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Re: [QUAD-L] Virus?
You are right in suspecting that they have come from me. Someone has hijacked my e-mail account and is sending out e-mails in my name. I spoke with the AOL people and they told me to change my password. This has not helped. I was trying not to have to change my e-mail address since I have had it for over 20 years and everyone I know has it. I am still trying to find out what else there is I'd need to do. I am so terribly sorry for the problems this has caused everyone and I will try to clear it up as soon as possible. Have a Blessed Day, Naomi -Original Message- From: wheelchair wheelch...@aol.com To: quad-list quad-list@eskimo.com Sent: Sat, Dec 4, 2010 1:35 pm Subject: Re: [QUAD-L] Virus? There was a time a couple of months ago when we received several emails from the Quad Digest and deleted them. Perhaps Ladynotes did not and received an embedded worm that attacked her address book. Can't say for sure... just speculated. Best Wishes In a message dated 12/4/2010 12:27:07 P.M. Central Standard Time, missl...@optonline.net writes: Mine seem to originate from ladynotes... -Original Message- From: Dan [mailto:d...@unh.edu] Sent: Thursday, December 02, 2010 5:01 PM To: quad-list@eskimo.com Subject: [QUAD-L] Virus? There appears to be an increase in the number of virus like emails from Quad members. Anyone know how to stop this? Jim? Dan
[QUAD-L] Unsubscribe
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Re: [QUAD-L] how many of you have home healthcare for culture's or blood work
Dana, I have Medicare as my primary insurance and blue cross as my secondary. I have a home healthcare nurse, who comes out every three weeks to change my Foley catheter. I'm pretty sure that Medicare is the one who covers the cost. Or maybe they just covered there 80% and Blue Cross covers the other 20%. However it's done, I'm not billed for it. I have been doing this for the past five years. If I suspect I have a urinary tract infection, the nurse takes a urine sample and has the results that my primary care doctor. Have a Blessed Day, Naomi -Original Message- From: DAANOO daa...@aol.com To: quad-list quad-list@eskimo.com Sent: Thu, Oct 28, 2010 5:53 pm Subject: [QUAD-L] how many of you have home healthcare for culture's or blood work I have a fairly new doctor that doesn't think I need home healthcare like I've had with all my previous doctors. I was given this doctor when my internist became a hospitalist. Can you imagine why a doctor would not want a patient to have home healthcare? I've tried to make calls for other doctors and most don't take Medicaid. Even though I have Blue Cross Blue Shield and Medicare right now, my insurance will be changing and Medicare will be first in Blue Cross Blue Shield second in February when my stepmom retires. I've been at this same same group or an quite a number of years and they accept because of long-standing patient. Most doctors are no longer accepting. Right now it doesn't matter because Blue Cross covers most of my bill. I don't even know what Medicare will pick up. I need your input about this problem. Thank you, Dana
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Re: [QUAD-L] pain
I'm sorry, that was wrong. I take 400 mg twice a day for a total of 800 mg Have a Blessed Day, Naomi -Original Message- From: Fragile swl...@gmail.com To: quad-list quad-list@eskimo.com Sent: Sat, Sep 25, 2010 8:05 pm Subject: Re: [QUAD-L] pain Lyrica 800 mg twice a day? I take 300 mg twice a day and I can't think straight. Was told 900 mg per day was the max. On Sat, Sep 25, 2010 at 4:59 PM, ladyno...@aol.com wrote: Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta 60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the pain in his shoulder? I ask because I have a two finger subluxation in my right shoulder, and it's very painful. All the arm braces I have tried, cause pain somewhere else. In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time, daa...@aol.com writes: What do any of you take for pain and the inability to sleep? Is there any kind of shot for shoulder pain? Thank you, Dana C-4-5, 36 years post, Prairie Village, Kansas
Re: [QUAD-L] MRSA ?
I went in the hospital once, they said, I tested positive and every time I've been in the hospital since then, it's like being in quarantine. They come in with the gowns and gloves and treat you like you have the Ebola virus. The last time they swapped my nose for testing to see if it was still necessary and they said he came back positive again. What ever it is, none of my family members or workers get anything from it. The only good part is, I'm guaranteed a private room. I'm allergic to vancomycin, so I don't know if it gets rid of it or not. In a message dated 9/18/2010 2:37:23 P.M. Eastern Daylight Time, c5sc...@gmail.com writes: I got rid of mine with Vancomycin IVs. Eric W Rudd _c5sc...@gmail.com_ (mailto:c5sc...@gmail.com) - Original Message - From: _yanni...@hotmail.com_ (mailto:yanni...@hotmail.com) To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Saturday, September 18, 2010 12:43 PM Subject: [QUAD-L] MRSA ? Hi Guys, My first question is I would like to know if they're lots of people in the Quad community who live with MRSA like me? The MRSA (Methicillin-Resistant Staphylococcus Aureus) is a bacterial infection resistant to antibiotic methicillin. Is there some of you who add MRSA and finally got rid of it ? The problem with frigin bacteria is that it just won't go away, I had it for seven years, everytime I go to the hospital, it is the same routine all the time, the darn mask! Is there a way to really get rid of that for good ? Let me know, I would really appreciate. Thanks in advance, Yannik Ps: Info available at: _http://www.ccohs.ca/oshanswers/biol_hazards/methicillin.html_ (http://www.ccohs.ca/oshanswers/biol_hazards/methicillin.html)
Re: [QUAD-L] pain
Dana, I take Vicodin four times a day, Lyrica 800 mg twice a day, Cymbalta 60 mg once a day, and 150 mcg of Duragesic pain patch. What is causing the pain in his shoulder? I ask because I have a two finger subluxation in my right shoulder, and it's very painful. All the arm braces I have tried, cause pain somewhere else. In a message dated 9/24/2010 12:55:45 P.M. Eastern Daylight Time, daa...@aol.com writes: What do any of you take for pain and the inability to sleep? Is there any kind of shot for shoulder pain? Thank you, Dana C-4-5, 36 years post, Prairie Village, Kansas
Re: [QUAD-L] Re: a microphone for Dragon NaturallySpeaking
Thank you very much for the information does this also work for the computer? Have a Blessed Day, Naomi -Original Message- From: Darrell Huff ddh...@atlanticbb.net To: ladynotes ladyno...@aol.com Sent: Sat, Sep 18, 2010 9:38 am Subject: Re: [QUAD-L] Re: a microphone for Dragon NaturallySpeaking Naomi, You can check out this website,,, http://www.nobuttonsheadset.com/ Darrell - Original Message - From: ladyno...@aol.com To: quad...@gmail.com ; quad-list@eskimo.com Sent: Friday, September 17, 2010 9:20 PM Subject: Re: [QUAD-L] Re: a microphone for Dragon NaturallySpeaking This is exactly the problem I'm currently having. I'm looking for a wireless mic also, or one that can be used with the computer and cell phone. I will be watching the thread very carefully t see if there's something that could solve my dilemma. Thanks in advance Have a Blessed Day, Naomi -Original Message- From: Quadius quad...@gmail.com To: Dave Krehbiel davekrehb...@earthlink.net Cc: quad-list quad-list@eskimo.com Sent: Thu, Sep 16, 2010 7:22 pm Subject: Re: [QUAD-L] Re: a microphone for Dragon NaturallySpeaking There are several wireless options, but in my experience none of them are really inexpensive. Right now I'm using an older model of the Nady encore II. Sometimes I use other microphones on that wireless system, but right now I'm using the simple lapel microphone that comes with the wireless transmitter receiver. I have the transmitter wired into my chair so that the battery operates it. If you train the system properly, it will become pretty accurate using this microphone, but it does hear a lot of ambient sound. I've also used The Boom Microphone V4 with this wireless system with great success in the past, but right now it doesn't work as well as it used to. Additionally I have used a Plantronics wireless system. Quadius On Thu, Sep 16, 2010 at 7:01 PM, Dave Krehbiel davekrehb...@earthlink.net wrote: Right now I am using Dragon NaturallySpeaking version 10 with a Gigaware headset. This works very well, except for one problem. My headset is plugged into my laptop, and so I need someone to put it on and take it off. This is particularly a problem when my family has guests. I would like to be able to make a quick trip into another room to say hello, without the need to have someone come into my room and unplug me from the computer, and then come back again to plug me back in. I have considered a freestanding “gooseneck” style microphone, but I am usually sitting about five or 6 feet away from the table supporting my laptop computer (so that I could easily tilt my power wheelchair for pressure relief. Does anyone have any good ideas for wireless microphones or some other solution? Thanks so much, Dave Krehbiel
Re: [QUAD-L] I got an ipad
What all do you do with your IPad? I'm just curious as to if it's worth me getting one. I'm currently on the computer all day. What's the advantage of having the iPAd? Have a Blessed Day, Naomi -Original Message- From: Quadius quad...@gmail.com To: hellodaveoc hellodav...@aol.com Cc: quad-list quad-list@eskimo.com Sent: Thu, Sep 16, 2010 7:34 pm Subject: Re: [QUAD-L] I got an ipad thanks I'll keep this in mind. On Tue, Sep 14, 2010 at 11:32 PM, hellodav...@aol.com wrote: the good news is. my ipod functions just fine by touching it with the bowl of a spoon. this even works through a zip-lock baggie incase you want to protect your screen from scratches or water. AZDAVE In a message dated 9/14/2010 2:26:31 P.M. US Mountain Standard Time, hellodav...@aol.com writes: I think it requires a GSR - (electrically conductive - like a hot dog - possibly the flat head of a thumbtack..?) Not sure what else might work. AZDAVE In a message dated 9/14/2010 12:46:48 P.M. US Mountain Standard Time, quad...@gmail.com writes: can it be used with a mouthstick? In the past I've found these things require that heat from human contact in order to work effectively. Q On Sat, Sep 11, 2010 at 8:06 PM, bobbie...@aol.com wrote: Hi all, I've been in bed the last two months, and I got an ipad. It is so very easy to use in bed. Bobbie
Re: [QUAD-L] Re: a microphone for Dragon NaturallySpeaking
This is exactly the problem I'm currently having. I'm looking for a wireless mic also, or one that can be used with the computer and cell phone. I will be watching the thread very carefully t see if there's something that could solve my dilemma. Thanks in advance Have a Blessed Day, Naomi -Original Message- From: Quadius quad...@gmail.com To: Dave Krehbiel davekrehb...@earthlink.net Cc: quad-list quad-list@eskimo.com Sent: Thu, Sep 16, 2010 7:22 pm Subject: Re: [QUAD-L] Re: a microphone for Dragon NaturallySpeaking There are several wireless options, but in my experience none of them are really inexpensive. Right now I'm using an older model of the Nady encore II. Sometimes I use other microphones on that wireless system, but right now I'm using the simple lapel microphone that comes with the wireless transmitter receiver. I have the transmitter wired into my chair so that the battery operates it. If you train the system properly, it will become pretty accurate using this microphone, but it does hear a lot of ambient sound. I've also used The Boom Microphone V4 with this wireless system with great success in the past, but right now it doesn't work as well as it used to. Additionally I have used a Plantronics wireless system. Quadius On Thu, Sep 16, 2010 at 7:01 PM, Dave Krehbiel davekrehb...@earthlink.net wrote: Right now I am using Dragon NaturallySpeaking version 10 with a Gigaware headset. This works very well, except for one problem. My headset is plugged into my laptop, and so I need someone to put it on and take it off. This is particularly a problem when my family has guests. I would like to be able to make a quick trip into another room to say hello, without the need to have someone come into my room and unplug me from the computer, and then come back again to plug me back in. I have considered a freestanding “gooseneck” style microphone, but I am usually sitting about five or 6 feet away from the table supporting my laptop computer (so that I could easily tilt my power wheelchair for pressure relief. Does anyone have any good ideas for wireless microphones or some other solution? Thanks so much, Dave Krehbiel
Re: [QUAD-L] I got an ipad
Is the iPad difficult to hold with one hand? I was thinking about getting one, but I don't think I would be able to handle it with one hand. Have a Blessed Day, Naomi -Original Message- From: Bobbie299 bobbie...@aolcom To: quad-list quad-list@eskimo.com Sent: Sat, Sep 11, 2010 8:07 pm Subject: [QUAD-L] I got an ipad Hi all, I've been in bed the last two months, and I got an ipad. It is so very easy to use in bed. Bobbie
[QUAD-L] Re: [TMIC] Pain Pump
Thank you, Alton I thought that was so, but I was told differently Have a Blessed Day, Naomi -Original Message- From: Alton Ryder a-ry...@comcast.net To: LadyNotes ladyno...@aol.com Cc: cindymcleroy cindymcle...@socal.rr.com; tmic-list tmic-l...@eskimo.com Sent: Sun, Sep 5, 2010 8:39 am Subject: Re: [TMIC] Pain Pump I have. Both were Baclofen, one a replacement for the other to get new batteries. Medtronics, the manufacturer, is the authority on using both meds mixed. Alton On Sep 4, 2010, at 2:30 PM, ladyno...@aol.com wrote: had the pump removed and reinstalled?
Re: [QUAD-L] Pain Pump
Getting the pump Isn't anything to be afraid of. At least it wasn't for me, because in the the area I had my surgery, I have no feeling. So it was not painful for me. My concern was infection. Have a Blessed Day, Naomi -Original Message- From: Ismael ismael.cava...@att.net To: LadyNotes ladyno...@aol.com Sent: Tue, Aug 31, 2010 1:58 pm Subject: RE: [QUAD-L] Pain Pump High how are you doing I do understand. I get sold stiff that sometimes hat's makes me cry. Sometimes, I was planning to get that type of pump, ut I'm scared I only take some pills sometimes they help me but sometimes hey don't -Original Message- rom: ladyno...@aol.com [mailto:ladyno...@aol.com] ent: Monday, August 30, 2010 1:02 AM o: quad-list@eskimo.com; tmic-l...@eskimo.com ubject: [QUAD-L] Pain Pump I had a baclofen pump removed last September 11, due to complications with t. At the time of removal, I was told that I could not have it put back in. ut what I did not know at the time, was that I could get pain medicine put irectly into the pump also. Now I'm considering having the pump put back in ust for the pain medicine. My question is, has anyone ever had the pump emoved and reinstalled? I would normally be concerned about them fooling round with my spinal cord, but I'm already a quadriplegic, completely aralyzed on the right side and minimal, nonfunctional, use on the left ide. My only concern would be that they would something affect my brain. Naomi.
[QUAD-L] Re: [TMIC] Pain Pump
Are you having your pump replaced, because it's time, or are you having a problem with it? Do you also use it for pain medicine? Have a Blessed Day, Naomi -Original Message- From: bpelow bpe...@austin.rr.com To: LadyNotes ladyno...@aol.com Sent: Tue, Aug 31, 2010 7:23 am Subject: Re: [TMIC] Pain Pump Hi Naomi, I've had to have my complete system changed 3 times, pump and intrathecal atheter and had no real adverse problems. Hope they get you some help with a ain pump, because it really does work. eace, ernie in Texas --- ladyno...@aol.com wrote: I had a baclofen pump removed last September 11, due to complications with it. At the time of removal, I was told that I could not have it put back in. But what I did not know at the time, was that I could get pain medicine put directly into the pump also. Now I'm considering having the pump put back in just for the pain medicine. My question is, has anyone ever had the pump removed and reinstalled? I would normally be concerned about them fooling around with my spinal cord, but I'm already a quadriplegic, ompletely paralyzed on the right side and minimal, nonfunctional, use on the left side. My only concern would be that they would something affect my brain. Naomi.
[QUAD-L] Pain Pump
I had a baclofen pump removed last September 11, due to complications with it. At the time of removal, I was told that I could not have it put back in. But what I did not know at the time, was that I could get pain medicine put directly into the pump also. Now I'm considering having the pump put back in just for the pain medicine. My question is, has anyone ever had the pump removed and reinstalled? I would normally be concerned about them fooling around with my spinal cord, but I'm already a quadriplegic, completely paralyzed on the right side and minimal, nonfunctional, use on the left side. My only concern would be that they would something affect my brain. Naomi.
Re: [QUAD-L] Anniversary
Thank you Shirley for your encouragement Naomi, C-4 quad due to Transverse Myelitis since July 2, 2005 -Original Message- From: shirley bell sbell...@cox.net To: ladynotes ladyno...@aol.com Sent: Fri, Jul 2, 2010 7:31 pm Subject: Re: [QUAD-L] Anniversary hang in naomi.i am pulling for you. Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: ladyno...@aol.com To: quad-list@eskimo.com Sent: Friday, July 02, 2010 5:08 PM Subject: [QUAD-L] Anniversary Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
Re: [QUAD-L] Anniversary
Thanks Dan, for keeping me in your thoughts and reminding me of that saying. I will keep it in the forefront of my mind, and I'm sure it will help me. Thanks again for your encouragement. Have a Blessed Day, Naomi -Original Message- From: Dan d...@alumni.unh.edu To: ladynotes ladyno...@aol.com Sent: Fri, Jul 2, 2010 6:51 pm Subject: Re: [QUAD-L] Anniversary Thinking of you Naomi and sending good thoughts your way. When I'm in a bad spot, I remember the phrase - This too shall pass. It always helps me and I hope it helps you also. Please keep us informed. Dan At 05:08 PM 7/2/2010, ladyno...@aol.com said: Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
Re: [QUAD-L] Help
Thank you Joan for the information Have a Blessed Day, Naomi -Original Message- From: Joan Anglin poaj...@sbcglobal.net To: merrill2u merril...@cox.net; quad-list quad-list@eskimo.com Sent: Sat, Jul 3, 2010 6:51 pm Subject: RE: [QUAD-L] Help It was the legislation written by a quad to allow non medical personnel who were hired through an agency to do bowel care, cathing, and wound care. Joan From: Merrill [mailto:merril...@cox.net] Sent: Saturday, July 03, 2010 1:23 PM To: quad-list@eskimo.com Subject: FW: [QUAD-L] Help I missed the thread, what again is the legislation? From: Joan Anglin [mailto:poaj...@sbcglobal.net] Sent: Saturday, July 03, 2010 1:10 PM To: ladyno...@aol.com; quad-list@eskimo.com Subject: RE: [QUAD-L] Help Hi Naomi No, the legislation was written by a C56 quad about 23 years ago. He wrote the legislation and pushed it through the state legislature to be on a two year grant program, I do not know who writes the grants when they need renewing It is pretty awesome as it allows for up to five HRS per day, seven days a week. It also allow non medical personnel to handle bowel care, cathing, and wound care after being signed off by an RN. Otherwise Nevada legislature states that all that sort of thing must be done by trained medical personnel. Because I have been in the field of mental retardation and mental health I was aware of this program before I broke my neck. So it enabled me to come home from rehab, 3 1/2 months after I broke my neck, and after the first 30 days of Home Health paid for by the insurance company I was able to be accepted into this program. Now I advocate for newly injured and encourage the families to apply just as soon as they know when their loved one is coming home. It certainly helps to make the transition easier. (if there is an easy way to make such a transition J) Joan Two roads diverged in a wood, and I- I took the one less traveled by, And that has made all the difference. Robert Frost
Re: [QUAD-L] Help
Hello Joan, you said that your caretakers are provided by an agency, which is funded by a grant from the state. Did you have to write a grant request yourself, or how was that taken care of and how did you know about the grant Have a Blessed Day, Naomi -Original Message- From: Joan Anglin poaj...@sbcglobal.net To: quad-list quad-list@eskimo.com Sent: Fri, Jul 2, 2010 2:27 pm Subject: RE: [QUAD-L] Help My living situation is much different from most, as I have two adult mentally handicapped gentleman living with me. The older guy has been living with me since 1980 and the younger one since 1982, eight years before I broke my neck. They are my job and I get paid for my time training them, and for all living expenses. It is a win-win situation. I have 35 HRS per week for attendant care for myself, I am a complete C4 with no movement other than a shoulder shrug, so I have someone come in the morning and get me up and then another person returns in the evening and puts me to bed. My husband and I divorced six years after I broke my neck, and I retained the house and property. In 2002 I sold the house to my daughter and built one designed by me and my son in law and friends built the house. Now that I’m over 65-get Social Security retirement, but I was not eligible for 14 years for disability because I was missing one quarter of work in the last five years before I was injured. My caregivers are provided by an agency which is funded by a grant from the state of Nevada. Payment is on a sliding scale depending on income. It’s a fantastic program. I am very lucky to have it. I have my own van, a 1990 Chevy that had been converted into a recreational vehicle with the raised roof. I purchased it five years ago for $4000 and installed a lift that I purchased off of Ebay for $500. Reno also has an excellent access program. Door to door for $3.00 each way for any reason, a 30 minute window in which they arrive, and if it is after their standard working hours a taxi ride for the same $3.00. By having a host family for my guys as I call them I do give up an open schedule. If I want to go out of town I have to make arrangements for someone to live in the house and send somebody needs to be with them on the property at all times I have to schedule all appointments and social activities around their time frame. But believe me, it is very important as I have some financial independence and is well worth the drawbacks. Joan in sunny in Reno where summer has finally come. C4 quad 1990
[QUAD-L] Anniversary
Today, July 2, marks the five-year mark of being stricken with Transverse Myelitis. I am celebrating it by being bedridden, nursing two pressure sores. Have you ever tried lying on one side, for days at a time? It causes me to have claustrophobic anxiety attack , but it is quite necessary to avoid flap surgery :-( Naomi, C-4 Quad due to Transverse Myelitis since July 2, 2005
Re: [QUAD-L] Help
I am currently living at home, but looking for an assistant living facility, as I do not have the help here that I need. I pay someone to come in the morning to get me washed and dressed and into my chair. The remainder of the day, my 80 year old mother, who is in poor health, is here with me. I pay someone to come in the evening, to put me into bed. During the night time, my mother and husband are here, but they both sleep upstairs, and I am downstairs in the family room, with my cell phone headset on in case of an emergency. During the nights, I sleep on my back entire time and sit in my chair from 8 AM to 9 PM. I've been fortunate to this point (five years post as of tomorrow July 2) but now my bottom is starting to break down and I need even more care and attention that I don't have. My husband does not want to be a caregiver. He provides for what I need, but is not very attentive, which is why I need assisted-living. It is so expensive that I really can't afford it, which is why I'm still at home. Naomi, C-4 quad since July 2, 2005 In a message dated 6/30/2010 1:33:08 P.M. Eastern Daylight Time, big46...@fuse.net writes: Hey Everyone, It has been a while since I posted. I hope you don’t mind me asking but what is everyone’s living situation? Are you in a group home, nursing home, apartment, independent living situation? My situation is changing and I am looking for my best option. I am a C 3/4 quad who needs about 50 hours of care. Any info would help. Thank you, Adam
Re: [QUAD-L] stupidity
I'm so glad that your injuries were minor. Please be safe out there in the traffic. I never go out into traffic other than in a parking lot, and even then I am extremely careful. Naomi, C-4 quad since July 2, 2005 In a message dated 6/30/2010 2:47:10 P.M. Eastern Daylight Time, aa999...@yahoo.com writes: hello and hope everybody is having a good day. My yesterday could have been better after approaching a four-way stop and proceeded to cross the street the car on my left stopped and unfortunately the other vehicle rolled through without stopping! The only recourse I had was to swerve to my left to let the truck the rear portion of my chair and essentially and tip me over pretty hard on my left shoulder! It took both my armrest off and thank goodness for a good chest strap which I think kept me from hitting my head. My stupid small-town so many of these four way stops is almost stupid besides the roundabouts? So having a chair that can protect you in any form is a great necessity and not looking forward to any more accidents. Just last week somebody ran a red light right in front of me thank goodness I noticed them because they were going 30 mph so please be careful and look multiple times before crossing the street especially major intersections. Besides my bruised shoulder and somewhat of my back being a little sore considered myself pretty lucky.
Re: [QUAD-L] chair's joystick controling tv, dvd, mouse
Greg, that sounds great, if it works properly. While I'm sitting there watching television. I'm not using my chair's control. It could be put to good use, as I am currently looking for a voice operated TV remote. , that sounds great, if it works properly. While I'm sitting there watching television. I'm not using my chair's control. It could be put to good use, as I am currently looking for a voice operated TV remote. Naomi C-4 quadriplegic due to Transverse Myelitis since July 2, 2005 -Original Message- From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Tue, Jun 15, 2010 9:01 pm Subject: [QUAD-L] chair's joystick controling tv, dvd, mouse I was reading a little about Invacare having this MK6i IR It can convert your chair's joystick into a remote control for your TV, DVD, etc. Even use it to move your mouse on your computer. Anyone ever try this? It could be cool. Greg
Re: [QUAD-L] troubles
Doing right, is never the wrong thing to do! Have a Blessed Day, Naomi -Original Message- From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Tue, Jun 15, 2010 8:35 pm Subject: Re: [QUAD-L] troubles Anyone buy or find the little computer device the repair shops use to adjust your chair's computer? I'd love to get one. I almost had one once when the repair guy left it in the room at the shop after he left, but I was honest. Now I wish I would have taken it. Greg
Re: [QUAD-L] chatting
Hello Ismael, I use Windows Live Messenger for voice, texting and video messaging. I don't pay for any of it. I just downloaded the program and started using it. I've been using it for nearly 3 years now Have a Blessed Day, Naomi -Original Message- From: Ismael ismael.cava...@att.net To: ladyno...@aol.com Sent: Fri, Jun 11, 2010 8:13 pm Subject: RE: [QUAD-L] chatting Hello Naomi. Do you use Windows Live for voice and text chatting? If you use voice, is it free? Thank you. Ismael From: ladyno...@aol.com [mailto:ladyno...@aol.com] Sent: Wednesday, May 19, 2010 11:28 PM To: ismael.cava...@att.net; quad-list@eskimo.com Subject: Re: [QUAD-L] chatting I Use Windows Live Messenger. It's free and easy Have a Blessed Day, Naomi -Original Message- From: Ismael ismael.cava...@att.net To: quad-list@eskimo.com Sent: Tue, May 18, 2010 9:18 pm Subject: [QUAD-L] chatting Does anyone know the easy way to chat in their Internet
Re: [QUAD-L] My Dilemma
Glenn Henry, thank you for replying to my question. I really appreciate you dissecting my e-mail and answering in portions. That helped me a great deal. I have decided not to have the surgery. It is too invasive for me. As of the present. I am not having any major health issues, and I would like to keep it that way. I feel that, if I have this surgery. I'll just have all types of problems afterwards. It's not like it's reversible, and I can just change it back. if I start having a problem. Forty-four years with an indwelling catheter is a long time. That's the longest I've ever heard of anyone keeping a catheter. I'm sure you must have been devastated, when the doctor told you, you had cancer. Thank God for His interventions. I am so glad that you did not have cancer, and that you decided to get a second opinion. If I was still thinking about having the surgery, I would have gotten a second opinion, also. Thanks again for replying. Glenn Henry, thank you for replying to my question. I really appreciate you dissecting my e-mail and answering in portions. That helped me a great deal. I have decided not to have the surgery. It is too invasive for me. As of the present. I am not having any major health issues, and I would like to keep it that way. I feel that, if I have this surgery. I'll just have all types of problems afterwards. It's not like it's reversible, and I can just change it back. if I start having a problem. Forty-four years with an indwelling catheter is a long time. That's the longest I've ever heard of anyone keeping a catheter. I'm sure you must have been devastated, when the doctor told you, you had cancer. Thank God for His interventions. I am so glad that you did not have cancer, and that you decided to get a second opinion. If I was still thinking about having the surgery, I would have gotten a second opinion, also. Thanks again for replying. Naomi. C-4 quad due to Transverse Myelitis since July 2, 2005 -Original Message- From: gah17...@aol.com To: ladyno...@aol.com; quad-list@eskimo.com Sent: Wed, Jun 2, 2010 2:44 pm Subject: Re: [QUAD-L] My Dilemma In a message dated 5/17/2010 6:31:56 P.M. Central Daylight Time, ladyno...@aol.com writes: I am a C-4 quad with an indwelling Foley catheter. I have had an indwelling catheter for 44 years. In the 1960s it was the only way to go. I am a male, and my urethra has eroded severely. My urologist says that my urethra is eroding, and suggests I have a procedure called a urostomy. . I would do a lot of research before I make any decisions. Five years ago I went to a urologist, he was smart and cocky and told me that he knew that he would find tumors and bladder cancer. People just don't live 47 years with out big problems. Well, needless to say after he examined me one of the areas biopsied came back low malignancy potential and he informed me that I had cancer. We were scared, but God intervened and I feel my life was saved. He wanted me to have a urostomy and my bladder was to be removed. The next day I got very ill, he wanted to speed things along, but I felt that my symptoms were that of AD. He said there was no way and I immediately started to see red flags. I called for a second opinion, the urologist said there was no hurry and that I should go to John Hopkins urology department. That is exactly what I did. After meeting with the number two man in the department, he recommended viewing the biopsy slides and we were to return in three weeks. I returned and the first thing he said is I have good news, you do not have cancer. He saw no reason for me to not use the catheter. He performed a procedure called Urodynamic, which measures the amount of urine your bladder can hold. Mine is holding less than an ounce of urine.. Mine holds about the same. So now he wants to remove my bladder, and make me a new one using part of my small intestine. During this procedure, both ureters are relocated, a new bladder is made, and urine as directed from the body through a stoma in the abdomen, which connects to a bag that adheres to the skin. I am going to the hospital on Tuesday to have an MRI, to make sure that it's safe for me to have this procedure because I also have Crohn's disease and disturbing my small intestine, may cause my Crohn's to flareup (which is a very terrible thing). . One Big issue is UTI's and with this procedure name may be more prevalent. My dilemma is this: I have to choose between having this very invasive surgery, and all of that may come after it including infection from many sources, including the new bladder, ureter relocation, the stoma, and skin irritation from the adhesive for the bag, and not to mention the Crohn's flareup Or. I can wear incontinent briefs. I also had problems getting wet when I went to the hospital. Since I has gone to using 2 ditropan 5mg each day morning and evening, and started to take two tablets
Re: [QUAD-L] My Dilemma
LindaF. Thank you for the welcome. Do you have any idea what the new material is that packed your urethra with? Where you still using a catheter at the time, or did you have your suprapubic already? Sorry to hear about your pressure ulcer, but I'm glad that it's all healed. Thanks for your prayers, and I'll keep you in mine. Thank you for the welcome. Do you have any idea what the new material is that packed your urethra with? Where you still using a catheter at the time, or did you have your suprapubic already? Sorry to hear about your pressure ulcer, but I'm glad that it's all healed. Thanks for your prayers, and I'll keep you in mine. Have a Blessed Day, Naomi -Original Message- From: linda...@comcast.net To: ladyno...@aol.com Sent: Fri, May 21, 2010 4:18 pm Subject: Re: [QUAD-L] My Dilemma Hi Naomi, Welcome back, hope you are doing ok. I don't envy your delemma. My bladder only holds 100cc too, I have a supra pubic catheter. My urethra was stretched where I could not keep a catheter in, my urologist packed my urethra with collagen first time then 2nd time with a new material I haven't had any leaking. The supra catheter does good. I had a class 4 pressure ulcer on my Left Gluteal fold at the time had to do something to keep me dry. My sore has completely healed! I wish you lots of luck hope it all will work out. You are in my prayers. Lindaf =
Re: [QUAD-L] Hello!
I'm sorry to hear about your bad year. I hope things will improve. Glad to have you back. I just came back myself :-) Have a Blessed Day, Naomi -Original Message- From: silas silas...@live.com To: Quad-list quad-list@eskimo.com Sent: Tue, May 18, 2010 9:13 am Subject: [QUAD-L] Hello! Hello everybody! I came back because this year has been the worst yet, hope to start learning from you all again! Silas Shelburne
Re: [QUAD-L] 21st anniversary!
Bob, I am also a quadriplegic due to Transverse Myelitis. I thank Jim twice for not only creating the quad-list, but also TMIC, a list for people with Transverse Myelitis. I use both list. Both list is a place for information for me. Most people with TM are not quads, and quads do not have the issues of TM. I hate that this has happened to Jim, I thank him for the help that he has given us. Bob, I am also a quadriplegic due to Transverse Myelitis. I thank Jim twice for not only creating the quad-list, but also TMIC, a list for people with Transverse Myelitis. I use both list. Both list is a place for information for me. Most people with TM are not quads, and quads do not have the issues of TM. I hate that this has happened to Jim, I thank him for the help that he has given us. Have a Blessed Day, Naomi -Original Message- From: bob quinn r...@sockets.com To: Jim Lubin jlu...@eskimo.com; quad-list@eskimo.com; tmic-l...@eskimo.com; vent-us...@eskimo.com Sent: Tue, May 18, 2010 3:52 pm Subject: Re: [QUAD-L] 21st anniversary! Thanks for making a tough life a little better by creating your email lists. I ave found quad-list to be a great resource of information and comfort, as I now others have, and I'm sure those on your other lists have had similar xperiences too. Regards, ob quinn At 05:13 PM 5/17/2010, Jim Lubin wrote: Today, May 17th, makes 21 years since I became a ventilator dependent uadriplegic due to acute transverse myelitis. I was 21 when it happened so it as now been half my life. I woke up that morning with a sore shoulder. Thinking just slept in a wrong position I went to work. After about 30 minutes the pain n my shoulder increased and I started feeling dizzy. I tried to stand up but ould not. Someone helped me lay down. In a short amount of time I remember a aramedic asking me my age, I tried to answer but could not talk. I found out I ad stopped breathing. The next memory I have is waking up in the hospital nable to move or speak. Transverse Myelitis is an inflammatory attack in the spinal cord. It is an auto mmune disorder where a persons own immune system mistakenly attacks and estroys myelin, the insulating material that surrounds nerves. There is no nown cause or cure. It can happen to anyone at any age. In 2008, the Transverse Myelitis Association has established the James Timothy ubin Fellowship in Rare Neuroimmunologic Disorders. The purpose of the ellowship is to encourage the development of medical specializations in TM, DEM and NMO through a year of study under a leading TM, ADEM or NMO specialist. f you think this is a worthy cause and would like to make a tax deductible onation to support it, you can do so using this link http://www.myelitis.org/fellowship-donation Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [QUAD-L] chatting
I Use Windows Live Messenger. It's free and easy Have a Blessed Day, Naomi -Original Message- From: Ismael ismael.cava...@att.net To: quad-list@eskimo.com Sent: Tue, May 18, 2010 9:18 pm Subject: [QUAD-L] chatting Does anyone know the easy way to chat in their Internet
[QUAD-L] My Dilemma
I am a C-4 quad with an indwelling Foley catheter. My urologist says that my urethra is eroding, and suggests I have a procedure called a urostomy. He performed a procedure called Urodynamic, which measures the amount of urine your bladder can hold. Mine is holding less than an ounce of urine. So now he wants to remove my bladder, and make me a new one using part of my small intestine. During this procedure, both ureters are relocated, a new bladder is made, and urine as directed from the body through a stoma in the abdomen, which connects to a bag that adheres to the skin. I am going to the hospital on Tuesday to have an MRI, to make sure that it's safe for me to have this procedure because I also have Crohn's disease and disturbing my small intestine, may cause my Crohn's to flareup (which is a very terrible thing). My dilemma is this: I have to choose between having this very invasive surgery, and all of that may come after it including infection from many sources, including the new bladder, ureter relocation, the stoma, and skin irritation from the adhesive for the bag, and not to mention the Crohn's flareup Or. I can wear incontinent briefs which I don't have anyone to change them, because there's just me and my 80 year old mother, living together. She won't be able to change them throughout the day. I have an aide comes in the morning and gives me a bed bath and get me in my wheelchair. The rest of the day, there's just me and my mom here until bedtime (around 9:00 PM) when my nighttime aide comes to put me to bed. My catheter bag is usually not emptied from morning to night. My mom cannot handle me to change briefs, and if they're left on, I would have all types of sores. Does anyone on this list have a urostomy? If so, how is it working for you? I would love to hear what others have to say regarding my dilemma. Naomi. C-4 quadriplegic due to Transverse Myelitis since July 2, 2005 Have a Blessed Day, Naomi
Re: [QUAD-L] Unidentified subject!
Greg, where was your dog, during this ordeal? Was he taking the extra time to explore, or being concerned about you and your chair? Greg, where was your dog, during this ordeal? Was he taking the extra time to explore, or being concerned about you and your chair? Have a Blessed Day, Naomi -Original Message- From: greg g...@eskimo.com To: quad-list@eskimo.com Sent: Wed, Apr 28, 2010 10:05 am Subject: [QUAD-L] Unidentified subject! The other day I mentioned that I never go out by myself without my chest strap n, or without my phone. That night I took my dog for a quick pee check before ed. My chair is in the shop, so I'm in my backup. It has no chest strap. sually when I go out alone, I put a strap around my headrest and my head and ne arm. Since I was just going around the block... I didn't... nor did I take y phone. 'm part way around and my dog pees, so I turn around because it's shorter. My ear wheel slips off the sidewalk into the gravel and is stuck just a bit. My rror was I was sitting with my back to far upright. So when my chair jerks when t gets unstuck, I start to fall/tip forward. I've done this before and my eflex is to gun the chair forward to help me sit back. I stop myself / the hair, before I get to the edge, the the fast stop makes me fall forward even ore. I hit the joystick with my arm and off I go, right off the curb. Good hing was I was going forward not sideways so no tipping over. Plus my legrest it the street and stopped my chair from going further into the street. Bad news as my legrest hits the street and I make a dead stop. No momentum to help me it back up. o I'm stuck half off the curb, tipped forward on my lap, with no phone. At ight not many cars drive by. Luckily I was there only about 3-4 minutes when I eard loud taking in the school parking lot across the street. I start yelling CAN SOMEONE HELP ME It took a minute of yelling before I heard them yelling ack that they were on there way over. A man and lady out jogging. They were so ice, he was trying to sit me back up first, but was so careful. Like he was oing to break me. Then they were able to lift my front wheels back up on the idewalk. Then they asked if I needed them to walk home with me :-) After 28 years, that was the first time going off a curb. Once my 5/6 year old iece was on my lap driving and we went off our curb going fast, but it is the urved/slopped kind. I go up/down them all the time, but I have to tilt my back o go down it, then tilt all the way up to go up the curb, but I do it very low. Greg
[QUAD-L] Living Arrangements
I'm just curious as to everyone's living arrangements. Do you stay at home with a live in caretaker, do you live at home with family who cares for you, do you live alone with an aide who comes in for a few hours, do you live in an assisted living facility, or nursing facility . I'm just curious as to how other people manage. I live in my own home, but I do not have access to a shower and I need someone available 24 hours a day. I'm looking at assistant living facilities, but they are so expensive. Any suggestions? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis
Re: [QUAD-L] Dragon professional 10
Dana, I use Dragon 10 and has Vista 64-bit. When I use Dragon, I turn my Vista off. I had used Dragon 8 and 9 but when I got Vista, it was a pain in the butt for me. It takes too long to recognize my speech, and it didn't work and all programs that I use. It really frustrated me. I do receive to error messages every time I turn Dragon on. I called the support group regarding these error messages, and they are still working on that. It's been about 3 months now, LOL. I just haven't taken the time to call them back regarding this problem. The messages are regarding hot keys used in another program, which I'm sure is the Vista program. Have a great summer! God bless you, Naomi In a message dated 9/13/2009 12:28:36 P.M. Eastern Daylight Time, daa...@aol.com writes: Is anyone using Dragon professional 10? Does it work better with Vista and Dragon professional 9 or 9.5. It takes a lot of time to mouse grid to do anything in Vista. I like some of the features of Vista, but not that one. On Dragon nine it seem to already know most of the commands. I know some one out there has figured that out. Thank you Dana inline: nvtech_vc004802.jpg
Re: [QUAD-L] Dragon professional 10
Steve, what are scripts and macro? And how would they benefit me? Have a great summer! God bless you, Naomi In a message dated 9/13/2009 2:18:05 P.M. Eastern Daylight Time, steve.olda...@comcast.net writes: Yes, Professional lets you create custom commands through scripts and macros. The Preferred and Standard editions do not provide this. These custom commands can be very useful and time saving. Steve - C4, 21 years From: Steve Crowder [mailto:dangerwo...@san.rr.com] Sent: Sunday, September 13, 2009 2:07 PM To: daa...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] Dragon professional 10 I use Dragon 10 preferred with Windows XP and it works great. Is there much difference between preferred and professional? Nick - Original Message - From: _daa...@aol.com_ (mailto:daa...@aol.com) To: _quad-l...@eskimo.com_ (mailto:quad-list@eskimo.com) Sent: Sunday, September 13, 2009 9:28 AM Subject: [QUAD-L] Dragon professional 10 Is anyone using Dragon professional 10? Does it work better with Vista and Dragon professional 9 or 9.5. It takes a lot of time to mouse grid to do anything in Vista. I like some of the features of Vista, but not that one. On Dragon nine it seem to already know most of the commands. I know some one out there has figured that out. Thank you Dana
Re: [QUAD-L] Blured vision
That's just it. I take so many medicines, I don't know which one it is. Several of them say they may cause vision changes in Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Looking for love this summer? Find it now on AOL Personals. (http://personals.aol.com/?ncid=emlcntuslove0003)
[QUAD-L] Blured vision
During the course of my medication regimen, I had taken medication that has caused me to have blurred vision. I know there has been others who have complained about having their vision impaired due to medication. My question is this: has anyone stopped taking the medication and have their vision improve or return to normal? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Looking for love this summer? Find it now on AOL Personals. (http://personals.aol.com/?ncid=emlcntuslove0003)
Re: [QUAD-L] Everyone is in a Twitter
My life is not that interesting that I need someone following me on twitter LOL Naomi c4 quadriplegic due to Transverse Myelitis since July 2, 2005 -Original Message- From: Eric W Rudd c5sc...@gmail.com To: quad-list@eskimo.com Sent: Sun, Jun 28, 2009 7:33 pm Subject: Re: [QUAD-L] Everyone is in a Twitter guess it depends on who u follow Eric W Rudd c5sc...@gmail.com ? ? - Original Message - From: Dan To: quad-list@eskimo.com Sent: Sunday, June 28, 2009 6:29 PM Subject: Re: [QUAD-L] Everyone is in a Twitter Call me stupid, but I just don't get Twitter. I tried following a couple of them but all the remarks just seem to be random statements unrelated to anything. Dan At 04:22 PM 6/28/2009, Lori Michaelson said something that elicited my response: ? It seems like everyone is all in a twitter about Twitter.com! Pardon the pun! LOL. ? First it was MySpace, then people started using Facebook and now Twitter is hot for the same reasons as the two prior sites. ? Again, I don't have time to start one of these let alone keep up with it so it will be a future item on my agenda if I ever get that far or want to go that route. By then it will probably be something else! LOL LOL ? But also, to me, it seems more like something a teenager would want to use. Friends, personal info, for the latest KRAZE.? Almost like a popularity thing but also a fun thing. ? And, for those computer geniuses (like my husband) and hackers - even if they are set up to block out certain people or choose certain people - the information is not private to many many people that you are not aware of. ? E-mailing personal information to my online friends, etc, trying to keep up with my computer projects and working on putting up my own personal website is even more than I can handle -- especially now.? ? Different strokes for different folks as always but am I alone in thinking that it seems to be something that teenagers would do? On the flip side, we are all young at heart so it is a different kind of fun for those that have the time to keep up with it, etc.! Lori Content-Type: image/gif; name=813.gif X-Attachment-Id: 8...@goomoji.gmail Content-ID: 8...@goomoji.gmail
[QUAD-L] Re: [TMIC] Facebook Page
Tracey I am also addicted to Farm town. I am only on level 17 but I am constantly working. I am Naomi H. add me to your friends please. If anyone else wants to add me to their Facebook page just look me up and add me as a friend -Original Message- From: Tracey L. Black tracey.bl...@hnoins.com To: Grace M. grace...@gmail.com; Jim Lubin jlu...@eskimo.com Cc: Akua a...@artfarm.com; tmic-l...@eskimo.com Sent: Fri, Jun 26, 2009 9:17 am Subject: RE: [TMIC] Facebook Page I am addicted to Farm Town. So is Ashlee and her brother and sister. I am up to level 26 and have over $435,000. Great way to talk to people from all over the world!! ? If you have a facebook, can you give me your info so that I can add you to mine??? ? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours:? 9:00 a.m. - 5:00 p.m. ? ? Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained ? From: Grace M. [mailto:grace...@gmail.com] Sent: Thursday, June 25, 2009 10:54 PM To: Jim Lubin Cc: Akua; tmic-l...@eskimo.com Subject: Re: [TMIC] Facebook Page ? Hi Jim,? ? I'm afraid to even start Farm Town---I KNOW I'll get addicted...as it is, I already need to start attending Mahjong Addicts Anonymous meetings? ;-)?? Gracie ?
[QUAD-L] Re: [TMIC] Facebook Page
My last name is Hudson or you can look me up by my e-mail* -Original Message- From: Tracey L. Black tracey.bl...@hnoins.com To: ladyno...@aol.com Sent: Fri, Jun 26, 2009 12:16 pm Subject: RE: [TMIC] Facebook Page Naomi, what is your last name so that I can look you up. Or can I look you up by your aol email address? ? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours:? 9:00 a.m. - 5:00 p.m. ? ? Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained ? From: ladyno...@aol.com [mailto:ladyno...@aol.com] Sent: Friday, June 26, 2009 12:14 PM To: Tracey L. Black; quad-list@eskimo.com Subject: Re: [TMIC] Facebook Page ? Tracey I am also addicted to Farm town. I am only on level 17 but I am constantly working. I am Naomi H. add me to your friends please. If anyone else wants to add me to their Facebook page just look me up and add me as a friend -Original Message- From: Tracey L. Black tracey.bl...@hnoins.com To: Grace M. grace...@gmail.com; Jim Lubin jlu...@eskimo.com Cc: Akua a...@artfarm.com; tmic-l...@eskimo.com Sent: Fri, Jun 26, 2009 9:17 am Subject: RE: [TMIC] Facebook Page I am addicted to Farm Town. So is Ashlee and her brother and sister. I am up to level 26 and have over $435,000. Great way to talk to people from all over the world!! ? If you have a facebook, can you give me your info so that I can add you to mine??? ? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours:? 9:00 a.m. - 5:00 p.m. ? ? Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained ? From: Grace M. [mailto:grace...@gmail.com] Sent: Thursday, June 25, 2009 10:54 PM To: Jim Lubin Cc: Akua; tmic-l...@eskimo.com Subject: Re: [TMIC] Facebook Page ? Hi Jim,? ? I'm afraid to even start Farm Town---I KNOW I'll get addicted...as it is, I already need to start attending Mahjong Addicts Anonymous meetings? ;-)?? Gracie ? ? Save energy, paper and money -- get the Green Toolbar.
Re: [QUAD-L] testing
Welcome Maggie, you did it, hooray! You just ask a question, or make a statement and someone will respond. Naomi C4 quadriplegic due to Transverse Myelitis since July 2, 2005 -Original Message- From: Margarita Elizondo blessed_with_l...@yahoo.com To: quad-list@eskimo.com Sent: Wed, Jun 24, 2009 8:31 pm Subject: [QUAD-L] testing I was refereed to this resource, how does it work? I hope to get a reply, a welcome, or a yeah you did it! ? Maggie Elizondo??? ??? ??? ??? ??? ??? For him, through him, and in the service of others... Advocate For Individuals With Disabilities
Re: [QUAD-L] Questions
Sorry, I came in on the tail end of the conversation. Did you have a Foley catheter before your supra pubic catheter ? I have a Foley catheter and I'm thinking about getting a supra pubic. A really good friend of mine, who's a nurse, told me that my urethra will erode from sitting on it all the time. She suggested I get a supra pubic. I don't know if this is true or not. Anyone have any suggestions Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1222377052x1201454391/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [QUAD-L] where is dana ?
OMG Kathy!! You have been to Hell and the devil threw you back! I can't even imagine going through all of that hell. Did one thing lead to another, or were they all separate incidents? My heart goes out to you. I have my periods of hospitalizations for infections and MRSA, but nothing like that. I am getting ready to have my Bacoflen pump removed. It keeps swelling and pain in the area of my pump. I have had ultrasounds and CAT scans, but they cannot find out what the problem is, so I'm having it removed. Especially since the neuro nurse says the pump may reject and come right out of body! Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] web site design
Bob, Thank you so much for all of your useful information. It is a lot to devour, but I will do as you say and hopefully, my mind is well enough to follow directions. Wish me luck! C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] web site design
Steve, Thank you very much for the information you offered. I will give it a try to see how I make out. Sometimes my mind is pretty foggy from all the medication I take, but I will do the best I can. Wish me luck! Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] web site design
Jim, I looked at all of the sites and, they look simple enough, not a lot of fanfare. Maybe it will be just simple enough for me to do it. Thanks for the help. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] web site design
Bob, Thank you so very much for clearing this up for me. It is less confusing and less scary for me now. When I have one created, I will let you know. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] web site design
Steve , Thank you very much for this information. This is very handy in creating an informational web site. I will try this and see what I can create. Wish me luck. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] Windows Vista and Voice Recognition System
I feel you! Working with this voice recognition system, SUCKS! !! I was used to working with Naturallyspeaking. I am getting better at using it, but I still don't like it. It doesn't type in all of the programs that I'm used to. I have to open word pad and type in there and then cut and paste. It is a pain in the ass. My husband bought it for me, trying to do a good thing. So I didn't want to take it back and hurt his feelings. Now I'm having second thoughts. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] web site design
Bob, are you a quad? I had considered learning Web Design, what does reading your post, gave me a headache and scare me off. Maybe I can find something else I can do. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
[QUAD-L] Windows Vista and Voice Recognition System
My computer crashed and I had to get a new one. The computer came with Windows Vista and a voice recognition program already loaded onto it. Has anyone had any luck with this voice recognition system? It doesn't type into sites that I visit regularly. The only site I've had luck in is Windows Live Messenger and Facebook. It does not type in instant message on AOL, and I'm still finding other areas where it will not type. Making corrections are a pain in the ass! Dragon Naturally Speaking was MUCH easier to use. I thought it was me so I went back and read the instructions over and over again. Now I have to get use to putting in punctuations. I just HATE it!! And it has the nerve to not let you install Dragon Naturally Speaking!. The Windows Vista I am learning to use it. It is different, but I am learning. I had my files saved from my old computer and put on this one when I purchased it, though finding them is no easy task.. Has anyone else been using Windows Vista and this voice recognition program? What do you think of it? Do you have any recommendations? Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] Hypothermia
Hello two Lori's, Add me as another female to the quad list. I don't comment much, but I am here. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] Waking up in bed
Eric, we tried intercom system, but my husband has sleep apnea and sleeps with a C pap machine which makes it very difficult for him to hear anything. We have reverted to using the cell phone. He keeps his on vibrate, which may or may not wake him. It's a crap shoot. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Re: [QUAD-L] Waking up in bed
Dan, I wish my caregiver slept on the same floor as I! My bed is in the family room downstairs, and he sleeps upstairs in our bedroom. It makes for difficult communication. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Need a job? Find employment help in your area. (http://yellowpages.aol.com/search?query=employment_agenciesncid=emlcntusyelp0005)
Re: [QUAD-L] rohoo instructions
I hope this helps. _ROHO Medical Products_ (http://www.therohogroup.com/products/) Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis **Need a job? Find employment help in your area. (http://yellowpages.aol.com/search?query=employment_agenciesncid=emlcntusyelp0005)
Re: [QUAD-L] Re: Love Those Seinfield Shows-OT
A mobile arm support is an OT item. I used the support when I was initially in the hospital, three years ago, and it was very helpful for me then. Now that I have my own, which has recently been installed on my wheelchair, I'm hoping to receive the same or better results with it. My only problem is having someone to correctly set it up for me doing the day. Because there are so many adjustments that can be made on the support, it is crucial to have it initially adjusted properly so the only adjustments to be made later will be adding or removing a rubber band. My left arm is the only arm I have any mobility in, and it is very little mobility. I am unable to raise my arm any higher than my bust line. But with the device. I am able to turn the light switch off and on, operate a door knob, retrieve mail from the kitchen counter, and even work on my beaded jewelry projects. It may not seem like a lot, but it allows me a significant amount of independence by having it available to use. Naomi C4 quadriplegicdue to Transverse Myelitis since July 2, 2005 In a message dated 1/24/2009 5:48:22 P.M. Eastern Standard Time, wheelchair writes: Thank You Naomi. Was that a OT or PT item, in your case? Once again, in your case, how does it work for you. Best Wishes In a message dated 1/24/2009 4:38:21 P.M. Central Standard Time, LadyNotes writes: The BFO is now known as the MAS, Mobile Arm Support. I have one that attaches to my wheelchair that I use for task work such as reading a magazine, feeding myself, or any other work that requires the use of my arm. It can be adjusted up, down, or side to side, steel with the use of rubber bands. Naomi C4 quadriplegicdue to Transverse Myelitis since July 2, 2005 In a message dated 1/23/2009 9:13:49 P.M. Eastern Standard Time, wheelch...@aol.com writes: Balanced Forearm Orthosis (BFO), is a device used in rehab. PT or OT may use them to create Zero Gravity on ones arms , using rubber bands as counter tension on the BFO. With Zero weight on the fore limbs, the patient can begin the process of exercise to strengthen muscles. By posting BOF, I was hoping that one of the OT or PT would correct me with... well you know where I'm going, lol. Did you have any exposure to BFO in rehab? Best Wishes In a message dated 1/23/2009 7:42:41 P.M. Central Standard Time, quad...@gmail.com writes: It really would have been great with cell phones. I never really thought about that aspect of the show. I read the story about the Las Vegas scooters. I guess that they're willing to pay for them, but then again everyone thinks they're disabled. Panhandling can be lucrative in the right spots. I just read in my local paper that street performers are looking to rent a couch down here during the Super Bowl. I could make some extra cash, but I don't want somebody I don't know staying in my house. This is completely unrelated, but what are BOFs? I happened to see that acronym in one of your previous e-mails and someone else asked. I've been in his chair for 13 1/2 years and I've never heard of that acronym. Quadius On Fri, Jan 23, 2009 at 8:34 PM, _wheelch...@aol.com_ (mailto:wheelch...@aol.com) wrote: Its a shame that the show ended before cell phones... It would have been so good. Have you heard about those lazy butts who can afford to rent mobility scooters in Las Vegas and dealers willing to rent them for $40 bucks a day without asking questions. or the California street beggars that are using hospital grade wheelchairs to beg in with cups. Some can make a couple hundred dollars a day doing this.. Kewl, eh? BestWishes In a message dated 1/23/2009 7:27:15 P.M. Central Standard Time, _quad...@gmail.com_ (mailto:quad...@gmail.com) writes: This reminds me of the Seinfeld episode about George parking in the disabled spot. I'm lucky that I have someone with me so I don't have to take it disabled spots most of the time. I really feel for those individuals who drive or actually need a disabled spots with the ramp access A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www. freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=DecemailfooterNO6 2) -- Quadius C2-3 incomplete 13 years post injury A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www .freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=DecemailfooterNO 62) From Wall Street to Main Street and everywhere in between, stay up-to-date with the _latest news_ (http://aol.com/?ncid=emlcntaolcom0023
Re: [QUAD-L] Re: Love Those Seinfield Shows
The BFO is now known as the MAS, Mobile Arm Support. I have one that attaches to my wheelchair that I use for task work such as reading a magazine, feeding myself, or any other work that requires the use of my arm. It can be adjusted up, down, or side to side, steel with the use of rubber bands. Naomi C4 quadriplegicdue to Transverse Myelitis since July 2, 2005 In a message dated 1/23/2009 9:13:49 P.M. Eastern Standard Time, wheelch...@aol.com writes: Balanced Forearm Orthosis (BFO), is a device used in rehab. PT or OT may use them to create Zero Gravity on ones arms , using rubber bands as counter tension on the BFO. With Zero weight on the fore limbs, the patient can begin the process of exercise to strengthen muscles. By posting BOF, I was hoping that one of the OT or PT would correct me with... well you know where I'm going, lol. Did you have any exposure to BFO in rehab? Best Wishes In a message dated 1/23/2009 7:42:41 P.M. Central Standard Time, quad...@gmail.com writes: It really would have been great with cell phones. I never really thought about that aspect of the show. I read the story about the Las Vegas scooters. I guess that they're willing to pay for them, but then again everyone thinks they're disabled. Panhandling can be lucrative in the right spots. I just read in my local paper that street performers are looking to rent a couch down here during the Super Bowl. I could make some extra cash, but I don't want somebody I don't know staying in my house. This is completely unrelated, but what are BOFs? I happened to see that acronym in one of your previous e-mails and someone else asked. I've been in his chair for 13 1/2 years and I've never heard of that acronym. Quadius On Fri, Jan 23, 2009 at 8:34 PM, _wheelch...@aol.com_ (mailto:wheelch...@aol.com) wrote: Its a shame that the show ended before cell phones... It would have been so good. Have you heard about those lazy butts who can afford to rent mobility scooters in Las Vegas and dealers willing to rent them for $40 bucks a day without asking questions. or the California street beggars that are using hospital grade wheelchairs to beg in with cups. Some can make a couple hundred dollars a day doing this.. Kewl, eh? BestWishes In a message dated 1/23/2009 7:27:15 P.M. Central Standard Time, _quad...@gmail.com_ (mailto:quad...@gmail.com) writes: This reminds me of the Seinfeld episode about George parking in the disabled spot. I'm lucky that I have someone with me so I don't have to take it disabled spots most of the time. I really feel for those individuals who drive or actually need a disabled spots with the ramp access A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www. freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=DecemailfooterNO6 2) -- Quadius C2-3 incomplete 13 years post injury A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www .freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=DecemailfooterNO 62) **From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news. (http://aol.com?ncid=emlcntaolcom0023)
Re: [QUAD-L] What Keeps You Going?
Steve, The things that keep me going are: 1. My children and grandchildren. 2. I can't let down the people who have gotten me this far. 3. I always did like a good challenge Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv000547)
Re: [QUAD-L] what kind of mouse do you use
Trackball mouse is the only mouse I can use. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-Volkswagen-Jetta-2009/expert-review?ncid=aolaut000307 )
Re: [QUAD-L] Health Update
Linda, You live in your apartment alone? I think I remember you talking about this once before, but my memory is pretty bad. And I just need a refresher, sorry. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
Re: [QUAD-L] Health Update
Dana, I am doing pretty good. My therapy is going very well. I am getting a lot of stretching exercises per doctor's orders. I wasn't getting any stretching at home, and my muscles were very tight. I have also been working on, sit to stand exercises. They are also going very well. One of my goals was to be able to feed myself. I have been working on that and have been able to eat most meals without assistance, yeah! I had to have the maintenance guy sharpen a fork for me, so it will be easier to stab my food in order to pick it up. I have to be extra careful, so I don't stab myself in the tongue while eating, LOL! Thanks for thinking about me. Keep me in your prayers. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
Re: [QUAD-L] murder ball
I saw the movie. That was enough for me. I am not that brave. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
Re: [QUAD-L] Court: disability laws protect those unable to have sex
Even with magnification, I was unable to read that small print. Can someone please translate this for me? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520)
[QUAD-L] Fwd: FAA
**Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr000520) ---BeginMessage--- Title: FAA Subject: FAA Good Afternoon, Hope all is well with everyone. If you know of anyone looking for employment under the age of 31 the Federal Aviation Administration is currently hiring air traffic controllers and no experience is necessary go to www.faa.gov go to quick find: air traffic controller and they are currently taking applications. Thank you and Have a Blessed Day Tara This e-mail from the thc-online.com domain has been scanned by modusGate. ---End Message---
[QUAD-L] Health Update
Hello my friend, Just a short note to let you know that I am currently in the hospital. I am having a problem with swelling to my Baclofen pump area. So far I have here to CAT scans and ultrasound and scheduled for an MRI. They still don't know what's causing the swelling. The one good thing that I am getting out of this, is that I am scheduled for some more physical and occupational therapy. Because I haven't been on the computer since Wednesday, the day I was admitted to the hospital, I have a ton of e-mail to read. I probably won't send much e-mail, but I will try to keep up with what's going on. Keep me in your prayers, Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus0005000112)
Re: FW: [QUAD-L] Re: [TMIC] Three-Year Mark
Merrill, Where do you and your companion go on your day trip? That sounds like a nice little trip just to get out of the house. I have never used Craig list before, but I will put it in my favorites and visit it at my leisure. Thank you for the suggestion, and I will see you on the Q. List. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut000507)
[QUAD-L] Re: [TMIC] Three-Year Mark
Good Afternoon, Many of you have asked my age, and how I manage. I am now 51 years old. I spent my 48th birthday in the hospital. It is very difficult to manage, because maybe not as many of you with TM may experience it, but many quadriplegics have experience with lack or loss of support from friends, family and community members. It is so hurtful and disappointing when friends, and especially family does not help or support you. If not for the help and support of my mother and husband and my strong faith in God, I would have surely lost my mind by now. I truly appreciate the support of my online friends. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut000507)
[QUAD-L] Three-Year Mark
Today, marks three years since I experienced that terrible pain in my neck and arm that made me know, that my life would be changed for ever. That was the day, that I became a quadriplegic due to Transverse Myelitis. Three years ago this day, about this time. I was being rushed to the emergency room in St. Paul, Minnesota with sudden paralysis of my arms and legs (I thought). I later found that I was paralyzed from the neck down. This whole ordeal was extremely frightening for me and my husband, because we were out of town and not sure how we were going to get back home. We were later flown back in a life flight jet, to the University of Michigan Hospital in Ann Arbor Michigan, were I spent a while in intensive care, on a ventilator. I spent three months in the University of Michigan Hospital, after which I went to a nursing facility for extended rehab. After the rehab. I went back into the hospital to have my Baclofen pump put in. I received a short period of rehab after the surgery. After one year and 23 days, I returned home, where I have been since. Being at home has been a struggle for me because I need 24 hour care, but cannot afford to pay someone to be here around the clock. My mother has been here helping me out since I've been home, but she is elderly and ill herself. I am currently checking into assisted living facilities. I think this will be the best move for us all. I really commend those of you who are able to stay home alone. If I just had use of my hands, it could be a whole different situation, but my right side is completely paralyzed, and I have limited use of my left arm and hand (pretty much useless). I have to contend with all of the issues that a quadriplegic faces. The only thing I haven't had to deal with, (Praise God!) are the pressure sores. I have not had to deal with that. Happy Birthday to all of the July babies! Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut000507)
Re: [QUAD-L] pain pump
Corie, It sounds as though we've been down the same path. I've tried all the meds that you've mentioned, with all the same results. I haven't had any pain medication put into my pump since I've had it. I will inquire about the Prialt. I've read up on it, and it sounds pretty scary, but so did some of the other medicines that I've taken. My Baclofen pump works very well for controlling the spasticity, but it will be an bonus, if I can get pain medication put into my pump that actually helps the pain. Thanks for this information. I will talk to my doctor about it. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: FW: [QUAD-L] neurontin
Merrill, Yes, it is the same procedure with the Baclofen pump. It is refilled once every six months, and adjusted as needed. But of course it's filled with Baclofen instead of morphine. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [QUAD-L] neurontin
Rob, I understand exactly what you mean about the pain. I am in excruciating pain, 24/7 also, given it a thought of taking the cowardly way out. It's terrible when you have no quality of life. I currently take 400 mg of Lyrica twice daily, 60 mg of Cymbalta, once a day, Vicodin three times a day, and 50 mcg Fentanyl patch every three days. This still doesn't control the pain. I had considered titrating off all my medication, but the withdrawal is a bitch! I don't know what to do. I am so stressed out from the pain that I have started clenching my jaw and grinding my teeth. My dentist ground my teeth down to relieve some of the pressure. The pain makes me totally exhausted. I will be contacting my doctor this afternoon about pain management. I am desperate. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
Merrill, Is the morphine in the form of a pill, a pump or a patch? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
Stacy, Thank you very much for your advice on pain management. I have tried meditation method, which was suggested by my psychiatrist, when I was in the hospital. It's extremely difficult for me to concentrate. Even when it is perfectly quiet in the room, it is extremely noisy and busy in my head. I also have a difficult time with prayer for the same reason. When I was on the steroids, it was even worse. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: FW: [QUAD-L] neurontin
Mark, I have a Baclofen pump, which is surgically implanted. Have you ever heard of anyone receiving pain medication through their Baclofen pump? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [QUAD-L] neurontin
Is the teeth rotting just for Neurontin or for all pregabalins? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
[QUAD-L] Check out Iced Coffee Day on Thursday, 5/15
**Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301) ---BeginMessage--- Hello dawn, de has forwarded the following email to you with this message: If you would like to subscribe to this email, click here https://www.dunkindonuts.com/SignIn.aspx?ReturnUrl=%2fyouraccount%2fDef ault.aspx . Tracy Cohen Corporate AP Analyst Tire Centers,LLC P O Box 218 Duncan SC 29334 Direct Line 864-329-2723 Fax 877-587-9946 -Original Message- From: Rodgers, Dawn Sent: Tuesday, May 13, 2008 9:03 AM Subject: Check out Iced Coffee Day on Thursday, 5/15 This was forwarded to me - hope you get some use out of it if you have a dunkin donuts near you. Enjoy - http://click.email.dunkindonuts.com/open.aspx?ffcb10-fe8f10777660007973 -fe0216737565007e76147672-ff001073736406-fe9a15737164027b74-fe2a16727c67 0079711372-ffcf14 http://image.email.dunkindonuts.com/lib/ff001073736406/i/1/a61438d6-0.g if If you are unable to view this email click here to view it online. http://image.email.dunkindonuts.com/lib/ff001073736406/i/1/a61438d6-0.g if Free Iced Coffee Day! http://click.email.dunkindonuts.com/?ju=fe611773726407797c15ls=fe02167 37565007e76147672m=ff001073736406l=fe9a15737164027b74s=fe2a16727c6700 79711372jb=ffcf14t= http://image.email.dunkindonuts.com/lib/ff001073736406/i/1/432ab67c-6.g if Hi Debbie, You're invited to FREE Iced Coffee Day* at Dunkin' Donuts from 10am to 10pm on Thursday, May 15th, 2008. Stop by to enjoy a free small 16 oz. Iced Coffee just the way you like it. For a customized cool, try one of our many sugar-free flavors like blueberry, caramel or hazelnut. Don't enjoy Free Iced Coffee Day alone. Share the fun and bring a friend. http://image.email.dunkindonuts.com/lib/ff001073736406/i/1/7054c9e4-f.g if Free Iced Coffee Day: May 15th, 2008http://image.email.dunkindonuts.com/lib/ff001073736406/i/1/57c998d7 -f.jpg Spred the Word http://click.email.dunkindonuts.com/?ju=fe601773726407797c16ls=fe02167 37565007e76147672m=ff001073736406l=fe9a15737164027b74s=fe2a16727c6700 79711372jb=ffcf14t= *At participating Dunkin' Donuts shops only. Thursday, May 15, 2008 from 10am-10pm. Cannot be combined with any other offer. One free small 16 oz. Iced Coffee per person, per visit. No purchase necessary. (c) 2008. DD IP Holder LLC. All rights reserved. For more information, please visit www.DunkinDonuts.com http://click.email.dunkindonuts.com/?ju=fe5f1773726407797c17ls=fe02167 37565007e76147672m=ff001073736406l=fe9a15737164027b74s=fe2a16727c6700 79711372jb=ffcf14t= or email customer service at [EMAIL PROTECTED] mailto:[EMAIL PROTECTED] . Read our Privacy Statement http://click.email.dunkindonuts.com/?ju=fe5e1773726407797c10ls=fe02167 37565007e76147672m=ff001073736406l=fe9a15737164027b74s=fe2a16727c6700 79711372jb=ffcf14t= . If you believe you received this message in error and/or do not wish to receive further emails, please click here. Modify your email format. Thank you. Dunkin' Donuts 130 Royall Street Canton, MA, 02021, USA ---End Message---
Re: [QUAD-L] My name's Luis
Cullen, I know as bad as you want to sometimes, you just cannot forget the day that had such an impact on your life. I don't know if it's appropriate to say, happy anniversary, so I'll just say, thank God that you have seen 11 more years. I wish you well. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [QUAD-L] Wheelchair Monologue- 10 steps to resolving
Wheelchair, What is the 10 step program? Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [QUAD-L] Gas price's what are you guys paying
Some gas prices are as high as $3.74 in Michigan Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] coffee anyone?
Bobbie, Congratulations on making your own cup of coffee. I am proud of you, and quite envious. I'm sure Pete will be thrilled. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] Remote Controls
I lay my bed remote across my lap. I lie on my back when sleeping and I can only use the left-hand so, I position the remote where I can reach it with that left-hand. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] Bed...
Mark, Flannel sheets are a nice, but for those of us who have our own personal summer, power surge, or whatever name you give to your hot flashes, they can be a bit warm to use year-round. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] Bed...
Tammy Lou, Although the type of bed used is very important, the type of linen can be just as important. When I was in the hospital, their sheets was so rough that it was difficult for me to lay on them. I had to be turned more than usual. I find that using sheets with a high thread count can be very comforting. The higher the thread count, the more costly the sheets are. I try to get a thread count of 500 to 800. Eight hundred thread count sheets are very expensive, but they are smooth as butter. Although my mattress is just a vinyl covered mattress, nothing special, the sheets I put on it, makes a world of difference. Just keep this in mind when thinking about the comfort of your bed. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Need a new ride? Check out the largest site for U.S. used car listings at _AOL Autos_ (http://autos.aol.com/used?NCID=aolcmp0030002851) . **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] Bed...
Tammie Lou, I just use a folded flat sheet, same thread count as the fitted sheet. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
[QUAD-L] Medical Help
It really amazes me at the number of people who write to this list asking for medical advice or if they should go to the doctor to get something checked out. As helpful as everyone on this list tries to be, I don't think anyone here can offer real medical advice to someone without knowing their medical history or the severity of the medical issue in question. Maybe it's just me, but if ANYTHING is out of the ordinary for me, I call the doctor's office and schedule an appointment, unless of course, I need to go to emergency. I would think that after most of what us quads have been through, we should not hesitate to get medical attention. It could mean the difference between life and death. If it isn't anything that severe, at least we've had it checked out and know what's going on. At least that's my two cents worth. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] Medical Help
W, I have used the services of a nurse practitioner, when the doctor wasn't available. The service was exceptional. She seemed to have more time to spend with me on each visit. I was very satisfied with the results. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [QUAD-L] Anybody nerve senitive to noises?
Bobbie, I find that I am very sensitive to any type of noise. I tend to like things quiet. Any type of noise is very irritating to me and I also startle easily. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **It's Tax Time! Get tips, forms and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolcmp0030002850)
Re: [QUAD-L] repeat UTI infections --- Hiospital I.V. or PICC line ?
Dan, Are you saying that you have a suprapubic catheter now or are you asking if that will help? I have trouble with a lot of UTIs also. My urologist does not suggest a suprapubic catheter. He said it would not make a difference as far as UTIs go. I have had a couple of pic lines. The first I got while in ICU, so I don't remember the ease of getting it, but the second one I got in the hospital prior to surgery. It was one of the most horrifying and painful experiences I have had while in a hospital! It was clearly the technicians error, because after many failed tries, I told him that I could no longer stand the pain, and I did not want the pic line. He screwed the one arm up so bad, he wanted to start on the other arm. I told him he had one try, and that was it. He got it on the first try. My other arm was so full of holes and eventually became very hard and set up a blood clot, for which I had to be treated. I am sure you will have much better luck than I did. I think Murphy should be my middle name. If something bad can happen to me, it will. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [QUAD-L] Meditation instructor here
Bobbie, Exactly, what does a Mediation Instructor do? I mean, what do you mediate? Naomi C4 quadriplegic since July 2005 due to Transverse Myelitis **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [QUAD-L] Standing Therapy to Prevent Osteoporosis
Gary, I had standing therapy in the standing frame for a short period of time (one month, twice weekly) in order to prepare me for a walking therapy. I had to be able to stand in the standing frame for at least 45 minutes without my blood pressure plummeting before attempting to use the walking machine. This was the extent of my standing therapy. I'm happy to say that I succeeded in the standing frame and am currently on a walking machine called the Locomat _YouTube - Locomat_ (http://www.youtube.com/watch?v=Ryp5YavgO2gfeature=related) I certainly hope this will be a help for me. I have been in my wheelchair for nearly 3 years. I do not have osteoporosis, but after being in the chair for so long, it was good to try to stand. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
