[QUAD-L] Botox for bladder spasms

I never ever thought I would need to consider Botox for these bladder spasms I am having even though I know many quads have used it. No one I know though. Does anyone on here need to use Botox for bladder spasms? If so, how often? Thank you! ~Lori -- “Petting, scratching, and cuddling a dog

Re: [QUAD-L] Another question for SP users

not perhaps that >> could help? Hope you can get it figured out...Us Quads have enough to worry >> about as it is. Dan H.*** >> >> On Friday, April 30, 2021, 03:06:41 PM CDT, Lori Michaelson < >> lorilivin...@gmail.com> wrote: >> >> >> When

[QUAD-L] Another question for SP users

When I went to my urologist's office for my January 22nd of this year (as expected for my every 6 month appointment with him) and he said that everything looked great and instead of seeing him every 6 months I should not need to see him for another year. I was going to him every 6 months to see

Re: [QUAD-L] Time is running out...

That phone number for Joni and Friends Arizona is: > > (602)275-2568 > > Gail > > > > > > > > Sent from my iPhone > > On Mar 31, 2021, at 7:45 PM, Lori Michaelson > wrote: > >  > Yes Danny, my previous caregiver (who is with me 5 1/2 years until she > c

Re: [QUAD-L] Time is running out...

time help ? You will be in our Prayers ! 2 months > is pretty short notice. Dan H*** > > On Wednesday, March 31, 2021, 05:42:39 PM CDT, Lori Michaelson < > lorilivin...@gmail.com> wrote: > > > I am seeking any help you can provide and prayers because of the following: &

[QUAD-L] Time is running out...

I am seeking any help you can provide and prayers because of the following: My new live-in caregiver (started in June of last year but it was actually August) let me know on Tuesday (a little over a week ago) and out of the blue that she was leaving this June. I am in shock! To add insult to

Re: [QUAD-L] Bed/Mattress Question

I do exactly what Michelle does! On Sat, Mar 20, 2021 at 9:49 AM Michelle Kephart wrote: > I use an alternating pressure pad and sleep on my back without being > turned. I buy mine from Amazon for $50-$80. The pumps die and the pad can > pop, so I always keep another one on hand. They usually

Re: [QUAD-L] Voice Operated TV Google, Alexa, others?

except Internet. Watch everything via Internet. I've been > cable/satellite free since 2010. > > Aaron Mann > > > On Wed, Feb 24, 2021 at 9:44 PM Lori Michaelson > wrote: > >> Please consider yourselves all very fortunate that you have a house and >> are able to enjoy al

Re: [QUAD-L] Voice Operated TV Google, Alexa, others?

Please consider yourselves all very fortunate that you have a house and are able to enjoy all of these things. I lost all of that when I lost my husband. Thankfully, I don't watch more than 30 to 45 minutes of TV so since my live-in caregiver doesn't care for TV either I called Comcast to try to

Re: [QUAD-L] Does everyone have solid tires on their rehab power chairs?

I'm sorry Danny and others but I meant to say that "I think Raymond answered the question quite nicely" ~Lori On Sat, Feb 6, 2021 at 10:52 AM Lori Michaelson wrote: > Hi Danny, > > I haven't but I think Randy answered the question quite nicely and I am > eligi

Re: [QUAD-L] Does everyone have solid tires on their rehab power chairs?

hat would fit? Dan H>** > > On Friday, February 5, 2021, 06:59:16 PM CST, Lori Michaelson < > lorilivin...@gmail.com> wrote: > > > Thank you all who have reached out with their experiences, what you are > using and why. > > My spine, with syringomyelia (and

Re: [QUAD-L] Solid tires

ld recommend you go on to the Permobile website and > write to them to ask them if they really do not sell the pneumatic tires > anymore. I would be very surprised if they don't. > > > > Raymond > > > > *From:* Lori Michaelson > *Sent:* Friday, February 5, 2021 7:59 PM &

Re: [QUAD-L] Does everyone have solid tires on their rehab power chairs?

hole Rohling > wrote: > >> Mie have always been solid. >> >> >> >> Nicki >> >> >> >> *From:* Lori Michaelson [mailto:lorilivin...@gmail.com] >> *Sent:* Friday, February 5, 2021 1:29 PM >> *To:* quad-list >> *Subject:* [QUAD-

[QUAD-L] Does everyone have solid tires on their rehab power chairs?

About a year ago I was told that they no longer provide pneumatic (air) tires for their Permobile power chairs. I have a Permobile M 300 and the day before Thanksgiving I got a flat tire on one of my large tires. Until they could order new tires thankfully it held air (and if it lost any air I

Re: [QUAD-L] Itching Head

Yeah... my caregiver had one of these so I tried it but it just doesn't do it for me. Only fingernails can get the itches to subside for me. :-( On Mon, Jan 25, 2021 at 7:30 PM Paul Jacobson wrote: > This head massager is ideal for quads.less than $2! > > *From:* Paul Jacobson >

Re: [QUAD-L] Vaccines for Covid-19

I agree 100% Aaron! I tried to respond to you privately Nicki but it got returned. But all I said was that I had not yet read The Truth about Vaccines were probably will and that I agreed with you. I'm so tired of it being pushed down our throats (the latest news about Covid when newscasters

Re: [QUAD-L] Sunshine

scher passed a few years ago, Her name was Sabra and she was smart and > Obeyed very well for me.Dan H. *** Missouri - Area. > > On Friday, December 11, 2020, 12:12:27 PM CST, Lori Michaelson < > lorilivin...@gmail.com> wrote: > > > I wrote to Greg privately b

Re: [QUAD-L] Sunshine

I forgot to say something else or a couple of things. Firstly, Shelly, the only time I get too warm is overnight at times even when the air conditioning on and a ceiling fan. It also helps with my chronic pain. My husband got different sizes of these for me: I have 4 of these (they are smaller

Re: [QUAD-L] Sunshine

I wrote to Greg privately but I am definitely the same re: Sunshine! One of the reasons Greg & I are living in Arizona! But I would give that up if I could get my husband back. Actually, I would not be here if it was not for my husband when he got transferred for his job in June of 2001.

Re: [QUAD-L] Am I Cold?

The problem is... is that each and every one of us is very very different so trying to figure it out is sometimes close to being impossible. Fortunately, I haven't been able to figure out a great majority of what is going on with me. The one thing that had me clueless that started in the late

[QUAD-L] Am I the only one...

Am I the only one who is sick and tired of all the secondary complications that come with quadriplegia? Pretty much a no brainer but, after almost 41 years and multiple secondary complications from posttraumatic syringomyelia and the onset of UTIs after a couple of hospitals ending up putting

Re: [QUAD-L] Butt Soee

Not to be negative re: what Aaron said but I had to stay in bed (and only getting up every 2 weeks to go to a wound care Center to have to have it/them and not to play around with to make it worse (and they were getting worse because of neglect by a doctor and made worse by a home health agency

Re: [QUAD-L] 52 anniversary

love to all of you. Thanks in advance for your patience (if you made it through such a lengthy and such an awful e-mail) ~Lori On Wed, Jun 10, 2020 at 3:07 PM Lori Michaelson wrote: > If my husband were still alive or even when I was living with my sister > and brother-in-law... I was well

Re: [QUAD-L] 52 anniversary

If my husband were still alive or even when I was living with my sister and brother-in-law... I was well taken care of. Ever since I have been alone and have had a home health agency nurse hurt me badly requiring surgery (and having numerous doctors and hospitals hurting me badly over the last 4+

Re: [QUAD-L] 52 anniversary

You certainly have been blessed with such a full life and dealing with quad issues Nan!!! It's been 40 1/2 years since my car accident rendering me a C4/5 complete quad. I was doing okay until being diagnosed with Posttraumatic Syringomyelia which has been more disabling than the quadriplegia

Re: [QUAD-L] Chair Prob

ide the box by lawyers. They carry all the liability for their work. >> So, a new cord reduces that liability whereas patching a stripped one does >> not. I do remember when shops did all sorts of optional solutions >> >> Aaron Mann >> >> >> On Wed, May 20

Re: [QUAD-L] Chair Prob

I have had this problem with these companies so many times. It's just not right. You WERE very fortunate to have a friend to rewire the ripped cable. On Wed, May 20, 2020 at 3:53 PM Greg wrote: > Last night I was raising my chairs seat and the joystick cord came loose > and hooked around the

Re: [QUAD-L] Bad Spasms are back... What do u guys take?

I have taken Baclofen 3 to 4 times a day for 40 years, Diazepam (Valium) 3 times a day and one of my pain medication helps a great deal because I tried to get off of it and my body went wild and I couldn't even drive the chair. Part of it has been exacerbated by acquiring posttraumatic

Re: [QUAD-L] Re: Just checking in.

I have not doing well at all. After my live-in caregiver leaves I have nowhere to go when I have checked into EVERYTHING. I have been advertising in all the right places since I found out she was leaving in January. I thought I had someone recently that I know but she never followed up. Very

Re: [QUAD-L] SCI Talk Discord Channel

I'll think about it Aaron. But I am so busy trying to find a replacement live-in caregiver because my current one over the last 4 + years is moving out of country. I have tried diligently and still am. In addition I am trying to train my German Shepherd and found a new and better trainer than the

Re: [QUAD-L] Hello!

Still here but hanging out with my nails. Stressed, exhausted, and more. I have always lived with family of some sort until January of 2016 when I found a wonderful "live-in caregiver" who has been with me since the middle of January 2016. Either of us could move on it any time and in early

Re: [QUAD-L] Advertising for caregivers...

r. Wish you luck > > On Tue, Feb 18, 2020 at 3:18 PM Lori Michaelson > wrote: > >> Okay, only one member on here knows of my situation (Dana) but I really >> need to ask a question. >> >> I have been on my own for the last 40 years as a high-level quad. I have &g

[QUAD-L] Advertising for caregivers...

Okay, only one member on here knows of my situation (Dana) but I really need to ask a question. I have been on my own for the last 40 years as a high-level quad. I have always lived with family except over the last 4 years whereby I found a live-in caregiver that I could afford. Now the live-in

Re: [QUAD-L] I would like to say to everyone a you

I agree with everyone! I hope you all had a very nice Christmas and a happy and healthy New Year!!! Eric was definitely right when stating that the days and years usually fly by when you get older but slow if you are in the hospital and wanting to get home. Greg & I, despite living in Southern

Re: [QUAD-L] cell phone holder

That one is very similar to mine but I only used my cell phone in that manner to watch a movie or a TV series on my bowel regimen nights. I don't watch TV so I keep my cell phone in a little pouch on my chair and operated through a Bluetooth to make phone calls. I use my Desktop PC for everything

Re: [QUAD-L] Wondering

I have always ordered Magic Bullet suppositories them from Express Medical. They are expensive and my only insurance is Medicare so I don't know if Medicaid would cover them or not. They are, and have been, the only ones that work. Enemeez is one that I tried to use back in 2004 or something but

Re: [QUAD-L] What is the best marijuana to help calm spasms at night?

I think something is triggering your spasms at night but trying to figure out *what *is the problem/question. I was having a heck of a time getting transferred into my chair with my electric lift and my one caregiver and what it was was that I used to NOT have my legs and feet and ankles lifted

Re: [QUAD-L] It's me Greg

Great news that you were close to death's door but now on a very good road to recovery!!! We all have been wondering about you as well as Steve Oldaker. Take your time because I very much understand the feeling of being very tired, out of breath and weak even now since I am trying to handle so

Re: [QUAD-L] Pneumatic (air) vs Solid casters on a Rehab Power Chair

so I don't want to be sidelined with a flat > tire. https://www.mobility-usa.com/frontier-v6-wheelchair.html > > On Thu, Aug 22, 2019 at 11:51 PM Lori Michaelson > wrote: > >> Hi everyone, >> >> I hope everyone has been having a good or great summer. Not so goo

[QUAD-L] Pneumatic (air) vs Solid casters on a Rehab Power Chair

Hi everyone, I hope everyone has been having a good or great summer. Not so good for me at all. I have recently been received by 2 big companies want something very important came up with my Permobil M 300 power rehab chair that I got in late 2011. Many of you can probably remember that I

Re: [QUAD-L] anniversary

I guess I am one to sit on the fence about this. As far as celebrating... I never do anything. I might feel differently if my health had not gone downhill so badly, I lost my husband and everything we shared (love and things we had to share and do) and now I feel like I just exist and pay one bill

Re: [QUAD-L] Concerns about fellow quads...

he last few years, Maybe >> the newer folks are on another type quad list?? >> Dan Hearn C-6 Car Accident August 3rd 1997. *** >> On Monday, July 8, 2019, 04:18:07 PM PDT, Lori Michaelson < >> lorilivin...@gmail.com> wrote: >> >> >> Yes, I ha

[QUAD-L] Concerns about fellow quads...

Yes, I have certainly been wondering about Greg (who lives just 90 minutes north of me or so), Steve Oldaker (who I have remained great friends with for years and knew that he had an infection that went septic and had to be in the hospital and then had to be on a ventilator and going into a rehab

[QUAD-L] Re: [QUAD-L] Watch This—You Can Control Xfinity X1 with Just Your Eyes

If I enjoyed watching TV then I might be interested into getting it (however you get it and the process at of getting it) but I don't care for TV. On Mon, Jun 17, 2019 at 10:43 AM Jim Lubin wrote: > https://www.tomsguide.com/us/comcast-xfinity-x1-eye-control,news-30371.html > -- "Petting,

Re: [QUAD-L] how is Greg?

I read most of this from Greg's mom on Facebook. But nothing was said about what he went in there for (which was deadly serious itself) - terrible infection that went right down to the bone from the wound he had that was so very deep. A wound that bad has to be seriously addressed as we all know.

Re: [QUAD-L] smart phone

I use Samsung and Google with a Motorola Bluetooth. It's the best I have been able to find since nothing else works for me. So many places that you call require buttons to be pushed and I am unable to do that so I am SOL when it comes to that. I also use a landline for things like that (having to

Re: [QUAD-L] Baclofen ?

Echoing Eric as far as the dosage for nearly 40 years for spasms but have also been taking diazepam (Valium) 10mg X 3 for that long also. On Fri, May 17, 2019 at 12:07 PM Eric Olson wrote: > I too am taking 20mg X 4 > > On Fri, May 17, 2019 at 1:46 PM Jim Lubin wrote: > >> I've on 20mg x 4/day

Re: [QUAD-L] Infectious Disease physician

specific IV > antibiotics, and the months later everything looks good. > > > > *From:* Lori Michaelson > *Sent:* Sunday, April 21, 2019 2:49 PM > *To:* quad-list > *Subject:* [QUAD-L] Infectious Disease physician > > > > Has anyone had to resort to go into an Infec

Re: [QUAD-L] Infectious Disease physician

>> situation. >> >> Following are links to two columns I wrote for New Mobility magazine >> about the subject. I hope it helps. >> >> Neosporin Gu >> http://www.newmobility.com/2011/04/neosporin-gu/ >> >> Bladder Irrigation Solutions for UTI Reduction >

Re: [QUAD-L] Infectious Disease physician

links to two columns I wrote for New Mobility magazine about > the subject. I hope it helps. > > Neosporin Gu > http://www.newmobility.com/2011/04/neosporin-gu/ > > Bladder Irrigation Solutions for UTI Reduction > http://www.newmobility.com/?s=Neosporin+GU > > Bob Vogel > > &

Re: [QUAD-L] Infectious Disease physician

, 2019 at 1:33 PM Eric Olson wrote: > You can buy it on Amazon but this place is the cheapest I've found > > https://expressvet.pharmacy/product/vetericyn-vf-plus-wound-and-skin-care/ > > I have ordered from them in the past > > On Mon, Apr 22, 2019 at 1:52 PM Lori Michaels

Re: [QUAD-L] Infectious Disease physician

vf-plus-wound-and-skin-care/ > > I have ordered from them in the past > > On Mon, Apr 22, 2019 at 1:52 PM Lori Michaelson > wrote: > >> I'm definitely not going to the hospital or a hospital since that is >> where I got it but I thank you Dana for replying. >>

[QUAD-L] Infectious Disease physician

Has anyone had to resort to go into an Infectious Disease Physician? If so, why? I acquired a nosocomial infection (from a hospital) a little over a couple years ago and it won't go away. It used to be responsive to oral antibiotics (specifically Nitrofurantoin - a.k.a. Macrobid) but it has now

Re: [QUAD-L] DNR. DNI

I never had one and don't plan on having one. I do have a will and guess I will leave it like it is. On Thu, Feb 7, 2019 at 2:28 AM Dana Wray wrote: > > > -- Forwarded message - > From: Dana Wray > Date: Thu, Feb 7, 2019 at 3:27 AM > Subject: Re: [QUAD-L] DNR. DNI > To: Bobbie

[QUAD-L] Acquiring wounds or getting burned, etc.

Roho cushions are one of the best most especially if someone has had wounds on their ischial tuberosities. Which I did... with no thanks to my primary care physician and a nurse who caused it. In any case, I had never had any problems with wounds before 2009 so when I got my Stage III wound ... I

Re: [QUAD-L] Regarding Steve Oldaker

So true! On Fri, Jan 25, 2019 at 3:37 PM Bobbie Humphreys wrote: > Steve is a friend to SO many people including myself for a long time > Bobbie > > On Jan 25, 2019, at 5:25 PM, Lori Michaelson > wrote: > > Thank you Bobbie! I have been trying to speak to him for months

Re: [QUAD-L] Regarding Steve Oldaker

Thank you Bobbie! I have been trying to speak to him for months as well. Called his home twice during two different time periods with no answer and no return phone call after leaving a voice message. Rather, 2 voice messages. I called the place that he supports (Independent Living) and they told

Re: [QUAD-L] What would you say & do?

Well, that is great that the agency is going to report her and give you another nurse. I am also glad that this particular nurse only *said *something stupid, rude and ignorant - you didn't get hurt terribly physically by a nurse like I did - twice. I have written this year on the list numerous

Re: [QUAD-L] Oldest living Quads

Ditto along with what Greg said except I feel like I am dying of pain and 3 bacteria that keep coming that are multi-drug-resistant. Thing is... I was healthy 3 years ago and it took "one insect to damage so much grain" (Elton John's words) when a nurse ruptured my urethra forcing me to have

Re: [QUAD-L] Wondering down here in South Texas the weather is 80 how about where you are

70s and sunny but by Wednesday it will get down into the 50s and probably cloudy according to one weather forecast but they never really know. I looked for a two or three weather forecast and see what turns out. The weather is nice but I can't really enjoy it. But I had an arm injury almost 2

Re: [QUAD-L] Strange Question

My injury (car accident) happened nearly 40 years ago and I was in the hospital for a total of 13 months (October 1979 to the end of November 1980) because I was so bad. I was not even able to sit up until I got to rehab so I was flat on my back for at least two thirds of that time which included

Re: [QUAD-L] Strange Question

Unfortunately, too many times to even list them all. On Thu, Dec 20, 2018 at 6:13 PM Greg wrote: > Since your injury, how many times, because of your injury, have you come > close to passing? > > Me, 3 Times... > > OD, medication interaction. > > Almost fell in Pool when no one was around,

Re: [QUAD-L] 911 Dizzy Dehydrated

Something does not found right here with what happened to you. When an ambulance is called in your BP was that low... they usually take you to the hospital in case things get worse for whatever reason. And I guess it did with your EKG showing that you were in A-Fib. Then getting an IV in and

Re: [QUAD-L] Multi-drug-resistant bacteria keep coming back & I am "colonized"

eems to keep the bacteria from getting too > bad. > > > > *From:* Danny Espinoza > *Sent:* Monday, November 26, 2018 7:27 PM > *To:* 'Lori Michaelson' ; 'quad-list' < > quad-list@eskimo.com> > *Subject:* RE: [QUAD-L] Multi-drug-resistant bacteria keep coming ba

[QUAD-L] Multi-drug-resistant bacteria keep coming back & I am "colonized"

Has anyone else been diagnosed with colonized with ongoing unrelentless multi-drug-resistant bacteria? I thought for sure that after I got my SP catheter (actually was forced to but it is still a common type catheter for us quads) I would be doing great and, instead, pretty much every month I

Re: [QUAD-L] Fwd: Very bad side effects taking when taking antibiotics for UTI

*Johnny, firstly congratulations to make it to age 60 after being injured at the age of 18. I was injured shortly after turning 15 and I am now 54. I was doing okay (with BLADDER infections) until a home health agency nurse hurt me badly. Then after going to a particular hospital/clinic I began

Re: [QUAD-L] Question for those with SP catheters

not sure what may help with that OR if any type pic line drugs can help > that. Dan H.*** > > On Thursday, November 8, 2018, 3:49:59 PM CST, Lori Michaelson < > lorilivin...@gmail.com> wrote: > > > I had a suprapubic catheter put in in June of 2017 (last year). On

[QUAD-L] Question for those with SP catheters

I had a suprapubic catheter put in in June of 2017 (last year). Only 5 later a growth or polyp shut up against my bladder wall. I had a bladder biopsy done in February of THIS year & it turned out to be superficial or low-grade cancer so it was removed. The last time I had a cystoscopy for my

Re: [QUAD-L] Wheelchair cushin

Hi Glenn, Ever since I had my Stage III wound [actually two of them] in 2010 and I told my story of what happened on the Care Cure Community... the president of the ROHO contacted me and suggested their cushion would work the best for me BECAUSE OF MY CONDITION. So, since then, I have been

Re: [QUAD-L] Q-list archives

https://www.makoa.org/quadlist.htm It is the last option at the top to click on access the archives. On Mon, Oct 22, 2018 at 2:16 PM Bobbie Humphreys wrote: > How can I access old emails? > Bobbie > > "Be the change you want to see in the world". Gandhi > > -- "Petting, scratching and

Re: [QUAD-L] Lotto

Yes, Greg you sure came up with a lot of super ideas but there are so many of us who have to pay someone around the clock and then a fill-in every time she goes to see her boyfriend which is in the contract but she also needs a break. I need a break from quadriplegic problems and I was so

Re: [QUAD-L] 25th, and now 28th anniversary

You couldn't have said it better for all your blessings Joan!!! I would have said the same if the last 3 years of my life have not gone downhill dramatically in every direction. I have pretty much lost all my family now and, for the first time, living all alone and, in doing that, somehow I came

Re: [QUAD-L] Phone holders

t can be easily swung out of the way. > > On Thu, Oct 4, 2018, 1:00 PM Lori Michaelson > wrote: > >> Pardon my ignorance and I guess the bottom line is that we are all >> different as to if we can't move our arms or hands that all or have a >> little bit of movement for o

Re: [QUAD-L] Phone holders

Pardon my ignorance and I guess the bottom line is that we are all different as to if we can't move our arms or hands that all or have a little bit of movement for our differing needs and the huge variety of different cell phone usage that works for each and every one of us. Noel this would

Re: [QUAD-L] Phone holders

I don't use anything since it would just get in the way. Before my husband's passing, him and I were just using flip phones because everything we needed or wanted was on our computer. Then, after moving in with my sister and brother-in-law and decided to get a Smartphone. IPhones, in my opinion,

Re: [QUAD-L] Severe back pain question

I also have this and something started happening - a sudden, sharp, not 'knowing when' back spasm that makes my stomach clench inward. It started happening after I came home from the hospital after being in there 3 weeks. I can go hours without a happening or it can happen several times in a

Re: [QUAD-L] choking

*We both have had a helluva several months Greg. I thought 2018 what is going to be a better year but by February I was diagnosed with superficial low-grade bladder cancer and still more bladder infections.* *Mine started out with the February diagnosis of superficial bladder cancer, the removal

[QUAD-L] Posttraumatic Syringomyelia symptoms getting worse

For those of you who have been diagnosed with Posttraumatic Syringomyelia... have your symptoms gotten worse dramatically over a short period of time? I was diagnosed in the early 1990s and had a shunt put in a 1995 and except for pain that I have learned to get used to (with help from a pain

Re: [QUAD-L] My Shoulder Bruise

No kidding Eric! When I was in the hospital for 3 weeks they tried to put a central line in my neck and even though they are not supposed to try more than 3 times this "know what all" phlebotomist or nurse practitioner tried 9 times leaving my neck bruised all to hell. Looks like I have a bunch

Re: [QUAD-L] Breathing

After the bleeding my body of sodium after drinking too much water (despite adding Gatorade and other things to my water) I began to get confused starting on June 26. Very confused. I was on the phone with my sister in the morning (late warning) and had just finished my breakfast bar that I was

Re: [QUAD-L] Drinking Enough

Oh yes... I forgot to mention that I buy fresh lemons and squeeze the lemon juice into my water jug (52 miles water jug for the entire afternoon) and then throw in half a lemon and save the other half for the next time which is usually not the following day (because I alternate) But the day after

Re: [QUAD-L] Drinking Enough

I have to have my room temperature unless I am really really warm and then like it cool. On Sun, May 27, 2018 at 2:55 PM, Paul Jacobson wrote: > Forgot to mentionwater is room temperature. [image: Smile] > > *From:* Amy Elizabeth Baldwin > *Sent:* Sunday, May 27, 2018

Re: [QUAD-L] Drinking Enough

Prior to 2014 all I drank was water (even before my accident I loved water) and then after I began having too much sediment in my urine I tried to drink more water to keep my catheter flushed. Well, I ended up going to the hospital after feeling very nauseated and throwing up a little one evening

[QUAD-L] *IMPORTANT* - Smartphones & Bluetooths

Hi all, Please bear with me as I am going to try to describe my problem as best as I can. I have been using the same* Bluetooth (Motorola H720)* since my husband & I started using a cell phone and this, of course, was was before his passing In June of 2012 and which were the flip phones. Then

Re: [QUAD-L] 29th quad anniversary

I was 15 when my accident happened. October 19th 1979. I am 38 1/2 years post. I have been very fortunate until the last two years. Before that, however, the worst things that have happened to me (and very very bad) started by a doctor or nurse doing something wrong making me almost die or put me

[QUAD-L] Typos

Sorry about my previous e-mail reg: SP catheters and my experience. "Ear responsible home health agency nurse" ? LOL. I didn't have time to proofread and just sent it. I know many of you overlook that but when that does happen to me (which is actually quite often) and I see the typos later I

Re: [QUAD-L] Need help with options to help catheter go in

I was forced to get a Suprapubic catheter thanks to an ear responsible home health agency nurse blowing up the balloon in my urethra for the first time in 36 years which stretched my urethra beyond repair. I needed surgery and was given the option for either a Bladder Neck Closure with a

Re: [QUAD-L] 45th Anniversary

Congratulations for making it this far Bobbie and you are so fortunate to still have sweet Pete! Needless to say, heartbreaking news to find out you have a stage IV wound and the amount of pain that you are in. I not only have superficial bladder cancer that will probably need surgery but just

[QUAD-L] Staphylococcus Aureus (MRSA) in the urine

Hey everyone... Has anyone else had Staphylococcus Aureus (MRSA) found in their urine and their urologist being too complacent about not getting rid of it? After a bladder biopsy done died on February 23 (outpatient procedure) and less than a week later I began to have my usual bladder infection

[QUAD-L] Re: Molded power wheelchair back for scoliosis

ed to by pass > the insurance and pay out-of-pocket which is $1,500 because I wanted it as > soon as possible. > I believe in would have gotten if it wasn't December. So no I wait. > Bobbie > > "Be the change you want to see in the world". Gandhi > > On Dec 28, 2

Re: [QUAD-L] I would like to say

Merry Christmas to all of you and hoping 2018 it is a great year for all of us    On Sun, Dec 24, 2017 at 4:56 PM, John S. wrote: > Merry Christmas to all! > > On Sun, Dec 24, 2017 at 6:22 PM, Don Smith > wrote: > Merry Christmas to one and

Re: [QUAD-L] QUAD Inc. | Affordable wheelchair accessible housing and independent living | Portland Oregon

There is one in Philadelphia as well. I remember calling them but they didn't sound promising on the phone and there was a 2 or 3 year waiting list. I can't remember the name of it at the moment but I'm sure a quick Google search would bring it up. On Mon, Dec 4, 2017 at 9:08 PM, Jim Lubin

Re: [QUAD-L] I hate this most about being a quad

​​ I hate the bladder infections that have increased dramatically since losing my husband no matter what I do. Secondly, I hate having the pathogenic bacteria "Proteus Mirabilis" set up house in my bladder and being there since 2011-ish. *P*. Mirabilis does one great job - creating sediment and

[QUAD-L] Proteus Mirabilis

Hey guys... Has *anyone* acquired the bacteria in the urine called Proteus Mirabilis? I have been plagued with it since 2011 (originally in 2006 the got rid of it for a few years although it is very hard to get rid of). It is normally found found in the or fecal matter. I learned about it from

[QUAD-L] Re: Meditation and guidance

I don't mean to take the attention, promotion or suggestions or anything away from Bobbie regarding meditation and letting her help you with it if you so desire. I just wanted to make anyone interested aware that YouTube has a super a variety of guided meditation for so many different types of

Re: [QUAD-L] Myrbetriq for bladder spasms

Yes Paul... I have. But it was at a time after my urethra was stretched out beyond recognition by that one nurse so I can't tell you whether it was doing anything or not. Further, my insurance would not pay for it so it was out of the question. I have always used Oxybutynin (Ditropan) but have

Re: [QUAD-L] SSDI Attendant Care

The link that Jim provided is correct. Unfortunately, prior to 1999 with Bill Clinton in office Medicare DID provide for ongoing home health care via MEDICARE. I know, I lived it for two full years. I got 2 hours every morning of home health aide care and 2 hours every evening at home health

[QUAD-L] UTIs

I was thankfully doing just fine before my husband passed away as far as getting bladder infections. I had not had one in six years prior to his death. After that things changed because I had different caregivers. Since surely asked about D-mannose and I had not looked it up in a while since I

Re: [QUAD-L] UTI drugs, dosage & duration

Gail & Bobbie & Greg and others... I think I already wrote an entire e-mail about this the other day but my nemesis is pathogenic Proteus Mirabilis. When my husband was still alive he told me all about it but he also said: "There are 4 nasty pathogenic bacteria that you don't want in your bladder

Fwd: [QUAD-L] Abdomen Pain

A kidney stone would show up on a CT scan. In fact, bladder stones and kidney stones can ONLY be found by performing a CT scan. Not even a KUB (x-ray) will show bladder stones unfortunately. I wrote to Greg privately I told him that I went for 4 1/2 years with extreme abdominal pain and cramping

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