Re: [CMLHope] Gleevec

2018-01-25 Thread Jamie Tufariello
On Tuesday, August 8, 2017, Ken Roberson wrote: > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had > additional medical challenges. > I was a member of the original participants for the STI571(Gleevec)

Re: [CMLHope] Gleevec

2017-08-10 Thread Richard H
Thanks for the update, Just hope you keep making progress and that rehab is finding ways to keep US safe from OUR own need of dependence on taking care of ourselves. 18's. Richard H. On Thursday, August 10, 2017 at 10:36:53 AM UTC-5, wa2yyx wrote: > > Hi Beth and everyone > > First glad no di

Re: [CMLHope] Gleevec

2017-08-10 Thread bkbarney via CMLHope
. Prayers and hugs, !8's and love, Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Thu, Aug 10, 2017 6:10 pm Subject: Re: [CMLHope] Gleevec You see something Susan,It's this site that makes a real difference because we seem to care for each other. Yes i f

Re: [CMLHope] Gleevec

2017-08-10 Thread Marty Gartenberg
know many do not write, but feel less alone just >> reading..I just became one of those people for a time.. I will try to be >> better about speaking up when I am struggling. >> >> Love to all, >> >> 18's Beth >> >> >> >> -Original M

Re: [CMLHope] Gleevec

2017-08-10 Thread Marty Gartenberg
t feel less alone just >> reading..I just became one of those people for a time.. I will try to be >> better about speaking up when I am struggling. >> >> Love to all, >> >> 18's Beth >> >> >> >> -Original Message- >> From: &#

Re: [CMLHope] Gleevec

2017-08-10 Thread 'Susan Zimmerman' via CMLHope
Susan Zimmerman' via CMLHope To: rbhuffman1 ; cmlhope Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying

Re: [CMLHope] Gleevec

2017-08-10 Thread Myvety2k via CMLHope
about speaking up when I am struggling. Love to all, 18's Beth -Original Message- From: 'Susan Zimmerman' via CMLHope To: rbhuffman1 ; cmlhope Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've

Re: [CMLHope] Gleevec

2017-08-10 Thread Marty Gartenberg
--Original Message- > From: 'Susan Zimmerman' via CMLHope > To: rbhuffman1 ; cmlhope > Sent: Wed, Aug 9, 2017 6:38 pm > Subject: Re: [CMLHope] Gleevec > > Beth, my heart goes out to you from all you've gone through since last > September. You have always been a g

Re: [CMLHope] Gleevec

2017-08-09 Thread bkbarney via CMLHope
27; via CMLHope To: rbhuffman1 ; cmlhope Sent: Wed, Aug 9, 2017 6:38 pm Subject: Re: [CMLHope] Gleevec Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you t

Re: [CMLHope] Gleevec

2017-08-09 Thread 'Susan Zimmerman' via CMLHope
Beth, my heart goes out to you from all you've gone through since last September. You have always been a great encourager to all of us. I am sure I speak for all in saying we missed you tremendously and hope you will have no more setbacks. Obviously those kidneys are so important to function pro

Re: [CMLHope] Gleevec

2017-08-09 Thread bkbarney via CMLHope
Thanks Richard. You can preach whenever you want. :) Beth. -Original Message- From: Richard H To: CMLHope Sent: Tue, Aug 8, 2017 10:30 pm Subject: Re: [CMLHope] Gleevec Thanks for the update. I hope all keeps going well. No preaching today, you are under control and I hope

Re: [CMLHope] Gleevec

2017-08-09 Thread bkbarney via CMLHope
...that's it. Take good care.. love you all, 18's Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Wed, Aug 9, 2017 10:01 am Subject: Re: [CMLHope] Gleevec Hi Beth I have really missed your uplifts but knew you were going through some trial

Re: [CMLHope] Gleevec

2017-08-09 Thread 'Jeanie' via CMLHope
Hi Beth I have really missed your uplifts but knew you were going through some trials and tribulations. My heartbeat is down to 40 and sometimes lower but not too concerned yet. I had a three day stay in hospital to see if they could find out the source of the pain in my side. No luck. No my o

Re: [CMLHope] Gleevec

2017-08-08 Thread Richard H
Thanks for the update. I hope all keeps going well. No preaching today, you are under control and I hope you continue to get better. Richard H. On Tuesday, August 8, 2017 at 12:33:13 PM UTC-5, Beth wrote: > > Dear Susan, Jeanie, Marty, Richard, Greenie et all, > > So sorry I have not been co

Re: [CMLHope] Gleevec

2017-08-08 Thread bkbarney via CMLHope
a big hug. and to the rest of you..love, hugs and 18'sit feels good to write something... Beth -Original Message- From: 'Susan Rosenthal' via CMLHope To: cmlhope Sent: Tue, Aug 8, 2017 6:49 am Subject: Re: [CMLHope] Gleevec Contact Dr. Druker in Portl

Re: [CMLHope] Gleevec

2017-08-08 Thread bkbarney via CMLHope
cmlhope Sent: Tue, Aug 8, 2017 6:49 am Subject: Re: [CMLHope] Gleevec Contact Dr. Druker in Portland, Oregon. Hugs, Susan Rosenthal > On Aug 8, 2017, at 6:57 AM, Ken Roberson wrote: > > Good morning everyone, > I just discovered that this site is still active. > I have been o

Re: [CMLHope] Gleevec

2017-08-08 Thread 'Jeanie' via CMLHope
Good to hear from you. Most of us are hanging in there. I now take Ponatinib. This is the fourth tki I've been on. Doing great on it. Good luck to a brave warrior. Jeanie My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started

Re: [CMLHope] Gleevec

2017-08-08 Thread Myvety2k via CMLHope
Welcome Ken back to the club that no one wants to be in but glad that we have it so that we can all help each other out. greenie In a message dated 8/8/2017 6:57:28 A.M. Eastern Daylight Time, krobers...@mindspring.com writes: Good morning everyone, I just discovered that this site is s

RE: [CMLHope] Gleevec

2017-08-08 Thread 'Susan Zimmerman' via CMLHope
Hello and welcome back Ken! Congrats on becoming a grandfather. It's a great experience, eh? I have four, only two of which are still children. Glad you are still in the battle. Whatever the outcome, we win the war! Susan F. Zimmerman On Tuesday, August 8, 2017 Ken Roberson wrote: Good morn

Re: [CMLHope] Gleevec

2017-08-08 Thread 'Susan Rosenthal' via CMLHope
Contact Dr. Druker in Portland, Oregon. Hugs, Susan Rosenthal > On Aug 8, 2017, at 6:57 AM, Ken Roberson wrote: > > Good morning everyone, > I just discovered that this site is still active. > I have been on Gleevec for 17 years with good results, but have had > additional medical challenges.

[CMLHope] Gleevec

2017-08-08 Thread Ken Roberson
Good morning everyone, I just discovered that this site is still active. I have been on Gleevec for 17 years with good results, but have had additional medical challenges. I was a member of the original participants for the STI571(Gleevec) at Johns Hopkins Hospitals in Baltimore after trying ever

[CMLHope] Gleevec resistance? Or just a spike?

2016-05-18 Thread Raj
Hello All, I am new to the group. Hope you can help answer my question. History: I was diagnosed CML in 2001. After 2-3 years On gleevec 400mg, I was in major molecular response and then undetectable (0.000) for around > 10 years or so.. Now suddenly last month in my last Bcd-abl it showed that

[CMLHope] Gleevec to give away

2016-04-04 Thread Suzieq
Did you find someone to take them, Angie. If not, I will since I take the 100 mgs. tablets. I can email you my address & willing to pay postage. Thank you, Suziq -- -- [CMLHope] A support group of http://cmlhope.com - You received this messag

[CMLHope] Gleevec to give away

2016-03-12 Thread ANGELYN ESDERS
To anyone who would like them, I have 77- 100mg Gleevec pills to give away. I don't use it anymore and they are now 6 mo. old. I don't know if they expire or not, but it would be a sorry shame to let them go to waste.Email me privately (esd...@rogers.com)   and  I will be happy to mail them to

[CMLHope] gleevec studies

2014-11-28 Thread ICANDOALLTTC via CMLHope
There are 2 studies that are ongoing now. Patients who have reached molecular remission 2 or more years ago can participate. One study is being done at Hackensack Hospital in New Jersey. I believe that the other one is taking place in California. The patients that are participating must

[CMLHope] gleevec and part D medicare

2013-09-26 Thread cynthia . loretti
has anyone had experience with part d medicare plans that offer gleevec in the state of Va. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To pos

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-04-12 Thread Marty Gartenberg
Hi Ted, It really doesn't matter because of the law suit that was won against Nuvartis. This is for India and I'm sure that more countries will also get this going for them. 18's Marty On Fri, Apr 12, 2013 at 12:18 PM, Ted wrote: > Thanks Marty for sharing this news. > > After reading it I

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-04-12 Thread Ted
Thanks Marty for sharing this news. After reading it I google the final expire date of Gleevec is January 4, 2015(in my mind that is in this April lol ). Oops it's such a long time, isn't it? For further information please go to the following website: http://www.uspto.gov/web/offices/pac/dapp/opl

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-04-11 Thread Marty Gartenberg
Hi Ted and everyone else that is taking Gleevec. There was a court case in India that sued and won against Novartis for it's patent rights on Gleevec. Please go to this web site and read all about it. http://www.reuters.com/article/2013/04/01/us-india-novartis-patent-idUSBRE93002I20130401 On We

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-04-10 Thread Ted
Dear CML fighters I got that the patent of Gleevec in US has expired,however, would the Novartis LOWER the drug price in other nations? Ted in China On Tue, Mar 12, 2013 at 5:44 PM, Marwan Abdeh wrote: > Dear all friends and readers > My son has dermatofibrosarcoma and badly needs Gleevec.

Re: [CMLHope] Gleevec patent coming to an end in U.S. soon

2013-03-12 Thread Marwan Abdeh
Dear all friends and readers My son has dermatofibrosarcoma and badly needs Gleevec. Please circulate to everyone who can send any leftovers to us . We are at war in Syria and badly need help. Marwan Abdeh Father On 11/03/2013, Vivi wrote: > Unfortunately, the U.S. Food and Drug Administration is

[CMLHope] Gleevec patent coming to an end in U.S. soon

2013-03-11 Thread Vivi
Unfortunately, the U.S. Food and Drug Administration is making it extremely difficult for bio-similar generic drugs to be produced and marketed in the U.S. I'm not familiar with the regulations in Canada but it's possible we won't see a generic of Gleevec all that soon in the U.S. -- -- [CML

Re: [CMLHope] Gleevec Interactions

2013-02-04 Thread Marwan Abdeh
Thank you very much for the information. My son has dermatofibrosarcoma and needs gleevec badlly. We are at civil war and unable to reach this medecine. I kindly as each of of the group to help us get some gleevec leftovers from people who do not need the stock thy have any more. Pls circulate and

[CMLHope] Gleevec Interactions

2013-02-02 Thread Marty Gartenberg
I did some research and here is what I found out about what to avoid while taking Gleevec. Please remember that I have never been on any TKI's because I had a bone marrow transplant many years ago. I just do a lot of research. Hopefully this will be able to help you, and others as well. Gleevec I

Re: [CMLHope] Gleevec side effects

2011-07-26 Thread Myvety2k
googlegroups.com) > Sent: Mon, Jul 25, 2011 11:48 am Subject: Re: [CMLHope] Gleevec side effects Hi Marcie, let me know how surgery goes because I have the same problem. Was thinking of having the same as my lids are drooping to. greenie. In a message dated 7/25/2011 8:29:31

Re: [CMLHope] Gleevec side effects only 3 or 4 or 5

2011-07-25 Thread judy
.  even a couple of my toes had to be drained  Oh well I guess thats what it tales to live.  JUDY    From: LearnToBallroomDanceOnline.com To: cmlhope@googlegroups.com Sent: Monday, July 25, 2011 11:38 AM Subject: Re: [CMLHope] Gleevec side effects HI Marcie, I had the eye surgery before I had

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread Marcie
1:48 am Subject: Re: [CMLHope] Gleevec side effects Hi Marcie, let me know how surgery goes because I have the same problem. Was thinking of having the same as my lids are drooping to. greenie. In a message dated 7/25/2011 8:29:31 A.M. Pacific Daylight Time, margoo...@aol.com write

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread Myvety2k
Hi Greenie: Will do. Everyone says it will make a huge difference, although it won't help with the undereye puffiness that I occasionally get from Gleevec. -Original Message- From: Myvety2k To: cmlhope Sent: Mon, Jul 25, 2011 11:48 am Subject: Re: [CMLHope] Gleevec side effe

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread margood18
Hi Greenie: Will do. Everyone says it will make a huge difference, although it won't help with the undereye puffiness that I occasionally get from Gleevec. -Original Message- From: Myvety2k To: cmlhope Sent: Mon, Jul 25, 2011 11:48 am Subject: Re: [CMLHope] Gleevec side ef

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread Myvety2k
Reiter To: CMLHope Sent: Mon, Jul 25, 2011 8:39 am Subject: [CMLHope] Gleevec side effects Along with all the other bothersome, uncomfortable and ugly side effects, has anyone else lost hair from the eyebrows? My hair is thinning up front, with small hairs tryng to grow in but not getting

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread LearnToBallroomDanceOnline.com
when I have this underlying illness. The doctors seem to feel that it will > be perfectly fine. > > I would love to hear some feedback and hope that you, Victoria, find some > comfort in knowing that you are not alone in going through this issue. > > Marcie > > > ---

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread margood18
- From: Victoria Reiter To: CMLHope Sent: Mon, Jul 25, 2011 8:39 am Subject: [CMLHope] Gleevec side effects Along with all the other bothersome, uncomfortable and ugly side effects, has anyone else lost hair from the eyebrows? My hair is thinning up front, with small hairs tryng to gro

Re: [CMLHope] Gleevec side effects

2011-07-25 Thread C.M. Houtz
Hi Victoria...Yes, I've lost hairespecially in the front... I've also lost eyebrows and eyelashes. Loosing the eyelashes has caused problems with my eyes as I feel like there is sand in my eyes most of the time and am using artificial tears 5 to 6 times a day now. I don't think that there

[CMLHope] Gleevec side effects

2011-07-25 Thread Victoria Reiter
Along with all the other bothersome, uncomfortable and ugly side effects, has anyone else lost hair from the eyebrows? My hair is thinning up front, with small hairs tryng to grow in but not getting much longer than two and a half inches. This is bad enough for a woman but I've also lost hair fro

Re: [CMLHope] Gleevec Vacation

2011-07-23 Thread Pedro Gonçalo Pedro
Hello to all, My name is Pedro and I'm portuguese. My sister has,43 years old and in 2007 she was diagnosed a myeloid leukemia (CML) and Philadelphia positive acute lymphoblastic leukemia. After several quimio and radioterapy treatments she was submitted to a transplant in 2008. Everything seemed

Re: [CMLHope] Gleevec Vacation

2011-07-19 Thread Bkbarney
Thanks for the prayers..keep them coming...great news for you!!! Beth -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email

Re: [CMLHope] Gleevec Vacation

2011-07-19 Thread Kelley Kimbrough
Dito! You rock, Sandy. On Tue, Jul 19, 2011 at 11:02 AM, Sandy Byrd wrote: > Dear CML Warriors: > > I am very intrested to know how many of you have taken a "Gleevec > Vacation". I have just come off a 3 month hiatus, and I felt wonderful. No > cramps, muscle spasms, eye bleeds, diarrhea, more

[CMLHope] Gleevec Vacation

2011-07-19 Thread Sandy Byrd
Dear CML Warriors: I am very intrested to know how many of you have taken a "Gleevec Vacation".  I have just come off a 3 month hiatus, and I felt wonderful.  No cramps, muscle spasms, eye bleeds, diarrhea, more energy and much less tired.  I am not due for blood work for a few more months. 

Re: [CMLHope] Gleevec trial 106

2011-04-28 Thread ANGELYN ESDERS
I received this news today from the Juravinski Centre, Hamilton, Ont. Angie What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Fri, 4/29/11, Cindy wrote: From: Cindy Subject: [CMLHope] Gleevec trial 106 To: "CMLHope@googlegroup

[CMLHope] Gleevec trial 106

2011-04-28 Thread Cindy
Anyone have info on this trial closing? I was told it was, but nobody else has been told it is clising, so I hope it is a mistake. Cyn Sent from my iPhone -- [CMLHope] A support group of http://cmlhope.com - You received this mess

Re: [CMLHope] Gleevec 106 trial - ending?

2011-04-28 Thread ANGELYN ESDERS
It has now been confirmed for me that the study ends Jan. 2012, as promised. Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Thu, 4/28/11, dstuede...@aol.com wrote: From: dstuede...@aol.com Subject: Re: [CMLHope

Re: [CMLHope] Gleevec 106 trial - ending?

2011-04-28 Thread ANGELYN ESDERS
: dstuede...@aol.com Subject: Re: [CMLHope] Gleevec 106 trial - ending? To: cmlhope@googlegroups.com Date: Thursday, April 28, 2011, 3:54 PM This is Jim in Iowa. I,ve been on gleevec since 2000 , but thought trail ended in 2005. I,m still on studies.   In a message dated 4/28/2011 7:59:54 A.M

Re: [CMLHope] Gleevec 106 trial - ending?

2011-04-28 Thread DSTUEDEMAN
This is Jim in Iowa. I,ve been on gleevec since 2000 , but thought trail ended in 2005. I,m still on studies. In a message dated 4/28/2011 7:59:54 A.M. Central Daylight Time, thea7...@aol.com writes: Hello group, Has anyone heard that the gleevec 106 trial is ending? My CT nurse said s

[CMLHope] Gleevec 106 trial - ending?

2011-04-28 Thread Cindy
Hello group, Has anyone heard that the gleevec 106 trial is ending? My CT nurse said she just found out it was. I've been in it since 2000. Anyone else? Anyone know who to contact to find out? Cyn Sent from my iPhone -- [CMLHope] A support group of http://cmlhope.com

[CMLHope] Gleevec vs Sprycel

2011-01-04 Thread Daniel Brown
I have been off gleevec 400 mg per day for about 2 yrs now, but Arkansas BC/BS was paying about $2700.00 per month at that time, now that I'm on Sprycel, BC/BS is paying about $4,200.00 per month for 70 mg per day. I was lucky that I had drug coverage on BC/BS. After doing a cost analysis on t

[CMLHope] Gleevec and blood pressure

2010-10-05 Thread Victoria Reiter
Has anyone found that taking Gleevec has led to a rise in blood pressure? -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send e

Re: [CMLHope] Gleevec - diarrhea

2010-08-07 Thread ICANDOALLTTC
Hi I took Psyllium that I bought at the health food store. It cured my diarrhea in a few days. Here is what it is: Psyllium seed husks also known as ispaghula, isabgol, or simply as psyllium, are portions of the seeds of the plant Plantago ovata, (genus Plantago), a native of India and Paki

Re: [CMLHope] Gleevec - diarrhea

2010-07-29 Thread Gay Bratton
Thanks for the hint. This could be really helpful! Gay Bratton On Jul 29, 2010, at 10:23 AM, patrickemailguard-g...@yahoo.com wrote: Hi Warriors, I've been meaning to post a couple of things. 1st, you might recall the Marie Callendar's recalled a batch of their Cheesy Chicken and Rice becaus

[CMLHope] Gleevec - diarrhea

2010-07-29 Thread patrickemailguard-goog
Hi Warriors, I've been meaning to post a couple of things. 1st, you might recall the Marie Callendar's recalled a batch of their Cheesy Chicken and Rice because of possible salmonella. Well I wish they would have done it about 3 weeks sooner! Anyway dealing with that I came across something that

[CMLHope] Gleevec bone/joint pain, muscle spasms and fever

2010-05-27 Thread Mary Jo
My 16 year old daughter has CML, and is now doing well after 2 years on 400 mg Gleevec, but the first couple months of treatment she experienced severe bone/joint pain, muscle spasms and fever up to 103 degrees. We found that the most effective approach was a combination of things: Daily oral calc

Re: [CMLHope] Gleevec initial response for pediatric CML

2010-03-17 Thread lisalongkennedy
Gleevec is not wholly successful there are several new and very effective drugs to try. Take care, Lisa -Original Message- From: Thomas Chang To: CMLHope Sent: Sun, Mar 14, 2010 2:48 pm Subject: [CMLHope] Gleevec initial response for pediatric CML Hi All, y daughter 6 years old was

[CMLHope] Gleevec initial response for pediatric CML

2010-03-16 Thread Thomas Chang
Hi All, My daughter 6 years old was diagnosed with CML in chronic phase 8 days ago. Dr. recommended Gleevec, which started 5 days ago, but there's no change in the white blood count. Any pediatric case in how soon Gleevec started to take effect would be helpful. Thanks, Thomas -- [CMLHope] A su

Re: [CMLHope] Gleevec side effect on Kids

2010-02-26 Thread anil nagpal
s can > often tell you how much more growing your son is expected to do by looking > at x-rays of his bones. > > Hope this helps. > > Take care, > Lisa > > > > > -Original Message- > From: anil nagpal > To: CMLHope@googlegroups.com > Sent:

Re: [CMLHope] Gleevec side effect on Kids

2010-02-23 Thread lisalongkennedy
much more growing your son is expected to do by looking at x-rays of his bones. Hope this helps. Take care, Lisa -Original Message- From: anil nagpal To: CMLHope@googlegroups.com Sent: Tue, Feb 23, 2010 12:26 pm Subject: [CMLHope] Gleevec side effect on Kids My son who is

[CMLHope] Gleevec side effect on Kids

2010-02-23 Thread anil nagpal
My son who is 13yrs old now , is on Gleevec 500mg for the last 5 yrs. We feel that his height ( 136 cm ) as of now is not proportionate to his age .If anyone has experienced similar problem please share the experience with comment to overcome this side effect. Anil -- [CMLHope] A support group o

[CMLHope] gleevec interactions

2010-02-17 Thread patrickemailguard-goog
I post these from time-to-time Patrick drugs.com's gleevec interaction info http://www.drugs.com/drug-interactions/imatinib,gleevec.html# and now it apeears you have to create a free account on medscape to access their interactive drug interaction checker http://www.medscape.com/druginfo/drugin

Re: [CMLHope] Gleevec

2009-12-09 Thread maggy...@bellsouth.net
Started Gleevac September 2008.  Due to Eye bleeds the Gleeva was stopped December 2009 and started on Spyrcel. --- On Wed, 12/9/09, dstuede...@aol.com wrote: From: dstuede...@aol.com Subject: [CMLHope] Gleevec To: cmlhope@googlegroups.com Date: Wednesday, December 9, 2009, 12:54 PM This

Re: [CMLHope] Gleevec

2009-12-09 Thread robert goodrich
. she is 62 in june of 2010. thank god for gleevec ! robert From: "dstuede...@aol.com" To: cmlhope@googlegroups.com Sent: Wed, December 9, 2009 12:54:46 PM Subject: [CMLHope] Gleevec This is Jim S. I started Gleevec Jan 2 2000 trial @ MDA in Houston

[CMLHope] Gleevec

2009-12-09 Thread DSTUEDEMAN
This is Jim S. I started Gleevec Jan 2 2000 trial @ MDA in Houston.Therefore close to 10 years.In remission about 9.5 years., -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Goo

Re: [CMLHope] Gleevec side effects when first start medication

2009-11-10 Thread Ricardo Gadelha
Hi, Jeff, Good evening from Brazil. In fact it depends on the person. My son had side effects for about 1 year but today he is doing great. Good healthy and natural diet and exercises will help a lot. Ricardo. On Wed, Nov 4, 2009 at 10:27 PM, Jeff J wrote: > Hello All, > > I've just started taki

[CMLHope] Gleevec side effects when first start medication

2009-11-10 Thread Jeff J
Hello All, I've just started taking 400 mg Gleevec daily a few days ago. Curious to find out how it takes for side effects to kick in when you first start the medication. I'm 49 yrs in Ontario Canada, feeling well and hope it stays that way. It has been very helpful reading the posts. Hope you

[CMLHope] Gleevec

2009-10-17 Thread Jody
Has anyone who has been on glevec after 6 months have their PCR result as coming back high? Dr. changed my son to Sprycel and he says if the RX doesn't work then he will need a BMT in december.I don't want to jump to quick into BMT is there are other options..He does to Dana Farber in Boston..

[CMLHope] Gleevec prickly sensation and rash

2009-09-19 Thread TEDBDD
Group..Does anyone out there have any experience with a rash while on Gleevec? I am also getting a fairly constant prickly sensation over most of my torso and limbs. It feels like a 1000 misquotes biting. Several weeks ago, I had a bad rash and took a steroid and that cleared up the

[CMLHope] Gleevec Pain or Arthritis

2009-09-01 Thread Suzzie
Hi: I have seen so many posts on different websites regarding joint and muscle pains relating to Gleevec. I am suffering terribly with pain, and my doctors do not want me using Ibuprofen or anything. I do not use Ibuprofen due to kidney problem, and no Tylenol with Gleevec. I have been miserabl

[CMLHope] gleevec dosages

2009-08-05 Thread boopshin
Hi Everyone, I have not posted for a very long time, but have been reading pretty regularly. I keep wondering if this is the group that had Anjana and others I used to deal with such as Zavie. I was diagnosed in 2002. I began immediately on 400 mg of gleevec. I have taken it regularly for all t

[CMLHope] gleevec, its a helluva drug

2009-05-30 Thread ratbone
some of you many know the reference here, that is rick james. no matter. this gleevec seems to be a potent but more important a whimsical drug. i've been on it for about six weeks and am feeling some of the side effects that you all here are reporting. at first i thought i was lucky in that i had

[CMLHope] Gleevec Side Effects

2009-04-15 Thread bikercub
I was diagnosed with CML in May of 1992. I've been on Gleevec going on my 7th year. I was on Interferon for 10 years before that. I still have some effects of the Interferon, but I think most of my side effects are from the Gleevec and was wondering how many others out there have these. I know

[CMLHope] gleevec vacation

2009-03-14 Thread Ana
after 6 years on Gleevec my mother is still PCU, we are happy about that, but she has been having lots of problem with her stomach, 2 days ago she went to hospital because a gastroenteritis, now she is at home but hasn´t taken gleevec for 3 days, she wants to start it again tomorrow. the quest

[CMLHope] Gleevec

2009-01-19 Thread DSTUEDEMAN
Greenie, My husband, Jim, has also been on the capsule for eight years, and was just changed the beginning of January to the tablet. His blood work was the same as always at the end of last week. He feels the same, but seems to have more night sweats. The interferon was nasty to him befor

[CMLHope] Gleevec

2009-01-12 Thread DSTUEDEMAN
Greenie, I will definitely let you know how Jim's blood work comes out. I agree with the "free"!!!, and also how bad the interferon was. Jim was in "flu" mod as long as he was on it. Awful. Later, Debby **New year...new news. Be the first to know what is making headlines. (http

[CMLHope] Gleevec

2009-01-12 Thread DSTUEDEMAN
Hello, Thanks Greenie and others who answered my Gleevec question. My husband was diagnosed in Oct. l997, went on Interferion until he started Gleevec in Jan. 2000 at MD Anderson in Houston. He still is on the study with his original doctor (Moshe Talpaz) who is now in Ann Arbor, MI. Jus

[CMLHope] Gleevec

2009-01-11 Thread DSTUEDEMAN
Does anyone take Gleevec in tablet form rather than capsule? My husband was just switched to the tablet, and has suddenly had night sweats big time. Is there a difference? **New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolco

[CMLHope] Gleevec Rash

2008-11-29 Thread Patrick
I have a purely "treat the symptom" suggestion. Since these rashes are (I think) essentially allergic reactions why not try Benadryl Gel (lotion) on them? I have a persistent rash unrelated to Gleevec that they can't cure but I control it by rotating treatments including Benadryl Gel to reduce t

[CMLHope] Gleevec Holiday?

2008-11-28 Thread Ann Jessup Gulledge
Greetings to all and Happy Thanksgiving for those of us in the US! I've been a member of this group for some time, but I mostly lurk these days.  I do appreciate all of the very knowledgeable people who frequently share their comments with others. My husband David was diagnosed with CML in June

[CMLHope] Gleevec or Dasatinib

2008-09-21 Thread sheila
Hello! I don't post much, but I really need some help here. To make a long story short I was disagnosed 3 years ago in August 2005 with cml at Mayo Clinic at first I was diagnosed by a local oncologist with myleofibrosis at this time I was a month past my 37th birthday. That doc sent me on to M

[CMLHope] Gleevec and Interferon

2008-08-08 Thread Suzzie
Hi Livia: Everyone will be praying that this is a breakthrough for CML. Please keep in touch with all of us as you progress along with this new treatment plan. God Bless You. Suzzie --~--~-~--~~~---~--~~ [CMLH

[CMLHope] Gleevec Side Effects

2008-07-22 Thread Suzzie
Hi Everyone: I have not been on for a few days, but I was able to relate to some of your problems. Anxiety Attacks, nausea etc. I have been on 400mg. since 2000, and to this day if I do not eat a good breakfast I experience nausea from the Gleevec. I am not a breakfast eater real early

[CMLHope] Gleevec Drug Interactions

2008-03-30 Thread LadyRX
_Gleevec Drug Interactions - Drugs.com_ (http://www.drugs.com/drug-interactions/gleevec_d04758.html) This link provides information for Gleevec Drug Interaction. Thought it would be helpful. Blessings to all, Lee **Create a Home Theater Like the Pros. Watch the video on AOL

[CMLHope] GLEEVEC VACATION did your platelets or WBC INCREASE?

2008-03-24 Thread ICANDOALLTTC
Hi Richard and thanks for the update. Did your platelets and or WBC increase on your Gleevec vacation? I hope you are better now. Blessings, Jeanie<3 In a message dated 3/23/2008 1:41:03 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hi Richard, If I read correctly, it looks like you t

[CMLHope] Gleevec drug interactions

2007-12-09 Thread patrick
This is the most comprehensive list I know of: http://www.drugs.com/drug-interactions/gleevec_d04758.html Patrick --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message becau

[CMLHope] Gleevec/Sprycel Side Effects

2007-12-04 Thread LB
Has anyone had any dental problems associated with either Gleevec or Sprycel? I was on Gleevec for 1 1/2 years then stopped responding to the drug. I have been on Spyrcel for 3 weeks now, dealing with lots of different side effects, but am curious about dental problems. I have had two of my bac

[CMLHope] gleevec out of date> is it still good?

2007-11-29 Thread ICANDOALLTTC
Hi all, I have some Gleevec that is out of date. Do you think it is still good? Thanks, Jeanie<3 **Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop000301) --~--~-~--~~---

[CMLHope] Gleevec side effects

2007-11-15 Thread wayne becken
Have been on 400 mg daily(Gleevec) since year 2000. The last couple of months I have problems with persistent diahrrea. Also I was placed on Aggrenox(mild blood thinner).Has anyone on the list had similar diahrrea problems and found something that eases the problem? Wa

[CMLHope] Gleevec and Bell's Palsy

2007-08-31 Thread Avis Ferguson
Many of you remember my posts about my cousin Dona with her myriad of side effects. I thought there couldn'y be any additional ones, but she has a place above one side of her lip that was swollen and yet an indentation. She has been checked for possible stroke and a few other things, but no luck

[CMLHope] Gleevec and Sprycel

2007-05-24 Thread HarryGret
My husband was on Gleevec from Jan 2000 till Oct 2005. The side effects became so bad that he went to Sprycel in Oct 05. He has had no episodes from that time on.. He is having no side effects at present but has a loss of memory. He lost 35 pounds but we think it may be his thyroid-then

[CMLHope] Gleevec & Coumadin

2007-05-01 Thread Bob Stewart
Dear Kathy, I was on this combination for about 5 years (2001-2006) due to atrial fibs and had no ill effects. I had INR's about every week to start with, then as my INR level leveled out I had them about once per month. I didn't like taking coumadin because of all the blood sticks and t

[CMLHope] Gleevec and Coumadin

2007-04-30 Thread cinver
Dear Listmates: I am writing to seek the counsel of any of you who have had bouts of atrial fib or who have had to take blood thinners. I was just released from the hospital after a bout with atrial fib. My heart has returned to sinus rhythm on its own accord, but now the hospitalist has reco

[CMLHope] Gleevec and Macular Edema

2007-04-10 Thread Norm
Hello group, I havent posted much in the past but pray for all of us that are burdened with CML. A bit of my history to bring the readers up to speed on where I am at and to see if there is anyone that has some information that may be helpful in my quest for answers to why my eyes have the problem

[CMLHope] Gleevec Rash

2007-01-13 Thread [EMAIL PROTECTED]
Could someone tell me what the rash caused by Gleevec looks like? And does it itch really bad? I've got a break-out for over a week. The itch is unbearable. Appreciate anyone's input...thanks Love,Peace,Hope & Prayers,Pat --~--~-~--~~~---~--~~ [CMLHope] A support

[CMLHope] Gleevec and Liver Damage

2006-12-31 Thread Judith Katz
Hi Phyllis, Thanks for the email and the information. You are the second person to contact me to say that you indeed had an elevated liver enzyme. Did you get the approval of you oncologist before taking the "milk thistle"? How much of it do you take? The other person told me they were p

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