
Christmas. For me right now it has limited functionality. It will tell me the 
time, or start a TV series on Netflix, or begin a series of TED videos.



I have heard that it can be connected to other home automation devices, e.g. 
smart lightbulbs. Personally, my money would be on Google. I doubt seriously 
that they have the best technology. But Google is a monster in the market. 
Betamax was much better than VHS, but as VHS took over, the market followed.



Right now I have Google home connected to a Samsung Smart TV via ChromeCast. I 
have been pleasantly surprised so far.



I just did a quick Google search, and I saw some complaints that Google home 
does not do basic home automation things right now. But what does the future 
hold? If I knew, I'd be at the racetrack.



By the way, the system is constantly listening in case you give it some sort of 
a command. In other words, it is spying on you. I have no idea how much 
information is collected, or who is collecting it, or why, so I don't recommend 
planning any nefarious activities in your new media room.



Good luck, and take care,



Dave Krehbiel



From: William Lang [mailto:blan...@icloud.com]
Sent: Monday, January 9, 2017 1:38 PM
To: quad-list
Subject: [QUAD-L] Room Automation



Guys and Ladies,



I’m taking the plunge and building a new room. Call the man cave but by any 
other name it’s a place where I can isolate myself. My daughter and her husband 
along with four children have been with me for a year. The kids are 11, 6, 4 
and 2. The middle two are serial killers in the making and the baby is showing 
signs of psychotic behavior. I don’t see them leaving any time soon (Free Rent 
and Food).



I grew up the oldest of 12 children, when I was 12 years old there were six of 
us, all boys. By the time I was 17 my mother stop having children. I finally 
got my own bed by joining USAF. (Couldn’t sleep for two weeks because I was not 
used to sleeping alone.) So you see I am use to living with children, We were 
pcrobably were as bad as my grandchildren.



There seems to be a circle in life. You know,  what goes around comes around. 
This will be my 28th year in the chair. My body is breaking down more quickly 
now. Stress sores, pressure sores, toe amputations and all the things that 
quads live with are making Billy cantankerous. I don’t want my grandchildren to 
remember me as an unloving curmudgeon who does nothing but growl and yell.



So, back to the new room. I want to take time and automate some functions 
sensibly. I have enough money set aside for a conversion of the garage 20’ x 
12’ into a multimedia room. I’m trying to decide which automation protocol to 
use.  Here is where I need help.  I would love to automate lighting, power on 
devices such as stereo receivers, TV and associated control boxes (Verizon). 
This seems to me a good place to start and it is imperative that the system 
allow me to expand to other devices (heat, air conditioning security devices 
etc.The system must be voice controlled.





I eliminated X10 protocol because of costs and I believe it to be a closed 
proprietary system. (Only IR communications and no API). So, I would like to 
stay with devices that connect via my Wi-Fi.



Phillips Hue bulbs and its associated controller seems like a good way to 
start. Their starter kit comes with three bulbs and integrate seamlessly with 
Alexa,  IOS And Siri.



Automating the power to a 65 inch OLED LG TV and a smart receiver Onkyo 7.2 
will be done via smart Plugs, again by voice. Connection achieved by Bluetooth 
or Wi-Fi via IP addresses.



So, I would appreciate any and all comments, help, tips and the like .  Thank 
you quad buddies .



 Don’t let what you cannot do interfere with what you can do! -John Wooden



   Billy Lang

  blan...@icloud.com











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RE: [QUAD-L] Phone / Tablet Games

[Dave Krehbiel]

I have really enjoyed playing the original version of snood. You can check
it out at www.snood.com. the original version is an arcade style game, but
you don't have to be in a hurry to move the mouse pointer, and so I was able
to (tediously) play the game using Dragon NaturallySpeaking to move the
mouse. I have not tried any of the newer games.

 

From: greg [mailto:g...@eskimo.com] 
Sent: Saturday, December 24, 2016 4:56 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Phone / Tablet Games

 

Anyone play any good Phone, tablet, games?

C4/5, can move arms a bit. I strap a stylus to my hand. I play mostly things
that I can play with 1 hand/stylus.

Cookie Jam, Saduko, Soccer Stars, Soitaire, Flick Golf, Backgammon,
Cribbage, 8-Ball Pool, etc.

I like the multiplayer games, 8-Ball, card games.

 

A few good 2 hand games like Hill Climb Racing I can do. Just use the back
of 1 hand for break, stylus for gas. Pretty fun, yet simple.

I haven't tried games like Strike Force, looks like I could.

 

Greg



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RE: [QUAD-L] Need a toe truck!

[Dave Krehbiel]

Have you considered steel toed shoes?

-Original Message-
From: Bryce Willis [mailto:lwillis82...@msn.com] 
Sent: Monday, November 7, 2016 4:15 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Need a toe truck!

Hey guys. I need your knowledge and guidance. I have an Invacare power
chair. The footrests are typical Invacare -- too small. My feet stick out
several inches beyond the pedal. I keep ramming my toes into things. I have
destroyed my big toe and the two adjacent toes. I need bigger pads like the
ones E & J used to make so my toes won't be floating in air. Any
suggestions?

Sent from my iPad


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RE: [QUAD-L] We had SNOW!!

[Dave Krehbiel]

Here in Olney, Maryland is 58° and sunny with a light breeze. I don't mind the 
cooler temperatures, it's the breeze that gets to me. I have sweatshirts and 
sweaters, but the breeze seems to go through them. I need a windbreaker or 
something.

Take care,
Dave Krehbiel

-Original Message-
From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com]
Sent: Thursday, October 27, 2016 5:23 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] We had SNOW!!

Here in northern New Jersey we had snow flurries, nothing stuck to the ground 
though but it was pretty.
Tonight will be 28°

How's the weather by ya'll?
Bobbie

"You must fail in order to succeed"


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RE: [QUAD-L] Off-road manual wheelchair?

[Dave Krehbiel]

Have you seen this one? I found it with a Google search. Apparently it costs
about $895

https://whirlwindwheelchair.org/product/roughrider/

 

Also, have you considered a beach wheelchair? From looking at the pictures,
it looks like they would perform much better in sand. If you live somewhere
in the ocean, you may be able to rent one and try it out.

 

From: Gail Overton [mailto:ga...@pennwell.com] 
Sent: Monday, September 19, 2016 12:17 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Off-road manual wheelchair?

 

Does anyone know where I can buy an off-road manual wheelchair that I can
push through sand/gravel? All the manual chairs have those skinny tires that
get stuck in anything and the knobby tire bikes are built for paraplegics
that can use their hands. My husband cannot even drive his power chair so I
need to push him along but would like to enjoy the outdoors with him. HELP!
Can't afford the off-road power wheelchairs and my husband cannot drive them
anyway.

 

 



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RE: [QUAD-L] QUAD-L] Camera?

[Dave Krehbiel]

I was considering getting a camera once. I had a bracket on my prior wheelchair 
which was intended attach a tray. I figured I could rig up some sort of a way 
to attach a camera, which I could aim by steering the wheelchair and by leaning 
forward and backwards. And I found a device used trigger the shutter remotely, 
and it looked like something which I could attach to my wrist splints and bite 
on to take the picture. I never tried it. But maybe that, or something similar, 
could work. Good luck.

 

From: Lori Michaelson [mailto:lorilivin...@gmail.com] 
Sent: Tuesday, August 30, 2016 9:14 PM
To: quad-list
Subject: [QUAD-L] QUAD-L] Camera?

 

That is one of the things I miss the most (photography). My husband was an avid 
photographer and three of the best of the best digital cameras (first a Kodak 
purchased in 1998, then an Olympus... both of which were big and bulky which 
were okay for him and I can't hold a camera anyway). I finally got after him to 
purchase a smaller sized digital camera and he finally purchased a Canon that 
he was able to keep in his T. shirt pocket. It took/takes great videos as well.

 

Anyway, my point is that I can't hold I camera at all so I always have to have 
someone take photos for me which doesn't happen anymore. My life has become one 
big medical problem. Further, after purchasing my first Smart Phone when living 
at my sister's... that takes just as good of pictures so family members took 
pictures for me using that.

 

I would love to know how people with only the use of one arm and one wrist take 
photos by themselves without some elaborate system. I need to be able to drive 
my chair and be able to turn it (my chair and the camera) every which way to 
take photos of anything when out and about by myself. 

 

~Lori

 

On Tue, Aug 30, 2016 at 8:59 PM, greg  wrote:

I had a really nice Canon EOS SLR film camera, but it got frustrating, too 
heavy, film got so costly to develop, etc. But now I thought of trying a nice 
digital. Not a point and shoot. I read some can be operated by Phone App. 
Anyone have a setup that a C5 could use. Any ideas?

 

I like the idea of a video screen back, so I don't have to hold up to my face.

Lighter than my big Canon A2, basically worthless now.

Instead of clamping to chair making it to aim. I thought monopod ballenced on 
my seat.

 

Thanks, Greg

 





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz





 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

[QUAD-L] I'm looking for a better way to click a mouse button

[Dave Krehbiel]

Right now I'm using Dragon NaturallySpeaking, and for me the most tedious
part is moving and clicking the mouse.

 

I would like to deliver a presentation using Microsoft PowerPoint or
something similar, and I would like to have some sort of a hardware option
to click a mouse. ( I would probably either shut off the Dragon
NaturallySpeaking microphone or exit the program before delivering the
presentation.)

 

Is there anyway I can use one of my existing micro switches? Maybe modify a
standard mouse, removing the ball and trying to enlarge the mouse button?
Any ideas or suggestions are very much appreciated.

 

Thanks so much, and take care,

 

Dave Krehbiel

RE: [QUAD-L] just another day in quadadise

[Dave Krehbiel]

My experience over the past eight years has been that many companies who 
provide services to quadriplegics provide a low level of service (and typically 
at a higher price). I think that is because they are small specialized 
companies who don't have a lot of competition.

 

Severely disabled folks like us have an increased need for services, and a 
decreased ability to pay for them. 

 

There are some companies out there (such as a local landscaping company, in my 
case) who provide services at a discount or free to the long-term seriously 
disabled. I used to rake my own leaves, and paint my own house, and change my 
own oil, and so forth. Now our family has to pay people to do all these things. 
I keep wondering if there might be a way to create a directory of local 
companies that will offer service discounts to people with long-term 
disabilities. Or if there might be a way to identify and advertise local 
community minded businesses, and subsidize services.

 

For example, I'd like to find restaurants who would give a discount to people 
in wheelchairs. After all, I can't visit most people in their own homes, and I 
cannot be as hospitable as I would like to be here at my house, and so local 
restaurants would be a great place to get together. And I would like to be able 
to buy discounted restaurant certificates as a way to say thank you to 
volunteers who come and help with household tasks.

 

If anybody has interest in this sort of thing, or has contacts at a nonprofit 
which has programs along a similar line, please let me know.

 

Thanks, and take care,

Dave Krehbiel

 

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Friday, April 22, 2016 12:37 PM
To: RONALD L PRACHT; Quad-list Post
Subject: Re: [QUAD-L] just another day in quadadise

 

Glad you got it Ron, you are right about trying to not get mad or hold 
resentments towards people because all that does it harms the one holding that 
stuff inside...On other hand though if a person tells you they will come in one 
of the next 3 days it is a shame they can't at least call and let you know 
about it, could be he just forgot or had other things of life come up on him. 
hope  you get it going soon, let us know. Dan H**

 

On Thursday, April 21, 2016 10:49 PM, RONALD L PRACHT <r.pra...@sbcglobal.net> 
wrote:

 

Well peeps,

I get my rio dragonfly( attachable powered handcycle) from ebay last week 
and I was happy about potential fun I would have with it this spring/summer. 
This guy I know told me he would come and help me get it fitted either tues, 
wed or thurs of this week. in preparation I read the manual , put some of it 
together, charge battery and get it set up to make it easy as possible for when 
he comes. I wait all week and the guy never shows up or even calls me. I told 
myself that I wasn't going to get mad so I rigged the legs of the cycle on jack 
stands in my room and was able to adjust them to the right length by myself. 
Its all together now and adjusted as well as charged. If my mom will just hold 
the front of the bike, Im going to try to attach it tomorrow for the first 
time. I would have tried that myself but the front end has a spring that brings 
the wheel back to center when you turn and that needs adjustment I think. 
Somehow..someway Im going to get this thing going by hook or by crook. 
I guess anything you want bad enough you can figure out, but it sure is a big 
deal to do the simplest things as a quad.

 

Ron

 

RE: [QUAD-L] knee pillow

[Dave Krehbiel]

I sleep on my side, and aides use about eight pillows to position me. They put 
one between my knees and one between my feet so that my knees and ankles will 
not be touching. These are not any kind of special pillows, they are just 
generic everyday pillows.

-Original Message-
From: Derrick [mailto:wheel...@centurylink.net] 
Sent: Friday, April 15, 2016 2:01 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] knee pillow

Does anyone use a knee pillow to keep knees from touching while keeping hip 
aligned when you sleep on yourside?
Allgero Medical has one that unfolds to keep feet from touching bed. 
Then there is a dozen on Amazon.

I wonder if the pillows that unfold for feet slide apart or come undone.
So, is best to get a pillow for each purpose?
Thanks,
Derrick
i got hip pain and need to keep hip aligned while sleeping on side. I sleep on 
back 97% of time but I would do more if I can keep hip from not hurting.

[QUAD-L] regarding UTIs and suprapubic catheters

[Dave Krehbiel]

I have had a suprapubic catheter for over eight years, and overall things
have worked well.

 

At first, I was on a schedule to change the catheter monthly. The last week
of the month, there would typically be problems. Things would get cloudy, or
clog up, or leak. I was able to change the schedule so that the catheter was
changed every three weeks. I've had very few problems since then.

 

I have tried to avoid taking too many antibiotics, because they seem to
result in diarrhea. And I don't want to create a colony of superbugs who are
resistant to antibiotics, in case I have a big problem in the future.

 

If you are having catheter -related problems, you might want to keep an eye
on when they occur. If they are occurring the week before your catheter is
scheduled to be changed, you might try asking if your catheter could be
changed a bit more frequently.

[QUAD-L] Has anyone considered or tried Amazon Echo?

[Dave Krehbiel]

Thanks,

Dave Krehbiel

RE: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected - Disability...

[Dave Krehbiel]

Thanks. According to the article, in order to be eligible for the program, a
person must have a disability which occurred before the age of 26.

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Tuesday, January 12, 2016 8:18 PM
To: jlu...@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] ABLE Accounts May Be Available Sooner Than Expected -
Disability...

 

Thanks Jim

Happy New Year 

Best Wishes

 

In a message dated 1/12/2016 7:13:21 P.M. Central Standard Time,
jlu...@eskimo.com writes:

https://www.disabilityscoop.com/2016/01/11/able-accounts-sooner-expected/217
52/

RE: [QUAD-L] bowel program

[Dave Krehbiel]

I use a magic bullet suppository most mornings. If I have trouble with 
constipation, a bit of fruit will usually help.

-Original Message-
From: Eric Olson [mailto:whee...@wi.rr.com] 
Sent: Thursday, December 17, 2015 4:02 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] bowel program

When do you do your bowel program?  I mean time of day.  How often? What things 
do you use to help move your bowels like senecot, miralax, metamucil?  Any 
simple things like all bran cereals or activia yogurt.  
I ask because I recently had to have abdominal surgery because of an ileus and 
have to radically rethink how I manage my bowels.  I had heard that quads can 
develop a mega-colon because of reduced motility in the bowels.  A normal 
person's colon is 6 feet long.  Mine is 12.  Here's the thing - nobody seems to 
know if that's abnormal.  I guess the number of 30 year quads that have had 
abdominal surgery is small.  Anyway I used to do my bowel program 
Monday,Wednesday Friday.  I was taking metamucil twice a day and on bowel 
program days I took a magic cleanse and 2 senecot.  I ate bran cereals and 
activia yogurt every day too.  
What do you do?

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[QUAD-L] Any menu ideas? here's mine.

[Dave Krehbiel]

Frozen meatballs. I have found these to be a great addition to my freezer.
It is easy for aides to microwave them for a meatball sandwich or sub. You
can add them to spaghetti and other easy meals. I highly recommend that you
try a bag.

 

Do you have any easy and quick suggestions which can be easily prepared by
aides and caregivers?

[QUAD-L] Recommendations for a trackball please

[Dave Krehbiel]

I can move my arms but not my fingers, and I am using Dragon
NaturallySpeaking with Windows 8. In some cases, it can be tedious or
difficult or impossible to move the mouse pointer using Dragon
NaturallySpeaking. Does anyone use a trackball which they recommend?

 

Thanks so much,

Dave Krehbiel

RE: [QUAD-L] SP Cath size

[Dave Krehbiel]

24F, about six years. I had problems with leakage with smaller sizes, and
also problems with blockages.

 

From: greg [mailto:g...@eskimo.com] 
Sent: Tuesday, November 24, 2015 6:07 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] SP Cath size

 

Those with a SP cath, what size do you use? After how many years?

 

For about 15 years I used a 16F, but it started leaking around the cath
itself, through the incision. So I changed to a 18F. But after only a few
years, it's leaking again. Only at night. No idea why. Not blocked, not
plugged, no junk in it, no sweating. In the morning everything is wet, night
bag 1/4 full. So it's draing some, but not backing up causing AD or
anything. I don't want to keep going up in size. How often do you go up in
size?

 

Thanks, Greg

FW: [QUAD-L] Voice-activated TV remote?

[Dave Krehbiel]

 

 

From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Wednesday, November 11, 2015 9:37 AM
To: 'Gail Overton'
Subject: RE: [QUAD-L] Voice-activated TV remote?

 

I have Comcast cable, and you can change the channel using the Xfinity website. 
I use Dragon NaturallySpeaking to control my PC. And so I can change the 
channels on my seven-year-old television set using a combination of Dragon 
NaturallySpeaking, my computer, and the website. Unfortunately, I'm not able to 
turn the TV on or off or change volume or switch the input from the cable box 
to my Roku box. maybe the newer televisions have more options for wireless 
control. Good luck.

 

Dave Krehbiel

 

From: Gail Overton [mailto:ga...@pennwell.com] 
Sent: Wednesday, November 11, 2015 1:25 AM
To: quad-list
Subject: [QUAD-L] Voice-activated TV remote?

 

Does anyone know if there is such a thing as a voice-activated television 
remote control? We caregivers spend way too much time changing channels for 
quadriplegics and I’m sure it’s frustrating for them as well….surely in the 
21st century there has to be something!

 

RE: [QUAD-L] Wife recent SCI

[Dave Krehbiel]

Sorry to hear about your wife, but you have come to the right place. Personally 
I use Dragon NaturallySpeaking on a Windows 8 PC, and I use my computer to 
change the channels on the television using the xfinity web site. press my 
television is seven or so years old, and I'm sure the newer models have 
additional wireless functionality. And there is a program called Remoku which 
allows you to control your Roku box (for Netflix) using your computer browser.

 

Dragon NaturallySpeaking can be quite frustrating. I find it is most accurate 
and least frustrating when you dictate letter by letter. It is tedious to try 
to move the mouse using Dragon. And some Windows software doesn't work very 
well with Dragon. But I use it every day nonetheless.

 

Regarding friends: someone on this forum once said that most of their current 
friends are people they have met post accident. I have found this to be true in 
my case as well.  I have a number of wonderful friends who have stuck with me 
over the years, but a much larger number of my former friends I just don't see 
anymore. Don't be afraid to go out and make new friends.

 

Good luck, and take care,

Dave Krehbiel

 

From: Dr.Ron and Sharion Austin [mailto:ronausti...@gmail.com] 
Sent: Wednesday, October 21, 2015 9:38 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Wife recent SCI

 




​My wife is a recent SCI C5 (may 31). While we are dealing with a lot now (as 
most of you know better than I) we will get through this leaning on our faith, 
family and friends. Bruce had mentioned voice activated software to be able to 
use her I-pad and computer.  What are most of you using?  How about being able 
to control the TV?

Also have any of you used or have an opinion of the MOTO med movement therapy 
(an exerciser for legs and/or arms).

Thanks for any info

Ron Austin​


-- 

Living in God's Grace

Ron

RE: [QUAD-L] Getting Old, Panic

[Dave Krehbiel]

Regarding falling asleep: I record movies and I watch the same movie every 
night when I'm ready to go to sleep. For over a year I have been watching 
Casablanca every night, and I usually fall asleep in just a few minutes.

-Original Message-
From: ntpgrn...@aol.com [mailto:ntpgrn...@aol.com] 
Sent: Sunday, September 27, 2015 8:13 PM
To: greg
Cc: 
Subject: Re: [QUAD-L] Getting Old, Panic

I hear you
No paralysis put worry, anxiety and panic for sure.


Nancy



> On Sep 27, 2015, at 8:08 PM, greg  wrote:
> 
> Getting older, 51… 32 post injury. I'm having more health issues, most 
> worrisome or at least hardest to deal with are panic attacks. Not classic 
> panic attacks, mine are more worry attacks. I get stuck in a loop of 
> obsessive worrying. Mostly money, what's going to happen when old, etc. It 
> leads to the panic feeling. Like feeling like not getting enough air. 
> 
> The worst part is going to bed when worrying. I get obsessive worrying, then 
> the feeling of having to get up. I start feeling like I'm going to panic. The 
> worry of going to have one can be worse than having one. I start to worry 
> about going to bed. What if I have one in bed.
> 
> I tried a few antidepressants, and panic attack meds, from my doc. Made me 
> feel sick, I had to stop. So I'm going to see someone about it. Someone who 
> knows more and can adjust them. I just don't know if it can help when they 
> are lagit worries. No med can take the worries away. I just have to stop the 
> obsessive part.
> 
> G.
> 

[QUAD-L] Adaptive dress cothing for men

[Dave Krehbiel]

I'm getting tired of T shirts and stretch pants. I have a chest strap which
helps hold me upright in my chair (along with lateral supports). In order to
hide it,  I have a modified sweatshirt (split down the back) which hides the
strap, but I'm looking for some more dressy options. Do you know of a source
of adaptive clothing which can hide a chest strap?

 

Thanks,

Dave Krehbiel

RE: [QUAD-L] pressure sore seating info

[Dave Krehbiel]

I got it

 

From: gah17...@aol.com [mailto:gah17...@aol.com] 
Sent: Tuesday, September 15, 2015 2:09 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] pressure sore seating info

 

Good morning,

I’ve seen almost everyone on the quad site talk about pressure sores they’re 
dealing with.  Well, it’s my turn.

I have an area that I’ve been dealing with for several months now.  It is 
superficial, but nevertheless is there.  There is no depth, but this skin keeps 
opening.  There is nothing underlying that can be detected, but being in a skin 
fold is the problem.

I would like to hear from anyone about what kind of wheelchair cushion you may 
use, Roho users please don’t respond as I have used the roho and it does not 
work for me.

Question two, does anybody use memory foam or T foam?  If you do use either, 
does anybody ever cut a hole in the foam to relieve pressure?

Question three, if anyone has ever had seat mapping, do you have any type of a 
wedge placed under your cushion to shift weight differently?

Am a 49 year post Sci C5-6.

Thanks,

Glenn

RE: [QUAD-L] Old

[Dave Krehbiel]

Someone on this forum said, quadriplegics are like snowflakes, they are all 
different.

 

I sometimes feel offended when some person who has a different injury than mine 
and much more support than I have is presented in the news as a role model. The 
TV show seem to present the idea that the reason this person is overcoming 
their difficulties is because of their strength of character and positive 
mental attitude and persistence. The implication is: the rest of us just are 
not trying hard enough and have a bad attitude.

 

The reality is: some of us are having a pretty rough go of it. But nobody wants 
to see a story about that on television.

 

Dave Krehbiel

 

From: RONALD L PRACHT [mailto:r.pra...@sbcglobal.net] 
Sent: Saturday, July 4, 2015 1:07 PM
To: Quad-list Post
Subject: Re: [QUAD-L] Old

 

I was told once that if you cry you will cry alone. These special quads have 
learned the art of giving people what they want to see and hear and cry at home 
behind closed doors. It has allowed them to be a roll model and receive 
support. The one thing that all super quads have is support...they have 
much family, friends, checkbook, donations, caregivers. The average quad just 
doesn't have all that behind them and sadly the disabled community is more like 
I have it and you don't rather than helping every disabled individual get the 
support they need. There isn't anything fair about how things are dolled out to 
help the disabled.Its who you know, are you worth spending money on (Voc Rehab) 
and the sqeaky wheel gets the oil.

 

Ron

 

 

On Saturday, July 4, 2015 11:48 AM, greg g...@eskimo.com wrote:

 

They are faking it!




 meds I take, thank goodness not all days are real bad...I have some
 pretty good days but on other days I feel like I'm turning into a
 grumpy old man--i don't see how Joni Erickson Tada and a few others
 can be s cheerful all the time, I try but it is a
 stuggle !  Happy 4th to yopu all today !!! 

 

[QUAD-L] getting into a non-accessible house. should I try a manual wheelchair?

[Dave Krehbiel]

I have been invited to a family event, but the houses not wheelchair
accessible. The person hosting the party has offered to rent or build a
ramp, but I am wondering if it would be simpler and easier and safer to use
a standard nonpowered wheelchair.

 

There are three or four concrete steps leading up to the front door.

 

While I was in rehab, I watched them train individuals bring a person in a
wheelchair up a flight of steps by themselves. At this event, there will be
at least a half a dozen man who could lend a hand.

 

Have you ever used a standard wheelchair to get into a non-accessible house?
My power wheelchair weighs about 600 pounds with me in it, and I just wonder
if it would be easier to simply let relatives push me around for the day.

 

Thanks so much,

 

Dave Krehbiel

RE: [QUAD-L] quadriplegic remote control

[Dave Krehbiel]

I personally have Xfinity TV from Comcast. I can change channels and record
programs and play recorded programs from their website (I use Dragon
NaturallySpeaking to control the computer). I am not able to turn the
television on or off or to change the television volume. I can also stream a
number of television shows and movies directly to my PC.

 

I know this isn't exactly what you're looking for, but maybe the information
is helpful to somebody.

 

Take care,

 

Dave Krehbiel

 

From: HOSNI AL-KHATIB [mailto:hosnialkha...@hotmail.com] 
Sent: Wednesday, January 28, 2015 12:36 PM
To: Quad-List
Subject: [QUAD-L] quadriplegic remote control

 

Hi My Friends

 

I Want To Ask You,What Kind Of Remote Controls You Use For TV,And Which One
Is The Best.

I Need A Remote To Use It When I'm In Bed,To Change Channels With A Click By
My Head.

 

Thank You 

[QUAD-L] Does anyone have experience with trickle chargers for Invacare wheelchairs?

[Dave Krehbiel]

I have a new wheelchair, but I would like to keep my old Invacare wheelchair
as a spare. I live in the Washington DC area (it gets below freezing in
winter) and I am hoping to store my old wheelchair outside in a shed. I have
been told that I need something called a trickle charger to maintain the
batteries. 

 

I do not have power in my shed, and so I have been considering solar trickle
chargers. The majority of trickle chargers I have found online are 12 V but
I think I need a 24 V trickle charger with an XLR3 connector.

 

Have any of you done something like this before? Do you have any recommended
solutions or vendors? Can I use my existing charger on some sort of a
scheduled basis to maintain the batteries safely?

 

Thanks so very much,

 

Dave Krehbiel

(301)924-4530

RE: [QUAD-L] paralysis... an issue

[Dave Krehbiel]

I agree with wheelchair about a major schism between paraplegics and
quadriplegics.

 

Paraplegics can and should pursue independent living. Quadriplegics will
always be dependent, and hopefully we can pursue dependence with dignity.
Press enter key press enter key

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Saturday, November 29, 2014 8:41 AM
To: kzakaria...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] paralysis... an issue

 

Its a theory.  A very good theory, but just a theory.   If such a schism
exists, its between Paras and Quads. Or those who are mobile and those not
mobile.  Or perhaps, those who can communicate and those who can not
communicate.  Its all carried under the same umbrella.

Best Wishes

 

In a message dated 11/29/2014 3:48:06 A.M. Central Standard Time,
kzakaria...@gmail.com writes:

a quad, c3, incomplete. 15 years post

here find a link .interesting.do you think there  a schism developing in the
paralysis community, as discussed in the link? thanks.

http://www.spinalcordinjury-paralysis.org/blogs/20/2309

RE: [QUAD-L] Podiatrist

[Dave Krehbiel]

Re: foot drop: 
 have a physical therapist train your aides and caregivers to stretch out
your Achilles tendon and calf muscles
 get a prescription for Multi Podus boots
 find some sort of way (I use a strap) to secure your feet on your
wheelchair (so you do not run over them, possibly breaking a leg, possibly
flipping your wheelchair)

Take care,
Dave Krehbiel

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Thursday, October 09, 2014 10:35 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Podiatrist

Today I went to see my podiatrist and he in formed me that my toes are
starting to curl under and my toe nails are also curling under Another fact
he told me was that, I am developing foot drop as well, and that there isn't
really anything that can be done about it too.
Does anybody else have these problems as well?
Bobbie 

Smile Everyday

RE: [QUAD-L] RTA? Huh, what?

[Dave Krehbiel]

According to:
http://www.ncbi.nlm.nih.gov/pubmed/16615223

It seems to mean, road traffic accidents.

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Friday, September 12, 2014 5:48 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] RTA? Huh, what?

I was on the SEI website and they were saying about the leading cause of
spinal cord injuries is RTA's. 
Does anybody know what RTA's stands for? Bobbie 

Smile Everyday

RE: [QUAD-L] inhalers?

[Dave Krehbiel]

While in rehab, I used a Spirometer to help improve lung function.

 

Here is a link with a bit more information:

http://www.smiths-medical.com/catalog/lung-expansion/insentive-spirometer/di
sposable-coach-spirometer.html

 

The model I have is a Coach 2 by DHD Healthcare.

 

A Spirometer is also very helpful if you are trying to cough something up,
e.g., scrambled eggs, going down the wrong way.

 

I use Dragon naturally speaking to control my computer, and I am sure that
this has given me more exercise. 

 

Take care,

Dave Krehbiel

 

From: greg [mailto:g...@eskimo.com] 
Sent: Friday, August 22, 2014 4:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] inhalers?

 

I saw a lung doctor yesterday,  was tested at 30% lung capacity.

He wants me to try some Inhaler and a Nebulizer? or something like that.

My lungs don't work because of lack of muscle, not mucus stuff.

Do you think anything like that ill help?

 

Anyone else try those things?

Greg

[QUAD-L] what laptop would you recommend for Dragon NaturallySpeaking?

[Dave Krehbiel]

I'm currently running Dragon NaturallySpeaking on an eight year old laptop
running XP. I'm hoping to upgrade.

 

My son recommends a multi-processor laptop running Windows 7, and recommends
avoiding Windows 8.

 

Can anyone help me with her recommendation for a laptop to run Dragon
NaturallySpeaking?

 

Thanks so much,

 

Dave Krehbiel

(301)924-4530

[QUAD-L] Some Questions About Fund-Raising

[Dave Krehbiel]

Have anyone worked with a nonprofit organization or fund-raising company to
raise money?

 

It takes a certain amount of infrastructure to accept credit cards and
accept PayPal payments and so forth. Have you tried this yourself, or can
you recommend an organization to work with?

 

A big problem with fundraising is: people are most likely to make a donation
following a big accident or problem, but the initial enthusiasm falls off
quickly. Have you found this to be the case? Have you tried any ideas to
generate ongoing support from friends and family and community?

 

Thanks,

 

Dave Krehbiel

Olney, MD 20832

 

(301)924-4530

RE: [QUAD-L] Ceiling lifts

[Dave Krehbiel]

Here is a link to a page describing barrier free lifts:
http://www.techforltc.org/producttype.aspx?id=2095,1892
I have the one on the bottom of the page. We have been generally happy with
it, but we have had battery related issues.

Dave Krehbiel

-Original Message-
From: Gmail [mailto:bobbiehumphre...@gmail.com] 
Sent: Monday, March 24, 2014 3:25 PM
To: quad-list
Subject: [QUAD-L] Ceiling lifts

Hi All,
   I'm seriously considering buying a ceiling lift. Who has one? What
brand do you have? How long ago did you get it? How much did it cost?
Anything I should know before I buy one? Do they have back-up battery
systems for the them?
Bobbie 

Smile Everyday

RE: [QUAD-L] Don't know if I shared this before

[Dave Krehbiel]

I personally cannot control my television, but I can change channels and
record movies and so forth by controlling my cable box.

 

I have Xfinity (Comcast) cable, and I use Dragon NaturallySpeaking to access
their website.

 

Dave

 

From: Fragile [mailto:swl...@gmail.com] 
Sent: Sunday, March 23, 2014 10:00 AM
To: quad-list
Subject: Re: [QUAD-L] Don't know if I shared this before

 

Is there something out there somebody can recommend for television control? 

 

2014-03-21 10:37 GMT-06:00 KK Batte kkba...@outlook.com:

It's about ECU

 

http://www.ablenetinc.com/Assistive-Technology/Environmental-Control-Units-E
CU

 

[QUAD-L] do you have a way to dial the plain old telephone?

[Dave Krehbiel]

I'm tired of people complaining about Skype.

 

I'd like to find some sort of a way to dial the phone and navigate voice
mail and hang up the phone. I'm referring to plain old telephone service
(POTS) rather than wireless service.

 

I'm guessing it could be done with a combination of a computer software
program and a modem and a phone line and a headset. Has anyone done this? Is
anyone else interested in this?

 

Thanks,

 

Dave Krehbiel

(301)924-4530

RE: [QUAD-L] am I cold, or am I hot

[Dave Krehbiel]

I don't know if it would help your problem, but I sleep much more
comfortably at night (and feel warmer during the day) when I wear a knit
cap.

-Dave

 

From: greg [mailto:g...@eskimo.com] 
Sent: Thursday, March 06, 2014 4:10 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] am I cold, or am I hot

 

I've mentioned this before, but I never heard if anyone else was
experiencing the same problem. I can sit in the sun for long times in hot
weather and feel fine. A few times I have gotten overheated, but at those
times I felt hot and overheated. And in Seattle at night I would use a
blanket, a sheet, and a heavy comforter. And all through the night I felt
toasty warm.

 

But the last few years when I'm in bed daytime or night, but mostly
nighttime. Just using a sheet and one blanket. When my arms are covered. I
can feel like I am freezing cold, I can even be shivering. I can turn up the
heat, I can add a blanket, but I just feel colder. I often check my
temperature and it is about 97 or there about, my normal temperature is
about 96.5. I am so sure that I am cold, my arms feel like all the hair is
standing up and my arms are shaking. Then I realize what must be happening,
that I'm overheated. So I uncover my arms and at first, when the air gets my
arms I feel even a bit colder. But as my arms cool off they start to feel
better, no longer hot or cold. But then in the middle of the night they get
cold again from being uncovered. So it is damned if I do, damned if I don't.

 

My arms often feel cold and tingly, except when the sun is shining on them.
But only when under covers do they get to bad. When I sit under the furnace
vent and get warm I don't shivering like that. When I fall asleep with my
arms covered I wake up shivering, my arms are clenched tight, and I would
bet everything I have that I am cold. Obviously I would lose that bet.

 

I can't figure out how to stay warm night, without feeling like I'm
freezing.

 

Greg

 

RE: [QUAD-L] SelectAir air mattress

[Dave Krehbiel]

I have an air mattress, which alternates pressure between different
sections. Yes, it is harder to get warm, because the air pump is blowing
cold air into the mattress, and probably through the mattress and under your
sheets.

 

The good news is: cooler temperatures and alternating pressures help to
reduce wounds.

 

The bad news is the cold. I sleep with three blankets and sometimes a wool
cap to keep warm.

 

Dave

 

From: nichole rohling [mailto:zoocr...@windstream.net] 
Sent: Saturday, January 25, 2014 7:44 PM
To: 'Raymond Kelly'; quad-list@eskimo.com
Subject: RE: [QUAD-L] SelectAir air mattress

 

I use flannel sheets year round and I'm in Oklahoma. 

 

Nicki

 

From: Raymond Kelly [mailto:kelra...@gmail.com] 
Sent: Saturday, January 25, 2014 4:53 PM
To: xQuad-list
Subject: [QUAD-L] SelectAir air mattress

 

Hello, I am a C3/4 complete quadriplegic. I have been sleeping on a foam
mattress for years without a problem, but I recently got a chance to try out
a SelectAir air mattress.I was offer this mattress secondhand for free and I
have heard how air mattresses are supposed to be better for us quadriplegics
so I figured I should give it a try. The main problem I seem to have with it
is that I could not keep warm enough. For some reason I had to put a lot
more blankets over me to warm me up on the air mattress then on the foam
mattress. I am just writing wondering if anybody on this list uses that type
air mattress and have had the same problem? While I am writing, I am
wondering what other people who use that mattress used for sheets. 

 

Thank you very much in advance for any information you could offer me about
this.

Raymond Kelly

RE: [QUAD-L] Misc.

[Dave Krehbiel]

I had a similar wound, at one time about the size of a baseball, and over a
year or so he healed completely. One additional tip: lots of protein. I was
surprised to learn that the number one source of protein is cottage cheese
(at least on the list from the rehab facility.).

 

I told my wife I needed more protein, and requested that she bring me a
prime rib steak once a week. I don't know if the steak helped, but it didn't
hurt.

 

Over time, the wound was reduced in size to less than the size of a marble,
and it seemed to take forever to eventually close up.

 

Dave

 

From: cviewe...@aol.com [mailto:cviewe...@aol.com] 
Sent: Wednesday, January 22, 2014 10:10 PM
To: lwillis...@yahoo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Misc.

 

Same place I had my sore. The wound vac. made it worse. The only way to heal
it is to keep off it completely. It took me 6 months but it did heal. I
would go to the wound clinic once a week. It was so slow but it worked. I
still keep off it when I can, but now that it is healed I am up most of the
day and I use a roho in my chair all the time. The clinic always said to eat
lots of protein. I tried not to eat big meals and I did loose weight and
when hungry I ate a few almonds.  I hope this helps.  Rose

 

In a message dated 1/22/2014 8:29:27 P.M. Eastern Standard Time,
lwillis...@yahoo.com writes:

I made the comment several months ago that Jim Lubin was a hell of a man. I
think my point is proven. Jim, I wish I had half your willpower and
strength.
Regarding a wound vac, they work great if you can keep them sealed. I have a
sore on my tailbone that won't heal. It's right at the top of my butt crack
though, and it's just impossible to seal across the valley. All suggestions
welcome.

Sent from my iPad

RE: [QUAD-L] Issues with ALT/air mattress pump

[Dave Krehbiel]

I have had a Drive bariatric bed, air mattress, and Pump for the past six
years or so. We have had to replace the headboard and footboard on the bed
(I don't recommend moving the bed. When it is extended to its full light) ,
and our second mattress and pump (the first one developed a leak).

 

I'll be happy to send more information if you like.

 

Dave Krehbiel

(301)924-4530

 

From: KK Batte [mailto:kkba...@outlook.com] 
Sent: Saturday, December 28, 2013 11:10 AM
To: quad-list@eskimo.com; ms-qu...@yahoogroups.com
Subject: [QUAD-L] Issues with ALT/air mattress pump

 

I have a Mason 2000ADJ which is cheap I know.  This is my 3rd pump in 4
years.  They seem to lose pump pressure over time.  I have gotten a new pump
each time - no charge - of course.  But this newest one isn't keeping the
level where it should be.  

What kind of Alternating air mattress do you have  are pleased with?  Any
other mattress suggestions will also be helpful.  Seem to be spending a lot
more time in the bed these days.

KK

[QUAD-L] is anyone using Dragon NaturallySpeaking with Windows 8?

[Dave Krehbiel]

I'm still running on windows XP, and am running Dragon version 10.

 

My son is trying to encourage me to update.

 

Is anybody using Dragon NaturallySpeaking with Windows 8? If so, how is it
working? What version of Dragon are you using? Do you recommend updating?

 

Thanks,

 

Dave Krehbiel

[QUAD-L] source for wheelchair friendly clothing

[Dave Krehbiel]

Where do you suggest that I look for things like shirts and windbreakers and
ponchos designed for folks in wheelchairs?

 

Thanks, Dave Krebbiel

FW: Re: [QUAD-L] can you help me regarding: service discounts for families impac...

[Dave Krehbiel]

Thanks everyone for your comments. I'm making progress and hope to have
something to announce in September or October.

 

The challenge is: exactly, what does it mean to have a disability? Everybody
wants a discount. I think the key is: finding a way to use this to our
advantage.

 

Dave Krehbiel

 

From: Derrick Winegardner [mailto:whe...@cvn.net] 
Sent: Friday, August 23, 2013 4:23 PM
To: Dave Krehbiel
Subject: Fwd: Re: [QUAD-L] can you help me regarding: service discounts for
families impac...

 

seen this article on senior discounts, why not disabled??
start our own non-profit (aarp) for disabled/wheelchair users
Derrick in PA

http://www.bankrate.com/finance/frugal/senior-discounts-50-plus-1.aspx



 Original Message  


Subject: 

Re: [QUAD-L] can you help me regarding: service discounts for families
impac...


Date: 

Thu, 08 Aug 2013 12:23:03 -0400


From: 

Derrick Winegardner  mailto:whe...@cvn.net whe...@cvn.net


To: 

quad-list@eskimo.com



unless you get into huge amounts money -a non profit is not that hard
(just do not put tea party in the name...of course now it may get instant
stamp since election is over and congress investigation)

agree, how to determine disability is hard.
that is why i think people in wheelchairs would be the easiest way to
determination
derrick

On 8/8/2013 11:25 AM, wheelch...@aol.com wrote:

Good Luck, My Friend.  Applying for and getting a Non-For-Profit status is
hard enough as it is as you must continue to file lots of paperwork.  Who is
actually disAbled, may surprise you as it takes more than a medical doctor
to judge, these days.  But again, Good Luck!

Best Wishes

 

In a message dated 8/8/2013 10:11:38 A.M. Central Daylight Time,
davekrehb...@earthlink.net writes:

I've been considering trying to start a nonprofit organization, but before I
do something new, I'd like to know if anything similar currently exists.

 

As we all know, businesses react to disability in different ways.  Most
ignore us. Some take the opportunity to charge very high rates. The majority
which I have dealt with have attempted to be kind and considerate and
accommodating. But some go a step further, offering discounts and sometimes
free services for families who have been impacted by disability.

 

Families who have been impacted by disability have an increased need for
services, and a decreased ability to pay for them. Before my accident, I
would cut the lawn myself, and rakemy own leaves, and change the oil and
brakes for our cars. Now, my wife and children have to pay professionals to
do all these things.

 

But some companies have stepped forward to help. A local heating and air
conditioning company did a free repair on my air conditioning. A landscaping
company removed a dangerous tree at no charge. My home health agency no
longer allows aides to trim my fingernails, but a local mail salon will cut
and file them for me at a discounted price.

 

I would like to suggest that there is a need for an organization to
encourage service companies to step up and offer free or discounted services
to families impacted by disability.

 

For example: since my accident, I have lost contact with a number of friends
and Associates. I would like to meet them someplace for a dinner or a drink.
Since they don't know what to do or how to deal with someone with a
disability, they tend to do nothing. I need to be the one who instigates the
lunch or dinner. Since I am inviting someone else, I need to be prepared to
pay for it. The reality is: my friend will most likely pick up the tab. A
restaurant who sells gift certificates to families of the disabled at a 50
percent discount will most likely end up getting more business at full fare.

 

There would be challenges and difficulties in setting up such an
organization. For example, what exactly counts as a disability? How can we
be sure that people are not abusing the program? How can the program be
promoted to the companies who might provide services and to the people most
eligible to receive discounted assistance?

 

I have some ideas about how to address these problems. I've begun talking to
a number of people, and they all sound positive, but they want to know if
there are any similar organizations already in existence.

 

I have done a bit of a search on the Internet, and I have found a number of
companies which offer discounts on medical supplies and so forth. I am
actually looking to address the non-medical aspects of disability. I am
trying to encourage and enable people with disabilities and their families
to be able to enjoy and afford more normal lives. 

 

Can you help me by sharing what you know?

 

Are you aware of any organizations which encourage or provide service
discounts for things such as yard work, electrical work, plumbing,
carpentry, auto repair, maid service, or meals and drinks and restaurants?

 

Have you had positive experiences with private companies who have stepped up
to help you out, who

[QUAD-L] can you help me regarding: service discounts for families impacted by disability

[Dave Krehbiel]

I've been considering trying to start a nonprofit organization, but before I
do something new, I'd like to know if anything similar currently exists.

 

As we all know, businesses react to disability in different ways.  Most
ignore us. Some take the opportunity to charge very high rates. The majority
which I have dealt with have attempted to be kind and considerate and
accommodating. But some go a step further, offering discounts and sometimes
free services for families who have been impacted by disability.

 

Families who have been impacted by disability have an increased need for
services, and a decreased ability to pay for them. Before my accident, I
would cut the lawn myself, and rakemy own leaves, and change the oil and
brakes for our cars. Now, my wife and children have to pay professionals to
do all these things.

 

But some companies have stepped forward to help. A local heating and air
conditioning company did a free repair on my air conditioning. A landscaping
company removed a dangerous tree at no charge. My home health agency no
longer allows aides to trim my fingernails, but a local mail salon will cut
and file them for me at a discounted price.

 

I would like to suggest that there is a need for an organization to
encourage service companies to step up and offer free or discounted services
to families impacted by disability.

 

For example: since my accident, I have lost contact with a number of friends
and Associates. I would like to meet them someplace for a dinner or a drink.
Since they don't know what to do or how to deal with someone with a
disability, they tend to do nothing. I need to be the one who instigates the
lunch or dinner. Since I am inviting someone else, I need to be prepared to
pay for it. The reality is: my friend will most likely pick up the tab. A
restaurant who sells gift certificates to families of the disabled at a 50
percent discount will most likely end up getting more business at full fare.

 

There would be challenges and difficulties in setting up such an
organization. For example, what exactly counts as a disability? How can we
be sure that people are not abusing the program? How can the program be
promoted to the companies who might provide services and to the people most
eligible to receive discounted assistance?

 

I have some ideas about how to address these problems. I've begun talking to
a number of people, and they all sound positive, but they want to know if
there are any similar organizations already in existence.

 

I have done a bit of a search on the Internet, and I have found a number of
companies which offer discounts on medical supplies and so forth. I am
actually looking to address the non-medical aspects of disability. I am
trying to encourage and enable people with disabilities and their families
to be able to enjoy and afford more normal lives. 

 

Can you help me by sharing what you know?

 

Are you aware of any organizations which encourage or provide service
discounts for things such as yard work, electrical work, plumbing,
carpentry, auto repair, maid service, or meals and drinks and restaurants?

 

Have you had positive experiences with private companies who have stepped up
to help you out, who have cut you a break because you are in a difficult
situation?

 

Do you think that such an organization would be a good idea?

 

Would you like to be involved in trying to get such an organization
organized?

 

How could disability be defined in a way that the organization could help
truly needy people and not be taken advantage of by others?

 

Thank you very much. Thank you in advance for your comments and
perspectives.

 

Take care,

 

Dave Krehbiel

(301)924-4530

[QUAD-L] technical question... how can I provide access to a photo?

[Dave Krehbiel]

I would like to post something, and include a link to a picture. What's the
best way to do that for folks on this forum?

 

Also, I've heard that there is a way to reduce the size of the file for the
convenience of folks accessing it. What's a good way to do that?

 

Thanks, and take care,

 

Dave Krehbiel

[QUAD-L] a question from my wife regarding family caregivers

[Dave Krehbiel]

I was injured at the beach about five years ago, just before my 50th
birthday. I am now a C4/C5 quad who is now living at home with the
combination of insurance, Medicare, Medicaid, and care by my family.

 

My accident was a life changing experience for me and for my family,
especially for my wife.

 

She has tried to find someone to talk to about her issues, but there are
precious few people who understand what it is like to be a quadriplegic or
to care for a quadriplegic. For example, since I have control of my shoulder
muscles and biceps, people see my arms moving and don't understand the
severity of my injury.

 

Are there any family caregivers (preferably spouses) out there who would be
available to have a chat by phone with my wife?

 

Thanks,

 

Dave Krehbiel

(301) 924-4530

RE: [QUAD-L] Recipe for cookies that help you run smoother.....fiber, that is

[Dave Krehbiel]

Thanks so much for posting this.

 

Dave Krehbiel

 

From: daa...@aol.com [mailto:daa...@aol.com] 
Sent: Sunday, February 10, 2013 12:39 PM
To: jume9...@comcast.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] Recipe for cookies that help you run
smoother.fiber, that is

 

These cookies are also wonderful and provide protein.

 


http://www.doctoroz.com/videos/dr-ozs-protein-cookies.

Servings per recipe 29
calories per serving 100.9
total fat: 4.8
cholesterol: 12.8 mg
sodium: 105.3 mg
total carbs: 13.3g
dietary fiber: 2.4
protein 6.5 g

Ingredients
 
2/3 cup natural peanut butter 
 
2 eggs
 
1/3 cup brown sugar
 
1/2 cup unsweetened applesauce 
 
1 tsp vanilla
 
1 tsp baking soda
 
2 cups oats
 
3/4 cup ground flaxseed meal
 
1/4 tsp salt
 
4 scoops chocolate soy protein powder 
 
 
 
Directions
 
Preheat oven to 350°F. Mix together eggs, brown sugar, applesauce, peanut
butter and vanilla. Add protein powder, oats, flax meal, salt, and baking
soda. Drop spoonfuls dough onto cookie sheets approximately 6-8 per cookie
sheet. Bake for 10 minutes.
 
 

 

 

 

 

 

 

 

 

 

 

 

 

 

In a message dated 2/8/2013 5:32:13 P.M. Central Standard Time,
jume9...@comcast.net writes:

 
res://C:\Program%20Files%20(x86)\Nuance\NaturallySpeaking11\Program\web_ie.
dll/QMARK.GIF
res://C:\Program%20Files%20(x86)\Nuance\NaturallySpeaking11\Program\web_ie.
dll/ARROW.GIF 

And they are good, with the texture of a muffin.

1 cup each of:
brown sugar
pumkin seeds
rolled  oats
slivered almonds
whole wheat flour
chocolate chips
cooked lentils mashed
1 egg
vanilla

Mix the sugar, eggs and mashed lentils together then add the remaining
ingredients. Make 24 cookies. Bake at 350 for about 12 minutes. 
Eat 2 of these.priceless!

Meredith

RE: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons?

[Dave Krehbiel]

I definitely plan to get a standing wheelchair. Before my accident five
years ago, I was 6 feet tall. These days, I'm looking up at everybody. I did
some therapy in a standing frame at a local rehab facility, and it was an
incredibly emotional experience. The world looks like an entirely different
place when you're standing at your traditional height.

 

I understand the standing frames and standing wheelchairs have many other
benefits: strengthening bones, increasing flexibility, assisting with
digestion, and other benefits related to blood pressure.

 

My plan is to try to raise some funds to build a shed, so that I can get a
standing frame or standing wheelchair as well as a generator.

 

I absolutely concur that you need to be evaluated properly. The physical
therapist did not start me in a standing frame... they started with a tilt
table. Raising your head so far up in the air is a challenge when you been
sitting down and lying down for so long. But my insurance covers this... and
I hope yours does too.

 

Take care,

 

Dave Krehbiel

 

 

From: wheelch...@aol.com [mailto:wheelch...@aol.com] 
Sent: Friday, January 25, 2013 9:59 AM
To: shellbell5...@aim.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and
cons?

 

I personally hope that in everyone's life, they have the opportunity to try
out a standing wheelchair. Some of the benefits can be overwhelming.
However, I usually advise that a Standing Evaluation, with an Occupational
Therapist to determine if and how long one can stand, vertical.  Some with
low blood pressure may pass out with a quick stand.  Some can not operate a
manual stander because of strength issues.  A motorized stander might work
better then a manual unit.  By all means, if you meet the perimeters... Go
For It.

Best Wishes

 

In a message dated 1/23/2013 9:41:49 P.M. Central Standard Time,
shellbell5...@aim.com writes:

Hi to everyone,
So, long story short, UCP agreed to either make my kitchen accessible OR
purchase 
A standing wheelchair.I have been looking at the standing wheelchairs
and there is even one 
That is manual.
Are they much bigger than a regular electric chair ?   and if ya have one
what are your thoughts and or experiences and the pluses or minuses? ?

(I understand the benefit ti standing Ii stand daily in my standing frame,
oh and sores are not a issue) .   

thanks everyone!!! N
shelly
C6C7 incomplete
Sent from my iPad

RE: [QUAD-L] Back-up power for our beds ~ solution!

[Dave Krehbiel]

A word of warning about backups and generators and so forth. I did a bit of 
research on this, and apparently there are different qualities of electricity. 
From what I read, a generator or a battery might put out pure sinewave” or 
“modified sinewave” power. The modified sinewave is less expensive and is 
perfectly acceptable for large motors in refrigerators and sump pumps, but I 
have heard that this could be dangerous to batteries and sensitive electronic 
devices. In other words, a backup or generation solution which works perfectly 
fine for your sump pump could possibly ruin your bed, computer, and so forth.

I'm not an engineer or an electrician. But maybe you might want to research 
this a bit further before you plug in your sensitive devices. If anybody has 
more information about this topic, I'd sure like to know about it.

Good luck, and take care,

Dave Krehbiel

-Original Message-
From: bobbie...@aol.com [mailto:bobbie...@aol.com] 
Sent: Wednesday, January 09, 2013 3:48 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Back-up power for our beds ~ solution!

Hi All,
  Remember when Hurricane Sandy hit and we were all talking about a back-up 
system to power our beds if the power goes out? Well, I thought of a solution … 
sump pump back-up battery! My brother is an electrician and he said these 
back-up battery systems would be perfectly safe for in the bedroom.

   The way they would work is you plug in the back-up battery directly into a 
wall outlet, then plug your bed into the back-up battery. The entire time the 
battery is plugged in it is being charged. Then you plug in your bed directly 
into the back-up battery system. You can have a light or TV plugged in as well, 
but the more you drain from the system the shortest it would last. As soon as a 
power outage would happen the sump pump back-up battery would automatically 
switch on … you wouldn't even need to be home.

The sump pump back-up battery cost anywhere from $150-$800 depending on how 
may Amps you want to have … the higher the cost the longer you'd have back-up 
power. They can be bought at a Battery Plus store or Home Depo type stores, if 
they don't have them in stock you can have the store order it. You can also 
order them on line just Google sump pump back-u battery.
Bobbie

[QUAD-L] can you reuse disposable urinary bags? What's the best way to clean them?

[Dave Krehbiel]

So far, I've never reused urinary bags. I had a super pubic catheter, and we
have just been throwing away the used urinary bags every two weeks or so.

 

But we are just about out of bags. Is it possible to flush them out and use
them again?

 

What's the best way?

 

Thanks,

 

Dave Krehbiel

[QUAD-L] does anyone have recommendations for warm boots?

[Dave Krehbiel]

Even though I can't feel my feet... I'm thinking it's probably a good idea
to keep them warm in the winter time. I'd like to find some boots or
something, which look relatively nice, are easy for my caregivers to put on,
and are not overly expensive.

 

I received an e-mail from the Christopher and Dana Reeve foundation, and
they had suggested something called a MocSock. This looks warm and not very
expensive, but it looks like something to wear while indoors.

 

Any suggestions? Thanks, and take care,

 

Dave Krehbiel

[QUAD-L] nose cell transplants help paralyzed dogs to walk

[Dave Krehbiel]

Here's some encouraging news:

 

http://www.bbc.co.uk/news/health-20365355

 

RE: [QUAD-L] Suprapubic info

[Dave Krehbiel]

This could be a very big problem. Most of the time, I had no problems
whatsoever  following a catheter changed. About four or five times,
something was wrong. In one case, the pain was so terrible  I needed to go
to the hospital. Possibly the procedure was done incorrectly. Possibly the
new catheter is blocked or pinched. This might be a serious situation. Call
your nurse now. Insist that another catheter be installed. In an emergency,
you can also try flushing the catheter using a mild solution of distilled
water and vinegar.

 

Dave Krehbiel

(301) 924-4530

 

From: Fragile [mailto:swl...@gmail.com] 
Sent: Thursday, November 08, 2012 4:54 PM
To: quad-list
Subject: Re: [QUAD-L] Suprapubic info

 

Had my suprapubic changed for the first time about 5 hours ago and the
Autonomic Dysreflexia won't let up.  Expected some AD, but not this
long/bad.  How do you all treat/deal with this?

On Wed, Nov 7, 2012 at 2:55 PM, Quadius quad...@gmail.com wrote:

I had my SP for almost 17 years and had very little problem with leakage out
of the stoma.  You might want to try to increase the amount of fluid in the
ball.  If it's a 5 mL Foley, you can put up to 10 mL without too much
problem.  I used to use around eight, because if I used anything lower it
might leak a little.

Hopefully this helps you out.  You can also wear a drain sponge around the
SP.
Quadius

FW: [QUAD-L] Hurricane Sandy

[Dave Krehbiel]

Fortunately, Sandy missed us. Thanks for your kind words and wishes.

But I wonder, how many little Sandy's Will there be in about nine months in New 
York and New Jersey?

Dave Krehbiel

-Original Message-
From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Sunday, October 28, 2012 9:32 AM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] Hurricane Sandy

I live in the Washington DC area. I have been home for four years since an 
accident at the beach (C4/5) and so far we have been pretty lucky with tropical 
storms and hurricanes. However, back in July we had a very unusual thunderstorm 
(called a “Derecho”) and we lost power for several days. With no air 
conditioning and no power for my low loss air mattress, I was moved to a local 
hospital. I hope this hurricane passes to our north. After it passes by, I 
would love to find some sort of a way to obtain a backup generator.

On a positive note, my oldest daughter got married back in August. The forecast 
was for very heavy rain on her wedding day. The day before, between the 
rehearsal and the rehearsal dinner, it rained cats and dogs. But on the day of 
her wedding, the storm somehow missed us completely. Thank God for that.

I've done a bit of research into generators, and based on what I have read, an 
inexpensive generator can damage batteries and sensitive electronics. 
Apparently, the more expensive generators use things called inverters. And 
apparently it takes a pretty big generator to run air conditioning. Does anyone 
know much about these generators? Any recommendations on units to buy, or how 
to raise donations to afford them?

Thanks,

Dave Krehbiel

-Original Message-
From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: Saturday, October 27, 2012 1:56 PM
To: Quad-list@eskimo.com
Subject: [QUAD-L] Hurricane Sandy

Hi All,
 I live 24 miles due west of NYC and Pete  I are doing our best to prepare 
for this historic combination norestren inside of a stage 1 hurricane 
headed straight for NYC. WE ALL live needing, and depending on, a LOT of 
electricity. I live in a 250 unit senior/disabled apartment building that has a 
very, very large generator. In June 2011 the new owner's were testing out the 
breaker system that back-up the elevator's and emergency lights in the 
hallways, OH and the alarm system. When they flipped the breaker .… 
EVERYTHING blew out and shut down.
   The good of the bad is that they updated and fixed the problem. In August 
2011 when hurricane Irene hit us EXTREMELY HARD, everybody around us lost power 
for weeks .… except us. Roads surrounding us stayed flooded for a little 
over 1 week.
  Anyway, how many of you all live where THIS storm is going to hit?Bobbie  
 

Sent from my iPad

FW: [QUAD-L] Hurricane Sandy

[Dave Krehbiel]

I live in the Washington DC area. I have been home for four years since an 
accident at the beach (C4/5) and so far we have been pretty lucky with tropical 
storms and hurricanes. However, back in July we had a very unusual thunderstorm 
(called a “Derecho”) and we lost power for several days. With no air 
conditioning and no power for my low loss air mattress, I was moved to a local 
hospital. I hope this hurricane passes to our north. After it passes by, I 
would love to find some sort of a way to obtain a backup generator.

On a positive note, my oldest daughter got married back in August. The forecast 
was for very heavy rain on her wedding day. The day before, between the 
rehearsal and the rehearsal dinner, it rained cats and dogs. But on the day of 
her wedding, the storm somehow missed us completely. Thank God for that.

I've done a bit of research into generators, and based on what I have read, an 
inexpensive generator can damage batteries and sensitive electronics. 
Apparently, the more expensive generators use things called inverters. And 
apparently it takes a pretty big generator to run air conditioning. Does anyone 
know much about these generators? Any recommendations on units to buy, or how 
to raise donations to afford them?

Thanks,

Dave Krehbiel

-Original Message-
From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: Saturday, October 27, 2012 1:56 PM
To: Quad-list@eskimo.com
Subject: [QUAD-L] Hurricane Sandy

Hi All,
 I live 24 miles due west of NYC and Pete  I are doing our best to prepare 
for this historic combination norestren inside of a stage 1 hurricane 
headed straight for NYC. WE ALL live needing, and depending on, a LOT of 
electricity. I live in a 250 unit senior/disabled apartment building that has a 
very, very large generator. In June 2011 the new owner's were testing out the 
breaker system that back-up the elevator's and emergency lights in the 
hallways, OH and the alarm system. When they flipped the breaker .… 
EVERYTHING blew out and shut down.
   The good of the bad is that they updated and fixed the problem. In August 
2011 when hurricane Irene hit us EXTREMELY HARD, everybody around us lost power 
for weeks .… except us. Roads surrounding us stayed flooded for a little 
over 1 week.
  Anyway, how many of you all live where THIS storm is going to hit?Bobbie  
 

Sent from my iPad

RE: [QUAD-L] quatro section went flat-pressure sore started

[Dave Krehbiel]

I am not an expert on pressure sores, but I think you need to treat this
situation very seriously. You might need to stay off the area completely for
a while, and make sure you are turned frequently (e.g. every two hours). Do
you have a good mattress?

 

I had a stage 4 wound , which was at one point about the size of a baseball,
and took over year to heal. We used Calmoseptine Lotion to finally heal the
last stages, and to keep the wound from opening again. I highly recommend
the stuff. It is available over-the-counter, from CVS pharmacy, but
sometimes they need to special order it.

 

Please take care of yourself. Good luck trying to find a competent wound Dr.

 

Dave Krehbiel

 

From: Danny Hearn [mailto:ddh...@sbcglobal.net] 
Sent: Monday, October 22, 2012 2:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] quatro section went flat-pressure sore started

 

Hi All, my quatro 4 section roho seat started going flat-it was under my
left rear area---we don't know what caused it but when we try putting air in
non goes into that back left area, I'm trying to get a new replacement now
but I have redness with like a crease looking area in the middle but it has
not opened up?? we are trying bed balm on it now?   Is there any other
products I can apply or may need??? I have never had a pressure sore that
has opened on my bottom in 15 plus years ( I hope this one does not ) I know
a few of you guy's/gals have had serious battles with this issue.  thanks
for any idea's !  Dan H. **

RE: [QUAD-L] Working in an office?

[Dave Krehbiel]

Regarding computer files: the number one tip, which I have found helpful is to 
run my applications (Google chrome or Microsoft Outlook or WordPad) in a window 
on the left side of my screen, and to run Dragon pad in a small window on the 
right side of my screen. This allows me to easily make notes of things like 
telephone numbers or website addresses or e-mail addresses, to easily cut and 
paste between various applications, and to make notes on a topic from a variety 
of sources.

 

I've also found it very helpful to use Google to search for PDF files. A 
typical Google search might be allintitle: term1 term2 filetype:pdf”. This 
allows me to allocate a couple hours for searching for information, downloading 
it to a issue related subdirectory on my hard drive. In a similar way, I can 
search blogs and websites, and save the contents as PDF files in issue related 
subdirectories.

 

If anyone would like specific instructions on how to do these things, please 
e-mail me directly.

 

Also, I am very interested in this same topic. What tips and tricks do you use 
to be more productive and efficient with your computer?

 

Thanks, and take care,

 

Dave Krehbiel

 

From: ntpgrn...@aol.com [mailto:ntpgrn...@aol.com] 
Sent: Sunday, October 07, 2012 8:39 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Working in an office?

 

My son 23 yrs old C5/C6 starts a 40 hour a week office job tomorrow. This will 
be his first full time postion since his injury. Any tips for managing ic 
supplies, writing tools,managing files, desk space etc would be greatly 
appreciated. Limited hand hand use but functions with wrist control. Wicked 
spasms.

Sent from my Verizon Wireless 4G LTE Smartphone

FW: [QUAD-L] Getting Medicare/Medi-Cal Benefits

[Dave Krehbiel]

Apparently my message never made it to the quad list. Is that because I had
included an attachment? Anyway, here is my post without the attachment. If
anybody wants a PDF file containing Morse code (as described below) please
e-mail me directly.

Thanks, and take care,

Dave Krehbiel

-Original Message-
From: Dave Krehbiel [mailto:davekrehb...@earthlink.net] 
Sent: Tuesday, October 02, 2012 9:35 AM
To: 'Trish Conway'
Cc: 'quad-list@eskimo.com'
Subject: RE: [QUAD-L] Getting Medicare/Medi-Cal Benefits

Thank you for looking out for your friend. I am sorry, I can't offer any
good advice about your transportation situation. But maybe I can offer some
advice about communications.

I am personally a C4/C5 quad, and initially in the hospital I was similarly
unable to communicate. As a child, I was a Boy Scout, and knew a little bit
of Morse code. I tried to blink a message to family members standing nearby,
but none of them knew Morse code. And I did matter member all of Morse code
myself. I kept hoping that somebody would get a simple cheat sheet so that I
could read the codes and blink and they would understand it, letter by
letter.

Unfortunately, nobody got the message. Today, I've had my trach removed, and
I'm happy that I'm able to communicate more normally.

You might consider printing out a one-page piece of paper containing Morse
code. This might help your friend communicate. For example, if he is having
trouble breathing, he could blink SOS (three short dots, read longer dashes,
three short dots).

I have attached a file containing Morse code in PDF format. Good luck.

Dave Krehbiel



-Original Message-
From: Trish Conway [mailto:tris...@dslextreme.com] 
Sent: Tuesday, October 02, 2012 1:55 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Getting Medicare/Medi-Cal Benefits

My friend, a resident of a subacute facility, is a spastic quad with a
trach. He cannot speak. He has no means to signal if he is undergoing
respiratory distress. Finally, he has gotten appointments for occupational
and speech therapy at a rehab center which is in the top 20 nationally. So
we have hope. The problem is his facility is 45 miles away from the rehab
center and his facility’s social services director is saying neither
Medi-Cal nor Medicare will pay for transportation. We could take public
transportation for the disabled but. . .
--- He could require suctioning enroute. While his mother could administer
shallow suctioning (with a Yankauer), the set up of the public disabled
transport isn’t conducive to this since 1) the wheelchair is positioned next
to the driver where she would have no access to her son. And 2) we may be
accompanied by other riders.
--- He has no good anterior head support if he must be seated vertically, in
his wheelchair
--- The trip one-way can take 2 ½ hours instead of the 1 hour it would take
by a non-emergency ambulance. Since he has a G-tube, that 5 hour round trip
and 2 hours of appointments means he has no food or water or meds at least 7
hours.

Are any of you familiar with Medi-Cal or Medicare regulations?
--- Medicare - As I understand it, all Medicare non-emergency medical
transportation (NEMT) requires that there be a medical necessity. Isn’t it a
medical necessity that my friend be able to signal he needs help if his
trach becomes plugged?
--- Medi-Cal I think has the same requirement. They will pay for NEMT if
there is a medical necessity so I would apply my Medicare argument here too.
But also I read that there was a legal case (Valdivia v. Coye) which
required Medi-Cal to expand eligibility to include therapy services when
they’re deemed necessary for a nursing facility resident to attain or
maintain the highest practicable physical, mental or psychosocial
functioning. For my friend, OT  ST could do so much to help him toward this
goal. Since he has basically been treated as a custodial case so far, does
the fact that the rehab center recognizes his potential mean that Medi Cal
should provide him means to get to those appointments?

Do you know of any precedent for such a case or maybe you have an example of
a successful Medi-Cal Task Authorization Request that I could show his
facility’s Social Services Director. Do you have know of a medical transport
company in the Metro Los Angeles area that might take on such a case pro
bono or at a significant discount?

Thank you for your help.

Trish

P.S. If not, perhaps you know of a forum where folks might have answers for
us? Thanks!

RE: [QUAD-L] Wheelchair supplier problem. ~ HELP ~

[Dave Krehbiel]

It is far too easy to let emotions get involved. Unfortunately, all too often, 
the people who have problems managing their emotions are the suppliers.

 

Some suppliers seem to resent the fact that we get some assistance, although we 
all know the level of assistance we received is not enough. I would gladly 
trade places with anyone of them.

 

If it were me, I would try to locate the two problems separately. First, I 
would repair my existing chair. And this company wants to do it for free, fine. 
If they want to do it for a reasonable fee, that's okay. The most likely 
scenario is that this difficult provider will offer to provide replacement 
parts at a discount from their typical prices.

 

Naturally, they want to link this repair job to do next purchase. Don't let 
them. If they were me, I would set a future date to meet with their 
salesperson.  If they are smart, they will be sure to fix your wheelchair prior 
to this appointment.

 

After your wheelchair has been repaired, then begin your evaluation of 
potential new chairs and potential new vendors.

 

Unfortunately, prices for quadriplegics are too high. Service levels are poor. 
Products are poorly designed. Vendors are insensitive and often incompetent. It 
isn't good, it isn't right, but that's the way it is.

 

I think you will get your best results if you focus on results rather than 
emotion.

 

I am sorry you were treated so poorly. It happens to all of us. But if it were 
me, I would view the situation as leverage to get a good deal from a vendor 
with whom I have a long track record. As they say, better the devil you know 
than the devil you don't.

 

Good luck,

 

Dave Krehbiel

 

From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: Saturday, September 01, 2012 4:29 PM
To: Quad-list@eskimo.com
Subject: [QUAD-L] Wheelchair supplier problem. ~ HELP ~

 

Quad Squad Help!
 I'm having problems with my potentiometer, it turns on 
even when I'm not tilting or reclining. So I went to CMC, the company I got my 
chair from 8 years ago but been having a lot of problems with them the last 12 
or more years, so I'm seriously considering switching suppliers. Before I go on 
, last Thursday I went to Kessler to their wheelchair clinic to get fitted for 
a new chair by a different supplier, Wilpage. Standing right next to me was 
Eahn, a rep from CMC.
 Yesterday Pete and I dropped in on CMC (their only 5 miles away and don't mind 
drop-in's) to get my potentiometer adjusted/fixed, a repair man was working on 
my chair when a voice called him away. CMC is run by a husband and wife team. 
Patti, the wife, came storming out from the back without the repair man and 
began YELLING at me and Pete about how they are not going to fix my chair 
because she heard I was ordering a chair from another supplier. I told her I 
hadn't quite decided which supplier I was going to use and was going through 
the possess to gather information. And I reminded her that I HAD a sales rep 
from CMC, her company, at my home 3 months before and I had questions but the 
sales rep never got back to to date. Patti asked why I was considering using 
another supplier Pete (my husband) said communication I told her that an 
employe, Dana, NEVER returns my calls or follows through on a RX or repair 
request. Patti said OH, we got rid of her because we have been getting a lot 
of complaints about her.
 Patti went in the back (we heard F this and F that) when she returned she said 
she had just gotten off the phone with Kessler and yes it was true that I was 
on a fact finding mission and that she was now SO VERY SORRY. Yes, of course we 
will fix the potentiometer, will'll even do it for free if you order your chair 
from us. THEN Patti disappeared again in the back room and reappeared with Dana 
the employee that she JUST said they had let go we just moved her to another 
desk she now says, you will never deal with her again, and then Dana 
apologized. Now Patti is begging and pleading with us not to go to another 
supplier when Carlos, her husband, appears YELLING at Pete and me about how we 
should have written a letter to them explaining the communication problem.
  Why are the husband and wife, Patti  Carlos, yelling at us of hey was us to 
stay with them?
We leave not promising anything We need to think about all of this. me and 
Pete say … which is very true. As soon as we went directly home, which took 10 
minutes, the phone rang and it was the sales rep apologizing, never asking why 
I was trying to get a hold of him for 3 months.
 The next day I decided to find put how much this part will cost 
out-of-pocket instead of waiting 10 to 14 days, $325 is all. So I want to pay 
and get reimbursed because I have an appointment at wheelchair clinic again 
September 13th and I'm most likely NOT going to use CMC with whom I've gotten 
my last chair from.
  BUT the supplier I'm going to go with Wilpage, I've NEVER delt with before. 
But a quad up

RE: [QUAD-L] shower chair

[Dave Krehbiel]

I have a shower chair which tilts, which I am happy with. I can't find a
company name, but I think this is it:

http://www.ipu.com/products/shower_chairs/tsc001GNL.html

Unfortunately, I do not think this can be rolled over a commode. You can,
however, place a bucket under the chair. I keep the chair in a permanently
reclined position, and I have a barrier free ceiling mounted lift (from
Phoenix) so my aide can transfer me from bed to the chair.

Dave Krehbiel
C4/C5, injured Aug. 2007

-Original Message-
From: robclem...@gmail.com [mailto:robclem...@gmail.com] On Behalf Of
robqua...@aol.com
Sent: Thursday, August 30, 2012 3:46 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] shower chair

It's past time for me to get a new shower chair and I wanted to know if you
guys had any recommendations or warnings.  I need something that tilts so I
don't slide out and I'd like to have something that'll fit over a commode.
I have a roll in shower, but I was looking at a tubbuddy with tilt in case I
don't have access to a roll in shower.
My current shower chair's tilt mechanism broke years ago so it's stuck in a
slightly tilted position which works but isn't ideal.  Anyone know of a good
shower chair that meets my criteria(tub capability not
necessary) and has a quality tilt mechanism?

Thanks,
Robbie (inc C2)

RE: [QUAD-L] Top Nine Myths about People with Paralysis

[Dave Krehbiel]

Thanks, this is a great list.

 

I would add one other misconception - that we need their help to cross the
street.  When I'm trying to cross a road in my wheelchair, some people react
quite unpredictably. For example, people driving on a 4 Lane road will often
try to be polite by stopping and blocking one of the Lanes, probably
thinking that I want to rush across the street through 3 other lanes of
traffic. Often, well-meaning people will stop in the middle of an
intersection, causing traffic back-ups. I am much more interested in
crossing the road safely rather than crossing it quickly. I would prefer
that people act more predictably. I wish they would simply obey the speed
limit, use their turn signals, and put down their cell phones. I'm happy to
wait a minute or two for five until traffic clears out.

 

Dave Krehbiel

 

From: Don Price [mailto:donpric...@yahoo.com] 
Sent: Thursday, August 23, 2012 5:31 PM
To: quadlist
Subject: [QUAD-L] Top Nine Myths about People with Paralysis

 

http://www.spinalcordinjury-paralysis.org/dailydose/2012/08/06/top-9-myths-p
eople-believe-about-individuals-livin

 

Here are the results to our question along with some of the commentary from
our community:

What is the # 1 myth you think the general public believes about individuals
living with paralysis?

1. Not interested or can't have sex. (19.0%)
Yes, somethings still work. - Chill

2. Life must be so sad. (18.0%)
A lot of peple think that we are not suppose to be intelligent, productive
people who enjoy living a full life doing those very same things that people
who are not paralyzed like to do. We work, fall in love, get married and
raise a family, we have a social life,
yes we do enjoy life, liberty and the pursuit of happiness. - Marva

3. Number one wish is to walk. (14.8%)
Every opportunity I get I let people know that paralysis is so much more
than not walking. Yes, I tell them I can't poop or pee on my own...to
complete strangers but they need to know!!! - Wheelchair Mama

4. Mind must not work either. (13.0%)
People seem to automatically associate impaired physical function with a
mental deficiency. I often meet their comments with: I broke my spine, not
my mind. - Catherine

5. Must not have any pain. (9.9%)
People think, well your paralyzed that means you can't feel anything how
could you possibly have pain? (My husband) lives with indescribable nerve
pain, the worst in his hands and in his feet and butt. - Susan

6. Unable to have a successful career/family/life. (9.2%) 
So many people want to blow sunshine up our a**es, or, want to believe that
we are bitter if we don't have hope of ever walking again. But in reality,
many of us have come to terms with our respective situations and have chosen
to make the best of it. - CJohn

7. Only medical problem is the paralysis. (8.8%)
There is significant neuropathic pain, bowel and bladder control, fighting
with insurance companies, reduced energy, changed relationships, loss of
independence, lack of access to our homes an no financial help for needed
accessibility adaptions or exercise equipment, increased infections
(especially UTIs)' and lack of appropriate sensation that allows for some
spectacular accidents (and AD). - Shel

8. Have all expenses paid by the government. (3.9%)
So, how do you get by? Social Security? Yeah, because we, as individuals,
are part of a disadvantaged minority group, we all must either be on the
government dole, or looking for a handout. And because the former must be
true, we all must be liberals. - CJohn

9. Always want help. (3.5%)
No matter what an  someone is, I should alway's be nice and gratefully
for any unwanted help I get! - Ben

All of the above are myths, some are just more pervasive.

RE: [QUAD-L] New Dragon out for preorder!

[Dave Krehbiel]

I personally use a shotgun microphone with Dragon NaturallySpeaking. I don't
believe that it is quite as accurate as a headset, and sometimes the
computer speakers interfere with voice recognition, but I love the fact that
I am not tethered to my PC.

 

I am currently using a desk stand for the microphone, and I'm planning to
buy a gooseneck stand for it, so that I can get as close as possible to it.

 

Dave Krehbiel

 

From: Greg [mailto:mongrelti...@gmail.com] 
Sent: Wednesday, August 01, 2012 9:35 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] New Dragon out for preorder!

 

Hi Danny,

 

What type of bluetooth microphone do you use with Dragon?  And are you using
Dragon on a PC ore a phone?

 

I still use a wired headset with Dragon and my laptop but would like to go
wireless if it would work well (all day long, is comfortable, is accurate,
is easy to engage).

 

Greg - c/5

since 1987

On Wed, Aug 1, 2012 at 7:56 AM, Daniel Espinoza da...@immortaldesigns.co
wrote:

http://www.nuance.com/dragon/whats-new-version-12/index.htm

 

WEWT!

Looks like some good upgrades for those with newer PC's

 

I'm curious how droid microphones will compare to my blutooth earpiece..

 

 

 

RE: [QUAD-L] lack of energy

[Dave Krehbiel]

Have you tried exercise, using electronic muscular stimulation?

I visited a physical therapy location, and they sat me on an exercise bike
and attached some electrodes, and my legs started pedaling.

Also, they recommended an e-stim machine for home use. I use a twin stim
which cost about $125 (not covered by my insurance). A physical therapist
configured the equipment  trained some of my aides to apply electrodes.

Here is a link to a company offering similar products:
http://www.lgmedsupply.com/?gclid=COSawPCft7ECFcHb4AodAFcAJw

Maybe if you can get some muscles firing, it will increase your heart rate.

Good luck,

Dave Krehbiel


-Original Message-
From: robclem...@gmail.com [mailto:robclem...@gmail.com] On Behalf Of
robqua...@aol.com
Sent: Wednesday, July 25, 2012 3:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] lack of energy

Do any of you guys struggle with being tired/weak all the time? Over the
last few years it's gotten pretty bad where sometimes I can barely move(what
movement I actually have).  I think it's in large part due to diet.  I don't
get hungry very often so I usually end up forgetting/skipping lunch.  I've
been thinking about trying meal replacement bars(easier than shakes and
don't have to be very hungry to get one down) and was wondering if you guys
might have some suggestions?

Also another possible cause I thought of was slow bowels.  I do a bowel
program every other night using enemeez and take miralax as needed, but
every time I get a KUB(get kidney stones regularly) they point out that my
bowels are full even if a did a bowel program the night before.  The only
time I feel like I'm starving is after a massive blowout(definitely not
worth it).

Dehydration could also be a cause, because some morning and early afternoons
my kidneys are in overdrive.

This lack of energy definitely hinders me and I'm open to suggestions.

Thanks,
Robbie
very incomplete C2

RE: [QUAD-L] do or don't you use narcotic/pain meds-survey

[Dave Krehbiel]

I am not a doctor, so don't count on me for medical advice. I'm sure you can do 
a Google search to get some information on this.

 

Sometimes, when something is wrong and you can't feel it, your body will react 
by giving you a headache, high blood pressure and/ or chills, or some other 
sensation. In my case, I have a Supra-pubic catheter, and when it gets blocked 
or is kinked, I start getting weird sensations. In one case, when apparently 
the catheter was inserted incorrectly, I was admitted to the hospital with 
extremely high blood pressure and an unbelievable headache.

 

So if you are feeling weird or strange, it might be your body trying to tell 
you that your shoes are too tight or something is pinching you. Or there is 
some other thing which is wrong.

 

From: Bobbie Humphreys [mailto:bobbie...@aol.com] 
Sent: Wednesday, June 27, 2012 1:21 PM
To: Eric W Rudd
Cc: quad-list@eskimo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey

 

Yea, and what is Autonomic Dysreflexia? My injury was in 1973, I don't Everett 
hearing about this except on the q-list.   Bobbie



Sent from my iPad


On Jun 27, 2012, at 10:40 AM, Eric W Rudd c5sc...@gmail.com wrote:

Autonomic Dysreflexia

 

Eric W Rudd
c5sc...@gmail.com

 

From: Bobbie Humphreys mailto:bobbie...@aol.com  

Sent: Tuesday, June 26, 2012 9:39 PM

To: Bob Vogel mailto:rhvsh...@pacbell.net  

Cc: John S. mailto:alcibiat...@yahoo.com  ; quad-list@eskimo.com 

Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey

 

What is AD?   Bobbie

 



Sent from my iPad


On Jun 26, 2012, at 2:34 PM, Bob Vogel rhvsh...@pacbell.net wrote:

Hi John, 

 

From  SCI nurses and physicians I've spoken with--  AD can hit anybody with 
SCI of T6 and above, and is possible in people with SCI as low as T10.

 

Bob V

 

On Jun 26, 2012, at 11:10 AM, John S. wrote:





I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and lyrica 
for 5. Because my bones deteriorate and fracture from simple lifts I either 
take my npain meds or suffer from AD. I broke a multitude of bones in my 
original accident and many never healed right. I have deformed so badly that 
Dr.s have said it hurts to look at my X-rays. Now, my bones and floating organs 
make lifting and moving in my chair almost unbearable.

Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you 
shouldn't have AD. This doesn't mean you have no pain issues. You might try a 
physiatrist.

bw,

john

 

From: Derrick whe...@cvn.net
To: quad-list@eskimo.com 
Sent: Sunday, June 24, 2012 3:59 PM
Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey


I've been on 5mg (2x/day) narcotic for over 10 years.
I've been having more pain and asked my latest doc(very rural town) if she 
would up my meds.
She told me that narcotics are not prescribed to parapelgics and the only 
reason she writes me a script because I've been on them so long.

I disagree with her. I would like to hear how many on this list do or do not 
take narcotics. If do, how many pillsmg?

I built a quick survey with 3 questions. You can see results at end of survey.
http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ
Thanks in advance,
Derrick W

By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain 
clinic prescribed voltran cream a few years back. Like I can rub on my neck 
myself. I do plan to switch drs but I want to educate her  others in the 
future with survey results. 



 

[QUAD-L] feeling too hot? Or too cold?

[Dave Krehbiel]

Here is a link to a research project. This engineering team attempted to
develop a vest to help quadriplegics maintain a healthy body temperature.

 

I scanned this quickly... and if I read this correctly, they built the vest
with about $500 worth of parts.

 

http://www.egr.msu.edu/classes/ece480/capstone/fall09/group01/Documents/Fina
lReport.pdf

 

The device is designed to be powered by the wheelchair battery. Has anyone
seen anything like this, which is commercially available?  Does anybody have
the resources or connections to build one of these? Is there enough interest
in pursuing the sort of technology that we could somehow help move this sort
of project forward?

 

Dave Krehbiel

RE: [QUAD-L] Pressure sore

[Dave Krehbiel]

I had a similar wound. At one point, it was about the size of a baseball. It 
took about a year to close up. Have you tried a wound vac or e-stim (electronic 
muscular stimulation to encourage blood flow)?

 

Initially, I had been spending four hours on my back, and four hours turned one 
way, and four hours turned the other way. I changed my turning schedule so that 
I would spend two hours on one side and two hours on the other side, and I 
think this helped. Also, I tried to consume as much protein as possible. 

 

Good luck,

 

Dave Krehbiel

 

From: Larry Willis [mailto:lwillis...@yahoo.com] 
Sent: Sunday, April 22, 2012 4:42 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Pressure sore

 

 

I have a pressure sore on my tailbone that has been the bane of my existence 
for years now.  It is not deep and has never been seriously infected. However, 
I have been fighting it for over six years! I have some feeling in that spot 
and sometimes it feels like a red hot branding iron. Bad! It is about 4in by 4 
in. In the last several days it has begun to bleed profusely. I don't know 
whether this is good, bad, or irrelevant, but it is a first. Any of my buds 
here got any knowledge to share about it? Thanks. Larry Willis

I use a Roho cushion.





Sent from my iPad

RE: [QUAD-L] Chair's Back

[Dave Krehbiel]

I have the same problem with my chair. I have my aide fold a towel and position 
it in the center of the back of the chair vertically. It seems to help quite a 
bit.

 

Dave Krehbiel

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Thursday, March 08, 2012 4:42 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Chair's Back

 

I sure have issues with the back of my chair. The back curves a bit side to 
side, but is straight up and down. When I lean back, my shoulders go back and 
my lower back wants to stick out forward. If I try and sit comfortable my 
shoulder are a few inches from the back, but it can get tiring sitting like 
that. So I put a foam strip across the top of my chair’s back. It does help 
quite a bit. So I’m going to try cutting a piece of foam into a wedge to fit 
more naturally. Does anyone’s chair back  have a slope on the top? Or a lumbar 
lump on it?

 

I also am trying to get my lateral supports fixed. They are to far apart and 
the pads are not long enough. So I get a call from the shop asking for my 20% 
co-pay... $1,200... I said “No %#@ way. They wanted to order some custom 
brackets, pads, and swing away arms. That for $6,000. I have the swing away 
supports, I just want them moved in and new pads. They didn’t coast near that. 
I was thinking my co-pay no more than $100 after labor. No wonder Medicare is 
going broke... They OKed it. They got to get better chair backs. I’ve looked 
around, but can’t find just the right kind.

Greg

RE: [QUAD-L] Computer Access

[Dave Krehbiel]

Sorry to be late in responding. I use Dragon NaturallySpeaking to compose
e-mails and to control the computer. I also use Dragon NaturallySpeaking
control the mouse. It is tedious, but it works.

 

At first I used a headset. This was difficult because it would be
uncomfortable if I was turned in bed. But the worst problem was: the headset
kept me tethered to my computer. If I was in my room, sitting in my
wheelchair, and our family had company, I was stuck where I was.

 

About six months ago I got a shotgun microphone. This is a directional
microphone and it allows me to pull up to my computer and operate it,
without wearing a headset which is cabled to it. This works pretty well. If
I were to buy it again, I would buy a gooseneck stand for the microphone so
that I could position my mouth as close to the microphone as possible.

 

My main problem relates to audio from the computer. For example, if I get to
a YouTube site, the audio from the computer is picked up by the microphone
and interferes with my control of the computer. Some websites start talking
to you... and this creates problems as well. If I am planning on starting to
any unknown sites, I try to remember to mute the microphone (using control
panel).

 

If you want any more information, let me know.

 

Take care,

 

Dave Krehbiel

C5/C6 4 yrs post

 

 

From: Jim Lubin [mailto:jlu...@makoa.org] On Behalf Of Jim Lubin
Sent: Thursday, February 09, 2012 9:09 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Computer Access

 

I am a C2 vent dependent quad. No arm movement and barely any head movement.
I have been using my current adaptive keyboard/mouse interface since 1994
and it works great for me, sip and puff morse code.

I'm looking for an alternative as a backup to use for mouse input and
keyboard input. I tried Jouse2 and a headmouse and neither worked for me.

What does everyone else use?




Jim Lubin 
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org http://www.makoa.org/ 

RE: [QUAD-L] sediment in urine

[Dave Krehbiel]

I used to drink lots of water mixed with lemon juice, and I used to have
quite a bit of sediment.

 

Someone on this forum said that lemon juice could cause sediment. I stopped
drinking lemon juice, and the amount of sediment dramatically decreased.

 

Dave Krehbiel

 

From: gah17...@aol.com [mailto:gah17...@aol.com] 
Sent: Tuesday, January 03, 2012 7:36 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] sediment in urine

 

Does anyone have any issue with coffee causing sediment in urine?

 

GA

[QUAD-L] a suggestion for Skype users

[Dave Krehbiel]

Does anybody use Skype? I use Skype to dial the phone, controlling my
commuter with Dragon NaturallySpeaking. For three dollars a month I can call
anywhere in the United States.

 

Unfortunately, the latest release of Skype is very difficult to use with
Dragon NaturallySpeaking. Specifically, the new version seems to open
windows in random places on the screen, making it very difficult to position
the mouse to end calls. Also, the dial pad (which you need to navigate
voicemail and automated answering systems) is also difficult to navigate to
in Skype version 5.0

 

I have found it much easier to run an older version: Skype version
4.2.0.187.  You can download the previous version from www.oldapps.com

 

After downloading, the first time you run the older version, go to  tools /
options / advanced so that you can configure Skype NOT to automatically
update to the latest version.

 

You will have access to all your old telephone numbers and contacts. If you
need any additional advice or assistance, please send me an e-mail.

 

Merry Christmas,

 

Dave Krehbiel

RE: [QUAD-L] icy ramps

[Dave Krehbiel]

I'm not sure how to solve the icy problem... but if you haven't already done
so, it would probably be a good idea to put up a warning sign, e.g. ramp
freezes before sidewalk...

 

Take care,

 

Dave Krehbiel

 

From: Greg [mailto:mongrelti...@gmail.com] 
Sent: Wednesday, November 30, 2011 9:21 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] icy ramps

 

Hi all,

I have a rather long, wood-decking ramp leading into the house that freezes
over quickly whenever there is moisture in the air and the temperature drops
to freezing, sort of like the bridges freezing over first on the roads.  You
don't even notice the ice until you step on it so it is particularly
dangerous to visitors.  This ramp also serves as the main entrance into our
home so everyone who visits uses the ramp.  There are handrails on both
sides for the length of the ramp, but it is still treacherous when iced
over.  

 

Do any of you know of something I can do to the ramp to make it less
hazardous?  Salt doesn't help much, and when we do use it I fear my mother
will slip and fall (again) while applying it.  I'm thinking maybe adding
some type of raised strip (low profile) every foot or so, but what material
should I use?  Will this even help?

 

Any ideas on how to solve this problem?  

 

Thanks in advance.

 

Greg  c5

Lebanon, TN

RE: [QUAD-L] Touchy Topic

[Dave Krehbiel]

It would also be possible for us to have some sort of a code word or symbol
to include in the subject line (e.g. SEX) so that those who wanted to avoid
the discussions would either ignore the posts or automatically delete them.

 

From: Don Price [mailto:donpric...@yahoo.com] 
Sent: Friday, November 18, 2011 6:54 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Touchy Topic

 

Pardon the pun in the subject line, but I was wondering how we might go
about having a very frank discussion about sexuality and SCI online.  

 

I know that some people on this list would be interested in the subject of
sexuality while others would not, and might even find it offensive.  We lost
a subscriber yesterday, I suspect because we got a bit too graphic about
'the boys.'  So, I'm thinking this is not the best place to discuss this
topic.  Maybe there's a forum that already exists for the topic of SCI and
sex?

 

Is it possible to start a sub-list of people on here who wanted to have a
candid discussion about this topic, knowing that there is the probabilty of
offensive language or information in such a discussion?  It's an important
topic and I'm guessing more than a few would be interested.

 

Any thoughts [without getting graphic]?

Don.

RE: [QUAD-L] Seating Options

[Dave Krehbiel]

Regarding lateral support... how many seatbelts are you using? . I have two
seatbelts. One is a standard seatbelt down around my waist. The second is a
large padded seatbelt up around my chest, which helps my lateral supports
keep me vertically in the chair. I can e-mail you a picture if you want.

Re: shoulder pain... I had lots of trouble with shoulder pain, but it is
getting better now that my armrests have been raised to better support my
arms.

Regarding a custom back: I do not like the back of my chair, since it pushes
my shoulders forward. I have the aides fold a towel to place behind my
spine, and it helps.

-Original Message-
From: greg [mailto:g...@eskimo.com] 
Sent: Thursday, November 17, 2011 5:55 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Seating Options

 I'm in an Invacare TDX5 and am having lots of issues with back / shoulder
pains.
Anyone have any good advise of chair backs and lateral supports?
One issue is the lateral supports to hold my ribs straight, my spine is
curving now.  So my right side has to push my ribs in and the left side has
to keep the right side from pushing me over. Though having those pads on my
sides irritates the inside of my arms by getting in the way, but if too
small they don't work well.
I use a Roho cushion and it helps my butt, but it's not real stable and
after 1 recline I trend to move just a bit to my left. That screws up my
lateral supports from working correctly.
This chair has no real frame area to attach any pad supports to keep my hips
from sliding over.
I've seen almost u shaped custom backs that are molded to your back. That
sounds good, but I'd hate to go there then not like it and it's not like you
can try it first. Anyone try one of those?
I'd need it to come almost all the way around the sides, but not bother my
arms when moving them around.
Thanks, Greg