Re: [CMLHope] Gleevec

On Tuesday, August 8, 2017, Ken Roberson wrote: > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had > additional medical challenges. > I was a member of the original

Re: [CMLHope] Gleevec

Thanks for the update, Just hope you keep making progress and that rehab is finding ways to keep US safe from OUR own need of dependence on taking care of ourselves. 18's. Richard H. On Thursday, August 10, 2017 at 10:36:53 AM UTC-5, wa2yyx wrote: > > Hi Beth and everyone > > First glad no

Re: [CMLHope] Gleevec

. Prayers and hugs, !8's and love, Beth -Original Message- From: Marty Gartenberg <wa2...@gmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Thu, Aug 10, 2017 6:10 pm Subject: Re: [CMLHope] Gleevec You see something Susan,It's this site that makes a real difference beca

Re: [CMLHope] Gleevec

ess alone just >> reading..I just became one of those people for a time.. I will try to be >> better about speaking up when I am struggling. >> >> Love to all, >> >> 18's Beth >> >> >> >> -Original Message- >> From: 'Susan Zimm

Re: [CMLHope] Gleevec

s alone just >> reading..I just became one of those people for a time.. I will try to be >> better about speaking up when I am struggling. >> >> Love to all, >> >> 18's Beth >> >> >> >> -Original Message- >> From: 'Susan Zimmerman

Re: [CMLHope] Gleevec

18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> To: rbhuffman1 <rbhuffm...@gmail.com>; cmlhope <cmlhope@googlegroups.com> Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all

Re: [CMLHope] Gleevec

017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you tremendously and hope you will have no more setbacks. Obviou

Re: [CMLHope] Gleevec

ssage- > From: 'Susan Zimmerman' via CMLHope <cmlhope@googlegroups.com> > To: rbhuffman1 <rbhuffm...@gmail.com>; cmlhope <cmlhope@googlegroups.com> > Sent: Wed, Aug 9, 2017 6:38 pm > Subject: Re: [CMLHope] Gleevec > > Beth, my heart goes out to you from all you've g

Re: [CMLHope] Gleevec

<cmlhope@googlegroups.com> To: rbhuffman1 <rbhuffm...@gmail.com>; cmlhope <cmlhope@googlegroups.com> Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encou

Re: [CMLHope] Gleevec

Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you tremendously and hope you will have no more setbacks. Obviously those kidneys are so important to function

Re: [CMLHope] Gleevec

Thanks Richard. You can preach whenever you want. :) Beth. -Original Message- From: Richard H <rbhuffm...@gmail.com> To: CMLHope <cmlhope@googlegroups.com> Sent: Tue, Aug 8, 2017 10:30 pm Subject: Re: [CMLHope] Gleevec Thanks for the update. I hope all keep

Re: [CMLHope] Gleevec

at's it. Take good care.. love you all, 18's Beth -Original Message- From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Wed, Aug 9, 2017 10:01 am Subject: Re: [CMLHope] Gleevec Hi Beth I have really missed your uplifts

Re: [CMLHope] Gleevec

Hi Beth I have really missed your uplifts but knew you were going through some trials and tribulations. My heartbeat is down to 40 and sometimes lower but not too concerned yet. I had a three day stay in hospital to see if they could find out the source of the pain in my side. No luck. No my

Re: [CMLHope] Gleevec

Thanks for the update. I hope all keeps going well. No preaching today, you are under control and I hope you continue to get better. Richard H. On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote: > > Dear Susan, Jeanie, Marty, Richard, Greenie et all, > > So sorry I have not been

Re: [CMLHope] Gleevec

a big hug. and to the rest of you..love, hugs and 18'sit feels good to write something... Beth -Original Message- From: 'Susan Rosenthal' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Aug 8, 2017 6:49 am Subject: Re: [CML

Re: [CMLHope] Gleevec

com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Aug 8, 2017 6:49 am Subject: Re: [CMLHope] Gleevec Contact Dr. Druker in Portland, Oregon. Hugs, Susan Rosenthal > On Aug 8, 2017, at 6:57 AM, Ken Roberson <krobers...@mindspring.com> wrote: > > Good morning ev

Re: [CMLHope] Gleevec

Good to hear from you. Most of us are hanging in there. I now take Ponatinib. This is the fourth tki I've been on. Doing great on it. Good luck to a brave warrior. Jeanie My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009

Re: [CMLHope] Gleevec

Welcome Ken back to the club that no one wants to be in but glad that we have it so that we can all help each other out. greenie In a message dated 8/8/2017 6:57:28 A.M. Eastern Daylight Time, krobers...@mindspring.com writes: Good morning everyone, I just discovered that this site is

RE: [CMLHope] Gleevec

Hello and welcome back Ken! Congrats on becoming a grandfather. It's a great experience, eh? I have four, only two of which are still children. Glad you are still in the battle. Whatever the outcome, we win the war! Susan F. Zimmerman On Tuesday, August 8, 2017 Ken Roberson

Re: [CMLHope] Gleevec

Contact Dr. Druker in Portland, Oregon. Hugs, Susan Rosenthal > On Aug 8, 2017, at 6:57 AM, Ken Roberson wrote: > > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had >

[CMLHope] Gleevec

Good morning everyone, I just discovered that this site is still active. I have been on Gleevec for 17 years with good results, but have had additional medical challenges. I was a member of the original participants for the STI571(Gleevec) at Johns Hopkins Hospitals in Baltimore after trying

[CMLHope] Gleevec resistance? Or just a spike?

Hello All, I am new to the group. Hope you can help answer my question. History: I was diagnosed CML in 2001. After 2-3 years On gleevec 400mg, I was in major molecular response and then undetectable (0.000) for around > 10 years or so.. Now suddenly last month in my last Bcd-abl it showed

[CMLHope] Gleevec to give away

Did you find someone to take them, Angie. If not, I will since I take the 100 mgs. tablets. I can email you my address & willing to pay postage. Thank you, Suziq -- -- [CMLHope] A support group of http://cmlhope.com - You received this

[CMLHope] Gleevec to give away

To anyone who would like them, I have 77- 100mg Gleevec pills to give away. I don't use it anymore and they are now 6 mo. old. I don't know if they expire or not, but it would be a sorry shame to let them go to waste.Email me privately (esd...@rogers.com)   and  I will be happy to mail them to

[CMLHope] gleevec and part D medicare

has anyone had experience with part d medicare plans that offer gleevec in the state of Va. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

Thanks Marty for sharing this news. After reading it I google the final expire date of Gleevec is January 4, 2015(in my mind that is in this April lol ). Oops it's such a long time, isn't it? For further information please go to the following website:

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

Hi Ted, It really doesn't matter because of the law suit that was won against Nuvartis. This is for India and I'm sure that more countries will also get this going for them. 18's Marty On Fri, Apr 12, 2013 at 12:18 PM, Ted fanruif...@gmail.com wrote: Thanks Marty for sharing this news.

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

Hi Ted and everyone else that is taking Gleevec. There was a court case in India that sued and won against Novartis for it's patent rights on Gleevec. Please go to this web site and read all about it. http://www.reuters.com/article/2013/04/01/us-india-novartis-patent-idUSBRE93002I20130401 On

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

Dear CML fighters I got that the patent of Gleevec in US has expired,however, would the Novartis LOWER the drug price in other nations? Ted in China On Tue, Mar 12, 2013 at 5:44 PM, Marwan Abdeh marwanab...@gmail.com wrote: Dear all friends and readers My son has dermatofibrosarcoma and

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

Dear all friends and readers My son has dermatofibrosarcoma and badly needs Gleevec. Please circulate to everyone who can send any leftovers to us . We are at war in Syria and badly need help. Marwan Abdeh Father On 11/03/2013, Vivi vkrei...@gmail.com wrote: Unfortunately, the U.S. Food and Drug

[CMLHope] Gleevec patent coming to an end in U.S. soon

Unfortunately, the U.S. Food and Drug Administration is making it extremely difficult for bio-similar generic drugs to be produced and marketed in the U.S. I'm not familiar with the regulations in Canada but it's possible we won't see a generic of Gleevec all that soon in the U.S. -- --

Re: [CMLHope] Gleevec Interactions

Thank you very much for the information. My son has dermatofibrosarcoma and needs gleevec badlly. We are at civil war and unable to reach this medecine. I kindly as each of of the group to help us get some gleevec leftovers from people who do not need the stock thy have any more. Pls circulate and

[CMLHope] Gleevec Interactions

I did some research and here is what I found out about what to avoid while taking Gleevec. Please remember that I have never been on any TKI's because I had a bone marrow transplant many years ago. I just do a lot of research. Hopefully this will be able to help you, and others as well. Gleevec

Re: [CMLHope] Gleevec side effects

, Jul 25, 2011 11:48 am Subject: Re: [CMLHope] Gleevec side effects Hi Marcie, let me know how surgery goes because I have the same problem. Was thinking of having the same as my lids are drooping to. greenie. In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time

Re: [CMLHope] Gleevec side effects

Hi Victoria...Yes, I've lost hairespecially in the front... I've also lost eyebrows and eyelashes. Loosing the eyelashes has caused problems with my eyes as I feel like there is sand in my eyes most of the time and am using artificial tears 5 to 6 times a day now. I don't think that

Re: [CMLHope] Gleevec side effects

Reiter vkrei...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Mon, Jul 25, 2011 8:39 am Subject: [CMLHope] Gleevec side effects Along with all the other bothersome, uncomfortable and ugly side effects, has anyone else lost hair from the eyebrows? My hair is thinning up front, with small

Re: [CMLHope] Gleevec side effects

Subject: [CMLHope] Gleevec side effects Along with all the other bothersome, uncomfortable and ugly side effects, has anyone else lost hair from the eyebrows? My hair is thinning up front, with small hairs tryng to grow in but not getting much longer than two and a half inches. This is bad

Re: [CMLHope] Gleevec side effects

...@gmail.com To: CMLHope CMLHope@googlegroups.com Sent: Mon, Jul 25, 2011 8:39 am Subject: [CMLHope] Gleevec side effects Along with all the other bothersome, uncomfortable and ugly side effects, has anyone else lost hair from the eyebrows? My hair is thinning up front, with small hairs tryng to grow

Re: [CMLHope] Gleevec side effects

Subject: Re: [CMLHope] Gleevec side effects Hi Marcie, let me know how surgery goes because I have the same problem. Was thinking of having the same as my lids are drooping to. greenie. In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time, margoo...@aol.com writes: Hi

Re: [CMLHope] Gleevec side effects

: [CMLHope] Gleevec side effects Hi Marcie, let me know how surgery goes because I have the same problem. Was thinking of having the same as my lids are drooping to. greenie. In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time, _margood18@aol.com_ (mailto:margoo...@aol.com

Re: [CMLHope] Gleevec side effects

Sent: Mon, Jul 25, 2011 11:48 am Subject: Re: [CMLHope] Gleevec side effects Hi Marcie, let me know how surgery goes because I have the same problem. Was thinking of having the same as my lids are drooping to. greenie. In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time

Re: [CMLHope] Gleevec side effects only 3 or 4 or 5

.  even a couple of my toes had to be drained  Oh well I guess thats what it tales to live.  JUDY    From: LearnToBallroomDanceOnline.com ballroom...@gmail.com To: cmlhope@googlegroups.com Sent: Monday, July 25, 2011 11:38 AM Subject: Re: [CMLHope] Gleevec side effects HI Marcie, I had the eye

Re: [CMLHope] Gleevec Vacation

Hello to all, My name is Pedro and I'm portuguese. My sister has,43 years old and in 2007 she was diagnosed a myeloid leukemia (CML) and Philadelphia positive acute lymphoblastic leukemia. After several quimio and radioterapy treatments she was submitted to a transplant in 2008. Everything

[CMLHope] Gleevec Vacation

Dear CML Warriors: I am very intrested to know how many of you have taken a Gleevec Vacation.  I have just come off a 3 month hiatus, and I felt wonderful.  No cramps, muscle spasms, eye bleeds, diarrhea, more energy and much less tired.  I am not due for blood work for a few more months. 

Re: [CMLHope] Gleevec Vacation

Thanks for the prayers..keep them coming...great news for you!!! Beth -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email

[CMLHope] Gleevec 106 trial - ending?

Hello group, Has anyone heard that the gleevec 106 trial is ending? My CT nurse said she just found out it was. I've been in it since 2000. Anyone else? Anyone know who to contact to find out? Cyn Sent from my iPhone -- [CMLHope] A support group of

Re: [CMLHope] Gleevec 106 trial - ending?

This is Jim in Iowa. I,ve been on gleevec since 2000 , but thought trail ended in 2005. I,m still on studies. In a message dated 4/28/2011 7:59:54 A.M. Central Daylight Time, thea7...@aol.com writes: Hello group, Has anyone heard that the gleevec 106 trial is ending? My CT nurse said

Re: [CMLHope] Gleevec 106 trial - ending?

...@aol.com wrote: From: dstuede...@aol.com dstuede...@aol.com Subject: Re: [CMLHope] Gleevec 106 trial - ending? To: cmlhope@googlegroups.com Date: Thursday, April 28, 2011, 3:54 PM This is Jim in Iowa. I,ve been on gleevec since 2000 , but thought trail ended in 2005. I,m still on studies

Re: [CMLHope] Gleevec 106 trial - ending?

dstuede...@aol.com Subject: Re: [CMLHope] Gleevec 106 trial - ending? To: cmlhope@googlegroups.com Date: Thursday, April 28, 2011, 3:54 PM This is Jim in Iowa. I,ve been on gleevec since 2000 , but thought trail ended in 2005. I,m still on studies.   In a message dated 4/28/2011 7:59:54 A.M. Central

[CMLHope] Gleevec trial 106

Anyone have info on this trial closing? I was told it was, but nobody else has been told it is clising, so I hope it is a mistake. Cyn Sent from my iPhone -- [CMLHope] A support group of http://cmlhope.com - You received this

Re: [CMLHope] Gleevec trial 106

I received this news today from the Juravinski Centre, Hamilton, Ont. Angie What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Fri, 4/29/11, Cindy thea7...@aol.com wrote: From: Cindy thea7...@aol.com Subject: [CMLHope] Gleevec trial

[CMLHope] Gleevec vs Sprycel

I have been off gleevec 400 mg per day for about 2 yrs now, but Arkansas BC/BS was paying about $2700.00 per month at that time, now that I'm on Sprycel, BC/BS is paying about $4,200.00 per month for 70 mg per day. I was lucky that I had drug coverage on BC/BS. After doing a cost analysis on

[CMLHope] Gleevec and blood pressure

Has anyone found that taking Gleevec has led to a rise in blood pressure? -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send

Re: [CMLHope] Gleevec - diarrhea

Hi I took Psyllium that I bought at the health food store. It cured my diarrhea in a few days. Here is what it is: Psyllium seed husks also known as ispaghula, isabgol, or simply as psyllium, are portions of the seeds of the plant Plantago ovata, (genus Plantago), a native of India and

[CMLHope] Gleevec - diarrhea

Hi Warriors, I've been meaning to post a couple of things. 1st, you might recall the Marie Callendar's recalled a batch of their Cheesy Chicken and Rice because of possible salmonella. Well I wish they would have done it about 3 weeks sooner! Anyway dealing with that I came across something that

Re: [CMLHope] Gleevec - diarrhea

Thanks for the hint. This could be really helpful! Gay Bratton On Jul 29, 2010, at 10:23 AM, patrickemailguard-g...@yahoo.com wrote: Hi Warriors, I've been meaning to post a couple of things. 1st, you might recall the Marie Callendar's recalled a batch of their Cheesy Chicken and Rice

[CMLHope] Gleevec bone/joint pain, muscle spasms and fever

My 16 year old daughter has CML, and is now doing well after 2 years on 400 mg Gleevec, but the first couple months of treatment she experienced severe bone/joint pain, muscle spasms and fever up to 103 degrees. We found that the most effective approach was a combination of things: Daily oral

Re: [CMLHope] Gleevec initial response for pediatric CML

Gleevec is not wholly successful there are several new and very effective drugs to try. Take care, Lisa -Original Message- From: Thomas Chang thomaschan...@gmail.com To: CMLHope cmlhope@googlegroups.com Sent: Sun, Mar 14, 2010 2:48 pm Subject: [CMLHope] Gleevec initial response

Re: [CMLHope] Gleevec side effect on Kids

more growing your son is expected to do by looking at x-rays of his bones. Hope this helps. Take care, Lisa -Original Message- From: anil nagpal anil6...@gmail.com To: CMLHope@googlegroups.com Sent: Tue, Feb 23, 2010 12:26 pm Subject: [CMLHope] Gleevec side effect on Kids My

[CMLHope] Gleevec

This is Jim S. I started Gleevec Jan 2 2000 trial @ MDA in Houston.Therefore close to 10 years.In remission about 9.5 years., -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the

Re: [CMLHope] Gleevec

Started Gleevac September 2008.  Due to Eye bleeds the Gleeva was stopped December 2009 and started on Spyrcel. --- On Wed, 12/9/09, dstuede...@aol.com dstuede...@aol.com wrote: From: dstuede...@aol.com dstuede...@aol.com Subject: [CMLHope] Gleevec To: cmlhope@googlegroups.com Date: Wednesday

[CMLHope] Gleevec side effects when first start medication

Hello All, I've just started taking 400 mg Gleevec daily a few days ago. Curious to find out how it takes for side effects to kick in when you first start the medication. I'm 49 yrs in Ontario Canada, feeling well and hope it stays that way. It has been very helpful reading the posts. Hope you

Re: [CMLHope] Gleevec side effects when first start medication

Hi, Jeff, Good evening from Brazil. In fact it depends on the person. My son had side effects for about 1 year but today he is doing great. Good healthy and natural diet and exercises will help a lot. Ricardo. On Wed, Nov 4, 2009 at 10:27 PM, Jeff J jj.john...@sympatico.ca wrote: Hello All,

[CMLHope] Gleevec

Has anyone who has been on glevec after 6 months have their PCR result as coming back high? Dr. changed my son to Sprycel and he says if the RX doesn't work then he will need a BMT in december.I don't want to jump to quick into BMT is there are other options..He does to Dana Farber in

[CMLHope] Gleevec prickly sensation and rash

Group..Does anyone out there have any experience with a rash while on Gleevec? I am also getting a fairly constant prickly sensation over most of my torso and limbs. It feels like a 1000 misquotes biting. Several weeks ago, I had a bad rash and took a steroid and that cleared up the

[CMLHope] Gleevec Pain or Arthritis

Hi: I have seen so many posts on different websites regarding joint and muscle pains relating to Gleevec. I am suffering terribly with pain, and my doctors do not want me using Ibuprofen or anything. I do not use Ibuprofen due to kidney problem, and no Tylenol with Gleevec. I have been

[CMLHope] gleevec dosages

Hi Everyone, I have not posted for a very long time, but have been reading pretty regularly. I keep wondering if this is the group that had Anjana and others I used to deal with such as Zavie. I was diagnosed in 2002. I began immediately on 400 mg of gleevec. I have taken it regularly for all

[CMLHope] gleevec, its a helluva drug

some of you many know the reference here, that is rick james. no matter. this gleevec seems to be a potent but more important a whimsical drug. i've been on it for about six weeks and am feeling some of the side effects that you all here are reporting. at first i thought i was lucky in that i

[CMLHope] Gleevec

Hello, Thanks Greenie and others who answered my Gleevec question. My husband was diagnosed in Oct. l997, went on Interferion until he started Gleevec in Jan. 2000 at MD Anderson in Houston. He still is on the study with his original doctor (Moshe Talpaz) who is now in Ann Arbor, MI.

[CMLHope] Gleevec

Greenie, I will definitely let you know how Jim's blood work comes out. I agree with the free!!!, and also how bad the interferon was. Jim was in flu mod as long as he was on it. Awful. Later, Debby **New year...new news. Be the first to know what is making headlines.

[CMLHope] Gleevec

Does anyone take Gleevec in tablet form rather than capsule? My husband was just switched to the tablet, and has suddenly had night sweats big time. Is there a difference? **New year...new news. Be the first to know what is making headlines.

[CMLHope] Gleevec Rash

I have a purely treat the symptom suggestion. Since these rashes are (I think) essentially allergic reactions why not try Benadryl Gel (lotion) on them? I have a persistent rash unrelated to Gleevec that they can't cure but I control it by rotating treatments including Benadryl Gel to reduce

[CMLHope] Gleevec or Dasatinib

Hello! I don't post much, but I really need some help here. To make a long story short I was disagnosed 3 years ago in August 2005 with cml at Mayo Clinic at first I was diagnosed by a local oncologist with myleofibrosis at this time I was a month past my 37th birthday. That doc sent me on to

[CMLHope] Gleevec and Interferon

Hi Livia: Everyone will be praying that this is a breakthrough for CML. Please keep in touch with all of us as you progress along with this new treatment plan. God Bless You. Suzzie --~--~-~--~~~---~--~~

[CMLHope] Gleevec Side Effects

Hi Everyone: I have not been on for a few days, but I was able to relate to some of your problems. Anxiety Attacks, nausea etc. I have been on 400mg. since 2000, and to this day if I do not eat a good breakfast I experience nausea from the Gleevec. I am not a breakfast eater real

[CMLHope] Gleevec Drug Interactions

_Gleevec Drug Interactions - Drugs.com_ (http://www.drugs.com/drug-interactions/gleevec_d04758.html) This link provides information for Gleevec Drug Interaction. Thought it would be helpful. Blessings to all, Lee **Create a Home Theater Like the Pros. Watch the video on

[CMLHope] Gleevec/Sprycel Side Effects

Has anyone had any dental problems associated with either Gleevec or Sprycel? I was on Gleevec for 1 1/2 years then stopped responding to the drug. I have been on Spyrcel for 3 weeks now, dealing with lots of different side effects, but am curious about dental problems. I have had two of my

[CMLHope] Gleevec Coumadin

Dear Kathy, I was on this combination for about 5 years (2001-2006) due to atrial fibs and had no ill effects. I had INR's about every week to start with, then as my INR level leveled out I had them about once per month. I didn't like taking coumadin because of all the blood sticks and

[CMLHope] Gleevec and Macular Edema

Hello group, I havent posted much in the past but pray for all of us that are burdened with CML. A bit of my history to bring the readers up to speed on where I am at and to see if there is anyone that has some information that may be helpful in my quest for answers to why my eyes have the

[CMLHope] Gleevec Rash

Could someone tell me what the rash caused by Gleevec looks like? And does it itch really bad? I've got a break-out for over a week. The itch is unbearable. Appreciate anyone's input...thanks Love,Peace,Hope Prayers,Pat --~--~-~--~~~---~--~~ [CMLHope] A support

[CMLHope] Gleevec and Liver Damage

Hi Phyllis, Thanks for the email and the information. You are the second person to contact me to say that you indeed had an elevated liver enzyme. Did you get the approval of you oncologist before taking the milk thistle? How much of it do you take? The other person told me they were

[CMLHope] Gleevec and Liver Damage

Hello, I am new to this board and I've been reading some of the posts with great interest. I don't even know if I am writing to the correct email address. If I am not in the right place I apologize for the error. My husband was diagnosed with Philadelphia Chromosome positive CML in December

[CMLHope] Gleevec and Liver Damage

Hi Richard, Thanks for the reply. So far I've gotten 4 replies but it doesn't seem that anyone has had a problem with their liver function. It is a rare side effect. I'm only hoping that my husband is not among those rare individuals. I appreciate your quick reply. Best regards,

[CMLHope] Gleevec and Medicare RX D

I just reviewed my husband's Wellmark Blue Cross and Blue Shield of Iowa's Medicare Part D again. He has Option 2, and Gleevec is covered with him paying 33%. It is considered a Specialty Drug. The donut hole still applies, and after $3850 out of pocket he will pay 5% coinsurance. I

[CMLHope] gleevec/interactions

Hi all, On the subject of drug-drug interactions with Gleevec... I have been in the zero club for five years now though it took me two full years to get there - one on interferon and another in the Gleevec trials. My policy has been to take Gleevec with a good sized breakfast, and no

[CMLHope] Gleevec for teenagers

does anyone know the success rate of gleevec for teenagers with cml Nat --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google

[CMLHope] gleevec

My grandmother has to take Gleevec for the rest of her life and right now she has received her first month of medicine free through Novartis. We are hoping she will be approved to get it free for a year. We are trying to decide how she will be able to afford it after that. Even if she

[CMLHope] Gleevec and Vit D

Dear Gleevec Friends, Sorry about the previous empty post...I hit send for some reason before I typed my message! I recently had a Dexa-Scan after having one 2 years previously. Two years ago my scan results put me on the edge of osteopenia. My primary care physician put me on Actonel and I

[CMLHope] Gleevec doses

Dan, My husband Ken was first on Interferon and went into remission, after his body couldn't take interferon any more he was switched to Gleevec after a three months being off everythingquickly going out of remission. He was put on 400 Gleevec and gain remission soon after he still is on

[CMLHope] Gleevec and Cardiac Events

I have been on Gleevec in study 106 since it started in 2001. I reached CCR in that year and have remained there ever since. My 400 mg daily were reduced to 300 mg in 2002, and all my results have been fine since then. I had 2 mild heart attacks in May 2003. At no time did my doctors ever

[CMLHope] GLEEVEC~~CHF~~HOLIDAYS

Hey Group: (FYI~~my 2 cents). . .CHF, Gleevec dosage, and 'Holidays. . . With my 20 chronic illnesses; that's exactly why I take 'gold holidays'. After diagnosis, I was originally put on 400 m.g., and due to my 800,000 per Million. . . it was upped to 600 m.g., which I couldn't tolerate at all. .

[CMLHope] gleevec and heart problems

Gleevec Linked to Heart Failure in Some CML Patients - CME Teaching Brief® - M --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to

[CMLHope] Gleevec 100 mg pills

Hi all, for what it's worth, when the newer version of Gleevec came out in the 400 mg doses I used it and was sick every time, didn't matter what I tried. I told my onc about it and told him that with the 100 mg pills I was at least able to eat my breakfast slowly, taking a pill about every five

[CMLHope] Gleevec as Possible Cure

Rousselot P, Huguet F, Rea D, Legros L, Cayuela JM, Maarek O, Blanchet O, Marit G, Gluckman E, Reiffers J, Gardembas M, Mahon FX. Federation d'hematologie et Centre d'Investigation Clinique, Hopital Saint-Louis,

[CMLHope] Gleevec Side Effects

My eyebrows also thinned considerably, my eyelashes disappeared, but after I had been on Gleevec for a year, my hair turned curly but is still gray! The eyebrows are coming back but darker and my eyelashes have returned but they are short and straight and with the normally puffy eyelids, it

[CMLHope] Gleevec is out of your system in four days?????????????????

To the person who said that Gleevec is out of your system in 4 days: I can only tell you out of experience that this statement is so-o-o-o-o-o totally untrue! 4 days? NOT! I was taken off Gleevec for four days JUST to see if the symptoms from the initital dose would reduce in problematic

[CMLHope] Gleevec and the Heart: Some Heartening News!

Dear Listmembers: I ran the Gleevec/heart failure issue past several researchers at Memorial Sloan Kettering Cancer Center (www.mskcc.org) during my consult Wednesday and the comments were quite reassuring: 1. The statistical sample of 10 patients was far too small to draw any conclusions

[CMLHope] gleevec and heart problem

hello after reading the news about the 10 patients that developed heart problems on gleevec i asked one of the worldstop cml experts his oppinion and here is his answer: The scientificstory is convincing and definitely justifiescloser monitoringof cardiac function in patients on imatinib.

[CMLHope] Gleevec, the pill that transformed cancer treatments by offering an easy way to target a difficult type of leukemia, may cause serious heart damage, researchers cautioned on Sunday.

This is a must read.RobGleevec, the pill that transformed cancer treatments by offering an easy way to target a difficult type of leukemia, may cause serious heart damage, researchers cautioned on Sunday. Gleevec May Cause Serious Heart Damage --~--~-~--~~~---~--~~

[CMLHope] Gleevec May Cause Serious Heart Damage

I left off the subject line which should haveread Gleevec May Cause Serious Heart DamageOn 7/23/06, Rob [EMAIL PROTECTED] wrote:This is a must read.RobGleevec, the pill that transformed cancer treatments by offering an easy way to target a difficult type of leukemia, may cause serious heart

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