Re: [QUAD-L] New wheelchair?
Hey guys. Haven't been around for long time. Had lots of stuff going on. I agree that invacare sucks. I have one. The foot rest broke and hadn't had it two weeks. When going around the corner, I broke my leg in 3 places. I was going around the corner; it slipped off the foot. It snapped sounding like when Joe Theisman broke his while playing for the Redskins. As far as Medicare, the suck. My chair won't go in tilt because of a worn out button and they denied it. When I got new set up for front caster wheel, the guy didn't tighten the bolts enough so needed a new one. The technition (who is amazing) couldn't find one long enough after going to home depot and an auto parts store so he got the closest he could find. He repaired it and put lock tight til Medicare would approve new set up. He said it shouldn't be a problem and Medicare denied it. Stacy From: Monty aa999...@yahoo.com To: Derrick whe...@cvn.net; quadriplegic quad-list@eskimo.com Sent: Tuesday, February 21, 2012 4:53 AM Subject: Re: [QUAD-L] New wheelchair? Now that speed issue you just mention is quite an interesting one and never heard of it before! Be forewarned Invacare electronics are nothing but garbage and completely unreliable! I've had every black box on my chair replace 3 to 4 times and some of them even more than that. My last chair had some minor problems as an Invacare product but six months after owning this chair it mysteriously stalled out and had to be manually turned off and restarted which I can't do! After hours with the technical support and regional representative visiting me he never did figure it out even after I stalled out on the railroad tracks with a freight train coming! Completely frustrated I switched repair shops and they were able to install a switch so I could restarted myself. If you are on the road as much as I am or out in the bad weather be prepared for breakdown and inconvenience at the stupidest times. I have the Ranger X with the main controller mounted on the front of the frame only covered partially by their factory cover! Water kicked up by the front wheels was wreaking havoc both the controller and the gearless brushless motors. A passing car splashed water on me during a light rain storm and killed my chair nearly 2 1/2 hours until it dried out. Finally somebody in the repair shop added about six or 8 inches of sheet metal to the front cover extending it back almost to the battery box. I still have to be careful was slushy snow and heavy downpours but for the most part it's 100 times better than the original.There are many other things that have gone wrong due to the inferior quality of their product! I will also be getting a new chair this year and have told my dealer no Invacare. I hope this helps in some degree. Monty of Indiana 3/4 complete 18 years From: Derrick whe...@cvn.net To: wheelch...@aol.com; t...@toddc5quad.com; quad-list@eskimo.com Sent: Monday, February 20, 2012 12:59 PM Subject: Re: [QUAD-L] New wheelchair? Todd, I'm trying to get a new Invacare wheelchair too. I have always had Storm Arrow but my DME supplier said that medi-i don't-care will only pay for torque 3. Medicare will not cover wheelchairs that go over a certain speed; like 6.5mph or so. I'm worried about the durability too but we can you do? Fight medicare? They will cover my tilt. Derrick W - Original Message - From: wheelch...@aol.com To: t...@toddc5quad.com ; quad-list@eskimo.com Sent: Sunday, February 19, 2012 10:30 PM Subject: Re: [QUAD-L] New wheelchair? Call the horse's mouth rather then calling the horse's (other end) Invacare 800-333-6900 ask for tech service? You won't be disappointed. Best Wishes In a message dated 2/19/2012 9:00:24 P.M. Central Standard Time, t...@toddc5quad.com writes: I'm looking at new wheelchairs and my local DME provider told me that GB (gearless/brushless) motors we're no longer available from Invacare. Does anyone know if this is true? Does anyone have any experience with the Invacare Storm Torque 3 ? I have had 2 Invacare Storm Arrow wheelchairs and the last one had GB motors which I like very much but they want me to try the Torque 3 and this seemed like a big step backwards to me. The Torque 3 doesn't seem to be as heavy duty and is slower than the Arrow. Any information would be greatly appreciated. Thanks Todd
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Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs
I think it's funny. I hate it when people move things that I have in a certain place because it's more convient. Stacy From: Lissette Whitehead lissw...@hotmail.com To: diannal...@aol.com; quad-list@eskimo.com Sent: Mon, April 19, 2010 2:56:43 PM Subject: RE: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs WHAT ABOUT WHEN PEOPLE TRY TO PUSH YOUR POWER CHAIR, LOL, I MEAN THERE'S NO WAY IN THE WORLD THEY WILL BE ABLE TO MOVE IT. Lissette Whitehead www.lissettesgoaltowalk.synthasite.com www.lwgripgloves.com From: diannal...@aol.com Date: Mon, 19 Apr 2010 14:47:08 -0400 Subject: Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs To: quad-list@eskimo.com Drives me nuts when people reach for my controller and think they're going to 'just move me alittle. A nurse did this once in a small room. Before I could stop her I had her pinned up against the wall with a standing tray between us. I AlWAYS have mine set on high (or fast) because I know how to control it slower. OR people reaching down to hug ya when the power is on. Dianna Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.
Re: [QUAD-L] Blue Pads
I have medicare and medicaid. I don't know which are covering them, but I'm allowed quite a bit each month. I get them through the pharmacy where I get my catheter supplies. Stacy From: Jim Lubin jlu...@eskimo.com To: gah17...@aol.com; w...@ptd.net; quad-list@eskimo.com Sent: Tue, February 16, 2010 1:39:27 AM Subject: Re: [QUAD-L] Blue Pads At 03:56 PM 2/14/2010, gah17...@aol.com wrote: Does anyone know if the blue pads are covered by Medicare? I understand they are not. For the first 15 yrs we were buying blue pads and ky ourselves. Mentioned it to my case manager one day and she said it would be covered by either Medicare or Medicaid with a doctor's order. Sure enough, checked with a local supply company, they contacted my doctor and they have been covering the cost the past 5 years. We use them for bowel program in bed. I get UNDERPAD 23X36 DISP BLUE 10/PK x 6 monthly. We cut them to get more. Also get: 50 CATH SELF 14FR 16 (use to clean and reuse now are covered) 2 KY SURGILUBE LUBRICANT 4.250Z (1 for bowel program, 1 for cathing) 4 GLOVE MED LATEX PF MEDLINE BX/100 EA Whatever Medicare does not cover Medicaid does, zero cost to me. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [QUAD-L] suprapubic and sling
We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed. Stacy From: wheelch...@aol.com wheelch...@aol.com To: imwheelin1...@yahoo.com; Quad-list@eskimo.com Sent: Mon, February 1, 2010 7:28:28 AM Subject: Re: [QUAD-L] suprapubic and sling Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. It can be even more critical when you don't trust your medical doctor. Best Wishes In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: Hey all, I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? Thanks in advance, Stacy
Re: [QUAD-L] suprapubic and sling
I was up to oxybutin 3 times a day and no good. I was intermit cathing when I was first paralyzed but because my bladder wasn't holding any fluid and the drugs weren't working, I went to an indwelling. The sling can be artificial or they use your own tissue and put a sling under your bladder somehow. I did read on it but not good at explaining it. What I didn't find was information on how it does with people paralyzed. All the info I found was on stress incontinence so why I am turning to you all. I have a choice of a sling or them closing off my urethra and not quite sure which way to go. I'm just really paranoid about leaking and also paranoid about them closing off my urethra although i would rather that than be wet. Stacy From: LJT ljtbe...@yahoo.com To: Quad-list@eskimo.com; Stacy Harim imwheelin1...@yahoo.com Sent: Mon, February 1, 2010 9:26:53 PM Subject: Re: [QUAD-L] suprapubic and sling Stacy, I want to be sure I understand your situation correctly. Do you currently use an indwelling catheter and want to switch to a super pubic catheter? And what is this sling that you speak of? I have a super pubic catheter, and while I'm pretty new to the game (to being a quad) I'd like to help shed some light if I can. I've been very happy with mine. Also when they talk about your urethra are they talking about closing it off completely to eliminate its leaking entirely? Personally, and this is my own deal, I think I'd be a little scared to have them close it off entirely. I take detrol LA to control bladder spasms and therefore leaking. Please contact me if you have any questions. But again like I say I'm pretty new to this, so I don't know how much help I can be. Lucinda C-4,5 complete July 31, '05 Mpls., MN --- On Mon, 2/1/10, Stacy Harim imwheelin1...@yahoo.com wrote: From: Stacy Harim imwheelin1...@yahoo.com Subject: Re: [QUAD-L] suprapubic and sling To: wheelch...@aol.com, Quad-list@eskimo.com Date: Monday, February 1, 2010, 4:07 PM We increased the size but can't only do that so many times. I just would like to be informed with info from people that live with it day to day than just from a doctor. I trust him but would like to know if anyone with a sling and a flaccid bladder have any troubles with leaking or whatever may be a problem. I feel it's important to be informed. Stacy From: wheelch...@aol.com wheelch...@aol.com To: imwheelin1...@yahoo.com; Quad-list@eskimo.com Sent: Mon, February 1, 2010 7:28:28 AM Subject: Re: [QUAD-L] suprapubic and sling Increasing the size of the cath might be the answer. Of course, there could be a half dozen other tangible reasons too. You and your doctor have access to your medical records, we don't. Offering suggestions without this valuable information is too risky at best. It can be even more critical when you don't trust your medical doctor. Best Wishes In a message dated 1/31/2010 10:27:04 P.M. Central Standard Time, imwheelin1...@yahoo.com writes: Hey all, I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? Thanks in advance, Stacy
[QUAD-L] suprapubic and sling
Hey all, I've been away for a while but need some advice. Not that I don't trust my doctor's advice but also would like to get the facts from people that live with it day to day. I've been having issues with leaking around my cath and instead of continuing to go up sizes, I've decided to go with the supra pubic until I drop some weight in my belly and get the stoma redone so I can cath through my abdomen. Anyhow here is the deal. My bladder doesn't hold urine at all and the doctor suggested a sling but I am really worried it won't work and then I'm back in surgery to get my urethra tied off. What if any advice do you all have that have a supra pubic and how did you handle what to do about your urethra so it wouldn't leak urine? Thanks in advance, Stacy
Re: [QUAD-L] Parking in the lines
I haven't been around for a while but had to respond to this. I lost my temper on a woman last week for making me wait outside of my van for her to walk back and move. She wasn't sorry and appeared to have no disability. when I said she should apologize, she said she didn't feel bad. I hope I embarrassed her. So I posted my deal on facebook and my friend gave me this link http://foxyurl.com/M6P. There are things you can print out and put on peoples cars. It's pretty humorous and to the point. Stacy From: hellodav...@aol.com hellodav...@aol.com To: Quad-List@eskimo.com Sent: Mon, November 30, 2009 9:52:57 PM Subject: [QUAD-L] Parking in the lines It seems to me that nearly every time I park out in a public lot like WalMart, Mc Donald's, Costco, wherever; if I dare to use a spot marked with a HC marker and a small hashed area next to it, someone parks half in the next space and half on the hash marks. I now carry my camera and capture the moment for posterity. The current rate for abusing these special HC parking spots starts at $124 and goes up from there. http://www.users.qwest.net/~daveoc/ocg/hcpark/index.html In a message dated 11/30/2009 2:29:47 P.M. US Mountain Standard Time, wheelch...@aol.com writes: Some people drive thru red lights because they can... without fear. It probably happens hundreds of times a day in the big cities. Its no wonder that stupid people don't know how to park or don't care how they park or where to park. Some of those very people have H/C plates or Placards and feel the need to park on the stripes, because they feel they have the right. Can't change stupid. Best Wishes In a message dated 11/30/2009 3:16:35 P.M. Central Standard Time, whe...@cvn.net writes: Eric, Same thing happened to me.(got parked in at Creationfest 2009-over 100,000 people) I guy tried to move my van, fell down, sped out of control, almost ran over 100's of people into a brick wall but at last moment he grabbed my emc brake and stopped my van. he snapped my brake control though) i try to park every-which-way to avoid getting parked in. use to I even let my lift down, until some asshole ran over my lift making it un usable. the ass did a hit--run. i had to have a guy use a crowbar to bend my lift back in shape. i am on a mission to make sure there is proper accessible parking. Derrick W - Original Message - From: Eric W Rudd To: Quad-List@eskimo.com Sent: Monday, November 30, 2009 3:54 PM Subject: Re: [QUAD-L] information about mini vans versus full size and wheelchair http://www.users.qwest.net/~daveoc/dv/ Eric W Rudd c5sc...@gmail.com - Original Message - From: Mike Murach To: 'Eric W Rudd' ; Quad-List@eskimo.com Sent: Monday, November 30, 2009 2:24 PM Subject: RE: [QUAD-L] information about mini vans versus full size and wheelchair Is the quick right turn difficult to make? Or, do you back in? Mike~ -Original Message- From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Monday, November 30, 2009 11:25 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] information about mini vans versus full size and wheelchair yes i sit up front no i don't get locked in. i have straps to secure the chair but don't use them, just use the seat belt. i've thought about getting an e-z lock but haven't. Eric W Rudd c5sc...@gmail.com - Original Message - From:Mike Murach To:'Eric W Rudd' ; quad-list@eskimo.com Sent: Monday, November 30, 2009 10:54 AM Subject: RE: [QUAD-L] information about mini vans versus full size and wheelchair Eric, do you sit up front? Do you have a lock down system? Mike~ -Original Message- From: Eric W Rudd [mailto:c5sc...@gmail.com] Sent: Monday, November 30, 2009 10:48 AM To: quad-list@eskimo.com Subject: Re: [QUAD-L] information about mini vans versus full size and wheelchair I have had www.entervan.com for years my next one will be the same. I too am in a permobil don't drive. Eric W Rudd c5sc...@gmail.com - Original Message - From:daa...@aol.com To:quad-list@eskimo.com Sent:Monday, November 30, 2009 9:11 AM Subject:[QUAD-L] information about mini vans versus full size and wheelchair Hi Gang, What kind of vans do you use. I have always used a full size vehicle and I went to a united access location just to try out minivans during the summer. It seemed like there was so little room with my Permobile. My new chair has two wheels in front, which make the
Re: [QUAD-L] Food preparation question
I like things done in a particular way. How my bed is made, clothes folded, etc. I have had issues with people and finally got someone that does things exactly how I ask for them except she is late a lot but that is off topic. They need to realize they are working for you and should do things how you like them. If they were in your shoes they would be the same way. You would do it a certain way if you were to do it yourself and since you cant, its like their hands are your hands. Stacy From: bobbie...@aol.com bobbie...@aol.com To: quad-list@eskimo.com Sent: Thursday, March 19, 2009 1:14:10 PM Subject: [QUAD-L] Food preparation question Hi All, OK, I have a question about food preparation. Let's say you'd like a peanut butter and jelly sandwich (or another kind of sandwich) that you can't make. Do you just ask for that sandwich and except it as it is made by the person making it? Or do you try and instruct how you prefer the sandwich? For instance; I like a lot of peanut butter, or I don't want that kind of jelly. Dose the person making the sandwich or meal, think you are being a pain in the butt by being so particular? Just wondering, Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey Great Deals on Dell 15 Laptops - Starting at $479
Re: [QUAD-L] Why Were You Injured?
I know there is a reason for it and unfortunately it'll be the day I die when I find out. I believe it was for a greater purpose. I've done some soul searching and talked to my pastor about it and believe that what happens with me isn't about me. After I was injured, I thought I was doing most everything right then a mess of medical problems that held me back from my education, then a whole new struggle. I thought the struggles this difficult with agencies would have been over with but no so now I'm starting over. It took me a while to not be angry about it but the better I'm feeling physically and coming to grips with the fact my movement got worse after the several fusions over the last 2 years and more reliant on others for help on top of needing a power chair now because my chair tips up ramps since I am unable to lean forward. And the pain, my God the pain in my back. Ok went on a rant. Thought I knew what my destiny was, now have no idea. Stacy From: bob quinn kult...@yahoo.com To: quad-list@eskimo.com Sent: Saturday, March 21, 2009 4:01:15 PM Subject: [QUAD-L] Why Were You Injured? Do you believe there was a reason? Was it for some greater purpose? Your destiny? If so, do you know what it is (yet)?
Re: [QUAD-L] Flap surgery and Picc line
I actually just got finished with long term antibiotics and cared for my own pic line. I would just do what the nurse tells you to. She should set it up, give him his first dose and show you how to do it. I hope it all goes well for you, Stacy From: floreen [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, December 8, 2008 7:06:11 PM Subject: [QUAD-L] Flap surgery and Picc line My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004
Re: [QUAD-L] Flap surgery and Picc line
They have you flush it after each dose. Make sure you follow those instructions because the pic could get a blood clot then you will really have problems. Mine wasn't properly flushed in the hospital and then they had to call the iv team to my room to get it unclogged. From: Eric W Rudd [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, December 8, 2008 7:30:04 PM Subject: Re: [QUAD-L] Flap surgery and Picc line just make sure u flush it, as they'll probably tell ya, can't rember but think mine was flushed twice a day. Eric W Rudd [EMAIL PROTECTED] - Original Message - From: floreen To: quad-list@eskimo.com Sent: Monday, December 08, 2008 6:06 PM Subject: [QUAD-L] Flap surgery and Picc line My husband recently had a flap surgery and is set to come home on Thursday. He just got his picc line he will be coming home with...I am his caregiver and will be in charge of giving his antibiotics through the picc line...has anyone else had to do a picc line before, any tips? Thanks in advance, Floreen Wife and caregiver to Jason c5-6 incomplete diving accident 2004
Re: [QUAD-L] sore advice and pressure relief.
I think you'll be ok now that your cushion is properly inflated. I had a sore that I got in rehab over the summer heal while sitting on my roho after they got me on an air mattress at night. Its the other sore that got infected and lead to another surgery in almost the same place as the sore I got fixed last year. When I met with the wheelchair dealer for a new chair, he said that he has seen people heal on a roho cushion. As long as it has the proper amount of air in it and pressure relief is being done. Speaking of pressure relief, since I got this surgery fusing my back even more, I am not longer able to get any sort of shoulder deppresion that leaves me unable to get my butt off of the surface. I lean now. I haven't gotten any new breakdown since the episode over the summer but am curious how you all do your pressure relief. Stacy From: RONALD L PRACHT [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, December 6, 2008 1:01:38 PM Subject: Re: [QUAD-L] need advice on pressure sore hey dan, ive got little purplish bruises b4 that go away without doing anything , like when a transfer goes a lil wrong and you hit something. as far as what to put on it someone else here on the list prob has a better idea. i dont think it is gotten to a severe stage yet though . ron c7 --- On Sat, 12/6/08, Danny Hearn [EMAIL PROTECTED] wrote: From: Danny Hearn [EMAIL PROTECTED] Subject: [QUAD-L] need advice on pressure sore To: quad-list@eskimo.com Date: Saturday, December 6, 2008, 10:57 AM HI - All, I need help with a new pressure sore issue my roho got a bit low but i could not tell and now i got a small pressure sore on my left side of my bottom. My wife said it looks sort of like a purple colored bruisecan you guys tell me the best things to put on one early---when it has not even opened up??? is lantaseptic or bag balm good for it ?? i'm real worried because last april, i got a blister on my heel from my wife buying a pair of tennis shoes one size too small---that turned into a pressure sore and now 7 months later it is still slightly discolored and i still only wear sandal type shoe to keep all pressure off that area. So besides the last shoe incidentthis is my 1st time with a butt area pressure sore---i know to do pressure release and stay off as much as possible-- but not sure what to put on it in the early stages. thanks for any help ! Dan H. C-6 11 1/2 yr. post
Re: [QUAD-L]-Throne advice
Mine is made by tuperware. It's padded with foam. The bucket is round but it's the only chair i've tried that I don't slip in. Stacy - Original Message From: John S. [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, August 24, 2008 10:41:26 AM Subject: [QUAD-L]-Throne advice I've had the same commode chair since 1980. It has been a great piece..of equipment. I've had the seat recovered several times but the seamstress that was doing that moved away and now I cabn't seem to find anyone that will recover it for a decent price. It has a lovely 4 inch thick foam seat under naughahide (sp). In most cases I hate getting out of that chair. I can find similar commode and shower chairs but none with the rectangular catch bucket that removes from behind and is suspended low enough for me to stimulate. Am I missing something? Do any of you know where such a throne can be purchased. Mine is also having peculiar aging problems. I'd like to replace it before I don't have a pot to poop in. If any of you know a place that has a comfortable shower/commode chair. While mine looks a lot like the Invacare model, it holds the bucket lower and I need those inches of clearance. Maybe you have a better, more comfy chair. I'm listening. I feel like a friend is dying. Best to all, john
Re: [QUAD-L] what can aides in MD do?
Where are you in MD? Location can be key. I live on the ocean city and have a hard time finding anyone willing to do anything but if you live more into the cities, there is more population, aides, etc... there aren't many aides here and no one wants to drive from Salisbury b/c of the gas prices so like I said location is key but there are aides that do and will deal with those procedures. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, August 27, 2008 4:12:57 PM Subject: [QUAD-L] what can aides in MD do? What duties can privately hired aides in Maryland perform? Can they do bowel care, deal with colostomies, catheterize, deal with SP caths, etc.? There was a news report a few weeks ago that said caregivers need to be licensed to perform such procedures. Thanks, Alan -- --- Posted by alanh77[at]comcast.net using MR/2 ICE Newsreader #564 Proudly using eComstation 1.2R (OEM OS/2) BBS - The Nerve Center Telnet FidoNet 261/1000 tncbbs.no-ip.com ---
Re: [QUAD-L] Seating
That would be perfect for me since I have no trunk support since I had all the rods put in. My only problem is how would I transfer myself out of it? It looks like there is a hump to get over and I get no shoulder depression since my spine doesnt bend. It looks like it would be perfect though. Stacy - Original Message From: Mark Jackson [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, June 6, 2008 2:25:52 PM Subject: [QUAD-L] Seating Has anyone ever thought about putting a different seat all together on their chair for stability. I found this seat with a memory foam cushion in a custom racing web site and it looks perfect for someone like me with very bad trunk support. HYPERLINK http://www.speedwaremotorsports.com/index.asp?PageAction=VIEWPRODProdID=7015http://www.speedwaremotorsports.com/index.asp?PageAction=VIEWPRODProdID=7015 Mark Jackson RollinOn No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.6/1487 - Release Date: 6/6/2008 8:01 AM
Re: [QUAD-L] Seating
That would be perfect for me since I have no trunk support since I had all the rods put in. My only problem is how would I transfer myself out of it? It looks like there is a hump to get over and I get no shoulder depression since my spine doesnt bend. It looks like it would be perfect though. Stacy - Original Message From: Mark Jackson [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, June 6, 2008 2:25:52 PM Subject: [QUAD-L] Seating Has anyone ever thought about putting a different seat all together on their chair for stability. I found this seat with a memory foam cushion in a custom racing web site and it looks perfect for someone like me with very bad trunk support. HYPERLINK http://www.speedwaremotorsports.com/index.asp?PageAction=VIEWPRODProdID=7015http://www.speedwaremotorsports.com/index.asp?PageAction=VIEWPRODProdID=7015 Mark Jackson RollinOn No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.6/1487 - Release Date: 6/6/2008 8:01 AM
Re: [QUAD-L] DORS closing my case
I'm having surgery Tues. so I am going to talk with the doctor more in detail about it while I am in the hospital. He is really encouraging me to get back to school so I am sure he will provide whatever is neccessary for DORS. I will also talk with the plastic surgeon about the pressure sore problems I had in previous years. He is the one who found the infection in the bone and removed it so it finally healed. Thank God for Hopkins and Doctors that care. Stacy - Original Message From: andrea murray [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Saturday, May 31, 2008 10:19:57 AM Subject: Re: [QUAD-L] DORS closing my case Stacy, I had to be out of colege for a hole year because of illness. My doctor told VR that I had to have to out from college. My case was put on hold but not closed. Wheelchair Warrior --- On Fri, 5/30/08, Stacy Harim [EMAIL PROTECTED] wrote: From: Stacy Harim [EMAIL PROTECTED] Subject: [QUAD-L] DORS closing my case To: quad-list@eskimo.com Date: Friday, May 30, 2008, 7:46 PM Hey all, I got a notice from voc rehab that they are closing my case because I haven't done anything to move forward in education or employment. I called them and talked to my counselor. They want a note from my doctor on how long he anticipates recovery and if I don't get better by August then I'm getting my case closed. He also said he needs to sit with the supervisor to see how many more semesters they will pay for. I had to drop classes last year because of illness and they are not being very cooperative or empathetic about my situation. Has anyone else had their case closed because of hospitilizations? Any advice is appreciated because if I don't have them helping me with school when I'm better then I am screwed and I don't want to settle for any job but want to finish my education. That is my ultimate goal. Stacy
Re: [QUAD-L] why he didnt do it himself
On his side? - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, June 6, 2008 6:10:00 PM Subject: [QUAD-L] why he didnt do it himself hes like 240 pounds..he couldnt transfer on toilet. tried on a small bowell chair but chair would topple over then he had to call the fire dept to lift him up. ron c7
Re: [QUAD-L] DORS closing my case
That concerns me because I didn't call them last time but I did previously with the pressure sores. I don't have record of that but they are aware that I am getting surgery again. Last year, I broke my back getting into my chair and I didn't call anyone but 911. I was getting dilated shot in my hip and then didn't remember anything for a while. I went through depression in the hospital because of the many surgeries I had to get and didn't talk to my counselor til after I came home a couple of months later. Its a shame because they changed my case to someone else, I spoke to her about it and then they switched my case back to my old counselor. I am not so crazy about all of them up there at all. I have had a lot of counselors in a few years and this last one has been with me a few years, He has CP but still doesn't seem very empathetic and I thought he would be. I will do what I can, even if it's from rehab and involve anyone I can. All of my doctors are really supportive and will help with anything I need. I have my records from last year, I will get a copy for this year and a note from them stating what is going on and how long they expect my recovery to be. I'm hoping to get it together this summer so I can get back to school before the fiscal year (oct) and won't have to worry about any of this. Thanks for your help Wheel, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Friday, June 6, 2008 8:51:53 PM Subject: Re: [QUAD-L] DORS closing my case Make sure that your VR counselor is aware of your surgery in writing if you can. Keep them current with telephone calls and document them in YOUR paperwork. Dates and Times. This way, VR can not use the excuse that you have not been talking or writing them. Best Wishes In a message dated 6/6/2008 7:42:04 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I'm having surgery Tues. so I am going to talk with the doctor more in detail about it while I am in the hospital. He is really encouraging me to get back to school so I am sure he will provide whatever is neccessary for DORS. I will also talk with the plastic surgeon about the pressure sore problems I had in previous years. He is the one who found the infection in the bone and removed it so it finally healed. Thank God for Hopkins and Doctors that care. Stacy - Original Message From: andrea murray [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Saturday, May 31, 2008 10:19:57 AM Subject: Re: [QUAD-L] DORS closing my case Stacy, I had to be out of colege for a hole year because of illness. My doctor told VR that I had to have to out from college. My case was put on hold but not closed. Wheelchair Warrior --- On Fri, 5/30/08, Stacy Harim [EMAIL PROTECTED] wrote: From: Stacy Harim [EMAIL PROTECTED] Subject: [QUAD-L] DORS closing my case To: quad-list@eskimo.com Date: Friday, May 30, 2008, 7:46 PM Hey all, I got a notice from voc rehab that they are closing my case because I haven't done anything to move forward in education or employment. I called them and talked to my counselor. They want a note from my doctor on how long he anticipates recovery and if I don't get better by August then I'm getting my case closed. He also said he needs to sit with the supervisor to see how many more semesters they will pay for. I had to drop classes last year because of illness and they are not being very cooperative or empathetic about my situation. Has anyone else had their case closed because of hospitilizations? Any advice is appreciated because if I don't have them helping me with school when I'm better then I am screwed and I don't want to settle for any job but want to finish my education. That is my ultimate goal. Stacy Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
Re: [QUAD-L] stacy
I meany laying down in bed on his side. That's how I do it now because I can't transfer onto the chair naked. I can't transfer without clothes so am on my own as far as bowel program and bathing goes. I put a pan of water on my sliding board on my lap and wash up. I take it back to the sink the same way. I use blue pads for my bowel program. I lay on my side and when I am finished, I roll the pad up and tuck it the best and cleanest way I can. I then roll another blue pad and tuck that one under the pad I tucked under me. Mind you, I am on my side this whole time. I then roll to the other side carefully without twisting my back too much bc of the rods. I finish rolling up the soiled pad and throw it away and use baby wipes to clean the other side then finishing with rinseless body wash. It can be done. When I was in rehab I was told by my occupational therapist another para did it that way. Like I said earlier that I practiced cleaning myself up while I was in rehab so if I made a mess I could have help cleaning it up. 7 years later, I'm a pro. Dont get me wrong, I do have bad days sometimes. I've had diarrahea and each time I turned, i would go again. I'd have to keep up rolling up blue pads and tucking it under the one I rolled up until I stopped going. When I was on the Zyvox, I went a lot and had to keep up with that and it's a pain but worth it for the independence. When I came home from rehab, I was pretty heavy but still managed. When I used the shower chair, I reached between my legs because I wasnt able to lean to one side. I used a 3 in one chair. I have a tub, not a roll in shower. The bench hangs over the side of the tub, it has a cut out with a bucket. I would go to the bathroom, take out the bucket and then shower. When I was all through, I managed to clean out the bucket. It can be done, it just takes practice. I hope your friend manages in his situation better. I wouldn't want to be in his situation thats for sure. Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, June 6, 2008 11:22:50 PM Subject: [QUAD-L] stacy well he would transfer on the small bowell chair...when he reached down his right side and leaned over to digital himself the chair fell over. he called me and said he was naked on the floor.being his moms 79 he had to call 911. ron c7
Re: [QUAD-L] stool softeners
How often do you do your bowel routine? Do you take it the night before if you do it in the morning or in the morning if you do it at night? Every other day? Just curious b/c I may like to try that. Stacy - Original Message From: Liz Treston [EMAIL PROTECTED] To: QUAD-LIST@eskimo.com Sent: Tuesday, June 3, 2008 3:58:56 PM Subject: RE: [QUAD-L] stool softeners Miralax saved me. Give it a try. Stool softeners do not loosen hard stool, you do need to take them regularly as part of your routine. Not being able to poop sucks. On a side note, Roy , being a quad isn’t easy for anyone. From:Paul Jacobson [mailto:[EMAIL PROTECTED] Sent: Tuesday, June 03, 2008 3:50 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; QUAD-LIST@eskimo.com Subject: Re: [QUAD-L] stool softeners Dude, not a very nice response. No need to continue our dialogue. - Original Message - From:Roy Abell To:[EMAIL PROTECTED] ; QUAD-LIST@eskimo.com Sent:Tuesday, June 03, 2008 12:17 PM Subject:RE: [QUAD-L] stool softeners Paul... you must be a Democrat... because your answer sounds like you don't want to do anything to help yourself... and to let others such as your doctor to do it for you. Being a quadriplegic has never been easy for me... however, I will eat dog Doo Doo if I thought it would help me. That has always been my attitude for 49 years. Do like my football coach once told me... suck it up. Help yourself and stop being a crybaby. Roy Abell President PIE*Medical International, Inc. 904-471-1200 after 1 p.m. EST http://www.mybowel.com Solving chronic bowel problems with a new therapy enema kit that indicates it can restore normal bowel function with many people. From:[EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, June 03, 2008 3:08 PM To: QUAD-LIST@eskimo.com Subject: [QUAD-L] stool softeners If you eliminate all the good stuff you are required to take, expect empactment. Then Roy 's company will sell you at a discount a PIE device. Prunes, peaches, cherries, figs, celery and yes apples too. Don't forget to pinch your nose when using cod liver oil too. Best Wishes In a message dated 6/3/2008 2:01:26 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hi Roy, I also take fiber capsules daily. The apple a day sounds doable...but dried apricots are not the most tasty things, for me :) So are you sayingno senna and no stool softeners? I don't know if anything will come out if I do that. How about Miralax as suggested by John? Thanks so much! Paul - Original Message - From:Roy Abell To:'John S.' ; QUAD-LIST@eskimo.com Sent:Tuesday, June 03, 2008 10:48 AM Subject:RE: [QUAD-L] stool softeners Paul... ... as some of you may know I've spent the last 20 years studying the bowel and how to help our problem. Based on that... let me give you some of my knowledge. Hard stool is always caused by stool remaining in your colon too long as the purpose of the colon is to remove water from the highly liquid stool coming from the small intestine. Almost every quadriplegic that I have known... including myself... has what is called slow transit time... meaning that the stool goes slowly through your colon. This causes more water to be extracted and the result is hard stool. So here are some choices and I would recommend to you: 1. Avoid all laxatives of all kinds because they damage your colon tissue. Chemicals are not good for your body. 2. Eat more fruit... especially apples because their fiber is the best available today for this problem. 3. Locate some dried apricots at the local market and eat about 5-6 of them daily. You've heard of the help of prunes... dried apricots are supercharged prunes. 4. Finally... drink more water as this will help your stool become softer and easier to pass. Finally... if all else fails please go to my website... link below for more information. Your quadriplegic friend... Roy Roy Abell President PIE*Medical International, Inc. 904-471-1200 after 1 p.m. EST http://www.mybowel.com Solving chronic bowel problems with a new therapy enema kit that indicates it can restore normal bowel function with many people. From:John S. [mailto:[EMAIL PROTECTED] Sent: Tuesday, June 03, 2008 1:30 PM To: QUAD-LIST@eskimo.com Subject: Re: [QUAD-L] stool softeners Senna is not real good at long term use for a lot of folks. eat more greens, take acidophylus an hour after prescriptions and try Mirilax. The Mirilax will do the job but the rest is still good advice. Best wishes, john - Original Message From: Paul Jacobson [EMAIL PROTECTED] To: [EMAIL PROTECTED]; QUAD-LIST@eskimo.com Sent: Tuesday, June 3, 2008 1:15:36 PM Subject: [QUAD-L] stool softeners Hi, Hoping some of you folks might be able to provide assistance. Recently my stools have become very hard. I currently take 2 over-the-counter stool softener capsules the night before my
[QUAD-L] DORS closing my case
Hey all, I got a notice from voc rehab that they are closing my case because I haven't done anything to move forward in education or employment. I called them and talked to my counselor. They want a note from my doctor on how long he anticipates recovery and if I don't get better by August then I'm getting my case closed. He also said he needs to sit with the supervisor to see how many more semesters they will pay for. I had to drop classes last year because of illness and they are not being very cooperative or empathetic about my situation. Has anyone else had their case closed because of hospitilizations? Any advice is appreciated because if I don't have them helping me with school when I'm better then I am screwed and I don't want to settle for any job but want to finish my education. That is my ultimate goal. Stacy
Re: [QUAD-L] DORS closing my case
Should I write and tell them that voc rehab plans to close my case or actually wait until it's closed? I wonder because if I wait, it may take too long for the process. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Friday, May 30, 2008 7:56:08 PM Subject: Re: [QUAD-L] DORS closing my case You have the right of appeal. Look in the back of your DORS book and read the process for appealing their decision. Remember to do everything in writing. they will. Best Wishes In a message dated 5/30/2008 6:47:00 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hey all, I got a notice from voc rehab that they are closing my case because I haven't done anything to move forward in education or employment. I called them and talked to my counselor. They want a note from my doctor on how long he anticipates recovery and if I don't get better by August then I'm getting my case closed. He also said he needs to sit with the supervisor to see how many more semesters they will pay for. I had to drop classes last year because of illness and they are not being very cooperative or empathetic about my situation. Has anyone else had their case closed because of hospitilizations? Any advice is appreciated because if I don't have them helping me with school when I'm better then I am screwed and I don't want to settle for any job but want to finish my education. That is my ultimate goal. Stacy Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
Re: [QUAD-L] DORS closing my case
Thanks. I will type something up formally to DORS about appealing any decision. I don't feel they should close my case because before I had medical issues last year, I was a great student and did get my AA a few years ago so I feel its obvious that I have every intention of continuing to use their services. I may get you all to read it before I send it for any ideas I may be missing out on. Thanks again, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, May 30, 2008 8:46:14 PM Subject: [QUAD-L] DORS closing my case You may wish to consider advising DORS of your objection and advising them that you will appeal any decision contrary to your future education. I would also consider going downstate with the appeal process. Best Wishes In a message dated 5/30/2008 7:37:14 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Should I write and tell them that voc rehab plans to close my case or actually wait until it's closed? I wonder because if I wait, it may take too long for the process. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Friday, May 30, 2008 7:56:08 PM Subject: Re: [QUAD-L] DORS closing my case You have the right of appeal. Look in the back of your DORS book and read the process for appealing their decision. Remember to do everything in writing. they will. Best Wishes In a message dated 5/30/2008 6:47:00 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Hey all, I got a notice from voc rehab that they are closing my case because I haven't done anything to move forward in education or employment. I called them and talked to my counselor. They want a note from my doctor on how long he anticipates recovery and if I don't get better by August then I'm getting my case closed. He also said he needs to sit with the supervisor to see how many more semesters they will pay for. I had to drop classes last year because of illness and they are not being very cooperative or empathetic about my situation. Has anyone else had their case closed because of hospitilizations? Any advice is appreciated because if I don't have them helping me with school when I'm better then I am screwed and I don't want to settle for any job but want to finish my education. That is my ultimate goal. Stacy Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
Re: [QUAD-L] Another anniversary....
Congrats to you and the others celebrating making it thus far. It was memorial weekend for me 7 years ago when I just couldn't get up one morning. I don't remember any of it, just what my roomie told me. I couldnt move, was in pain, rushed to the hospital where I went into respetory arrest and slipped into a coma. 6 days and 3 hospitals later I was diagnosed with encephalomyelitis. After a month in a coma, I awoke on a ventilator and couldnt move even my neck. I thought it was a dream. Months and tons of rehab later, I was able to move my shoulders then arms. I am pretty good with my life and making the most of it, but have a hard time calling it an anniverary. I know we should celebrate the fact we've mad it through but it's not one memory of getting ill, coming out of a coma and full on paralysis to a para, but it seems almost every spring I have something wrong. It was shortly before memorial weekend last year when I broke my back from having osteomyelitis that i didn't know I had until after my back snapped just pulling myself into my chair. I had 3 spinal surgers, have rods from T7 into my pelvis. I can't bend my back and feel like I am moving backwards again. Here I am spring again and need another spinal surgery from a screw that moved through my vertebrae and is rubbing the one above. He is going to put more rods in from at least T4. I am now fearing losing the independence I worked to hard to gain. I know I will be in less pain and have my life but it's so much harder knowing it might happened instead of it just happening. I woke up from the coma paralyzed and with the spinal surgery, I had no idea that I was going to be this bad. I just knew I needed surgery with no warning of how difficult movement was going to be. I've gotten to the point that when spring comes around, I have a hard time celebrating life but wondering what is going to happen this time? Another year of school missed? If i need help, will I be able to get it since it's so hard to get it now? Will I be able to drive my van since the floor doesnt have a cut out big enough for an easy lock and too old to have the work done and be paid for? Not to be a pity on anyones party just some rambling and thoughts. Don't get me wrong, I am grateful for how much I do have and know first hand of how bad it can be. I haven't told anyone my thoughts except for you all. I guess I try to stay so strong for everyone else around me. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, May 25, 2008 7:04:27 PM Subject: [QUAD-L] Another anniversary it was a warm spring night back in 1967.. the good ol' days of being ten feet tall and bullet proof. I know a few of you have been there, done that, bought the t-shirt, wore it out. for the new guy, I got a little more return each day for about the 1st year. since then, I've been on steady hold- no gains but more importantly, no major losses. what helped me through was a good woman whom I dated a few times in high school before my sci, and 3 wonderful kids to keep me busy. I finished college at Wayne State Univ. in Detroit in '72 and came out to Arizona in '74 to escape the cold and seek my fortune. I taught high school for a few years and then worked as a programmer for Honeywell for 25 years before they gave my job away to India. Now I'm retired and burning up my retirement pension waiting for 65 when I'll have to switch over to my 401k. I sure hope the market turns back up so I can pump it up a bit more b/4 I tap into it. what happens to us in life is not nearly so important as what we do about it. Sure this whole sci thing sucks and is definitely a bad deal, but what one does with the cards he is dealt is what makes all the difference. We quads are tough, no doubt about it - now go out and prove to yourself and everyone else that it isn't the end - you can still make some good lemonade out of this mess. Congrats to you all for making it as far as you have. Success is just a whole bunch of small victories strung together. Slip through those days like I slipped through May 24th. I was so busy I forgot all about it being my 41st milestone. AZDave When God Closes a Door, Somewhere He Opens a Window DAVEOCONNELL.COM Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food.
Re: [QUAD-L]
Not to rain on your parade but also want to be realistic. I had encephalomyelits 7 years ago. I was paralyzed from the neck down and got movement bad except for T7 down. Months later I could flex the quad muscles in my thigh and have faint sensation. I haven't gotten anymore back since. The cut off they say for recovery is 2 years so don't lose hope and if you can move something, keep moving it. That is what I was told. The therapist said be sure not to fatigue the muscles though. I hope the turn out is different for you than me. Stacy - Original Message From: Joe Gullion [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, May 25, 2008 1:15:03 PM Subject: [QUAD-L] has anyone heard of people getting up and walking after being in a chair for 1-2-3 years i would like to think there is hope for me i have been in one for 9 months now iam getting alot of good feeling back along with burning freezing cramping let me know joe
Re: Fw: [QUAD-L] Pain
If I dont go anywhere, I wear my overnight bag all day. I just feed it through my clothes so it comes out at the bottom and hook it to the handle on my wheelchair cushion. Stacy - Original Message From: andrea murray [EMAIL PROTECTED] To: Quadius [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Tuesday, May 20, 2008 12:09:25 PM Subject: Re: Fw: [QUAD-L] Pain I do not have a problem drinking but, I don't have anyone to empty my cath bag. I'm afraid to drink because my cath bag will fell up before someone comes in the evening. Wheelchair Warrior --- On Mon, 5/19/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: Fw: [QUAD-L] Pain To: [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Monday, May 19, 2008, 8:54 PM Do you have a problem drinking or is it getting your urine emptied? On 5/18/08, andrea murray [EMAIL PROTECTED] wrote: I have a big problem!! For some Godly thing my in home care won't give me a noon visit. So I go all day with one 20 ouncz glass of water. So my bladder does not get a good cleaning out. What can I do? Wheelchair Warrior --- On Sun, 5/18/08, Merrill [EMAIL PROTECTED] wrote: From: Merrill [EMAIL PROTECTED] Subject: [QUAD-L] Pain To: quad-list@eskimo.com Date: Sunday, May 18, 2008, 2:36 PM I've recently had a revelation Re: PAIN. The cleaner my bladder, the less systemic pain. Not an advertisement but daily UTI Clear with plenty of water has huge benefits to me. Granted the bladder always has some bacteria. Merrill C 5, 18 Years
Re: FW: [QUAD-L] neurontin
I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: FW: [QUAD-L] neurontin
I am in serious pain now from my back. I don't know if you know but I had 3 spinal surgeries last summer b/c i got osteomyelitis in my spinal column. A screw has popped through a vertebrea and has rubbed the one above it to a point that part of that bone is gone as well. I am getting another surgery to get more rods but I have to wait for the doctor to view the ct scan that i sent to set up the surgery. Anyhow I am in extreme pain that medicine is not helping. I personally manage pain pretty well by keeping myself busy. It's hard to fight through but I also have to live. I have a hard time meditating as well because of so many personal problems so I understand that is why I just keep myself busy to keep my mind off of it. Stacy - Original Message From: KK [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 2:39:32 PM Subject: Re: FW: [QUAD-L] neurontin Stacy, don't you have to be in control of the pain before it starts getting bad? I have so much noise going on in my head, it has never been quiet enough to meditate. Constant ocean roar in both ears.
Re: FW: [QUAD-L] neurontin
I was hoping with you being in a similiar situation. I came down with ADEM suddenly memorial weekend 2001. A lot of my pain is due to paralysis but there is so much more going on in my body that even the doctors can't get a grip on. I have a busy head as well. It's very hard to concentrate with a lot of problems and frustrations. Maybe you can find out some about methadone. Like I said, it helped me emensly. It's worth finding out more about it. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 5:49:53 PM Subject: Re: FW: [QUAD-L] neurontin Stacy, Thank you very much for your advice on pain management. I have tried meditation method, which was suggested by my psychiatrist, when I was in the hospital. It's extremely difficult for me to concentrate. Even when it is perfectly quiet in the room, it is extremely noisy and busy in my head. I also have a difficult time with prayer for the same reason. When I was on the steroids, it was even worse. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: FW: [QUAD-L] neurontin
I considered a baclofen pump. WE thought it was a pressure sore making me have so many spasms but it turned out to be the osteomyelitis. Anyhow if the spasms weren't to get any better, I wanted the pump. My pain specialist puts them in and then the spasticity clinic maintains them. My pain doc said that he could put the pain meds in as well instead of having to take them orally. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 5:52:50 PM Subject: Re: FW: [QUAD-L] neurontin Mark, I have a Baclofen pump, which is surgically implanted. Have you ever heard of anyone receiving pain medication through their Baclofen pump? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.
Re: FW: [QUAD-L] neurontin
I am considering it if I dont get relief from this next surgery. I'm just freaking out because more rods. At least 3 more levels. They are already from T7 all the way into my pelvis so now we are talking about T 4. I'm so nervous. I was a quad and got better and now I feel like I am going backwards. It's hard to know you are going to lose it instead of just losing it without knowing. I am so afraid of losing idenpendence. I know a lot of you have caregivers but I honestly cant stand anyone around me for very long every day. They have to come at least for 5 hours because they come from 30 to 40 miles away. They also have a habit of not showing up and that freaks me out. I can't imagine getting stuck either in my bed or in my chair. Anyhow I jumped off subject. I will definatly look into it if I don't get relief but I think I will since I had relief when I first had this fusion. I only hurt if I did too much. Now everything is too much but I still keep getting up because I don't want to have to lay in bed all day and let my life go by on me. I do what I can as carefully as I can for now. Thanks for the advice, Stacy - Original Message From: Mark Jackson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 3:44:02 PM Subject: RE: FW: [QUAD-L] neurontin Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
Re: FW: [QUAD-L] neurontin
Thanks John, I live in MD. they aren't spending crap on jails here. My brother is in prison and he says its terrible. We have overcrowding and understaffing and they just shut down a prison so those prisoners went to the others in the state. It's a nightmare. I know weed helps but it has a poor effect on me now that I am a bit older. It makes me want to eat and sleep. I live alone so I cant be that lazy and I don't want to gain weight. Plus I can't afford it. Its a good idea though. Stacy - Original Message From: John S. [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, May 19, 2008 4:36:37 PM Subject: Re: FW: [QUAD-L] neurontin I'm not sure I can give decent advice about pain. Whatever seems great at first, always fades away. Sometimes I feel as if I have pain under control, but most of the time, it has me by the short hairs. I sure hope and pray caging your spine helps, Stacy. You might live in a state that didn't spend it's Medicaid allotment to expand it's jail capacity. I wish I could remember where everyone is from, but I feel like I'm doing well remembering my address on days like today. (please, don't everybody write and tell me where they live.) Have you ever tried a pot cookie or brownie? Some herbal remedies work pretty well. It's no St John's Wort, but it won't aggravate any dry skin issues, either. Don't even bother with marijuana pills. They won't stay lit. Best wishes john - Original Message From: Mark Jackson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 3:44:02 PM Subject: RE: FW: [QUAD-L] neurontin Stacy, you might be a good candidate for a pain pump which is surgically implanted in your spinal column or cord but I'm not sure which and it's much easier on you because it goes straight tov the sorce and requires smaller doses because of this. You should ask your doctor because I've heard it's changed peoples lives for the better if it works. I've tried to get one but since they've cut medicaid to the bare roots there's very little covered any more. That doesn't mean you can't though, it differs state by state I think and if you're on Medicare I know it's covered. Mark Jackson RollinOn From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Monday, May 19, 2008 12:02 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: FW: [QUAD-L] neurontin I've tried morphine and dilatid(sp?). Neither have worked. Not even for my back where the screw has moved its way through the vertebrae. I have also tried oxycodone. I do take 50mg of cymbalta but that was prescribed when I was going through all of the spinal surgeries and got really depressed about it in the hospital. I gave up on all pain meds except for the lyrica. One thing you all in pain might want to ask about is methadone. It does something with the nerve endings to relieve pain. It's much less of mg. for pain. I did take it at one time but when my spasms got really bad, I had to quit it to take diazipam because it lowers your heart rate. I got it through my pain doctor. It did really work and I am considering taking it again because I no longer take the diazipam since my spasms are much better since I got my spinal surgery. It's something I would consider if your pain is that bad. It worked for me and my pain at one time was out of control. Since I have been taking lyrica, its' been much better but since my back is in so much pain I am going to talk to my doc about the methadone again. I think it makes a difference. I'm sorry to hear about your pain. I took a health psychology class and we learned about managing pain and it personally helped me learn how to manage it. There are things you can do to help take your mind off of it. In some ways its kind of like medatation by thinking of other things in a nice quiet setting that relax you. I'm sure most of you in a lot of pain have tried everything you can think of but just letting you know some of the things that help me. Good luck, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 19, 2008 11:51:06 AM Subject: Re: FW: [QUAD-L] neurontin Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.21/1454 - Release Date: 5/19/2008 7:44 AM
Re: [QUAD-L] spam? or not spam?
yea, i got it now. Dana cleared it up. Personally I don't trust it either. I get enough junk mail. I don't need more from other sites. I just don't open mail unless I know where it came from. A majority of it is quad list on this address because I have gotten so much junk on msn, I couldn't manage it anymore. Stacy - Original Message From: Tod E. Santee [EMAIL PROTECTED] To: quad-list@eskimo.com; Stacy Harim [EMAIL PROTECTED] Sent: Saturday, May 17, 2008 4:44:42 PM Subject: Re: [QUAD-L] spam? or not spam? Yes... It's just this person's email filter that only allows messages from approved addresses to pass. It looks like it reads the sender's address rather than Quad-List address and then sends a message back to the original. Problem with these IMO is your address gets stored on a 3rd party site/server as a valid address. It can be used by hackers to harvest addresses vey efficiently. I don't use them or add myself as approved sender. Regards, --Tod Stacy Harim [EMAIL PROTECTED] wrote: Anyone else get this email? I got it as soon as I replied to a neurontin question. I'm leaning toward this being some sort of spam mail. Stacy - Forwarded Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Sent: Friday, May 16, 2008 10:19:11 PM Subject: Re: Re: [QUAD-L] neurontin (Action Required) Hi - You just sent me an email about Re: [QUAD-L] neurontin. I'll be more likely to see your email and future messages if you are on my priority Guest List. Click here to be put on my Guest List Thanks, [EMAIL PROTECTED] About this Notice This courtesy notice is part of a free service to make email more reliable and useful. Boxbe (www.boxbe.com) uses your existing social network and that of your friends to keep your inbox clean and make sure you receive email from people who matter to you.
Re: [QUAD-L] neurontin
I took neurontin for about 5 years and oxycodone. I now only take lyrica. Smaller pills and less mg. I like it a whole lot more and less side effects. I also had a really hard time coming off of neurontin, especially really bad headaches. Stacy - Original Message From: Fragile [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, May 16, 2008 11:13:04 AM Subject: [QUAD-L] neurontin Does anybody take Neurontin? I just started at 300mg per day, will eventually build up to 1800mg per day. 300mg is making me extremely sleepy and fatigued. Wondering if the symptoms will eventually go away?
[QUAD-L] spam? or not spam?
Anyone else get this email? I got it as soon as I replied to a neurontin question. I'm leaning toward this being some sort of spam mail. Stacy - Forwarded Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Sent: Friday, May 16, 2008 10:19:11 PM Subject: Re: Re: [QUAD-L] neurontin (Action Required) Hi - You just sent me an email about Re: [QUAD-L] neurontin. I'll be more likely to see your email and future messages if you are on my priority Guest List. Click here to be put on my Guest List Thanks, [EMAIL PROTECTED] About this Notice This courtesy notice is part of a free service to make email more reliable and useful. Boxbe (www.boxbe.com) uses your existing social network and that of your friends to keep your inbox clean and make sure you receive email from people who matter to you. www.boxbe.com | Email by Invitation Reporting-MTA: dns; yahoo.com Action: failed Arrival-Date: Fri, 16 May 2008 19:18:41 -0700 (PDT) Final-Recipient: rfc822; [EMAIL PROTECTED] Diagnostic-Code: X-Boxbe-Challenge; Sender is not approved. Follow instructions in notice to to complete delivery (see www.boxbe.com) Status: 5.7.1 From Stacy Harim Fri May 16 19:18:41 2008 Return-Path: [EMAIL PROTECTED] Authentication-Results: mta108.mail.re4.yahoo.com from=yahoo.com; domainkeys=fail (bad sig) Received: from 204.122.16.69 (EHLO ultra6.eskimo.com) (204.122.16.69) by mta108.mail.re4.yahoo.com with SMTP; Fri, 16 May 2008 19:19:00 -0700 Received: from ultra6.eskimo.com (localhost [127.0.0.1]) by ultra6.eskimo.com (8.14.2/8.14.0) with ESMTP id m4H2Iipp020502; Fri, 16 May 2008 19:18:44 -0700 Received: (from [EMAIL PROTECTED]) by ultra6.eskimo.com (8.14.2/8.12.10/Submit) id m4H2IhmT020490; Fri, 16 May 2008 19:18:43 -0700 Resent-Date: Fri, 16 May 2008 19:18:43 -0700 DomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=s1024; d=yahoo.com; h=X-YMail-OSG:Received:X-Mailer:Date:From:Subject:To:MIME-Version:Content-Type:Message-ID; b=S+wCp/BEa6pgBgGU+iE4gFUA6m2aqPVDk4X97HOax6cm5T+o2wq9GxoQXTUx9LasdBI+uPLKPr7Z6sA/jNXlc2Mot0tXrkZmm8hRfzamb/a6oQu89octs6boL0BoRQwktF7NWDcHyaxPrOC6kv5wwCKQ41tzpWpX70h3vIcRxWY=; Date: Fri, 16 May 2008 19:18:41 -0700 (PDT) From: Stacy Harim [EMAIL PROTECTED] Subject: Re: [QUAD-L] neurontin To: Fragile [EMAIL PROTECTED], quad-list@eskimo.com MIME-Version: 1.0 Content-Type: multipart/alternative; boundary=0-1687802676-1210990721=:23620 Message-ID: [EMAIL PROTECTED] Resent-Message-ID: [EMAIL PROTECTED] Resent-From: quad-list@eskimo.com List-Post: mailto:quad-list@eskimo.com List-Help: mailto:[EMAIL PROTECTED] List-Subscribe: mailto:[EMAIL PROTECTED] List-Unsubscribe: mailto:[EMAIL PROTECTED] Precedence: list Resent-Sender: [EMAIL PROTECTED] Content-Length: 2209
Re: [QUAD-L] FW: Big Virus
I don't open anything unless I know who it's from Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, May 13, 2008 10:44:51 AM Subject: Re: [QUAD-L] FW: Big Virus clicking on a link in an email is like drinking from a paper bag covered bottle from someone on the street. if he's your friend, ok; if you don't know him, he probably just relieved himself into that bottle. don't click unknown links. AZDAVE (This one writes on your boot sector - the brain that starts your computer up. Without your boot sector, your PC is a fancy door stop.) In a message dated 5/13/2008 4:41:30 A.M. US Mountain Standard Time, [EMAIL PROTECTED] writes: -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, May 12, 2008 9:47 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED] Subject: Fwd: Big Virus Received: from 209.191.106.36 (HELO web39605.mail.mud.yahoo.com) (209.191.106.36) by mta105.mail.re1.yahoo.com with SMTP; Mon, 12 May 2008 10:49:39 -0700 Received: (qmail 64622 invoked by uid 60001); 12 May 2008 17:49:39 - Return-Path: [EMAIL PROTECTED] From: Alan Hillman [EMAIL PROTECTED] To: steve beckett [EMAIL PROTECTED] Subject: Fwd: Big Virus Date: Mon, 12 May 2008 14:05:49 -0600 Message-ID: [EMAIL PROTECTED] MIME-Version: 1.0 Content-Type: multipart/mixed; boundary==_NextPart_000_0029_01C8B4BB.B6A94610 X-Mailer: Microsoft Office Outlook 12.0 Thread-Index: Aci0a65exoaJaBv5R0q3rfz7kRQO6w== Note: forwarded message attached. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. From: herbert mcc [EMAIL PROTECTED] To: Dominic Alisio Jr. [EMAIL PROTECTED], Vincent Ambrose [EMAIL PROTECTED], Marty Anker [EMAIL PROTECTED], Derrick E Batts [EMAIL PROTECTED], Randall Beeman [EMAIL PROTECTED], walter bianchi [EMAIL PROTECTED], Christopher Buckner [EMAIL PROTECTED], Devin Callis [EMAIL PROTECTED], Eric Shelly Canfield [EMAIL PROTECTED], Scott Cilley [EMAIL PROTECTED], Roy Sandy Clark [EMAIL PROTECTED], Aaron Crowl [EMAIL PROTECTED], Larry Cullison [EMAIL PROTECTED], Kenneth Ray Cummings [EMAIL PROTECTED], Wayne Fitzwater [EMAIL PROTECTED], Ronald Fortmeyers [EMAIL PROTECTED], Edward Foxwell [EMAIL PROTECTED], Ed Mary Friend [EMAIL PROTECTED], Arnold Geist [EMAIL PROTECTED], Steve Gibson [EMAIL PROTECTED], Linda Gordon [EMAIL PROTECTED], David Gregory [EMAIL PROTECTED], Alan Hillman [EMAIL PROTECTED], Craig Hostetter [EMAIL PROTECTED], William Barbara Johnson [EMAIL PROTECTED], Alan Jones [EMAIL PROTECTED], Diana Junkins [EMAIL PROTECTED], Steven Lilley [EMAIL PROTECTED], Gary Lyons [EMAIL PROTECTED], Tammy Mattingly [EMAIL PROTECTED], Frank May [EMAIL PROTECTED], Bern McCourt [EMAIL PROTECTED], Tyrone McCrobie [EMAIL PROTECTED], Tom Parks [EMAIL PROTECTED], Frank A Peters [EMAIL PROTECTED], Micheal Pitman [EMAIL PROTECTED], Tom Rogers [EMAIL PROTECTED], Russell Rosendale [EMAIL PROTECTED], Bill Shupe [EMAIL PROTECTED], Jim Silbaugh [EMAIL PROTECTED], Adrian Spiker [EMAIL PROTECTED], George Flemming Streaker [EMAIL PROTECTED], Tony doris Sullivan [EMAIL PROTECTED], Isaac Thompson [EMAIL PROTECTED], Sam Wachter [EMAIL PROTECTED], Kenneth Whitehair [EMAIL PROTECTED], Michael Williams [EMAIL PROTECTED], barbara winters [EMAIL PROTECTED], Tina Zou [EMAIL PROTECTED] Subject: Big Virus Date: Mon, 12 May 2008 11:49:39 -0600 MIME-Version: 1.0 Content-Type: multipart/alternative; boundary==_NextPart_000_0025_01C8B4BB.B6A77150 X-Mailer: Microsoft Office Outlook 12.0 Thread-Index: Aci0WIynwxX8urgnQlCzooLTmo2hDw== BIG virus coming I checked with Norton Anti-Virus, and they are gearing up for this virus! I checked snopes.com, this morning, and it is for real!! Get this E-mail message sent around to your contacts ASAP. PLEASE FORWARD THIS WARNING AMONG FRIENDS, FAMILY AND CONTACTS! You should be alert during the next several weeks. Do not open any message with an attachment entitled 'POSTCARD,' regardless of who sent it to you. It is a virus which opens A POSTCARD IMAGE, which 'burns' the whole hard disc (C drive) of your computer. This virus will be received from someone who has your e-mail address in his/her contact list. This is the reason why you need to send this e-mail to all your contacts. It is better to receive this message 25 times than to receive the virus and open it. If you receive a mail called' POSTCARD,' even
Re: [QUAD-L] Paraplegic list??
I belong to one on msn but there isn't any activity ever. The little bit of activity it used to get wasn't much of a help. I get so many more answers here. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, May 12, 2008 10:55:58 AM Subject: [QUAD-L] Paraplegic list?? Does anyone know of a good paraplegic emailing list? Luke c-5/6 incomplete 7 1/2 yrs post Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.
Re: [QUAD-L] My name's Luis
Hi luis, I'm Stacy. I became paraplegic in May of 2001 from a type of encephalitis that put me in a coma and made me a quad. I regained my upper body but from below my chest down is paralyzed. Last year I got osteomyelitis in my spinal column and had to get rods from T 7 down to my pelvis. I have had some complications and going back in for more rods. I'm in no way complaining, just letting you know a bit about me. I live in Maryland on the coast and will have my 34th bday in July. I live alone and drive a van that has hand controls and a captains chair that turns around so I can transfer into it. I am a mommy of a beautiful cat. Welcome to the list. There are people here from all walks of life and a ton of information is exchanged here. I hope you learn as much as I have from these informative people. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, May 6, 2008 6:44:33 PM Subject: [QUAD-L] My name's Luis I live in Hoboken NJ and have Progressive MS now for about 3 years. I was dxd in 1990 but the symptoms can be traced back to 1976 July 4 Bicentennial Year, while watching the tall ships parade sailing along the Hudson river, I felt dizzy and lost vision of left eye for a few minutes, my father took me to the shade of a tree and wet papers an placed them on my head, in 15 minutes I felt some relief. I forgot about the case, began to fall specially in the subway on my way to work in Brooklyn NY. Once I fell and hit my head and side of face, stopped short of a few feet from the rails. These problems forced me to put my papers in after 34 years teaching at BrooklynTech HS. Is now 11 years I don't work and my condition's declined quite rapidly, can use right hand and drive short distances. Using chair 24/7 and I AM NOT ONE OF THOSE THAT SAY WHEELCHAIR BOUND I see the wheelchair as a liberation that allows me to move and participate whenever I feel strong enough and is not too cold and/or windy. Summer time heat and humidity are my nemesis so if you come to see there are few perfect days I can really enjoy. Practice a few hobbies: Amateur Radio call's N2GKI, I am a short wave listener, collect stamps with full cancellation, read avidly and at times when my head allows it I play chess, nothing spectacular. I don't force myself to do anything, I don't compromise with anybody, my time is MINE and only do what I am sure I can do w/o suffering consequences. I like to hear from other MSers, quads, paras etc. There is always something we can learn in those exchanges. Hope to hear from some, lots of Health, Luis M Méndes Hoboken NJ My memory's not as sharp as it used to be. Also, my memory's not as sharp as it used to be. _ IN SOLIDARITY 'You don't stop laughing when you get old, You get old when you stop laughing!!' LiveWell * Laugh Often * Love Much! __ Some people perceive our life to be almost worse than it's worth living. Condescending attitude piss me off! ___ Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Annual Free Stock Market Game
How does this work? There isn't any information posted and I don't want to sign up for something I don't know anything about. Do you have to have a portfolio already? Stacy - Original Message From: Mark Jackson [EMAIL PROTECTED] To: Danny Hearn [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, May 5, 2008 2:55:24 PM Subject: RE: [QUAD-L] Annual Free Stock Market Game I'll see you there and keep you posted. Mark Jackson RollinOn From: Danny Hearn [mailto:[EMAIL PROTECTED] Sent: Friday, May 02, 2008 10:55 AM To: quad-list@eskimo.com Subject: [QUAD-L] Annual Free Stock Market Game Hi , I just got a reminder to sign up again for this years free Stock Market Game. It was a lot of fun last year and you can win cash and prizes. I think It may be changed a bit but I was wondering if any of you are playing this year? I think it was Pete who got us all playing last season. Dan H. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.8/1415 - Release Date: 5/5/2008 6:01 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.8/1415 - Release Date: 5/5/2008 6:01 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] wheelchair monologue
They guy is whiny. I couldn't stand to listen to him. Most of us try to blend in instead of wanting someone to feel sorry for us. I go grocery shopping by myself all of the time. I put my transfer board on my lap and put a basket over that. If I need to buy something that is too big to fit, I ask someone up front to get it for me when I am ready to pay. I go to the same store most of the time and they are very helpful. I've gotten to know a few of the people there and they often ask me if I need anything. People often ask me if i need help when they are walking by and see my ramp open while I am transfering into my chair. I just tell them I got myself here and I am fine but thank you so much for asking. Many times we get into a discussion of some sort which I enjoy. I just blend in. I smile, make eye contact, joke about myself, etc. No reason for me to try to explain to people how life is like that guy did in the monolouge. If they make judgements because of my chair then I have no time for them. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, April 27, 2008 6:14:29 PM Subject: Re: [QUAD-L] wheelchair monologue I understand what you say about having to ask for help. When I go to concert my friend drops me off and has to park, which takes a long time. When I went to the Bon Jovi concert last week, one of the doorkeepers saw me almost at the end of the long line outdoors and came and got me and let me in and then another person took me to my wheelchair seating. It's unfortunate that grocery stores don't have someone to help you like department stores usually do. It seems as though they are cutting back on staff and it's harder now to sometimes even find salespeople in any store, but usually I do. Persons are usually willing to help if you ask. You have to search for a salesperson. Elevators are especially difficult, I just have to wait till somebody is walking by to ask for help to push the buttons. I agree with everything that you said Joan. Everyone wants to see my yorkie, which makes a good opportunity to ask for help. On another note, my yorkie , Zoe just ran out the front door to the end of the block to a busy intersection and four cars had to slam on their brakes. My aid could have been bringing back a dead dog. She is really bad about running out the front door and it doesn't matter what you say she will not stop. She used to just go to the street and now she goes to the intersection. . Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L]
of the world that our military isn't even in? Why has welfare tripled this year. Not welfare for people, but welfare for corporations. We deposit billions of dollars into numbered swiss bank accounts and it comes under foreign aid. Will anyone ask these questions at a presidential debate? john - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Friday, April 25, 2008 4:46:30 PM Subject: Re: [QUAD-L] tat That could easily be the way to clear the shelves of stale merchandise and receive maximum dollars. The the shelves can be stocked with new/fresh rice grown in the USA, eh? Best Wishes In a message dated 4/25/2008 2:24:35 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Somebody in our government needs to make a public announcement that we do not have a shortage of rice in this country. The recent media coverage has created a bit of a panic and now Rice is flying off the shelves -- not to mention that some stores are elevating the price to take advantage of the hysteria. BJ's (a store like Sam's Club) was completely sold out this afternoon. According to the president of the rice growers Association, the silos are full and there is no shortage here. We really need leadership, and not tomorrow. Quadius On 4/25/08, Stacy Harim [EMAIL PROTECTED] wrote: Have you watched the news? It is. Sams, Cosco, etc are limiting how much rice you can buy b/c of food shortages resulting from rising food costs. Ethanol is making corn, flour, wheat, rice, etc more expensive and then it transfers over to dairy and meats because those animals eat feed. Can you imagine when more people are driving cars fueled by ethanol where we will be with groceries. Stacy - Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. - Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site. * * * * Re: [QUAD-L] tat Eric W Rudd * Re: [QUAD-L] tat wheelchair * Re: [QUAD-L] tat t crook * Re: [QUAD-L] tat Stacy Harim * Re: [QUAD-L] tat t crook * Re: [QUAD-L] tat Stacy Harim * Re: [QUAD-L] tat Quadius * Re: [QUAD-L] tat wheelchair * Re: [QUAD-L] tat John S. * Re: [QUAD-L] tat oconnelldb * Re: [QUAD-L] tat David K. Kelmer * Re: [QUAD-L] tat DiannaL767 * Reply via email to Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.5/1398 - Release Date: 4/25/2008 2:31 PM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.5/1398 - Release Date: 4/25/2008 2:31 PM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] tat- the price we pay for freedom...
We have had worthy independent run in the past but what ends up happening is they end up taking votes and affecting which democrat or republican is running. I wish people took the independs seriously because they usually come in with good ideas from both sides. Stacy - Original Message From: RollinOn [EMAIL PROTECTED] To: t crook [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, April 21, 2008 12:09:19 PM Subject: RE: [QUAD-L] tat- the price we pay for freedom... It would help if the media actually asked important questions but it's the s.o.s! We don't really know any details of how any candidate is going to fix Health, Economy, Gas prices, and the housing crisis. I don't know what to do, I mean you got McCain who has 1 story Hillary is making up stories and Obama doesn't really have any. I know I don't want McCain. I know I don't want Hillary. I like Obama but I liked Bush when he first ran and that was mistake I wish I had back. I wish we could get a super independent also Tim but I really think the majority of people don't care and just vote with the flock. Mark Jackson RollinOn From: t crook [mailto:[EMAIL PROTECTED] Sent: Monday, April 21, 2008 9:50 AM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] tat- the price we pay for freedom... Very well put my friend! - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, April 21, 2008 9:37:29 AM Subject: Re: [QUAD-L] tat- the price we pay for freedom... True Tim, but what can you expect for almost a billion dollars, these days, (lol). What wants to lay their life on the table for the world to see. The job doesn't pay that much and the USA is not considered the same powerhouse it was once considered as we depend on too many other countries for survival. But we are a great country for producing wheat, rice and corn. We gotta be much better than that for survival. Best Wishes In a message dated 4/21/2008 9:33:38 A.M. Central Daylight Time, [EMAIL PROTECTED] writes: Well none of the candidates have received any of my money. Not to open the political can of worms; but just about everyone I talk to feel (including myself) that we have three poor choices for president. We need a super independent to step up. ~peace~ Tim Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.2/1389 - Release Date: 4/21/2008 8:34 AM No virus found in this outgoing message. Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.2/1389 - Release Date: 4/21/2008 8:34 AM Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Bed...
I have a generic hospital bed as well. I have an alternating pressure pad on my bed. I expect the medical equipment place to come get the pump at any time since medicare wont pay for it unless you have breakdown and mine was closed up a year ago. I have seen them online for between 25 to as much as 50 bucks. I had my own that medicaid paid for before that but it broke. Anyhow I haven't gotten a sore from the bed but from the cushion on my chair so the pump worked good. I even have slept on the same side for as much as a week straight. I have a hospital sheet on my bed that ended up at home with me from the ride home. I use liquid fabric softner on it. I usually wash the sheet and put it back on the bed because I really hate folding sheets. I alternate sheets if I know I wont get back to making the bed. Well the point is, fabric softner makes a world of difference. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, April 24, 2008 6:15:03 PM Subject: [QUAD-L] Bed... A very good point! I also like to hit the resale shops for almost new stuff. It can both interesting and very challenging. Hospital sheet are washed at both high temperatures and with plenty of chemicals too. No wonder they are so rough N tough. Best Wishes In a message dated 4/24/2008 5:02:58 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Tammy Lou, Although the type of bed used is very important, the type of linen can be just as important. When I was in the hospital, their sheets was so rough that it was difficult for me to lay on them. I had to be turned more than usual. I find that using sheets with a high thread count can be very comforting. The higher the thread count, the more costly the sheets are. I try to get a thread count of 500 to 800. Eight hundred thread count sheets are very expensive, but they are smooth as butter. Although my mattress is just a vinyl covered mattress, nothing special, the sheets I put on it, makes a world of difference. Just keep this in mind when thinking about the comfort of your bed. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Bed
I use a bed pad just in case my catheter doesn't drain right. Easier to take that off of the bed then change everything. I use a blue pad as well because I sleep all night and one doesn't seem to be enough if my catheter gets pinched or doesn't drain right. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, April 24, 2008 8:15:54 PM Subject: [QUAD-L] Bed Thank you Naomi for your response. Have you ever been doing something for a very long time and then realize how stupid it just might be? I do make sure that I have the highest thread count sheets possible but I always use a square bed pad under my butt because it's easier to be moved from side to side and to be pulled up. Now that you brought it to my attention it does seem pretty silly to use the bed pad. Do you guys use a bed pad and if not how do you get your caregivers to pull you from one side to the other when they turn you? Take care and play nice Tammie Lou C6 complete quadriplegic 13 years post chippertue.com Chippertue's World There is a difference between sympathy and empathy, sympathy is feeling for an empathy is feeling with. Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] tat
Have you watched the news? It is. Sams, Cosco, etc are limiting how much rice you can buy b/c of food shortages resulting from rising food costs. Ethanol is making corn, flour, wheat, rice, etc more expensive and then it transfers over to dairy and meats because those animals eat feed. Can you imagine when more people are driving cars fueled by ethanol where we will be with groceries. Stacy - Original Message From: t crook [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, April 21, 2008 9:37:54 AM Subject: Re: [QUAD-L] tat Isn't money always the issue? Money shouldn't be an issue; with such a booming economy haha! I personally would probably feel guilty for spending money on ink right now. I swear my grocery bill is up by 30% for the same goods. ~peace~ Tim - Original Message From: Stacy Harim [EMAIL PROTECTED] To: t crook [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, April 20, 2008 11:59:21 AM Subject: Re: [QUAD-L] tat I've been wanting another one in a big way but don't have the money. I got one on my ankle years ago before I was paralyzed and its always covered now with those ugly stockings. I just want one to memoralize my brother that passed away a few years ago incorperated in some way with what has been happening to me throughout the last few years showing my strength with how I am chosing to deal with it. Stacy - Original Message From: t crook [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, April 17, 2008 11:57:00 AM Subject: Re: [QUAD-L] tat Hey Eric- My cousin Darren has a couple of tattoo studios here in Iowa. A few years ago VH1 Motley Crue had a tatt contest and show called Tattoo You. One of the artist's (Josh) at Slingin' Ink has all of the Motley Crue album covers tattooed on him by Darren. Josh and Slingin' Ink won the contest, VH1 came to Iowa and filmed at the studio for the show. Darren has done all but two of my tatts- man now I hungry for ink! Slingin' Ink http://www.slinginink.com/ Tim my site my tatt's- www.geocities.com/onemofortom - Original Message From: Eric W Rudd [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, April 16, 2008 8:18:23 PM Subject: [QUAD-L] tat i want a tat over left pectoral of hands rippin heart, i may pay 4 flight... Eric W Rudd [EMAIL PROTECTED] Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Stuntman's Anniversary
Happy anniversary Tim. I hope you have many many more. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, April 19, 2008 9:40:50 PM Subject: Re: [QUAD-L] Stuntman's Anniversary It sure would fun to have a big party with everyone. Dana In a message dated 4/19/2008 6:22:54 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Tim had a party and we weren't invited?? Best Wishes Tim...the snow has finally melted. W In a message dated 4/19/2008 5:29:56 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Happy anniversary Tim! May you have many more and truly enjoy this one. Hope you're having a great day. Dana Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] tat
I've been wanting another one in a big way but don't have the money. I got one on my ankle years ago before I was paralyzed and its always covered now with those ugly stockings. I just want one to memoralize my brother that passed away a few years ago incorperated in some way with what has been happening to me throughout the last few years showing my strength with how I am chosing to deal with it. Stacy - Original Message From: t crook [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, April 17, 2008 11:57:00 AM Subject: Re: [QUAD-L] tat Hey Eric- My cousin Darren has a couple of tattoo studios here in Iowa. A few years ago VH1 Motley Crue had a tatt contest and show called Tattoo You. One of the artist's (Josh) at Slingin' Ink has all of the Motley Crue album covers tattooed on him by Darren. Josh and Slingin' Ink won the contest, VH1 came to Iowa and filmed at the studio for the show. Darren has done all but two of my tatts- man now I hungry for ink! Slingin' Ink http://www.slinginink.com/ Tim my site my tatt's- www.geocities.com/onemofortom - Original Message From: Eric W Rudd [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, April 16, 2008 8:18:23 PM Subject: [QUAD-L] tat i want a tat over left pectoral of hands rippin heart, i may pay 4 flight... Eric W Rudd [EMAIL PROTECTED] Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Medical Help
When I was first paralyzed and came home, I didnt know what was what and not one to run to the hospital. I was not driving and had to have two days notice to get transportation and not able to get into friends cars. I wasn't about to pay for an ambulance unless I was sure it was a problem. I know that there are things that I questioned only to find out its a normal thing. I was freaked out about swelling to find that it's normal. My pain and spasms gradually got worse only to find out that pain and spasms are normal. I did go to the doctor about those things but it is nice to know to throw the questions out there to see how 'normal' they are according to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, April 18, 2008 2:41:06 PM Subject: [QUAD-L] Medical Help It really amazes me at the number of people who write to this list asking for medical advice or if they should go to the doctor to get something checked out. As helpful as everyone on this list tries to be, I don't think anyone here can offer real medical advice to someone without knowing their medical history or the severity of the medical issue in question. Maybe it's just me, but if ANYTHING is out of the ordinary for me, I call the doctor's office and schedule an appointment, unless of course, I need to go to emergency. I would think that after most of what us quads have been through, we should not hesitate to get medical attention. It could mean the difference between life and death. If it isn't anything that severe, at least we've had it checked out and know what's going on. At least that's my two cents worth. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
[QUAD-L] hospitalization insurance
I dont have enough money to pay for the insurance. I am barely making it as it is. - Original Message From: Merrill Burghardt [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Sunday, April 13, 2008 10:31:37 PM Subject: RE: [QUAD-L] 20th anniversary You need hospitalization insurance to in the least make days pays as you add up your cash. I’ve found Physician’s Mutual best for many reasons. If you know you will be using it annually these policies are well worth the effort. Merrill From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Sunday, April 13, 2008 6:32 PM To: Quadius; quad-list@eskimo.com Subject: Re: [QUAD-L] 20th anniversary I totally agree with the post. I'm coming up on my 7th memorial weekend. It seems almost every spring it has been something with me. I had bladder surgery that didnt work, pressure sore surgery twice on the same one and both in the spring, last year infection in my spinal column which required major amounts of rods and this spring a screw has broken through the vertebrae and is rubbing the one above it. Another surgery! I keep going and take it day by day. People keep telling me how strong I am and they dont know if they could do it. I just tell them that if they had to, they would. It the typical fight or flight. Deal with it and move on or curl up in a corner and live the rest of your life in a nursing home which isnt an option for me. I'm not knocking those in a nursing home b/c I realize there is no choice for some but I was lucky in finding a way to do it on my own so I did and will fight to keep my independence. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:20:12 PM Subject: [QUAD-L] 20th anniversary Last year I wanted to write a blog about my 12th anniversary, but I didn't feel that inspired at that time. Now I'm trying to write one about my 13th, even though I am about a week and a half late. It seems that I copied a message from someone on this list to give me inspiration for this year's blog. I found it to be one of the best entries I had read regarding quad milestones and I am seriously considering using it as a format for my blog. I, however, would like to find out who it is, because for some reason I didn't copy down the name. The anniversary date of the person's accident was April 1, 1988. Is that person still on the list or does anyone have an idea who this might be. Below is a small excerpt of what I copied. Finding things in life I like or dislike, in other words its like being reborn all over again, minus learning to walk. Over these years I have been asked How do you do it? or I'm not sure what I would do if that happened to me. How do I do it? Easy, I live each day as it comes, take what is given to me and accept it for what it is. As to the other question, you either choose to live life to the fullest or wither up, the latter for me is not an option. I also have some pretty cool disabled friends that keep me focused along the way. Thanks, Quadius __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] 20th anniversary
I totally agree with the post. I'm coming up on my 7th memorial weekend. It seems almost every spring it has been something with me. I had bladder surgery that didnt work, pressure sore surgery twice on the same one and both in the spring, last year infection in my spinal column which required major amounts of rods and this spring a screw has broken through the vertebrae and is rubbing the one above it. Another surgery! I keep going and take it day by day. People keep telling me how strong I am and they dont know if they could do it. I just tell them that if they had to, they would. It the typical fight or flight. Deal with it and move on or curl up in a corner and live the rest of your life in a nursing home which isnt an option for me. I'm not knocking those in a nursing home b/c I realize there is no choice for some but I was lucky in finding a way to do it on my own so I did and will fight to keep my independence. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:20:12 PM Subject: [QUAD-L] 20th anniversary Last year I wanted to write a blog about my 12th anniversary, but I didn't feel that inspired at that time. Now I'm trying to write one about my 13th, even though I am about a week and a half late. It seems that I copied a message from someone on this list to give me inspiration for this year's blog. I found it to be one of the best entries I had read regarding quad milestones and I am seriously considering using it as a format for my blog. I, however, would like to find out who it is, because for some reason I didn't copy down the name. The anniversary date of the person's accident was April 1, 1988. Is that person still on the list or does anyone have an idea who this might be. Below is a small excerpt of what I copied. Finding things in life I like or dislike, in other words its like being reborn all over again, minus learning to walk. Over these years I have been asked How do you do it? or I'm not sure what I would do if that happened to me. How do I do it? Easy, I live each day as it comes, take what is given to me and accept it for what it is. As to the other question, you either choose to live life to the fullest or wither up, the latter for me is not an option. I also have some pretty cool disabled friends that keep me focused along the way. Thanks, Quadius __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] SLEEP- Nature's Order
I'm like you. I require more sleep now. Its very difficult for me to fall asleep but when I do, I'm out. For a long time I wasn't able to sleep at all then started taking Ambien which gave me a few hours then I woke up for a couple then back to sleep for a while. I've seen that infomercial and its bogus if its the one i'm thinking about. A news program went after him to question him and he completely avoided talking. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: [EMAIL PROTECTED] [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:37:32 PM Subject: Re: [QUAD-L] SLEEP- Nature's Order I was up late one night and happened to stop the show I was watching on my DVR just in time to catch an infomercial that was discussing a cure for insomnia. I know infomercials are always notorious for hyping things, but this particular one was selling a book that had common remedies for problems. This particular one mentioned just smelling some sort of coffee. I sure would like to know what type of coffee that is, because it would nice to be able to sleep when I should be. I am lucky enough not to suffer from chronic pain like many of you. Yes I have pain, but it's obviously not nearly as bad as the majority of people on this list suffer from. My heart goes out to you and I am seriously hoping that my pain doesn't get any worse. Right now it's really bad during the winter, but after I get up and get used to being up, it diminishes significantly. As for me, when I really need to sleep I take Benadryl. It usually gives me about four hours straight and then I'm able to sneak a couple of hours here and there. I feel much better when I get about seven hours sleep, but that rarely happens any longer. Prior to injury I usually got about five hours, but I was very active and didn't seem to require the normal eight hours of sleep. Quadius On 4/12/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: Sleep is the essence of life. It is necessary to life. Sleep occurs early during the beginning of life and remains a very important element as we grow and mature. During natural sleep, our bodies grow and natural chemicals are both produced and released into our bodies, during the process of natural sleep. The lack of natural sleep also can produce unnatural effects on our bodies and minds. For those still interested, check out GOOGLE for nature sleep. Best Wishes In a message dated 4/12/2008 2:14:06 A.M. Central Daylight Time, [EMAIL PROTECTED] writes: I am so sorry John I will pray for you. I can see you're so uncomfortable as a result of your injury that was not your fault of the hospital's. I wish your chair with comfortable for you. You have trouble sleeping just like I do. It seems like a lot of us do I guess it is the quad thing, just like getting really cold when we get in bed. I hope the new sleeping medication my sleep doctor was talking about that is not on the market yet will be more of a benefit for us, I don't know anything about it. I'm going to ask more about it the next time I go. they want me to buy a light to turn on to get my rhythm normalized. Have you ever heard of and do you think it works? They are about $100 I think she just gave me some more information as I lost another, they really want me to buy one. I don't want to spend the money if it does not work. They think I'm affected by not having some light causing me not to sleep. Dana . Dana It's Tax Time! Get tips, forms and advice on AOL Money Finance. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] 20th anniversary
Thanks Paul. That is kind. I wish everyone were that way. So many with minor problems find a way to complain about so much such as my own mother who had to get two toes amputated about a month ago. She's in rehab now and is constantly complaining to me. I just want to shake her. She acts so worried about me but then acts like her problems are so much bigger than mine. I sympathize but at least she can walk even if it's not well. I have it so much better than so many of you on the list and I respect what you all go through in a day. I was a quad wish absolutely no movement for a short time and now paraplegic so I know how bad it can be and thank God everyday that I am not. When I first became sick I just didnt get up one day and woke up about a month later from a coma. I realize that if I didnt have a roommate to call 911,I would be dead and am so grateful that I wake up every day. Its sad that it took so much for me to appreciate my life even if it is pretty bad at times. When it's bad, its bad and I dont even bother complaining to anyone about it. I put on a face when I'm not doing well because I don't want to bring down people around me and don't want them to feel bad for me. They have their own issues to deal with, I don't want to bother them with mine. My mom's friend gave me a card for my graduation from high school and it's the only one I remember. I will never forget his words God rest his soul. He said life is a do it yourself project I think that says it all. Stacy - Original Message From: Paul Jacobson [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED]; Quadius [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, April 13, 2008 9:40:35 PM Subject: Re: [QUAD-L] 20th anniversary I don't know you Stacy. But I am inspired, respectful and incredibly appreciative for your words. Clearly, you model the daily drive we all should strive for in making each day count. Good Luck and thank you Stacy! Paul C5/6 Complete Injured 11/05/03 San Diego, CA - Original Message - From: Stacy Harim To: Quadius ; quad-list@eskimo.com Sent: Sunday, April 13, 2008 6:31 PM Subject: Re: [QUAD-L] 20th anniversary I totally agree with the post. I'm coming up on my 7th memorial weekend. It seems almost every spring it has been something with me. I had bladder surgery that didnt work, pressure sore surgery twice on the same one and both in the spring, last year infection in my spinal column which required major amounts of rods and this spring a screw has broken through the vertebrae and is rubbing the one above it. Another surgery! I keep going and take it day by day. People keep telling me how strong I am and they dont know if they could do it. I just tell them that if they had to, they would. It the typical fight or flight. Deal with it and move on or curl up in a corner and live the rest of your life in a nursing home which isnt an option for me. I'm not knocking those in a nursing home b/c I realize there is no choice for some but I was lucky in finding a way to do it on my own so I did and will fight to keep my independence. Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 12, 2008 4:20:12 PM Subject: [QUAD-L] 20th anniversary Last year I wanted to write a blog about my 12th anniversary, but I didn't feel that inspired at that time. Now I'm trying to write one about my 13th, even though I am about a week and a half late. It seems that I copied a message from someone on this list to give me inspiration for this year's blog. I found it to be one of the best entries I had read regarding quad milestones and I am seriously considering using it as a format for my blog. I, however, would like to find out who it is, because for some reason I didn't copy down the name. The anniversary date of the person's accident was April 1, 1988. Is that person still on the list or does anyone have an idea who this might be. Below is a small excerpt of what I copied. Finding things in life I like or dislike, in other words its like being reborn all over again, minus learning to walk. Over these years I have been asked How do you do it? or I'm not sure what I would do if that happened to me. How do I do it? Easy, I live each day as it comes, take what is given to me and accept it for what it is. As to the other question, you either choose to live life to the fullest or wither up, the latter for me is not an option. I also have some pretty cool disabled friends that keep me focused along the way. Thanks, Quadius __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)
Do you have any concerns with circulation and birth control? I'm afraid to death to get birth control with my paralysis. Stacy - Original Message From: Debbie Hamilton [EMAIL PROTECTED] To: Maria [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Saturday, April 12, 2008 7:14:54 PM Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) I am 49 years old. I didn't start bleeding until 14 months after my injury. And then it came back. It was awful. My husband had to deal with the mess and also my caregivers. My OB/GYN decided to put me on Depo-Provera. I get the shot every three months, and I don't have any periods at all. It has been the best thing I could have ever done! Ask your doctor about it. It's worked great for me. Debbie C4 incomplete/April 2005 - Original Message From: Maria [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, April 8, 2008 7:55:16 PM Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) I am 42 years old, and after my accident in December of 2000, I didn't have my period for seven months or so. Of course, when I would mention this to my husband back then, he would say let's not talk about it. Maybe it will never come back. Well, shortly after that it did come back. Now, I wish it would go away. Couple of things. One is that I have a 33-year-old caregiver, who had to have a total hysterectomy due to cancer. She is cancer free and we are always joking about her not having a period anymore and how I wish I didn't. Also, I never thought my husband would be putting in a tampon for me, much less showing a caregiver how to do it. I use a tampon during the bowel and shower program. Thank God we have a good sense of humor. I have to wonder if I'm looking forward to menopause. As I'm normally cold, and I wonder how the hot flashes are, besides the lack of bleeding. I guess I'll have to wait and see. Take care -- Maria C5/6 On Tue, Apr 8, 2008 at 9:41 AM, [EMAIL PROTECTED] wrote: Ladies, I was 17 when I was injured and didn't get my period for 4 months because your body is in shock-I was told. Then I had normal, for me, periods. When I turned 40 I started have crying spells and being extremely exasperated, I found out it was pre menopause. I had it for 10 years! Also, when I was first injured I would sweat like crazy. Sometimes just when I was in bed. I would have to sleep with towels all over my bed and my hair would be soaking wet. Then I went through a long spell when I only sweat when I was in my chair. I had to have my hair cut short and wear towel around my neck. I would need to change my top at least once a day. DATING WAS A CHALLENGE. I also went through college with sweat dripping on my term paper's. This was before computer's and if they got wet, I would have to type them all over again. I sweat like this from 1973 till 1988 when I had ryzodomy surgery. An uncredited side affect from the surgery was I never sweat again AT ALL. I hope this helps. Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey Planning your summer road trip? Check out AOL Travel Guides. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] America's Defecit and Also the IRAQ war cost.
I pretty much don't agree with anything this administration is doing. Our country has had it's back turned on since we went to war. Our own people are hurting in a big way and our problems can't be resolved. Whomever becomes president has a big job on their hands and I know I wouldn't want that job for the world. We need to keep our noses out of other countries and focus on this one. I agree with you about the payments. I didn't agree with when he gave out checks his first year as president and the tax cuts dont need to be going to the wealthy. Bush said it will basically trickle down but doesn't realize that a majority of the wealthy invest their extra money for their own benefit. If it wants tax cuts to go back into the economy then it needs to be given to people that are middle class because they are the ones that need the money and will most likely spend it and put it back into the economy. I have a huge concern about our future. I'd love to be able to know that I will be secure in the future but I just don't know if it will happen. Stacy - Original Message From: Danny Hearn [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, April 11, 2008 2:26:48 PM Subject: [QUAD-L] America's Defecit and Also the IRAQ war cost. Hey everyone, I was watching some program last night that said we are spending 5,000 dollars every second 7 days a week on the IRAQ war. In addition to that ---the American defecit is costing about a Million Dollars a Minute JUST FOR THE INTEREST PAYMENT ONLY !Why can't our government cut back for a while and PAY down some on that defecit so a large part of our tax money don't go to DEFECIT INTEREST payments ?? Man if we ran OUR households in this way-we would all be bankrupt. It's really sad the shape we are getting into- We all must balance our checkbooks or be homeless Do any of you think or worry about our future with the needless pork and waste our congress keeps approving??? I know I do. Dan H. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Am idol
I was thinking the same thing while I was watching the program. It would be nice if they did including the proceeds from the local commericals. I wonder if they did because I have it in my head that more people tuned in for gives back than regular idol because of the cause. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Friday, April 11, 2008 3:22:23 PM Subject: Re: [QUAD-L] Am idol It was only aired on Fox Network, but everything is traced by to the production company that owns everything... 19 Entertainment. Best Wishes In a message dated 4/11/2008 12:25:44 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Basically the premise of my blog is that if Fox, news Corp., were really concerned about giving money to charity they would not have been showing paid commercials during Tuesday night's broadcast. I have searched throughout the Internet to determine if the proceeds from the advertisements were turned back in to Idol gives back, but so far haven't been able to find anything. If someone does, please let me know before I put my foot in my mouth. Enough of my drivel, I better get going. Take care everyone, Quadius Planning your summer road trip? Check out AOL Travel Guides. __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)
I certaintly wish I didn't have mine. I'll be 34 in July and with the condition of my back with all the rods, I've decided I don't want to bare children. I hate not knowing exactly when it's coming and then when it does come, I have a mess to clean up a lot of times b/c I cant feel that it's come. I do wear depends in case my catheter leaks and make sure not to miss a day when I am expecting my period. Stacy - Original Message From: Maria [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, April 8, 2008 10:55:16 PM Subject: Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) I am 42 years old, and after my accident in December of 2000, I didn't have my period for seven months or so. Of course, when I would mention this to my husband back then, he would say let's not talk about it. Maybe it will never come back. Well, shortly after that it did come back. Now, I wish it would go away. Couple of things. One is that I have a 33-year-old caregiver, who had to have a total hysterectomy due to cancer. She is cancer free and we are always joking about her not having a period anymore and how I wish I didn't. Also, I never thought my husband would be putting in a tampon for me, much less showing a caregiver how to do it. I use a tampon during the bowel and shower program. Thank God we have a good sense of humor. I have to wonder if I'm looking forward to menopause. As I'm normally cold, and I wonder how the hot flashes are, besides the lack of bleeding. I guess I'll have to wait and see. Take care -- Maria C5/6 On Tue, Apr 8, 2008 at 9:41 AM, [EMAIL PROTECTED] wrote: Ladies, I was 17 when I was injured and didn't get my period for 4 months because your body is in shock-I was told. Then I had normal, for me, periods. When I turned 40 I started have crying spells and being extremely exasperated, I found out it was pre menopause. I had it for 10 years! Also, when I was first injured I would sweat like crazy. Sometimes just when I was in bed. I would have to sleep with towels all over my bed and my hair would be soaking wet. Then I went through a long spell when I only sweat when I was in my chair. I had to have my hair cut short and wear towel around my neck. I would need to change my top at least once a day. DATING WAS A CHALLENGE. I also went through college with sweat dripping on my term paper's. This was before computer's and if they got wet, I would have to type them all over again. I sweat like this from 1973 till 1988 when I had ryzodomy surgery. An uncredited side affect from the surgery was I never sweat again AT ALL. I hope this helps. Bobbie Humphreys C-5,6.7 motocross jumping accident in 1973 at 17 Married to Sweet Pete Living in Parsippany, New Jersey Planning your summer road trip? Check out AOL Travel Guides. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.)
Hi, It was six months before I got my period after I was paralyzed from encephalomyelitis. I was told that your body goes into some sort of shock and I was also on a good amount of steriods. They also made my hair fall out. After that I had weak periods for quite a long time and now I get a really bad one every few months. The doctors put me on antideppresants when I began recovering from a coma so it was easier to deal with my recovery. I quit the antideppresants after a couple of years and was fine until I hurt my back again from osteomyelitis. I had a few spinal surgeries and my period quit again for a few months. I quess when the nerves get involved, it affects other parts of our body in pretty signifigant ways. I hope our advice and experiences help you, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, April 8, 2008 12:51:57 AM Subject: [QUAD-L] Another Ladies only question ! (Menopause and S.C.I.) Ladies, I am new at this, it has only been 1 yr. 8 mo. since my accident. And I can't seem to get a straight answer to my question. I am 40 and right after my accident my period stopped for a couple of months. Then I would have it 2 or 3 days then go 2 weeks then get it again. I just never know when it is going to come. My question is this: I am experiencing sweating on the right side of my head. Especially above my ear to my neck. The sweat just runs down my face. My scalp has been soaked most of the day. Also my right cheek is flushed. It comes and goes, right now I am in the drying out stage. Going to bed shortly and always wake up sweated (only on the one side) sometime during the night.. I have adjusted with my disability and have been at peace with it. My life has changed in so many ways, More for the good than the bad. My point is:I have not been depressed but lately my moods have been wacky and I cry over stuff that I normally would not. If you have any advice I would love to hear from you. Thanks Ladies! Shelly Get the MapQuest Toolbar, Maps, Traffic, Directions More! You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] Anybody nerve sensitive to noises?
I can feel it in my legs of all places and it hurts. I sometimes have sensation which is weird but so is the reason why I am paralyzed. Stacy - Original Message From: Merrill Burghardt [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, April 7, 2008 7:55:46 PM Subject: FW: [QUAD-L] Anybody nerve sensitive to noises? So many times there would be a sudden sound which hardly anyone would notice, but I JUMP inside as if to blast out of my skin. Even if I am prepared for a sound, my startle reflex is so strong but of course I’m C/5 and do not move. Merrill From: Danny Hearn [mailto:[EMAIL PROTECTED] Sent: Monday, April 07, 2008 4:20 PM To: [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Anybody nerve senitive to noises? Sudden loud noises like that seem to go directly into my bladder area in my lower abdomen, it hurts== I guess it has to do with our nervous system. Dan H. [EMAIL PROTECTED] wrote: Hi All, Dose it bother anybody else when someone else drops like sissor's on a tile floor? It goes right down my spine. Even someone crumpling up a piece of paper. Bobbie Planning your summer road trip? Check out AOL Travel Guides. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] rehab doctor/weight/everything etc....
i got ill that led to the paralysis a lil over a month before my bday. Stacy - Original Message From: David K. Kelmer [EMAIL PROTECTED] To: Danny Espinoza [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, April 5, 2008 3:30:53 PM Subject: RE: [QUAD-L] rehab doctor/weight/everything etc Hi Danny, I broke mine 45 days before my 23rd birthday. With Love, CtrlAltDel aka Dave C4/5 Complete - 31 Years Post Texas, USA Danny Espinoza [EMAIL PROTECTED] wrote: I broke mine 3 days before my 23rd birthday Danny Espinoza 25/m/California Occupation before accident - Network engineer / SR. Network security engineer Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://secureminds.us/ http://www.myspace.com/dannylnx From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, April 04, 2008 3:24 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] rehab doctor/weight/everything etc No. Broke my neck 3 days before my 18th birthday and 5 days before I was due to go in the Army. I'm a veteran of quadism. LOL In a message dated 4/4/2008 4:57:27 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Bill, Are you a veteran? Just curious Quadius (Billy) Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. Planning your summer road trip? Check out AOL Travel Guides. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] home from hospital- with 1st picc line -- yahoo ;-)
The couple of times I got a pic line, I had it done in the outpatient xray room at the hospital and came right home. No hospital stay at all. I'm glad you are home and I bet you were a bit freaked out after that mess. I bet you are glad you are home getting those meds verses the hospital. Stacy - Original Message From: Danny Hearn [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, April 5, 2008 4:11:21 PM Subject: [QUAD-L] home from hospital- with 1st picc line -- yahoo ;-) Hello again everyone ! I only had to spend 2 days in the hospital--- here is my short story of the kinda bad experience... the 1st night a nurse shot an empty siringe of air into my stomach, then said oh my gosh I forgot to put the heperin blood thinner in there. That kinda scared me but they said it would not hurt me. Then the same nurse was told to draw 2 large vials of blood for tests and 2 small vials--- well half thru she said oh my gosh hand on don't move... I forgot all the vials, and ran from the room,, then returned with more vials saying I'm so sorry all this is happening because i'm a very competent nurse. ( Me and my wife were getting scared and was not sure she was competent ! ) lol Then later the next shift nurse put in an IV for antibiotics and it blew my vein that night causing my arm to swell up very large and could not get a vein to work in my other arm after 3 or 4 tries. So then they let me just stay overnight, without any fluids or antibiotics and said they were giving me a PICC LINE the next day. Well they gave me a zanex to make me relaxed and the Lady came in and put the picc line in so easily with NO PROBLEMS ! I did'nt even feel a thing ! Thanks!!! to all who gave me advice about the PICC line--- A home care nurse came today and taught my wife how to give the antibiotics- flush and Etc. and we just finished our 1st home treatment.man it is so nice this way and probably safer than in the hospital with careless nurses. -- Thanks Again all ! now I will not be so scared of a picc line in the future. Dan H. C-6 St.Louis, Mo. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] Funny or bad taste
I agree. I make fun of my situation all of the time. It's what keeps me going and I thought that post was really funny. I can think of a few to add to the list of things that we can do that AB'S can't..lol. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Friday, April 4, 2008 5:16:17 PM Subject: Re: [QUAD-L] Funny or bad taste I agree with you. A person without a sense, cent or scent of humor is not human. Perhaps, this is one thing that separates us from animals and computers. Those without humor.. are doomed. Get some humor into your life! Best Wishes W In a message dated 4/4/2008 4:10:14 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Personally I thought it was funny. Then again I'm a quad and can see the humor in making fun of it every now and then. This reminds me of something someone posted in the mid-90s on a quad forum. It was entitled 10 reasons it sucks to be a quad. The one I remember the most was about a blowout. Quads fear a blowout above most everything else, they know it's not their tire that blowing. Quadius Planning your summer road trip? Check out AOL Travel Guides. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] rehab doctor/weight/everything etc....
I see my rehab doctor about every 3 months. He is also a spasticity doctor. I struggle with my weight. I was heavy before the chair, lost some then gained again a few times. I gained more after I broke my back because I dont get as much movement. I have to watch everything I eat to lose it and it's hard to watch everything I eat on such a strict budget but I try. It's mostly my belly and I am sure a lot of you can relate as there is no muscle control there. Stacy - Original Message From: t crook [EMAIL PROTECTED] To: q-list quad-list@eskimo.com Sent: Thursday, April 3, 2008 10:54:14 AM Subject: [QUAD-L] rehab doctor/weight/everything etc First of all- how many of you are excessively skinny? I have been told by my old physical therapist; that quads eventually go to one extreme or the other (skinny or heavy). I have been lean my whole life (including prior injury); but with years of atrophy I am just plain skinny. Second- I have not had a rehab doctor visit in about 17 years, I've just had periodic check ups with my family doctor. How often do you guy's see a rehab doctor? I am scheduled to see one the 10th of this month. Thanks- Tim c5-c6, 19 1/2 yrs. post my UPDATED quad site www.geocities.com/onemofortom You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals.yahoo.com/tc/blockbuster/text5.com
Re: [QUAD-L] Chair Repair
It takes forever for someone to come fix my chair as well. I have a manual chair and if something goes wrong, I usually end up going to the shop to get someone there to fix it. I've had the armrest break which is a terrible thing for me to help with my transfers and I have no balance so a risk of falling and I've also had one of my casters break on the weekend. That however, I was able to get someone down here to fix it and Medicare paid for it. I think a lot has to do with the companies you deal with. I've called Medicare about a couple of things. Have you tried calling them directly to see whats up? The company could use things as an excuse so they take time getting there. Just a thought. Stacy Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] assistance dog
I've had dogs growing up and know what it takes. It isn't easy thats for sure. They require a lot more attention than a cat which I have but it's also nice to have that friend that can help you out. I am alone alot and having a dog would be great for me for some company. They would give me a reason to get up in the morning which I dont have much of one to now except to go to the hospital to see my mom but that isn't going to be forever. Closing the door which is so hard for me to do would be amazing and when I have to push long distances and get tired to help pull me. Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, March 24, 2008 1:27:30 AM Subject: [QUAD-L] assistance dog When a disabled person gets a dog the simple fact to be considered is someone has to care for the dog. Be it the disabled individual or a caregiver or a man down the street. I think some some individuals jump the gun and get a dog b4 they take into account whAt all is involved with the care. ron c7 Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] my mom
I went to social services the other day and was told that they don't give funds for rental assistance unless you have children or are over 65 so she's out of luck. She is going to have to give up her car bc the payments are too much to handle and esp w/car insurance. We are getting the forms for disability but she isn't going to have any income waiting for it and I really don't want her to lose her place. I can't have her living with me. She is driving me crazy from the hospital. She was getting paid to help me and insists on working again but there is no way I am doing it. I will turn to the churches but the sad reality is they don't really have many funds down here. It's not a big poputlation area so unfortuantly the churches never have much. Thanks for your prayers and help, Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: quad-list@eskimo.com Sent: Friday, March 21, 2008 5:22:20 PM Subject: Re: [QUAD-L] my mom I really wish I could help you out, but it looks to me like you need the aid of a good social worker. I recently faced some issues with my mother, but not nearly to the extent you are experiencing right now. My heart goes out to you and hope someone else on here will have a better idea of how you can contact the social worker or any other ideas. Quadius On 3/21/08, Stacy Harim [EMAIL PROTECTED] wrote: Hey all. I am having problems and serious concerns. My mom recently got two of her toes amputated due to bad circulation She isn't walking well on top of that due to the circulation. I am the only kid that is tepping up to the plate with her. My younger brother is in prison so has no way to help and my older brother isn't even calling us after several attempst to call him. Every morning I get a call from her all upset about something. I am working on getting her medical assistance and hoping I can get help with her rent since she doesn't have an income and hopefully she will be able to draw disability. On top of the toes she has an ulcer on the inside of her leg. I talked to the doctor telling him that I cant physically help her and now he is getting her to rehab. She is freaking out bc it is a nursing home/rehab. I am at a loss of what to do. She has car payments, phone, electric, etc. We have talked about letting the car go but she lives out in the middle of nowhere and she can't stop onto my van. I'm doing everything I can tp keep her from living with me again. I can't take her negativity and if you all remember, she chased away a guy that I was dating. On top of it all I will need to get spinal curgery again soon and scared to death of what will happen to my mom in the coming years when she wont be able to care for herself at all. I did get my name back on the list for substuting with the board of edication a few weeks ago so I can help pay her bills but havent been called at all. I need to help my mom, but finding it so hard. I'm curious to know how you all have handled or handling the aging of parents when you can't physically take care of them.. I always knew I would be the one to care for my parents when they got older but now that I have problems, I know I wont be able to do it and it breaks my heart to think my mom will eventually end up on a home since my brother wont even call to see how she is doing. It is so exhausting dealing with my mom now. She is a terrible patientand is getting great care but she doesn't think so. Like i said before, she calls me first thing in the morning every day crying about something and doesnt seem to calm down unless I am there. the day she has surgery, she had her heart rate well over a hundred and refuses anxiety medicine. She didnt calm down until her friend that was visiting and I went to see her. Her friend was on her way home so I was at the hospital all day into the night to keep her calm. When I was in the hospital she constantly complained to me about things going on at home and now is throwing things in my face but she didnt do as much as she thinks because I had my dad helping me with my bills. I was three hours away in baltimore and she wasnt able to come see me but expects me to be with her all the time. I've missed a couple of days seeing her to give my back a break which hurts all of the time bc of the screw moving that popped through the vertabrae that I have to get fixed. I have my second opinion in april for my back and will try to put off the surgery as long as I can so I can try to help her but cant put it off forever. I knoq I rambled but I'm really upset over this situation and scared to death of what is going to hapen. does anyone have any suggestions on how I can get funds to save her car and apt.? Like I said, moving back in with isn't something I can handle. Mostlh because of her negativity complaining all of the time about everything and how she picks at me. Her own
Re: [QUAD-L] getting a service dog.
I am paraplegic as far as feeling goes but since I had all of the rods put in my back, I can't bend my back from T4 down and going for another sugery. I dont doubt I can care for a dog, it is just that as far as my back goes, I can really benefit from a dog. I didnt consider it before I got the infection in my spinal column because I had function from T7 but now things are a lot more difficult as far as flexibility. I still have full function of my arms and hands though. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, March 22, 2008 9:43:55 AM Subject: Re: [QUAD-L] getting a service dog. Dana I'm not saying that a person who can't take care of a dog's needs shouldn't get a dog. I know when I first got my dog I couldn't put on her vest, leash, feed/water her, or really walk her (my home is surrounded by grass and at the time all I had was a manual chair). But I've learned ways of doing things so that I can be autonomous with my pup. Taking care of the dog is part of the bonding process as well. Luke c-5/6 incomplete, 7 1/2 yrs post PS - In most cases, I don't think level of injury has anything to do with whether or not you should get a dog. If you are willing/able to put in the time and effort to learn how to take care of a dog without the help of others, then you would really benefit from its assistance. [I'm not saying there aren't special cases though.] -Original Message- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sat, 22 Mar 2008 4:37 am Subject: Re: [QUAD-L] getting a service dog. Hi Luke, you need to be a certain level, to get a service dog, so you could do his needs. If you don'tor can't will the dog not work for you? Dana Stacy I trained my own service, but I recommend getting one that is professionally trained at least for your first dog. Training a dog is not easy esspecially for a mid-high quad. You need to be able to care for all of the dogs needs (i.e. feed, walk, put on and take off harness and gear, and groom and bathe or take somewhere to get done). To me, if you can't be independent with the dog, then there's really no point in getting one. The only thing I get tired of doing sometimes is going to bed late and waking up early for walks. In Texas you can get a dog free of charge http://www.servicedogs.org/ Luke c-5/6 incomplete, 7 1/2 yrs post PS I'm living completely independent in the college dorms because of the help I get from my pup. -Original Message- From: Stacy Harim [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Fri, 21 Mar 2008 3:23 am Subject: [QUAD-L] getting a service dog. How did you all get your dogs? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training. That is not possible for me but could really use a dog. Stacy Create a Home Theater Like the Pros. Watch the video on AOL Home. Planning your summer road trip? Check out AOL Travel Guides. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] Gas prices by zip code
Thanks. Some pretty handy info to have on hand when needing gas. Stacy - Original Message From: KK [EMAIL PROTECTED] To: Ann Cyr [EMAIL PROTECTED]; Barbara Haynes [EMAIL PROTECTED]; Candice Kello [EMAIL PROTECTED]; cecil susan mccarstle [EMAIL PROTECTED]; Darlene Pinion [EMAIL PROTECTED]; Eric Batte [EMAIL PROTECTED]; EVYLEN KENDRICK [EMAIL PROTECTED]; Faye Perkins [EMAIL PROTECTED]; Frank [EMAIL PROTECTED]; Helen Aull [EMAIL PROTECTED]; Lainie Suzanne Batte [EMAIL PROTECTED]; Mandy C [EMAIL PROTECTED]; Marilyn O'Neill [EMAIL PROTECTED]; Mike Moody [EMAIL PROTECTED]; MS Quads [EMAIL PROTECTED]; Nancy Womack [EMAIL PROTECTED]; Pat O'Brien [EMAIL PROTECTED]; quad-list@eskimo.com; Sheryll Estes [EMAIL PROTECTED]; Susan Hall [EMAIL PROTECTED] Sent: Sunday, March 23, 2008 2:58:06 AM Subject: [QUAD-L] Gas prices by zip code Subject:* Gas prices by zip code *This is pretty nifty- Just enter your** zip code in the site below, and it tells you which gas stations have the cheapest prices (and the highest) on gas** **in your zip code** **area. It's updated every evening. Just click on the link. You will see a map of your area and then scroll down and you will get a listing of gas prices in your area with addresses and brands starting with the cheapest and going up.**_ _**_ _**http://autos.msn.com/everyday/gasstations.aspx?zip=src=Netx* http://autos.msn.com/everyday/gasstations.aspx?zip=src=Netx* ** Be a good neighbor and pass this along.* Free Comments Graphics Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] A friend in need.
What a sad story about this gentleman. I don't know his situation but can sympathize as to what its like to get worse after getting hurt. Memorial weekend will be 7 years for me. I was paralyzed from the neck down after waking up from a coma, got better to t7/8 then last year got osteomyelitis in my spinal column and had to get several disks replaced with metal and now have rods, screws and something called cages replacing the vertabreas from t4 and screwed into my pelvis. A screw has since popped through a vertabrae and have to get another surgery getting more rods. I can barely bend my back as it is and am very frightful about what I am in store for after my next surgery. I will most likely have to get more rods and then will be from t1 down. I fought a serious pressure sore for a few years and had 4 surgeries on that. I'm healed but still have pain in the area. Some bone had to be removed in order for it to heal. Even though I've had a lot of medical issues and have only a good few years of living paralyzed, I still know I have a life to live and giving up would lead to a miserable life. Your friend will end up in a nursing home if he gives up and that is no way to live. I try to use my situation to the best of my ability. I know there is so much I cant do but have to use what I can. I will pray for your friend. I have so much going on with my mom and her health right now. She also wants to give up and it breaks my heart.Please tell him he is in my prayers and I hope that he can recover from this depression. WHen I have more time, I'd like to send him a letter or give him a call. Sometimes it just helps to talk to someone. Is he on a ventilator? Is if fairly easy for him to talk on the phone considering his level is pretty high? Stacu - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Sunday, March 9, 2008 5:00:38 PM Subject: [QUAD-L] A friend in need. Hi all. I got a call from my visiting nurse, Chris ( Dave's care givers ) last Wednesday and she asked if I would call a guy who broke his neck a few years ago and is currently in a funk thinking he's had about enough of this quad 'crap'. I called him and went to visit as he lives about 2 miles from me. He is 63 and broke his back on a trampoline 14 years ago and then fell out of bed 4 years ago and broke his neck at C1. He is in pretty bad shape with only a little movement in his arms and none in fingers or anywhere else. He has been plagues with UTIs and bed sores and can't seem to stay out of the hospital for vary long. I chatted with him for about an hour and he told me he doesn't have a computer since he can't operate one. He asked if I would mention him to you guys and that maybe someone in similar circumstances could give him a call and compare notes with him a bit. I know some of you could give him some good news about computer accessibility since I don't know much about voice operated computing. I have a laptop I could loan him to get his feet wet if any of you could spark an interest. He says he's done with doctors, hospitals, and pills - and we all know where that will lead very quickly. He's really a pretty nice guy in a pretty bad place. His name is Gordon R Bierworth at phone number (602) 938-5838 - address: 5102 W Monte Cristo Ave, Glendale AZ. Thanks in advance for your help with this. AZ Dave Visit My Home Page It's Tax Time! Get tips, forms and advice on AOL Money Finance. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] Gays
I love gay people. I have always been around them since I was a kid. My babysitter when I was a kid is gay. Since I have been exposed to many different types of people my whole life it has taught me not to judge anyone for color, religion, sexual preference, etc. We are all God's children regardless of the above things. I know that there are people that may not like me for whatever reason and I don't like to bejudged so why would I judge others. You aren't a bad person but a good person for not being bothered by what a person prefers in a partner. I got my tattoo years ago with one of my best friends who is gay. He also stepped up and really helped me through the tough time of my life when I first became paralyzed. He stepped up when other friends abandoned me. We don't really keep in touch now that he has moved away but every time I look at my ankle, I think of him and will always have the memory of that great day together. Stacy - Original Message From: Cullen [EMAIL PROTECTED] To: Quad-lIST quad-list@eskimo.com Sent: Wednesday, March 12, 2008 10:40:32 PM Subject: [QUAD-L] Gays I guess I'm a bad person, but the fact that someone is gay doesn't bother me. It's more about what kind of person they are. I have a brother that is gay and I love him just as much as I would if he wasn't gay. I don't want to know what gays do behind close doors and he respects my wishes and doesn't go there. Cullen C3 Quadius [EMAIL PROTECTED] wrote: No gays at Fox! ROFL Q PS for those of you who, like myself, don't know much about chat, that means rolling on the floor laughing. On 3/12/08, kaye allard [EMAIL PROTECTED] wrote: Not for Fox...LOL. 2008/3/11 John S. [EMAIL PROTECTED]: OMG! Homosexuals! That does it. now I can't watch ABC either? Theres homos working for all the stations! john - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, March 10, 2008 6:12:51 PM Subject: Re: [QUAD-L] FW: Abomination He was working for the part that maintained the website and had no business answering the email. In a message dated 3/10/2008 5:33:57 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I read snoops and didn't it say TRUE or am I going blind? Sure it was one guy maybe , but he was working for ABC! Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Very funny, Scotty. Now beam up my clothes. It's Tax Time! Get tips, forms and advice on AOL Money Finance. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. -- Our Similarities bring us to a common ground; Our Differences allow us to be fascinated by each other -Tom Robbins Cullen C3/4 Yahoo! Canada Toolbar : Search from anywhere on the web and bookmark your favourite sites. Download it now! Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] makeup, probably just the girls ha ha
I always wear a little makeup when I go out. I try to look nice. I get stared at enough, I may as well look nice. I have been seeing an infomercial on a powder makeup that covers all flaws that I am considering getting.. I'm 33 and have more pimples now than I had when I was a teenager. Anyone use anything like this? Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, March 17, 2008 3:57:08 PM Subject: Re: [QUAD-L] makeup, probably just the girls ha ha I cannot apply makeup myself, but I have been wearing the mineral every day unless I'm going somewhere, it doesn't take much time to be applied. I use my regular powder foundation as it seems to cover more. It of course depends on who is doing. Everyone is making the mineral makeup and I was told that the mineral makeup worked well by a salesperson in a store called Sophia. It is a store in the mall. . I previously bought the L'Oreal brand that has a foundation, blush and overall powder. I use a lot of different brands. I like to buy something to get the free guest at the different counters if there are items I want in the gift set. They often have lipstick and eye shadow that I like. I also go to drugstores or discount stores to look to look at makeup. I usually buy the same colors. The one thing I like about department stores is they will try it on or you so you know what the color is going to look like on you. What do you other girls like to do? Dana It's Tax Time! Get tips, forms and advice on AOL Money Finance. Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] makeup, probably just the girls ha ha
I use almay eyeshadow from brown eyes. It had purple and brown showdow in it that is supposed to bring out brown eyes. I often get complimented on my makeup. I use black/brown covergirl mascara that has that new kind of brush that I really like. It keeps the lashes separted well. I use a bit of blush and sometimes I wear lipstick but mostly ilp gloss since my lips get dry. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, March 17, 2008 10:08:28 PM Subject: Re: [QUAD-L] makeup, probably just the girls ha ha I wear the MAC eyeshadow, I will have to look up the colors. I really like them. My eyeliner is from Clinique, a purple shades that is not bright at all. For foundation powder I just used the cover girl powder foundation if I'm not using the minimal powder makeup. Right now I have under a cover-up by Revlon but I'm going to get some from Lancome that I ran out of that is the best I have found. I use all over pink powder by company just to give the glow and regular lose powder besides blush by Clinique for L'Oreal. I try all kinds of lipsticks that will stay on longer because I drink a lot of liquids. I guess my favorite is raspberry glosse by Clinique and then another wand gloss on top by different cosmetic companies. My skin is fair so I wear more ivory colored makeup and raspberry colored lipsticks. It seems the darker shades get on your teeth and are not as easy to have someone put on you as you often look like Betty Davis. Ha ha. I really think it helps to use the oil of Olay moisturizer and eye cream and now I have tried the one that the girl from Sex and the City advertises, I can't think of the name of it, it is cheaper than oil of Olay. I know you are probably a lot younger than me so you may not worry so much about the moisturizer but I know they are good for your skin no matter what the age. My mom has always used lotion on her face and she doesn't have many wrinkles at 73 which is amazing. She taught me that since I was a little girl and to always rub it completely all over your neck, because you age on your neck first. It also helps not to go out into the sun unless you are wearing sunscreen. Some of the lotions do contain sunscreen . There is a Oil of Olay that I often use that does. I often want more sunscreen and the lotion contains. I often look for a sunscreen that is the high number that is not oily at all in use with my moisturizer. There is one moisturizer with sunscreen that has color with it that you can wear if you don't want to wear makeup. Most of you already know this, but just thought I would mention. If anybody has any makeup tips I really enjoyed learning anything new. . It's Tax Time! Get tips, forms and advice on AOL Money Finance. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
[QUAD-L] getting a service dog.
How did you all get your dogs? I found one program but it takes 4 or 5 years and have to go stay in a hotel in Baltimor for a week for the training. That is not possible for me but could really use a dog. Stacy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
[QUAD-L] my mom
Hey all. I am having problems and serious concerns. My mom recently got two of her toes amputated due to bad circulation She isn't walking well on top of that due to the circulation. I am the only kid that is tepping up to the plate with her. My younger brother is in prison so has no way to help and my older brother isn't even calling us after several attempst to call him. Every morning I get a call from her all upset about something. I am working on getting her medical assistance and hoping I can get help with her rent since she doesn't have an income and hopefully she will be able to draw disability. On top of the toes she has an ulcer on the inside of her leg. I talked to the doctor telling him that I cant physically help her and now he is getting her to rehab. She is freaking out bc it is a nursing home/rehab. I am at a loss of what to do. She has car payments, phone, electric, etc. We have talked about letting the car go but she lives out in the middle of nowhere and she can't stop onto my van. I'm doing everything I can tp keep her from living with me again. I can't take her negativity and if you all remember, she chased away a guy that I was dating. On top of it all I will need to get spinal curgery again soon and scared to death of what will happen to my mom in the coming years when she wont be able to care for herself at all. I did get my name back on the list for substuting with the board of edication a few weeks ago so I can help pay her bills but havent been called at all. I need to help my mom, but finding it so hard. I'm curious to know how you all have handled or handling the aging of parents when you can't physically take care of them.. I always knew I would be the one to care for my parents when they got older but now that I have problems, I know I wont be able to do it and it breaks my heart to think my mom will eventually end up on a home since my brother wont even call to see how she is doing. It is so exhausting dealing with my mom now. She is a terrible patientand is getting great care but she doesn't think so. Like i said before, she calls me first thing in the morning every day crying about something and doesnt seem to calm down unless I am there. the day she has surgery, she had her heart rate well over a hundred and refuses anxiety medicine. She didnt calm down until her friend that was visiting and I went to see her. Her friend was on her way home so I was at the hospital all day into the night to keep her calm. When I was in the hospital she constantly complained to me about things going on at home and now is throwing things in my face but she didnt do as much as she thinks because I had my dad helping me with my bills. I was three hours away in baltimore and she wasnt able to come see me but expects me to be with her all the time. I've missed a couple of days seeing her to give my back a break which hurts all of the time bc of the screw moving that popped through the vertabrae that I have to get fixed. I have my second opinion in april for my back and will try to put off the surgery as long as I can so I can try to help her but cant put it off forever. I knoq I rambled but I'm really upset over this situation and scared to death of what is going to hapen. does anyone have any suggestions on how I can get funds to save her car and apt.? Like I said, moving back in with isn't something I can handle. Mostlh because of her negativity complaining all of the time about everything and how she picks at me. Her own friend cant deal with it. Any suggestions would be great and even a prayer wouldn't hurt. Stacy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] State We All Live In.
I'm in Ocean City, MD. There are very few people paralyzed people here that I
know of. The best rehab hospital in the area doesnt get many people with
paralysis there at all. I don't even know if any on the list are from MD so I
am curious as well.
Stacy
- Original Message
From: Danny Hearn [EMAIL PROTECTED]
To: Quad-list@eskimo.com
Sent: Friday, March 7, 2008 6:38:34 PM
Subject: [QUAD-L] State We All Live In.
Hi, I noticed some were talking about the State's We All Live InBesides
All the Quad Friends that reside in Other Countries, Where do All the U.S.A.
Quads now live?
I live in {Missouri-- In the Midwest.} I have not seen any quads from places
like.. Wyoming or Utah or Alabama and so on ???
Dan H.Mo. C-6 10.6 yrs. Post
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Re: [QUAD-L] UTI and ETC Help Aids
How do you attatch your leg bag and bed bag? The leg bag where it empties is
either losens to empty or has a lever to pull to empty it. At least mine do.
Stacy
- Original Message
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids
Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is
doing your personal care must scrub and use sterile gloves when changing your
cath. If they have kids or love houseplants, they need dipped in liquid
sterilizer. If you can keep your bladder acidic then you should be able to ask
your doc about using Mandelamine. Great anti infective but doctors are afraid
patients won't keep their urine acid.
I'll suggest this again and you can ignore me. Get a very small leg bag and
keep it attached to your indwelling catheter. Attach your leg bag and bed bag
to it. It adds an anti backflow barrier at the usual point of infection. Handy
for seeing if your urine is starting to look bad or to get samples for tests.
All my best,
john
- Original Message
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC Help Aids
Hello Gang, I was wondering how many use these products --- (1) D Mannose--
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider
Vinegar I get UTI 's all the Time and the only One of these I have not
Tried is Collodial Silver. { I stay faithfull on the cranberry and vitamin C
} but never go long without bad UTI trouble. I have a Supra-Pubic Catheter
and doctors say there will always be infection trouble, But don't some of you
with indwelling Catheters go long periods between serious UTI infections???
It's hard to be able to live in pain but always worry about infection killing
you.
Thanks All!!
Dan H. - Saint Louis, Mo. c-6
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Re: [QUAD-L] UTI and ETC Help Aids
I understand. It's just a matter of finding them. I got them a few times when
I had a homehealth nurse coming in but since my sore is finally gone (woohoo),
I don't need them to come anymore. I get legbags from appledrug and that is
the only pharmacy in my area that carries medical supplies such as catheters,
leg bags, etc.
Stacy
- Original Message
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:20:48 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids
They have nice cheap 8 oz. bags with lines that have metal clips shutting them.
You remove the line from the bottom and simply attach a short length of yellow
foam line to the bag where the nasty green line was.
You attach your regular bed bag or leg bag to the drain end of the small bag. I
have to get a cam and make a video. I've never had trouble connecting bags to
bags.
Let me know if that is any help?
best wishes,
john
- Original Message
From: Stacy Harim [EMAIL PROTECTED]
To: John S. [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Friday, March 7, 2008 10:55:04 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids
How do you attatch your leg bag and bed bag? The leg bag where it empties is
either losens to empty or has a lever to pull to empty it. At least mine do.
Stacy
- Original Message
From: John S. [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 7:52:55 PM
Subject: Re: [QUAD-L] UTI and ETC Help Aids
Well that is easy, don't worry about it!
Yea Dan, used them all but I don't have an indwelling catheter. Whoever is
doing your personal care must scrub and use sterile gloves when changing your
cath. If they have kids or love houseplants, they need dipped in liquid
sterilizer. If you can keep your bladder acidic then you should be able to ask
your doc about using Mandelamine. Great anti infective but doctors are afraid
patients won't keep their urine acid.
I'll suggest this again and you can ignore me. Get a very small leg bag and
keep it attached to your indwelling catheter. Attach your leg bag and bed bag
to it. It adds an anti backflow barrier at the usual point of infection. Handy
for seeing if your urine is starting to look bad or to get samples for tests.
All my best,
john
- Original Message
From: Danny Hearn [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Friday, March 7, 2008 11:01:42 AM
Subject: [QUAD-L] UTI and ETC Help Aids
Hello Gang, I was wondering how many use these products --- (1) D Mannose--
(2) Vitamin C--- (3) Cranberry Pills -- (4) Collodial Silver -- (5) Apple Cider
Vinegar I get UTI 's all the Time and the only One of these I have not
Tried is Collodial Silver. { I stay faithfull on the cranberry and vitamin C
} but never go long without bad UTI trouble. I have a Supra-Pubic Catheter
and doctors say there will always be infection trouble, But don't some of you
with indwelling Catheters go long periods between serious UTI infections???
It's hard to be able to live in pain but always worry about infection killing
you.
Thanks All!!
Dan H. - Saint Louis, Mo. c-6
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Re: [QUAD-L] Spinal surgeries
I can't remember exactly what I wrote so please forgive me if I repeat myself. After the 3 surgeries on my spine, the end result is rods from T4 and screwed into my pelvis. Since the screw has popped through the vertebrae and hitting the vertebrae above it, the neurosurgeon wants to go up at least 3 more levels. H didn't see any reason for me to do it right away and said he wanted to see me in about 8 weeks. I did have damage to my vocal cords when I was on the vent 6 yrs ago and had to have another surgery to repair them. My voice still isn't the same and stays weak for a while after coming off of the vent. I'm scared of that, the fact we are getting into where I have full sensation vs. the last surgery was mostly where I didn't have full sensation. I have a hard enough time with my wheelchair now because of my back not bending. My chair tips backwards going up ramps and forget about curbcuts. I am having a hard time getting rid of some weight now with eating right as it is and I will probably need a powerchair so I guess you could say that if I'm awake, I'm thinking about this. The only way I can get to the neurosurgeons down here for a second opinion (the ones that I want which are in the same office) is with a referral from my rehab doc. I finally went to that appt today and will likely have to wait about a month before I can see the surgeon and then I see my neurosurgeon in hopkins in the mid of April. That's only a fraction of my concerns. I have been in a lot more pain the last few days and I wasn't sure if it was because I did more weight on the ricshaw or chest presses. My back was kept stable and dont use those muscles in the exercises I do so I couldn't figure out what did it. My therapist felt the muscles and they were really tight so that explains a lot of the pain but I am still worried I did something else to trigger it. I may end up going to the hospital before I get an appt with anyone so if I dissapear, I am likely back the hospital to start the whole process all over again with rehab and all of that fun stuff. Hopefully not another summer missed though. I seem to have rambled in this email as well. Sorr for that and Thanks for your compassion Dana, Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, March 3, 2008 12:55:05 AM Subject: Re: [QUAD-L] Spinal surgeries Stacy I am so sorry to hear about this Stacy. I will pray for this. I know waking up on a ventilator is terrifying. I know you are much lower level, so you should not have as much trouble getting off, but I know that does not take into the fact that your vocal cords can be damaged as I remember, that being a possible problem. You have been through already. I may be missed the post about a nine hour surgery and exactly what they're going to do. Please explain or send me the post.. I have woke up on a ventilator before in the past for my bladder removal, superior mesenteric artery syndrome, pneumonia and it was horrifying especially with the rules of the state and taking away your care if you're in the hospital too long. I don't know the exact rules, but I remember being told if you're in over 30 days you can lose your care. Does anyone know the rules regarding this? It happened to me in 88 and they were threatening to put me in a nursing home. It was a real nightmare. Dana I have not experienced any long-term hospitalization over 30 days, so I have not had deal with I know may be each state is different. Do any of you wise quads out there know this answer? I tried to look up on the web site and could not find. . Dana In a message dated 2/21/2008 9:55:53 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I am going to a specialist hopefully soon. I have to go to my rehab doc first to get referred to him, because he won't take just anyone. I'm just in a ton of pain and want it to stop. I'm so afraid of losing the little bit of flexability, let alone being a quad again. I had 3 surgeries between the end of may and beginning of july. First he put a cage to replace a couple of vertebrae's mid T sec, then I ended up with 2 more cages and rods in t and l spine, then finally on my bday in beginning of july, he had to remove a screw too close to my aeorta. Waking up on a vent scares the crap out of me since I had gotten damage to my vocal cords the first time I was on one and had to get surgery to get my voice back. This all scares the hell out of me in general not even considering being put to sleep for a 9 plus hour surgery. Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, February 21, 2008 10:46:31 PM Subject: [QUAD-L] Spinal surgeries B4 I would do any surgery on my spine I would get three opinions and ask about the percentage of failure rate and the possibility of improvement.
[QUAD-L] hospital stay time and care
I forgot to mention in my reply to Dana that I was in the hospital from the end of may to beginning of august and my care wasn't taken away. My hours were actually increased. Maybe it depends on which state you live in. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Monday, March 3, 2008 12:55:05 AM Subject: Re: [QUAD-L] Spinal surgeries Stacy I am so sorry to hear about this Stacy. I will pray for this. I know waking up on a ventilator is terrifying. I know you are much lower level, so you should not have as much trouble getting off, but I know that does not take into the fact that your vocal cords can be damaged as I remember, that being a possible problem. You have been through already. I may be missed the post about a nine hour surgery and exactly what they're going to do. Please explain or send me the post.. I have woke up on a ventilator before in the past for my bladder removal, superior mesenteric artery syndrome, pneumonia and it was horrifying especially with the rules of the state and taking away your care if you're in the hospital too long. I don't know the exact rules, but I remember being told if you're in over 30 days you can lose your care. Does anyone know the rules regarding this? It happened to me in 88 and they were threatening to put me in a nursing home. It was a real nightmare. Dana I have not experienced any long-term hospitalization over 30 days, so I have not had deal with I know may be each state is different. Do any of you wise quads out there know this answer? I tried to look up on the web site and could not find. . Dana In a message dated 2/21/2008 9:55:53 P.M. Central Standard Time, [EMAIL PROTECTED] writes: I am going to a specialist hopefully soon. I have to go to my rehab doc first to get referred to him, because he won't take just anyone. I'm just in a ton of pain and want it to stop. I'm so afraid of losing the little bit of flexability, let alone being a quad again. I had 3 surgeries between the end of may and beginning of july. First he put a cage to replace a couple of vertebrae's mid T sec, then I ended up with 2 more cages and rods in t and l spine, then finally on my bday in beginning of july, he had to remove a screw too close to my aeorta. Waking up on a vent scares the crap out of me since I had gotten damage to my vocal cords the first time I was on one and had to get surgery to get my voice back. This all scares the hell out of me in general not even considering being put to sleep for a 9 plus hour surgery. Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, February 21, 2008 10:46:31 PM Subject: [QUAD-L] Spinal surgeries B4 I would do any surgery on my spine I would get three opinions and ask about the percentage of failure rate and the possibility of improvement. Then I would investigate it all further then make an educated decision. I say this because you might have 40 yrs or more to live as a quad if you get too many surgeries too soon the later years could be a rough go. Surgery is a last resort when your paralyzed. Ron c7 Never miss a thing. Make Yahoo your homepage. Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] high cholesterol
My cholesterol is 155. I can't remember the number of my good cholesterol but it is low. My doctor said its from not being able to exercise like I used to. My neighbor had some pretty high cholesterol and got it down without drugs. He was really careful with what he ate. It was a few months before he got bloodwork done again but it was way down. I don't know your situation and I fear it formyself as my brother is only 5 years older than me and is going down the path of high cholesterol that runs in my family. Good luck with everything. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, March 1, 2008 5:26:31 PM Subject: [QUAD-L] high cholesterol i had my bloodwork done recently and my cholesterol is 275. my good cholesterol went bad as well. i do have a family history of this. all my siblings and both parents. anyway, he put me on lipitor and after 2 days, i had just about every side effect. my body felt like i was having a e-coli uti, (run over by a semi). i felt feverish but no fever. and chest pains. so my question is this: do any of you fellow quads have high cholesterol? i ask because i wonder why my body rejected it so badly quickly. could it be a quad thing? my family had no problem with it. the other drugs i take are pain pills fosamax which the doc knew of them so i don't think it was a drug interaction problem. we can't exercise so i'm gonna try my best with 'the diet'. it was really bad pain, increased spasms too. dianna Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] free list
The point of my post was that topic was becoming mundane to use your words. I totally agree that there are many more things to discuss aside from paralysis, but sometimes topics get beat to death. After days and so many posts saying the same things, sometimes it turns into an arguement and some hateful things are said. I understand there is a delte key, however I don't always check my email every day. When I get busy, it can be almost a week or more and I don't have the time or patience at that point to go through all of the emails so I delete all of them at once only to find I missed an important post after the fact. Then if I want to know what it said, I have to go to the archives. My whole point is that we are here to support eachother, not beat eachother down. It's like people seem to think those who yell the loudest is right sometimes. How about we express ourselves and response to what someone else said is fine (to me), but I get frustrated to see the same thing said over and over again and like I said before, hurtful things can be said. Again, we are here to support eachother. I don't expect everyone to reply to my posts, but it gets aggrivating to see posts like that get so much more attn than real life issues that we have to deal with. People should have kind words to offer even if they can't help over hurtful words about topics like the one about the poor woman who passed away. Sorry for my rambling, but my opinion stands about how I feel about the list. Someone told me that he has seen many leave over chat like that and I know of at least one myself that contributed quite a lot to the list sometime ago. Cant we all just get along? Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, February 26, 2008 7:54:11 PM Subject: Re: [QUAD-L] free list I hope you continue to find answers here. Unfortunately there are going to be those threads which we don't like, but as someone said before, there is always the delete key. Just because you don't get a number of responses to your queries, doesn't mean it was a read by a multitude of people who really didn't feel the ability to respond effectively to your question. I read every answer or suggestion and it helped me out. About three or four years ago I made a similar plea and someone, it may have even been Tim (stuntman) who responded that we think about things other than a quadriplegia all the time. Why not comment about them on this site? The person felt it was mundane to consistently do nothing but talk about quadriplegia and frankly I have to agree. That is not to say that I don't agree with what you wrote. We should be more consumed with those who won't come out and help those of us in need. I hope this made some sort of sense. If not I apologize. Quadius On 2/24/08, Stacy Harim [EMAIL PROTECTED] wrote: I also went to that list because I had ADEM (Acute Disseminated Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as well. I too thought that The TM list would help me but find more help here. There are some paralyzed on that list, but mostly people dealing different types of problems because they can walk. I know it's hard for them but my issues are more related to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 12:13:52 PM Subject: Re: [QUAD-L] free list Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance Naomi C4 quadriplegic since July 2005 due to Transverse Myelitis Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http
Re: [QUAD-L] Re: firefighters
Although my level is T7, after 7 months in the hospital, I moved into my own place right away and still live alone except when my mom moved up from fl. and needed to stay with me for a few months til she found her own place. I also have a really hard time getting help. I finally got someone and she doesn't show up sometimes. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 9:12:23 AM Subject: Re: [QUAD-L] Re: firefighters Keith, if I may. Warrior, is All-American, except some times when she's a space cadet, lol. She was born in Penn and raised in Indiana. She now lives by herself. Linda is All-American too and lives by herself. Stuntman is All American too and attended high school with Warrior, in their younger days. Stuntman also lives by himself. All three live in Indiana. Best Wishes W In a message dated 2/24/2008 8:06:44 A.M. Central Standard Time, [EMAIL PROTECTED] writes: Linda, First off...I'm glad things are working out for the two of ya's. (well, minus the no service in the snow) But I have to ask this, is Andrea (wheelchair warrior) the one from England? If so, how does she like it in the states? And...Not sure which state you're living in, but here in New Jersey (southern part) there isn't much help around. (Actually, probably everyone on the list could say the same.) For me I can only find help 3 out of the 7 days a week for a little help. I really look up to folks like you who can live on your own, just not sure how you do it? Well, I rattled on enough... Best wishes, Keith/35/C4-5/NJ Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] free list
I also went to that list because I had ADEM (Acute Disseminated Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as well. I too thought that The TM list would help me but find more help here. There are some paralyzed on that list, but mostly people dealing different types of problems because they can walk. I know it's hard for them but my issues are more related to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 12:13:52 PM Subject: Re: [QUAD-L] free list Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance Naomi C4 quadriplegic since July 2005 due to Transverse Myelitis Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] free list
Yes I realize it's a free list and so Sorry to charge another debate, but I do find issue with a list that is more willing to respond and say hurtfull or hateful things then to respond to those that are here for what the list was made for. I constantly have seen people post things looking for help or support about things that have happened to them or if they are looking for a new chair. that includes myself. I posted about needing another surgery which is pretty serious. Even Andrea posted about firemen putting her to bed when nursing wouldn't come out to do it. There were about 3 responses to mine, a few to Andrea's and tons talking and debating over the poor woman that passed away. I think if someone is gonna get angry about something, it should be about the nurses that wouldn't come out to help them. It's a helth issue for someone to stay in their chair all night. What if their catheter bags get full then back up into their kidneys, not to mention pressure sores from sitting in the chair all night especially if they are wet. Who knows what else they may have needed if no one came out to help them. If we want to get so emotionally charged over something then it should be that. They are still living and couldn't nursing to come out. That poor woman is gone and anything we say isn't going to change anything. Maybe 911 should ask disabled people what the circumstances are to why they need help then decide if they will come out. If it's something they caused, then we'll make you wait or not come at all because you deserve it. We'll just save help for those that didn't cause it because they are the one's who deserve it. Is that right? The woman should be resting in peace. I know she's in a better place but she didn't deserve to go that way. Aren't we here to support eachother? Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, February 23, 2008 12:43:56 AM Subject: [QUAD-L] free list We all have delete keys.if people need to vent I think its fine. Whats the point of a list that you cant say whats on your mind. ron c7 Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] Re: firefighters
I'm sorry you are losing your roomie and I wanted to apologize for referring to Andrea's post when it was yours in my previous post. It is nice that you have eachother. I personally don't know anyone in a chair. I did offer my services to the rehab center that I was in to talk to anyone that has gotten a sci or is just having a rough go of whatever happened to them. My therapist said they only get a couple a year maybe but I think it's nice to have someone to lean on or help. Stacy - Original Message From: Ms Linda Ferrell [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, February 23, 2008 6:05:35 PM Subject: Re: [QUAD-L] Re: firefighters Yes Tim they moved Andrea today in cold Feb. Wheels came over to help Andrea's Dad do the moving. Lindaf Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] colliod silver
Wasn't he drinking more than he was supposed to? Stacy - Original Message From: RollinOn [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, February 23, 2008 6:53:36 PM Subject: RE: [QUAD-L] colliod silver No I didn't see it but I read up on it and it does happen. Mark Jackson RollinOn From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Saturday, February 23, 2008 5:29 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] colliod silver Mark, did you see the guy on Oprah last week with colliod silver poisoning. His skin had turned purple and his hair looked silver with orange, from silver metal contamination. Doctors said his condition was not reversible. He was a funny looking guy too. Best Wishes In a message dated 2/23/2008 5:26:27 P.M. Central Standard Time, [EMAIL PROTECTED] writes: That stuff is very epensive, does anyone know where you can get it cheaper? It's $25 for 4 oz. Mark Jackson RollinOn Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1294 - Release Date: 2/22/2008 6:39 PM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1294 - Release Date: 2/22/2008 6:39 PM Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
[QUAD-L] time to let it rest
Sorry to say this all but I think this conversation is getting out of hand. People are reacting very strongly and with emotions. She has passed away and whether or not it's her fault for starting the fire or she was put on hold, I personally think it's time to just let this be. I don't post often, but I do appreciate the list and everyone in it, however, sometimes I just delete the whole mailbox because most of it is related to things like this and I sometimes dont have the time or patience to go through it. I could be saying this because I am having a rough go of it these days and like to read posts that help me learn of things that are paralysis related. I do appreciate other posts such as our discussions about dogs, vans, wheelchairs or cute stories like Andrea being put to bed by some firefighters. I even like to read about people's opinions about politics and even this story, but sometimes it gets so emotionally charged that it almost crosses the line. Like I said, I might be saying this because I am having a rough go of it and maybe I don't have a place to say anything since I don't post as I should but at the same time, this topic is beat. Stacy Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] Does anyone have hip problems
When I was sent for a ct scan after my spinal surgery, I was sent back for another one so they saw something with my hip but then wasnt sure what it was. They asked me if I had any problems with it or if it hurt. At the time it had not bothered me but in recent months it has started popping when i move a certain way. Stacy - Original Message From: gina [EMAIL PROTECTED] To: quad-list quad-list@eskimo.com Sent: Wednesday, February 20, 2008 12:58:30 PM Subject: [QUAD-L] Does anyone have hip problems I was asked yesterday if I ever dislocated my hip. I told them not that I knew, but my hip does pop sometimes, so we continued talking about it and they told me that I have a dislocated hip but its not bad yet, but I could never use a standing thingy, because if I did it would dislocate it. I wasn't planning on using one anyway, but I was glad that they told me. I was just wondering if anyone else has been told that their hip was dislocated or that their muscles or ligaments wasn't holding their hip in anymore and what can you do about it? Gina Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
[QUAD-L] maybe another spinal surgery
Hey all, I had posted a while back that I have been feeling some grinding in my back and it had been hurting (I had rods put in from T7 down into my pelvis). My neurosurgeon in Baltimore was out of town at the time so I went to my pain specialist here locally that used to practice neurosurgery in Baltimore. I had x rays done and he seemed to think that a rod might have been moving where they had to remove a screw. I went to my neurosurgeon a couple of weeks ago and had another ct scan done. It happens that a screw popped through the vertebrae and is grining against the one above it. He said that its not real important to consider surgery now but if I go through with it, he is going to put more rods in. He's now talking from T4 now so I wont be able to bend my back pretty much at all. It's freaking me out because My level is T7 so I didn't have full sensation therefore pain from my last surgery and now I am having enough problems with my push wheelchair because of not being able to bend my back. I tip backwards going up ramps and curb cuts. I use the sides of my ramp to pull myself and go up curb cuts backwards. I really dont want to go to a power chair, although I know the better part of you use one, but I am freaked out about gaining weight and not being able to do excercises because I can barely keep my balance as is. I know that you all deal with this daily. Any ideas, tips, helplful words? All input is welcome. I am really considering going through with this surgery soon, considering what my second opinion says. The pain is pretty bad and the grinding feeling isn't very pleasant. I am finally healed from my sore, driving and some independence again. I was going to get back on the sub lists for teaching since I'm sooo broke and now I have to deal with these problems again. Anyone else suffering from another obstacle after getting over a previous one? I really feel like I am going backwards. I have been very blessed, dont get me wrong. I once was a quad, but starting to feel like I am going backwards after all I have been through. I am feeling really down here lately and would love some sort of words of encouragement. Sorry for the rambling. I've been holding it in the last few months. I feel like I am a burden when complaining, but I've had enough of this s...t. Stacy Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] A first
I had to get pulled out of the tub a few years ago. At one time, I could get myself into the shower. I had really bad spasms that threw me in, my legs were bent and wedged in the tub, I spent the night because I forgot my phone to take with me. Long story short, my friend called them in the morning and they bailed me out. They asked my friend to cover me so I had my privacy. It's nice when they go above and beyond and are really great about it. Your story is much better than mine hehe. I'm sure you all had a good time while they did it. What a way to weather the storm. I just cant believe you couldn't get the help you count on to get in bed. My CNA is on her last strike. Not only has she not shown up a few times, but then doesn't call on top of it. I only use her a few times a week, but i count on her those certain days. Stacy - Original Message From: Ms Linda Ferrell [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, February 21, 2008 7:33:25 PM Subject: [QUAD-L] A first Hey Guys This is a first, last night Andrea myself had to be put to bed by firefighters! It was snowing like crazy our CNA couldn't make it we called the on call Nurse which refused to come over. Then our owner of our Nursing Service wouldn't come over to put us in bed, I told her to call 311 see if fireman(rescue team) would help us out. We really didn't want to sit up in our chairs all night. Shortly they came over gave us our meds, emptied our catheter bags, give us water then used our hoyers to put us in bed. They were good guys! Lindaf Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] Bed on Fire!
Are are a meanie. lol. I think saying someone deserves to die is pretty harsh thing to say, no matter what the circumstance. There is a girl here that became quadraplegic because she was playing chicken in summer traffic at the beach. She isn't the friendliest person and seems that she is pretty miserable. I've said some some things about how she acted when I had the chance to meet her while sharing a bus ride, but I also didn't know her whole situation. This young girl was still in high school and both of her parents had been dead. She is a quad, on a vent and living with a grandmother because of what she did, but does she deserve it, I don't know. It's not my opinion that matters, but no matter what, she will be in a bad way her whole life because of what she's done. Stacy - Original Message From: Tim Thompson [EMAIL PROTECTED] To: Danny Hearn [EMAIL PROTECTED] Cc: Dan [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, February 19, 2008 6:18:47 PM Subject: Re: [QUAD-L] Bed on Fire! And people tell me I'm not compassionate enough. You got some severe anger issues that are blinding your judgement. The fact is, she dialed 911 DURING A REAL EMERGENCY and was put on hold Do you hate everybody who smokes just because of your issues? Stunt On Feb 15, 2008 9:50 AM, Danny Hearn [EMAIL PROTECTED] wrote: OH WELL--IF YOUR DISABLED AND CAN'T EVEN GET YOURSELF OUT OF BED ON YOUR OWNAND ARE STUPID ENOUGH TO SMOKE, ESPECIALLY ( WHILE IN BED ) THEN YOU DESERVE TO DIE @! SHE STARTED HER OWN FIRE NOT ANYONE ELSE ! Dan [EMAIL PROTECTED] wrote: Aren't people wonderful? http://www.nbc10.com/news/15254544/detail.html?rss=phipsp=news Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
[QUAD-L] colliod silver
What store do you purchase the colliod silver at? I've considered taking it and would like to start with a small bottle to see how I react to it. Stacy Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] Spinal surgeries
I am going to a specialist hopefully soon. I have to go to my rehab doc first to get referred to him, because he won't take just anyone. I'm just in a ton of pain and want it to stop. I'm so afraid of losing the little bit of flexability, let alone being a quad again. I had 3 surgeries between the end of may and beginning of july. First he put a cage to replace a couple of vertebrae's mid T sec, then I ended up with 2 more cages and rods in t and l spine, then finally on my bday in beginning of july, he had to remove a screw too close to my aeorta. Waking up on a vent scares the crap out of me since I had gotten damage to my vocal cords the first time I was on one and had to get surgery to get my voice back. This all scares the hell out of me in general not even considering being put to sleep for a 9 plus hour surgery. Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Thursday, February 21, 2008 10:46:31 PM Subject: [QUAD-L] Spinal surgeries B4 I would do any surgery on my spine I would get three opinions and ask about the percentage of failure rate and the possibility of improvement. Then I would investigate it all further then make an educated decision. I say this because you might have 40 yrs or more to live as a quad if you get too many surgeries too soon the later years could be a rough go. Surgery is a last resort when your paralyzed. Ron c7 Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] MEDICARE
I was told if I needed a nurse to come a do a cath change and not home bound then I could get to the doctors to have them do it there. Also many agencies have aids come with Medicare and don't require you to be homebound or the aid just doesn't say anything about you not being homebound. I had a nurse come to do bandage changes and she said as long as I was here when she was here then she doesn't know anything. Stacy - Original Message From: NICHOLE ROHLING [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, February 9, 2008 3:10:54 PM Subject: [QUAD-L] MEDICARE HAVE ANY OF YOU APPEALLED A DECISION BECAUSE YOUR HOME HEALTH AGENCY DROPPED YOU BECAUSE THEY SAY YOU'RE NO LONGER HOMEBOUND? I HAVE AN LPN COME 1 TIME EVERY 3 WEEKS FOR CATH CHANGE BUT THE RN THAT CAME TO RECERT ME SAID I WASN'T HOMEBOUND BECAUSE I CAN DRIVE NOW. IF IT WEREN'T FOR THE TAXING EFFORT IT TAKES FOR ME TO GET UP WHICH MY AID IS PAID BY THE STATE I'D BE IN BED. ANY ADVICE? NICKI C5 Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] Enemeez- For Personal Bowel Programs
I checked out the site and they aren't very affordable at all. How do those of you who use them pay for them? Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Saturday, February 9, 2008 8:47:24 PM Subject: Re: [QUAD-L] Enemeez- For Personal Bowel Programs Hey Mate, Not sure if its right for you but I encourage to check out the Enemeez-Plus, instead of the Enemeez. Enemeez-Plus, helps prevent the burn and itch from a bowel program. You have nothing to loose by asking for your free two week+ supply. Best Wishes W In a message dated 2/9/2008 7:33:23 P.M. Central Standard Time, [EMAIL PROTECTED] writes: keeHello to my extended family at Q-List. Greetings to our Daddy Jim Lubin. ''G'day mate,hows it hangin'' Personally i don't have a bowel routine as i'm not keen on the vacuum effect,although i suffer a lot of burning i deal with it. C6 incomplete 10 years post. Rob. Who's never won? Biggest Grammy Award surprises of all time on AOL Music. Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] FW: Fw: obama
Mosg of these emails have that snopes was checked even though it wasn't to try to make it more believable only to find out that the info on snopes is actually totally different - Original Message From: Bill Jenkins [EMAIL PROTECTED] To: Quad List quad-list@eskimo.com Sent: Saturday, December 13, 2008 10:09:12 AM Subject: Re: [QUAD-L] FW: Fw: obama http://www.snopes.com/politics/obama/muslim.asp Someone didn't check snopes very well. Bill C6 Incomplete since 7/20/68 Age 57 Leesburg, FL Do not meddle in the affairs of dragons, for you are crunchy and taste good with ketchup. - Original Message - From: Silas Shelburne To: quad-list@eskimo.com ; adam malle ; Amy Davis ; Ann Slemp ; Bill Sage ; Cheryl Sizemore ; Coker Lynn ; Gail Tyree ; GERALD SHULER ; Hank Ross ; joanne pilkenton ; Joyce Lynn Wilson ; Karen Dotson ; Kay Ross ; [EMAIL PROTECTED] ; Kirk Ballin ; [EMAIL PROTECTED] ; liz robbins ; Patty Pennington ; Randy Ball ; Roberta Shuler ; Ronnie Montgomery ; sandra johnson ; Sandy B ; Stacia Kohler ; Susie Richardson ; Terry Estep ; Judy Shelburne ; Trish Livesay Sent: Sunday, January 13, 2008 8:54 AM Subject: [QUAD-L] FW: Fw: obama From: Lisa Johnson [mailto:[EMAIL PROTECTED] Sent: Saturday, January 12, 2008 6:15 PM To: Tammy Bledsoe; [EMAIL PROTECTED]; Silas; Rhonda Bowen; [EMAIL PROTECTED]; Kaye Weitzman; Jessie Mullins; Jane Jones; Green, Ramie; Darla Lipe; Carter, Darla A - Eastman; Carol Carter Subject: Fw: Fw: obama - Original Message - From: Patti To: Lisa Johnson ; [EMAIL PROTECTED] ; Eve ; Phillip Reece ; Mona Skidmore ; Ronnie Carter Sent: Saturday, January 12, 2008 6:25 PM Subject: Fwd: Fw: obama Note: forwarded message attached. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
Re: [QUAD-L] FW: Fw: obama
He has addressed this several times in interviews and news conferences and it's not true. - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, January 13, 2008 10:20:26 AM Subject: Re: [QUAD-L] FW: Fw: obama Before you forward these posts you should do your homework. Go to snopes.com and you'll see half to three quarters of all stated in what you fowarded is false. I'm not for or against Barrack Obama, but it's sad that this is how RUMORS gets started. Nobody looks to see if the info is credible before posting. Just think if ALL our news was televised this way... Keith/35/C4-5/NJ Start the year off right. Easy ways to stay in shape in the new year. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
[QUAD-L] spinal fusion
For those of you who dont know, I had to have my spine fused in several places last May. Well it really began hurting last week like something was rubbing. After the fusion was done, I had to have a screw removed b/c it was too close to my aeorta so I worried something was shifting and went to my doctor. My neurosurgeon is out of town so I went to my pain doc bc he used to be a neurosurgeon at the University of MD. We had xrays done and he doesnt see anything that would require me to have surgery, but I am in unbelievable pain to the point I can barely move and its in more than one spot. Has anyone else had any experience with the rods rubbing a bit or a screw? I am hoping after taking it easy for awhile the pain will go down but it has been getting a little bit worse every day and today it's about the same. It doesnt hurt as much if I am laying down on my side without moving too suddenly but it does hurt more to sit up and hurts a lot to adjust myself while laying down the first time for the day. I've been staying in bed a lot hoping I can get the pain down as pain meds arent helping very much. If anyone has any ideas on how to try to get the pain withstandable, I would apppreciate it. I have 3 cages and rods from top of tspine. One cage replaces T 4,5,6,7 and maybe 8; another replaces T 11,12; and another replaces L 4,5, and maybe 6. There is about 7 or 8 discs missing in all. In the lumbar section there are a couple of sets of rods with rods next to rods. Lots of metal!!! I tried to put a pic in but it couldnt be delivered. Anyone else have this much metal? Stacy Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
