RE: [QUAD-L] Advertising for caregivers...

[poajoan]

You’ve made some really good points, C4 complete here, and I have 5 hours 
daily.  I can’t feed myself rather than a snack that is sat out strategically, 
but I am alone mostly from 9:00 AM to 4:00 PM.  So I am total care but I still 
work and volunteer with master gardening.  I had to totally reinvent my 
lifestyle a few years ago and it can be done.

I also use craigslist and spinal cord injury and try to find caregivers with no 
experience for the same reasons.   however, and here in Reno I have to pay 
$16.00 an hour for any private care, and the program than I am on pays $11.00 
per hour and I have to supplement $5.00 an hour just to find anyone.  Reno is 
booming and we basically have no unemployment which makes it difficult.

I have been somewhat successful with Facebook pages and finding attendants.

It is a difficult job to fill and a difficult job to find somebody.  Good luck 
Lori, just keep rolling along and try and make each day the best in your life.

 

 

From: Aaron Mann  
Sent: Sunday, February 23, 2020 12:57 PM
To: Eric Olson 
Cc: Lori Michaelson ; quad-list 
Subject: Re: [QUAD-L] Advertising for caregivers...

 

Lori, I cannot remember what level Quad you are? 

 

Have you tried the approach of room & board in-lieu of pay or with less pay? 
How independent are you once you're up?

 

I'm sure you've figured out most of the methods for handling things, being 40 
years post. I'm a C4-5 33 years post and live on my own with 2 hours morning 
and evening attendant care. If you need or want tips from a fellow "higher" 
quad, let me know.

 

My attendant experience:

All of my attendants come from Craigslist primarily. I purposely seek out women 
primarily (intuitively better caring generally) who have little to no prior 
experience. I find that nurses and even CNA's have too many institutional 
methods driven into them to be open to MY way of caring for myself. I do pay 
well, at least $10/hr with 2 hr min, and give bonuses pretty regularly. Often 
bonuses are a nice dinner out or gift cards. I used to use contracts to 
formalize the arrangement, but have found my "reliability radar" is better now 
and don't use them. I always have at least 2 attendants, one always ends up 
sick at some time or needs a break. 

 

In regards to using "Quadriplegic" in an ad. I use "Spinal cord injury". It 
seems more universally understood. In regards to safety, can you interview 
somewhere away from home at 1st? If it goes well, show them around your home, 
show routine, etc. Oh, also, I recommend to all my female friends with 
disabilities needing caregivers, do a background check. It's relatively 
inexpensive and informative. Can stop the bad ones right up front.

 

Aaron Mann

 

 

On Wed, Feb 19, 2020 at 1:55 PM Eric Olson mailto:whee...@wi.rr.com> > wrote:

Sorry you're having trouble finding someone.  I had this site bookmarked.  
http://assistantpages.com/  Not sure it will help.  How local is this paper?  I 
think you should think about expanding your search area. I get where you're 
coming from about using the word quadriplegic.  It can make you a target but 
it's not really something you want to spring on a potential caregiver either.  
Wish you luck 

 

On Tue, Feb 18, 2020 at 3:18 PM Lori Michaelson mailto:lorilivin...@gmail.com> > wrote:

Okay, only one member on here knows of my situation (Dana) but I really need to 
ask a question.

 

I have been on my own for the last 40 years as a high-level quad. I have always 
lived with family except over the last 4 years whereby I found a live-in 
caregiver that I could afford.  Now the live-in caregiver I have had over the 
last 4 years users moving on and out-of-state. In our original contract if 
either of us were moving on we had to give the other person a 90 day written 
notice. She gave me a good 6 months notice so I've started advertising in 
January.

 

I found her via craigslist when I was in Pennsylvania living with family who 
wanted me to move on when they knew I had nowhere to go. Absolutely nowhere and 
I was not going to move into a nursing home. I had a beautiful support dog and 
I would NOT survive in a nursing home anyway. All of my caregivers over the 
years know that I would not survive  in a nursing home 2 months and I know that 
as well with my needs.

 

Unfortunately or fortunately, I am not eligible for state help and that is 
because I received my Social Security from working, my husband's Social 
Security, a big savings account for so many reasons (I need a lot of dental 
work, I need to be able to have a co-pay for a new caregiver and so many other 
reasons) as well as my husband investing before he passed away. "Spending down" 
is like committing financial suicide because I don't think versions of Medicaid 
is going to last long and I have no way of controlling what I get from Social 
Security every month as well as a small annuity from the accident (which is 
peanuts when you live alone and my lawyer at the time 

RE: [QUAD-L] cell phone holder

[poajoan]

http://www.modularhose.com/Assistive-Technology/

 

I’ve gotten things from these people, and they hold up very well.  My drink cup 
is 15 years old

 

From: Aaron Mann  
Sent: Thursday, January 23, 2020 12:41 PM
To: Dana Wray 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] cell phone holder

 

My favorites are the magnetic holders. Easy on/off functionality. If you cannot 
find a good suction cup spot, there are magnetic ends that screw on to 
wheelchair clamps.

 

https://www.amazon.com/s?k=car+phone+mount+long+arm+magnetic 

 
=1D7CCOI8ZG5WE=magnetic+phone+mount+long%2Caps%2C184=nb_sb_ss_i_1_25
 

 

In addition I attach a loop on my case for ease of grabbing my phone with my 
thumb.

 

https://www.amazon.com/Ringke-Lanyard-Compatible-Cellphone-Cameras/dp/B07MLZJN83/ref=sr_1_45?keywords=phone+loop+straps
 

 =1579811876=8-45 


 

Aaron Mann

 

 

On Sat, Nov 30, 2019 at 3:25 AM Dana Wray mailto:daano...@gmail.com> > wrote:

 

I need something with A long Gooseneck I can reach with my stylus.I don’t have 
a lot of dexterity to reach the one you were talking about. I asked the dealer 
about it already. We all have such different levels.C4-5. Has anyone ever used 
the program Dragon anywhere they have a monthly charge. Thank you

Dana

 

I enjoyed the article that  Ishmael shared.

Has anyone heard of the oracle by Jonathan Cahn. It is a fascinating book. My 
caregiver ordered through Sid Roth.com

It was $49 and included six CDs. Information that were not fit in the book. You 
can listen to a lot of YouTube Videos that Jonathan Cahn is in.  It’s hard for 
me to read a book so I enjoy the CDs and YouTube videos.

Thank you

-- Forwarded message -
From: Noel mailto:swl...@gmail.com> >
Date: Fri, Nov 29, 2019 at 8:28 AM
Subject: Re: [QUAD-L] cell phone holder
To: Dana Wray mailto:daano...@gmail.com> >



Dana, this may be the one you have tried already, but I got an adapter
from Permobil that works with Ram X-grip. I can use it for a cell
phone, as well as a tablet. You can get the X-grip in several places,
but I believe the part that mounts to the wheelchair is only available
from Permobil.
http://permobilus.com/product/ram-x-gripphone-holder/

On Fri, Nov 29, 2019 at 3:36 AM Dana Wray mailto:daano...@gmail.com> > wrote:
>
> I keep looking for one I can fit on my permobil, That I can reach there used 
> to be a company that made devices, but I don’t remember the name. I think the 
> owner was a quadriplegic. Does anyone remember the name? I have searched on 
> Google and Amazon.? Thank you so much.The one I am using clamps to my side 
> pad I would appreciate any suggestions. by one side of it just broke.  The 
> one I am using clamps to the side pad by one side of it just broke. I ordered 
> the One that I thought what work with my iPhone, But it’s not sturdy I would 
> appreciate any suggestions. Please forgive my errors it’s hard to correct my 
> iPad.
> Dana C4-five Quadriplegic, 45 years
>
> On Wed, Nov 20, 2019 at 9:26 PM Lori Michaelson   > wrote:
>>
>> That one is very similar to mine but I only used my cell phone in that 
>> manner to watch a movie or a TV series on my bowel regimen nights. I don't 
>> watch TV so I keep my cell phone in a little pouch on my chair and operated 
>> through a Bluetooth to make phone calls. I use my Desktop PC for everything 
>> else.
>>
>> On Wed, Nov 20, 2019 at 7:18 PM Jim Lubin >  > wrote:
>>>
>>> I got a new cell phone holder that claps to my over-the-bed table. This one 
>>> is for phones 4in to 6.3in.
>>> https://smile.amazon.com/dp/B07P2VK93P/
>>>
>>> The old holder turned out was too tight a grip on my phone that it actually 
>>> split the back right off my phone!
>>
>>
>>
>> --
>> “Petting, scratching, and cuddling a dog could be as soothing to the mind 
>> and heart as deep meditation and almost as good for the soul as prayer.” ― 
>> Dean Koontz

[QUAD-L] HAPPY NEW YEAR

[poajoan]

2019 IS OVER  and I am grateful that I am still here, but am really 
looking forward to 2020 being the winning year for wounds.  They are finally 
looking good and I am hopeful that by April or May I will be able to the back 
up in my wheelchair for a reasonable amount of hours.  So I am only looking 
ahead and not behind.

Weather wise, cold but sunny, more snow on the way for the promise of spring to 
come on time.

Health, getting better and better

Garden, seeds are going in this week for artichokes and alpine strawberries, 
and more to follow

Family, they are all busy and healthy, what more can I ask

A new to me van means I can see all over when we are out driving, rear 
entrance, first time in 30 years I can see more than the sidewalks.  

Promise of a new dog in my life, miss my German shepherd Elfie, will look 
forward to new GS

Hearing aids, first time ever on December 31, I can hear.  Now maybe I can take 
a couple of classes and Truckee Meadows community college.

Eyesight, finally got the surgery done and can now see 90 percent of my left 
eye once again.

OK, those are my hopes and dreams for this year, share with us what are yours?

Happy new year to everyone, Embrace would you have and look for something new

Joan

 

 

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

RE: [QUAD-L] SSI disability

[poajoan]

We researched this for my daughter and were told that is the gross income hopes 
of this helps.  Try this link and see if it helps.

https://www.ssa.gov/pubs/EN-05-10095.pdf

 

From: Todd Daugherty  
Sent: Tuesday, October 22, 2019 8:19 AM
To: quad list 
Subject: [QUAD-L] SSI disability

 

Hi everyone.  I've passed my 30yr anniversary and am considering transitioning 
from working full time to SSI disability.  It says that in addition to 
benefits, I can make between 880 and 1220/mo and still receive benefits but I 
cannot find anywhere if that is net or gross.  

 

Any idea on this? Thanks

 

Todd C6 inc '89

RE: [QUAD-L] Telephone

[poajoan]

Hi Raymond

I had been using Samsung since they first came out with the swivel phone and I 
had a very smart techie friend who connected me up with various devices so that 
I could make phone calls and that was probably 14 years ago and I still have 
it.  

As smart phones developed I felt no need to go to iPhone and stayed with 
Samsung.  I usually buy my phones on Ebay just to save money.  I have stayed 
with Samsung Galaxy S6 because I have a couple of devices that will not work on 
newer phones.  Especially my TV controller.

We disabled S voice and install google assistant.  It is sometimes frustrating 
because it will change voices and the way it reads text messages.  The funniest 
part is my sending text messages because I cannot see the phone so sometimes it 
can get a little embarrassing for what it translates my words to.

I have tried the Samsung galaxy S8 that my daughter had, and it seemed to work 
just the same.

If you have any specific questions please feel free to contact me.

Joan

 

From: Raymond Kelly  
Sent: Monday, August 12, 2019 11:01 AM
To: Quad List 
Subject: [QUAD-L] Telephone

 

Hello, I've been using an iPhone SE to communicate back to my nurses when I am 
out on a walk or something. I use Siri to send and receive text messages. 
Lately I have been having a lot of trouble with Siri not responding to me. It 
seems like somebody on here said that a Samsung phone was working well for 
them. I am looking for something that is working well for other people.

Thank you very much and I hope you all have a good week.

 

Raymond C3/4

RE: [QUAD-L] anesthesia worry

[poajoan]

Great advice Randy.  I never did get one of those cards, but I think I will 
look for them.  I have thought about hemorrhoid surgery because mine bleed so 
much, but I cannot be put under completely very easily as I cannot bend my head 
back far enough.  I’m glad it worked for you.  Joan 

 

From: Randy Anderson  
Sent: Wednesday, June 19, 2019 5:43 PM
To: Danny Espinoza 
Cc: poaj...@sbcglobal.net; Shirley Bell ; quad-list 

Subject: Re: [QUAD-L] anesthesia worry

 

I had my gallbladder taken out several years ago, laparoscopically as I 
remember it they had me completely under and I had no problems.
On the other hand, I had hemorrhoid surgery about 2 months ago. I had told my 
doctor, nurses, nurse assistance, anesthesiologists and his assistant that in 
the pass I have had a little trouble in recovery. My blood pressure would get 
high and they would put me back under a little bit and give it more time. I 
don't know if this is normal or if it had something to do with A/D.
The anesthesiologist was not going to put me totally under (my doctor tells me 
it was against his reasoning). Except for throwing up bile from laying on my 
belly things were going okay, and until they started cutting. The dysreflexia 
came on quick shortly after my right here began to pound followed by the left. 
I told them they would have to stop which they agreed. They turned me back onto 
another table and then chose to put a tube down my throat then knocked me out 
completely and started over again. Recovery was kinda lousy.

Suggestions: have them put you under completely.
Talk to your doctors, surgeons, anesthesiologists and nurses. Ask them if they 
are aware of autonomic dysreflexia and if they were are familiar with it. But 
what I failed to do, was asked them how they would treat it if I had it.
When I was in rehab they gave me a plastic card (like a credit card) one side 
has information on automatic dysreflexia, BUT THE OTHER SIDE IS INFORMATION TO 
THE PHYSICIANS ON HOW TO TREAT IT WHILE YOUR STILL IN SURGERY AND AFTER. THE 
DIFFERENT DRUGS TO USE AND HOW TO USE THEM. I had forgot about this card before 
the surgery, but I won't do that again.

 

On Wed, Jun 19, 2019 at 6:25 PM Danny Espinoza mailto:da...@immortaldesigns.co> > wrote:

I had mine taken out laparoscopically with no problems 

 Original Message 
Subject: RE: [QUAD-L] anesthesia worry
From: mailto:poaj...@sbcglobal.net> >
Date: Wed, June 19, 2019 1:16 pm
To: "'Shirley Bell'" mailto:sbell...@cox.net> >, 
mailto:quad-list@eskimo.com> >

Hi Shirley

I would advise you to ask who your anesthesiologist will be and talk to them.  
I just recently had surgery, and was able to talk to the anesthesiologist a 
couple of days before and we discussed my concerns.  Good luck.  Joan 

 

From: Shirley Bell mailto:sbell...@cox.net> > 
Sent: Wednesday, June 19, 2019 10:48 AM
To: quad-list@eskimo.com  
Subject: [QUAD-L] anesthesia worry

 

Hi all, I should have my gallbladder out. I am scheduled for July 11. I am 
worried about AD and going under anesthesia. Any info on the risks or what to 
tell Dr. I only spoke to the Surgeon. Any news on Greg?? thanks 

RE: [QUAD-L] anesthesia worry

[poajoan]

Hi Shirley

I would advise you to ask who your anesthesiologist will be and talk to
them.  I just recently had surgery, and was able to talk to the
anesthesiologist a couple of days before and we discussed my concerns.  Good
luck.  Joan 

 

From: Shirley Bell  
Sent: Wednesday, June 19, 2019 10:48 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] anesthesia worry

 

Hi all, I should have my gallbladder out. I am scheduled for July 11. I am
worried about AD and going under anesthesia. Any info on the risks or what
to tell Dr. I only spoke to the Surgeon. Any news on Greg?? thanks 

RE: [QUAD-L] Test Message

[poajoan]

Still here, we had some conversation a few days ago Joan

 

Life is 10% of what happens to us and 90% how we react to it.

 

 

 

From: Ed Tessier  
Sent: Monday, June 10, 2019 11:45 PM
To: ismaelcavaz...@gmail.com
Cc: Blue 
Subject: Re: [QUAD-L] Test Message

 

Still here as well

 

Ed

 

On Mon, Jun 10, 2019 at 12:22 PM mailto:ismaelcavaz...@gmail.com> > wrote:

Just checking to see if anyone in the Quad list is there.  I haven’t received 
anything lately.  Thank you.




 

-- 

  

 

Edward Tessier

Vice President

191 W 4th Street

Pomona, CA 91766

M (909) 994-5900

 

RE: [QUAD-L] smart phone

[poajoan]

C4 quad, no hands I use Samsung and google.  Not too bad, but I haven’t tried 
anything else

 

From: Annette Storesund  
Sent: Thursday, May 30, 2019 7:12 AM
To: quad-list 
Subject: [QUAD-L] smart phone

 

I am thinking of getting a smart phone. I need to be able to use it be talking 
to it.  Which isbest Google or Siri?

RE: [QUAD-L] Infectious Disease physician

[poajoan]

They are definitely up to date on all antibiotics, and know how to combine for 
the best effect.  I was recently hospitalized over Christmas time and then was 
diagnosed later with Pseudomonas and MRSA, hospital acquired.  They were able 
to put me in the hospital for 14 days on specific IV antibiotics, and the 
months later everything looks good.

 

From: Lori Michaelson  
Sent: Sunday, April 21, 2019 2:49 PM
To: quad-list 
Subject: [QUAD-L] Infectious Disease physician

 

Has anyone had to resort to go into an Infectious Disease Physician? If so, why?

 

I acquired a nosocomial infection (from a hospital) a little over a couple 
years ago and it won't go away. It used to be responsive to oral antibiotics 
(specifically Nitrofurantoin - a.k.a. Macrobid) but it has now become resistant 
to that.

 

My urologist put me on Gentamicin injections but that did not work either. I 
don't have a fever but I am doubled over in bladder pain and flank pain. My 
urologist is at a loss as to what to do saying there is nothing that can be 
done to get rid of MRSA in my bladder. That is what I have.

 

Thanks and Happy Easter!

 

-- 

"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz

RE: [QUAD-L] Pressure sores

[poajoan]

Welcome back Meredith

I can empathize with you about not wanting to eat, especially enough protein.  
I never eat enough at meals to make my daily quota.  You can figure 1/3 g of 
protein daily for each pound that you weigh.  I supplement with a protein drink 
(don’t like Wal-Mart, but I do like their Equate vanilla more than most and it 
has 30 g) .  I don’t care for yogurt, so I eat Oikas Greek yogurt as a medicine 
 15 g.  That gives me 45 g per day, luckily I like cheese and eggs, cottage 
cheese, nuts, and vegetables.  I consider the yogurt and protein drink 
medicine, so I usually eat them in-between meals.  I hope that helps

I don’t suffer from depression but my oldest daughter has and has found 
walnuts, beans, poultry, help her keep more evenly balanced.  Especially 
staying away from sugars.

Good luck, I don’t know where you live but for me and Reno we’re looking 
forward to better weather, hopefully no more snow and very little more rain for 
a while.  Sunshine is my antidote to everything.

Joan

 

Life is 10% of what happens to us and 90% how we react to it.

 

 

 

From: Judy Meredith  
Sent: Thursday, March 28, 2019 1:19 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Pressure sores

 

Hi all, 

It has been awhile since I have been on this list due to my e-mails bouncing or 
something. However I finally got a new address and I hope some of you remember 
me. 

  I have a question for all of you. I have 3 pressure sores, one on each hip 
that are not bad but one on my butt that has tunneled about 6 centimeters but 
is almost closed. Any suggestions? I have been told that I need protein and to 
gain weight but I am not able to eat a lot because I feel nauseous and 
depressed. Please any advice would be appreciated.

 

Meredith  

RE: [QUAD-L] information needed about which tablet to order

[poajoan]

Why don't you just buy a small laptop, that will have speech recognition
built in?  They aren't any bigger than a large tablet.  Great job and good
luck.

 

From: johnny Cammon  
Sent: Thursday, January 31, 2019 9:35 PM
To: Eric Olson ; DEBRA DEW 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] information needed about which tablet to order

 

Does Tablet have a way to install dragon 

  _  

From: Eric Olson mailto:whee...@wi.rr.com> >
Sent: Thursday, January 31, 2019 7:43 PM
To: DEBRA DEW
Cc: quad-list@eskimo.com  
Subject: Re: [QUAD-L] information needed about which tablet to order 

 

Long story short you either need a laptop or a different non dragon dictate
way to use a tablet 

 

On Thu, Jan 31, 2019 at 6:39 PM DEBRA DEW mailto:n14...@hotmail.com> > wrote:

Vocational rehabilitation is going to buy me another PerMobile power chair,
and in order for me to do my work, they are going to get me any tablet my
little heart desires. But the rub is, I have to tell them what to order.

 

I have spent 2 days trying to educate myself about tablets because I have
never owned one before and only use laptops, but I don't think a laptop
would be very practical to be carrying around on a power wheelchair all the
time.

 

 

Below is a 2 minute video showing Stephen Hawking's PerMobile, so you can
see what I am aiming for.

 

I do not even know what the arms that attach to the wheelchair to hold the
tablet are called.it   is hard to search things without
knowing the proper vocabulary.

 

If anyone can give me advice and tell me all the peripherals and goodies I
should order, it would be so greatly appreciated. Because this will be my
one-time opportunity, probably for a decade or 2, to acquire what I need to
be able to get out of bed where I am currently stuck 24 7.

 

I am paralyzed from the neck down from multiple sclerosis, so I have to use
Dragon NaturallySpeaking for absolutely everything; and I need to make
certain the tablet I order can accommodate the Dragon software, because it
needs at a minimum, 28 megs of RAM.

 

I am a bit fearful because from what I have read and can understand and I
could be way off base, a tablet is nothing but an overgrown smart phone.
That is worrying me if it is true..

 

https://www.youtube.com/watch?v=kZ1LO_O6r4k

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9

Formerly: Homeschooling mom of 9 and pvt. pilot

Currently: tetrapeligic due to advanced MS and living in a nursing home hell
18 years

Phone: 561-58 6-9399

SC student 20yrs  . can not brag about my love for YHVH God because I fail
Him daily, but I can brag about His love for me because He never fails me.

ROMANS 8:28. Kindness is the language the deaf can hear and the blind can
see - Mark Twain

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH

THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS
A LOT ABOUT ANTICIPATED TRAFFIC NUMBERS

Jesus is the living word

 

 

Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
Formerly: Homeschooling mom of 9 and pvt. pilot
Currently: tetrapeligic due to advanced MS and living in a nursing home hell
18 years
Phone: 561-58 6-9399
SC student 20yrs  . can not brag about my love for YHVH God because I fail
Him daily, but I can brag about His love for me because He never fails me.
ROMANS 8:28. Kindness is the language the deaf can hear and the blind can
see - Mark Twain 

B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH

THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS
A LOT ABOUT ANTICIPATED TRAFFIC NUMBERS

Jesus is the living word

RE: [QUAD-L] Oldest living Quads

[poajoan]

I know I am not the longest living quad but I will be 80 in April and am now 28 
years post C4 complete.  I have so much to be thankful for, on December 26 I 
was admitted to the hospital septic and with osteomyelitis buried deep in the 
sacrum and covered over.  I don't remember a thing, but it was obviously touch 
and go for several days.  They were able to scrape deep enough to get 
everything out, and my iron levels are now on the upswing from seven to 10.  I 
was able to come home with a wound vacuum, a state of the art 24 hour 
antibiotic pumping system thanks to the doctors who believed in me and my 
support team that I would be better off at home.  I am already feeling much 
better, and have only praise for the doctors and nurses at the hospital.  
Usually there first words were we are not very knowledgeable about high quads, 
so please tell us what you need and how to do it.  My master gardener group has 
been an enormous support, I am so pleased that I took that time five years ago 
to join the volunteer group as it has given me a broader base for help.  I'm 
told it will be several months or up to a year to heal, but with god's help I 
plan to do it.  It sometimes takes so much energy to keep up the social and 
family connections, but I am so grateful that I was able to.  Now im a walking 
talking superwoman, antibiotic pump, wound vacuum, Amazon Echo throughout the 
house so I can turn lights on and off, heaters on and off, fans, call for help 
if my voice activated Samsung S6 dies, voice activated computer, voice 
activated kindle, and hopefully a never ending conviction that my life is worth 
something and then I am still needed for something or somewhere down the road.  
Happy new year to everyone, and may each day of your life be a good one.  Love 
to this great community of ours thanks to Jim Lubin.  Joan

 

 

Life is 10% of what happens to us and 90% how we react to it.

 

 

 

From: Lori Michaelson  
Sent: Saturday, January 05, 2019 9:41 AM
To: Greg ; quad-list 
Subject: Re: [QUAD-L] Oldest living Quads

 

Ditto along with what Greg said except I feel like I am dying of pain and 3 
bacteria that keep coming that are multi-drug-resistant. Thing is... I was 
healthy 3 years ago and it took "one insect to damage so much grain" (Elton 
John's words) when a nurse ruptured my urethra forcing me to have surgery and a 
different type of catheter that I never wanted. Then the hospitals I was in for 
the ones that those bacteria are found in. Then once you get these particular 
bacteria... it's almost impossible to get rid of them.

 

What is more disabling for me or has made quadriplegia 80% harder is acquiring 
Posttraumatic Syringomyelia. I took my endurance down so much that I had to 
quit working back in 1995. Then, when I began to have different caregivers in 
1997 pain started happening. It didn't feel like I was being moved wrong or 
anything but something was going on because it started where the shunt was put 
in (T1 or a little higher) and started moving down my spine and wrapping around 
under my right shoulder blade. A pain medication who keeps it tolerable but if 
I cry it hurts 100% more and the pain lasts for several days, if someone 
touches it or pushes in on that area it hurts badly like now because yesterday 
during a doctor visit she wanted to listen to my lungs and the shunt is put 
into my pleural cavity so I asked her what muscles are around that area because 
if I overuse my right arm (those are the muscles I need to use my only working 
arm) it hurts 100% more.

 

You are probably wondering if my shunt is working or have I been checked out 
and the answer is yes.

 

Almost a year ago or close to it I have been having trouble getting in the 
chair I can't figure out the reason. I only have my live-in caregiver to do it 
with my electric lift. My scoliosis has gotten worse over the last 3 years and 
especially the first year after moving back to Arizona (2016) I was leaking all 
over the place because of my urethra being stretched beyond repair and until I 
could have surgery (or figure out the extent of what happened before that) and 
I had to roll back and forth around 10 times a day and stay in bed because of 
the amount of leaking around my urethral catheter.

 

Since  my husband's death I still have those stress-related Psychogenic 
Nonepileptic Seizures especially when it is a very stressful day and there is 
pain accompanied by it as well as being tired. So those are now a part of my 
life.

 

My lower extremity edema got worse the first three months after moving out of 
here and I wouldn't put it past stress for that to get worse over the years. I 
do everything I'm supposed to do and the compression stockings (gradient or 
otherwise) do not help. My ankles and feet just stretch them out and they are 
not old. So I can't spend as many hours in the chair as I would like to.

 

I now feel like I am just a patient.

 

I am wondering if any of you have and 

RE: [QUAD-L] What would you say & do?

[poajoan]

People say the damnedest things.  Like " when was the last time you fell down?" 
.  Or how do you breathe?  In and out like everyone!

 

Life is 10% of what happens to us and 90% how we react to it.

 

 

 

From: Bobbie Humphreys  
Sent: Saturday, January 05, 2019 4:19 PM
To: Danny Hearn 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] What would you say & do?

 

Dan,

   I had an aunt tell me "If you really wanted to, you could walk."

Bobbie 


On Jan 5, 2019, at 5:29 PM, Danny Hearn mailto:ddh...@sbcglobal.net> > wrote:

True, Bobbiesome folks say the most rude and crazy things...A close 
family friend of ours told me If I was paralyzed like you I could not live 
like that, I would just kill myself. How can people say such stuff like that?  
Plus people talk a lot of smack, It is different IF it happens to them or their 
close loved ones.   Dan H.***

 

On Saturday, January 5, 2019, 4:21:05 PM CST, Bobbie Humphreys 
mailto:bobbiehumphre...@gmail.com> > wrote: 

 

 

I had a nurse, 3rd time here, come Tuesday.

She asked me 

"How long have you been a quad"?

I told her  46 years and she said as she looked to the ceiling  ... very loudly 

"I thank God everyday that I'm not you"!

 

What would have said and done?

Bobbie 

RE: [QUAD-L] Strange Question

[poajoan]

After gallbladder surgery I had 2 have an emergency tracheotomy, that went OK, 
but then one of the nurses knocked it loose and didn’t notice, but luckily my 
attendant had just come to visit and saw that I was turning purple.  She yelled 
for help on when they came the nurse said oh no see her oxygen stats are just 
fine.  My attendant yelled at her and called the code.  That created a little 
bit of hullabaloo, but it worked thank god.

 

From: Bobbie Humphreys  
Sent: Thursday, December 20, 2018 5:32 PM
To: Greg 
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Strange Question

 

For me it was double pneumonia after surgery.

Bobbie 


On Dec 20, 2018, at 8:13 PM, Greg mailto:g...@eskimo.com> > 
wrote:

Since your injury, how many times, because of your injury, have you come close 
to passing?

Me, 3 Times...

OD, medication interaction.

Almost fell in Pool when no one was around, seatbelt on. (I no longer use a 
seatbelt, only chest strap if I go out by myself. Actually a few close calls.

Choking, eating bread, it got stuck very bad. Could not breath. Semi heimlich 
got it out.

Greg

RE: [QUAD-L] have any of you ever taken a vacation?

[poajoan]

Greg

Go for it!  We did a lot of traveling in the nineties, hauling a horse trailer 
and going to horse shows, and really roughing it.  Im past that now, but we 
still travel using hotels.  Lots of preplanning, research, phone calls, but 
still be prepared for the unexpected.  DON’T FLY  I’d love to chat with you and 
give you some ideas.  There are many ways to make it go easier and I envy you 
your relative closeness to Florida and the beaches and warm warm sun.  Please 
feel free to ask any questions, no matter how personal.  I am also a C4 with no 
movement below my shoulders and I love traveling.   Are you within one day of 
travel from home to your destination?  That makes life much easier.

Joan

 

From: Greg  
Sent: Saturday, December 08, 2018 8:34 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] have any of you ever taken a vacation?

 

Calling all adventurous quads.

 

My family and I are wanting to spend a few days in Florida next year, but with 
the exception of hospital stays I have not been anywhere overnight since 
becoming a quad in 1987. I'm a C4, powerchair dependent, 55-year-old, and my 
mother is my sole care provider. We have wanted to take a trip for years but 
can't imagine how to accomplish it. My brother and his family think we should 
take a trip together next year, so having them along will relieve some of the 
stress, but he has serious back problems and would be little or no help for 
mom. Even with them along we can't imagine how to manage being away from home 
overnight, much less three or four nights. 

 

Do any of you have experience with this type trip? Are accommodations available 
in some of the bigger cities along the  Florida Panhandle, say between Panama 
City Beach and Gulf Shores Alabama?  Are Hoyer lifts (or similar equipment) 
available for short-term rental? Are rooms with hospital beds available at some 
or any of the bigger hotels? I have tons of questions to go with the hundreds 
of excuses why we can't do it, but mom and I would really like to see the ocean 
again and spend a few days birding and relaxing on the beach. Can it be done 
without breaking the bank?

 

For the record we are in central Tennessee, and would be driving down in our 
Toyota van. 

 

Advice, suggestions, or experiences from any of you with similar 
mobility/health-related limitations will be appreciated.

 

Greg T. 
Tennessee

RE: [QUAD-L] employer/employee contracts to share

[poajoan]

Drink aide has gone out of business, so the fleximug is a safer choice.  I have 
had the drink aide for several years, and we’ve replaced the mug itself with a 
generic one.  I also have another large drink cup that we put a long flexible 
straw in and zip tie it to a roll around stand so I can always get more to 
drink.

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

 

 

From: Dana Wray  
Sent: Sunday, November 04, 2018 7:40 PM
To: Jim Lubin 
Cc: Eric Olson ; Joan Anglin ; 
Quad-list 
Subject: Re: [QUAD-L] employer/employee contracts to share

 

 Hi fellow members:

 Wondered if anyone would  be willing to share  employer/employee contracts 
they have figured out. I would appreciate any help. 

 Thank you, Dana C 4-5, 44Years post good yeah they are

 

 I wanted to share with you In  great insulated glasses. They have a number of 
links   Of adjustable straws by  Fleming Fleximug. I have been using Drink Aide 
. My straw broke  allowing siphoning causing third-degree burns and I had to 
have surgery and skin graph.  You can buy them through Amazon or Fleming. They 
were made for a mother with MS.   I had a wound VAC and I had to be 
hospitalized.  They are expensive but well worth that cost. They can be use for 
cold or hot drinks. 

 

On Fri, Nov 2, 2018 at 2:14 PM Jim Lubin mailto:jlu...@eskimo.com> > wrote:

I think I did before Mobizen but couldn't get it to work. Vyor is working good 
for me. 

 

Yes, Android, moto g6. When first deciding on which phone to get I could not 
find any way to control and iphone from a Windows pc. I can mirror an 
iphone/ipad to my pc but can't control it. With Android I can use my pc (with 
my adaptive keyboard/mouse) to control the phone.

 

On Fri, Nov 2, 2018 at 10:05 AM Eric Olson mailto:whee...@wi.rr.com> > wrote:

Have you ever tried Airdroid (assuming you have an Android phone)?

 


 

 

Virus-free.  

 www.avast.com 

 

On Thu, Nov 1, 2018 at 7:00 PM Jim Lubin mailto:jlu...@eskimo.com> > wrote:

Glad it works for you! It was working for me, but then it stopped working with 
my new phone. It was mirroring but I was no longer able to control the phone.

 

I am now using Vyor Pro https://www.vysor.io/ 

It works pretty much the same as Mobizen but nothing needs to be running on the 
phone.

 

On Thu, Nov 1, 2018 at 12:34 PM mailto:poaj...@sbcglobal.net> > wrote:

Jim

I want to thank you for telling me About Mobizen.  It has given me another step 
of independence as I now I don’t have to ask for help with my phone.  Each and 
every thing helps just a little.   Joan

 

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

[QUAD-L] Mobizen

[poajoan]

Jim

I want to thank you for telling me About Mobizen.  It has given me another step 
of independence as I now I don’t have to ask for help with my phone.  Each and 
every thing helps just a little.   Joan

 

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

[QUAD-L] 25th, and now 28th anniversary

[poajoan]

I wrote this back three years ago, and I still feel the same way.  Sorry it
is so long.

25 years, a quarter of the century, almost one third of my life.  Where did
the time go from that moment when I fell off the scaffolding and tried to
move my arm and realized it did not respond?  That was the start of my new
life, and although it is not always a home run, it certainly is not a
strikeout either.

So many people who have helped me, encouraged me, devised a little something
that made my life better, cuddled me when I needed it, scolded me when I
needed it, and just simply told me to buckle down and get on with life.
Thanks to each and every one and you know who you are.  Family, friends,
therapists, doctors, and yes many strangers.

To every little kid (some of them not so little but just as curious) who
asked me why I was in a wheelchair, how did I drive my chair without my
hands or arms, who offered to help me, I say thank you and bless you that
you accepted me for the person I am, especially the young one who wanted to
race me and when I won told me to get out of my chair and he would drive it
and win!  I love you all.

I appreciate all of the strangers who are so helpful and kind and open doors
for me without my asking, offer to carry my packages out to my car, ask me
if I would like a drink from my cup on my wheelchair, or would I like
something to eat while I am waiting for someone at the food court to pick up
our orders.  I don't believe for a minute that the majority of people do not
want to help or look down upon me in the wheelchair.  Conversely, I love the
smiles, the how are you doings, and the people who say- isn't it a great day
to be outdoors or shopping or whatever.

To the very few and far between people who say or imply something such as "
my you really know how to use the wheelchair" I try to smile and reply " you
do really well on your feet also" and make them laugh.  They probably will
think twice the next time.

Being a total C4 quadriplegic was definitely not my game plan for my life,
but honestly things could have been worse and I am looking forward to what
the future holds.  I have already outlived by 10 years what they told me at
rehab in 1990, so hopefully the rest will be a piece of cake!  Thanks for
letting me celebrate 25 years.

 

I was going to write something, about today been 28 years, but my child
posted my 25th anniversary letter, and after reading it again and thinking
about what has happened I have nothing more to say.  Life continues on, good
days bad days average days, and I am thankful for all that I have and my
circle of friends and family.  What more can we ask for?

 

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

RE: [QUAD-L] choking

[poajoan]

Boy Greg

It certainly hasn’t been your best period of time the last little bit!  Do you 
use the quad cough assist at all?  We use it every day that I need to have my 
nose blown (and seeing how it’s allergy season that’s quite a bit) and I have 
used it for choking.  I’ve attached a link for a U-tube that I found.  I don’t 
do the second and third steps.  We also use a fist right in the V of the ribs 
pushing upwards rather than the open hand.  One of my favorite things to do 
with the new attendants is to have them learn to do a quad cough, and then when 
they take a CPR first aid ask the instructor how they would take care of a quad 
in a power wheelchair that was choking.  I know, not nice, but it’s fun.  

Take care of yourself, you’re the only one you have.

Joan in Reno where we have finally broken the 57 day over 90°weather streak.

https://www.youtube.com/watch?v=EfR3KF8mYhw

 

From: Greg  
Sent: Friday, August 24, 2018 8:35 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] choking

 

After all things that happened health wise after my chair tipped.
Last week I was eating cornbread, went to take a bite and inhaled a big piece. 
It was stuck in my throat, I could not breath at all. Luckily others were here. 
They could not get their arms around me and the back of my chair. But enough 
pounding on me got it out. Scary stuff. My old hospital room mate and friend 
passed away just like that. A bad few months I've had.
Greg

RE: [QUAD-L] Empty

[poajoan]

No it’s not, I’m here 

 

From: Greg  
Sent: Saturday, June 16, 2018 6:27 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Empty

 

This place is empty.

[QUAD-L] RE: [QUAD-L] Food 菱 prepared

[poajoan]

No, I miss cooking and tasting, and I hate being fed even after all these years!
"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn




-Original Message-
From: Bobbie Humphreys  
Sent: Tuesday, May 29, 2018 2:47 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Food 菱 prepared 

Does anybody else just like having someone else prepare the food ALL the time?
Bobbie 

"Be the change you want to see in the world". Gandhi

RE: [QUAD-L] Drinking Enough

[poajoan]

Exactly, works for me also.  I’ve had one symptomatic bladder infection in the 
last three years!  If it ain’t broke don’t fix it.  

 

From: Greg  
Sent: Sunday, May 27, 2018 7:50 PM
To: the.littleq...@yahoo.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] Drinking Enough

 

I use to get them every few weeks, but now I take a half Bactrim daily. I get 
maybe 1 every year or two now.
Greg

On 5/27/2018 2:46 PM, Amy Elizabeth Baldwin wrote:

Do you get frequent bladder infections?

Sent from Yahoo Mail on Android 

 

 

On Sun, May 27, 2018 at 3:51 PM, Greg

   wrote:

Thats more than I drink in 3 days.
And never water, I hate water. Coffee, Tea coke, juice.
I try and dink more than coffee, tea, but anything cold goes to my bones and 
makes me freeze.
Greg

On 5/27/2018 10:14 AM, Jim Lubin wrote:

I never feel thirsty either. I drink fluids on a schedule (sort of). One full 8 
oz glass of water with my pills 4 times a day. A protein drink, 11 oz, in the 
morning. A 16 oz bottle of water with each meal, lunch and dinner. A glass of 
water with Metamucil in the afternoon. 

 

On Sat, May 26, 2018 at 7:49 PM, Greg  
> wrote:

Even though it is almost 100 degree out and I sit outside for hours, I just 
never drink enough. I just don't get thirsty. I don't like drinking. Any of you 
have that prob?

Greg

 

 

 

RE: [QUAD-L] *IMPORTANT* - Smartphones & Bluetooths

[poajoan]

Cell phones are frustrating I agree.  I used the Samsung S4 for years, and 
batteries are easy to get on Amazon for future reference, but recently moved to 
T-Mobile because of their $30.00 a month for people over 55 and my Samsung S4 
would not work.  I went on Ebay and bought a Samsung S6 for $200 new.  I don't 
have any movement below my shoulders and we have found that a simple earbud 
(wired) plugged into my cell phone allows me hands-free totally access to the 
phone.  I didn't like the wire at first, but is really unobtrusive and I do 
have my phone attached to my chair because I am alone 6 to 8 hours a day and 
want it with me at all times.  It was a total of $10.00 on Amazon with its 
microphone, and we cut off one of the earbuds as I only use one.  Cheap 
solution.  I will ask my evening care giver what Bluetooths she uses a she has 
an galaxy S7 and she says it's totally hands free.

 

 

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

 

 

From: Lori Michaelson  
Sent: Monday, May 21, 2018 1:59 PM
To: quad-list 
Subject: [QUAD-L] *IMPORTANT* - Smartphones & Bluetooths

 

Hi all,

 

Please bear with me as I am going to try to describe my problem as best as I 
can.

 

I have been using the same Bluetooth (Motorola H720) since my husband & I 
started using a cell phone and this, of course, was was before his passing In 
June of 2012 and which were the flip phones. 

 

Then after he died and I moved in with my sister and brother-in-law I switched 
over to my first Smart Phone (Samsung Galaxy 4) that I only use for calling 
people & asking people to take photos with but primarily I need a bluetooth 
and, without question, a Bluetooth and a cell phone that are compatible for not 
only when I am alone on walks or if I decide to spend a day or two in bed and 
my caregiver leaves to grocery shopping Or pick up my prescription or any 
number of things and I need to call out help. ButI also use it to call friends 
or family when she is gone.

 

My Samsung Galaxy 4 [that I got that in 2013 or 2014] began acting up [would 
not hold a charge] so I went and bought the next least expensive  phone since I 
only use it for calling people and I got the same cell phone that my niece uses 
(Samsung Galaxy 7) Because I am on her cell phone plan through Verizon since I 
can't afford any more than $30/month. I got that phone through Verizon  and so 
I went to Verizon to get a new phone (the Samsung Galaxy 7] but we can't get my 
Motorola H720 to pair with the new phone. I got the phone at Verizon but they 
can't get it to work so they suggested calling Verizon tech support. So with my 
niece here visiting  she has been trying her best to get it to work (the 
Bluetooth and my new phone that was $480 and that they will not take back) 

 

My niece has now been to Verizon (store where I got my new phone) she went to 
them twice again to get the manager or whoever to try to get it to work 
together! THERE IS NO REASON WHY THE TWO SHOULD NOT BE COMPATIBLE PART OF THE 
TIME BUT NOT ALL THE TIME and it took us a while to even do that after changing 
things a bit because all of my contacts were transferred over originally by 
Verizon when I got a new phone and they doubled every contact. We tried to 
remove all those "doubles" and trying a variety of things but it is ABSOLUTELY 
MADDENING since I need a phone and a Bluetooth to be compatible for emergency 
reasons and yet we are getting nowhere.

 

Finally my niece went to Verizon again today to see if they would take the 
phone back (which they won't) to go back to using my older phone (Samsung 
Galaxy 4) and getting a new battery for my old phone which we are currently 
doing but she had to go to numerous places to try to get a battery for my old 
phone. She finally went to a place here called "Batteries Plus" which did carry 
batteries for my old cell/smartphone which we are trying to charge now.

 

Thankfully, my niece was coming out from PA for a visit because of all I have 
gone through (losing my best friend and companion "Leia" and having my main 
caregiver in California for 9 days which is the first time I have been 
completely alone) and we thought she would be able to figure it out simply 
because she has the same model of cell phone BUT does not use a Bluetooth 
whereby I NEED one.

 

When my husband was alive we tried all kinds of Bluetooths and with the limited 
movement I have with my right hand and using my knuckle - the Motorola H720 is 
the only one we could find to work with our flip phones and that it transferred 
over to my Samsung 4 in 2013 or 2014 and working fine. 

 

We need to get this figured out for emergencies and going for walks and needing 
to reach someone as well as to use it and hear it through my ear as well as 
privacy. I do not need it or want it to go to my power chair armrest or 
anything else since I do not need that especially when outside or 

RE: [QUAD-L] 45th Anniversary

[poajoan]

Time flies when we're having fun!  It's called living, and for those of us who 
do live in a chair it's definitely an alternate lifestyle.  But what's the 
answer?  You have been so helpful to so many over these last years, that it 
puts another spin on what's fair.  You know yourself and that you will go on 
standing sitting because there's people who still need you and your wisdom, 
congrats on making the best out of the worst.  The best to you, Joan 

-Original Message-
From: Bobbie Humphreys  
Sent: Tuesday, April 17, 2018 9:45 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] 45th Anniversary

Today is 45 freaking YEARS since I fell off a 250 Kawalski and broke C 5,6 at 
17 years old

My body is truly falling apart and hurts like HELL!

I met Pete 9 years later and he's STILL taking care of me 24/7/365. Bless his 
heart ❤️ 

I went to college, traveled, was bad, was good

I don't know how much longer I can stand sitting. I just found out I have a 
stage 4 wound and I was only getting up every other day for 7-8 hours a day And 
that's with Pete checking my skin EVERY day ... it just "cropped up" 

I hope you newbie's have a better Road then us old timers Bobbie 

"Be the change you want to see in the world". Gandhi

RE: [QUAD-L] Using a GlassOuse Assistive device to control a smart phone - YouTube

[poajoan]

I much prefer my Samsung galaxy set up with google and an ear bud for 
hands-free phone usage.  It even looks somewhat normal for people who are 
concerned about that.  I also use the program Jim suggested Mobizen.  For my TV 
and music and household lights fans heaters front door I use Amazon Alexa   
didn't even come to 500 .  Also, I'm lucky that I don't need glasses, but I 
can't imagine how annoying it would be when they slide on my nose and I could 
not push them up.  LOL

 

 

 

From: Jim Lubin  
Sent: Sunday, April 15, 2018 5:44 PM
To: Quad-list 
Subject: [QUAD-L] Using a GlassOuse Assistive device to control a smart phone - 
YouTube

 

https://www.youtube.com/watch?v=zaq4N9FHK4w 
 =share

 

Click on this link if you want to buy a GlassOuse: http://glassouse.com/

 

A GlassOuse is an assistive device which  can be used to control  a PC, smart 
phone  or even a smart TV. In fact any device which  uses Bluetooth can be 
controlled with it.  

RE: [QUAD-L] tongue control versus sip and puff?

[poajoan]

27 ½ half years ago I had tongue touch keypad system that had a retainer type 
in the roof of my mouth and I activated the buttons with my tongue.  Could run 
the computer, and they did a prototype wheelchair I tried out.  Funding fell 
off and it never went anywhere permanent.  I still have my insert, little piece 
of history 

 

Joan, waiting for snow to night!  Where is spring?

 

From: Jeffrey Gaede  
Sent: Sunday, April 15, 2018 2:52 PM
To: Randy Anderson ; quad-list 

Subject: Re: [QUAD-L] tongue control versus sip and puff?

 

Amazing technology. I wish the inventor and the one user would have just 
referred to it as an alternative. As a longtime sip and puff chair user, I can 
make my chair dance. To call sip and puff "very slow" and "like Morse code" is 
kind of ridiculous. I would challenge my ability of sip and puff against any 
other type of use for driving a wheelchair, which is what you do with a 
wheelchair. The fact that this technology allows for other uses, like computer, 
cell phone etc. is pretty amazing. But that can be used whether or not someone 
is using sip and puff with the wheelchair. It's great technology. I hope they 
keep finding different ways to make life better for us, but I don't see any 
reason to put down sip and puff technology in order to propagate this 
technology. Thanks for the article! Jeff

 

  _  

From: Randy Anderson  >
To: quad-list  > 
Sent: Sunday, April 15, 2018 2:26 PM
Subject: [QUAD-L] tongue control versus sip and puff?

 

I found this article kind of interesting, as a sip and puff user.
http://www.foxnews.com/health/2013/11/27/tongue-controlled-wheelchairs-prove-effective-for-quadriplegic-patients.html

 

RE: [QUAD-L] Protein for wound healing

[poajoan]

I just usually make a protein shake 20 G's of protein a day.  Good luck

 

 

 

From: Don Smith  
Sent: Thursday, March 15, 2018 11:13 AM
To: Dave Krehbiel 
Cc: quad-list 
Subject: Re: [QUAD-L] Protein for wound healing

 

​I have a small pressure wound and I take zinc, vitamin A, D3 and a multi 
vitamin and it helps healing.

 

 

On Wed, Mar 14, 2018 at 2:36 PM, Dave Krehbiel  > wrote:

I have a wound on my backside, and it has been very very close to being 
completely closed. Sometimes it will stay close for a day or two, as it is now.

 

My wife has been buying Juven Therapeutic Nutritional Powder, and we think it 
is helping, but it is very expensive. Recently she has been buying it on 
Amazon, but it seems expensive, about a dollar for a package (I take one or two 
daily). 

 

Does anyone know of any less-expensive sources?

 

Or, does anyone recommend a different sort of nutritional or protein powder, or 
other source of protein?

 

Thanks so much, and take care,

 

Dave Krehbiel

(301)924-4530  

 

 


 

 

Virus-free.  

 www.avast.com 

 

RE: [QUAD-L] Heart Issue. Long Time Quad

[poajoan]

Ironically I had a murmur when I broke my neck, but it is gone away over the 
years.  Good luck

 

From: Greg  
Sent: Wednesday, March 14, 2018 4:09 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Heart Issue. Long Time Quad

 

Any of you long time quads have heart issues?
Did an EKG, They said I need to see a Cardiologist.
They said might be a murmur, might be a little fluid around the heart, from 
lack of mobility.

Greg

RE: [QUAD-L] question

[poajoan]

Hi

C4 here since 1990

I do bowel care every day, and take Miralax, Benefiber and a Probiotic 
everyday.  Pretty clear sailing most of the time.  Recommended by my Internist 
nine years ago. 

Joan

"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn

 

 

 

 

From: Val Cleroux [mailto:vcler...@rogers.com] 
Sent: Monday, February 26, 2018 5:35 PM
To: Quad List 
Subject: [QUAD-L] question

 

 

 

I am a C5/6 quadriplegic due to a motor vehicle accident in 2000.

 

I am wondering what other quads d take as a stool softener the night before 
about treatment? I have been taking milk of magnesium pills, three at 5 PM, 
three at 8 PM and a 30 mL of liquid at that time. I am looking for another 
solution as this has created kidney stones as the pills have a high percentage 
of calcium.

 

Thanks in advance for anyone who can help me out.

 

Val Cleroux

"Communication is the key to success"

 

RE: [QUAD-L] Illness

[poajoan]

Doing good here, nobody's really gotten sick but I have been very careful
not to be up about too much, too much flu going on.
"Nothing is impossible, the word itself says I'm possible" Audrey Hepburn




-Original Message-
From: Bobbie Humphreys [mailto:bobbiehumphre...@gmail.com] 
Sent: Wednesday, February 07, 2018 12:17 PM
To: Nichole Rohling 
Cc: Larry Willis ; quad-list@eskimo.com
Subject: Re: [QUAD-L] Illness

A lot of people in my apartment building got sick Pete was sick for 2 weeks
but it was just a bad cough And he still took care of me and I never got
sick I won $100 in our building's super bowl pool Bobbie 

"Be the change you want to see in the world". Gandhi

> On Feb 7, 2018, at 2:47 PM, Nichole Rohling 
wrote:
> 
> I am in Oklahoma and it is terrible here! I have only left my house 4 
> times since Dec 23 and 2 of those times I didn't get out of my vehicle.
> Not worth the risk!
> Why are you sleeping in your chair?
> 
> Nicki
> 
> -Original Message-
> From: Larry Willis [mailto:lwillis82...@gmail.com]
> Sent: Wednesday, February 7, 2018 1:35 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Illness
> 
> Guys, how is the sickness in your neighborhood? It is simply awful 
> here. I think everyone I know is or has been sick. I have slept in my 
> chair since Christmas. It is like a plague.
> 
> Sent from my iPad
> 
> 

RE: [QUAD-L] Colonoscopy

[poajoan]

Started backing off solid foods five days before, three days before went to 
soups, 1 1/2 to 2 days before clear liquids only.  I've had three, and by doing 
this I had very little problem with a clean out.  Not fun, but my first time 
was awful and I figured I'd never do that long routine again

 

 

From: Derrick Winegardner [mailto:wheelsdw...@gmail.com] 
Sent: Monday, February 05, 2018 7:40 PM
To: Annette Storesund ; quad-list@eskimo com 

Subject: [QUAD-L] Colonoscopy

 

What did you eat on the days before colonoscopy?
I have to get one on Monday
Derek



On January 23, 2018, at 12:51 PM, Annette Storesund  wrote:



I am a Quadriplegic and when I go number two, it involves digital stimulation. 
Some how my caregiver accidentally irritated the lining causing it to bleed 
when I go.  It has been going on for a week. We don't know what to do about it. 
 It has never happened before.  I have always done my bowel route with digital 
stimulation and removal.

does anyone have ideas how to deal with the irritation and bleeding?

 


 

 

Virus-free.  

 www.avg.com 

 

RE: [QUAD-L] New Chair

[poajoan]

I believe so, just is not approved as the new company did not continue the 
process

It’s too bad, because it is an awesome chair and I feel so secure.  It’s not 
fast!!  But I can climb a 30° hill with no problem, and I can go sideways along 
a hill and not feel that I’m going to Tip over to it

 

From: zzol...@gmail.com [mailto:zzol...@gmail.com] On Behalf Of Eric Olson
Sent: Tuesday, February 06, 2018 10:29 AM
To: poaj...@sbcglobal.net
Cc: Greg ; Quad-list Post 
Subject: Re: [QUAD-L] New Chair

 

Do they still make the omegatrac?

 

On Tue, Feb 6, 2018 at 11:27 AM,  > wrote:

That is exactly why I don't want the mid-wheel chair.  I live on the hill 
rocks, dirt, and thank god for my omega trac even though it is 15 years old.

 

 

 

From: Greg [mailto:g...@eskimo.com  ] 
Sent: Monday, February 05, 2018 6:49 PM
To: quad-list@eskimo.com  
Subject: [QUAD-L] New Chair

 

My new chair is not as powerful as my last. I guess its a trade off with speed.
I was on a dirt road and pulled off to the side for a truck, got stuck.
No torque, once I did get moving, it would not turn.
While stuck, twice cars came right by me, I'm waving both arms... they just 
waved back.
Had to call home. They couldn't pull me out either, but a nice guy saw them 
trying and stopped to help.
I need fatter tires, on the front too. Mid wheel chair

Greg

 

RE: [QUAD-L] New Chair

[poajoan]

That is exactly why I don't want the mid-wheel chair.  I live on the hill 
rocks, dirt, and thank god for my omega trac even though it is 15 years old.

 

 

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Monday, February 05, 2018 6:49 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] New Chair

 

My new chair is not as powerful as my last. I guess its a trade off with speed.
I was on a dirt road and pulled off to the side for a truck, got stuck.
No torque, once I did get moving, it would not turn.
While stuck, twice cars came right by me, I'm waving both arms... they just 
waved back.
Had to call home. They couldn't pull me out either, but a nice guy saw them 
trying and stopped to help.
I need fatter tires, on the front too. Mid wheel chair

Greg

RE: [QUAD-L] Rested

[poajoan]

Hi Jeff

I have AnyMote home which has been discontinued, you can still buy it from 
third party on Amazon.  It runs many different remotes.  I think they are 
working on the software for the same thing now, but I'm afraid to mess up what 
I have working.  I use it on the TV and with direct TV, it also works with 
music systems.  There's nothing worse than waking up and realizing that I'm 
going to have to watch 3 hours old infomercials.  Joan

 

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Sunday, February 04, 2018 3:16 PM
To: poaj...@sbcglobal.net; 'Eric Olson' 
Cc: 'Quad-list Post' 
Subject: Re: [QUAD-L] Rested

 

I'm starting to think however much sleep I get is just the way it goes. Hey, 
how are you changing the channel on your TV through your echo? I have no cable 
whatsoever. Are you changing a cable box or the actual TV and how? Jeff

 

  _  

From: "poaj...@sbcglobal.net  " 
 >
To: 'Jeffrey Gaede'  >; 'Eric 
Olson'  > 
Cc: 'Quad-list Post'  >
Sent: Sunday, February 4, 2018 3:05 PM
Subject: RE: [QUAD-L] Rested

 

I have never been a good sleeper, and not being able to move when I wake up is 
a pain in the neck-literally!!  If I consistently get less than 5 hours per 
night I will take an ambien, but I’d try to keep it to a minimum and only use 
one 30 pill prescription per year.  I usually just switch channels on the TV 
(thank you Amazon Echo)  and get what sleep I can.  We have had such a mild 
winter that I have been able to be outside a lot, and that makes it easier for 
me to sleep.

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Sunday, February 04, 2018 11:18 AM
To: Eric Olson  >
Cc: Quad-list Post  >
Subject: Re: [QUAD-L] Rested

 

I'm sure my doctor would prescribe whatever but I'll probably do without. I did 
visit a sleep clinic last week and they are going to test my oxygen while 
sleeping. I don't think that's the problem but whatever…

 

  _  

From: Eric Olson  >
To: Jeffrey Gaede  > 
Cc: Quad-list Post  >
Sent: Sunday, February 4, 2018 11:12 AM
Subject: Re: [QUAD-L] Rested

 

I finally gave up 2 years ago and started taking sleeping meds.  At the time, I 
rarely slept more than 2 hours straight.  I figured I was doing more damage to 
my brain by never getting any rest than taking something.  I was an insomniac 
before my injury.  Then add not being able to reposition at will.  Now I pop an 
ambien every other night.

 


 

 

Virus-free.  

 www.avast.com 

 

On Sat, Feb 3, 2018 at 7:15 PM, Jeffrey Gaede  > wrote:

Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff

 

 

 

RE: [QUAD-L] Rested

[poajoan]

I have never been a good sleeper, and not being able to move when I wake up is 
a pain in the neck-literally!!  If I consistently get less than 5 hours per 
night I will take an ambien, but I’d try to keep it to a minimum and only use 
one 30 pill prescription per year.  I usually just switch channels on the TV 
(thank you Amazon Echo)  and get what sleep I can.  We have had such a mild 
winter that I have been able to be outside a lot, and that makes it easier for 
me to sleep.

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Sunday, February 04, 2018 11:18 AM
To: Eric Olson 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] Rested

 

I'm sure my doctor would prescribe whatever but I'll probably do without. I did 
visit a sleep clinic last week and they are going to test my oxygen while 
sleeping. I don't think that's the problem but whatever…

 

  _  

From: Eric Olson 
To: Jeffrey Gaede  
Cc: Quad-list Post 
Sent: Sunday, February 4, 2018 11:12 AM
Subject: Re: [QUAD-L] Rested

 

I finally gave up 2 years ago and started taking sleeping meds.  At the time, I 
rarely slept more than 2 hours straight.  I figured I was doing more damage to 
my brain by never getting any rest than taking something.  I was an insomniac 
before my injury.  Then add not being able to reposition at will.  Now I pop an 
ambien every other night.

 


 

 

Virus-free.  

 www.avast.com 

 

On Sat, Feb 3, 2018 at 7:15 PM, Jeffrey Gaede  > wrote:

Anybody have answers to trouble sleeping or at least feeling rested when first 
awake, besides medication of any kind? Jeff

 

 

RE: [QUAD-L] Voice Typing

[poajoan]

  I just use speech recognition which is built into every PC with windows.  
Works well for me.

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Saturday, February 03, 2018 6:49 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Voice Typing

 

For those that don't have Voice Typing programs like Dragon, Google Docs does 
pretty good.
It's an online Word Processor like thing.
https://docs.google.com/
You have to use Chrome.

Doesn't look like you can use it on emails, etc., but you can type it there 
then copy/ paste.
Though it might work on gmail since its Google too.

Greg

RE: [QUAD-L] treating rectal raw spot

[poajoan]

I have not had an accident during the day for over three years, and I only have 
had one night time I accident when I had diarrhea.  Bowel care normally only 
takes about 10 to 15 minutes daily.  I have an overhead lift which sits me on 
the commode chair.  Since I am a C4 I have no upper body balance so the sling 
holds me up right.  It took me several months of experimenting to find what 
works for me.  I'm 78 and most people of my age are having digestive and bowel 
problems anyway, so I am very happy with my routine.

 

 

From: Derrick Winegardner [mailto:wheelsdw...@gmail.com] 
Sent: Thursday, January 25, 2018 9:02 PM
To: poaj...@sbcglobal.net; Annette Storesund ; 
quad-list@eskimo com 
Subject: Re: [QUAD-L] treating rectal raw spot

 

Did you only do bowel care in morning and had no accidents? I do every other 
morning.
Did you sit on toilet or Hoyer lift every morning?
I was thinking of sitting on commode chair all day , the prep day since I am to 
drink Gatorade mirlax  and ducolox all day. That has to go through your 
digestive system



On January 25, 2018, at 1:10 PM, poaj...@sbcglobal.net 
  wrote:



I have had three colonoscopies I cut back on bulky foods seven days before, go 
to liquid soups etc four days before and two days before just clear liquids.  
Cleaning out went quite easily, luckily I have an overhead lift, and I just got 
comfortable on the commode chair with the lift holding me in place for about 90 
minutes.  Did dig stim in the am and had the procedure done at 11:00 AM.  Did 
not check into the hospital until 90 minutes before the procedure.  Easy peasy 
and no problems.  Good luck.  By the way, we do bowel care every day first 
thing in the morning.Joan

 

 

 

From: Derrick Winegardner [mailto:wheelsdw...@gmail.com 
 ] 
Sent: Wednesday, January 24, 2018 7:01 PM
To: Annette Storesund  >; 
quad-list@eskimo.com  
Subject: Re: [QUAD-L] treating rectal raw spot

 

I had hemorrhoids removed..
But I have spots of blood on  bed pad some time and after a bowel  movement. No 
blood during bowel movement.
I was to have colonoscopy in 2 weeks.
Any advice how to prep & AD concerns?
Derek



On January 23, 2018, at 12:51 PM, Annette Storesund  > wrote:

I am a Quadriplegic and when I go number two, it involves digital stimulation. 
Some how my caregiver accidentally irritated the lining causing it to bleed 
when I go.  It has been going on for a week. We don't know what to do about it. 
 It has never happened before.  I have always done my bowel route with digital 
stimulation and removal.

does anyone have ideas how to deal with the irritation and bleeding?

 


 

 

Virus-free.  

 www.avg.com 

 

RE: [QUAD-L] treating rectal raw spot

[poajoan]

I have had three colonoscopies I cut back on bulky foods seven days before, go 
to liquid soups etc four days before and two days before just clear liquids.  
Cleaning out went quite easily, luckily I have an overhead lift, and I just got 
comfortable on the commode chair with the lift holding me in place for about 90 
minutes.  Did dig stim in the am and had the procedure done at 11:00 AM.  Did 
not check into the hospital until 90 minutes before the procedure.  Easy peasy 
and no problems.  Good luck.  By the way, we do bowel care every day first 
thing in the morning.Joan

 

 

 

From: Derrick Winegardner [mailto:wheelsdw...@gmail.com] 
Sent: Wednesday, January 24, 2018 7:01 PM
To: Annette Storesund ; quad-list@eskimo.com
Subject: Re: [QUAD-L] treating rectal raw spot

 

I had hemorrhoids removed..
But I have spots of blood on  bed pad some time and after a bowel  movement. No 
blood during bowel movement.
I was to have colonoscopy in 2 weeks.
Any advice how to prep & AD concerns?
Derek



On January 23, 2018, at 12:51 PM, Annette Storesund  wrote:



I am a Quadriplegic and when I go number two, it involves digital stimulation. 
Some how my caregiver accidentally irritated the lining causing it to bleed 
when I go.  It has been going on for a week. We don't know what to do about it. 
 It has never happened before.  I have always done my bowel route with digital 
stimulation and removal.

does anyone have ideas how to deal with the irritation and bleeding?

 


 

 

Virus-free.  

 www.avg.com 

 

RE: [QUAD-L] Hurt Hair

[poajoan]

Yep, know the feeling well, by morning there is always one place I have slept 
wrong and my hair hurts!  

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Saturday, December 23, 2017 2:42 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hurt Hair

 

Now that its colder and I’m wearing hats, etc. I’m having real issues with 
“Hurt Hair” Where it feels like your hair hurts when you touch it. From having 
your hair bent backwards too long. Who would think hair could hurt so bad.


Greg

[QUAD-L] Another use for Amazon Echo

[poajoan]

Regarding Amazon Echo and the benefits that has given me. Just wanted to
pass on some very important information for those of us who cannot
physically hang up the phone.  This morning I was unable to get in touch
with my daughter.  She is a diabetic, and I am a C4 quadriplegic complete.
After several tries she answered the phone but it was very apparent that her
sugar level was dropped as she was not making sense and would not hang up
her phone.

A few days ago I downloaded the Mastermind App and paid $15.00 to be
included in the beta testing.  I used it a couple of times just to try it
out.  Today, I used the app to tell it to call my daughter in law, and while
I was unable to use my own cell phone with voice, it went ahead and used my
phone putting my call to my daughter on hold.  What a fantastic feeling to
know that I have more than one way to contact someone in case of an
emergency.

Another app or skill on the echo is one called Guardian Circle.  Later today
I’m going to enable that.  It allows you to make an unlimited number of
emergency calls or texts by just telling Guardian Circle that you have an
emergency.  A huge bonus is that it opens an alert center so that your
rescuers can communicate with each other even if they do not know them.
That way everybody is aware of what is going on, even if they enter later.
TECHNOLOGY IS MARVELOUS and Amazon Echo is paving the way for those of us
who are disabled.

Joan in sunny Reno 39° and 2 inches of snow, beautiful.

RE: [QUAD-L] Cell phones

[poajoan]

I have had the most success with my Samsung Galaxy S4.  This is my second one, 
just bought it recently for $90.00 new.  I’m staying with the S4 at the present 
because it works with my AnyMote and Amazon Alexa.  I purchased an expanded 
battery for the S4 from Amazon for $23.00 which enables it to be on the entire 
day.

This is my configuration: Dragon Mobile Assistant with attentive mode turned 
on, hands free mode (not driver mode) turned on.  There’s an application called 
Screen On which allows the screen to stay on at all times, but I find it 
annoying.

I just say Hello Dragon and it wakes up.  Without Screen On it sometimes takes 
30 or 40 seconds to wake up.  I use a wired earphone—Bluetooth does not work 
for me anymore, but it used to-go figure!  I can send texts, turn on the GPS, 
of course phone calls, search the Internet but since I can’t use my hands I 
cannot scroll through the pages, most importantly for me I can have a private 
conversation.

It’s the best that I have found.  Hope this helps.  Joan

 

From: Jeffrey Gaede [mailto:jsga...@yahoo.com] 
Sent: Monday, December 11, 2017 4:58 PM
To: Jim Lubin 
Cc: Quad-list Post 
Subject: Re: [QUAD-L] Cell phones

 

I'm really resisting sesame because you have to be right in front of the phone 
in order for it to work. Have you tried it out? I'm thinking that my type of 
emergencies would likely call for me not being directly in front of the phone, 
which I know leaves me something like Google Assistant, but I was curious if 
there is something else

 

  _  

From: Jim Lubin  >
To: Jeffrey Gaede  > 
Cc: Quad-list Post  >
Sent: Monday, December 11, 2017 4:46 PM
Subject: Re: [QUAD-L] Cell phones

 

I suggest an Android phone that works with Sesame Enable.

Take a look at their website https://sesame-enable. com/ 
 

 

Even if you don't use Sesame Enable, Android has built-in voice access

https://support.google.com/accessibility/android/answer/6151848?hl=en 

 _topic=6151842

 

On Mon, Dec 11, 2017 at 3:41 PM, Jeffrey Gaede  > wrote:

What are the best cell phones and/or apps for complete hands-free use that you 
guys know of?

 

 

RE: [QUAD-L] So Cold

[poajoan]

After 27 years my body seems to have adjusted to the colder weather somehow.
I still get really cold, but when the sun is shining I feel so much better.
I do have the wood stove with a glass door so that I can see the flames,
portable infrared heaters that I control with Amazon Echo, and of course a
lot of sun!  Today the high is supposed to be 34°, and it was 14°overnight.
My house is designed to let in all the winter sunshine, so I can bask in the
sun to my heart’s desire until 3:00 PM when it goes down!

 

From: Greg [mailto:g...@eskimo.com] 
Sent: Thursday, December 07, 2017 6:54 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] So Cold

 

I feel guilty complaining, my lows are 66 today. Those guys where it snows,
etc. I remember those days.
Moving to AZ best thing I ever did.
Greg

On 12/6/2017 6:48 PM, Lissette Whitehead wrote:

Tell me about it! I live in Rosarito Beach, Mexico, I went out today for a
little while and I could barely handle it, I was having trouble driving my
power chair cause I was shaking so bad, my boyfriend had to drive me. My
neck and shoulders are so sore, I have trouble falling asleep at night. Wine
is the only thing that helps but I can't be drinking wine every day. Ginger
with cinnamon tea helps a bit too. Seriously, I feel for those living in
colder regions.

 

Stay warm guys!

 

 

Lissette Whitehead

416 W. San Ysidro Blvd.

San Ysidro, CA 92173

www.lwgripgloves.com  


  _  

 

   

  
  _  


  From: Greg 
Sent: Wednesday, December 6, 2017 5:37 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] So Cold 

   

  We finely started getting some cooler
weather. I’m miserable. Just shaking cold. Hats, hoodie, blanket, coffee,
etc. I’m shaking so bad I can hardly type. I don’t know how you guys can
take it in colder areas.

   

  Greg

   

RE: [QUAD-L] I hate this most about being a quadriplegic - From LQ

[poajoan]

I’d love to cook, but since I cannot I get to sit in the kitchen and teach 
people how to cook!  And I get to do the tasting.   I do hate being fed, but 
unless I face plant that’s the only way I get anything down.  27 years and it 
still bothers me, but most of the time I try not to be too picky but I hate 
having to say now some meat, now potato, salad please.  But I still enjoy food 
and today I was able to teach a friend how we make pineapple chicken curry, and 
it was really good.  Have a great day everyone, I’m sure going to try to.  Joan

 

From: Amy Elizabeth Baldwin [mailto:the.littleq...@yahoo.com] 
Sent: Monday, October 23, 2017 2:35 PM
To: bobbiehumphre...@gmail.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] I hate this most about being a quadriplegic - From LQ

 

I'm blessed with the ability to feed myself and I do it every time I can. 

I have to have someone else cook for me, I don't think I want to take a chance 
on getting burned! 

 

LittleQuad 

Sent from Yahoo Mail on Android 
 

 

On Sat, Oct 21, 2017 at 7:41 PM, Bobbie Humphreys

 > wrote:

There is on thing I hate most about being a quad and that's having a meal 菱 
made for me.

 

First of all, I love, love ❤️ to cook ‍ and shop for food. When someone asks 
me "What do you want for lunch or dinner"? 

Well, I don't know 路‍♀️ until I look  in the refrigerator then I know what's 
there or decide when I SEE what's there. 

 

Then there's the matter of HOW it's cooked or made, like a sandwich.

Everybody make things differently.

 

I'm extremely grateful that I can feed myself, I just know I wouldn't like that 
either.

 

How about you guys?

Bobbie 

 

"Be the change you want to see in the world". Gandhi

[QUAD-L] Microsoft Vista

[poajoan]

Hi Naomi.

 

I use Dragon Naturally Speaking 9.1 on my desktop computer-which I have on
my bedside table right now since I am confined to bed for another six
weeks-and I use Microsoft Windows XP Pro. My new laptop has Microsoft Vista
installed, and as I have been talking to Dana about it, I like it very much.
My only problem with the speech recognition program that comes with Vista is
with the extreme sensitivity of the Start Listening command. Because it
begins with an S, and S is very common in everyday speech, it is
constantly turning itself on. Unless I notice it, it will execute 20 or 30
commands, and then be hopelessly screwed up as far as I'm concerned! I am
using a lapel microphone, which has an on/off switch on the cord. We're
going to install a pillow switch in place of the on/off switch, and then I
can just bump it and turn off the microphone.

 

When I am working in a quiet environment-not very often I might add-it
speeds right along and is a joy to use. They have added many new features
that make speech recognition a real workhorse. They also have installed, way
too many for my taste, security checks that will pop up and disable Speech
Recognition. However, one can just go into the control panel under security
and take care of the problem.

 

My son actually partitioned my laptop, so I have one part that works with
Vista and the built-in Speech Recognition, and the other partition has
Windows XP and Dragon NaturallySpeaking 9.1 installed. I was afraid I would
not like Vista because it was so new, and all the bugs hadn't been worked
out, so I wanted to be able to use the laptop with Windows XP. After three
weeks, I have not gone to that partition, and I am enjoying Vista.

 

The cost of the microphone and a pillow switch will be less than upgrading
to Dragon 9.5 I am sure. As I told Dana, try it you might like it.

 

Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 15, 2007 5:34 PM
To: quad-list@eskimo.com
Subject: Re: FW: [QUAD-L] TV Shows on Computer

 

Merrill,

 

I was able to get the TV on my computer.  I just needed the website.  I
watched the CSI episodes that I missed.  I just got a new laptop about a
month ago.  It also has Windows XP Media Center.  My husband was told to
bring it back with the receipt and they would install Windows Vista for
free.  I wasn't sure about getting Vista, because I use Dragon Naturally
Speaking 9.0 and I heard that they weren't compatible. 

 

Naomi
C-4 quad since July 2, 2005
Transverse Myelitis





  _  

AOL now offers free email to everyone. Find out more about what's free from
AOL at  http://www.aol.com?ncid=AOLAOF0002000339 AOL.com. 

RE: [QUAD-L] Sleep aids??

[poajoan]

You're not the only one that's a sucker for the free gift! I love to go to
Macy's-hate the product price, but love the free gifts.

 

I feel very lucky that I'm able to have my environmental control unit. I
really haven't gotten very much through any of the state programs, so I was
very surprised when they called me and said one was available. They had set
up in a ladies home, and then she went into a nursing home, so I benefited
from it. I have it on the bracket on a table next to my bed, and then I can
transfer it to a bracket on my wheelchair. It turns lights on and off,
controls my TV and VCR/DVD, turns any switches on or off that it's connected
to, and hopefully will open a door for me when I finally get an opener. Just
like all speech recognition things, it does have an attitude :-).

 

I love my little down throw-it is so soft and snuggles right up to me when I
am cold. But I have found I am not so cold anymore as I was for the first
three or four years. I got a couple of good burns from our fireplace in the
first few years, once an ember popped out and landed on my leg. Luckily, I
saw it, and was able to get someone to help me get rid of the ember. It left
a nice scar though, it's a match for the vaccination mark on my thigh-yes,
they used to vaccinate in the thighs back in the dinosaur years :-)

 

Our winters are usually quite cold, and I have found a silk turtleneck
underneath the sweater or sweatshirt keeps me fairly toasty. I also love
vests, they keep my back and neck warm, and if I get too warm we can unzip
them. My brother-in-law brings me beautiful ponchos from India, and although
they are not terribly warm, they look beautiful and I can wear warm clothes
under the poncho.

 

The things we go through to be comfortable. I used to apologize to visitors,
because my living room was so warm, but I decided it was my living room and
I would have it the way I want, so everyone has learned to wear lighter
weight shirt under their sweater or sweatshirt! Then we are all comfortable.

 

Have a good day Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, March 13, 2007 10:03 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Sleep aids??

 

Linda,

Are those the heating pad that you put in the microwave.  I have burned my
shoulders because they were too hot.  We are kind of afraid of now.  When it
be great if there was something that would be the right temperature but
would not burn us as we are so sensitive.  Now I'm just using flannel sheets
on each side shoulder and a down comforter from my chest down.  An extra
blanket on my shoulders if I am really cold and I drink a couple mugs of
herbal Snapple mixed berry hot key after I am finished with my care each
night or early morning.  I usually get a hot after I've slept about four
hours and I have to have the blankets and my gown off my shoulders.

 

Sleeping at the problem last not I slept from five until 930 and I have been
able to go back to sleep and then to get my aide started on-time.  It is
supposed to be 80° and I want to enjoy the sunshine, my sleep doctor thinks
I have SAD so I think maybe summer will help me sleep better.  I have
hydrocodone 500 mg but I don't take very often, my doctor just gives me 30
per month.  Sometimes if I can't sleep at all, I will take one.  I believe I
am addicted to sleeping meds as I have never slept a night without them
since my injury 32 years ago but I really don't care as long as I sleep
sometime.  I don't like having dark circles under my eyes.  I buy a lot of
creams to counteract and aging, but I really don't think they work, just
provide moisture, which is also important.  I can be a sucker at the makeup
counter.  Ha ha I like to buy those gifts with purchase.

Ha ha always looking for the right undereye consealer.  All you girls will
know what I am talking about.  I will be surprised if the guys know.  Ha ha
I was also given propoxyphene for night sweats when I had started menopause
from my rehab doctor.  I had never heard of for that but it really works.
My doctor had me also take an over-the-counter Estroven that I get at
Wal-Mart or Sam's Club.  My aunt that is into holistic and natural had me
get on flax seed and coenzyme C-10 (which is kind of pricey) I do take a lot
of vitamins.

 

The programs to turn fans on and off would be great for everybody, but I
don't have that system.  It seems like most of us get cold and hot.

 

 

 





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RE: [QUAD-L] my 40th birthday party

[poajoan]

Hi professirx

Thanks for sharing-looks like you had a great time. It's always great to see
families having a good time together. Hope you have many more.

Joan

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Sunday, March 11, 2007 1:57 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] my 40th birthday party

http://pbuproductions.com/images/40x/index.htm


http://www.professirx.com/

AOL now offers free email to everyone.  Find out more about what's free 
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RE: [QUAD-L] Re: sleep aids

[poajoan]

Before my accident-fell off scaffolding while putting up a roof on our new
barn-I usually slept five to six hours a night. I went to bed at about
midnight, and woke up between five and six. I still had nights where I
didn't get that much sleep, because I couldn't turn my brain off!

 

Not much has changed. Of course I'm in bed much earlier than that, can't ask
somebody to come in at 1130 to put me to bed. I go to bed between 830 and
10, watch TV, and turn off lights about 1130. I usually try to put something
rather boring on the television, and with luck, fall asleep about 1230.
Sometimes, I'm all slept out by four o'clock, and then watch TV until the
house gets up about 630. Other nights. I am very grateful for my SiCare, so
I can surf the TV while I do not sleep.

 

I try not to stress out about it, but if I find I am getting crabby (not me
said the pussycat), I'll take an over-the-counter p.m. sleep-aid. The things
that helped me the most to get a good nights sleep are, buying a cup with a
flexible drinking straw that can be positioned in front of my mouth, so I
can drink whenever I want to, the SiCare which is used to turn lights on and
off-surf the TV-almost most importantly, to turn on and off my fan. Being
able to regulate my comfort level temperature wise, has been a blessing to
me. I probably sleep two hours more on the average being able to turn the
fan on and off, then I did before I had the SiCare.

 

Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, March 10, 2007 12:53 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Re: sleep aids

 

I went to sleep doctor last summer and she started me on 50 mg of trazodone
and now she cut that in half and added 10 mg of Ambien.  I am lucky if I
give four hours but I'm good days which are not often, I get six hours, but
all that is interrupted.  I have always woke up sometimes every hour.  Last
night I slept for four hours almost uninterrupted.  I have a lot of trouble
going to sleep, you can take me two hours.

 

I also take an injection of forteo every evening for my osteoporosis after
breaking two limbs.

 

I have been sleeping problems, since the day I was injured and I've been on
many different sleeping medications throughout the years.  They all quit
working after a short time.  It is a big problem.

 

I am glad that many of you don't have to take and you can exercise.

 

That was a very good question for us to discuss.

 

Dana





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RE: [QUAD-L] Fosamax for Osteoporosis

[poajoan]

We do range of motion twice a day, and I am extremely flexible. Except of
course for my neck, which has a titanium plate and pins in it because of the
damage done at C4 level. I am flexible enough that I can lay all the way
forward so that my head is on my feet when my legs are frogged. My hands are
not contracted. And I am currently 16 1/2 years post-injury. And yes, I
spasm, but as I said, they are not major spasms.

 

  _  

From: Merrill Burghardt [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 7:33 PM
To: quad-list@eskimo.com
Subject: FW: [QUAD-L] Fosamax for Osteoporosis

 

I sent my two cents worth by Reply to Joan's letter.  Sending mail by Reply
apparently does not make the Q-List, I felt this important enough to repeat
here.

 

In short, I have not met a spinal injured person with spasms who has kept up
with their range of motion.  Also on range of motion, I have neither met
anyone with contracted hands who also ranges fingers regularly.  Some people
use contracted hands to hold things pretty good.  I am too vain, even to
hold things better, to allow my fingers to contract so I still range fifteen
years post.

 

I would like using this forum to take a poll, or not.

  1) Who ranges, who spasms, and who have contracted hands?

 

Merrill

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 6:32 PM
To: poajoan; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] Fosamax for Osteoporosis

 

Yes Joan, I have the same kind of extensor spasms.  I have had a baclofen
pump for a bout 12 years and it is very effective in reducing the
spasticity.  Dan T.

poajoan [EMAIL PROTECTED] wrote: 

I am extremely fortunate in that I do not have severe spasms. I had more
spasms when I was newly injured than I do now. I have also learned to try
and relax before anybody tries to move me, because for not having any
muscle-I sure can tighten up a lot and be extremely hard to move. I don't
have the kicking type of spasms for the most part, but rather twist my whole
torso and straighten out arms and legs. Learning to live with our bodies,
and knowing each idiosyncrasy, is so important as so many others on this
list have said in the past.

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis

 

In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:

Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990

I've just been going through a really bad time in the past couple weeks. My
chest and back feel extremely tight and my leg spasms have increased. This
morning my husband touched my leg and it went into it's spasm, kicking
thing. I do have an appt with my doc but it's sooo frustrating being a quad
and trying to figure out what's going on with the body. Fosamax has joint,
muscle, and bone pain as a side effect but we also noticed discoloration on
the foley when it was changed. Don't know what's going on so I guess it's
time for ultra sounds and such.

diane

 

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RE: [QUAD-L] Fosamax for Osteoporosis

[poajoan]

I am extremely fortunate in that I do not have severe spasms. I had more
spasms when I was newly injured than I do now. I have also learned to try
and relax before anybody tries to move me, because for not having any
muscle-I sure can tighten up a lot and be extremely hard to move. I don't
have the kicking type of spasms for the most part, but rather twist my whole
torso and straighten out arms and legs. Learning to live with our bodies,
and knowing each idiosyncrasy, is so important as so many others on this
list have said in the past.

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis

 

In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:

Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990

I've just been going through a really bad time in the past couple weeks. My
chest and back feel extremely tight and my leg spasms have increased. This
morning my husband touched my leg and it went into it's spasm, kicking
thing. I do have an appt with my doc but it's sooo frustrating being a quad
and trying to figure out what's going on with the body. Fosamax has joint,
muscle, and bone pain as a side effect but we also noticed discoloration on
the foley when it was changed. Don't know what's going on so I guess it's
time for ultra sounds and such.

diane





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RE: [QUAD-L] About Life Insurance for Quads

[poajoan]

Great idea John.

 

I wonder how much the air fare to have that done would be? :-) at least if
we were dead, it wouldn't be so hard to take care of us on the airplane! Our
University of Nevada school of medicine accepts donated bodies. My mother
donated hers to the University of Virginia, and when she died, they came and
picked the body up. About a year later my sister got an invitation to a
ceremony at the University. They gave her the urn of ashes, and they had a
nondenominational ceremony with stories about each of the people that they
honored. I thought that was pretty terrific. Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 4:21 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] About Life Insurance for Quads

 

I was thinking about having my head shrunk to hang over the TV. So folks
could really feel like I'm with them.

 

john

 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wed, 7 Mar 2007 4:56 PM
Subject: Re: [QUAD-L] About Life Insurance for Quads

In a message dated 3/7/2007 3:30:40 P.M. Central Standard Time,
[EMAIL PROTECTED] javascript:parent.ComposeTo(  writes:

When I tried to donate my body they asked What for? It's broken. 

I told em they could use it as a things not to do example.

 

john

John, we have a company in Chicago that will take your ashes and make a
diamond from those ashes, for your next of kin.  Just think of yourself as a
Diamond in the Rough  If you need info, let me know.

They have a website too.

W





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RE: [QUAD-L] Fosamax for Osteoporosis

[poajoan]

Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 10:41 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] Fosamax for Osteoporosis

 

Any women on the list taking this drug?





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RE: [QUAD-L] I'm new to the list!

[poajoan]

Hi Debbie

Welcome to the list, new women SCI are few and far between! I think we are
in the minority for SCI, because God didn't really want us to be quads, but
felt he had to balance out the ratios, so we are the chosen few. :-) :-).

I am a C4, injured by a bad fall in our barn, and I am a complete. I was 51
when I was injured and had four foster mentally retarded young men, and my
daughter, Taryn, who was just 15 at the time. Unfortunately my marriage did
not last and my husband and I divorced five years later. We still are
friends, and since we share three grandchildren, that is a good thing.

Where do you live in Colorado? I live in Reno Nevada, and went to Santa
Clara for my rehab. That was 16 and half years ago, and the time has just
flown.

If you have questions, ask-this group is great for coming up with answers.
One of the byproducts of being in this elite group of SCI, is in the
innovative way that people solve their problems. From workstations for the
computer, to ways of getting a good night's sleep, someone in this group
will probably have an answer for you.

Joan, C4 1990

-Original Message-
From: Bruce and Debbie Hamilton [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 05, 2007 9:57 AM
To: Quad-list@eskimo.com
Subject: [QUAD-L] I'm new to the list!

Hi my name is Debbie.  I am almost 2 years postaccident.  I was diagnosed as

a C4, my function level now is C6 on the right C5 on the left.  The first 
year postaccident was absolutely horrendous!  During the second year, I've 
worked on accepting the new me.  I am 47 years old, married, and have three 
boys one still at home.  I am now living in Colorado after going to Craig 
hospital and have found there aren't very many resources after being 
discharged.  Such as rehab for SCI.  I look forward to asking questions in 
this group.  I need the support!  Will post questions soon.

_
Win a ZuneT-make MSNR your homepage for your chance to win! 
http://homepage.msn.com/zune?icid=hmetagline

RE: [QUAD-L] I'm new to the list!

[poajoan]

I forgot to give my rationale for women not being quads! First off, we women
have a terrible time trying to figure out where to put the strap when we are
in the wheelchair. Then there is quad-gut that develops fairly soon after
our injury. And I worked so hard to keep a flat tummy, but I thought it was
grossly unfair that now I had lost an additional 20 pounds and at times I
looked like I was seven months pregnant. :-) of course, the final blow, is
the ongoing matter of catheterization. Guys have it so much easier.

And of course with time, we found solutions to most of the problems, and now
with the Internet and groups like this one, we are able to solve problems
faster, because we have this group to brainstorm with. Joan

-Original Message-
From: poajoan [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 05, 2007 3:58 PM
To: 'Bruce and Debbie Hamilton'; Quad-list@eskimo.com
Subject: RE: [QUAD-L] I'm new to the list!

Hi Debbie

Welcome to the list, new women SCI are few and far between! I think we are
in the minority for SCI, because God didn't really want us to be quads, but
felt he had to balance out the ratios, so we are the chosen few. :-) :-).

I am a C4, injured by a bad fall in our barn, and I am a complete. I was 51
when I was injured and had four foster mentally retarded young men, and my
daughter, Taryn, who was just 15 at the time. Unfortunately my marriage did
not last and my husband and I divorced five years later. We still are
friends, and since we share three grandchildren, that is a good thing.

Where do you live in Colorado? I live in Reno Nevada, and went to Santa
Clara for my rehab. That was 16 and half years ago, and the time has just
flown.

If you have questions, ask-this group is great for coming up with answers.
One of the byproducts of being in this elite group of SCI, is in the
innovative way that people solve their problems. From workstations for the
computer, to ways of getting a good night's sleep, someone in this group
will probably have an answer for you.

Joan, C4 1990

-Original Message-
From: Bruce and Debbie Hamilton [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 05, 2007 9:57 AM
To: Quad-list@eskimo.com
Subject: [QUAD-L] I'm new to the list!

Hi my name is Debbie.  I am almost 2 years postaccident.  I was diagnosed as

a C4, my function level now is C6 on the right C5 on the left.  The first 
year postaccident was absolutely horrendous!  During the second year, I've 
worked on accepting the new me.  I am 47 years old, married, and have three 
boys one still at home.  I am now living in Colorado after going to Craig 
hospital and have found there aren't very many resources after being 
discharged.  Such as rehab for SCI.  I look forward to asking questions in 
this group.  I need the support!  Will post questions soon.

_
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http://homepage.msn.com/zune?icid=hmetagline

RE: [QUAD-L] Air Travel

[poajoan]

Hi Paul

I have flown Southwest quite a few times, and they have been excellent in
meeting my needs. I flew United twice, but as they broke my wheelchair both
times, I decided to try another airline. Oh yes, United also lost my
wheelchair for almost 10 days. We left Dallas to fly to Reno and my
wheelchair flew to Los Angeles. If a friend of mine hadn't seen my
wheelchair, going round and round with the suitcases, I don't know when I
would've gotten it back! She didn't think anything of it, except that it
looked similar to mine, when a friend told her I didn't have my chair. The
Reno office would not believe me, until I finally went to their office with
a picture of my chair-serial numbers-etc. etc.. It still took four more days
to get my chair back.

 

Since I use chin controller, I always take that off. My United trips taught
me to take the armrests off and duct tape them to the seat. Of course always
take your seat cushion off and put it in the overhead baggage, if there is
room.

 

Good luck and have fun

 

  _  

From: Paul Jacobson [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 05, 2007 5:29 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Cc: Kristen Manecke
Subject: [QUAD-L] Air Travel

 

Hi,

 

Would you guys mind sharing which airlines you have had success with and
which ones you have not and why

 

I am traveling to Fort Myers from San Diego in April with my wife.  I'm a
c5/6 quad and our flight has one stop requiring  a change of planes.

 

Also, we need to rent a 6ft ramp, anyone have any ideas?

 

Thanks!

Paul

RE: [QUAD-L] Where can I see powerchairs online and read about them?????

[poajoan]

Hi Linda.

 

When I was looking at the Omega Trac, which is based in Texas, they actually
freighted one up to me and one of the representatives came to the house and
we tried it out. Since I use a chin controller. I was unable to actually
control it myself. However, my son-in-law tried it out, and then we went all
over the property with me in my chair and my son-in-law using the other
wheelchair. We were unable to get my insurance to pay for it, and I
eventually bought my Omega Trac on eBay. Teftec, the makers of Omega Trac,
have been very supportive and I am very pleased with the company and my
Omega Trac.

 

Joan

 

  _  

From: LINDA FERRELL [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, February 27, 2007 3:49 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Where can I see powerchairs online and read about
them?

 

W,

That is great advise, only I have not been able to try out w/c's. None age,
I Rehab Institute of Chicago, Hamilton's Technology in Indianapolis, Wheels
n Motion, Griffith, IN, or National Seating in South Bend. How do you try
out powerchairs? 

Lindaf  

RE: [QUAD-L] Mark Felling gimpgear.US

[poajoan]

I too have a DoorMate-bought it four years ago, and we hooked it up to my
SiCare, and it is just not strong enough to open the sliding door. However,
a friend of mine has a different style sliding door, which is not as heavy
as mine, and it works great -- go figure!

 

Joan

 

  _  

From: LINDA FERRELL [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, February 27, 2007 4:09 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Mark Felling gimpgear.US

 

Joan,

Your home sounds lovely  ideal. You once mentioned you wanted a door
opener, I have a DoorMate  would not recommend it for my dog because it is
a piece of JUNK!!!

Lindaf

RE: [QUAD-L] Mark Felling gimpgear.US

[poajoan]

Yeah, we did the adjustment thing, but unfortunately for me when we built
the house I was on a major budget, and I didn't buy a really good sliding
door. Because the house is made of ICF blocks (insulated concrete forms),
which gives me the superior insulation-R. 40-it is a minor nightmare to
replace the sliding door. So I am going for a front door opener. Just what
you get for being cheap, I guess :-) Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 28, 2007 5:03 PM
To: poajoan; 'LINDA FERRELL'; quad-list@eskimo.com
Subject: RE: [QUAD-L] Mark Felling gimpgear.US

 

Joan, sliding doors have adjustments on them that can make them easier and
more difficult to open and close.  Maybe contacting your manufacturer or
someone knowledgeable about the door's and inquire if it is adjustable.  I
can make a difference and sometimes when you adjust them they resort to
their previous difficult condition and need to be adjusted again.  I think
the adjustments are on the bottom and the top of the door. I think the one
in my door are screws that can be adjusted with a screwdriver. Hope this
helps... Dan T.

poajoan [EMAIL PROTECTED] wrote: 

I too have a DoorMate-bought it four years ago, and we hooked it up to my
SiCare, and it is just not strong enough to open the sliding door. However,
a friend of mine has a different style sliding door, which is not as heavy
as mine, and it works great -- go figure!

 

Joan

 

  _  

From: LINDA FERRELL [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, February 27, 2007 4:09 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Mark Felling gimpgear.US

 

Joan,

Your home sounds lovely  ideal. You once mentioned you wanted a door
opener, I have a DoorMate  would not recommend it for my dog because it is
a piece of JUNK!!!

Lindaf

 

RE: [QUAD-L] Mark Felling gimpgear.US

[poajoan]

Hi Linda.

 

When I am up in my wheelchair, I have no problems. I also have a chin drive
chair, I use a control collar around my neck. In my home. I have places
where I can have my water set up for me. I would just like to be able to
pick up my glass of wine when we are eating dinner and not have to correct
ask somebody to give me a sip. :-).

 

When we built my home four years ago, we made sure that the entire house was
accessible to me. There are no hallways, and all the doors are 36 inches
wide. All the floors except for the bathroom are acid etched concrete with
radiant heating in the floors. The bathrooms are both ceramic tile, and my
bathroom has a roll-in shower. I did not make the kitchen accessible for me
to work in it, as it is obvious that I am not going to ever be able to wash
dishes-so sad :-(!!

 

I found a Barrier-free lift on eBay, and it runs from my bed into the
bathroom and over the bathtub-that way I can have a bath when I feel like
it. The back of my house faces south, and I have 4' x 8' windows clear
across the back. The Sun really warms the house in winter, in fact, so much
so that we have to open windows in order to cool it off.

In the summer, the overhangs keep the Sun from ever coming in the house. I
love it, I love it.

 

I love the ingenuity that this group shows in modifying our environment in
order to suit ourselves. We are a very diversified group, and so many people
have come up with different ways to accomplish their goals. Just reading
what people have done gives me so many ideas on what more I can do.

 

Joan

  _  

From: LINDA FERRELL [mailto:[EMAIL PROTECTED] 
Sent: Monday, February 26, 2007 2:28 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Mark Felling gimpgear.US

 

Joan, I know how you feel about being able to feed yourself  drink. I can
drink myself, I have a chin drive chair  attached to my chin drivebox is a
drinking tube{aqua tubing} that goes into a 3qt water jug that hangs off the
back of my chair under my wheelchair bag. Before I moved out of the Nursing
Home, I had muscle  tendon transfers to my elbows in hopes to use a
joystick on my chairarm  feed myself. No such luck though! I moved out
anyway!

Lindaf

RE: [QUAD-L] Question about chairs and Roho cushions.

[poajoan]

What is the majatek drive? I googled it, and got lots of Polish things!!

 

When I do wear a leg bag, it is usually in summer, and I am wearing shorts.
My daughter designed a combination leg rest and leg bag holder that replaces
the leg rest that are on the chair. I run the tube out, just under my leg,
and then it goes directly into the leg bag-leg rest. Occasionally when we
are going to be gone for an entire day and I know there is no place that we
can do catheterization, will wear a leg bag with long pants. It's somewhat
fiddly, but we have put a hole on the underside of my jeans at the edge of
the seat cushion, and run the tube out through that.

 

Joan

 

  _  

From: LINDA FERRELL [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, February 27, 2007 10:23 AM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] Question about chairs and Roho cushions.

 

Hi All,

I have a new powerchair that is sitting in my spare bedroom that I have only
been in about 5 times. It seems so much bigger than my Quickie320. My
Quickie is a chin drive, which is easy  the new chair is a Quantum Blast 
has  the majatek drive system, which I'm having trouble learning to drive.
There is a problem with getting a new chair, the place you get one from most
of the time don't have chairs to try out. At least that has been my
experience.

A question for the girls? What do you do with your catheter tubing  bag,
how do you route it out of your clothing? Do you use a leg bag or keep the
UDBag on? If you keep the udbag on where do you hang it  what do you put it
in?

Lindaf

RE: [QUAD-L] Mark Felling gimpgear.US

[poajoan]

Hi Dan.

 

I purchased the carrier sling that they carry. It is well made, will work
quite well, and their delivery time was very quick. It is almost exactly
like the sling I have for my barrier free lift, but is made of sturdier
material and with handles at the appropriate place. I am going to try to
find out more about their assisted hand device. It would be so fantastic be
able to give myself a drink, let alone be able to feed myself :-) :-) :-).

 

What is it that you're looking at? That is, if you don't mind my being nosy.

 

Regards.

 

Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Friday, February 23, 2007 4:54 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Mark Felling gimpgear.US

 

Has anyone purchased products from Mark Felling at gimpgear.us? would have
your experiences been?  Things, Dan T.

RE: [QUAD-L] $$$$ medication's $$$

[poajoan]

Hi Bobbie.

 

I'm so sorry to hear about your friend. I will certainly keep her in my
prayers. However, it is just fantastic that she has reached this age, with
apparently good health. Hopefully, she is enrolled in one of the Medicare
prescription plans, but as I know they do not pay for everything. Depending
on the plan that one chooses, there can be as severe gap of $3000-$6000
after the first 4000 or 5000 is reached. And I was whining about paying $300
for one prescription -- that certainly puts a new face on reality.

 

God bless.

Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 24, 2007 3:57 PM
To: quad-list@eskimo.com
Subject: [QUAD-L]  medication's $$$

 

Hi guys,

 A close friend of mine was just fine two weeks ago. She gad been
complaining about her back bothering her. Her back pain got SO BAD that she
went to the ER, something she herself, has never done. After being admitted
and put on IV pain meds and going for MRI's X-rays CAT scans. The Doctor's
came to her and told her she has kidney cancer, lung cancer AND spine
cancer. They sent her home and with prescriptions and scheduled her for
chemo starting Monday. 

  One of the prescriptions for 28 pills cost $6,000.00  Six thousands
dollars!! Ann is 84 yrs old.

   Bobbie





  _  

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**
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RE: [QUAD-L] Mark Felling gimpgear.US

[poajoan]

Hi Dan.

 

I have an environmental control unit -- a SiCare -- that I use. As with all
voice-activated, there are drawbacks, but it certainly has helped me control
the environment immediately around me. I use it at night to turn my fan on
and off, control the entire TV and satellite dish, and control the lights
around the entire house. I was supposed to get a door opener, but so far
that has not happened. But I have' not lost the faith yet. When we built my
house, we actually installed X--10 throughout the house. For the most part
it has worked well, with funny little glitches that we have not been able to
correct i.e., when I turn the lights on and off in my room it also turns the
lights on and off in the living room. We have reprogrammed them, we have
moved the bounce device to different areas of the house, and now we just
laugh when I turn the lights on and off. Good luck in your search.

 

Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 24, 2007 6:35 PM
To: poajoan; quad-list@eskimo.com
Subject: RE: [QUAD-L] Mark Felling gimpgear.US

 

Joan, I am looking to purchase a totally hands-free cell phone and sometime
in the future possibly some environmental control products.  Thanks for all
your feedback on your cell phone.  Dan T.

poajoan [EMAIL PROTECTED] wrote: 

Hi Dan.

 

I purchased the carrier sling that they carry. It is well made, will work
quite well, and their delivery time was very quick. It is almost exactly
like the sling I have for my barrier free lift, but is made of sturdier
material and with handles at the appropriate place. I am going to try to
find out more about their assisted hand device. It would be so fantastic be
able to give myself a drink, let alone be able to feed myself :-) :-) :-).

 

What is it that you're looking at? That is, if you don't mind my being nosy.

 

Regards.

 

Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Friday, February 23, 2007 4:54 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Mark Felling gimpgear.US

 

Has anyone purchased products from Mark Felling at gimpgear.us? would have
your experiences been?  Things, Dan T.

 

[QUAD-L] RE: [QUAD-L] Check out Wheelchair Diffusion » Blog Archive » Superfourin- All Terrain Whee

[poajoan]

Hi Kathy.

You're very right, having several wheelchairs would be a blast -- however
for the most of us that will never happen. I am on my third wheelchair, the
first two were rear wheel drive, and this one is an Omega Trac front wheel
drive. It is a large wheelchair, and very heavy, but is what I needed for my
lifestyle and for the terrain that I live on. It has all the bells and
whistles regarding tilt and recline, it is heavy, and it took me a while to
learn to utilize the rear wheel drive, without wiping out people and
furniture behind me! :-) I miss the quickness of my Invacare arrow, but feel
very secure in my wheelchair that easily navigates the 25° slope we have on
our property -- and of course it is very rocky to boot.

 

Each of us has to determine by prioritizing, what kind of wheelchair we
need, and what we're willing to give up to get just what we want.

 

Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 21, 2007 4:04 PM
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: [QUAD-L] Check out Wheelchair Diffusion » Blog Archive »
Superfourin- All Terrain Whee

 

Wheelchair
http://www.usatechguide.org/blog/superfourin-all-terrain-wheelchair-nurse/
Diffusion » Blog Archive » Superfourin- All Terrain Wheelchair  Nurse 

 

 

Hi All,

I was looking at different wheelchairs and ran across this one.  It looks
like a dune buggy and I bet people would get out of our way.  Too bad we
can't

afford to own several chairs that we could use for our recreation and our
daily lives.I would like to see it and maybe test drive  it for fun.

I am looking for a new chair and I am going to see some different ones on
Monday.  The one I have now is a Invacare  front wheel drive that tilts and
recline and each foot can be adjusted differently. 

I would like to know if you think front wheel drive, center, or back drive
is best.  I spend most of my time inside, but when it gets warmer I will be
out working in my yard. 

Kathy





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RE: [QUAD-L] uti's and reusing catheters

[poajoan]

I use my catheters until it is obvious that they need a final burial. :-) I
have a small microwave in my bedroom, and I use a rubber 14 French, so
before each use. They are boiled for five minutes. Any bags that we use are
bleached twice a week, and I insist that anyone doing my catheterization is
using gloves. My catheters usually last for a month. Not only do we bleach
the inside of the bag, we bleach the outside too, so there is minimal odor.

 

As far as UTIs go, I have been so fortunate. Perhaps once a year my urine
smells or looks funny, and if it has not cleaned up within a day or two,
I'll get a urine sample and take it to the lab. As I mentioned before, the
only serious UTI I had was obtained in the hospital. Just fancy that!

 

We are just like anyone else when it comes to being susceptible to
infections. There is a great variation in our susceptibility, and if we look
back on our lives before SCI, we probably had the same type of
susceptibility to infections. I.e.: we very seldom caught colds, or we
always got everyone's cold et cetera.

 

I hate getting a cold, especially when it settles in my chest, and the
subsequent quad coughs and gunk cleaning that follows. :-( even though I am
exposed to many children's colds and coughs, I am fortunate that that my
resistance remains high.

 

I am outside a great deal, and luckily even in winter, I can still be
outside. Reno is a very high, sunny day place. So even when it is only 35°
out, I am able to go out on my back deck, which is sheltered from most of
the wind. The thermometer on the siding will often register 100°, even
though the air temperature is actually only 40 or 50. I really feel that
being outdoors has a great deal to do with my being so very healthy.

 

Joan, C4 quad 1990

 

 

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, February 16, 2007 1:20 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] uti's

 

 I get a UTI about once or twice a year. As long as we deal with catheters
we will get UTI's. I use a condom catheter but I still have to check the
residual in my bladder every month to six weeks. Often I have an infection
that would be critical to normal folks. I think most of us build up a
tolerance to UTI's untill they are pretty bad. You have to calculate a
balance between a tolerance to bugs and becoming immune to anti biotics. 

I'm open to listening to anyone's news on the subject. I heard there was
work on a vaccine for certain UTI's. That was years ago and frankly, I
haven't been to see my uro in about 5 years. I just keep anti biotics (cipro
 bactrim DS) on hand. I have a perpetual refill with his DA. I'd call him
if I couldn't clear it up. 

Sometimes I do wonder if I'm septic but since I can't be sure without
testing, I won't know when I'm in end stage and with any luck, I won't know
I should have died.

I always seem to be pretty good untill they say I'm in an awful state and
should have died yesterday. I think some people die just because they are
told they are going to. I've been told I'm circling the drain since the day
I was run over. Maybe I'm too stubborn to stop breathing(or too stupid). But
I digress.

I think a good doctor would try to keep your infection at a mild roar and
hope you build a tolerance to the infection before you build an immunity to
the treatments available.

 

john

C-5 31 years post 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thu, 15 Feb 2007 6:26 PM
Subject: Re: [QUAD-L] uti's

Hi Kathy,

So sorry that you are feeling so horrible Kathy.  I do have UTI's with my
ostomy, I don't know if I have three per year as I don't really keep track,
which I should.  They do make you feel horrible at first until you get the
proper medication.  I always have it checked when the smell really changes,
a lot more sedimentation than normal or am getting a lot of spasms.  They
usually always do a culture with me, so it takes longer.  My visiting nurse
tries to come by quickly, when I e-mail her or call her.  I'm glad I don't
have to go to the doctor to get cultures for my lungs or urinary.  My lung
doctor likes to see me, which is very difficult sometimes as I don't have
transportation immediately, just when my best friend is off work, which he
doesn't seem to understand.  I knew they have doctors to come to your home.
I need to find out  if my insurance will cover which I really doubt.

 

I hope you feel better quickly.  I know we always take a chance when we go
out among a lot of people to get viruses or colds, but I guess I don't let
that stop me.  I like to get out as much as I can.

 

Get well soon as my friend.
Dana

 

How many UTI's do the rest of you get?

 

 

  _  

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RE: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems

[poajoan]

Unfortunately for some of us, our states do not have a telephone program.
The only way that I can get a speech activated telephone in Nevada is to get
on the waiting list at the Center for Independent living, and hope that the
funding will be enough to supply us with a phone. I have not bothered to do
this since I was able to get the cell phone that is working so well for me.
I have been on a waiting list for a door opener for two years now.
Hopefully, after July 1, the funding will be available.

 

California's phone system seems to be awesome, if you need a specialized
phone, the phone company supplies to the party at no charge. I'm only 5
miles away from the state line, but since I don't want to live in California
I'll stay here :-). :-).

 

Have a great day Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 14, 2007 10:55 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] RE: Vocalize  iTalk Voice Controlled Cell Phone
Systems

 

 

I use the mic that is hanging on my boom as an additional mic because my
voice is not very loud.

 

I use the air switch that is hooked up to the remote that comes with the
phone.  I have headphones , but I rarely used , because they are a large and
hard to lay on.  My air switches hanging on a boom that is attached to my
water bed.  I can move it to either side of the bed, whichever way I'm
turned, or in the middle if I am flat.  I got this boom many years ago when
I had George, a device they did not work for my soft voice.  I don't know
where they are sold.  The air switch is very sensitive and I can blow on it
to turn it on, which is good, because some time the boom moves away from my
mouth and I cannot reach to blow on it.  I also have my lifeline sip  puff
on my boom.  I had the old-fashioned water bed with wooden sides.  I had a
hospital electric bed with a air mattress that is is the same with my super
single water bed, and I have never use, I was told I have to be turned more
regularly on that bed.  I can go much longer on my water bed without needing
turned, and without causing any pain, when I'm on my right side.

 

My original sip  puff, I purchased through Southwestern Bell and it was
made in Canada.  It lasted for 13 years.  You could not program phone
numbers, like this one.  You can program 20 numbers.  I am only using four
right now.  I call the wrong people by mistake sometimes.  I'm sure they
don't appreciate as I can not see the telephone in bed and I blow at the
wrong time.
Dana

 

your state should have a program for special phones if you qualify.  I have
not had anyone to help me look for the paperwork to tell you the amount of
income allowed.  It is surprisingly higher than you would expect.

 


 

In a message dated 2/14/2007 8:03:41 A.M. Central Standard Time,
[EMAIL PROTECTED] writes:

Error! Cannot read or display file.Error! Cannot read or display file.Dana,
how do you use this phone?  But accessories do you use?  Thanks, Dan T.

[EMAIL PROTECTED] wrote: 

I will have to look up in my notebooks, the name of the program as it has
been a couple years since I got this speakerphone.  I hope they still have
the program going, but you never know.  I think it was federally funded.

 

http://ameriphone.onlinephonestore.com/browse/75f5ccfff418ae0e5445deb029a029
9f/Ameriphone_Remote_Controlled_Speaker_Phones.html

 


In a message dated 2/12/2007 10:20:06 P.M. Central Standard Time,
[EMAIL PROTECTED] writes:

Error! Cannot read or display file.Error! Cannot read or display file.Dana,
what is the Americanphone you mentioned in a previous e-mail?  Thanks Dan T.

[EMAIL PROTECTED] wrote: 

I really like my americaphone.  You can get one for free through most state
programs.  I will have to look up the information, it is one of my notebooks
which may not be findable.

 

You can get them every so many years.  The doctor has to fill out paperwork.
I just can't room the name of the program right now.  I think I will be able
to find it.  If you don't hear from me, remind me again.

 

I use in my bed and on a boom so I could move it which ever way and turned
so I always have access to my telephone.

 

Always,
Dana

 

 

Date: Mon, 12 Feb 2007 19:51:32 -0800 (PST)
From: Dan Tessiatore [EMAIL PROTECTED]
Subject: Re: [QUAD-L] RE: Vocalize  iTalk Voice Controlled Cell Phone
Systems
To: [EMAIL PROTECTED], [EMAIL PROTECTED], quad-list@eskimo.com

Dana, what is the Americanphone you mentioned in a previous e-mail?  Thanks
Dan T.

[EMAIL PROTECTED] wrote: 

I really like my americaphone.  You can get one for free through most state
programs.  I will have to look up the information, it is one of my notebooks
which may not be findable.

 

You can get them every so many years.  The doctor has to fill out paperwork.
I just can't room the name of the program right now.  I think I will be able
to find it.  If you don't hear from me, remind me again.

 

I use in my bed and on a boom so I could move it 

RE: [QUAD-L] work area

[poajoan]

Hey Eric.

 

Great pedigree. Did you import her from Germany? It takes me back many a
year -- we took our American bred German Shepherd to Germany in 1960, and as
far as I know, he was the first American bred dog to obtain the schutzhund 1
and a vorzuglich rating. We showed in Germany for six years, and we
purchased a daughter of Hein von Richterbach, who was the first of the new
type of German shepherds. It was a great time, and I have many tremendous
memories of the Sieger Schaus.

 

Joan :-) :-)

 

  _  

From: Eric W Rudd [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 14, 2007 12:45 PM
To: 'David K. Kelmer'; 'Quad-List'
Subject: RE: [QUAD-L] work area

 

Fibi is her call name pronounced fee-bee.  Here's a link to her father
http://www.kolendakennels.com/males/yasko_p.htm

 

 

Eric W Rudd

[EMAIL PROTECTED]

 

-Original Message-
From: David K. Kelmer [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 14, 2007 2:38 PM
To: Eric W Rudd; Quad-List
Subject: Re: [QUAD-L] work area

Hi Eric,

 

The place looks real nice.  I love the windows!  Of course the 'outside'
shots in June do look better without the snow on the ground.  Refresh my
memory, please.  Your dog's name is what?

 

With Love,


CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post

 

 

Texas, USA



Eric W Rudd [EMAIL PROTECTED] wrote:

I've been playing...here's my office  dog

 

http://www.angelfire.com/il/pmahc/my_photo_album

 

Eric W Rudd

[EMAIL PROTECTED]

 

 

 

RE: [QUAD-L] Vista Dragon NaturallySpeaking 8

[poajoan]

Hi Dana.

 

I got my new laptop, is an HP pavilion 2000 -- it comes with Vista, and the
new speech recognition program. I don't think I'm going to have any problem
with the speech recognition program. I am using Dragon down on the desktop,
and responding to you that way, because I don't have Microsoft Outlook
installed on the laptop yet. However, I have played with the laptop for a
couple of hours, and it is even easier to use than Dragon NaturallySpeaking
9.1. It is quicker than Dragon NaturallySpeaking, and so far I have not been
able to find a way to move the mouse without using MouseGrid.

 

Get your laptop back, and try speech recognition. It also has an on-screen
keyboard that can be minimized so you don't have to see it, but that you can
utilize to spell at any time by just saying press a etc.. I really like
that. I'll let you know, as I find more out about this program.

 

Right now, I have two microphone set up, one for the desktop, and one for
the laptop. The biggest problem I have had with the laptop so far is that it
is supersensitive and wakes up very easily. So I am trying to problem--solve
that.

 

Joan :-)

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Sunday, February 11, 2007 1:51 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Vista  Dragon NaturallySpeaking 8

 

Hi Naomi,

 

How much RAM do you have?  Is it is 64 bit and what brand?  Mine is a
Hewlett-Packard with 1 MB and it will need another and my brother said
Dragon said they could not promise Vista would work with Dragon 9.  That is
what his computer guy for his business told him they said.

 

I guess my brother said he could add 1 MB of RAM.  I could not really find a
number to call other than a number on the Nuance web site.  

 

They seem to suggest Dragon 9.5 professional version which is not out.  I
wish I knew how soon as my brother wants to take my bedroom computer to work
on.  He needs to set up the laptop to use instead.

 

I'm glad you say it works with Dragon 9 , but I don't like to buy upgrades
because it is so confusing for me to install.  I always do it wrong unless
my computer friend from Hallmark is available, because I always do something
wrong.

 

I need to find out what kind of Hewlett-Packard I have as my brother has it.

 

Thank you for the information and please send me your MG, brand and if you
have 64-bit.

 

Dana

RE: [QUAD-L] Homeless dumping paraplegic

[poajoan]

My daughter is not a quad or a paraplegic, but because she has no medical
insurance, they asked her to leave the hospital just as soon as she wasn't
critical anymore. Their excuse, she should go on a diet and lose weight, and
as soon as she left the hospital, she should go to her doctor.

Even though two of us told the doctor that she had gained 45 pounds in two
weeks, his answer was that diet and exercise would take care of everything.
For five days in the hospital, the bill was $21,000. And because she has no
insurance, she will be paying this off the rest of her life probably. And
the result of her going to a doctor was, he gave her water pills and three
weeks later she was down 51 pounds! Guess hospitals are only for the rich
and the healthy!

Joan ;-)

-Original Message-
From: Tim Thompson [mailto:[EMAIL PROTECTED] 
Sent: Sunday, February 11, 2007 9:14 AM
To: [EMAIL PROTECTED]
Cc: Quad-list
Subject: Re: [QUAD-L] Homeless dumping paraplegic

Unexcusable!
I'll bet they don't dump illegal immigrant paras...
LA's medical services (including Medicade) is going broke providing
manditory care for illegals. But the Politicaly Correct crowd refuse
to acknowledge the consequences we pay for their feel good
agenda's.
I've been writing letter after letter, but my Representative is outnumbered.
God help us if billary gets her way.
Health care services will go broke and we'll be left out in the cold.
I for 1 am doing much better service wise now than 6 yrs ago.
Stunt


On 2/10/07, RollinOn [EMAIL PROTECTED] wrote:


 This is really cruel!

 http://www.msnbc.msn.com/id/17062674

 Mark Jackson

RE: [QUAD-L] this is crazy

[poajoan]

It sure seems like most of us share a lot of the same problems. If it's any
help, I have found that in the last three or four years I am better at
regulating my body temperature. I don't get as cold nearly as much as I used
to, but I am often cold when I go to bed and then wake up several hours
later roasting. That's when my fan goes on, and then a while later it will
have to go off. For those of us who are higher quads, just the lack of
ability to move and warm those muscles is a primary reason for the slowness
in our responding to temperatures. I absolutely love my wood stove, and the
fact that it has a glass window makes it even more appealing. For these last
five weeks of bed rest, the thing I miss the most is my wood stove -- of
course realistically I miss being up.

Joan C4 :-)

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Sunday, February 11, 2007 1:54 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] this is crazy

Hi everyone this is crazy, everyone here is talking about being  
cold.  I FEEL ON FIRE 95% of the time so I sleep with a fan on my  
face. Explain that one??

Hec

RE: [QUAD-L] (no subject)

[poajoan]

I have just gotten a new laptop -- actually it is on his way home and right
now -- and I am also told that the new Microsoft Vista speech program will
work as well as DragonDictate. I have DragonDictate preferred version 9, and
I'm really only learning to use it since I have been in bed. I have always
used the mouth stick for everything except typing a letter that was fairly
long. But I do like Dragon been NaturallySpeaking version 9 for running the
computer, but since I will not have Microsoft XP on this new computer, I
guess I better start studying. So, I'm going to go online now and start
looking things up. I'll let you know what I find.

 

Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 10, 2007 8:37 AM
To: quad-list@eskimo.com; [EMAIL PROTECTED]
Subject: [QUAD-L] (no subject)

 

Can anyone help me with this question.  My brother is setting up my new
laptop and he says it will not take Dragon.  Is this true.  He says Visa has
its own voice program.  I can't imagine not having Dragon.  Does any one
know anything about the new VISTA program and Dragon.

 

I hope someone can help me.  I just have Dragon 8 professional and he
thought he had to order Dragon 9482 work.  Surely someone has come across
this problem.  He is taking my bedroom computer to work on and all I will
have is the laptop in here.  My living room computer is new but it did not
have this to so Dragon eight is working fairly well with some problems.  He
thought it was also a 64 bit whatever that means?

HELP!

 

Dana

RE: [QUAD-L] dr.G (Friday night lights)

[poajoan]

Hi John

 

Those are really good questions.I've been plagued with the edema since I was
in rehab. The only drugs I take are Levbid, an occasional Tylenol, and
vitamins. The edema goes completely away every night when I go to bed, and
returns in the morning, when I get up in my wheelchair.

 

Because I had no insurance for eight years, when I became eligible for
Social Security I went through a battery of tests to determine if I was
still alive! LOL. They determined that everything was in the right place and
working well, and that I was doing very well. Great news for me. No news on
the edema however.

 

Today is five weeks since I came to bed to treat these wounds, and I am
remaining edema free. However, I would rather live with the edema, than live
the rest of my life in bed, (fancy that).

 

 

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 07, 2007 4:44 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] dr.G (Friday night lights)

 

Joan, are you sure edema isn't a side effect of some drug you are on.
Swelling fingers is often a sign your kidneys aren't functioning up to par.
I have found that when my fingers are sweling, my lungs are next to fill
with water.

 

john

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
quad-list@eskimo.com
Sent: Wed, 7 Feb 2007 3:49 PM
Subject: RE: [QUAD-L] dr.G (Friday night lights)

Hi Joan,

 

My fingers curled enough that I can grasp a pop-can and hold it in what
looks to be a natural grasp.  The pinkie on my right hand curls downward,
but not a lot.

 

With Love,


CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post

 

 

Texas, USA



poajoan [EMAIL PROTECTED] javascript:parent.ComposeTo(  wrote:

My fingers have never curled up, but they sure do swell up. The only time
they resemble fingers is while I am still in bed, but once I get up the
edema swells them up -- it's not really that bad, but down in rehab, they
had me wearing gloves to try and keep the swelling down. It didn't work, so
I decided that fat fingers were better than fat fingers inside gloves. LOL.

 

Have a great day Joan

 


  _  


From: [EMAIL PROTECTED] javascript:parent.ComposeTo(
[mailto:[EMAIL PROTECTED] javascript:parent.ComposeTo( ] 
Sent: Monday, January 29, 2007 1:04 PM
To: [EMAIL PROTECTED] javascript:parent.ComposeTo( ;
quad-list@eskimo.com javascript:parent.ComposeTo( 
Subject: Re: [QUAD-L] dr.G (Friday night lights)

 

 

 

 

  _  

size=2 width=100% align=center 

 
http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht
tp%3A%2F%2Fwww%2Eaol%2Ecom%2Fnewaol Check out the new AOL. Most
comprehensive set of free safety and security tools, free access to millions
of high-quality videos from across the web, free AOL Mail and more.

[QUAD-L] Edema

[poajoan]

Hi Dana.

 

I don't use a diuretic. It's really difficult to use a diuretic when you do
intermittent catheterization. None of the doctors seem very concerned about
the edema, and for me it is just a nuisance at this point. Since I drive my
wheelchair with a control collar around my neck, I can't wear necklaces and
things like that. My fingers swell up, so I cannot wear rings, so my jewelry
options are earrings and a watch. So much for my feminine vanity ha ha.

 

Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, February 07, 2007 4:37 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] dr.G (Friday night lights)

 

Hi Joan,

Do you take a diuretic?  I do and that really helps with swelling only it
was on my legs and feet.  I don't know of for having from the same reason,
but I would think so?  Just wondering
I take hydrochlorothiazide .
Dana

RE: [QUAD-L] How Do You Read Books?

[poajoan]

I really like the e-books, if they weren't so darned expensive. Somehow,
paying $7-$18 for a book to download, seems like highway robbery, and the
free and very cheap e-books are really not worth reading. Reading has always
been a passion for me, and I too miss it a lot. I do use a book stand and
mouthstick to read, but it certainly isn't easy, and it is sure hard on the
teeth.

 

I think for my birthday, I am going to ask my family to buy me some credit
on the e-book store. Maybe I won't feel guilty down when I spend their money
on my reading!

 

Since I probably have another two months in bed, maybe I'll ask them for an
early birthday present. I am hoping to present myself with all the wounds
gone on my birthday in April.

 

Joan

 

  _  

From: MissLiz [mailto:[EMAIL PROTECTED] 
Sent: Sunday, February 04, 2007 7:00 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] How Do You Read Books?

 

http://www.dbtac.vcu.edu/centers.aspx

 

you can ask them @ where to obtain funding too for devices on AT

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 03, 2007 5:12 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] How Do You Read Books?

 

Naomi is right and has hit a sore point with me. Yea, I can move both arms
but my hands do not possess the dexterity needed to read and flip pages in
most books with any degree of comfort. I fumble through books I have to read
but I haven't read a book for fun in years. The books on tape is ok if you
like that. I do not. I can't just flip to a page, it is a struggle and I
think something should be done. I have read where some books may be made
available on cd. I have not seen any books on cd unless someone is reading
to me again. I have a distinct feeling that most books being printed today
are being printed from cd's and electronic media. I just don't know who to
contact. I would so love to read a book for entertainment purposes again. On
my last trip to the library I looked for some filthy paperback novels and
couldn't even find one on tape. 

I have this feeling that the solution to my problem is going to cost me
money. 

 

john   

 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Fri, 2 Feb 2007 9:42 PM
Subject: Re: [QUAD-L] How Do You Read Books?

You might try a mouthstick to turn the pages on your book stand but that has
pitfalls also.  A company also makes an automatic page turner but I have not
had experience with it.  The library of congress has a program of books on
tapes but it is antiquated as they are updating their technology and trying
pilot programs.  My local library has started offering books that you can
download on the Web.  Its catalog could be better but it gives me more
options.  Check with your library.  I recently completed Shadow Divers my
robertkurson and enjoyed it very much.  It is a true story is about a German
U-boat laying off the coast of New Jersey.  Have you read anything good
lately?  Dan T.

[EMAIL PROTECTED] wrote: 

I am having a dilemma.  I was an avid book reader before I became a
quadriplegic due to Transverse Myelitis.  Now I am in a dilemma as to how do
I manage to read a book.  I have a book stand, but it is virtually
impossible for me to turn the pages.  I have looked on the Internet for page
turners, but I haven't found any that are suitable for my need.  This is
really driving me crazy, especially since there are so many things I need to
read.  I would like to know how anyone else manage to read a book.  For
novels, I get books on tape, if they're available, but some things I need to
read, do not come on a tape.  I would appreciate any suggestions.

 

Naomi

 

hr size=2 width=100% align=center 

 
http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht
tp%3A%2F%2Fwww%2Eaol%2Ecom%2Fnewaol Check out the new AOL. Most
comprehensive set of free safety and security tools, free access to millions
of high-quality videos from across the web, free AOL Mail and more.

RE: [QUAD-L] How Do You Read Books?

[poajoan]

Hi Dan.

 

I did check with my local library, and at present they have no such program.
They said if funding would permit that they might be able to instigate it
next year. And then they said please write my local legislator as Nevada is
now in their biannual session. So I will.

 

Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, February 08, 2007 3:45 PM
To: poajoan; 'MissLiz'; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] How Do You Read Books?

 

Joan, have you tried your local library and asked them to consider starting
such a program?  Dan T.

poajoan [EMAIL PROTECTED] wrote: 

I really like the e-books, if they weren't so darned expensive. Somehow,
paying $7-$18 for a book to download, seems like highway robbery, and the
free and very cheap e-books are really not worth reading. Reading has always
been a passion for me, and I too miss it a lot. I do use a book stand and
mouthstick to read, but it certainly isn't easy, and it is sure hard on the
teeth.

 

I think for my birthday, I am going to ask my family to buy me some credit
on the e-book store. Maybe I won't feel guilty down when I spend their money
on my reading!

 

Since I probably have another two months in bed, maybe I'll ask them for an
early birthday present. I am hoping to present myself with all the wounds
gone on my birthday in April.

 

Joan

 

  _  

From: MissLiz [mailto:[EMAIL PROTECTED] 
Sent: Sunday, February 04, 2007 7:00 AM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] How Do You Read Books?

 

http://www.dbtac.vcu.edu/centers.aspx

 

you can ask them @ where to obtain funding too for devices on AT

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 03, 2007 5:12 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] How Do You Read Books?

 

Naomi is right and has hit a sore point with me. Yea, I can move both arms
but my hands do not possess the dexterity needed to read and flip pages in
most books with any degree of comfort. I fumble through books I have to read
but I haven't read a book for fun in years. The books on tape is ok if you
like that. I do not. I can't just flip to a page, it is a struggle and I
think something should be done. I have read where some books may be made
available on cd. I have not seen any books on cd unless someone is reading
to me again. I have a distinct feeling that most books being printed today
are being printed from cd's and electronic media. I just don't know who to
contact. I would so love to read a book for entertainment purposes again. On
my last trip to the library I looked for some filthy paperback novels and
couldn't even find one on tape. 

I have this feeling that the solution to my problem is going to cost me
money. 

 

john   

 


-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Fri, 2 Feb 2007 9:42 PM
Subject: Re: [QUAD-L] How Do You Read Books?

You might try a mouthstick to turn the pages on your book stand but that has
pitfalls also.  A company also makes an automatic page turner but I have not
had experience with it.  The library of congress has a program of books on
tapes but it is antiquated as they are updating their technology and trying
pilot programs.  My local library has started offering books that you can
download on the Web.  Its catalog could be better but it gives me more
options.  Check with your library.  I recently completed Shadow Divers my
robertkurson and enjoyed it very much.  It is a true story is about a German
U-boat laying off the coast of New Jersey.  Have you read anything good
lately?  Dan T.

[EMAIL PROTECTED] wrote: 

I am having a dilemma.  I was an avid book reader before I became a
quadriplegic due to Transverse Myelitis.  Now I am in a dilemma as to how do
I manage to read a book.  I have a book stand, but it is virtually
impossible for me to turn the pages.  I have looked on the Internet for page
turners, but I haven't found any that are suitable for my need.  This is
really driving me crazy, especially since there are so many things I need to
read.  I would like to know how anyone else manage to read a book.  For
novels, I get books on tape, if they're available, but some things I need to
read, do not come on a tape.  I would appreciate any suggestions.

 

Naomi

 

hr size=2 width=100% align=center 

 
http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht
tp%3A%2F%2Fwww%2Eaol%2Ecom%2Fnewaol Check out the new AOL. Most
comprehensive set of free safety and security tools, free access to millions
of high-quality videos from across the web, free AOL Mail and more.

 

RE: [QUAD-L] How Do You Read Books?

[poajoan]

I have two book stands, both of which were purchased in the first year that
I was home after my SCI. One is a wire book stand that sells for $4.95, and
that works well for paperbacks. I use a mouthstick that is made of an
aluminum arrow. I have some plastic stuff, that becomes soft when it is
immersed in water -- hot water -- and we cut it and fold it over the
mouthstick and I bite gently on it to conform it to my mouth. On the other
end, we put rubber erasers, and I can replace them as I wear them down. My
other book stand works with magazines, and I use it a lot to put papers on
it so that I can answer questions etc.. It is solid metal, with two little
arms in front that hold the papers in place, and the back is slotted so that
it can be adjusted by an arm in back. I had the tabletop on my hospital over
bed tray replaced with a solid wood one. I put the book stand on the end of
the top, and I have a hole drilled at the right angle so that I can put the
tip of the mouthstick in it. I also use a lot of the non-skid stuff that you
put under rugs, so that things do not slide around on the stand. It wasn't
expensive and it isn't super easy to use, but when I am up I read a lot. I
like the fact that it is quite portable, so I can have my table placed where
ever I want to be, and then read away. It took me quite a while to learn how
to move the pages without getting frustrated. I grab them at the bottom
right, lift them up and over to the left, and then slide them down behind
the peg. I cannot flip through a book, nor is it easy to go back several
pages, but like you, I love to read.

 

Have you thought about putting a rubber fingertip -- librarians used to use
these, I don't know if they're still around -- on your finger so that you
would have a bit of grit on your finger? I don't like the books on tape --
my mind wanders away -- and I can't rewind the tape. E-books are okay, but
they are way too expensive. Unfortunately, my library does not have e-books
to download just yet.

 

Joan C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Saturday, February 03, 2007 2:12 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] How Do You Read Books?

 

Naomi is right and has hit a sore point with me. Yea, I can move both arms
but my hand do not possess the dexterity needed to read and flip pages in
most books with any degree of comfort. I fumble through books I have to read
but I haven't read a book for fun in years. The books on tape is ok if you
like that. I do not. I can't just flip to a page, it is a struggle and I
think something should be done. I have read where some books may be made
available on cd. I have not seen any books on cd unless someone is reading
to me again. I have a distinct feeling that most books being printed today
are being printed from cd's and electronic media. I just don't know who to
contact. I would so love to read a book for entertainment purposes again. On
my last trip to the library I looked for some filthy paperback novels and
couldn't even find one on tape. 

I have this feeling that the solution to my problem is going to cost me
money. 

 

john   

 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Fri, 2 Feb 2007 9:42 PM
Subject: Re: [QUAD-L] How Do You Read Books?

You might try a mouthstick to turn the pages on your book stand but that has
pitfalls also.  A company also makes an automatic page turner but I have not
had experience with it.  The library of congress has a program of books on
tapes but it is antiquated as they are updating their technology and trying
pilot programs.  My local library has started offering books that you can
download on the Web.  Its catalog could be better but it gives me more
options.  Check with your library.  I recently completed Shadow Divers my
robertkurson and enjoyed it very much.  It is a true story is about a German
U-boat laying off the coast of New Jersey.  Have you read anything good
lately?  Dan T.

[EMAIL PROTECTED] wrote: 

I am having a dilemma.  I was an avid book reader before I became a
quadriplegic due to Transverse Myelitis.  Now I am in a dilemma as to how do
I manage to read a book.  I have a book stand, but it is virtually
impossible for me to turn the pages.  I have looked on the Internet for page
turners, but I haven't found any that are suitable for my need.  This is
really driving me crazy, especially since there are so many things I need to
read.  I would like to know how anyone else manage to read a book.  For
novels, I get books on tape, if they're available, but some things I need to
read, do not come on a tape.  I would appreciate any suggestions.

 

Naomi

 

  _  

size=2 width=100% align=center 

 
http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht
tp%3A%2F%2Fwww%2Eaol%2Ecom%2Fnewaol Check out the new AOL. Most
comprehensive set of free safety and security tools, free access to millions
of high-quality 

RE: [QUAD-L] /cell phone Bluetooth

[poajoan]

Hi Silas

 

There is no website, I purchased my phone through Cingular, bought the cobra
adapter at RadioShack, and purchased the Plantronics Bluetooth voyager on
the Internet. With the rebates that Cingular offered, the entire system cost
$165. I just checked on Cingular, and they have two phones that utilize the
magic word system, the Sony Ericsson 300 I, which is free with a two-year
contract after a rebate, and the Sony Ericsson 801 I, which would cost $75
after mail-in rebate and a two-year contract. I would suggest you go to a
Cingular store and try it out. Perhaps they have changed the 801I and you
wouldn't need the adapter with a Bluetooth. I will talk with Christian and
see if he has time to go to the Cingular store and check it out.

 

Good luck Joan

 

  _  

From: Silas [mailto:[EMAIL PROTECTED] 
Sent: Friday, February 02, 2007 9:56 AM
To: poajoan; 'B. Kimberlin (Quadius)'
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] /cell phone Bluetooth

 

Joan, 

Do you have the web site for this system?  

Thanks Silas 

- Original Message - 

From: poajoan mailto:[EMAIL PROTECTED]  

To: 'B. Kimberlin mailto:[EMAIL PROTECTED]  (Quadius)' 

Cc: quad-list@eskimo.com 

Sent: Tuesday, January 30, 2007 3:51 PM

Subject: RE: [QUAD-L] /cell phone Bluetooth

 

Hey Quadius

 

I am a C4 quad, can't move below my shoulders, and I make all the outgoing
and answer all the in coming calls on my cell phone -- without pushing any
buttons. I have a Sony Ericsson 600 I cell phone, a cobra adapter, which
connects to the microphone end of the cable, the Plantronics Bluetooth
voyager. To answer the phone. I just have to say answer. To make an outgoing
call, I use my magic word, which in my case is expialadocious spelling?.
I then choose to make a call to one of the voice-enabled numbers on my
phone, i.e. call Taryn, or say voice connect, which connects me to voice
dial with Cingular -- I can then choose from one of the stored numbers on
voice dial or dial by number. When my call is finished, with Cingular voice
connect, it asks me to make another choice -- if I say nothing. It tries two
or three more times, and then hangs up. When my call is finished with one of
the voice-enabled numbers on my phone, the phone hangs up by itself. If I
have answered a call on my phone, when the other party hangs up my phone
hangs itself up. Yes, there is a bug, and as I explained before. I utilize
the bug to my advantage. If there is a missed call, I cannot call out. I can
however answer the phone. So when I am going to be in a noisy environment,
or with friends and I am not interested in making any calls out, I have
somebody call me and I do not answer the phone. When I am ready to resume
using the phone, I ask somebody to push the button to remove the missed
calls.

 

Like any voice-activated equipment -- an environmental control unit, Dragon
NaturallySpeaking, they're all have and will continue to have problems with
ambient noise. Using a unidirectional microphone helps to a great extent,
but they still are affected by a noisy environment. I guess I have chosen to
live with the bugs, because I have no other choice for telephone, my
environment, and my computer, when I am not able to be sitting up in my
wheelchair using a mouth stick.

 

This system is quite reasonable, I thought, and I do love the privacy of
conversations that other people do not hear and join me in my conversation.
I do not remember the name of the motivational speaker that I heard over 20
years ago, but one phrase stands out in my mind -- if you wait for all the
people To Be out of your way on the highway before you go to town, you will
never leave home. So I guess I'm jumping in there with all of the people on
the highway, and I'm loving it.

 

Incidentally, this system became available last November of 2005, so it is
relatively new. Have a great day Joan


  _  


From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 6:52 PM
okay: poajoan
Cc: quad-list@eskimo.com
Subject: RE: [QUAD-L] Pressure mapping/cell phone Bluetooth

 

If I'm not mistaken, Bluetooth is not a completely hands-free microphone.
Although, the last time I checked was quite some time ago. I'm still waiting
on a system that will allow me to answer the telephone and call out a
hands-free.  I remember some people intimating there was a system available,
but I would like to hear from people that don't have bugs with it before I
actually go out and invest a significant amount of money into the product.
Quadius

poajoan [EMAIL PROTECTED] wrote: 

Hi Dan.

 

As I replied to Dana, I do use a Plantronics Bluetooth voyager with my cell
phone. I am very pleased with it, and I've actually ordered another one as
this one fell on the floor and the insert into my ear broke off -- but my
son-in-law was able to glue it back together. Voice connect is a service
offered by Cingular, which is free to those with a disability, which enables
me to say the magic

RE: [QUAD-L] UTI Prevention Van Insurence

[poajoan]

Wow!! I think I am very glad that I have stayed with intermittent
catheterization. It's going on 16 1/2 years, and I do get very tired of
having to schedule many things around my cath schedule, but I have never had
a serious UTI -- and listening to you guys I never want one. The most
serious one that I had I got while I was in the hospital for a brown recluse
spider bite. And that was 15 1/2 years ago. Since then, I have averaged a
mild one once a year, which has responded to 10 days of Cipro. I am sure I
usually have a mild UTI, but I am not symptomatic. After eight years of no
health insurance, I was finally eligible for Social Security when I reached
65 -- that was a great birthday present. So last year, I went through the
entire kidney, bladder, colonoscopy, and whatever else they can think of
series of tests. Luckily, everything seemed to be working correctly, and my
urologist finally said, as he had some news for me, everything looks so
good that I don't really believe you are a quad. Corniest joke I've heard
in a long time, but it was welcome news.

 

So, until something else has to be done, I think I'll stay with intermittent
catheterization. Because as they say, if it ain't broke don't fix it. My
heart goes out to all of you who have so many bladder and kidney problems. I
have been blessed with very good health, and with the exception of these
darn wounds that I am working on, I stay in good health.

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Friday, February 02, 2007 1:32 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] UTI Prevention  Van Insurence

 

If you have a supra-pubic cath or an in dwelling Foley of any kind for more
than a few days, you have a UTI. It is a matter of how bad it is and how
well you tolerate infections. On that level, you should have bacterial
infections most of the time. If any of you get a viral infection, the doctor
may want you in the hospital but there's not a lot they can do. (When were
you ever made comfortable in a hospital.) You can be super clean and a real
fanatic, but your skin is covered with bacteria it is trying to keep out.
For this ! reason, most infections are stafflococous. If you have kids
around then you get a higher rate of strep infections. (can't say they
didn't give you anything.) If you think you can delay treating the
infection, your kidneys can become history to an aggressive bug in under a
day. Fortunately, us quads get pretty ill while the infection is still
chewing on our bladder and start anti biotic in time. A UTI is worse if it
is shutting your kidneys down. I can usually tell a lot by how easy it is to
get mad. If I get po'ed because people don't park between the lines, I'm
probably pretty sic! k.

I personally don't go to hospitals. I can be ignored and miserable without
going anywhere and I have cable tv for when I'm awake at 4 am. I just
promise to call 911 if I think I'm going to die. They can always send a
nurse with the plague du jour if need be. 

Next time you catch a bug remember, it caught you! Don't get me wrong, do
all you can to stay clean. Lots of reasons to keep clean!

Please don't think UTI's aren't serious because I like to joke. Once your
kidneys go, you get a new catheter so you can get your blood dialysed and
not die of septicemia as fast.

 

john

C-5 post 31

Cincy, OH 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Thu, 1 Feb 2007 9:34 PM
Subject: Re: [QUAD-L] UTI Prevention  Van Insurence

Maybe the UTI was fostered by the yogurt.  Sometimes food rich in calcium or
minerals are deposited in the urine and slowdown draining of urine.  The
slowdown could in turn foster UTI.  I have read that most UTIs are caused
from a bug in our stool.  I had always been extremely careful getting
cleaned off after bowel care and accidents but then when I learned that most
UTIs are caused by bug in stool I became extreme, somewhat over-the-top
about cleanliness.  It helped. Changing sheets and washing more frequently
might help.  Dan T.


[EMAIL PROTECTED] wrote: 

Hi All,

 I have not had a UTI since August and I swear it's from taking
cranberry pills and eating a yogurt EVERYDAY.

  When I got my new van in 2001 I had my conversion company give me an
itemized list of their work and gave it to my State Farm agent so everything
is insured. I pay $1,200 and I drive. I haven't had an accident since 1981
and I've never gotten a ticket.

  Bobbie

 

  _  

size=2 width=100% align=center 

 
http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=ht
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RE: [QUAD-L] /cell phone Bluetooth

[poajoan]

Hey Quadius

 

I am a C4 quad, can't move below my shoulders, and I make all the outgoing
and answer all the in coming calls on my cell phone -- without pushing any
buttons. I have a Sony Ericsson 600 I cell phone, a cobra adapter, which
connects to the microphone end of the cable, the Plantronics Bluetooth
voyager. To answer the phone. I just have to say answer. To make an outgoing
call, I use my magic word, which in my case is expialadocious spelling?.
I then choose to make a call to one of the voice-enabled numbers on my
phone, i.e. call Taryn, or say voice connect, which connects me to voice
dial with Cingular -- I can then choose from one of the stored numbers on
voice dial or dial by number. When my call is finished, with Cingular voice
connect, it asks me to make another choice -- if I say nothing. It tries two
or three more times, and then hangs up. When my call is finished with one of
the voice-enabled numbers on my phone, the phone hangs up by itself. If I
have answered a call on my phone, when the other party hangs up my phone
hangs itself up. Yes, there is a bug, and as I explained before. I utilize
the bug to my advantage. If there is a missed call, I cannot call out. I can
however answer the phone. So when I am going to be in a noisy environment,
or with friends and I am not interested in making any calls out, I have
somebody call me and I do not answer the phone. When I am ready to resume
using the phone, I ask somebody to push the button to remove the missed
calls.

 

Like any voice-activated equipment -- an environmental control unit, Dragon
NaturallySpeaking, they're all have and will continue to have problems with
ambient noise. Using a unidirectional microphone helps to a great extent,
but they still are affected by a noisy environment. I guess I have chosen to
live with the bugs, because I have no other choice for telephone, my
environment, and my computer, when I am not able to be sitting up in my
wheelchair using a mouth stick.

 

This system is quite reasonable, I thought, and I do love the privacy of
conversations that other people do not hear and join me in my conversation.
I do not remember the name of the motivational speaker that I heard over 20
years ago, but one phrase stands out in my mind -- if you wait for all the
people To Be out of your way on the highway before you go to town, you will
never leave home. So I guess I'm jumping in there with all of the people on
the highway, and I'm loving it.

 

Incidentally, this system became available last November of 2005, so it is
relatively new. Have a great day Joan

  _  

From: B. Kimberlin (Quadius) [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 6:52 PM
okay: poajoan
Cc: quad-list@eskimo.com
Subject: RE: [QUAD-L] Pressure mapping/cell phone Bluetooth

 

If I'm not mistaken, Bluetooth is not a completely hands-free microphone.
Although, the last time I checked was quite some time ago. I'm still waiting
on a system that will allow me to answer the telephone and call out a
hands-free.  I remember some people intimating there was a system available,
but I would like to hear from people that don't have bugs with it before I
actually go out and invest a significant amount of money into the product.
Quadius

poajoan [EMAIL PROTECTED] wrote: 

Hi Dan.

 

As I replied to Dana, I do use a Plantronics Bluetooth voyager with my cell
phone. I am very pleased with it, and I've actually ordered another one as
this one fell on the floor and the insert into my ear broke off -- but my
son-in-law was able to glue it back together. Voice connect is a service
offered by Cingular, which is free to those with a disability, which enables
me to say the magic word to my Sony Ericsson 600 I cell phone, say voice
connect, and then be able to access my address book with Cingular or just
say call 555 -- 555 -- 555 and be connected. I absolutely love it. It
gives me so much freedom. Hope that answers your questions.

 

Have a great day. Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Saturday, January 27, 2007 1:36 PM
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Pressure mapping/cell phone Bluetooth

 

Hi Joan, it sounds like you've got a lot of technology working for you. Can
you tell me, do you use a Bluetooth device with any of your phones? Also,
what is voice connect? Thanks, Dan T.


Note: forwarded message attached.

 

  

  _  

Have a burning question? Go to Yahoo!
http://answers.yahoo.com/;_ylc=X3oDMTFvbGNhMGE3BF9TAzM5NjU0NTEwOARfcwMzOTY1
NDUxMDMEc2VjA21haWxfdGFnbGluZQRzbGsDbWFpbF90YWcx  Answers and get answers
from real people who know.

RE: [QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems

[poajoan]

Hi Dan

 

I wish I could answer that for you, but when my friend put the system
together, he found that he needed the cobra adapter in order to make it
truly hands-free. I don't know why, but it has worked very well for 15
months. If you are interested in the same thing, I will get Christian, who
is my electronic guru, to e-mail me the reasons why, and exactly what he had
to do. I am most grateful for all of my voice-activated things, and I am
extremely grateful for Christian who comes and bails me out when my X10
system goes wrong, and multiple other things. God has certainly put some
very valuable helpers in my walk, so that I can live life to the fullest.
Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 7:46 PM
To: poajoan; [EMAIL PROTECTED]; [EMAIL PROTECTED];
quad-list@eskimo.com
Subject: Re: [QUAD-L] RE: Vocalize  iTalk Voice Controlled Cell Phone
Systems

 

Hi Joan, what is a COBRA adapter?  And, why do you need one if your
telephone is hands-free?  Thanks, Dan T.

poajoan [EMAIL PROTECTED] wrote: 

Hi Dana.

 

You are right, he has added quite a few things to his website. It is
interresting that the one set up can be used for an environmental control
system, using an X--10 system I presume. I have purchased his carrier for
when we go on vacation. Using it, I can be carried out into the water for
swimming.

 

My phone system uses the Sony Ericsson 600 I Walkman, a Plantronics Voyager
Bluetooth, and a COBRA adapter from RadioShack. When I purchased it 15
months ago, the entire set up with a two-year contract with Cingular was
$165. I have had absolutely no problems with it, and as he mentioned in his
letter to you Dana, Cingular is very disability friendly. I have the free
voice dial, but did not know about the free information. I will look into
that. I really like my system better for just a phone, because it is very
un-obtrusive. I have a telephone mounted on a flexible boom, which attaches
to my chair, and a wire that connects the cobra adapter to my chin
controller. The Bluetooth is then wireless of course. As he mentions in his
letter, there is a bug with the Sony Ericsson 600i, which turns off the
voice capabilities, if there is a message waiting. I use that bug all the
time. To prevent me from making outgoing calls, when I am in a very noisy
place, I just have somebody dial my number and do not answer the phone
--voila, no mistaken outgoing calls. I just have somebody click the phone
button when I am ready to make outgoing calls.

 

I do not use a headrest on my chair so that flexing microphone would not
work for me. Just my opinion, but I do like my system better for just the
phone.

 

I chose this Plantronics Bluetooth, because it is very unobtrusive, and it
stays in my ear, even when I am outside bumping around.

 

Have a great day. Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 1:01 AM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Fwd: Vocalize  iTalk Voice Controlled Cell Phone Systems

 

Dan T. and Joan ,


I don't know how similar this is to the set up Joan has.

I don't know what service is uses for sure.  I thought previously it was
Cingular but I have not read his sites yet as I just got, but I wanted to
share with you and whoever else is interested in hands-free phones.

 

It looks like he has some new things to offer since I last looked at his
site and wrote to him and I don't know the prices yet.

 

Dana

 

[QUAD-L] RE: Vocalize iTalk Voice Controlled Cell Phone Systems

[poajoan]

Hi Dana.

 

You are right, he has added quite a few things to his website. It is
interresting that the one set up can be used for an environmental control
system, using an X--10 system I presume. I have purchased his carrier for
when we go on vacation. Using it, I can be carried out into the water for
swimming.

 

My phone system uses the Sony Ericsson 600 I Walkman, a Plantronics Voyager
Bluetooth, and a COBRA adapter from RadioShack. When I purchased it 15
months ago, the entire set up with a two-year contract with Cingular was
$165. I have had absolutely no problems with it, and as he mentioned in his
letter to you Dana, Cingular is very disability friendly. I have the free
voice dial, but did not know about the free information. I will look into
that. I really like my system better for just a phone, because it is very
un-obtrusive. I have a telephone mounted on a flexible boom, which attaches
to my chair, and a wire that connects the cobra adapter to my chin
controller. The Bluetooth is then wireless of course. As he mentions in his
letter, there is a bug with the Sony Ericsson 600i, which turns off the
voice capabilities, if there is a message waiting. I use that bug all the
time. To prevent me from making outgoing calls, when I am in a very noisy
place, I just have somebody dial my number and do not answer the phone
--voila, no mistaken outgoing calls. I just have somebody click the phone
button when I am ready to make outgoing calls.

 

I do not use a headrest on my chair so that flexing microphone would not
work for me. Just my opinion, but I do like my system better for just the
phone.

 

I chose this Plantronics Bluetooth, because it is very unobtrusive, and it
stays in my ear, even when I am outside bumping around.

 

Have a great day. Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 1:01 AM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Fwd: Vocalize  iTalk Voice Controlled Cell Phone Systems

 

Dan T. and Joan ,


I don't know how similar this is to the set up Joan has.

I don't know what service is uses for sure.  I thought previously it was
Cingular but I have not read his sites yet as I just got, but I wanted to
share with you and whoever else is interested in hands-free phones.

 

It looks like he has some new things to offer since I last looked at his
site and wrote to him and I don't know the prices yet.

 

Dana

RE: [QUAD-L] RE: Environmental Control Unit

[poajoan]

Hi Peter.

Check out Smarthome.com. They probably have everything you want, and their
prices are reasonable, and I have found the service to be excellent. I have
a SiCare environmental control unit, that uses the X10 system, and have
found a few bugs with the X10 system itself, but overall, I really like it.

Have a good day Joan

-Original Message-
From: Peter Damiano [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 2:28 AM
To: quad-list@eskimo.com
Subject: [QUAD-L] RE: Environmental Control Unit

Could somebody give me some information about an environmental 
control unit?  I'm looking for something very basic, and not 
expensive.  Preferably, one that is operated from the personal 
computer.  I heard some time back that there was some software geared 
towards an ECU.  I'm only looking for something to control some basic 
appliances.  Does anyone have one similar to this description?  All 
information would be greatly appreciated-Thank You
Peter Damiano C/4-5 25 Years Post



-- 
You Rock! Your E-Mail Should Too! Signup Now at Rock.com and get 250MB of
Storage!

http://webmail.rock.com/signup/

RE: [QUAD-L] dr.G (Friday night lights)

[poajoan]

My fingers have never curled up, but they sure do swell up. The only time
they resemble fingers is while I am still in bed, but once I get up the
edema swells them up -- it's not really that bad, but down in rehab, they
had me wearing gloves to try and keep the swelling down. It didn't work, so
I decided that fat fingers were better than fat fingers inside gloves. LOL.

 

Have a great day Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Monday, January 29, 2007 1:04 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] dr.G (Friday night lights)

 

In a message dated 1/28/2007 7:34:14 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:

Only my pinky finger curled up... Dan T.

[EMAIL PROTECTED] wrote: 

Hello all my name is Larry,

I watch the show every week.  It's pretty good.  It actually resembles my
life/injury just a bit as I was injured in football practice in college in
'97(while blitzing I collided with another player).  I'm a C5 quad so it
peaked my interest more becuase I wanted to see how well they get this whole
quadlife right.  
Are there any other quads out there whose fingers didn't curl up, mine
didn't.  

mine didn't, they were very straight until i had tendon transfers, now they
are and both pinkies are curled tight.

diane

 

RE: [QUAD-L] Pressure mapping/cell phone Bluetooth

[poajoan]

Hi Dan.

 

As I replied to Dana, I do use a Plantronics Bluetooth voyager with my cell
phone. I am very pleased with it, and I've actually ordered another one as
this one fell on the floor and the insert into my ear broke off -- but my
son-in-law was able to glue it back together. Voice connect is a service
offered by Cingular, which is free to those with a disability, which enables
me to say the magic word to my Sony Ericsson 600 I cell phone, say voice
connect, and then be able to access my address book with Cingular or just
say call 555 -- 555 -- 555 and be connected. I absolutely love it. It
gives me so much freedom. Hope that answers your questions.

 

Have a great day. Joan

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Saturday, January 27, 2007 1:36 PM
To: [EMAIL PROTECTED]
Cc: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] Pressure mapping/cell phone Bluetooth

 

Hi Joan, it sounds like you've got a lot of technology working for you. Can
you tell me, do you use a Bluetooth device with any of your phones? Also,
what is voice connect? Thanks, Dan T.


Note: forwarded message attached.

[QUAD-L] Pressure mapping

[poajoan]

Thank you all for the input on pressure mapping. I have been somewhat
reluctant to go to a Roh0 cushion as I am afraid that I will lose the
stability of my J. cushion. We live on the side of a hill/mountain, and
nowhere do I have much level ground. I have an Omega Trac wheelchair which
is absolutely awesome and I can get around everywhere safely.

 

By the way, I brought my Omega Trac on eBay. It was in Hong Kong and I paid
$2300., which included shipping to United States. I had it sent to Teftec in
Texas for an overhaul. They went over the entire chair, painted, put the new
electronic system on it, and then had it shipped up to me. Ironically, the
shipping from Texas was more than the shipping from Hong Kong!

 

So back to the Roho cushion, how stable is it going over bumps and curbs and
things? If it does spring a leak, how quickly does it go flat? I have
absolutely no control of my upper torso, and have a chest strap that goes
under my clothes to hold me in the chair. That is why I am somewhat
concerned about the stability in the chair with the Roho. I would notice if
the air was leaking out on one side or the other, but I would not notice if
it were leaking out evenly, unless it went down an inch or so, for then I
would feel it with the added pressure on my shoulders. 

 

Both arms are Velcroed to the armrests. Someone just brought up the problem
of the vinyl cracking on the armrests -- I like to have my armrests covered
in commercial velvet, we use spray adhesive and cut the velvet to fit. It
makes them less slippery, and also not as hot in the summer.

 

I am at least two months away from buying a new cushion, but I would like to
explore my options now.

 

Well, that's enough for this e-mail, I'll write more later.

 

Joan, C4 1990.

 

[QUAD-L] RE: [Spinalcordinjury] vitamins and a regime for wound care

[poajoan]

Thank you for the comments on the Medicare program with regards to the pay
back by Medicare to a personal user.  I am going through a company named
Hill-Ron, which is the only distributor of the Clinitron bed I believe.
While Medicare has paid for the use of the Clinitron bed in hospitals, it
has evidently not been reliable about paying for the Clinitron home use bed.
Hill-Ron has been declining the use of the Clinitron bed for Medicare
patients for the last couple of years. However, they have started on the
East Coast and are moving westerly to try and determine if Medicare will
continue to pay for the Clinitron bed in home. My representative assures me
that there is a 99% chance that I will get all of my money back within the
next few months. Much as I hate to pay out a whole bunch like this, if it
means I can cure my wounds at home, rather than by surgery and a six to
eight weeks day in a hospital, I would rather do that.

 

Let's face it, life is a gamble and money is just money, and I am fortunate
enough to be able to pay for this if necessary. I had definitely earmarked
this money for something else, but my health is worth much more.

 

Joan C/4 1990.

 

 

.

 
http://geo.yahoo.com/serv?s=97359714/grpId=63054/grpspId=1705061803/msgId=3
990/stime=1169141279/nc1=4299903/nc2=3848504/nc3=3848525 
__,_._,___ 

[QUAD-L] Pressure mapping

[poajoan]

I have followed this thread on pressure mapping for a while, and I am very
interested in finding a place that does pressure mapping. I bought a new
seat cushion, which was recommended by Santa Clara medical center, a J2 deep
contour, which I really liked for the stabilizing, but believe that it has
contributed to the groin wound. I am not finding a lot on pressure mapping
on the Internet, so I am going to contact Santa Clara SCI and see if there
is a pressure mapping dealer in that area. I live in Reno Nevada, and you
would think that there are plenty of wheelchair places here, but that is not
the case. I made an appointment with rehabilitation to be fitted for the new
cushion, and one of the two medical supply companies representatives met
with us. Neither one of them could say anything about the way I sit, other
than I had good posture and was not putting any pressure on the ischium. I
have never had a decubitus on the ischium, my wound in back is on the
sacrum, probably caused from bed, as I sleep on my back all the time. So I
am sandwiched front and back! I hope that pressure mapping, and then having
some expert advice on correct seating I should use will help to eliminate
any recurrence of these wounds. I realize that as I get older, my skin
becomes more fragile, and since I will be 68 shortly and 16 1/2 years
post-injury that skin breakdowns may become more the norm than not.

 

Joan C/4 1990

 

RE: [QUAD-L] MurGallery.com update

[poajoan]

Really nice website. I'm one of those artists who can sign my name well g
My response to those who say oh you people are so talented is-I couldn't
draw before I broke my neck, and I sure can't now!

 

I really admire those who are artists, and I love your butterflies.

 

Joan C/4

  _  

From: Mike Murach [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, January 17, 2007 12:50 PM
To: Quad-List@eskimo.com
Subject: [QUAD-L] MurGallery.com update

 

I'm proud to announce that my new, updated web gallery is finally finished
and is on the Internet.  I have spent the last three months designing and
implementing it.  It is nothing fancy, but hopefully enjoyable and
straightforward.  I would love to hear any type of feedback (please sign my
guestbook).  ALSO, my old web gallery email [EMAIL PROTECTED] has now been
discontinued because of a proliferation of SPAM.  My new gallery email is:
[EMAIL PROTECTED]  Please pass on this information to anyone that may
be interested.

 

Sincerely,

Michael Murach

 

www.MurGallery.com http://www.murgallery.com/ 

 

 

 

RE: [QUAD-L] Pain test

[poajoan]

As several others have posted, everyone
had such good information and answers to questions posted here that I seldom
post because everything I would say has already been said! This is a good thing.



I had such fantastic rehab people, who
were very realistic about the amount of function that I would probably have as
a return, but gave me so much support and information that was available 16
years ago that I have had very successful and satisfying Quad life of 16 years.
That is not to say that I wouldn't in a heartbeat return to my life before this.



Sure, I would love to have more function,
at least one arm available to scratch my nose, get a drink, feed myself, push
the covers down or pull them up, hug my grandkids, and the list goes on. But I
have so much more than many do on this list. I have my family, my three
youngest grandchildren live 400 ft. away and are in and out all day long, and
my daughter and son-in-law freely let the children stay here when they want to.
I thoroughly enjoy watching them grow up, the granddaughter is now three, and
the two boys are seven and eight.



I was amazed when I joined this list to
find out that the feelings I had below my line of injury actually have a name neuropathic
pain. When I was in rehab I had talked to the doctors about the different
feelings I had, legs being cold, legs being hot, pins and needles, the constant
tingling as if my legs were just waking up, and maybe worst of all the feeling
in my one arm as if I hit my crazy bone. They said these things would probably
get better as time went on. They didn't, but then I didn't see a spinal cord
injury doctor for the next 15 years. For 10 years I had no health insurance,
and I was not eligible for disability because I had not worked enough quarters
in the last five years for Social Security. So therefore I had virtually no
medical follow-up. I went to a clinic and got what little medication I needed,
and when something severe happened I went to the ER, and luckily was only
hospitalized once in the 10 years.



However, because of the lack of spinal
cord injury follow-up, I never took more than Tylenol for any pain. I never
thought of using any other method than intermittent catheterization. I was not
eligible for any form of pt or ot, so I just kept doing the exercises they had
me on when I left rehab. And evidently it worked, as I have been remarkably
healthy. Now that I have insurance again, I have been to the Santa Clara rehab and been reevaluated. I am
still at C4 with no C5 function, all of the studies that they were so anxious
for me to have because I haven't had them 15 years came out great, my wounds
that we have been treating are healing well, and they all said that they would
see me in one year. I am very thankful and praise God that I have been so very
healthy over the years. I realize that as I get older -- I am now 67 -- that my
health will undoubtedly start to deteriorate. And that is not a good thing!



This list provides invaluable information
to new and old quadriplegics -- age wise and injury wise. I really enjoy the
spirited debates and hope that no one feels that their opinions are not
important. Keep it up everybody, we all need to learn one new thing every day,
and this list often offers that one new thing for me.



Regarding the pain test -- I didn't do so
well! Got three of 10 by guessing for the most part. But it was certainly
interesting.



You guys and girls are the greatest!!



Joan C4/5 complete 1990

RE: [QUAD-L] Collective SCI years

[poajoan]

Interesting
also. Do you realize that a hundred of us will account for about
2000 collective years of SCI living? 

Jesus, that's
a long time !!! :-)



Dave [EMAIL PROTECTED]
39 

Eric [EMAIL PROTECTED]
9

Michael
Norville[EMAIL PROTECTED] 30

Houston [EMAIL PROTECTED]
8 

Lori [EMAIL PROTECTED]
26 

Byron King [EMAIL PROTECTED] 3

Ray.T [EMAIL PROTECTED] 
11


Bill: [EMAIL PROTECTED]
38


river [EMAIL PROTECTED]
20 

carolyn, [EMAIL PROTECTED] 43 

DANNY
HEARN [EMAIL PROTECTED] 9

John [EMAIL PROTECTED]
 30 

Tom [EMAIL PROTECTED] 8

Houston [EMAIL PROTECTED]
8

Paul [EMAIL PROTECTED]
3

Bobbie
Humphreys [EMAIL PROTECTED]33

Stephanie
20

Joan Anglin [EMAIL PROTECTED]  15

---

Total
354



Guess Ill do this right LOL